Guest guest Posted October 10, 1999 Report Share Posted October 10, 1999 >From: AdAgensee@... > >...I had osteomyletis in the bones of my face, orbital, maxillary, etc. >I had a rare osteo called Actinomycosis. Hi, How were you diagnosed with this? Is it classified by NORD as orphan disease? Thanks, Christie I had to combine it with heavy >doses of iv antibiotics for 6 months...16 million units a day. The purpose >of the H20 treatments is also to increase the antibiotic >effectiveness....bone is hard to penetrate. Contact Dr. Ralph Potkin, of >Cedar Sinai....in California....Los Angeles. He did my treatments. He has a >place called Hyperbaric Research and TX center. Best of luck, xo Shell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Hi , In the UK they have stopped using the injection form of Vit K and the babies now get is orally in a divided dose, half at birth and half at 6 weeks. The injection was supposed to be linked to cancer? I know that the vernix is supposed to be Vit K rich, so if a baby is allowed to re-absord the vernix instead of having it washed off, the Vit K levels *shouldn't* need boosting, but AFAIK there isn't any proof (scientific trial variety) Kat > , > About the newborn shot, usually the Vit K shot is given in the first hour > of birth (its the law in some states?) and that has 30 times the safe limit > of mercury, according to what I've read on www.mercola.com this week. That > is the start of the second most toxic metal being unjected into our babies. > It then increases in concentration with each immunization.They claim this > shot prevents a brain bleed at birth or shortly after because babies have > such a low amount of B12 in their blood at birth. I cant imagine God had > this in his Divine plan when he invented humans. I was an OB nurse and did > it myself, Drs order. And my babies got it too, on the off chance that they > might bleed coming down the birth canal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Did she have newborn shots in the hospital? That would be my first suspect (usually it is Hep , if so, you may want to look into mercury chelation.\ Kathy [ ] hyperbaric oxygen therapy >Hi > I am new to this list. BUT, not new to seizures. My daughter is four and >has had them almost since birth. No know reason yet. She has them everyday >and is unable to sit up alone or talk. she is very severe. She appeared >normal at birth and even nursed fine. > I was wondering if anyone has tried hyperbaric oxygen therapy? > >Thank you > > >_ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 In a message dated 3/1/01 9:56:31 PM Eastern Standard Time, kblanco@... writes: << Did she have newborn shots in the hospital? That would be my first suspect (usually it is Hep , if so, you may want to look into mercury chelation.\ Kathy >> Thanks Kathy. No she didn't. Her first set of shot were at about 2 months. Seizures already started by then. But, if I would have known then what I know now she would have never had any shots to add to neurological damage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Are YOU mercury poisined, my next suspicion? (amagalms fillings or your diet, or your water or your....environement...who knows?) A report out today will find you breathless: Not that I know the etiology of your child's problem, but I see an increasing problem with babies coming into this world with mercury poisining! >Thursday March 1 6:17 PM ET > >Mercury Levels High in Some U.S. Women > >By Emma Patten-HittATLANTA (Reuters Health) - >http://dailynews./h/nm/20010301/hl/mercury_1.html > >Nearly one in 10 US women could have levels of mercury in their blood that >are close to hazardous, government scientists estimated Thursday. Their >findings imply that efforts to reduce mercury exposure should be >continued.Exposure to dangerous levels of mercury can result in permanent >damage to the brain and kidney. Exposure is particularly risky for women of >childbearing age, because'' a fetus is highly susceptible to adverse >effects,'' researchers from the Centers for Disease Control and Prevention ( >news - web sites) write in the March 2nd issue of Morbidity and Mortality >Weekly Report.CDC researchers measured levels of mercury in blood and hair >samples from about 700 women and 300 children as part of the ongoing National >Health and Nutrition Examination Survey.``We did not find any women who were >actually over the recommended levels,'' Dr. Schober with the CDC told >Reuters Health, ``but the findings indicate that continued efforts to reduce >mercury exposure to the US population are necessary.''She also noted that >children had a lower level than women, because children in general eat less >fish than adults. The primary way that people are exposed to mercury is >through fish consumption, according to Schober. ``There really are no other >major sources of (dietary) exposure,'' she explained.The US Food and Drug >Administration (news - web sites) (FDA) recommends that pregnant women and >those who may become pregnant avoid eating shark, swordfish, king mackerel, >and tile fish known to contain elevated lev els of methylmercury, an organic >form of mercury that can accumulate in the food chain.``Methylmercury levels >are highest in the large predatory species of ocean fish--it gets >concentrated in these fish because they eat other fish,'' Schober explained. >``It can also be found in freshwater fish,'' she added.``The results are >preliminary and the sample size is small,'' Schober said. ``But we are now >looking at mercury levels in relation to other factors, including >race/ethnicity. We are also collecting more information about fish >consumption. >''SOURCE: Morbidity and Mortality Weekly Report 2001;50:140-143. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2001 Report Share Posted March 3, 2001 , About the newborn shot, usually the Vit K shot is given in the first hour of birth (its the law in some states?) and that has 30 times the safe limit of mercury, according to what I've read on www.mercola.com this week. That is the start of the second most toxic metal being unjected into our babies. It then increases in concentration with each immunization.They claim this shot prevents a brain bleed at birth or shortly after because babies have such a low amount of B12 in their blood at birth. I cant imagine God had this in his Divine plan when he invented humans. I was an OB nurse and did it myself, Drs order. And my babies got it too, on the off chance that they might bleed coming down the birth canal. >From: Dillr@... >Reply- > >Subject: Re: [ ] hyperbaric oxygen therapy >Date: Fri, 2 Mar 2001 11:43:33 EST > >In a message dated 3/1/01 9:56:31 PM Eastern Standard Time, >kblanco@... writes: > ><< > Did she have newborn shots in the hospital? That would be my first >suspect > (usually it is Hep , if so, you may want to look into mercury >chelation.\ > Kathy >> > >Thanks Kathy. No she didn't. Her first set of shot were at about 2 months. >Seizures already started by then. But, if I would have known then what I >know >now she would have never had any shots to add to neurological damage. > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 I am wondering if anyone has heard anything about hyperbaric oxygen therapy and mercury toxicity. Would it help or hurt? I have read that autism is one of the diagnosis they are experimenting with and have read of good results. Any opinions or web sites that might help me. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 > I am wondering if anyone has heard anything about hyperbaric oxygen therapy > and mercury toxicity. Would it help or hurt? It makes mercury toxic people worse. There are many OTHER reasons to use it, and in some cases you have a toxic person who also has something else and sometimes they benefit more from fixing the something else with HBOT than they suffer from making the mercury worse. This is not generally the case however. Most autistic children are just mercury toxic and aren't really expected to respond well to HBOT. >I have read that autism is one > of the diagnosis they are experimenting with and have read of good results. > Any opinions or web sites that might help me. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 Andy, how does HBOT make mercury toxic people worse? N Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 > Andy, how does HBOT make mercury toxic people worse? In a mechanistic sense it creates oxidative stress and mercury is an oxidation catalyst. That is a lot of how it is toxic. That is why antioxidants make toxic people better. In terms of what happens, symptoms get worse and new symptoms appear. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 > I am wondering if anyone has heard anything about hyperbaric oxygen therapy > and mercury toxicity. Would it help or hurt? I have read that autism is one > of the diagnosis they are experimenting with and have read of good results. > Any opinions or web sites that might help me. Thanks, I have taken my son for over 80 treatments and have seen enough improvements to keep going.His mercury level is pretty low though. I think its worth a shot but it is expensive and time consuming. Some kids respond some don't. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 Does any-one have problems with thier ears Mine keep getting full and I need to take sudafed to dry them out. Does any-one know why this happens so often It is really anoying when you can't hear. Thanks for any imput Larry --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 Happy Easter every-one --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Most major cities have a place to do it. It is quite expensive. It is Wonderful for healing wounds and injuries. Several pro teams have their own chambers just for this. There has been no record of it helping CFS/ME folks. Hyperbaric Oxygen Therapy - HBOT sounds interesting? How can I find a place where I can try it and how much does it generally cost? Thanks -- _______________________________________________ Sign-up for your own FREE Personalized E-mail at Email.com http://www.email.com/?sr=signup This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 Hi, The cost per session runs from $100-250 per session in a non-hospital setting. I believe hospitals charge 1000+ to collect the big insurance bucks, but it is not an insurance approved treatment for CFS or much else. Those are big numbers, but in England where they found HBOT helpful with MS they formed patient run coops and opened 63 patient run HBOT centers. I live an a large city so had no difficulty finding a center using a search engine. Some drive 2-4 hours for treatment. As far as no record of it helping with CFS/ME, it is more accurate to say that HBOT has barely been tried on CFS/ME folks, and that so far the record is mixed. Ideally I would like to try to understand what conditions/symptoms associate to a good result. I suspect it relates to hypercoagulation which causes decreased oxygen in cells and tissues, and the prevalence of bacterial infections that in other illnesses (AIDS, Lyme disease) are diminished by HBOT. One link with both positive and negative results of HBOT on CFS is " Hyperbaric Chamber possible Treatment for CFIDS " patients at http://www.immunesupport.com/healthwatch/sum95/95sum015.cfm What disturbs me about this article is that one group found generally positive results. The doctor representing another group that did not get good results said that he sent one patient home because they felt much worse after the first treatment. I believe the treatment may have " failed " because the doctor does not understand CFS or HBOT. When they treat Lyme disease with HBOT patients get a 2-3 week herx reaction (per " Hyperbaric Oxygen Therapy " by Neubauer, MD). I slept nearly 20 hours a day the first 2-3 days of treatment. We have all had Herx reactions. Maybe it does work for some portion of PWC, but sometimes it is not done long enough either because of the serious expense or due to misinterpretation of herx reactions. The fact that this doctor " sent " his patient for treatment, rather than being involved in it, also suggests to me he may be unaware that infectious patients require more pressure than standard (over 2 atmospheres instead of a standard 1.5) to benefit. Concretely I know of my case, one other individual that goes to the same HBOT center as me with FM that was relieved of most symptoms, and one serious (20 sessions) failed attempt based on an email response. With a reasonable theoretical underpinning and some suggestion of practical effect, I think this deserves a closer look. Has anyone else tried HBOT? Regards, > Most major cities have a place to do it. > It is quite expensive. > It is Wonderful for healing wounds and injuries. > Several pro teams have their own chambers just for this. > There has been no record of it helping CFS/ME folks. > > > Hyperbaric Oxygen Therapy > > > - > HBOT sounds interesting? > How can I find a place where I can try it and how much does it generally > cost? > Thanks > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2002 Report Share Posted April 26, 2002 As a followup on the effect of HBOT on CFS/ME, the closest thing to a study I found was at http://www.drys00384.pwp.blueyonder.co.uk/hbot.htm It is not a scientific study, just 2 counts of patient reported results based on 336 total PWC. The overall result was 70-83% positive result, with the remainder mostly no result patients, and a very few worsened cases. The follow quote is from this link. The writer is an investigator in the UK where they have more HBOT facilities: " I was advised that around 300 ME patients have been treated in various MS therapy centres around the UK (just under 70 centres). Of these patients, approximately 70% have reported improvement in some symptoms. I was then sent a copy of an article in the Journal of the Royal Society of Medicine. The article explains the results of treating 36 ME patients with Hyperbaric Oxygen Therapy (HBOT). These ME patients received 20 daily one hour sessions, breathing 100% oxygen under pressure. 30 patients reported some improvement in their ME symptoms, although the pressure required to produce this improvement varied. 2 patients did report some worsening of pain, fatigue and weakness; and 6 reported no change in symptoms. Of those who did report improvements, the most significant effect was on fatigue, which improved in 83% of people treated. However, these patients were treated as a practical experiment, not a scientific controlled trial. The authors of the article state clearly that this subjective evidence cannot be used to regard HBOT as a definitive treatment for ME, but does suggest that a formal trial of HBOT for people with ME should be initiated. It seems that HBOT may well help people with ME, but will the necessary research be carried out? Perhaps this is a question for the ME Association or Action for ME to pursue, rather than a small support group like our own. Anyone with suggestions or ideas about what, if anything, we should do about this, please contact Sheffield ME Group by phone, post or e-mail. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 At 10:22 AM 8/7/02 +0000, you wrote: >Has anyone ever heard of hyperbaric oxygen therapy for the treatment >of autism. Over here in Australia there is a company advertising on >the radio that they offer this treatment for autism. I just wanted >to know if anyone knew anything. Hi Marie, I saw a website about this only it was about treating stroke, sorry don't have the link anymore. The author said that giving increased oxygen would help heal brain tissue which was adjacent to dead tissue. Apparently after a stroke there is an area of dead tissue and an area of surrounding tissue which will either die or heal; supposedly this treatment helps more of the adjacent tissue heal. There happened to be someone local here who gave this treatment but it was in a device similar to a sleeping bag. I felt this would be difficult for my son to go in and stay in w/o at least some over the counter sedative. But having him not be awake would've defeated the purpose of the treatment I was told so we didn't pursue it. A larger outfit might have a chamber which you could easily go into with your child. hth, Marty -- SIMPL WebSite Creation: http://face2interface.com/Home/Demo.shtml Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 Marie, I have given 2 sons HBOT ( Hyperbaric).They treat people for Lyme disease, strokes, autism, cerebalpalsy, accident victims ( head trauma) food poisoning etc.It's main official uses is for smoke inhalation and deepsea diving or submarine accidents ( coal miner's last week). I had some improvement in both my son's . I ve spoken to other parents re results . Some show no improvement some a little and One boy became very vocal from it. One parent told me the improvements with their child were only temporary. I think it is defenitely worth doing once to see what happens The following website may be helpful www.hvhbot.com > >Message: 17 > Date: Wed, 07 Aug 2002 10:22:44 -0000 > From: " calbenillie " <teshgoen@...> >Subject: hyperbaric oxygen therapy > >Has anyone ever heard of hyperbaric oxygen therapy for the treatment >of autism. Over here in Australia there is a company advertising on >the radio that they offer this treatment for autism. I just wanted >to know if anyone knew anything. > >Thanks >Marie > > > _________________________________________________________________ Join the world’s largest e-mail service with MSN Hotmail. http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2002 Report Share Posted August 7, 2002 > >Has anyone ever heard of hyperbaric oxygen therapy for autism A friend got good responses from her autistic son after several HBOT sessions. Andy should speak to this as I believe he has stated that it can be hazardous as regards mercury toxicity. I don't know why. Rob. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 > > >Has anyone ever heard of hyperbaric oxygen therapy for autism > > A friend got good responses from her autistic son after several HBOT > sessions. Andy should speak to this as I believe he has stated that it can > be hazardous as regards mercury toxicity. I don't know why. mercury is an oxidation catalyst, so giving it more oxygen to work with is a really bad idea. All the mercury toxic people who tried it I know of got worse. SOme a LOT worse. HBOT is prescribed randomly (like much in medicine). It is wonderful when prescribed PROPERLY, which in neurology is ONLY for conditions where the person's brain has a perfusion problem causing some neurons to " brown out, " and not enough oxygen gets in there for the brain to grow new blood vessels and correct the situation. Andy .. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2002 Report Share Posted August 9, 2002 So are you saying it would NOT help our merc. poisoned kids after chelation is done? Barb [ ] Re: hyperbaric oxygen therapy >> > >Has anyone ever heard of hyperbaric oxygen therapy for autism >> >> A friend got good responses from her autistic son after several HBOT >> sessions. Andy should speak to this as I believe he has stated that >it can >> be hazardous as regards mercury toxicity. I don't know why. > >mercury is an oxidation catalyst, so giving it more oxygen to work >with is a really bad idea. > >All the mercury toxic people who tried it I know of got worse. SOme a >LOT worse. > >HBOT is prescribed randomly (like much in medicine). It is wonderful >when prescribed PROPERLY, which in neurology is ONLY for conditions >where the person's brain has a perfusion problem causing some neurons >to " brown out, " and not enough oxygen gets in there for the brain to >grow new blood vessels and correct the situation. > >Andy .. . > > > >======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 > Has anyone ever heard of hyperbaric oxygen therapy for the treatment > of autism. Over here in Australia there is a company advertising on > the radio that they offer this treatment for autism. I just wanted > to know if anyone knew anything. Hi Marie, I have heard lots about HBOT. Prior to my obsession with mercury, I used to read lists about " oxygen therapies " . That is: the use of hydrogen peroxide, HBOT and ozone, for healing. As someone noted, Andy says HBOT is " bad " for people who are mercury toxic. A few URLS: This list is about any health topics, but has some focus on oxygen therapies, and many people interested in them: oxyplus/ Website with general info on oxygen therapies: http://www.oxytherapy.com/ Website of Carolyn Bormann ND, who uses oxygen therapies: http://www.arrowheadhealthworks.com/ (she writes on the oxyplus list, or used to.) http://www.hbot4u.com/ HBOT clinic in Santa Bernadino, CA. (One of the owners, , writes on the oxyplus list, or used to. Very dedicated people!) best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 > Hi Marie, > > I saw a website about this only it was about treating stroke, sorry don't > have the link anymore. The author said that giving increased oxygen would > help heal brain tissue which was adjacent to dead tissue. Apparently after > a stroke there is an area of dead tissue and an area of surrounding tissue > which will either die or heal; supposedly this treatment helps more of the > adjacent tissue heal. > > There happened to be someone local here who gave this treatment but it was > in a device similar to a sleeping bag. This sounds more like an ozone application device. Of course, I don't know, just based on what you said. HBOT involves PRESSURE. It is done in a small room with pressuried air. (Okay, I'm sure there is some more technical way to say this....) Ozone, which can ALSO have MANY benefits for brain, is sometimes applies using something vaguely like a sleeping bag or a " suit " . And also other ways. Ozone use is not " pressurized " . Both ozone and HBOT involve increasing the level of ozygen. best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2002 Report Share Posted August 11, 2002 Hi All, Just for clarification HBOT is done in a pressurized metal chamber. TK > > Hi Marie, > > > > I saw a website about this only it was about treating stroke, sorry > don't > > have the link anymore. The author said that giving increased oxygen > would > > help heal brain tissue which was adjacent to dead tissue. Apparently > after > > a stroke there is an area of dead tissue and an area of surrounding > tissue > > which will either die or heal; supposedly this treatment helps more > of the > > adjacent tissue heal. > > > > There happened to be someone local here who gave this treatment but > it was > > in a device similar to a sleeping bag. > > This sounds more like an ozone application device. > Of course, I don't know, just based on what you said. > HBOT involves PRESSURE. It is done in a small room with > pressuried air. (Okay, I'm sure there is some more > technical way to say this....) Ozone, which can ALSO have > MANY benefits for brain, is sometimes applies using > something vaguely like a sleeping bag or a " suit " . > And also other ways. Ozone use is not " pressurized " . > Both ozone and HBOT involve increasing the level of > ozygen. > > > best wishes, > Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2002 Report Share Posted August 12, 2002 Andy, do you think a SPECT scan would be helpful to determine whether HBOT might help? How likely are docs to do those? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.