Guest guest Posted June 3, 2000 Report Share Posted June 3, 2000 Hi, Have you seen a doctor who specializes in MCS?? They are expensive of course, but one may be able to help. Please read Sherry , MD " he EI Syndrome. " Good luck and take care, Christie At 09:28 PM 6/3/00 -0700, you wrote: >I, for some reason, became much less sensitive to chemicls after I was on acyclovir for some months. It is an antiviral. But, I can't go off of it and stay out of bed. I haave been on it for 8 years. I had a number of anaphalatic episodes to drugs, foods and chemicals before I started taking it. I am still allergic, but they are controllable ><!DOCTYPE HTML PUBLIC " -//W3C//DTD HTML 4.0 Transitional//EN " > ><HTML><HEAD> ><META content= " text/html; charset=iso-8859-1 " http-equiv=Content-Type> ><META content= " MSHTML 5.00.2614.3500 " name=GENERATOR> ><STYLE></STYLE> ></HEAD> ><BODY bgColor=#ffffff> ><DIV><FONT face=Arial>I, for some reason, became much less sensitive to chemicls >after I was on acyclovir for some months. & nbsp; It is an antiviral. & nbsp; But, I >can't go off of it and stay out of bed. & nbsp; I haave been on it for 8 >years. & nbsp; & nbsp; & nbsp; & nbsp; I had a number of anaphalatic episodes to drugs, >foods and chemicals before I started taking it. & nbsp; I am still allergic, but >they are controllable</FONT></DIV><br> ><tt> >This list is intended for patients to share personal experiences with each other, not to give medical advice. & nbsp; If you are interested in any treatment discussed here, please consult your doctor.</tt> ><br> ></BODY></HTML> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2000 Report Share Posted June 4, 2000 Just curious how much do you take and what brand do you take? Re: MCS > > > I, for some reason, became much less sensitive to chemicls after I > was on acyclovir for some months. It is an antiviral. But, I can't > go off of it and stay out of bed. I haave been on it for 8 > years. I had a number of anaphalatic episodes to drugs, foods and > chemicals before I started taking it. I am still allergic, but they > are controllable > > > ------------------------------------------------------------------------ > $60 in FREE Long Distance! Click Here to join beMANY! today. > 1/4126/4/_/531724/_/960149989/ > ------------------------------------------------------------------------ > > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2000 Report Share Posted June 4, 2000 > I, for some reason, became much less sensitive to chemicls after I was on acyclovir for some months. It is an antiviral. But, I can't go off of it and stay out of bed. I haave been on it for 8 years. I had a number of anaphalatic episodes to drugs, foods and chemicals before I started taking it. I am still allergic, but they are controllable I'm confused because I've never replied here & maybe I'm not supposed to. Anyway, one of my lesser friends was horrified to know I had taken acyclovir for so long & looked it up in the PDR. It said long term usage resulted in myalgia. Just looken out for you in case you didn't know. Maybe alternating with other drugs, you could avoid this. But, maybe this is not so important as the words of the PDR are not engraved in stone. some drs. are though. Wishing you better days & many belly laughs, Mrs. Myalgia (Sandy) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 Kelle, I, too, have MCS -- multiple chemical sensitivity (or chemical injury) due to exposure to KILZ (NFI) and paint in 1994. I belong to several good online MCS groups and can recommend. If you are interested, please contact me backchannel at chestnut1997 @ . com (no spaces). Pam ps16501 <ps16501@...> wrote: HI, I can't remember if I've introduced myself to this group yet..joined a fewat the same time so sorry if I haven't.I'm 35 female Australian, main symptom MCS. Kelle. --->Sorry to be dense but what is MCS? Pat in Kalamazoo __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2010 Report Share Posted January 17, 2010 Hello, Greetings The Newly Developed Healing System (www.viewunderstanding.blogspot.com) at our center (www.dkhcunderstanding.blogspot.com) has helped people in different type of allergies. It is an absolutely medicine free system and can help in different type of allergies inlcludinmg severe asthamatic attacks from exposure to chemical fumes etc; I feel it can be highly useful in cases of Multiple Chemical Sensitivities (MCS). Wishing Natural Health and Higher Spirituality Deepak Kashyap actiongreens ; cures for cancer CC: Rosendale From: szukidavis@... Date: Sat, 16 Jan 2010 17:58:45 -0500 Subject: MCS Chemical Sensitivities by Cyndi Norwitz _cyndi@..._ (mailto:cyndi@...) May 2003 This page can be sponsored by your company Multiple Chemical Sensitivities (MCS) is a syndrome with the major presenting symptom of marked reactions to a variety of toxins in concentrations that most healthy people can tolerate. MCS overlaps substantially with Chronic Fatigue Syndrome (presenting symptom is fatigue) and Fibromyalgia (presenting symptom is pain) to the point that many consider them to be variants of the same disease. Gulf War Syndrome is also most likely MCS or something very similar. The sensitivities of MCS are similar to allergies but, for most, do not qualify as allergies in the strict sense of a process leading to a specific set of bodily responses within approximately 20 minutes. The resulting symptoms include those of traditional allergies, such as headaches, migraines, nausea, anaphylactic shock, asthma, rashes and other skin eruptions, as well as more unusual symptoms such as acute abdominal pain, fatigue, insomnia, neurological signs, brain fog (a cloudy feeling in the head connected to loss of memory, cognitive functioning, alertness, and mental sharpness), body aches and pains, and, rarely, heart attacks. Toxins that trigger MCS attacks can come from a variety of sources. Many people with MCS react to traditional allergens such as foods, dust, air pollution, pollen, animal dander, and molds, but the most common toxins that cause reactions are chemical substances found in everyday life. Perfumes, air fresheners, cigarette smoke, dry-erase markers, many household cleaning products, fabric softeners and dryer sheets, scented detergents and other products, new carpeting, solvents, fresh tar, and pesticides are among the most common reactants but do not make a complete list. Although there are congenital cases, most people with MCS acquire it as an adult. The body loses the ability to process toxic substances. Many people with MCS end up so sensitive to some chemicals that they can react to amounts so small that a healthy person might not even know it is there. This is especially true in people whose bodies are overloaded with past chemical exposures (toxins that never break down and exit the body). Anyone can acquire MCS; most sufferers had normal healthy lives before becoming ill. The most common way of acquiring MCS is chemical injury. One very large chemical exposure or many smaller exposures over time can lead to the body losing its ability to detox. Exposure to pesticides is a frequent route to MCS. Once the body's ability to process toxins is damaged, the person will react to chemicals he or she never had trouble with before, including chemicals not involved in the original injury. Chemical injury is not the only way to impair the detox processes. Some other routes to MCS include viruses, severe emotional or physical trauma (especially in childhood), liver damage, or disorders of metabolism. Some people with MCS also have porphyria, a genetic disorder of the enzyme pathways that may not manifest itself until triggered by a chemical exposure. Treatment The most important treatment for MCS is complete avoidance of toxins that cause the person to react. Unlike with some allergies, there is no way to medicate the reaction and allow the person full exposure to the substance. It is also important to avoid chemicals that may be further injuring the body even though the person is not obviously reacting to them. Cleaning up the Local Environment: A Basic Checklist of the Most Common Reactants Completely avoid all traces of all pesticides Stop smoking and avoid breathing cigarette smoke Stop using " diet " products, or anything containing aspartame (Nutrasweet) Reduce processed foods; avoid additives; eat organic when possible Identify food allergies and avoid those substances Stop using perfume, cologne, scented versions of deodorant and aftershave Avoid scented shampoo and soap Get rid of all air fresheners, stickup/plug-in/sprays, and deodorizers Switch cleaning and laundry products to nontoxic, fragrance-free versions Remove all dryer sheets and fabric softener from the house Stay away from new carpet, fresh paint, solvents, and new construction Don't use dry-erase markers Avoid OTC and prescription medicines that are not medically necessary Watch carefully for reactions, and avoid anything that makes one ill, even if the reason for the reaction seems to make no sense Most people with MCS who get better do so through avoidance and careful, controlled detox of existing toxins in the body. Some detox can be done on one's own but it's best to start off with medical supervision. Some examples of detox methods are sauna, vitamin C, bentonite clay, charcoal, and special diets. Some people with MCS can safely use medicines to alleviate symptoms but most people with MCS are also hypersensitive to drugs. Some people find lasting relief through mainstream treatments such as allergy shots. Others go outside of Western Medicine and successfully use Chinese Medicine (acupuncture and herbs). Chiropractic care, homeopathy, and massage can also be useful. Patients may wish to consider removing mercury amalgam dental fillings or silicon implants. Links to Other Sources of Information Immune Web The author's site. Articles and links on many subjects related to MCS and similar conditions. Internet support groups, free classified ads _http://www.immuneweb.org/_ (http://www.immuneweb.org/) Multiple Chemical Sensitivity Referral & Resources Non-profit organization with factsheets, scientific references, information on legal/government acceptance of MCS, and porphyria and carbon monoxide testing protocols. _http://www.mcsrr.org/_ (http://www.mcsrr.org/) Fragranced Products Information Network Betty Bridges' detailed articles and references on the chemistry of MCS and perfume. _http://www.fpinva.org/_ (http://www.fpinva.org/) Environmental Health Network Publisher of the New Reactor. Links to everywhere and much information on MCS activism. _http://www.ehnca.org/_ (http://www.ehnca.org/) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 I have MCS and cannot tolerate most antibiotics or medications or supplements. Mino is extremely hard to tolerate. prior to MCS - in the 90's i popped it like candy - for about 2 yrs just to treat acne - how vain. anyway, i find that the only antibiotic i tolerate is IV rocephin. don't ask my how or why, but i was extremely cautious when i started. it took me 20 drips just to work my way up to an adult dose. basically i just threw my money away all summer - then by fall, i was able to tolerate the full amount with no reaction. i also notice that when i stop taking a medication, i become sensitized to it - and can never take it again. so if you're lucky enough to tolerate something - you may want to stay on it. Steve On Mar 13, 2010, at 7:44 PM, Larsson wrote: > Deb, > > you write that you have extreme MCS. > How did you manage to tolerate the abx? > > I also had severe mold and chemical poisioning and have extreme MCS. > I cannot tolerate 25 mg minocyclin. > > Is there anything I can do? Did you start lower than 25 mg and how > many days could you tolerate it? I crash after three days and think > the bugs might get resistant when we take such low dose. > > > > . > > > > From: Deb57 <ds@...> > Subject: [ ] Re: CD-57 results > > Date: Saturday, March 13, 2010, 6:35 AM > > > > > > > Some people speculate that the abx cause the lyme bugs to go dormant > so the immune system relaxes. Stop the abx, huge relapse occurs > because the immune system has not been on alert and cannot ramp up > fast enough. Maybe that's why there are fewer CD57 cells. > > deb > > >> >> My first CD-57 test in 2007 showed a level of 26. >> Last year it was up to 42 in the spring (a short while after I >> started Buhner's core protocol), but I was showing no symptom >> improvement. >> >> After working on severe toxic mold issues, I finally was able to >> begin using Rocephin in November 2009, starting with a microdose >> (50mg, because of extreme chemical sensitivity) and gradually >> working up to 1g twice a week as of last week. >> My CD-57 has now dropped down to 30 again. >> >> Does anyone know why this would happen after a few months of using >> Rocephin? >> >> thanks! >> > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 Steve, thank you, this helps.I sometimes think we just might have more bugs and the die off would be too much. I think acne is a disease, probably it showed already what was wrong. It is the way the body handles infection, mold or toxins.  I could tolerate flagyl for one week half tablet twice and it helped so much. have you looked at the cpn page. If this would cause secondary porphyria then the porphyria will limit the amount of abx you can take. Lyme comes with so many co bugs, not only the standard ones.  Biaxin is also not working for me. Rocephin did not help me at all. > > > From: Deb57 <dssincereco (DOT) com> > Subject: [ ] Re: CD-57 results > > Date: Saturday, March 13, 2010, 6:35 AM > > > > > > > Some people speculate that the abx cause the lyme bugs to go dormant > so the immune system relaxes. Stop the abx, huge relapse occurs > because the immune system has not been on alert and cannot ramp up > fast enough. Maybe that's why there are fewer CD57 cells. > > deb > > >> >> My first CD-57 test in 2007 showed a level of 26. >> Last year it was up to 42 in the spring (a short while after I >> started Buhner's core protocol), but I was showing no symptom >> improvement. >> >> After working on severe toxic mold issues, I finally was able to >> begin using Rocephin in November 2009, starting with a microdose >> (50mg, because of extreme chemical sensitivity) and gradually >> working up to 1g twice a week as of last week. >> My CD-57 has now dropped down to 30 again. >> >> Does anyone know why this would happen after a few months of using >> Rocephin? >> >> thanks! >> > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 I have extreme MCS too. The only abx I can tolerate is clindamycin. I did a liver test, called the detoxigenomic liver test, through Genova Diagnostics lab in NC - it shows our genetic capacity to detox or not in 8 enzyme pathways of Phase I and 4 out of 10 drains in Phase II for the liver. The results have shown my doctor how to start to treat me. It's still hard, tho - we're working on what I can handle. One category I seem to be able to handle is anti-inflammatory supplements, like mangosteen juice, grapeseed extract capsules and noni juice. I'm getting beneficial physiological changes as a result of taking those. - Robin [ ] Re: CD-57 results > > Date: Saturday, March 13, 2010, 6:35 AM > > > > > > > Some people speculate that the abx cause the lyme bugs to go dormant > so the immune system relaxes. Stop the abx, huge relapse occurs > because the immune system has not been on alert and cannot ramp up > fast enough. Maybe that's why there are fewer CD57 cells. > > deb > > >> >> My first CD-57 test in 2007 showed a level of 26. >> Last year it was up to 42 in the spring (a short while after I >> started Buhner's core protocol), but I was showing no symptom >> improvement. >> >> After working on severe toxic mold issues, I finally was able to >> begin using Rocephin in November 2009, starting with a microdose >> (50mg, because of extreme chemical sensitivity) and gradually >> working up to 1g twice a week as of last week. >> My CD-57 has now dropped down to 30 again. >> >> Does anyone know why this would happen after a few months of using >> Rocephin? >> >> thanks! >> > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Mayleen, If you can, please explain the stages of MCS you went though. Kathy From: dragonflymcs <dragonflymcs@...> Re: Questions on Sugars Some do not understand that there is a point of no return. I try to help those because I know when I got to mine down to the month, week even. Some believe because they do not react to it now it's OK, the matter is eventually it all catches up with you and you become more and more reactive to things you were not previously. That is sad, preventable getting worse. Quote Link to comment Share on other sites More sharing options...
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