I am new here

[Guest guest]

Also anyone know of Dr's in Ohio??

From: Gloligney@...

rheumaticegroups

Subject: rheumatic I am new here

Date: Sun, 30 Apr 2000 23:27:34 EDT

Is there anyone who can tell me of any Dr.'s in the Arkansas area who are

doing IV therapy for fibro and chronic fatigue and ms. Thanks so much.

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

you are not alone there are many of us i hope all goes well for you keep seeing

your doctor and good luck

[Guest guest]

you are not alone there are many of us i hope all goes well for you keep seeing

your doctor and good luck

[Guest guest]

We are seeing a gastroenterologist. We can only get appointments once every three months because they are so busy there and the clinic is only open on Mondays. Should we see a nutritionist to help us?

Schultz

[Guest guest]

Thank you Sue. My husband starts his treatments on the 18th of this month.

Him and I have to take these classes then he will start his treatments. The

doctor changed his mind about starting me on treatments at the same time as

my husband. I go for a biopsy on the 11th, if I have cirrhosis also I don't

know if they will start me on treatments yet. We talked to the nurse who is

giving those classes and she said we just have to eat healthy, no salt, no

spinach and red meat once in awhile. We are going to stop eating red meat

all together. We were also told to drink a LOT of water and no cafeinne.

That is the hardest part for me because all I ever drink(for the past 18

years) is pepsi. I'm working on drinking water and juice but I still drink

pepsi a lot. My husband is hoping that he won't get so sick that he can't

work. He has lost a 100 pounds since September. He was taking Trim spa but

he has stopped and is still losing about 3 pounds every two days.

I hope your husband is not suffering much because of treatments and I am

glad that you tested negative.

Schultz

[Guest guest]

there are many MANY ways to access natural protocols for hep c. If you are online you can find them. You can also go to the Jovo list at (jovo ), where we discuss natural protocols daily...you could possibly improve your quality of life and remove the risk of further complications from the side effects of tx......I am doing beautifully on a natural protocol....hope this helps...blessings, Satya

[ ] i am new here

i was diagnosed about 2 or so months ago. prior to the diagnosis i had a 16 oz beer in my hand always. i kept on my toes with the help of other substances and this was a natural way of life, i assumed that my feeling ill was probably a lack of substance not any diseasewell when the good doctor said NO ALCOHOL, i took it as scripture and dropped it lake a "bad habit", i have a 14 year old son as well as a 24 yr.old and have plenty reason to stick around. i do not miss the former lifestyle, however, about 3 or 4 days aweek i feel terrible, my entire right side aches from my head to my toes and everywhere especially the joints of my shoulder, wrist areas. my back area and kidney areas pain me, i am sick to my stomach, my get up and go just fizzels away and what sounds like a good plan is often no more than a thot..... i am not familure with Chinese herbs, not to mention the town i live just put up our 3rd stop light so needless to say we are quite rural. can my doctor prescribe anything to combat these symptoms? i have had the liverBx and i show no signs of cerosis i recall her saying stage 2 and a variant 1a.any advice?thankspeace & lovenan

[Guest guest]

BE AN INFORMED CONSUMER OF ALTERNATIVE MEDICINE!

Are you a careful shopper? When you buy an expensive stereo system,

you probably do some research first, comparing the quality and price

of various brands. Instead of trusting a salesman's opinion, you may

read Consumer Reports for an unbiased comparison. Do you shop as

critically for your health care?

There's really no such thing as " alternative " medicine: just medicine

that has been proven effective and medicine that hasn't. As soon as

evidence shows that an alternative treatment works, it is accepted

into the mainstream and is no longer " alternative. " The treatments

currently classed as " alternative " may be any of the following:

1) It works, is safe, and will soon be accepted by mainstream

medicine.

2) It works but has side effects and contraindications.

3) It works but there is no standardized, uncontaminated,

trustworthy product available.

4) It doesn't really work but has a placebo effect, so some

people are fooled into thinking it works.

5) There is no evidence that it works, but some people want to

believe in it anyway.

6) It doesn't work and can actually be harmful.

7) It is a deliberate scam intended to separate you from your

money.

How can you find out which alternative treatments really work? Who

do you ask? Would you ask a butcher if you should become a

vegetarian? Is a barber likely to tell you that you don't need a

haircut yet? People are likely to give you a biased answer when the

question concerns their livelihood. Wouldn't it be better to ask an

unbiased source such as Consumer Reports?

> there are many MANY ways to access natural protocols for hep c. If

you are online you can find them. You can also go to the Jovo list at

(jovo ), where we discuss natural

protocols daily...you could possibly improve your quality of life and

remove the risk of further complications from the side effects of

tx......I am doing beautifully on a natural protocol....hope this

helps...blessings, Satya

> [ ] i am new here

>

>

> i was diagnosed about 2 or so months ago. prior to the diagnosis

i had a 16 oz beer in my hand always. i kept on my toes with the help

of other substances and this was a natural way of life, i assumed

that my feeling ill was probably a lack of substance not any disease

> well when the good doctor said NO ALCOHOL, i took it as scripture

and dropped it lake a " bad habit " , i have a 14 year old son as well

as a 24 yr.old and have plenty reason to stick around. i do not miss

the former lifestyle, however, about 3 or 4 days aweek i feel

terrible, my entire right side aches from my head to my toes and

everywhere especially the joints of my shoulder, wrist areas. my back

area and kidney areas pain me, i am sick to my stomach, my get up and

go just fizzels away and what sounds like a good plan is often no

more than a thot..... i am not familure with Chinese herbs, not to

mention the town i live just put up our 3rd stop light so needless to

say we are quite rural. can my doctor prescribe anything to combat

these symptoms? i have had the liverBx and i show no signs of cerosis

i recall her saying stage 2 and a variant 1a.

> any advice?

> thanks

> peace & love

> nan

>

[Guest guest]

THERE IS NO BLOOD TO BLOOD LINK. WHAT ABOUT MY DAUGHTER IS THAT BLOOD TO

BLOOD. DOES IT START WITH SPERM? SPERM HAS BLOOD IN IT AND THE PLACENTA NEVER

SHOT

DRUGS BEFORE IN MY LIFE. I AM NOT A RISK FACTOR FOR THIS AT ALL.

HOW DID IT HAPPEN? HE IS A HEMOPHILIAC. HE COULD HAVE GIVEN IT TO ME, RIGHT?

[Guest guest]

Hi Nicecy75,

No, you probably will not die from hpeatitis C. But first you do

need to make a few adjustments. If you drink...STOP, if you eat a

lousy diet of junk food....STOP

Did your daughter's father give it to you? Maybe; if you shared

needles used for drugs, if you both have gum desease and you shared

toothbrushes with blood on them, if you got unsanitary tattooes

together, if you had to put bandages on each other after sex. There

must be a direct blood to blood link.

If you haven't already done so, you need to find a GI/Hepatologist

and get some tests done. Genotype, vital load, and liver biopsy are

needed to determine your future treatment steps.

If you can find a support group in your part of Virginia go to a

meeting. People there can answer lots of questions in a short

amount of time.

This group is one of the best, stop in often.

Glenn

>

>

>

> i am new here and i dont know where to began

> i was diagnoised with hepititis C in febuary.

>

> my daughters father is a hemophiliac and he told me a couple years

> ago when we first met that he had been tested for it and he was

> negative

> he mentioned he was given a shot of interfuron a few times

> now , when i find out i confronted him agin and he told me that he

> wanted to get a second opinion whenn i said interfuron is for hep

C

> that means you knew when we slept togeotther you were giving this

to

> me.

> witch is aginst the law.

> his story changed. he is in prison and always told me that if he

can

> not have me no one will and is very vendictive and posseive. i

want

> to know what i can do and i am very determined .my gut feeling is

he

> did this intentionaly and my baby girl who is two has it i am in

> virginia and my health is great i am very depressed and jpoint

pains

> and tired and scared . iam 28 am i going to die?

[Guest guest]

I CANT STAND IT. THANKS BUT HE HAS IT ALSO. I NEVER HAD A BLOOD TRANSFUSION.

HE WAS NOT CICUMSIZED NOT TO BE GROSS WHAT IF I WAS ON MY CYCLE AND HE HAD A

CUT FROM FORESKIN AND WE HAD SEX. IS THIS POSSIBLE. IT IS TOO MUCH A

COINCIDENCE. NIETHER ONE OF US USED, OR SHOT DRUGS. WE BOTH HAVE IT. THE DOC

SAYS IT IS

RECENT. I HAD RELATIONS WITH HIM IN DEC 2000 . HE WAS ALWAYS VERY SICK LIKE

VOMITING IF HE DRANK BEER AND MALY=T LIQUOR I WONDERED ABOUT THAT a lot

HE DID THIS INTENTIONAL IF H3 KNEW AND TOLD ME AFTERWARDS.

[Guest guest]

Hi Bernie,

There is a very small chance of hep C infection (less than 3

percent) through sex. Hep C virus is not found in any bodily fluids

except blood, not saliva, not sperm, just blood. About 5% of babies

born to infected mothers get infected, usually during a difficult

delivery. Your daughter's father probably got infected through a

blood transfusion or by receiving cloting factors. If you ever

cleaned up a blood spill without using gloves and bleach you could

have been infected then.

How long have you been involved with him? How far along is your

infection? If you have known him a short time, less than 5 years,

and you have cirrhosis you may have gotten infected before you met

him. Remember, about 15% of those infected have no risk factors in

their history.

Hope some of this helps, keep asking questions. The only dumb

question is the one not asked.

Glenn

> THERE IS NO BLOOD TO BLOOD LINK. WHAT ABOUT MY DAUGHTER IS THAT

BLOOD TO

> BLOOD. DOES IT START WITH SPERM? SPERM HAS BLOOD IN IT AND THE

PLACENTA NEVER SHOT

> DRUGS BEFORE IN MY LIFE. I AM NOT A RISK FACTOR FOR THIS AT ALL.

>

> HOW DID IT HAPPEN? HE IS A HEMOPHILIAC. HE COULD HAVE GIVEN IT TO

ME, RIGHT?

>

>

>

[Guest guest]

Bernie,

I can understand how upset you are, but being angry and vindictive is

NOT good for your liver! Try to relax. You seem to be unable to see

this disease for what it is--

the chance of anyone getting HCV (hepatitis C virus)through sexual

relations is only 3% but higher if there is anal sex. Approximately

10% of victims never figure out how they got the disease.

I feel bad for you and your child, but HCV is not a death sentence.

The first thing you must do is to take care of yourself and her. It

does not matter HOW you got the virus. What matters is how you

manage this disease from now on.

Please, get a genotype, a Viral Load, and a biopsy. Without these,

no doctor can assess your health. Without these, you cannot know

what to do next. Get them done for your child as well. Try to

concentrate on the here and now! Do all you can to stop disease

progression, like managing your time, exercising moderately, drinking

lots of water, eating a healthy diet, and abstaining from alcohol and

drugs. Be very careful with over-the-counter meds and various

vitamins. Many can cause damage to the liver, especially if we have

HepC.

This is a good group with many caring members. Come here to

question, learn and relax! You are not alone.

Hugs, Suzy

> I CANT STAND IT. THANKS BUT HE HAS IT ALSO. I NEVER HAD A BLOOD

TRANSFUSION.

> HE WAS NOT CICUMSIZED NOT TO BE GROSS WHAT IF I WAS ON MY CYCLE AND

HE HAD A

> CUT FROM FORESKIN AND WE HAD SEX. IS THIS POSSIBLE. IT IS TOO MUCH

A

> COINCIDENCE. NIETHER ONE OF US USED, OR SHOT DRUGS. WE BOTH HAVE

IT. THE DOC SAYS IT IS

> RECENT. I HAD RELATIONS WITH HIM IN DEC 2000 . HE WAS ALWAYS VERY

SICK LIKE

> VOMITING IF HE DRANK BEER AND MALY=T LIQUOR I WONDERED ABOUT THAT

a lot

>

> HE DID THIS INTENTIONAL IF H3 KNEW AND TOLD ME AFTERWARDS.

>

>

>

[Guest guest]

BUT HER FATHER HAS HEP C. BEFORE I DID. HOW DID HE GET IT HE IS A

HEMOPHILIAC? HOW CAN HE BE GIVEN A SHOT OF INTERFERON AND NOT KNOW WHAT IT IS

FOR?

I NEVER HAD ANAL SEX IN MY LIFE. I WANT TO KNOW HOW THIS HAPPENED. MY

[Guest guest]

YOU MEAN I CANT EXERCISE AS MUCH, I HAVE GENOA TYPE A2 A WITCH IS GOOD FOR

TREATMENT. WHY AM I TIRED WHY DO MY JOINTS HURT. MY LEVELS ARE IN THE HUNDREDS

NO ORGAN DAMAGE. I CANT EVEN PAY MY RENT I, AM, OF BEING TIRED. IT IS 350

DOLLARS

BERNIE

[Guest guest]

Morning,

Being a Hemophiliac he most likely got his thru a transfusion at some

point and time in his life. I would be surprised if he didn't know that

interferon shot was for Hep C unless the doctors used it for something else.

But he also could have been just as ashamed as you as having Hep C. Was he

more careful with you and others after his shot.

Re: Re: i am new here

BUT HER FATHER HAS HEP C. BEFORE I DID. HOW DID HE GET IT HE IS A

HEMOPHILIAC? HOW CAN HE BE GIVEN A SHOT OF INTERFERON AND NOT KNOW WHAT IT

IS FOR?

I NEVER HAD ANAL SEX IN MY LIFE. I WANT TO KNOW HOW THIS HAPPENED. MY

[Guest guest]

No, he was not. He lied about it and lies only happen when people cover up it

was userd for hep c and i am ashamed but if I would not infect others. I

would not have unprotected sex.

[Guest guest]

Hello! Welcome to the group! As for communicating..

if you need to ask a question - go right ahead, as

many as you can come up with! If you need to vent,

again - go right ahead...we all have our good days and

bad ones, so one of the most important things to know

is to be patient while waiting on a response at times.

I know that a lot of us tend to have flares and our

posts take awhile to caught up on! As for anything

else on communicating; just be yourself!!! Sorry about

the DX's, there are a lot of different things people

are doing for themselves and different approaches from

various physicains throughout the US and some other

countries. Sorry you are having so much pain. Please

be sure to let your doc know! Take care. Kim

PS: How long have you had these DX's? Do you see a

rheumy? What meds. are you on if any? Stuff like

that might help catch others attention on what they

can relate to and help with. Good luck!

--- wildkard8 <Wildkard@...> wrote:

> Hi...just signed on to groupe this morning. Need to

> know how to

> communicate with others. I have RA and Fib and

> Ortho........want to

> know what others are doing. Am in much

> pain.......Thanks...Wild-K

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi Kim..thanks for the response.

To make it short.........I was diagnosed with RA last September. Was on

Prednisone for 2 months. Rhummy wanted me to go on Methatrex, but i balked. Went

off Pred. and have tried homeopathic and acupuncture for the last 3 months. Has

given some relief. But the flareups are very painful. Will be going back to

Rhummy on Thur. this week and am trying to make a decision as to wether or not

to do Methx. I have read a lot and have looked at some of these emails and

wonder what to do. Seems even when people are on high powered drugs they still

are looking for pain relief. I find that two beers in the afternoon helps me

deal with the pain if Aleeve or Tynenol Arth. does not kick in.(I switch between

the two). So which way to ruin my liver? Wild-K

Re: [ ] I am new here

Hello! Welcome to the group! As for communicating..

if you need to ask a question - go right ahead, as

many as you can come up with! If you need to vent,

again - go right ahead...we all have our good days and

bad ones, so one of the most important things to know

is to be patient while waiting on a response at times.

I know that a lot of us tend to have flares and our

posts take awhile to caught up on! As for anything

else on communicating; just be yourself!!! Sorry about

the DX's, there are a lot of different things people

are doing for themselves and different approaches from

various physicains throughout the US and some other

countries. Sorry you are having so much pain. Please

be sure to let your doc know! Take care. Kim

PS: How long have you had these DX's? Do you see a

rheumy? What meds. are you on if any? Stuff like

that might help catch others attention on what they

can relate to and help with. Good luck!

--- wildkard8 <Wildkard@...> wrote:

> Hi...just signed on to groupe this morning. Need to

> know how to

> communicate with others. I have RA and Fib and

> Ortho........want to

> know what others are doing. Am in much

> pain.......Thanks...Wild-K

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi KymPrater,

Thanks for responding to my intro into the group. I am so

happy to hear that you and the baby are doing well. Like you, I too

have made some radical changes to my eating and lifestyle habits.

Please tell me what you used as a guide to wellness after you decided

against surgery. I don't want to have surgery either.

Thanks

S. Star Byrd

From: praterkym

Sent: Fri, 12 May 2006

Hi, I am finding this group to be very interesting. I was diagnosed

with thyroid cancer in Dec of 2005. I was pregnant at the time and

decided against surgery. I am still doing well as I made massive

changes to my diet at that time. I am now nursing a healthy baby girl and

feeling better than I ever have in my life. I look forward to learning from

others here and hope I can be helpful too.

[Guest guest]

Hi KymPrater,

Thanks for responding to my intro into the group. I am

so happy to hear that you and the baby are doing well. Like you, I

too have made some radical changes to my eating and lifestyle habits. Please

tell me what you used as a guide to wellness after you decided against surgery.

I don't want to have surgery either.

Thanks

S. Star Byrd

From: praterkym

Sent: Fri, 12 May 2006

Hi, I am finding this group to be very interesting. I was diagnosed

with thyroid cancer in Dec of 2005. I was pregnant at the time and

decided against surgery. I am still doing well as I made massive

changes to my diet at that time. I am now nursing a healthy baby

girl and feeling better than I ever have in my life. I look forward

to learning from others here and hope I can be helpful too.

Sorry I have taken so long to respond to your question. I was

diagnosed during my pregnacy with , so I decided to go to

Mexico for treatment. I went down for an 18 day stay at the Oasis of Hope

Hospital. We did b17, chelation and a strict vegetarian diet.

I came home and stayed on an organic diet then later going back to

the strict vegetarian after having the baby. I have not consumed red meats or

dairy at all for 18 months now. When I went back on the strict vegetarian diet,

the tumors started shrinking. That is where I am at now. The baby is nearly 10

months old. I have supplimented with shark cartilage, CoQ10, and other vitamins

to keep me up to snuff. I juice a quart of carrot,apple and wheat grass juice

every other day and just started adding flax oil to my green smoothies in the

morning as I am still making changes. I am lead to a more raw vegetarian diet,

allthough Johannah Budwig's diet is interesting to me. Well I guess that is

enough for now.

Sincerely, Kym

[Guest guest]

HI jessica welcome to the group you will find alot of understanding and help here and you will see your child in alot of the stories that you hear on here, which always makes me feel better just knowing im not alone, anyway what your child needs more than anything is lots of love, patience and understanding, my son is in middle school now and patience is my best friend right now, he will have lots of troubles and set backs but just try to celebrate all the little victories it will help you and him through the trouble spots, welcome again to the group, kimberly <lilpunkforever@...> wrote: I am new here and hoping to chat with other parent. My son have Asperger's Syndrome.. We just found out that what he have last month and he is 3 yrs old.. We knew he have Autism since October of last year but before that we thought he have ADHD or just an active child. So, I want to join here to chat with other parent. I am very new at this since my son is my only child.. I am hoping that someone can help me understand what he need. Thank

Never miss a thing. Make your homepage.

[Guest guest]

Welcome, Jessie

In a message dated 4/19/2008 6:51:40 P.M. Eastern Daylight Time,

glerby@... writes:

Hello,

I am new to this group, well not new but this is one of the first times that

I have posted. In fact I am not sure if I am posting correctly or not.

I have a 3.2 year old little boy named Gabe with apraxia of speech, language

disorder, word retrieval issues, and sensory processing disorder. He is

making progress but it is slow. He can say almost all his letters in isolation

but has a hard time making words and senstences. He doesn't even attempt to

talk a lot for the most part. He is currently using ASL and PECS but tends not

to use the PECS as much. We also have a demo program on our laptop from

prentke romich company called the vantage plus. We are thinking about getting

Gabe

an AAC and I was wondering if anyone on here uses AAC with their child. He

has learned how to say his name using this demo software, it isn't clear by any

means but none the less he is trying.

If you have any experience with aac or any advice that would be great...

I look forward to getting to know all of you...

Jessie

__________________________________________________________

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

_http://mobile.http://mobhttp://mobile.<Whttp://mobile.<Wht_

(http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ)

[Non-text portions of this message have been removed]

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

Jessie,

Hang in there. My boy is the same age and until four weeks ago we had

peekaboo speech and sensory stuff. It has been a long and bumpy road

but the boy is talking and it is a window into his soul. It is

amazing how much he says, how meaningful the speech is and what he

has been picking up along the way. My daughter just took an entry

test for kindergarten and a this point my boy would fair well.

We all have different kids with overlapping issues and different

solutions but please, do not despair. There is so much hope! There is

also more known than there used to be and more of an interest these

days. I'd like to think that will benefit all our kids!

Best Wishes!

Liz

>

> Welcome, Jessie

>

>

> In a message dated 4/19/2008 6:51:40 P.M. Eastern Daylight Time,

> glerby@... writes:

>

>

>

>

> Hello,

> I am new to this group, well not new but this is one of the first

times that

> I have posted. In fact I am not sure if I am posting correctly or

not.

>

> I have a 3.2 year old little boy named Gabe with apraxia of

speech, language

> disorder, word retrieval issues, and sensory processing disorder.

He is

> making progress but it is slow. He can say almost all his letters

in isolation

> but has a hard time making words and senstences. He doesn't even

attempt to

> talk a lot for the most part. He is currently using ASL and PECS

but tends not

> to use the PECS as much. We also have a demo program on our laptop

from

> prentke romich company called the vantage plus. We are thinking

about getting Gabe

> an AAC and I was wondering if anyone on here uses AAC with their

child. He

> has learned how to say his name using this demo software, it isn't

clear by any

> means but none the less he is trying.

> If you have any experience with aac or any advice that would be

great...

> I look forward to getting to know all of you...

>

> Jessie

>

>

> __________________________________________________________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

> _http://mobile.http://mobhttp://mobile.<Whttp://mobile.<Wht_

> (http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ)

>

> [Non-text portions of this message have been removed]

>

>

>

>

>

>

>

> **************Need a new ride? Check out the largest site for U.S.

used car

> listings at AOL Autos.

> (http://autos.aol.com/used?NCID=aolcmp00300000002851)

>

>

>

[Guest guest]

Perhaps you could try to get a reply by reposting with " Medical Center of

Houston? " as the title. It might catch the attention of someone from the area. I

did a search of the old messages, and there is some info about the Houston area.

Someone mentioned that Airbrush Brothers at I-10 and Silber does decorations.

There were some comments about the location you mentioned. I didn't read through

all of them, but you can find them by clicking " Messages " and entering " Houston "

in the search area at the top of the page. HTH and good luck!

>

> Hi, my daughter will have her helmet next week. We are doing this at at

Dynamic Orthotics and Prosthetics at medical center of Houston. There are two

orthotist we can choose to fit her helmet, one is sen, another one is

Carin Erbland. Any one here has experience with them? I think the first fitting

is very important, I want to choose a right doctor for my daughter.

> Grace

>

[Guest guest]

Hi everyone,

I am hoping to learn more about mold exposure and MCS. My husband, my 6 year

old daughter and myself left our home 4 months ago after we found significant

levels of stachybotrys and aspergillus penicillium (not sure if I am spelling

these correctly).

My daughter has had significant developmental and gastrointestinal issues since

birth and I have had a slow demise with depression, anxiety and thyroid

problems.

Since we left the house we are all showing slow improvement, but the candida is

relentless. We are currently on a zero carbohydrate diet (just meat, veggies,

coconut oil, kefir, yogurt) and it has done wonders for us. However, we require

high levels of probiotics to remain functional (very expensive!)

We are now so chemically sensitive to everything it's awful.

I am thinking of buying some austin air purifiers, do people recommend these?

I am wondering if my story is similar to others here.

Thanks very much,