Guest guest Posted April 25, 2007 Report Share Posted April 25, 2007 I guess I was really lucky. I hired a pair of counselors from Camp Joy and had them for 6 years. We also got capped waiver funding of $22,000 (approx) for camp, respite, and habilitation. I hired them, wrote the training program, paid $13/hr and had them for 6 years. they also kept Elie so we could go on vacation (part of my 30 days a year of overnite respite. Now, I got $2,500 for the year for camp and respite. I can hire my own people but it ishard even though I am in a college town. My hab worker gave notice yesterday as of yesterday!!!! Wait until Thursday comes and I have to explain to ELie why isn't coming. And it is the end of the year so not much luck at the college. On top of that, my husband is having surgery the 31st of May(Thursday). He should be in the hospital aat least 3 days (if we are lucky and the angels fly) But Elie's camp ends Friday evening. We have to be in Atlanta for pre admit testing. So I am trying to negotiate with this woman who occasionally stays with Elie in the evening as a " safety protector " (she will get him out of the house if it burns but basically beyond fixing a meal, she doesn't interact with Elie. )I hope she will get him from camp and stay at the house with him for a couple of days. Not a great solution, but I do not want him in ATL or at the hospital. Life is tooooooo complicated. Sara - Choose to make lemonade, not complain about the lemons. >From: mfroof@... >Reply-To: >To: >Subject: Sara >Date: Wed, 25 Apr 2007 21:59:28 EDT > >Hi, Everyone....Sara...when we moved to Lancaster county, Gareth got XXX$$$ >through MH/MR --- CBHMP for respite. In the first 2 yrs, using their >'approved list' we could not get anyone to drive the 7 miles from >Lancaster city to >Lititz....even at $10/hr. I went and found a college girl and paid for >her >background check, only to have her go off in 6 months to another college >further away. Then, funds got dropped and this Pa Mentor took over >respite. I >jumped at the chance and signed up with a locale provider. It was >great....we >were approved for 16 hrs/month.....not that I ever used that many. That >lasted from last Aug to Nov. I needed respite in Dec and was told there >wasn't >any available people. OK. In Jan. I needed help and was told to call Pa >Mentor. They told me that my provider was no longer providing respite and >that >Gareth would have to go on the waiting list again. Now it's Apr. and I >just >had that 'meeting.' I will wait till I get back to State College and go >through all the 'crap' up there. At least in SC, I have plenty of >students >available and was never lacking in need of a 'sitter.'. >Take care, Everyone. >Margaret > > > >************************************** See what's free at >http://www.aol.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2007 Report Share Posted April 27, 2007 Sara, not need to apologize, close enough. I knew who you meant. I can't get my kids names straight half of the time. I call one and seem to go through the list. Charlyne Mom to Zeb 14 DS/OCD/ASD? sara cohen wrote: OOOOPPPPSSSS! Mind blow out - that would be ZEB - not ZACK - don't know why I stopped thinking. Sara - Choose to make lemonade, not complain about the lemons. > >Reply-To: >To: >Subject: Re: DH who obsess/Sara >Date: Fri, 27 Apr 2007 09:26:57 -0400 > >Yup- stopping to see us would have taken care of the dog- my little feisty >terrier would have growled like a lion and scared the dog, the in laws, and >Zack all the way back to FL. > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > > > > > >Reply-To: > >To: > >Subject: Re: DH who obsess/Sara > >Date: Thu, 26 Apr 2007 21:02:09 -0700 (PDT) > > > >Sara,LOL, you are so funny. Please come to my house and straighten out >this > >hypochondriac that lives with me. I was thinking about you as I drove > >through Georgia this past weekend. I would have loved to stop in but I > >couldn't drive fast enough to get my inlaws home. It was a hellish trip. >My > >Fl friends bought Zeb a maltese puppy. Zeb has been begging me for a dog > >for five years. The puppy fared better than I. > > Charlyne > > Mom to Zeb 14 DS/OCD/ASD? > > > >sara cohen wrote: > > Nope -it isn't!!! My husband has myriad real health issues - I > >am a > >nurse!!! He drives me crazy over every little thing. Today he wanted me > >tocheck tosee if he has dry feet or athletes foot...... I told him > >amputation was the only answer - he wanted to know how soon that would be > >necessary!!!!!!!!! ( :`() > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > > > > >Reply-To: > > >To: > > >Subject: Re: DH who obsess/Gail > > >Date: Thu, 26 Apr 2007 10:47:23 -0700 (PDT) > > > > > >Gail, it's more tolerable when the ailments are real. > > > Cha > > > > > >smilinggail@... wrote: > > > > > >SIGN MY HUSBAND UP!!!!! > > >Gail :-) > > > > > >Maybe we should start a list for DH who obsess over the ailments - real > >and > > >imagined. Call it the OLD CROCKS list! :~() > > > > > >Sara - Choose to make lemonade, not complain about the lemons. > > > > > >************************************** See what's free at > > >http://www.aol.com. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Hi Sara, I hear you but you could say he is cognitively impaired but has mastered -----this year. If you use the word retarded in describing Elie it will have less effect to the reader what he has mastered or has any ability. Regarding the reading piece, I know Elie can do all these things. According to the experts that I directed this issue toward, I was told that a common error in teaching students with DS or any other cognitive disability is the habit of overrelying on picture content. It is a horrible habit to break. Many teachers tend to use this strategy initially to help the student feel successful with beginning reading. It encourages the student and promotes a " buy in " to the reading lessons. As the students begin to master skills, the teacher builds lessons around the learned skills and the picture strategies are fazed out and replaced with only mastered skill strategies to make the student successful. In Elie's situation and many other students at his ability level, the teachers do not place an effort on moving beyond, do not use a systematic approach, incorporating the skills throughout the curriculum each day, practice and presentation in different formats. If Elie knew his letter sounds then getting him to actually look at enhanced letters(cvc words) other than pictures was key at that point of mastery. It takes practice across every spectrum to actually teach a student to look at each letter to decode words beginning with simple cvc words, teaching beginning, middle and end sounds in isolation, practice asking what sound do you hear at the end of the word, using concrete examples. All this can be done in a skillful and enjoyable way using all the tricks of the trade that a highly skilled teacher has in their repetoire of strategies. Most times the focus of many school programs is functional, placing little emphasis on reading or academics in general.Teaching a few site words filled the intent. Don't mean to be a pain. Charlyne Mom to Zeb 14 DS/OCD/ASD? sara cohen wrote: And I appreciate what you have to say. The problem with " cognitively impaired " is that to the listener it implies an UNCHANGING status. My argument is that a person who is retarded is SLLOOWW, not permanently anything. I want to convey and repeat accordingly, " Altho Elie is not now able to...... this year he has learned..... and thus is obviously, just sslloowwllyy reaching the goals that are appropriate for him. On the reading side, we have been thru the learning to read for children with DS, read and sing (from Regency University!,) SRA reading (got to the first grade primer three times with that one), Edmark sign reading and Edmark reading program. We have not tried mood Bell (sp?) but are ready to try it. We use the Wring 2000 program to write social stories and Elie can learn to read those, but he is using the picture clues. If I remove the pictures he cannot read the words. Elie can identify every fastfood business and most stores, identify from a list food items in a grocery, identify all his videos (over 100), and his audio tapes(a bucket full), but he cannot/will not? read a sentence without picture clues. Thus I think that a sight program is probably better for his visual leraning style then a phonics system. He can tell you the SOUND of every letter, but doesn't identify the sound and the letter name with the picture of the letter! http://www.windowslive-hotmail.com/learnmore/default.html?locale=en-us & ocid=RMT_\ TAGLM_HMWL_reten_changegood_0507 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Nevere a pain Charlyne. I love learning from you. One of the ways I am writing his contract for service, will entail hiring a teacher (or student) to work directly on reading as part of his adaptation to working in the community. I am hoping that I can " encourage " one of the university department heads in specil ed to allow students to use my son (and others) as " projects " for class grades. We have had VERY GOOD results with this in the past. Positive consequences works for college students as well as Elie!!! We work on CVC words all the time. HE does pretty well with that. But beyond " rhyming " words of cvc, he will never attempt to sound out. I know he is using sight only to read. (Picture formation of the word shape). http://www.windowslive-hotmail.com/learnmore/default.html?locale=en-us & ocid=RMT_\ TAGLM_HMWL_reten_changegood_0507 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Hi Sara, I think using a college student may be a good idea but how about an education student majoring in reading, maybe a grad student writing a dissertation. I would take the pictures away from Elie and together pointing to each letter see if he will try to decode, cat, fat etc.then change the last consonant cap, far etc. I can't wait to hear what supports Elie will be getting. I learn from you as well. Zeb is only 14. I walk in many of your paths. Charlyne mom to Zeb 14 DS/OCD/ASD? sara cohen wrote: Nevere a pain Charlyne. I love learning from you. One of the ways I am writing his contract for service, will entail hiring a teacher (or student) to work directly on reading as part of his adaptation to working in the community. I am hoping that I can " encourage " one of the university department heads in specil ed to allow students to use my son (and others) as " projects " for class grades. We have had VERY GOOD results with this in the past. Positive consequences works for college students as well as Elie!!! We work on CVC words all the time. HE does pretty well with that. But beyond " rhyming " words of cvc, he will never attempt to sound out. I know he is using sight only to read. (Picture formation of the word shape). http://www.windowslive-hotmail.com/learnmore/default.html?locale=en-us & ocid=RMT_\ TAGLM_HMWL_reten_changegood_0507 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Our intake worker social worker has her MSW from OUR local university. She has referred me to her mentor, the head of psych dept. here in our town. I will contact her as soon as I have the parameters of the waiver. www.windowslive-hotmail.com/learnmore/personalize.html?locale=en-us & ocid=TXT_TAG\ LM_HMWL_reten_addcolor_0507 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2007 Report Share Posted May 25, 2007 Sara, that's wonderful, keep us posted. Charlyne sara cohen wrote: Our intake worker social worker has her MSW from OUR local university. She has referred me to her mentor, the head of psych dept. here in our town. I will contact her as soon as I have the parameters of the waiver. www.windowslive-hotmail.com/learnmore/personalize.html?locale=en-us & ocid=TXT_TAG\ LM_HMWL_reten_addcolor_0507 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 Thanks . I am really paying for Elie's behavior yesterday. HE didn 't permanently damage me - he didn't hit hard enough but for a momentary OUCH! But today, I can haardly move my upper body. Bothshoulders feel wrecnhed and my neck is killing me. Believe me, working in the psych unit, it was easier to take down a crazed 50 yo 250 lb vet than to move Elie the Elephant!!! I am HURTING!!! And tomorrow, I drive him to work one more time - 36 mountain miles! But so wowrth it. Elie really enjoys going to work. Hope this lasts. > > > Thanks for the story of Elie out I am lucky Mic is still little and Elie > did seem to get it, sometimes the asd elephant just makes life so > difficult.Big hugs and Im so proud of you and the counselers and trying so > hard. Poor Elie didnt want his good time to end thats all. Laurie > __________________________________________________________ > Don't get caught with egg on your face. Play Chicktionary! > http://club.live.com/chicktionary.aspx?icid=chick_wlmailtextlink > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2007 Report Share Posted July 28, 2007 Hi Sara, Yes he knows about triangles. He does ok.There is a down side to inclusion. Zeb participated in family and comsumer science. He loved the cooking but he also learned more about sex than I would have cared for him to know at 14. The typical girls seem to feel more casual with Zeb, like showing off their new bra while wearing it. If Zeb didn't have speech his school life would be much different. Zeb gets frustrated too when the lessons aren't modified appropriately. He is also dyslexic which makes reading for him so difficult. The reading therapist said that it would serve no purpose to test him, because of the DS, but she recommended using the same methodologies that are used for that disability. He has all the symptoms, number and letter reversal etc. Using those methods has helped when and if I can get the school to do it correctly. I think all of us do great things with our kids. They all have their unique qualities. I chose to spend my time on academics knowing that Zeb is capable. I don't know if I did the right thing, time will tell. Elie has matured into a man earning a paycheck. I think it's amazing. It is something to be so proud of. I learn much from you and the others that have the older children too. Charlyne Mom to Zeb 14 DS/OCD/ASD? Sara Cohen wrote: If Zeb know that a triangle has 3 corners that are sharp and can picture a triangle space in " real time " , he knows alot!! The speech is a big part of inclusion and one of the many reasons we opted out of inclusion for Elie after 3rd grade. Unlike Zeb, he was SSO FRUSTRATED by all the goings on in a regular class. CHARLYNE - I am so proud of the work you have accomplished for ZEB - you are ACES> > > Hi Cyndi, > I meant to respond sooner but ran out of sitting time. Many districts do > what they can to protect their budgets and some just have big egos. We have > a little of both in my district depending what school your dealing with. I > don't believe inclusion is for all students but I do believe that they > should not be excluded from participating in areas that could be beneficial > or they would enjoy. I fight for Zeb only because he wants to be with his > typical peers. He does have speech and it's his choice to be included. Yes, > he is really on the honor roll. The grades are based on his IEP goals and > objectives. Zeb knows that an F is bad only from listening to his peers. He > knows an A is good or 100% but it wouldn't matter if he was given a B or C. > It's all the same to him. The school wants to make themselves look good. Zeb > hasn't had math homework in a year but maintained a B average. They reported > math skills that I know he doesn't have. The math skills that he does have > they > reported that he could not do. Zeb does not know what a prime or composite > number is and cannot find the area or base of a triangle. I am certain. It's > a difficult balance. > Charlyne > Mom to Zeb 14 DS/OCD/ASD? > > <cynthiamiltonburns@... <cynthiamiltonburns%40yahoo.com>> > wrote: > Charylne, I say it all the time.We have to speak for the children > that cannot speak.I know I am not your mother but I am proud of you, > as a parent of a special needs child.We cannot let them push us > around and if their child was disabled they would not let anyone > push them around.Just keep that in mind.Is he really on the honor > roll? I had included but he did not do well.He needs to much > help.That is coming from me and not the school.I wanted him included > and I still feel that it is better if they can function without much > assistant.But was lost.I am glad Zeb is doing so well and he > likes it.That's the most important thing. Cyndi B > > > > Hi All, > > I went to a meeting this morning with the district sped director > to > > request compensatory services for reading and math. Many of you > know > > that I am a staunch inclusionist. Zeb loves being with his typical > > peers and dislikes being singled out. I expect that he be provided > with > > the necessary accommodations and modifications with differentiated > > instruction to enable him access to the general curriculum. Our > middle > > school is 7th & 8th grade only where inclusion is not embraced. > Zeb was > > the first student to be included in all core academic classes. He > was > > not the first sped student to be included in core academics. The > > principal is extremely controlling and I am certainly not a > submissive > > parent. I spent two years battling with this man. Long story > short. Zeb > > is officially a HS student so this man is out of the picture. I > could > > have asked for two more years of school and proved lack of > measurable > > in all classes even though Zeb was on the honor roll. My primary > > concern is reading and math. The director agreed to everything I > > requested. I am very happy that I didn't have to take this to a > due > > process hearing. I am hoping for four good HS years. > > Charlyne > > Mom to Zeb 14 DS/OCD/ASD? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2008 Report Share Posted February 12, 2008 Sara, They are building a Walgreen Center about 20 min from my house and about a 5 min walk from my brother's house. They will be hiring about 200 people with disabilities. Dh just had hip replacement surgery yesterday so I may not be reading much. Charlyne Mom to Zeb 15 DS/OCD/ASD? Sara Cohen wrote: ABC news NOW at 7:30 is highliting the Walgreen center. Try to get it on line - was a 2 minute or so segment. -- Sara - Life is a journey- we choose the path. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2008 Report Share Posted February 12, 2008 Looked and sounded great. What I REALLY liked was the buy in of all the neuro typical people there to support the other half. True " living in the community. " When does Zach start training????? > Sara, > They are building a Walgreen Center about 20 min from my house and about a > 5 min walk from my brother's house. They will be hiring about 200 people > with disabilities. Dh just had hip replacement surgery yesterday so I may > not be reading much. > Charlyne > Mom to Zeb 15 DS/OCD/ASD? > > Sara Cohen <pastmidvale@... <pastmidvale%40gmail.com>> wrote: ABC > news NOW at 7:30 is highliting the Walgreen center. Try to get it on > line - was a 2 minute or so segment. > > -- > Sara - Life is a journey- we choose the path. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2008 Report Share Posted February 12, 2008 Sara, you mean Zeb? He just turned 15. I don't think he would willingly go work any time soon,LOL. I did start my business specifically with him in mind almost 14 yrs ago. He does help occasionally but only long enough to earn money to play carnival games. Just can't get enough stuffed animals. We haven't done a school transition plan as yet. I expect Zeb to choose a college program of some sort. Time will tell. Charlyne Mom to Zeb 15 DS/OCD/ASD? Sara Cohen wrote: Looked and sounded great. What I REALLY liked was the buy in of all the neuro typical people there to support the other half. True " living in the community. " When does Zach start training????? > Sara, > They are building a Walgreen Center about 20 min from my house and about a > 5 min walk from my brother's house. They will be hiring about 200 people > with disabilities. Dh just had hip replacement surgery yesterday so I may > not be reading much. > Charlyne > Mom to Zeb 15 DS/OCD/ASD? > > Sara Cohen <pastmidvale@... <pastmidvale%40gmail.com>> wrote: ABC > news NOW at 7:30 is highliting the Walgreen center. Try to get it on > line - was a 2 minute or so segment. > > -- > Sara - Life is a journey- we choose the path. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2008 Report Share Posted February 13, 2008 Of course I meant Zeb - Charlyne I have this terrible disease - Names never stick! Along with a college program, maaybe Zeb would like a work skill. I only wish we had started Elie on the IDEA that working for longer than an hour at a time was a good thing. HE works GREAT for an hour or so. Can domany different jobs as well, but after an hour or so, he > Sara, you mean Zeb? He just turned 15. I don't think he would willingly > go work any time soon,LOL. I did start my business specifically with him in > mind almost 14 yrs ago. He does help occasionally but only long enough to > earn money to play carnival games. Just can't get enough stuffed animals. We > haven't done a school transition plan as yet. I expect Zeb to choose a > college program of some sort. Time will tell. > Charlyne > Mom to Zeb 15 DS/OCD/ASD? > > Sara Cohen <pastmidvale@... <pastmidvale%40gmail.com>> wrote: Looked > and sounded great. What I REALLY liked was the buy in of all the > neuro typical people there to support the other half. True " living in the > community. " > > When does Zach start training????? > > On Feb 12, 2008 9:48 AM, charlyne olko <charlyne1121@...<charlyne1121%40sbcglobal.net>> > wrote: > > > Sara, > > They are building a Walgreen Center about 20 min from my house and about > a > > 5 min walk from my brother's house. They will be hiring about 200 people > > with disabilities. Dh just had hip replacement surgery yesterday so I > may > > not be reading much. > > Charlyne > > Mom to Zeb 15 DS/OCD/ASD? > > > > Sara Cohen <pastmidvale@... <pastmidvale%40gmail.com><pastmidvale%40gmail.com>> wrote: ABC > > news NOW at 7:30 is highliting the Walgreen center. Try to get it on > > line - was a 2 minute or so segment. > > > > -- > > Sara - Life is a journey- we choose the path. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2008 Report Share Posted December 10, 2008 Sara, It is soooo wonderful to hear from you. I too always wondered what happened to that young, wonderful woman!!!! I can't believe it's been so long and now look at you! An old married woman and pregnant! I'm so happy for you! Yes, I too remember like Al when we got to meet you and other families here in Arlington, VA. That was so fun!! If you ever get to DC come visit! I'll look for you on facebook, but I'm not very active on there. Anyone know someone that wants to rent my house for the week of inauguration? People are putting their homes on Craig's list and renting for $4-6K for the week! Unbelievable! Kay Mom to Jon, Liz, (DS), 9 1/'2 yrs old, Arlington, VA This communication is the property of Qwest and may contain confidential or privileged information. Unauthorized use of this communication is strictly prohibited and may be unlawful. If you have received this communication in error, please immediately notify the sender by reply e-mail and destroy all copies of the communication and any attachments. Quote Link to comment Share on other sites More sharing options...
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