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>From: AdAgensee@...

>

>...I had osteomyletis in the bones of my face, orbital, maxillary, etc.

>I had a rare osteo called Actinomycosis.

Hi,

How were you diagnosed with this? Is it classified by NORD as orphan disease?

Thanks,

Christie

I had to combine it with heavy

>doses of iv antibiotics for 6 months...16 million units a day. The purpose

>of the H20 treatments is also to increase the antibiotic

>effectiveness....bone is hard to penetrate. Contact Dr. Ralph Potkin, of

>Cedar Sinai....in California....Los Angeles. He did my treatments. He has a

>place called Hyperbaric Research and TX center. Best of luck, xo Shell

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  • 1 year later...
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Hi ,

In the UK they have stopped using the injection form of Vit K and the babies

now get is orally in a divided dose, half at birth and half at 6 weeks. The

injection was supposed to be linked to cancer? I know that the vernix is

supposed to be Vit K rich, so if a baby is allowed to re-absord the vernix

instead of having it washed off, the Vit K levels *shouldn't* need boosting,

but AFAIK there isn't any proof (scientific trial variety)

Kat

> ,

> About the newborn shot, usually the Vit K shot is given in the first hour

> of birth (its the law in some states?) and that has 30 times the safe

limit

> of mercury, according to what I've read on www.mercola.com this week. That

> is the start of the second most toxic metal being unjected into our

babies.

> It then increases in concentration with each immunization.They claim this

> shot prevents a brain bleed at birth or shortly after because babies have

> such a low amount of B12 in their blood at birth. I cant imagine God had

> this in his Divine plan when he invented humans. I was an OB nurse and did

> it myself, Drs order. And my babies got it too, on the off chance that

they

> might bleed coming down the birth canal.

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Did she have newborn shots in the hospital? That would be my first suspect

(usually it is Hep B), if so, you may want to look into mercury chelation.\

Kathy

[ ] hyperbaric oxygen therapy

>Hi

> I am new to this list. BUT, not new to seizures. My daughter is four and

>has had them almost since birth. No know reason yet. She has them everyday

>and is unable to sit up alone or talk. she is very severe. She appeared

>normal at birth and even nursed fine.

> I was wondering if anyone has tried hyperbaric oxygen therapy?

>

>Thank you

>

>

>_

>

>

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In a message dated 3/1/01 9:56:31 PM Eastern Standard Time,

kblanco@... writes:

<<

Did she have newborn shots in the hospital? That would be my first suspect

(usually it is Hep B), if so, you may want to look into mercury chelation.\

Kathy >>

Thanks Kathy. No she didn't. Her first set of shot were at about 2 months.

Seizures already started by then. But, if I would have known then what I know

now she would have never had any shots to add to neurological damage.

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Are YOU mercury poisined, my next suspicion? (amagalms fillings or your

diet, or your water or your....environement...who knows?) A report out

today will find you breathless: Not that I know the etiology of your

child's problem, but I see an increasing problem with babies coming into

this world with mercury poisining!

>Thursday March 1 6:17 PM ET

>

>Mercury Levels High in Some U.S. Women

>

>By Emma Patten-HittATLANTA (Reuters Health) -

>http://dailynews./h/nm/20010301/hl/mercury_1.html

>

>Nearly one in 10 US women could have levels of mercury in their blood that

>are close to hazardous, government scientists estimated Thursday. Their

>findings imply that efforts to reduce mercury exposure should be

>continued.Exposure to dangerous levels of mercury can result in permanent

>damage to the brain and kidney. Exposure is particularly risky for women of

>childbearing age, because'' a fetus is highly susceptible to adverse

>effects,'' researchers from the Centers for Disease Control and Prevention

(

>news - web sites) write in the March 2nd issue of Morbidity and Mortality

>Weekly Report.CDC researchers measured levels of mercury in blood and hair

>samples from about 700 women and 300 children as part of the ongoing National

>Health and Nutrition Examination Survey.``We did not find any women who were

>actually over the recommended levels,'' Dr. Schober with the CDC told

>Reuters Health, ``but the findings indicate that continued efforts to reduce

>mercury exposure to the US population are necessary.''She also noted that

>children had a lower level than women, because children in general eat less

>fish than adults. The primary way that people are exposed to mercury is

>through fish consumption, according to Schober. ``There really are no other

>major sources of (dietary) exposure,'' she explained.The US Food and Drug

>Administration (news - web sites) (FDA) recommends that pregnant women and

>those who may become pregnant avoid eating shark, swordfish, king

mackerel,

>and tile fish known to contain elevated lev

els of methylmercury, an organic

>form of mercury that can accumulate in the food chain.``Methylmercury

levels

>are highest in the large predatory species of ocean fish--it gets

>concentrated in these fish because they eat other fish,'' Schober

explained.

>``It can also be found in freshwater fish,'' she added.``The results are

>preliminary and the sample size is small,'' Schober said. ``But we are now

>looking at mercury levels in relation to other factors, including

>race/ethnicity. We are also collecting more information about fish

>consumption.

>''SOURCE: Morbidity and Mortality Weekly Report 2001;50:140-143.

>

>

>

>

>

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,

About the newborn shot, usually the Vit K shot is given in the first hour

of birth (its the law in some states?) and that has 30 times the safe limit

of mercury, according to what I've read on www.mercola.com this week. That

is the start of the second most toxic metal being unjected into our babies.

It then increases in concentration with each immunization.They claim this

shot prevents a brain bleed at birth or shortly after because babies have

such a low amount of B12 in their blood at birth. I cant imagine God had

this in his Divine plan when he invented humans. I was an OB nurse and did

it myself, Drs order. And my babies got it too, on the off chance that they

might bleed coming down the birth canal.

>From: Dillr@...

>Reply-

>

>Subject: Re: [ ] hyperbaric oxygen therapy

>Date: Fri, 2 Mar 2001 11:43:33 EST

>

>In a message dated 3/1/01 9:56:31 PM Eastern Standard Time,

>kblanco@... writes:

>

><<

> Did she have newborn shots in the hospital? That would be my first

>suspect

> (usually it is Hep B), if so, you may want to look into mercury

>chelation.\

> Kathy >>

>

>Thanks Kathy. No she didn't. Her first set of shot were at about 2 months.

>Seizures already started by then. But, if I would have known then what I

>know

>now she would have never had any shots to add to neurological damage.

>

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  • 11 months later...

I am wondering if anyone has heard anything about hyperbaric oxygen therapy

and mercury toxicity. Would it help or hurt? I have read that autism is one

of the diagnosis they are experimenting with and have read of good results.

Any opinions or web sites that might help me. Thanks,

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> I am wondering if anyone has heard anything about hyperbaric oxygen

therapy

> and mercury toxicity. Would it help or hurt?

It makes mercury toxic people worse.

There are many OTHER reasons to use it, and in some cases you have a

toxic person who also has something else and sometimes they benefit

more from fixing the something else with HBOT than they suffer from

making the mercury worse. This is not generally the case however.

Most autistic children are just mercury toxic and aren't really

expected to respond well to HBOT.

>I have read that autism is one

> of the diagnosis they are experimenting with and have read of good

results.

> Any opinions or web sites that might help me. Thanks,

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> Andy, how does HBOT make mercury toxic people worse?

In a mechanistic sense it creates oxidative stress and mercury is an

oxidation catalyst. That is a lot of how it is toxic. That is why

antioxidants make toxic people better.

In terms of what happens, symptoms get worse and new symptoms appear.

>

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> I am wondering if anyone has heard anything about hyperbaric

oxygen therapy

> and mercury toxicity. Would it help or hurt? I have read that

autism is one

> of the diagnosis they are experimenting with and have read of good

results.

> Any opinions or web sites that might help me. Thanks,

I have taken my son for over 80 treatments and have seen enough

improvements to keep going.His mercury level is pretty low though. I

think its worth a shot but it is expensive and time consuming. Some

kids respond some don't.

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Does any-one have problems with thier ears Mine keep getting full and I need to

take sudafed to dry them out. Does any-one know why this happens so often It is

really anoying when you can't hear.

Thanks for any imput

Larry

---------------------------------

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  • 4 weeks later...
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Most major cities have a place to do it.

It is quite expensive.

It is Wonderful for healing wounds and injuries.

Several pro teams have their own chambers just for this.

There has been no record of it helping CFS/ME folks.

Hyperbaric Oxygen Therapy

-

HBOT sounds interesting?

How can I find a place where I can try it and how much does it generally

cost?

Thanks

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Hi,

The cost per session runs from $100-250 per session in a non-hospital

setting. I believe hospitals charge 1000+ to collect the big

insurance bucks, but it is not an insurance approved treatment for

CFS or much else. Those are big numbers, but in England where they

found HBOT helpful with MS they formed patient run coops and opened

63 patient run HBOT centers.

I live an a large city so had no difficulty finding a center using a

search engine. Some drive 2-4 hours for treatment.

As far as no record of it helping with CFS/ME, it is more accurate to

say that HBOT has barely been tried on CFS/ME folks, and that so far

the record is mixed.

Ideally I would like to try to understand what conditions/symptoms

associate to a good result. I suspect it relates to hypercoagulation

which causes decreased oxygen in cells and tissues, and the

prevalence of bacterial infections that in other illnesses (AIDS,

Lyme disease) are diminished by HBOT.

One link with both positive and negative results of HBOT on CFS

is " Hyperbaric Chamber possible Treatment for CFIDS " patients at

http://www.immunesupport.com/healthwatch/sum95/95sum015.cfm

What disturbs me about this article is that one group found generally

positive results. The doctor representing another group that did not

get good results said that he sent one patient home because they felt

much worse after the first treatment.

I believe the treatment may have " failed " because the doctor does not

understand CFS or HBOT. When they treat Lyme disease with HBOT

patients get a 2-3 week herx reaction (per " Hyperbaric Oxygen

Therapy " by Neubauer, MD). I slept nearly 20 hours a day the

first 2-3 days of treatment. We have all had Herx reactions. Maybe

it does work for some portion of PWC, but sometimes it is not done

long enough either because of the serious expense or due to

misinterpretation of herx reactions.

The fact that this doctor " sent " his patient for treatment, rather

than being involved in it, also suggests to me he may be unaware that

infectious patients require more pressure than standard (over 2

atmospheres instead of a standard 1.5) to benefit.

Concretely I know of my case, one other individual that goes to the

same HBOT center as me with FM that was relieved of most symptoms,

and one serious (20 sessions) failed attempt based on an email

response. With a reasonable theoretical underpinning and some

suggestion of practical effect, I think this deserves a closer look.

Has anyone else tried HBOT?

Regards,

> Most major cities have a place to do it.

> It is quite expensive.

> It is Wonderful for healing wounds and injuries.

> Several pro teams have their own chambers just for this.

> There has been no record of it helping CFS/ME folks.

>

>

> Hyperbaric Oxygen Therapy

>

>

> -

> HBOT sounds interesting?

> How can I find a place where I can try it and how much does it

generally

> cost?

> Thanks

>

> --

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As a followup on the effect of HBOT on CFS/ME, the closest thing to a

study I found was at

http://www.drys00384.pwp.blueyonder.co.uk/hbot.htm

It is not a scientific study, just 2 counts of patient reported

results based on 336 total PWC. The overall result was 70-83%

positive result, with the remainder mostly no result patients, and a

very few worsened cases.

The follow quote is from this link. The writer is an investigator in

the UK where they have more HBOT facilities:

" I was advised that around 300 ME patients have been treated in

various MS therapy centres around the UK (just under 70 centres). Of

these patients, approximately 70% have reported improvement in some

symptoms.

I was then sent a copy of an article in the Journal of the Royal

Society of Medicine. The article explains the results of treating 36

ME patients with Hyperbaric Oxygen Therapy (HBOT). These ME patients

received 20 daily one hour sessions, breathing 100% oxygen under

pressure. 30 patients reported some improvement in their ME symptoms,

although the pressure required to produce this improvement varied. 2

patients did report some worsening of pain, fatigue and weakness; and

6 reported no change in symptoms. Of those who did report

improvements, the most significant effect was on fatigue, which

improved in 83% of people treated.

However, these patients were treated as a practical experiment, not a

scientific controlled trial. The authors of the article state clearly

that this subjective evidence cannot be used to regard HBOT as a

definitive treatment for ME, but does suggest that a formal trial of

HBOT for people with ME should be initiated.

It seems that HBOT may well help people with ME, but will the

necessary research be carried out? Perhaps this is a question for the

ME Association or Action for ME to pursue, rather than a small

support group like our own. Anyone with suggestions or ideas about

what, if anything, we should do about this, please contact Sheffield

ME Group by phone, post or e-mail. "

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  • 3 months later...
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At 10:22 AM 8/7/02 +0000, you wrote:

>Has anyone ever heard of hyperbaric oxygen therapy for the treatment

>of autism. Over here in Australia there is a company advertising on

>the radio that they offer this treatment for autism. I just wanted

>to know if anyone knew anything.

Hi Marie,

I saw a website about this only it was about treating stroke, sorry don't

have the link anymore. The author said that giving increased oxygen would

help heal brain tissue which was adjacent to dead tissue. Apparently after

a stroke there is an area of dead tissue and an area of surrounding tissue

which will either die or heal; supposedly this treatment helps more of the

adjacent tissue heal.

There happened to be someone local here who gave this treatment but it was

in a device similar to a sleeping bag. I felt this would be difficult for

my son to go in and stay in w/o at least some over the counter sedative.

But having him not be awake would've defeated the purpose of the treatment

I was told so we didn't pursue it. A larger outfit might have a chamber

which you could easily go into with your child.

hth,

Marty

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Marie, I have given 2 sons HBOT ( Hyperbaric).They treat people for Lyme

disease, strokes, autism, cerebalpalsy, accident victims ( head trauma) food

poisoning etc.It's main official uses is for smoke inhalation and deepsea

diving or submarine accidents ( coal miner's last week). I had some

improvement in both my son's . I ve spoken to other parents re results .

Some show no improvement some a little and One boy became very vocal from

it. One parent told me the improvements with their child were only

temporary. I think it is defenitely worth doing once to see what happens The

following website may be helpful www.hvhbot.com

>

>Message: 17

> Date: Wed, 07 Aug 2002 10:22:44 -0000

> From: " calbenillie " <teshgoen@...>

>Subject: hyperbaric oxygen therapy

>

>Has anyone ever heard of hyperbaric oxygen therapy for the treatment

>of autism. Over here in Australia there is a company advertising on

>the radio that they offer this treatment for autism. I just wanted

>to know if anyone knew anything.

>

>Thanks

>Marie

>

>

>

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> >Has anyone ever heard of hyperbaric oxygen therapy for autism

A friend got good responses from her autistic son after several HBOT

sessions. Andy should speak to this as I believe he has stated that it can

be hazardous as regards mercury toxicity. I don't know why.

Rob.

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> > >Has anyone ever heard of hyperbaric oxygen therapy for autism

>

> A friend got good responses from her autistic son after several HBOT

> sessions. Andy should speak to this as I believe he has stated that

it can

> be hazardous as regards mercury toxicity. I don't know why.

mercury is an oxidation catalyst, so giving it more oxygen to work

with is a really bad idea.

All the mercury toxic people who tried it I know of got worse. SOme a

LOT worse.

HBOT is prescribed randomly (like much in medicine). It is wonderful

when prescribed PROPERLY, which in neurology is ONLY for conditions

where the person's brain has a perfusion problem causing some neurons

to " brown out, " and not enough oxygen gets in there for the brain to

grow new blood vessels and correct the situation.

Andy .. .

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So are you saying it would NOT help our merc. poisoned kids after chelation

is done?

Barb

[ ] Re: hyperbaric oxygen therapy

>> > >Has anyone ever heard of hyperbaric oxygen therapy for autism

>>

>> A friend got good responses from her autistic son after several HBOT

>> sessions. Andy should speak to this as I believe he has stated that

>it can

>> be hazardous as regards mercury toxicity. I don't know why.

>

>mercury is an oxidation catalyst, so giving it more oxygen to work

>with is a really bad idea.

>

>All the mercury toxic people who tried it I know of got worse. SOme a

>LOT worse.

>

>HBOT is prescribed randomly (like much in medicine). It is wonderful

>when prescribed PROPERLY, which in neurology is ONLY for conditions

>where the person's brain has a perfusion problem causing some neurons

>to " brown out, " and not enough oxygen gets in there for the brain to

>grow new blood vessels and correct the situation.

>

>Andy .. .

>

>

>

>=======================================================

>

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> Has anyone ever heard of hyperbaric oxygen therapy for the treatment

> of autism. Over here in Australia there is a company advertising on

> the radio that they offer this treatment for autism. I just wanted

> to know if anyone knew anything.

Hi Marie,

I have heard lots about HBOT. Prior to my obsession with

mercury, I used to read lists about " oxygen therapies " .

That is: the use of hydrogen peroxide, HBOT and ozone,

for healing.

As someone noted, Andy says HBOT is " bad " for people who

are mercury toxic.

A few URLS:

This list is about any health topics, but has some focus

on oxygen therapies, and many people interested in them:

oxyplus/

Website with general info on oxygen therapies:

http://www.oxytherapy.com/

Website of Carolyn Bormann ND, who uses oxygen therapies:

http://www.arrowheadhealthworks.com/

(she writes on the oxyplus list, or used to.)

http://www.hbot4u.com/

HBOT clinic in Santa Bernadino, CA. (One of the owners,

, writes on the oxyplus list, or used to. Very dedicated

people!)

best wishes,

Moria

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> Hi Marie,

>

> I saw a website about this only it was about treating stroke, sorry

don't

> have the link anymore. The author said that giving increased oxygen

would

> help heal brain tissue which was adjacent to dead tissue. Apparently

after

> a stroke there is an area of dead tissue and an area of surrounding

tissue

> which will either die or heal; supposedly this treatment helps more

of the

> adjacent tissue heal.

>

> There happened to be someone local here who gave this treatment but

it was

> in a device similar to a sleeping bag.

This sounds more like an ozone application device.

Of course, I don't know, just based on what you said.

HBOT involves PRESSURE. It is done in a small room with

pressuried air. (Okay, I'm sure there is some more

technical way to say this....) Ozone, which can ALSO have

MANY benefits for brain, is sometimes applies using

something vaguely like a sleeping bag or a " suit " .

And also other ways. Ozone use is not " pressurized " .

Both ozone and HBOT involve increasing the level of

ozygen.

best wishes,

Moria

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Hi All,

Just for clarification HBOT is done in a pressurized metal chamber.

TK

> > Hi Marie,

> >

> > I saw a website about this only it was about treating stroke,

sorry

> don't

> > have the link anymore. The author said that giving increased

oxygen

> would

> > help heal brain tissue which was adjacent to dead tissue.

Apparently

> after

> > a stroke there is an area of dead tissue and an area of

surrounding

> tissue

> > which will either die or heal; supposedly this treatment helps

more

> of the

> > adjacent tissue heal.

> >

> > There happened to be someone local here who gave this treatment

but

> it was

> > in a device similar to a sleeping bag.

>

> This sounds more like an ozone application device.

> Of course, I don't know, just based on what you said.

> HBOT involves PRESSURE. It is done in a small room with

> pressuried air. (Okay, I'm sure there is some more

> technical way to say this....) Ozone, which can ALSO have

> MANY benefits for brain, is sometimes applies using

> something vaguely like a sleeping bag or a " suit " .

> And also other ways. Ozone use is not " pressurized " .

> Both ozone and HBOT involve increasing the level of

> ozygen.

>

>

> best wishes,

> Moria

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