RE: Tonsils & Adenoids

[Guest guest]

Yes, we did T & A surgery about two years ago with Davey. It was a very good decision. His ear infections, sinus infections, snoring, etc all improved. The recovery was a lot harder than I thought. It took Davey about 7 days before he really started feeling better. Talk to your ENT.mom to Amy 21, Kelsey 18, Davey 8 and Will 8Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12,Lucy7,(ds) & 3

[Guest guest]

(ds, adhd, autism) had his T & A removed in 2001 (age 4.5) and it helped immensely. His recovery was quick (I am sure it helped that he was fairly young at the time). Prior to the surgery I use to have to peel a film of mucus off of his entire face each morning and he had sleep apnea. It took going to two ENT's to get the surgery. The first ENT said "He has down syndrome, get used to it." The second one was more sympathetic to the issues (plus I tape recorded sleeping so the ENT could literally see stop breathing).Subject: Tonsils &

AdenoidsTo: Multiples-DS Received: Monday, December 29, 2008, 9:35 AM

Hi all!

Just wondering if any of your children had to have their t & a removed?

's are very large and cause quite a bit of snoring and he is a

loud mouth breather, (apparently there has been some connection with

ADHD and snoring) His peds have not mentioned it but I doubt they have

even noticed.

a

mom to Meg14,Jack12, Lucy7,( ds) & 3

[Guest guest]

had his tonsils and adenoids removed a few years ago. He had

constant sinus infections, lots of ear infections, and loud snoring

(mouth wide open). Although the number of ear infections has decreased

dramatically, he continues to have one sinus infection after another

during the winter months (here in Iowa) and he still snores. A few

years agao, we had him take a sleep apnea test since kids with DS are

so prone to that. He passed it but I am still questioning whether he

might not have it. He is a very restless sleeper (he's all over in the

bed). There is some controversy over whether to have adenoids removed

or not, but did just fine.

Mom to Austin (12) and 9 year old twins Gabe and (DS)

[Guest guest]

had to have a T & A, partial palatoplasty (to remove part of his soft palate), and a uvuloplasty (removed his entire uvula) when he was about a year and a half old. It was like he was breathing through a straw because he had too much tissue blocking his airway. He was going to be trached soon if this wasn't done. Anyway, the post op care was horrible and he was on the vent for 11 days....but he is so much better now. 

 Deanna, mom to

Alyssa, 14

, 12

Jarod, 8

(DS) 5

~i~Jordan (DS) 1/20/03-2/2/03

Tonsils & Adenoids

Hi all!

Just wondering if any of your children had to have their t & a removed?

's are very large and cause quite a bit of snoring and=2

0he is a

loud mouth breather, (apparently there has been some connection with

ADHD and snoring) His peds have not mentioned it but I doubt they have

even noticed.

a

mom to Meg14,Jack12,Lucy7,(ds) & 3

Listen to 350+ music, sports, news radio stations including songs for the holidays FREE while you browse. Start Listening Now!

[Guest guest]

We had 's removed when he was 3. They were so large (almost

touching eachother) and caused problems while he was asleep (he would

gasp for air). I really thought they needed to be taken out (I also had

mine out when I was 3 or 4) so I took him to an ENT. The ENT had very

little experience with small children, let alone one with Ds, so he

wasn't willing to do it. I finally took him to another ENT about an

hour away and he barely looked in his mouth and said they have to come

out. He had surgery a couple of weeks later (he also got his 3rd set of

tubes in at that point, but that is another messy story). He recovered

so well from having his t & a removed, and immediately started sleeping

better. It has been such a wonderful thing for him, I think.

Hope this helps! Good luck!

Mom to 5 (Ds), Ruth 2, 6 months (Ds)

>

> Hi all!

>

> Just wondering if any of your children had to have their t & a removed?

> 's are very large and cause quite a bit of snoring and he is a

> loud mouth breather, (apparently there has been some connection with

> ADHD and snoring) His peds have not mentioned it but I doubt they have

> even noticed.

>

> a

> mom to Meg14,Jack12,Lucy7,(ds) & 3

>

[Guest guest]

Yes, my twins both had surgery and it helped decrease sinus and ear infections. I also flush the girls noses/sinuses when they start to get runny noses. This really helps to prevents infections also. The flush is 2000ml bottle of normal saline and a smal tube of triple antibiotic ointment mixed in. I get a script from their ENT for that.

Take care, Jodie

Mom of Holly and h, 8 year old identical girls with DS.

Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12, Lucy7,( ds) & 3

[Guest guest]

My guys both have HUGE tonsils and snore like banshees. They do stop breathing as well but not often enough, I'm told by the ENT, to warrant surgery. He says it takes some ridiculous amount of episodes (12/hour?) before he recommends going forward. He told me when they were 2 to wait until they were 3. He told me at 3 that they never do surgery before 4. No doubt he'll tell me to wait again. My guys don't get sore throats or strep or tonsilitis or anything like that... But, especially , EVERY cold turns into a bleeding sinus infection (due to the compressed sinus cavity in children with DS). And, they get colds ALL the time. For them, a cold can last 3 weeks and knocks the daylights out of them b/c then they can't breath AT ALL... since they frequently breath through their noses given their throat openings are so small due to the huge tonsils. Same story

you guys are talking about, I guess. I've just been doing the "wait and see" dance with regards to pursuing the surgery. I wonder if it would help them sleep better though.

xo maggie

Olivia '01 and & '05 (IDs w/ DS)

To: Multiples-DS Sent: Monday, December 29, 2008 9:40:31 AMSubject: Re: Tonsils & Adenoids

Yes, we did T & A surgery about two years ago with Davey. It was a very good decision. His ear infections, sinus infections, snoring, etc all improved. The recovery was a lot harder than I thought. It took Davey about 7 days before he really started feeling better. Talk to your ENT.

mom to Amy 21, Kelsey 18, Davey 8 and Will 8

Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12, Lucy7,( ds) & 3

[Guest guest]

Your guy sounds just like mine. All over the bed, restless, loud, frequent wake-ups (I believe due to the breathing problems) but not enough to warrant the surgery... per the ENT. What's the controversy? xo maggie

Olivia '01 and & '05 (IDs w/ DS)

To: Multiples-DS Sent: Monday, December 29, 2008 10:10:27 AMSubject: Re: Tonsils & Adenoids

had his tonsils and adenoids removed a few years ago. He had constant sinus infections, lots of ear infections, and loud snoring (mouth wide open). Although the number of ear infections has decreased dramatically, he continues to have one sinus infection after another during the winter months (here in Iowa) and he still snores. A few years agao, we had him take a sleep apnea test since kids with DS are so prone to that. He passed it but I am still questioning whether he might not have it. He is a very restless sleeper (he's all over in the bed). There is some controversy over whether to have adenoids removed or not, but did just fine. Mom to Austin (12) and 9 year old twins Gabe and (DS)

[Guest guest]

The controversy is due to the fact that adenoids can grow back and

there are some who say that you shouldn't take all of the adenoid out

because it is considered to be a " supportive structure " (whatever that

means!). We had all the adenoids removed. Here is more info from Dr.

Len Leshin: http://www.ds-health.com/apnea.htm. It makes me think that

we should consider videotaping him here at home too. I often find him

sitting straight up and " sleeping " at the same time. It makes me

wonder if he is getting enough quality sleep and that if he got better

sleep, we would have less behavior problems in the afternoon and

evening - when is much more grumpy!!

Mom to Austin (12) and 9 year old twins Gabe and (DS)

[Guest guest]

Based on what you said, I think I'd get a second opinion. It almost

seems like the doctor might be nervous to operate and that is why he

keeps putting it off. I wouldn't want a doctor who is unsure to

operate on my child. It wouldn't hurt to get a second opinion and it

seems like you have justification to get the tonsils and adenoiods

removed. The later the surgery the harder it is to recover. Just a

suggestion!! :-)

Mom to Austin (12) and 9 year old twins Gabe and (DS)

[Guest guest]

That's funny . I prop big pillows up around the edges of the bed so the boys can lean up on them since that, it seems, is their favorite position... otherwise, they can't breathe right. xo maggie

Olivia '01 and & '05 (IDs w/ DS)

To: Multiples-DS Sent: Monday, December 29, 2008 12:13:40 PMSubject: Re: Tonsils & Adenoids

The controversy is due to the fact that adenoids can grow back and there are some who say that you shouldn't take all of the adenoid out because it is considered to be a "supportive structure" (whatever that means!). We had all the adenoids removed. Here is more info from Dr. Len Leshin: http://www.ds- health.com/ apnea.htm. It makes me think that we should consider videotaping him here at home too. I often find him sitting straight up and "sleeping" at the same time. It makes me wonder if he is getting enough quality sleep and that if he got better sleep, we would have less behavior problems in the afternoon and evening - when is much more grumpy!!Mom to Austin (12) and 9 year old twins Gabe and (DS)

[Guest guest]

HI a

Neil and both had their tonsils and adenoids removed. Neil had both done at the same time and had his adenoids out first and a few years later his tonsils. The reason we had the T & A removed was because of very loud snoring and very restless sleep. The boys sleep has improved a lot. Now at age fifteen we a looking at another surgery in the next few years because the boys jaws are not growing properly and the snoring is starting again. Not as bad as before but it is noticeable. especially has issues with eating and swallowing. His Jaw is the worst and he will need his upper jaw brought forward and his lower jaw moved back. Neil just needs his upper jaw brought forward. The doctors will not do anything until the boys stop growing which is around 18 years of age. I would push for the T & A surgery because it also made a big difference in their ear and throat infections. They slept better and were able to fight infections better.

Good luck

from Caroline in mom to Neil and 15 year old identical twins with DS.

P.S Neil and asked Santa for Chocolate cake, hot chocolate and Chocolate candy for Christmas and Santa brought it all.

What lucky guys

Tonsils & Adenoids

Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12,Lucy7,(ds) & 3

[Guest guest]

Thanks so much Caroline and everyone else who responded so quickly, I LOVE this listserv, you guys are the best. It's like listening to myself, is all over the bed at night, so restless and he still wakes up a couple of times a week, we too have found him sitting up asleep at night, and the head colds that last for weeks!!!!!! I am calling my peds tomorrow, thanks again!

a\

Mom to Meg14,jack12,Lucy7,(ds) & 3

Re: Tonsils & Adenoids

HI a

Neil and both had their tonsils and adenoids removed. Neil had both done at the same time and had his adenoids out first and a few years later his tonsils. The reason we had the T & A removed was because of very loud snoring and very restless sleep. The boys sleep has improved a lot. Now at age fifteen we a looking at another surgery in the next few years because the boys jaws are not growing properly and the snoring is starting again. Not as bad as before but it is noticeable. especially has issues with eating and swallowing. His Jaw is the worst and he will need his upper jaw brought forward and his lower jaw moved back. Neil just needs his upper jaw brought forward. The doctors will not do anything until the boys stop growing which is around 18 years of age. I would push for the T & A surgery because it also made a big difference in their ear and throat infections. They slept better and were able to fight infections better.

Good luck

from Caroline in mom to Neil and 15 year old identical twins with DS.

P.S Neil and asked Santa for Chocolate cake, hot chocolate and Chocolate candy for Christmas and Santa brought it all.

What lucky guys

Tonsils & Adenoids

Hi all!

Just wondering if any of your children had to have their t & a removed?

's are very large and cause quite a bit of snoring and he is a

loud mouth breather, (apparently there has been some connection with

ADHD and snoring) His peds have not mentioned it but I doubt they have

even noticed.

a

mom to Meg14,Jack12,Lucy7,(ds) & 3

Listen to 350+ music, sports, news radio stations including songs for the holidays FREE while you browse. Start Listening Now!

[Guest guest]

From what I've learned/heard, tonsil size is rated on a scale of 1-4, 4 being the largest. My guys were at 3.5 and 3 the first time we saw the ENT. He told us to wait and see b/c the boys were still growing and the tonsils could get bigger or they could get smaller and he didn't want to do surgery if it wasn't necessary. The 2nd time we saw him, they switched and the 3.5 was 2.5 and the 3 was 3.5... or so he said! Note: they had also mistakenly filed their records in the other's folder so I'm not sure of that... The ENT swore he had them straight despite the papers being in the wrong folders. Honestly, I don't think it's changed. They're HUGE and have always been so. (BTW - choking on food is another side effect of large tonsils and my guys choke/cough frequently... but don't actually block the airway so "it's not serious"... I'm told.)

Anyway, I'm a "less-is-more" mom and believe in the wait and see as long as they're not in any danger. (I won't put them under for anything -- much less surgery -- unless it's absolutely, positively necessary as we had a bad experience with severely delayed waking up!) I sleep vigil with the boys to make sure they're breathing... I'm sure you can ALL relate to that statement. (I haven't slept through a night in 7 years... literally!) I can't say they're sick often or enough or that they sleep poorly enough to warrant surgery... yet. And, they don't suffer ear infections hardly at all (I think we've had 3 in 3.5 years). It's just the sinus infections which, I'm not sure would be helped since the surgery doesn't change the compressed sinus cavity (slightly flatter face = slightly smaller sinus cavity... AND, I'm prone to them myself WHEN I get sick)... though it could help clear the cold and give them better rest

during illness, I suppoe. But, I think I might try taping them (when they're well) and see just how often they are waking themselves up with stop-breathing/breathing difficulty b/c they do seem to be sitting up asleep many MANY times a night.

Boy, this was a topic I wasn't really focused on lately. Thanks for asking the question.

xo maggie

Olivia '01 and & '05 (IDs w/ DS)

To: Multiples-DS Sent: Monday, December 29, 2008 12:18:28 PMSubject: Re: Re: Tonsils & Adenoids

That's funny . I prop big pillows up around the edges of the bed so the boys can lean up on them since that, it seems, is their favorite position... otherwise, they can't breathe right. xo maggie Olivia '01 and & '05 (IDs w/ DS)

From: highlandtchr <tmagniowatelecom (DOT) net>To: Multiples-DS@ yahoogroups. comSent: Monday, December 29, 2008 12:13:40 PMSubject: Re: Tonsils & Adenoids

The controversy is due to the fact that adenoids can grow back and there are some who say that you shouldn't take all of the adenoid out because it is considered to be a "supportive structure" (whatever that means!). We had all the adenoids removed. Here is more info from Dr. Len Leshin: http://www.ds- health.com/ apnea.htm. It makes me think that we should consider videotaping him here at home too. I often find him sitting straight up and "sleeping" at the same time. It makes me wonder if he is getting enough quality sleep and that if he got better sleep, we would have less behavior problems in the afternoon and evening - when is much more grumpy!!Mom to Austin (12) and 9 year old twins Gabe and (DS)

[Guest guest]

I don't blame you for playing the " wait and see " game, Margaret. The

less stuff our kids have to go through the better! It sounds like

you've lucked out on not having many ear infections or strep throats.

The sinus infections are not fun, to say the least. I don't know about

you guys, but gets VERY naughty right before he shows the GREEN!

Our ENT is so awesome. He has put on prophylactic antiobiotics

just to get him through the good ole' Iowa winters! So, it might be

something to consider on your end too? Does the sinus infections occur

all year round?? If so, maybe allergies is something to look at too...

Mom to Austin (12) and 9 year old twins Gabe and (DS)

[Guest guest]

Yes, year-round. Always follows on a cold. When there's no cold, there's no sinus trouble. I don't think there are any allergies b/c it's not seasonal and always starts with a cold. And, the cold generally spreads to me or my daughter so I know it's a contagion vs. an allergen. And, we have 2 cats and a dog which have never affected them at all. Though, I have to say, the bedroom is hot and dry despite my best efforts to humidify it. It puts a dry coating in my nostrils such that I can't breathe so it can't be helping them. Gives my daughter nose bleeds. We'll all be fine until we go up to bed. A sick room, I guess. But, it's a brand new addition. Maybe too tightly sealed. I don't know what to do. I turn down the heat, put on the humidifier, put the air purifier on, open the door, close the door you name it... nothing

changes. It's like it's so tightly sealed (new construction) that everything is just STUCK in there. Terrible room! xo maggie

Olivia '01 and & '05 (IDs w/ DS)

To: Multiples-DS Sent: Monday, December 29, 2008 1:01:28 PMSubject: Re: Tonsils & Adenoids

I don't blame you for playing the "wait and see" game, Margaret. The less stuff our kids have to go through the better! It sounds like you've lucked out on not having many ear infections or strep throats. The sinus infections are not fun, to say the least. I don't know about you guys, but gets VERY naughty right before he shows the GREEN! Our ENT is so awesome. He has put on prophylactic antiobiotics just to get him through the good ole' Iowa winters! So, it might be something to consider on your end too? Does the sinus infections occur all year round?? If so, maybe allergies is something to look at too...Mom to Austin (12) and 9 year old twins Gabe and (DS)

[Guest guest]

Do you guys run a cool humidifier? Works great with my little guy. Keeps him from getting sinus infections and helps when he gets a cold. I also put a infant rub on his chest before he goes to bed or down for a nap. My oldest that has downs (20) had ALOT of ear infections always on antibiotics now she is allergic to any and all antibiotics. So be careful if your doctor always wants to put your child on medication. FYI.

Mum To Elisha 20 (DS), Karissa 17, Kelsey 14 and Mason 1 Yr old (DS)

To: Multiples-DS Sent: Monday, December 29, 2008 2:57:55 PMSubject: Re: Re: Tonsils & Adenoids

Yes, year-round. Always follows on a cold. When there's no cold, there's no sinus trouble. I don't think there are any allergies b/c it's not seasonal and always starts with a cold. And, the cold generally spreads to me or my daughter so I know it's a contagion vs. an allergen. And, we have 2 cats and a dog which have never affected them at all. Though, I have to say, the bedroom is hot and dry despite my best efforts to humidify it. It puts a dry coating in my nostrils such that I can't breathe so it can't be helping them. Gives my daughter nose bleeds. We'll all be fine until we go up to bed. A sick room, I guess. But, it's a brand new addition. Maybe too tightly sealed. I don't know what to do. I turn down the heat, put on the humidifier, put the air purifier on, open the door, close the door you name it... nothing

changes. It's like it's so tightly sealed (new construction) that everything is just STUCK in there. Terrible room! xo maggie Olivia '01 and & '05 (IDs w/ DS)

From: highlandtchr <tmagniowatelecom (DOT) net>To: Multiples-DS@ yahoogroups. comSent: Monday, December 29, 2008 1:01:28 PMSubject: Re: Tonsils & Adenoids

I don't blame you for playing the "wait and see" game, Margaret. The less stuff our kids have to go through the better! It sounds like you've lucked out on not having many ear infections or strep throats. The sinus infections are not fun, to say the least. I don't know about you guys, but gets VERY naughty right before he shows the GREEN! Our ENT is so awesome. He has put on prophylactic antiobiotics just to get him through the good ole' Iowa winters! So, it might be something to consider on your end too? Does the sinus infections occur all year round?? If so, maybe allergies is something to look at too...Mom to Austin (12) and 9 year old twins Gabe and (DS)

[Guest guest]

a,

Cate had her tonsils and adenoids removed when she was 3 yrs. old. Great decision! She rarely gets upper respiratory infections now. (Stomach viruses, a different story!) My pediatrician also never mentioned the tonsils, I was concerned enough about her constant infections to consult with an ENT. Also, if you google a Dr. Palmer (a pediatric ENT in Ft. Worth), he is doing a new laser procedure that is resulting in less recovery time and less pain. Worth discussing when you meet with your ENT surgeon.

When the ENT removed the tonsils, he said they just about crumbled in his hands, said there was a lots of gunk behind the tonsils. It explained why she would get better after being on antibiotics and then within a few weeks would be sick again. Also, stopped the snoring.

Be prepared for a 6-7 day recovery period. First few days were O.K., but the 3rd,4th and 5th recovery days were tough. Very painful for her. Ended up giving her sips of liquid every hour to keep her from getting dehydrated.

I am now considering an ENT consult for Ella,her tonsils are really big and I think, having an impact on her ability to swallow.

Mom to Taryn,6, Cate,4 (ds) and Ella, 2 (ds)

Subject: Tonsils & AdenoidsTo: Multiples-DS Date: Monday, December 29, 2008, 8:35 AM

Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12, Lucy7,( ds) & 3

[Guest guest]

You have gotten alot of replies already but this is what our experience was, Zack had about 5 sets of tubes when his ENT reccommended removing the adenoids and that change everything he rarely got the long lasting ear,sinus colds and grew out of his allergies and doesn't even see his ENT anymore. She released him after 4 years without any colds!! We live in Central Florida so the weather is great and he isn't exposed to real cold? His tonsols were never enlarged so he was never a candidate for that surgery. He use to prop himself up at night and we would find him upright or leaning on something, that has stopped too. He had a sleep study no findings,he sleeps strangely; moves around and tosses alot, but I believe that has to do with his ADHD meds more than anything else, on weekends and all summer he sleeps better, but he also gets much more exercise and stays up later and thus is more tired? Anyway I lived through the years of ear infections, colds, steroids shots etc then suddenly he wa HEALTHY amd he hasn't looked back. Recently the rest of us had a cold circulating and the only 1 who didn't get it was Zack? Good luck.

Irene

Tonsils & Adenoids

Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12,Lucy7,(ds) & 3

[Guest guest]

Here's our story.For a little history, both my daughters with down syndrome have the AVCanal heart defect, and Mercede had problems with hypertension also. Cheyenne was all over the place when she slept. I would find her under the bed alot. She also had thick green drainage from her nose all the time. She had a T & A when she was two years old. Took her two weeks before she would drink out of a cup after that. She would only take liquids off a spoon, and that was frustrating.But the drainage becames clear and she started sleeping well. I can't remember exactly how old Mercede was but I think she was about 6 years old when she had her T & A. Mercede had constant ear infections and three sets of tubes. She went home the same day as her T & A and even choose to stop by Mc D's when she left. She had no problems with the surgery at all. When Cheyenne was 12, I noticed that she started sleeping with her head between her knees. She would be in this folded over position every morning. I talked to my dr about it being a sign of sleep apnea. My doctor though I was reading way too much into it. Then the teacher starts talking about how Cheyenne is regressing at school. She is unable to keep up and is tired and she can't get much from her. In the past her teachers had all raved about how well she tried to study to keep up. I finally convinced my doctor to do a sleep study. The sleep study showed she had severe obstructive sleep apnea. I don't have her results out but I know she stopped breating over 400 times during the night. Her Sats were in the 60's and 70's. They tried a cpap sleep study and decided to go with a bi-pap instead. Her pressures were so high on it that she could nto tolerate it. I put it on and tried it out and there is no way I could stand it. I took her to an ENT whom sent her for an MRI. The MRI showed her tongue was falling back and blocking her airway (when on her back), they said her lingual tonsil (it's located on the back of the tongue) was abnormally huge. They shrunk it down in size. She still has severe OSA, but can now have lower pressures on the bi-pap then before. They talked about doing a trach on her but I said no. I have a friends son whom has been thru the same thing and she told me not to do it until it is life threatning. But it is really sad because I can see how this has affected her mentally. She is not the same child she was a few years ago. Mercede also has a bi-pap machine but will not use it for the life of her. Her OSA is not as bad as Cheyennes, we just pray that it will not affect their hearts.

Good luck with your decisions.

You have gotten alot of replies already but this is what our experience was, Zack had about 5 sets of tubes when his ENT reccommended removing the adenoids and that change everything he rarely got the long lasting ear,sinus colds and grew out of his allergies and doesn't even see his ENT anymore. She released him after 4 years without any colds!! We live in Central Florida so the weather is great and he isn't exposed to real cold? His tonsols were never enlarged so he was never a candidate for that surgery. He use to prop himself up at night and we would find him upright or leaning on something, that has stopped too. He had a sleep study no findings,he sleeps strangely; moves around and tosses alot, but I believe that has to do with his ADHD meds more than anything else, on weekends and all summer he sleeps better, but he also gets much more exercise and stays up later and thus is more tired? Anyway I lived through the years of ear infections, colds, steroids shots etc then suddenly he wa HEALTHY amd he hasn't looked back. Recently the rest of us had a cold circulating and the only 1 who didn't get it was Zack? Good luck.

Irene

Tonsils & Adenoids

Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12,Lucy7,(ds) & 3

-- Gayla

[Guest guest]

Wow... I'm amazed at how many similarities there are between all of our kids. My guys do that folded in half sleep position too. Never thought of it as a sign of apnea though. Just as a sign of low-tone, high-flexibility (which all of our kids would have also). But, now that I think about it, that IS the position they generally fall into after they've been sitting up asleep.

I'm torn. I really thought my guys were doing ok w/ their HUGE tonsils right now. I went over their Sept-Dec attendance record and they were only out sick from preschool 3 times (out other times for MD appts and my-choice days). So, we're not sick that often (though we do have COLDS-to-Sinus infection more frequently than that). Still, I hate the thought of unnecessary surgery when things are going well... especially since they went under once for MRIs and, though it was a mild dose of anasthesia and should have woken up within 20 minutes of the procedure, we could not proactively wake them up for 4 1/2 hours. VERY scary. Won't do it again unless I absolutely HAVE to. I guess a second opinion -- from someone familiar with children w/ DS -- regarding tonsils couldn't hurt though! xo maggie

Olivia '01 and & '05 (IDs w/ DS)

To: Multiples-DS Sent: Monday, December 29, 2008 11:13:38 PMSubject: Re: Tonsils & Adenoids

Here's our story.For a little history, both my daughters with down syndrome have the AVCanal heart defect, and Mercede had problems with hypertension also. Cheyenne was all over the place when she slept. I would find her under the bed alot. She also had thick green drainage from her nose all the time. She had a T & A when she was two years old. Took her two weeks before she would drink out of a cup after that. She would only take liquids off a spoon, and that was frustrating. But the drainage becames clear and she started sleeping well. I can't remember exactly how old Mercede was but I think she was about 6 years old when she had her T & A. Mercede had constant ear infections and three sets of tubes. She went home the same day as her T & A and even choose to stop by Mc D's when she left. She had no problems with the surgery at all. When Cheyenne was 12, I noticed that she started sleeping with her head between her knees. She would be in

this folded over position every morning. I talked to my dr about it being a sign of sleep apnea. My doctor though I was reading way too much into it. Then the teacher starts talking about how Cheyenne is regressing at school. She is unable to keep up and is tired and she can't get much from her. In the past her teachers had all raved about how well she tried to study to keep up. I finally convinced my doctor to do a sleep study. The sleep study showed she had severe obstructive sleep apnea. I don't have her results out but I know she stopped breating over 400 times during the night. Her Sats were in the 60's and 70's. They tried a cpap sleep study and decided to go with a bi-pap instead. Her pressures were so high on it that she could nto tolerate it. I put it on and tried it out and there is no way I could stand it. I took her to an ENT whom sent her for an MRI. The MRI showed her tongue was falling back and blocking her airway (when on her back), they

said her lingual tonsil (it's located on the back of the tongue) was abnormally huge. They shrunk it down in size. She still has severe OSA, but can now have lower pressures on the bi-pap then before. They talked about doing a trach on her but I said no. I have a friends son whom has been thru the same thing and she told me not to do it until it is life threatning. But it is really sad because I can see how this has affected her mentally. She is not the same child she was a few years ago. Mercede also has a bi-pap machine but will not use it for the life of her. Her OSA is not as bad as Cheyennes, we just pray that it will not affect their hearts.Good luck with your decisions.

On Mon, Dec 29, 2008 at 4:33 PM, igercak <igercakcfl (DOT) rr.com> wrote:

You have gotten alot of replies already but this is what our experience was, Zack had about 5 sets of tubes when his ENT reccommended removing the adenoids and that change everything he rarely got the long lasting ear,sinus colds and grew out of his allergies and doesn't even see his ENT anymore. She released him after 4 years without any colds!! We live in Central Florida so the weather is great and he isn't exposed to real cold? His tonsols were never enlarged so he was never a candidate for that surgery. He use to prop himself up at night and we would find him upright or leaning on something, that has stopped too. He had a sleep study no findings,he sleeps strangely; moves around and tosses alot, but I believe that has to do with his ADHD meds more than anything else, on weekends and all summer he sleeps better, but he also gets much more exercise and stays up later and thus is more

tired? Anyway I lived through the years of ear infections, colds, steroids shots etc then suddenly he wa HEALTHY amd he hasn't looked back. Recently the rest of us had a cold circulating and the only 1 who didn't get it was Zack? Good luck.

Irene

Tonsils & Adenoids

Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12, Lucy7,( ds) & 3-- Gayla

[Guest guest]

also sleeps folded in half some of the time. seems to stay awake a lot at night, I can hear his Elmo talking all times of the night or when I go check on him. We have also been told by ent's that his tonsils are very large but did say it could cause problems but I don't think it really has. He has had some sinus infections but not a lot. He didn't have ear tubes until he was 19yrs. old and then in about a year one of them came out but the other one had to be surgically removed as it had grown to the area it was in and it also had bone around it and the Surgeon had said that was only the second time he had seen that. has had some really strange things happen with his health problems. He occasionally gets a cold but for the most part gets over it pretty easy.

I like all of you don't really like having sedated unless it is absolutely necessary. Our kids do have a lot of characteristics alike including health issues.

Here's wishing all a very Blessed New Year. Judy & Bob parents to 29yrs. the joy of our lives who happens to have ds and multiple disabilities and

To: Multiples-DS Sent: Tuesday, December 30, 2008 7:48:06 AMSubject: Re: Tonsils & Adenoids

Wow... I'm amazed at how many similarities there are between all of our kids. My guys do that folded in half sleep position too. Never thought of it as a sign of apnea though. Just as a sign of low-tone, high-flexibility (which all of our kids would have also). But, now that I think about it, that IS the position they generally fall into after they've been sitting up asleep.

I'm torn. I really thought my guys were doing ok w/ their HUGE tonsils right now. I went over their Sept-Dec attendance record and they were only out sick from preschool 3 times (out other times for MD appts and my-choice days). So, we're not sick that often (though we do have COLDS-to-Sinus infection more frequently than that). Still, I hate the thought of unnecessary surgery when things are going well... especially since they went under once for MRIs and, though it was a mild dose of anasthesia and should have woken up within 20 minutes of the procedure, we could not proactively wake them up for 4 1/2 hours. VERY scary. Won't do it again unless I absolutely HAVE to. I guess a second opinion -- from someone familiar with children w/ DS -- regarding tonsils couldn't hurt though! xo maggie Olivia '01 and & '05 (IDs w/ DS)

From: G <wheresmyangels@ gmail.com>To: Multiples-DS@ yahoogroups. comSent: Monday, December 29, 2008 11:13:38 PMSubject: Re: Tonsils & Adenoids

Here's our story.For a little history, both my daughters with down syndrome have the AVCanal heart defect, and Mercede had problems with hypertension also. Cheyenne was all over the place when she slept. I would find her under the bed alot. She also had thick green drainage from her nose all the time. She had a T & A when she was two years old. Took her two weeks before she would drink out of a cup after that. She would only take liquids off a spoon, and that was frustrating. But the drainage becames clear and she started sleeping well. I can't remember exactly how old Mercede was but I think she was about 6 years old when she had her T & A. Mercede had constant ear infections and three sets of tubes. She went home the same day as her T & A and even choose to stop by Mc D's when she left. She had no problems with the surgery at all. When Cheyenne was 12, I noticed that she started sleeping with her head between her knees. She would be in

this folded over position every morning. I talked to my dr about it being a sign of sleep apnea. My doctor though I was reading way too much into it. Then the teacher starts talking about how Cheyenne is regressing at school. She is unable to keep up and is tired and she can't get much from her. In the past her teachers had all raved about how well she tried to study to keep up. I finally convinced my doctor to do a sleep study. The sleep study showed she had severe obstructive sleep apnea. I don't have her results out but I know she stopped breating over 400 times during the night. Her Sats were in the 60's and 70's. They tried a cpap sleep study and decided to go with a bi-pap instead. Her pressures were so high on it that she could nto tolerate it. I put it on and tried it out and there is no way I could stand it. I took her to an ENT whom sent her for an MRI. The MRI showed her tongue was falling back and blocking her airway (when on her back), they

said her lingual tonsil (it's located on the back of the tongue) was abnormally huge. They shrunk it down in size. She still has severe OSA, but can now have lower pressures on the bi-pap then before. They talked about doing a trach on her but I said no. I have a friends son whom has been thru the same thing and she told me not to do it until it is life threatning. But it is really sad because I can see how this has affected her mentally. She is not the same child she was a few years ago. Mercede also has a bi-pap machine but will not use it for the life of her. Her OSA is not as bad as Cheyennes, we just pray that it will not affect their hearts.Good luck with your decisions.

On Mon, Dec 29, 2008 at 4:33 PM, igercak <igercakcfl (DOT) rr.com> wrote:

You have gotten alot of replies already but this is what our experience was, Zack had about 5 sets of tubes when his ENT reccommended removing the adenoids and that change everything he rarely got the long lasting ear,sinus colds and grew out of his allergies and doesn't even see his ENT anymore. She released him after 4 years without any colds!! We live in Central Florida so the weather is great and he isn't exposed to real cold? His tonsols were never enlarged so he was never a candidate for that surgery. He use to prop himself up at night and we would find him upright or leaning on something, that has stopped too. He had a sleep study no findings,he sleeps strangely; moves around and tosses alot, but I believe that has to do with his ADHD meds more than anything else, on weekends and all summer he sleeps better, but he also gets much more exercise and stays up later and thus is more

tired? Anyway I lived through the years of ear infections, colds, steroids shots etc then suddenly he wa HEALTHY amd he hasn't looked back. Recently the rest of us had a cold circulating and the only 1 who didn't get it was Zack? Good luck.

Irene

Tonsils & Adenoids

Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12, Lucy7,( ds) & 3-- Gayla

[Guest guest]

My turn. The voice of experience (or not) is back...

Sleep apnea... I don't think that most general practictioners and very many pediatricians know much about it. I was told by a pulmonologist that the up-sleeping position is a bench mark for OSA and that 90 percent of the people she finds with it have Down syndrome. Will and both have OSA, more than Will. It scares the hell out of me that someone's SAT rate can drop to 60 or 70 percent because prolonged periods at that level can do serious brain and developmental damage. That's probably why the brain signals the sleeper to sit up to open the airway.

Jodie, the nose flush sounds cool and it's something I can prepare at home. Saline water and antibiotic ointment. I'm going to run that by our ENT.

Even though they are now 18, Will and still have narrow ear canals, which besides wax can harbor bacteria and viruses. (Warm and dark, you know.) They see the ENT every 3 months at our Kaiser Permanente clinic. Both have had ear tubes inserted more than once. Will's ear canals are narrower and he is more prone to infections. We give him Augmentin--amoxicilin with an adjuvant, potassium clavulate--which is a lot cheaper than it used to be because it's now available in generic formulations. Amoxicillin alone did not work, but it is still effective against strep throat. Azythromicin is really cool--six doses and you're done--but it may be more expensive even though it's availaible generically.

Maggie, I assume that your baby's-room addition is heated with hot air. Otherwise, much of what I say is useless. If your builder had an HVAC subcontractor, he or she should conduct an air-pressure check on the new registers so that the air flow is the same in all of the rooms. Also, there should be an air-flow return for that room; if not, the room is below code and you have grounds for a complaint. Any HVAC company that wants to protect its reputation would install both an air supply and an air return. Imagine a cop going to work without his radio. Also, if you haven't done this, vacuum the room along the walls amd ceiling, and especially the seams at the edges, to take out any remainder of construction dust. Not every contractor is scrupulous about removing shavings, dirt, cigarette butts and what-have-you between the studs before putting up the walls. If the walls are tightly sealed as you say, this junk should not be a problem, so look for leaks. Include any electrical outlets--ceiling, too--and around the registers themselves. Consider an additional coat of paint. All of what I'm saying is based on learning the hard way--we have done three renovations and additions. Once, what we had thought to be colds turned out to be allergies to fine plaster dust.

Oh, regarding speculation about mirror twins. Twenty-five percent of identical twins are mirror twins. Mine are, too. See Wikipedia. Penny heard from our sons' cardiologist that true mirror twins have their organs on opposite sides. Wonder how often THAT happens...

And another nugget: Persons with Down syndrome have a cancer rate lower than that of the general population. The "why" is under study.

I've talked long enough.

Al Veerhoff, Kensington, MD

Re: Tonsils & Adenoids

Here's our story.For a little history, both my daughters with down syndrome have the AVCanal heart defect, and Mercede had problems with hypertension also. Cheyenne was all over the place when she slept. I would find her under the bed alot. She also had thick green drainage from her nose all the time. She had a T & A when she was two years old. Took her two weeks before she would drink out of a cup after that. She would only take liquids off a spoon, and that was frustrating. But the drainage becames clear and she started sleeping well. I can't remember exactly how old Mercede was but I think she was about 6 years old when she had her T & A. Mercede had constant ear infections and three sets of tubes. She went home the same day as her T & A and even choose to stop by Mc D's when she left. She had no problems with the surgery at all. When Cheyenne was 12, I noticed that she started sleeping with her head between her knees. She would be in this folded over position every morning. I talked to my dr about it being a sign of sleep apnea. My doctor though I was reading way too much into it. Then the teacher starts talking about how Cheyenne is regressing at school. She is unable to keep up and is tired and she can't get much from her. In the past her teachers had all raved about how well she tried to study to keep up. I finally convinced my doctor to do a sleep study. The sleep study showed she had severe obstructive sleep apnea. I don't have her results out but I know she stopped breating over 400 times during the night. Her Sats were in the 60's and 70's. They tried a cpap sleep study and decided to go with a bi-pap instead. Her pressures were so high on it that she could nto tolerate it. I put it on and tried it out and there is no way I could stand it. I took her to an ENT whom sent her for an MRI. The MRI showed her tongue was falling back and blocking her airway (when on her back), they said her lingual tonsil (it's located on the back of the tongue) was abnormally huge. They shrunk it down in size. She still has severe OSA, but can now have lower pressures on the bi-pap then before. They talked about doing a trach on her but I said no. I have a friends son whom has been thru the same thing and she told me not to do it until it is life threatning. But it is really sad because I can see how this has affected her mentally. She is not the same child she was a few years ago. Mercede also has a bi-pap machine but will not use it for the life of her. Her OSA is not as bad as Cheyennes, we just pray that it will not affect their hearts.

Good luck with your decisions.

On Mon, Dec 29, 2008 at 4:33 PM, igercak <igercakcfl (DOT) rr.com> wrote:

You have gotten alot of replies already but this is what our experience was, Zack had about 5 sets of tubes when his ENT reccommended removing the adenoids and that change everything he rarely got the long lasting ear,sinus colds and grew out of his allergies and doesn't even see his ENT anymore. She released him after 4 years without any colds!! We live in Central Florida so the weather is great and he isn't exposed to real cold? His tonsols were never enlarged so he was never a candidate for that surgery. He use to prop himself up at night and we would find him upright or leaning on something, that has stopped too. He had a sleep study no findings,he sleeps strangely; moves around and tosses alot, but I believe that has to do with his ADHD meds more than anything else, on weekends and all summer he sleeps better, but he also gets much more exercise and stays up later and thus is more tired? Anyway I lived through the years of ear infections, colds, steroids shots etc then suddenly he wa HEALTHY amd he hasn't looked back. Recently the rest of us had a cold circulating and the only 1 who didn't get it was Zack? Good luck.

Irene

Tonsils & Adenoids

Hi all!

Just wondering if any of your children had to have their t & a removed?

's are very large and cause quite a bit of snoring and he is a

loud mouth breather, (apparently there has been some connection with

ADHD and snoring) His peds have not mentioned it but I doubt they have

even noticed.

a

mom to Meg14,Jack12, Lucy7,( ds) & 3

--

Gayla

Listen to 350+ music, sports, news radio stations including songs for the holidays FREE while you browse. Start Listening Now!

[Guest guest]

Al thanks for the information and always being a voice of reason for me. Thanks to all of you for sharing so much of your experience. As far as the room goes, I know there is no fresh air return in the bedroom. Honestly, I never considered that as part of the breathing/respiratory problem and it's soooo obvious now that you say it. I've been checking into air ventilation systems for our entire 2nd floor (3 bedrooms) because all of the rooms are oppresively hot during the summer. But, only the newly constructed room is that way all of the time. The heat is baseboard (hot air). It's always stagnant and hot in there except when I can open the windows a bit in Spring and Fall. I'll have to look further into this. I do know it's "clean' of construction dust though as I did the wet-wipe cleaning myself multiple times before the boys were brought home from the hospital and since

throughout the house (had lead dust problems in "this old house" so I know it's clean b/c I had to get the clean bill of health from our state health department).

After this string of emails, I'm compelled to find and get the guys to an ENT with experience with OSA (had to look that up) specifically in children with DS. When I first brought them to our current ENT (at my request despite my Pedi thinking that it wasn't necessary), it seemed so obvious to me that their large tonsils were causing or at least complicating their breathing problems. When our current ENT poo-pooed the idea, I figured he knew best. Now, I'm thinking that's really not so. Al, your statement about the SAT scores is frghtening and also incredibly logical. So, where/how do I find an ENT with the appropriate experience???

BTW - My husband, w/o DS, has a small oral cavity, VERY large tonsils, low oral muscle tone AND diagnosed sleep apnea which he uses a machine for. He's very big chested (not belly but chest) which I'm told is common in people with apnea. My boys have that same big chested physique. Interesting!

xo maggie

Olivia '01 and & '05 (IDs w/ DS)

To: Multiples-DS Sent: Tuesday, December 30, 2008 12:34:08 PMSubject: Re: Tonsils & Adenoids

My turn. The voice of experience (or not) is back... Sleep apnea... I don't think that most general practictioners and very many pediatricians know much about it. I was told by a pulmonologist that the up-sleeping position is a bench mark for OSA and that 90 percent of the people she finds with it have Down syndrome. Will and both have OSA, more than Will. It scares the hell out of me that someone's SAT rate can drop to 60 or 70 percent because prolonged periods at that level can do serious brain and developmental damage. That's probably why the brain signals the sleeper to sit up to open the airway.Jodie, the nose flush sounds cool and it's something I can prepare at home. Saline water and antibiotic ointment. I'm going to run that by our ENT.Even though they are now 18, Will and still have narrow ear canals, which besides wax can harbor bacteria and viruses. (Warm and dark, you know.) They see the ENT

every 3 months at our Kaiser Permanente clinic. Both have had ear tubes inserted more than once. Will's ear canals are narrower and he is more prone to infections. We give him Augmentin--amoxicil in with an adjuvant, potassium clavulate--which is a lot cheaper than it used to be because it's now available in generic formulations. Amoxicillin alone did not work, but it is still effective against strep throat. Azythromicin is really cool--six doses and you're done--but it may be more expensive even though it's availaible generically.Maggie, I assume that your baby's-room addition is heated with hot air. Otherwise, much of what I say is useless. If your builder had an HVAC subcontractor, he or she should conduct an air-pressure check on the new registers so that the air flow is the same in all of the rooms. Also, there should be an air-flow return for that room; if not, the room is below code and you have grounds for a complaint. Any HVAC

company that wants to protect its reputation would install both an air supply and an air return. Imagine a cop going to work without his radio. Also, if you haven't done this, vacuum the room along the walls amd ceiling, and especially the seams at the edges, to take out any remainder of construction dust. Not every contractor is scrupulous about removing shavings, dirt, cigarette butts and what-have-you between the studs before putting up the walls. If the walls are tightly sealed as you say, this junk should not be a problem, so look for leaks. Include any electrical outlets--ceiling, too--and around the registers themselves. Consider an additional coat of paint. All of what I'm saying is based on learning the hard way--we have done three renovations and additions. Once, what we had thought to be colds turned out to be allergies to fine plaster dust.Oh, regarding speculation about mirror twins. Twenty-five percent of identical twins are mirror

twins. Mine are, too. See Wikipedia. Penny heard from our sons' cardiologist that true mirror twins have their organs on opposite sides. Wonder how often THAT happens...And another nugget: Persons with Down syndrome have a cancer rate lower than that of the general population. The "why" is under study.I've talked long enough.Al Veerhoff, Kensington, MD

Re: Tonsils & Adenoids

Here's our story.For a little history, both my daughters with down syndrome have the AVCanal heart defect, and Mercede had problems with hypertension also. Cheyenne was all over the place when she slept. I would find her under the bed alot. She also had thick green drainage from her nose all the time. She had a T & A when she was two years old. Took her two weeks before she would drink out of a cup after that. She would only take liquids off a spoon, and that was frustrating. But the drainage becames clear and she started sleeping well. I can't remember exactly how old Mercede was but I think she was about 6 years old when she had her T & A. Mercede had constant ear infections and three sets of tubes. She went home the same day as her T & A and even choose to stop by Mc D's when she left. She had no problems with the surgery at all. When Cheyenne was 12, I noticed that she started sleeping with her head between her knees. She would be in

this folded over position every morning. I talked to my dr about it being a sign of sleep apnea. My doctor though I was reading way too much into it. Then the teacher starts talking about how Cheyenne is regressing at school. She is unable to keep up and is tired and she can't get much from her. In the past her teachers had all raved about how well she tried to study to keep up. I finally convinced my doctor to do a sleep study. The sleep study showed she had severe obstructive sleep apnea. I don't have her results out but I know she stopped breating over 400 times during the night. Her Sats were in the 60's and 70's. They tried a cpap sleep study and decided to go with a bi-pap instead. Her pressures were so high on it that she could nto tolerate it. I put it on and tried it out and there is no way I could stand it. I took her to an ENT whom sent her for an MRI. The MRI showed her tongue was falling back and blocking her airway (when on her back), they

said her lingual tonsil (it's located on the back of the tongue) was abnormally huge. They shrunk it down in size. She still has severe OSA, but can now have lower pressures on the bi-pap then before. They talked about doing a trach on her but I said no. I have a friends son whom has been thru the same thing and she told me not to do it until it is life threatning. But it is really sad because I can see how this has affected her mentally. She is not the same child she was a few years ago. Mercede also has a bi-pap machine but will not use it for the life of her. Her OSA is not as bad as Cheyennes, we just pray that it will not affect their hearts.Good luck with your decisions.

On Mon, Dec 29, 2008 at 4:33 PM, igercak <igercakcfl (DOT) rr.com> wrote:

You have gotten alot of replies already but this is what our experience was, Zack had about 5 sets of tubes when his ENT reccommended removing the adenoids and that change everything he rarely got the long lasting ear,sinus colds and grew out of his allergies and doesn't even see his ENT anymore. She released him after 4 years without any colds!! We live in Central Florida so the weather is great and he isn't exposed to real cold? His tonsols were never enlarged so he was never a candidate for that surgery. He use to prop himself up at night and we would find him upright or leaning on something, that has stopped too. He had a sleep study no findings,he sleeps strangely; moves around and tosses alot, but I believe that has to do with his ADHD meds more than anything else, on weekends and all summer he sleeps better, but he also gets much more exercise and stays up later and thus is more

tired? Anyway I lived through the years of ear infections, colds, steroids shots etc then suddenly he wa HEALTHY amd he hasn't looked back. Recently the rest of us had a cold circulating and the only 1 who didn't get it was Zack? Good luck.

Irene

Tonsils & Adenoids

Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12, Lucy7,( ds) & 3-- Gayla

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[Guest guest]

Maggie,

I think the experience wiwth DS is important, I was refered to a few ENT and I

asked about their experience with DS, it brings a bunch of common issues

and if the PED ENT hasn't seen it before they may not be best for your boys?

I was going an hour to Orlando to the Nemours children's clinic since they see

so many children with special needs.

Do you have a local DS chapter or a DS clinic, Florida has one in ville

and we drive 2 hrs there for their developemental PED for Zack's ADHD, he see's

only DS children and those with dual diagnosis how relevant is that? I am sure

in your area there is a doctor with the needed experience. Good Luck. Irene

Tonsils & Adenoids

Hi all!Just wondering if any of your children had to have their t & a removed?'s are very large and cause quite a bit of snoring and he is aloud mouth breather, (apparently there has been some connection withADHD and snoring) His peds have not mentioned it but I doubt they haveeven noticed.amom to Meg14,Jack12, Lucy7,( ds) & 3-- Gayla

Listen to 350+ music, sports, news radio stations – including songs for the holidays – FREE while you browse. Start Listening Now!

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