Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 AN, If I were to try to explain feeling it would be like this. Say you have been getting together with a friend for years or months anyway and dicussing a problem you are having and they listen and give advice sometime or say 'me too', etc, and then one day friend says that they have been keeping notes on what you said and thinking of putting it in a book. Even if not putting my name to it, it's upsetting. Could be worse, maybe friend tells you she has been taping whole thing! So I think you are listening to me and discussing w me bec you are being supportive, or have same issues and are seeking answers, which is what a support group is but instead sounds like you are here 'at work'. What is missing is revealing earlier and most of all, asking permission. " Would you all mind if I wrote a book about this? I am a writer and would like to write about it. " That's what's missing, so we know who you are and what you are doing and you are taking notes w our permission and knowledge. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Barb, that's not an accurate analogy. As I said a month ago and repeated yesterday, this book is ABOUT WDBs--it is NOT about whatever people shared here about their experiences with WDBs. Do you understand the difference? (I'm not being sarcastic--I'm really asking.) So a better analogy would be this: I'm talking to my friend, as I often do, about my fatigue and CFS. She talks about her experiences, too, with CFS. Then one day I said, I'm writing about CFS. It's not about our conversations. I respect your privacy. Because that's what happpened here. I guess if I have to search through the archives and repost what I wrote here a month ago, I will, but it's not easy since I use email on my smartphone. I have received a few emails since getting these responses that have basically said: thank you for doing this. I don't know what people are reacting so negatively, either. I'm happy your going to contribute. As for the other people reacting in the opposite way: a better approach would have been a friendly one. " Gee, AN, I'm feeling a little concerned about what your book will be about. You won't be drawing on what we've discussed here, will you? " By the way, this privacy thing goes both ways. Let's say this book were to become a bestseller (it won't; I write literary nonfiction, which pays nothing and is read by relatively few people). What if you all figure out who I am and where I live? Well, as far as that goes, my postings here are private. They are not for use or discussion outside of this realm. I thought that understanding was obvious. After all, there are membership rules. I already said, a month ago--I volunteered to say this; nobody asked me too-that I would not use anyone's info. These unexpected reactions have really cast into doubt for me a lot of things I thought about it. As for your post, Barb, thanks for it. Thanks for trying a different tack . I see your point. Do you see mine? Sent from my iPhone On Feb 5, 2011, at 2:50 PM, bbw <barb1283@...> wrote: AN, If I were to try to explain feeling it would be like this. Say Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 well sorry, but you contradict yourself. if you dont have anything to hide you should have shared who you are and where you live. you write non-friction, wont tell who you are and are setting in a group for WDB exposures and have admitted that you well be trying to make a profit off this book. thats a little more than I fell comfortable with. and your attitude toward the very people that your claiming are the people you hope your book helps is contradicting. > > As I said a month ago and repeated yesterday, this book is ABOUT WDBs--it is NOT about whatever people shared here about their experiences with WDBs. Do you understand the difference? (I'm not being sarcastic--I'm really asking.) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 I did not see your post a month ago about the book but do now. Sorry we missed this then. All I can say is that Jeanine said it best. We aren't paranoid, we are cautious and our experience have given us good cause to be. There is no end to the number of people who take advantage of people's illnesses and in particular the mold topic, and frankly tired of people making money off of our ailment. People need to pass things like that past KC and I first. You do say in that post that you intend not to take peoples statements without permission and the rest. If person's activity in group will involve a possible profit, then people need to get permission from KC and I first. Not all money driven ventures would be against our interests. A book is not an enemy of group but we need to make sure that the rules are set and needs to be discussed w KC and I, and us with group, if you are here to get information. I suppose it is reasonable of you to think we would see it since we moderate the list but really we usually only have time to skim over posts, looking for signs of certain things, such as bad tone, off topic, irrelevant information, etc. If I had reviewed that post, I probably would have seen " I'm writing a book " , and thought... " it's a little off topic but short " , so approved it. > > Barb, that's not an accurate analogy. As I said a month ago and repeated yesterday, this book is ABOUT WDBs--it is NOT about whatever people shared here about their experiences with WDBs. Do you understand the difference? (I'm not being sarcastic--I'm really asking.) > > Quote Link to comment Share on other sites More sharing options...
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