Guest guest Posted April 4, 2005 Report Share Posted April 4, 2005 I have to agree with . My self-esteem was affected somewhat by my mother, who although a very loving person, could be critical as she was a perfectionist. My son Connor, who received good correction with his helmet, still has facial assymetry especially in his jaw line , left ear and side of his head. Although his jaw is something that will require a doctor to follow his growth, the difference in the side of his head and his ear most likely will never be completely better. I know that I don't want to make him feel like he is different and don't want to point it out as a problem. It's natural to want your child to be perfect, but the truth is that none of us are perfect. From what you describe I think it's unlikely that most people will notice the difference in his ears and from what you said he's a cute boy. We, as parents, I think notice things that others don't. I know it can be hard, but try not to worry about it so much. Connor (PPO helmet grad 8/04, tort resolved, mild craniofacial microsomia) > > I emailed my 6 year old son's pictures to around 6 people on this > group. They all looked at the pictures and told me that if he did > have plagio that it was very very mild. They said that they could tell > that one of his ears were a little off but it was not that noticeable. > So i started looking at him really well and his head does seem to be > pretty accurate. Maybe just a little bit of a flat spot on the left > side but i measured his ears to his eyes. His left ear seems to be a > little less than a 1/4 of an inch closer to his eye than his right > ear. My hubby, sister, and mom think i worry too much. My mom says > everyones ear is off a little. But why do i keep noticing my son's > ears. He had ear surgery for his protruding ears. I wonder if there > is anything i can do for this. I don't want it to bother him when he > gets older.I don't know why its off but i do know that when he was > born, the left side of his head was flatter than the right side and > his > left ear stuck out way more than the right ear and seemed a lot > closer. I guess his head has even out pretty well but his ears did get > better but they never completely got symmetrical. My hubby thanks i > obsess too much. Thanks for listening. I just want my son to be happy > with himself and not to be picked on. He got picked on about his > protruding ears so i got them fixed for him. I don't want him to be > picked on about anything else on him. He is a very very cute child. I > always ask my hubby how did we have such cute children. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 I read that gave you amazing and beautiful advice. I know you only want the best for your son. Put the measuring tapes away and just love him and have fun with him. Take care. Sue Colin F., 18 mos. STARband grad --- In Plagiocephaly , " sharp3951 " <sharp3951@y...> wrote: > > I emailed my 6 year old son's pictures to around 6 people on this > group. They all looked at the pictures and told me that if he did > have plagio that it was very very mild. They said that they could tell > that one of his ears were a little off but it was not that noticeable. > So i started looking at him really well and his head does seem to be > pretty accurate. Maybe just a little bit of a flat spot on the left > side but i measured his ears to his eyes. His left ear seems to be a > little less than a 1/4 of an inch closer to his eye than his right > ear. My hubby, sister, and mom think i worry too much. My mom says > everyones ear is off a little. But why do i keep noticing my son's > ears. He had ear surgery for his protruding ears. I wonder if there > is anything i can do for this. I don't want it to bother him when he > gets older.I don't know why its off but i do know that when he was > born, the left side of his head was flatter than the right side and > his > left ear stuck out way more than the right ear and seemed a lot > closer. I guess his head has even out pretty well but his ears did get > better but they never completely got symmetrical. My hubby thanks i > obsess too much. Thanks for listening. I just want my son to be happy > with himself and not to be picked on. He got picked on about his > protruding ears so i got them fixed for him. I don't want him to be > picked on about anything else on him. He is a very very cute child. I > always ask my hubby how did we have such cute children. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2005 Report Share Posted April 7, 2005 I read that gave you amazing and beautiful advice. I know you only want the best for your son. Put the measuring tapes away and just love him and have fun with him. Take care. Sue Colin F., 18 mos. STARband grad --- In Plagiocephaly , " sharp3951 " <sharp3951@y...> wrote: > > I emailed my 6 year old son's pictures to around 6 people on this > group. They all looked at the pictures and told me that if he did > have plagio that it was very very mild. They said that they could tell > that one of his ears were a little off but it was not that noticeable. > So i started looking at him really well and his head does seem to be > pretty accurate. Maybe just a little bit of a flat spot on the left > side but i measured his ears to his eyes. His left ear seems to be a > little less than a 1/4 of an inch closer to his eye than his right > ear. My hubby, sister, and mom think i worry too much. My mom says > everyones ear is off a little. But why do i keep noticing my son's > ears. He had ear surgery for his protruding ears. I wonder if there > is anything i can do for this. I don't want it to bother him when he > gets older.I don't know why its off but i do know that when he was > born, the left side of his head was flatter than the right side and > his > left ear stuck out way more than the right ear and seemed a lot > closer. I guess his head has even out pretty well but his ears did get > better but they never completely got symmetrical. My hubby thanks i > obsess too much. Thanks for listening. I just want my son to be happy > with himself and not to be picked on. He got picked on about his > protruding ears so i got them fixed for him. I don't want him to be > picked on about anything else on him. He is a very very cute child. I > always ask my hubby how did we have such cute children. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 I'd just like to say for the record, that I have been on many antibiotic treatments for any number of problems since this whole thing started, and I have yet to get any relief from whatever these symptoms are. In fact, after being hospitalized for septicemia and placed on a super high dosage of intravenous Vancomycin, I had the first serious episode of neuropathy 2 days after the last antibiotic treatment. It was so bad, I couldn't even use the afflected appendage. So for me, antibiotics aren't likely to work. Heck, the whole thing started when I was in the hospital with tick borne encephalitis, and they were given me several hardcore, frontline antibiotics, intravenously, the whole time. I just can't imagine how, if Lyme's disease can be cured with antibiotics, it managed to live through some of the beatings it would've surely taken during either of those episodes or the chemotherapy I had to undergo for breast cancer. How'd it manage to live through all of that? I just don't know. [ ] PLEASE READ I want to stress the importance of not following advise found on/in any support group without first checking with your doctor. Each of us is very different and our bodies are very different. What has worked for one person may be deadly dangerous for another. Information posted to Lyme Aid and everywhere on the Internet is often times wrong in drastic and/or subtle ways. I know what it is like to struggle with this disease and I understand the desperate times of only wanting to be better. I know what it feels like to lose your doctor due to the medical boards' crackdowns. I know about embracing alternative ideas. Because I understand the pain and confusion I want folks to discuss the " weird " ideas/treatments on Lyme Aid. But I DON'T WANT a single person to follow the advise of an unknown person or website without getting additional information from their doctor(s) first! I want to stress to you the need to have someone who is skilled and familiar with YOU and YOUR history to give you advise and guidance. I know many folks feel antibiotics alone aren't working. I encourage you to try alternatives, but please find a Naturopathic Physician to work with if your MD or DO is not open minded about your desires. Buying something and trying something because someone else says it's a great idea, even if it costs just a little bit of money, is never a good idea. In the long run you may pay more for experimenting without guidance than what the guidance would originally cost. I know each of us would pursue the cure, no matter how weird, if a cure existed. Unfortunately at this time there is no great or easy cure. People do get better, but it takes diligence, wisdom and guidance. I've been involved with this community for quite some time and I have heard of hundreds of " cures " that people have chosen to pursue. That's not to say they didn't help a little, or for a time. But there's not one thing out there that will work for everyone, not yet. Please continue to share what has worked for you. But PLEASE check with YOUR healthcare professional before trying anything you read about here or on other websites! Sincerely, Robynn -owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2005 Report Share Posted September 28, 2005 I got this am and thought I would pass it along. Subject: Important Drug Recall THIS IS FOR REAL ?All drugs containing PHENYLPROPANOLAMINE are being recalled. You may want to try calling the 800 number listed on most drug boxes and inquire about a REFUND. Please read this CAREFULLY. Also, please pass this on to everyone you know. ?STOP TAKING anything containing this ingredient. It has been linked to increased hemorrhagic stroke (bleeding in brain) among women ages 18-49 in the three days after starting use of medication. Problems were not found in men, but the FDA recommended that everyone (even children) seek alternative medicine. ?The following medications contain Phenylpropanolamine: ?Acutrim Diet Gum Appetite Suppressant Acutrim Plus Dietary Supplements Acutrim Maximum Strength Appetite Control Alka-Seltzer Plus Children's Cold Medicine Effervescent Alka-Seltzer Plus Cold medicine (cherry or orange) Alka-Sel tzer Plus Cold Medicine Original Alka-Seltzer Plus Cold & Cough Medicine Effervescent Alka-Seltzer Plus Cold & Flu Medicine Alka-Seltzer Plus Cold & Sinus Effervescent Alka Seltzer Plus Night-Time Cold Medicine BC Allergy Sinus Cold Powder BC Sinus Cold Powder Comtrex Flu Therapy & Fever Relief Day & Night Contac 12-Hour Cold Capsules Contac 12 Hour Caplets Coricidin D Cold, Flu & Sinus Dexatrim Caffeine Free Dexatrim Extended Duration Dexatrim Gelcaps Dexatrim Vitamin C/Caffeine Free Dimetapp Cold & Allergy Chewable Tablets Dimetapp Cold & Cough Liqui-Gels Dimetapp DM Cold & Cough Elixir Dimetapp Elixir Dimetapp 4 Hour Liquid Gels Dimetapp 4 Hour Tablets Dimetapp 12 Hour Extentabs Tablets Naldecon DX Pediatric Drops Permathene Mega-16 Robitussin CF Tavist-D 12 Hour Relief of Sinus & Nasal Congestion Triaminic DM Cough Rel! ief Triaminic Expectorant Che st & Head Triaminic Syrup Cold & Allergy Triaminic Triaminicol Cold & Cough ..... ?I just found out and called the 800# on the container for Triaminic and they informed me that they are voluntarily recalling the following medicines because of a certain ingredient that is causing strokes and seizures in children: ?Orange 3D Cold & Allergy Cherry (Pink) 3D Cold & Cough Berry 3D Cough Relief Yellow 3D Expectorant ?They are asking you to call them at 800-548-3708 with the lot number on the box so they can send you postage for you to send it back to them, and they will also issue you a refund. If you know of anyone else with small children, PLEASE PASS THIS ON. THIS IS SERIOUS STUFF! ?DO PASS ALONG TO ALL ON YOUR MAILING LIST so people are informed. They can then pass it along to their families. ?To confirm these findings please take time to check the following: ?http://www.fda.gov/cder/drug/infopage/ppa/?PLEASE PASS THIS ON TO YOUR CHILDREN IN CASE THEY GIVE IT TO THEIR CHILDREN OR TO FRIENDS WHO HAVE CHILDREN AND GRANDCHILDREN. ???Marge Grant ?Administrative Assistant ?National Response Corporation ?Ph: 631-224-9141 ext. 111 ?Fax: 631-224-9096 ?mgrant@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2005 Report Share Posted September 29, 2005 Hey JoLynne Do you need any help with the site I am not that internet savey but can learn. I am at home now and my company let me keep the computer for now so if you need help with anything I'd like to help. Jo Lynne <jolynne4@...> wrote: I was unaware of us being hit again because the two emails were stopped by my Bell South Spam filter. It was brought to my attention from a member that did not want to receive Adult Content email. When I checked it had not yet appeared online when I emailed the person that brought it to my attention. So I checked my Bell South Spam - again I Stress if the Subj line appears to not be appropriate do not open it. The person that posted the two emails has been banned and removed from Liver Support L and I reported both emails to Abuse - with their IP address, etc. Trish they were set for No Mail. If I am feeling well enough to modertor new members that set to No Mail I may choose to moderate them. But both Joanne and I feel that this would be a full time job. So as members Please I cannot stress it enough that if the Subject Line is inappropriate do not open and if you get the Digest please just scroll down and do not read it. As if this world is not ugly enough. Thanks. Jo Lynne Find your next car at Canada Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2005 Report Share Posted November 12, 2005 Note: forwarded message attached. --------------------------------- FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Hi, This sounds like something that drivers should know about because I remember when I used to drive and seen someone driving without head lights was the first thing to do. Note: forwarded message attached. Subj: Don't Flash Headlights - POLICE DEPT , From: POLICE DEPARTMENT THIS INFORMATION IS EXTREMELY IMPORTANT!!!!!! DON'T FLASH HEADLIGHTS AT CAR WITH LIGHTS NOT ON!! Police officers working with the DARE program have issued this Warning: If you are driving after dark and see and on-coming car with no headlights on, DO NOT FLASH YOUR LIGHTS AT THEM! This is a common Bloods member " initiation game " that goes like this: The new gang member under initiation drives along with no headlights, and the first car to flash their headlights at him is now his " target " . He is now required to turn around and chase that car, then shoot and kill every individual in the vehicle in order to complete his initiation requirements. Police D epts. across the nation are being warned. Their intent is to have all the new Bloods nationwide drive around on Friday and Saturday nights with their headlights off. In order to be accepted into the gang, they have to shoot and kill all individuals in the first auto that does a courtesy flash to warn them that their lights are off. Make sure you share this information with all the drivers in your family! Please forward this message to all your friends and family members to inform them about this initiation ritual. Police Department Det. Arvizo Office (409) 983-8600 ext. 2320 Cell (409) 474-1093 Pgr (409) 726-4651 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 FW: Please read > > > > News clip. It's about a form of breast cancer called Inflammatory > Breast Cancer, and most people have never heard of it. It's a bit > graphic (shows some pictures of breasts with cancer to show the signs, > etc), but I think the information is very important. This kind of > cancer does not cause a lump and does not show up on a mammogram, so > it's important to know the symptoms. Please pass this on to your family > and friends. Something that we all should know about and have never > been told by our doctors. Many have not seen it and do not pay > attention to symptoms as you may see in the video. > > http://ww3.komotv.com/global/video/popup/pop_player.asp?ClipID1=785456 & h1 > =T > > > ________________________________________________________________________ > Check out AOL.com today. Breaking news, video search, pictures, email > and IM. All on demand. Always Free. > > > > -- > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.1.394 / Virus Database: 268.9.2/373 - Release Date: 6/22/2006 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 I am not sure what you mean about being on moderation,that you can take us off moderation what is it? As to your son I hope you find soemthing .i know there are site online and that are free but not sure what.i do know nick.com has a page where they can get activity pages and i found under blues clues pages they can color that shows blue and joe eating ,pottying,brushing teeth getting dressed tying shoes and they are coloring pages or just plain if u dont want to color them there is also like a little checklist for them to check off for each tasknow that is blues clues there are prolly other ones and with a little older style of cartoons well good luck vickie Please Read Hello everyonI apologize if it has taken a bit longer for posts to reach the list. IF anyone has been on the list for a period of time and are still on moderation, I can take you off moderation. Just contact me. My son , 12, has been getting worse behavior wise over the pst couple months. He had a really bad episode in the car, just completely lost it and we had to call the police to help. They got him to the hospital and he was admitted. So we have been going through a tough time. SO please be patient. We have come to the conclusion, my son doesn't understnad a lot of words. The doctor thinks pictures and visula schedules will be important. So we have looked into boardmaker of other programs that are very expensive. Does anyone have any pictures or something in a file they could send to me or any good sites with free stuff to help us make him a communication book. If you have any suggestions, we are open as well. Thank you all so much for everything. Sharon, Moderator It's here! Your new message!Get new email alerts with the free Toolbar. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 It's actually www.dotolearn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 www.speakingofspeech.com has a ton of pictures on there - everything you could ever want _________________________________________________________________ Don't get caught with egg on your face. Play Chicktionary! http://club.live.com/chicktionary.aspx?icid=chick_hotmailtextlink2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 is 11 and I think the increased number of meltdowns that he has along with this 12 and 14 year old are a natural result of growing up. Despite all there other problems they are still gonna go through puberty which is hard enough to deal with by itself. Ask any parent of a "normal" teen-ager! Doris M in OKirthsogbc <merc@...> wrote: >> Hello everyon> I apologize if it has taken a bit longer for posts to reach the list. > IF anyone has been on the list for a period of time and are still on > moderation, I can take you off moderation. Just contact me. My son > , 12, has been getting worse behavior wise over the pst couple > months. He had a really bad episode in the car, just completely lost it > and we had to call the police to help. They got him to the hospital and > he was admitted. So we have been going through a tough time. SO please > be patient. We have come to the conclusion, my son doesn't understnad a > lot of words. The doctor thinks pictures and visula schedules will be > important. So we have looked into boardmaker of other programs that are > very expensive. Does anyone have any pictures or something in a file > they could send to me or any good sites with free stuff to help us make > him a communication book. If you have any suggestions, we are open as > well. Thank you all so much for everything. Sharon, Moderator>Hi, I am new here.When I read your post I thought it was my wife talking because the exact same thing happened with our 14yo son.He got more episodic during the summer,He went off in the car,He was sent to the hospital and stayed for a while.I think the difference here is that he is highly verbal havinga dx of Asperger. He can speak very well but even having the communication skills heis still not telling us what makes him meltdown.Our guess is that during the summer the loss of the school routinemakes him irritable. Anxiety builds up and he triggers into a meltdown as a release. The real solution we think is to have some sort of extended school program during the summer to keep him engaged.Of course he can blow up at school too if things don't go his wayand that has caused him to be placed in a special school that understands autism and has the facilities to handle meltdowns.All we know is that when he is in the school program things go a lot smoother when he comes home. Guess he lets his anxiety out at school but in the summer he lets it out on us. He also can be with peers like himself at the that school.I know this does not help you to acquire the picture cards but I thought you might like to see the similar things we go through even though our son is very verbal. It seems that the real problem is actually non-verbal communication skills and an inability to relate socially.Most 14 year olds would be out playing with other kids in the summer but our son is not able to socialize in that way. AS is so frustrating for him and he lacks the flexibility that is needed to adapt to quickly changing social situations. It's like a color blind person being forced to sort colored marbles in a hurry. This would make anyone blow after a while.God Bless,Dave Shape in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 I belong to autism community connection chat board. They have a web site called www.autismcommunityconnection.com that has links to several free sites that offer picture schedules. I was able to find one that helped my son with the bus schedule. > > Hello everyon > I apologize if it has taken a bit longer for posts to reach the list. > IF anyone has been on the list for a period of time and are still on > moderation, I can take you off moderation. Just contact me. My son > , 12, has been getting worse behavior wise over the pst couple > months. He had a really bad episode in the car, just completely lost it > and we had to call the police to help. They got him to the hospital and > he was admitted. So we have been going through a tough time. SO please > be patient. We have come to the conclusion, my son doesn't understnad a > lot of words. The doctor thinks pictures and visula schedules will be > important. So we have looked into boardmaker of other programs that are > very expensive. Does anyone have any pictures or something in a file > they could send to me or any good sites with free stuff to help us make > him a communication book. If you have any suggestions, we are open as > well. Thank you all so much for everything. Sharon, Moderator > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 I am posting again and hoping some of you have some suggestions for me. I recently posted regarding my daughters huge regression in speech, motor, play etc. (What is wrong with my daughter?). As it turns out she tested + for Lyme disease. I am not sure when she was bite, we never saw a tick, bulls eye or a rash. She is a tough cookie, always on the move and is difficult to change/bathe so it's possible we missed it. . I have found some research on the Internet with children/adults that have had similar regression as a result to Lyme disease (lyme disease can affect people differently depending on the area of the bite-that is my understanding). Anyway we have started treatment with antibiotics (4th day ) but would very much like to find a doctor that has experience and/or specializes in Lyme disease. I am having difficulty finding someone. We live in NJ. --------------------------------- Get the toolbar and be alerted to new email wherever you're surfing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 A friend's niece was hit with Lyme's. She first went to a doctor in who is very good at finding it and treating it but it had gone on too long. She is now going to a dr. in NY (Wolf???) who specializes in the tough cases and does well. Wolf has a long wait. I'll give you the doc's info and and Dr. Wolf's info. when my friend returns from vacation. Liz hildy gogal wrote: >I am posting again and hoping some of you have some suggestions for me. I recently posted regarding my daughters huge regression in speech, motor, play etc. (What is wrong with my daughter?). As it turns out she tested + for Lyme disease. I am not sure when she was bite, we never saw a tick, bulls eye or a rash. She is a tough cookie, always on the move and is difficult to change/bathe so it's possible we missed it. . > > I have found some research on the Internet with children/adults that have had similar regression as a result to Lyme disease (lyme disease can affect people differently depending on the area of the bite-that is my understanding). Anyway we have started treatment with antibiotics (4th day ) but would very much like to find a doctor that has experience and/or specializes in Lyme disease. I am having difficulty finding someone. > We live in NJ. > > >--------------------------------- >Get the toolbar and be alerted to new email wherever you're surfing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 This is the Dr. in . I'll get the NY dr. info for you within a few days. Eiras Emilia C MD maps.google.com 702 Brewers Bridge Rd , NJ 08527 (732) 905-9630 hildy gogal wrote: >I am posting again and hoping some of you have some suggestions for me. I recently posted regarding my daughters huge regression in speech, motor, play etc. (What is wrong with my daughter?). As it turns out she tested + for Lyme disease. I am not sure when she was bite, we never saw a tick, bulls eye or a rash. She is a tough cookie, always on the move and is difficult to change/bathe so it's possible we missed it. . > > I have found some research on the Internet with children/adults that have had similar regression as a result to Lyme disease (lyme disease can affect people differently depending on the area of the bite-that is my understanding). Anyway we have started treatment with antibiotics (4th day ) but would very much like to find a doctor that has experience and/or specializes in Lyme disease. I am having difficulty finding someone. > We live in NJ. > > >--------------------------------- >Get the toolbar and be alerted to new email wherever you're surfing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 Thanks Liz Any chance your friend would talk to me via telephone, I could e-mail you my info off line? Liz <lizlaw@...> wrote: A friend's niece was hit with Lyme's. She first went to a doctor in who is very good at finding it and treating it but it had gone on too long. She is now going to a dr. in NY (Wolf???) who specializes in the tough cases and does well. Wolf has a long wait. I'll give you the doc's info and and Dr. Wolf's info. when my friend returns from vacation. Liz hildy gogal wrote: >I am posting again and hoping some of you have some suggestions for me. I recently posted regarding my daughters huge regression in speech, motor, play etc. (What is wrong with my daughter?). As it turns out she tested + for Lyme disease. I am not sure when she was bite, we never saw a tick, bulls eye or a rash. She is a tough cookie, always on the move and is difficult to change/bathe so it's possible we missed it. . > > I have found some research on the Internet with children/adults that have had similar regression as a result to Lyme disease (lyme disease can affect people differently depending on the area of the bite-that is my understanding). Anyway we have started treatment with antibiotics (4th day ) but would very much like to find a doctor that has experience and/or specializes in Lyme disease. I am having difficulty finding someone. > We live in NJ. > > >--------------------------------- >Get the toolbar and be alerted to new email wherever you're surfing. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 My son had Lyme's Disease when he was 28 months old and it was one of the triggers for his ASD symptoms. It wasn't diagnosed until he was 7 because I couldn't get anybody to follow up on my suspicions until then. I decided to skip the antibiotics figuring our chances of them helping after 5 years was almost non- existant at that point and continued to treat for allergies, nutritional deficiencies and toxicity. His story is on the Lyme Induced Autism Website. (http://www.lymeinducedautism.com). It's " Mason's Story " . (His final trigger was Nitrous Oxide which really screwed up his already struggling methylation cycle. (They thought I was nuts when I said the Nitrous caused a regression too.)) If you haven't already you may want to check out the Lyme Induced Autism site. They recently had a conference in California so there may be some info coming out of that. I'm pretty sure Dr in Connecticut sees kids and Dr Bock in NY is a DAN! doctor who I'm pretty sure has treated Lyme's disease. My son didn't have a bull's eye rash either and we're in the South where you aren't supposed to get Lyme's. We have enough cases in the area that we have a regional Lyme specialist. At the time we saw him (2 years ago) I didn't feel like he knew enough about my son's ASD to feel comfortable in letting him treat him with antibiotics. I've also seen Lyme's Disease mentioned on Celiac groups, but I'm not sure if people with gluten enteropathies are more susceptible to Lyme or not. Vicki > > hildy gogal wrote: > > >I am posting again and hoping some of you have some suggestions for me. I recently posted regarding my daughters huge regression in speech, motor, play etc. (What is wrong with my daughter?). As it turns out she tested + for Lyme disease. I am not sure when she was bite, we never saw a tick, bulls eye or a rash. She is a tough cookie, always on the move and is difficult to change/bathe so it's possible we missed it. . > > > > I have found some research on the Internet with children/adults that have had similar regression as a result to Lyme disease (lyme disease can affect people differently depending on the area of the bite-that is my understanding). Anyway we have started treatment with antibiotics (4th day ) but would very much like to find a doctor that has experience and/or specializes in Lyme disease. I am having difficulty finding someone. > > We live in NJ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 She's the aunt of the patient. I'll ask when she returns from vacation. I do know the kid is 12, has been playing around with this for nearly 2 years and is currently on home instruction at school. The NY doc put her on many supplements. It sounds like a DAN! dr. thing but friend did not know. It's a 7 week treatment and she is supposed to be cured. 7 weeks will end for this kid in mid-August I think. hildy gogal wrote: >Thanks Liz > > Any chance your friend would talk to me via telephone, I could e-mail you my info off line? > >Liz <lizlaw@...> wrote: > A friend's niece was hit with Lyme's. She first went to a doctor in > who is very good at finding it and treating it but it had gone >on too long. She is now going to a dr. in NY (Wolf???) who specializes >in the tough cases and does well. Wolf has a long wait. I'll give you >the doc's info and and Dr. Wolf's info. when my friend returns >from vacation. > > >Liz > >hildy gogal wrote: > > > >>I am posting again and hoping some of you have some suggestions for me. I recently posted regarding my daughters huge regression in speech, motor, play etc. (What is wrong with my daughter?). As it turns out she tested + for Lyme disease. I am not sure when she was bite, we never saw a tick, bulls eye or a rash. She is a tough cookie, always on the move and is difficult to change/bathe so it's possible we missed it. . >> >>I have found some research on the Internet with children/adults that have had similar regression as a result to Lyme disease (lyme disease can affect people differently depending on the area of the bite-that is my understanding). Anyway we have started treatment with antibiotics (4th day ) but would very much like to find a doctor that has experience and/or specializes in Lyme disease. I am having difficulty finding someone. >>We live in NJ. >> >> >>--------------------------------- >>Get the toolbar and be alerted to new email wherever you're surfing. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 Re: the celiac thing, I think the deal is an undiagnosed celiac's immune system can be compromised from malabsorption so they can potentially be more susceotible to things that may not hit others so severely. fridgudare2003 wrote: >My son had Lyme's Disease when he was 28 months old and it was >one of the triggers for his ASD symptoms. It wasn't diagnosed >until he was 7 because I couldn't get anybody to follow up on my >suspicions until then. I decided to skip the antibiotics >figuring our chances of them helping after 5 years was almost non- >existant at that point and continued to treat for allergies, >nutritional deficiencies and toxicity. His story is on the Lyme >Induced Autism Website. (http://www.lymeinducedautism.com). >It's " Mason's Story " . (His final trigger was Nitrous Oxide which >really screwed up his already struggling methylation cycle. (They >thought I was nuts when I said the Nitrous caused a regression too.)) >If you haven't already you may want to check out the Lyme Induced >Autism site. They recently had a conference in California so there >may be some info coming out of that. > >I'm pretty sure Dr in Connecticut sees kids and Dr Bock in NY >is a DAN! doctor who I'm pretty sure has treated Lyme's disease. >My son didn't have a bull's eye rash either and we're in the South >where you aren't supposed to get Lyme's. We have enough cases in the >area that we have a regional Lyme specialist. At the time we saw him >(2 years ago) I didn't feel like he knew enough about my son's ASD to >feel comfortable in letting him treat him with antibiotics. > >I've also seen Lyme's Disease mentioned on Celiac groups, but I'm not >sure if people with gluten enteropathies are more susceptible to Lyme >or not. > >Vicki > > > > >>hildy gogal wrote: >> >> >> >>>I am posting again and hoping some of you have some suggestions >>> >>> >for me. I recently posted regarding my daughters huge regression in >speech, motor, play etc. (What is wrong with my daughter?). As it >turns out she tested + for Lyme disease. I am not sure when she was >bite, we never saw a tick, bulls eye or a rash. She is a tough >cookie, always on the move and is difficult to change/bathe so it's >possible we missed it. . > > >>> >>> I have found some research on the Internet with children/adults >>> >>> >that have had similar regression as a result to Lyme disease (lyme >disease can affect people differently depending on the area of the >bite-that is my understanding). Anyway we have started treatment with >antibiotics (4th day ) but would very much like to find a doctor that >has experience and/or specializes in Lyme disease. I am having >difficulty finding someone. > > >>> We live in NJ >>> >>> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2007 Report Share Posted July 21, 2007 What an incredible boy. I read his story and I must tell you he has an incredible mom! fridgudare2003 wrote: >My son had Lyme's Disease when he was 28 months old and it was >one of the triggers for his ASD symptoms. It wasn't diagnosed >until he was 7 because I couldn't get anybody to follow up on my >suspicions until then. I decided to skip the antibiotics >figuring our chances of them helping after 5 years was almost non- >existant at that point and continued to treat for allergies, >nutritional deficiencies and toxicity. His story is on the Lyme >Induced Autism Website. (http://www.lymeinducedautism.com). >It's " Mason's Story " . (His final trigger was Nitrous Oxide which >really screwed up his already struggling methylation cycle. (They >thought I was nuts when I said the Nitrous caused a regression too.)) >If you haven't already you may want to check out the Lyme Induced >Autism site. They recently had a conference in California so there >may be some info coming out of that. > >I'm pretty sure Dr in Connecticut sees kids and Dr Bock in NY >is a DAN! doctor who I'm pretty sure has treated Lyme's disease. >My son didn't have a bull's eye rash either and we're in the South >where you aren't supposed to get Lyme's. We have enough cases in the >area that we have a regional Lyme specialist. At the time we saw him >(2 years ago) I didn't feel like he knew enough about my son's ASD to >feel comfortable in letting him treat him with antibiotics. > >I've also seen Lyme's Disease mentioned on Celiac groups, but I'm not >sure if people with gluten enteropathies are more susceptible to Lyme >or not. > >Vicki > > > > >>hildy gogal wrote: >> >> >> >>>I am posting again and hoping some of you have some suggestions >>> >>> >for me. I recently posted regarding my daughters huge regression in >speech, motor, play etc. (What is wrong with my daughter?). As it >turns out she tested + for Lyme disease. I am not sure when she was >bite, we never saw a tick, bulls eye or a rash. She is a tough >cookie, always on the move and is difficult to change/bathe so it's >possible we missed it. . > > >>> >>> I have found some research on the Internet with children/adults >>> >>> >that have had similar regression as a result to Lyme disease (lyme >disease can affect people differently depending on the area of the >bite-that is my understanding). Anyway we have started treatment with >antibiotics (4th day ) but would very much like to find a doctor that >has experience and/or specializes in Lyme disease. I am having >difficulty finding someone. > > >>> We live in NJ >>> >>> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2007 Report Share Posted July 22, 2007 ok... thanks Liz Liz <lizlaw@...> wrote: She's the aunt of the patient. I'll ask when she returns from vacation. I do know the kid is 12, has been playing around with this for nearly 2 years and is currently on home instruction at school. The NY doc put her on many supplements. It sounds like a DAN! dr. thing but friend did not know. It's a 7 week treatment and she is supposed to be cured. 7 weeks will end for this kid in mid-August I think. hildy gogal wrote: >Thanks Liz > > Any chance your friend would talk to me via telephone, I could e-mail you my info off line? > >Liz <lizlaw@...> wrote: > A friend's niece was hit with Lyme's. She first went to a doctor in > who is very good at finding it and treating it but it had gone >on too long. She is now going to a dr. in NY (Wolf???) who specializes >in the tough cases and does well. Wolf has a long wait. I'll give you >the doc's info and and Dr. Wolf's info. when my friend returns >from vacation. > > >Liz > >hildy gogal wrote: > > > >>I am posting again and hoping some of you have some suggestions for me. I recently posted regarding my daughters huge regression in speech, motor, play etc. (What is wrong with my daughter?). As it turns out she tested + for Lyme disease. I am not sure when she was bite, we never saw a tick, bulls eye or a rash. She is a tough cookie, always on the move and is difficult to change/bathe so it's possible we missed it. . >> >>I have found some research on the Internet with children/adults that have had similar regression as a result to Lyme disease (lyme disease can affect people differently depending on the area of the bite-that is my understanding). Anyway we have started treatment with antibiotics (4th day ) but would very much like to find a doctor that has experience and/or specializes in Lyme disease. I am having difficulty finding someone. >>We live in NJ. >> >> >>--------------------------------- >>Get the toolbar and be alerted to new email wherever you're surfing. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 In a message dated 7/21/2007 11:44:30 A.M. Eastern Daylight Time, hildygogal@... writes: I have found some research on the Internet with children/adults that have had similar regression as a result to Lyme disease (lyme disease can affect people differently depending on the area of the bite-that is my understanding)I have found some research on the Internet with children/adults that have had similar regression as a result to Lyme disease (lyme disease can affect people differently depending on the area of the bit We live in NJ. Dr. Keneth bock specializes in Lyme and he is a DAN doctor as well. He has written books as well on this. He is in Rhinebeck NY ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 Hildy, She is not real comfortable with the call. She will get the dr. info. and I will relay it. I will also get you the most important info. if the kid got better. She did mention when all is said and done that the bill will be $10,000 and he does not take insurance. Just to let you know. Best wishes! Liz hildy gogal wrote: >ok... thanks Liz > >Liz <lizlaw@...> wrote: She's the aunt of the patient. I'll ask when she returns from vacation. >I do know the kid is 12, has been playing around with this for nearly 2 >years and is currently on home instruction at school. The NY doc put her >on many supplements. It sounds like a DAN! dr. thing but friend did not >know. It's a 7 week treatment and she is supposed to be cured. 7 weeks >will end for this kid in mid-August I think. > >hildy gogal wrote: > > > >>Thanks Liz >> >>Any chance your friend would talk to me via telephone, I could e-mail you my info off line? >> >>Liz <lizlaw@...> wrote: >>A friend's niece was hit with Lyme's. She first went to a doctor in >> who is very good at finding it and treating it but it had gone >>on too long. She is now going to a dr. in NY (Wolf???) who specializes >>in the tough cases and does well. Wolf has a long wait. I'll give you >>the doc's info and and Dr. Wolf's info. when my friend returns >> >> >>from vacation. > > >> >>Liz >> >>hildy gogal wrote: >> >> >> >> >> >>>I am posting again and hoping some of you have some suggestions for me. I recently posted regarding my daughters huge regression in speech, motor, play etc. (What is wrong with my daughter?). As it turns out she tested + for Lyme disease. I am not sure when she was bite, we never saw a tick, bulls eye or a rash. She is a tough cookie, always on the move and is difficult to change/bathe so it's possible we missed it. . >>> >>>I have found some research on the Internet with children/adults that have had similar regression as a result to Lyme disease (lyme disease can affect people differently depending on the area of the bite-that is my understanding). Anyway we have started treatment with antibiotics (4th day ) but would very much like to find a doctor that has experience and/or specializes in Lyme disease. I am having difficulty finding someone. >>>We live in NJ. >>> >>> >>>--------------------------------- >>>Get the toolbar and be alerted to new email wherever you're surfing. >>> >>> Quote Link to comment Share on other sites More sharing options...
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