Need answers

[Guest guest]

I'm new to the group and have learned so much from reading posts here and I

would be thrilled to hear what any of you might think of my situation. I

suspect that I might have symptoms caused by mold and/or dust. I've been

teaching elementary school music in a windowless room for over a year and the

temperature fluctuates daily. The ceiling tiles are bowed with some broken,

exposing the upper part of the air above. Also, the dust accumulates very

rapidly---my desk, phone and computer have to be dusted daily. I've had

significant hair loss since last spring, varying degrees of headaches from

tolerable to full-blown migraines, painful inhalation in my nose and throat,

tightness in chest, extreme fatigue, eye irritation requiring steroid drops,

stiff and sore muscles, a general sense of blah and new this week, laryngitis

going on 5 days now. I've had bloodwork done twice to rule out diabetes and

thyroid issues. I even went to a dermatologist to see about the hair loss. I

was diagnosed with tellogium effluvium, but said he couldn't do anything for me.

I've talked to my principal about it and he's not too happy about the situation.

(Earlier this school year, a brand new building was closed for mold removal from

the AC system. My school is at least 40 years old.) An HVAC guy from our

school system did an 'air' test---recorded the temperature, CO levels and

humidity and said all were within normal ranges. I'm in my 40's and have always

been healthy until I started this job. I chalked all of my tiredness up to

starting a new job and staying busy with my own three children. I love what I

do and I love my life, so I really have a hard time wrapping my head around the

idea that I have CFS. I have another appointment with my GP next week. Should

I ask for any certain test or referral? I'm at my wit's end with this mess and

I sure would like to know what I can do to start feeling better. Any help you

all could provide me with would be greatly appreciated!

Darlene

[Guest guest]

Hello!  Yikes...please get to a doctor who specializes in environmental

medicine.  There are a few referred by this site who understand exposure and

treat the cause and not the myriad symptoms. 

I, too, worked in a school and still am disabled from the respiratory, cardiac,

and immune system distress from exposure.  Please see a good doctor...not that

traditional doctors are not wonderful.  It's just that the tests that you need

and will allow the doctor to determine whether allergens/exposure is the cause

are unique and typically not ordered by the typical MD.

Where are you located?  I have a wonderful doctor in Santa Barbara, CA.  I

know

that there is a fabulous doctor in Texas and several back East.

My prayers are with you...

sally

________________________________

From: Darlene <darlene.sullivan@...>

Sent: Sat, November 20, 2010 11:50:38 PM

Subject: [] Need answers

 

I'm new to the group and have learned so much from reading posts here and I

would be thrilled to hear what any of you might think of my situation. I suspect

that I might have symptoms caused by mold and/or dust. I've been teaching

elementary school music in a windowless room for over a year and the temperature

fluctuates daily. The ceiling tiles are bowed with some broken, exposing the

upper part of the air above. Also, the dust accumulates very rapidly---my desk,

phone and computer have to be dusted daily. I've had significant hair loss since

last spring, varying degrees of headaches from tolerable to full-blown

migraines, painful inhalation in my nose and throat, tightness in chest, extreme

fatigue, eye irritation requiring steroid drops, stiff and sore muscles, a

general sense of blah and new this week, laryngitis going on 5 days now. I've

had bloodwork done twice to rule out diabetes and thyroid issues. I even went to

a dermatologist to see about the hair loss. I was diagnosed with tellogium

effluvium, but said he couldn't do anything for me. I've talked to my principal

about it and he's not too happy about the situation. (Earlier this school year,

a brand new building was closed for mold removal from the AC system. My school

is at least 40 years old.) An HVAC guy from our school system did an 'air'

test---recorded the temperature, CO levels and humidity and said all were within

normal ranges. I'm in my 40's and have always been healthy until I started this

job. I chalked all of my tiredness up to starting a new job and staying busy

with my own three children. I love what I do and I love my life, so I really

have a hard time wrapping my head around the idea that I have CFS. I have

another appointment with my GP next week. Should I ask for any certain test or

referral? I'm at my wit's end with this mess and I sure would like to know what

I can do to start feeling better. Any help you all could provide me with would

be greatly appreciated!

Darlene

[Guest guest]

Hi Sally,

Thanks for the information.  I am in Kansas City and there are tons of great

medical facilities here so I'm sure I can find a specialist. I hate to hear that

you are still affected by your symptoms of exposure.  I appreciate your

response

so much. 

God bless you!

Darlene

________________________________

From: sally b <mustangsally2254@...>

Sent: Sun, November 21, 2010 11:26:12 AM

Subject: Re: [] Need answers

 

Hello!  Yikes...please get to a doctor who specializes in environmental

medicine.  There are a few referred by this site who understand exposure and

treat the cause and not the myriad symptoms. 

I, too, worked in a school and still am disabled from the respiratory, cardiac,

and immune system distress from exposure.  Please see a good doctor...not that

traditional doctors are not wonderful.  It's just that the tests that you need

and will allow the doctor to determine whether allergens/exposure is the cause

are unique and typically not ordered by the typical MD.

Where are you located?  I have a wonderful doctor in Santa Barbara, CA.  I

know

that there is a fabulous doctor in Texas and several back East.

My prayers are with you...

sally

[Guest guest]

Darlene-I too got sick at work. Bottom line: if you feel better when you are not

at work then it's time to move on. I loved working and had to leave-although I

stayed for a whole year after I decided it was probably work that was making me

sick-I didn't want to quit. It was for nothing though. In the end I had to quit

and within 3 weeks felt significantly better. I bet over the summer (if you stay

that long) or over Christmas week you will feel some improvement. Please learn

from that and move on. I say this with much empathy for you love of work!

Good luck, Surella

>

> I'm new to the group and have learned so much from reading posts here and I

would be thrilled to hear what any of you might think of my situation. I

suspect that I might have symptoms caused by mold and/or dust. I've been

teaching elementary school music in a windowless room for over a year and the

temperature fluctuates daily. The ceiling tiles are bowed with some broken,

exposing the upper part of the air above. Also, the dust accumulates very

rapidly---my desk, phone and computer have to be dusted daily. I've had

significant hair loss since last spring, varying degrees of headaches from

tolerable to full-blown migraines, painful inhalation in my nose and throat,

tightness in chest, extreme fatigue, eye irritation requiring steroid drops,

stiff and sore muscles, a general sense of blah and new this week, laryngitis

going on 5 days now. I've had bloodwork done twice to rule out diabetes and

thyroid issues. I even went to a dermatologist to see about the hair loss. I

was diagnosed with tellogium effluvium, but said he couldn't do anything for me.

I've talked to my principal about it and he's not too happy about the situation.

(Earlier this school year, a brand new building was closed for mold removal from

the AC system. My school is at least 40 years old.) An HVAC guy from our

school system did an 'air' test---recorded the temperature, CO levels and

humidity and said all were within normal ranges. I'm in my 40's and have always

been healthy until I started this job. I chalked all of my tiredness up to

starting a new job and staying busy with my own three children. I love what I

do and I love my life, so I really have a hard time wrapping my head around the

idea that I have CFS. I have another appointment with my GP next week. Should

I ask for any certain test or referral? I'm at my wit's end with this mess and

I sure would like to know what I can do to start feeling better. Any help you

all could provide me with would be greatly appreciated!

>

> Darlene

>

[Guest guest]

I have 2 doctors in Manhattan who are brilliant at mold issues and MCS in

general. I am seeing Dr. on but the other doctor recommended to me

was Dr. Majid Ali. They have websites (of course) so look them up. Dr. on

listened to me and believed me and so far whatever he suggested has made me feel

alot better (email me and I'll be happy to give you more info).

Also Mount Sinai hospital in NYC has a very highly regarded allergy and

environmental medicine department (they did great work " proving " 911 workers

were actually harmed by the dust they breathed in-duh!)

Anyway, look up the 2 docs.

Good luck, Surella

> >

> > Sorry, but there are only 5 maybe more now Drs in the country who know how

to diagnose and treat mold. Go to Dr Shoemaker's website,

chronicnuerotoxin.org(com?) and biotoxin.com He is the dr that established the

testing for mold. There also is a great sit called SchoolMoldHelp.org you need a

dr who understands mold, they are few and far between

> >

> >

>

[Guest guest]

I have a suggestion for a place in Ma. but it really depends

on what state is closer for you.

You can e-mail me privately if you are interested.

Good Luck!

nne~

> > >

> > > I'm new to the group and have learned so much from reading posts here and

I would be thrilled to hear what any of you might think of my situation. I

suspect that I might have symptoms caused by mold and/or dust. I've been

teaching elementary school music in a windowless room for over a year and the

temperature fluctuates daily. The ceiling tiles are bowed with some broken,

exposing the upper part of the air above. Also, the dust accumulates very

rapidly---my desk, phone and computer have to be dusted daily. I've had

significant hair loss since last spring, varying degrees of headaches from

tolerable to full-blown migraines, painful inhalation in my nose and throat,

tightness in chest, extreme fatigue, eye irritation requiring steroid drops,

stiff and sore muscles, a general sense of blah and new this week, laryngitis

going on 5 days now. I've had bloodwork done twice to rule out diabetes and

thyroid issues. I even went to a dermatologist to see about the hair loss. I

was diagnosed with tellogium effluvium, but said he couldn't do anything for me.

I've talked to my principal about it and he's not too happy about the situation.

(Earlier this school year, a brand new building was closed for mold removal from

the AC system. My school is at least 40 years old.) An HVAC guy from our

school system did an 'air' test---recorded the temperature, CO levels and

humidity and said all were within normal ranges. I'm in my 40's and have always

been healthy until I started this job. I chalked all of my tiredness up to

starting a new job and staying busy with my own three children. I love what I

do and I love my life, so I really have a hard time wrapping my head around the

idea that I have CFS. I have another appointment with my GP next week. Should

I ask for any certain test or referral? I'm at my wit's end with this mess and

I sure would like to know what I can do to start feeling better. Any help you

all could provide me with would be greatly appreciated!

> > >

> > > Darlene

> > >

> >

>

[Guest guest]

Good information and oh yes, breathing in concrete dust just couldn't be bad for

you!!?

>

> Also Mount Sinai hospital in NYC has a very highly regarded allergy and

environmental medicine department (they did great work " proving " 911 workers

were actually harmed by the dust they breathed in-duh!)

> Anyway, look up the 2 docs.

> Good luck, Surella

>

>

[Guest guest]

Hi Carol-

 

Sounds like my normal state of being. I just came back from the Podiatrist (

first visit ever ) and he started reeling off all of the problems my feet have.

He gave me Cortisone cocktail injections for the swelling & pain. I had no idea

that my feet were that bad because it is normal for me. I was more concerned

about the nodules growing in-between my toes. Does anybody else have this???

 

Might you consider getting a referral for a Podiatrist? It may help. And also

you will have a documented issue that can be tracked over time.

 

in SC

Hi Everyone

Well I have some weird things happening. All of a sudden yesterday my left foot,

namely mytoes became very very painful. I was at the store at the time and

barely made it home. The pain was absolutely excruciating I.