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> So are you saying it would NOT help our merc. poisoned kids after

chelation

> is done?

If chelation is done (or far enough along) and certain issues aren't

being resolved by it, then HBOT may be appropriate. It depends on

what the issues are, and what is causing them.

Andy . .. . . . . . . . .

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> Andy, do you think a SPECT scan would be helpful to determine

whether HBOT

> might help?

It might. It might not. I don't know. You would need a radiologist

who really knew this application to interpret it since you aren't

looking for relative hypoperfusion (which all autistics will have),

but fairly profound hypoperfusion.

>How likely are docs to do those?

SOme would, some wouldn't. It may also be hard to get insurance to

cover it. They cost maybe $2,000.

I'd say it is easier to figure out empirically in many instances.

Stuff that isn't improving much on chelation but which is responsive

to ginkgo biloba, vinpocetine, pyritinol and ergoloid mesylates is

perfusion related.

Andy . .. . . . . . . .

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I find that very hard to believe! How could they not

do the tests? And to say your problems were more

mental illness! I'm surprised you didn't give her a

kick in the shin. Might as well be accused of

emotional disorder as well!

I think it is terrible what you are forced to put up

with. Did you complain to your endo? I've been so

debilitated by my fatigue and searching the net to

find out if there's some other cause for it. The only

thing I could come up with was chroni fatigue

syndrome! I certainnly am chronic, after all I've been

through!

Anyway, on Monday I begin a series of Hyperbaric

Oxygen Therapy. From what I read, it falls in the

realm of alternative medicine though at first I didn't

think so as the theory behind it appears very sound.

My friend had asked me to consider it for my stroke

rehab and I wondered if it would help my fatigue too.

I managed to locate a facility which provides it (at

our national neroscience institute) an also discovered

that our navy has been using it for over a decade.

The doctor told me it certainly improves metabolism,

brain function and chronic fatigue. A lot of patients

keep exclaiming how revived they feel after a session

even though they went in for other reasons like

diabetic wound healing. Since all my tests so far ave

shown that my potassium, iron, heart, lungs etc are

now normal, I don't know what is causing my fatigue

and breathlessness. My husband and I were given a

short tour of the facilities and it sounds like

something I need! Sitting in that oxygen chamber

reading a book and coming out rejuvenated sounds good

to me! I need 40 sessions 5 days a week as a stroke

patient.

Will let you know how my first session went. I read on

a site by Dr Poesnecker that he uses HBOT to treat

chronic fatigue, which he links to adrenal

malfunction. Since conventional medicine has done

nothing for me, I have no qualms at all trying

alternative medicine!

Elaine

--- Helen Pearson <Helen@...>

wrote:

> > are you taking any hypertensive meds to treat your

> BP apart from spiro?

>

> I was at the hospital today to see the immunologist.

> i was hoping they would

> have sorted out the meds but the woman I saw was

> worse than useless and I

> left in tears. She didn't do any of the tests she

> had been asked to by the

> Endo - not even the BP and said my problems were

> more of mental illness than

> anything real! I was so shocked I could not reply to

> that. This is so

> typical of the attitude I have had over the past x

> years when I was feeling

> so ill and no one could work out what it all was.

>

> The last reading they took showed the BP all over

> the place - from 140/65 up

> to 220/120 in less than 2 hours. No one knows what

> to do about it as the

> spiro is helping but not enough, or for long enough

> and I have SJS reactions

> to ACE-inhibitors and Beta-blockers. The twit I saw

> today could not find my

> last blood work results and she did not inspire me

> with confidence. In fact

> she gave me three more drugs which are two lots of

> antibiotics and a

> digestive system " slow down " . All have

> contra-indications for SJS and

> adrenal problems but I didn't find that out until I

> had paid for the drugs

> and got the information leaflets. Needless to say

> there will be no refund.

> I'll have to go and see my own doctor tomorrow (if I

> can) and will write to

> Dr Twit's Boss who I have seen before. I am

> starting to wonder if she had

> the correct file........

>

> .

> > Is your fatigue everyday or do you get 'good'

> days?

>

> I tend to start to flag by lunch time and am almost

> asleep mid-afternoon. If

> I have had an afternoon nap I am okay in the evening

> (still sleep tight at

> night) and better the next day. After a hospital

> stay I am great as all we

> get to do in hospital is rest. My BP is also much

> lower when I come out -

> but not for long......

>

>

>

> > On Monday I commence my Hyperbaric Oxygen Therapy.

>

> Oh, oh, oh!!! I am so excited for you.

>

>

> > Helen, what can you manage to do these days

> without getting too fatigued?

> Do you travel anywhee at all or are you mostly in

> your town. How about

> hobbies or work?

>

> I still kayak a bit but need lots of rest which

> means I feel self-consious

> if we are out with a group as they have to keep

> stopping for me and I know

> some of the people who don't " know " find that

> frustrating. Usually it is

> just my hubby and i who go now and we find so flat

> water just to mess around

> on. I can't paddle all day anymore - have to stop

> every half hour and then 3

> hours is about the maximum I can cope with. I'm no

> good for a few days after

> either. I don't drive very far anymore as going to

> sleep at the wheel would

> not be very clever I think. My " town " is pretty

> small - and isolated. We

> have a local food store round the corner and I tend

> to shop there although

> it is a bit pricey and there isn't a lot of choice.

> If I walk into the town

> centre there are quite a few tea rooms, two

> supermarkets (both small) and it

> is very pretty with a Flemish Style main Square and

> nice views over the

> river(look it up on the web - I'm not sure of the

> site but I know they have

> one). Every hour there is a local bus that goes from

> the town past my street

> so I'll get that home as I can't manage the walk.

>

> I read a lot and also do patchwork and quilting.

> Mostly hand work at present

> as the machine is too heavy for me to lift up and

> down. Once we get our new

> house I'll have a sewing room where the machine will

> have a permanent home

> like in our last house. The maths in the patchwork

> keeps my brains from

> completely seizing!

>

> I've not been to work for nearly 18 months and money

> is tight as I get a

> small pension of £53 a week. Going to the hospital

> today cost me over £40 in

> public transport costs just for me and I had to

> take my daughter with me as

> it is school holiday right now. Our car broke down

> last Sunday and we had to

> be towed home. We expect the repair bill to be

> around £500 as it is a Volvo

> and the parts are very expensive. The fuel pump went

> and it is inside the

> fuel tank so the whole lot has to be replaced as it

> comes as a complete

> unit. Originally the garage said it would be done on

> Wednesday but now they

> say it will be tomorrow. When I did work I was a

> specialist tax expert - I

> still get phoned and asked for advice now but you

> need to work to keep up to

> date. Once I get all this sorted I'd like to go back

> but I'd prefer part

> time. I'm not sure if an employer will consider

> taking me on with my medical

> history - the last couple of jobs I applied for I

> got turned down at

> interview when I made the health disclosure.

>

> Ah well it could be worse.........

> And I didn't even get chance to ask Dr Twit about a

> medic-alert bracelet or

> a home BP monitor. Mind she would probably have

> laughed and said I was

> imagining the high BP as well.

>

>

> Helen in sunny Kelso

>

>

__________________________________________________

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  • 6 months later...

http://www.citihealth.com/layout.cfm?HC=59 & body=Articles/00005143

Neurology Center

Hyperbaric Oxygen Therapy

By Larry D. Stoddard, M.D.

Hyperbaric oxygen therapy, more commonly known as HBOT, is defined as

breathing 100% oxygen while in an enclosed system pressurized to greater

than one atmosphere (sea level). Hyperbaric medicine is most often tied to

diving medicine and is a well-known treatment for decompression sickness or

the bends.  This occurred in 1937. In 1960, pressurized oxygen therapy was

shown to be useful in treating carbon monoxide poisoning and since that time

there have been a number of other afflictions that respond well to

hyperbaric oxygen therapy.

It has long been established that when the body is injured it takes more

energy to heal the abnormality than it does to maintain normal tissue.

Oxygen is the driving force behind energy production in the cell and if the

cell is injured, more energy is needed to facilitate repair. It follows that

if more oxygen is delivered to the cells then the body is able to repair

itself more quickly. Several different processes result in more oxygen being

delivered to the cells that need it most. First, because of the increase in

pressure, more oxygen is dissolved in the blood plasma. This extra oxygen

goes directly to the tissue via the capillary system. In 1960, a Dr. Boerema

showed that in a high-pressure oxygen environment, life could be maintained

in the absence of blood. Secondly, the oxygen that is delivered to the

tissue can travel a greater distance from the capillaries to oxygenate cells

that may not otherwise get the oxygen needed to repair the abnormality.

Thirdly, hyperbaric oxygen enhances the growth of new blood vessels; a

process known as angiogenesis. Lastly, HBO promotes the release of cellular

growth factors, which speeds the healing process.

Hyperbaric Oxygen therapy can be delivered in either a mono-place (one

person), dual-place (two person), chamber or a multi-place (several people)

chamber. The multi-place chamber is always pressurized with air and the

patients inside the chamber don a hood and breathe 100% oxygen. In

mono-place or dual-place chambers, the inside of the chamber is pressurized

with either 100% oxygen or air. If pressured with air the patient is

required to wear a hood similar to that of a multi-place chamber. In the

multi-place chamber, the patient sits or can lie down. In the other types

the patient rests comfortably either watching a movie or listening to the

radio.

In addition to the different types of chambers available, there are

essentially two types of facilities: hospital based facilities that

essentially confine treatment to the conditions reimbursed by Medicare or

other health plans and free standing facilities that treat a wider variety

of indications.

Since the early days of hyperbaric medicine, the list of conditions that

respond to HBO has grown considerably. There is a list of 13-14 diagnoses

that are covered by Medicare and most health care plans or third party

payers. These conditions are: air or gas embolism, carbon monoxide

poisoning, compromised skin graft or flaps, crush injuries/acute traumatic

ischemia, decompression sickness, enhancement of healing in selected problem

wounds, gangrene, intracranial abscess, radiation tissue damage

(osteoradionecrosis), refractory osteomyelitis, and thermal burns. There are

a number of other conditions, presently considered experimental, for which

HBO may be effective. These include: certain liver disorders, cerebral

palsy, stroke, multiple sclerosis, Parkinson¹s disease, autism, near

drowning victims, Lyme disease, and cerebral or spinal cord edema after

acute injury.

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  • 4 weeks later...
Guest guest

I have not heard of this for autism. A friend of mine has a son who overdosed

on heroine. He has brian damage. She did this for him summer of 2000. It

helped him extreamly. Before it, he couldn't talk or anything. Now I can carry

on a conversation with him. He's hard to understand, but so is my child whose

down syndrome and autistic. She had his treatments in Galveston. The facility

down there was doing a study so it was free, but they had to live down there for

at least 9 weeks. She had stated that there was only one place in DFW that did

it, but insurance didn't pay at the time because it's not proven. If you still

need info as to where and such let me know.

Mother of

Hyperbaric Oxygen Therapy

Has anyone tried this with thier Autistic Child? Are their treatment

chambers in the DFW area?

FYI - we are seeing Dr. Kendall this Monday. I have heard some VERY

promising things about him and his anti-viral treatment - I know that Valtrex

is one of the meds he also prescribes. The April 12th speaking event at TWU

that is sponsored by SI Challenge has limited seating. You can register by

phone at (214) 692-1244 if you don't have a brochure.

Kate

Mother Of Spencer

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Guest guest

I have not heard of this for autism. A friend of mine has a son who overdosed

on heroine. He has brian damage. She did this for him summer of 2000. It

helped him extreamly. Before it, he couldn't talk or anything. Now I can carry

on a conversation with him. He's hard to understand, but so is my child whose

down syndrome and autistic. She had his treatments in Galveston. The facility

down there was doing a study so it was free, but they had to live down there for

at least 9 weeks. She had stated that there was only one place in DFW that did

it, but insurance didn't pay at the time because it's not proven. If you still

need info as to where and such let me know.

Mother of

Hyperbaric Oxygen Therapy

Has anyone tried this with thier Autistic Child? Are their treatment

chambers in the DFW area?

FYI - we are seeing Dr. Kendall this Monday. I have heard some VERY

promising things about him and his anti-viral treatment - I know that Valtrex

is one of the meds he also prescribes. The April 12th speaking event at TWU

that is sponsored by SI Challenge has limited seating. You can register by

phone at (214) 692-1244 if you don't have a brochure.

Kate

Mother Of Spencer

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  • 2 months later...
Guest guest

On the internet search for the address for MUMs, log on and check the

autism portions. Also just do a search for hyperbaric oxygen chamber

treatment autism also check www.hhi-kc.com/indications.htm. It may be

that many forms cases of autism are subtle cases of brain damage usually

in the cortical and midbrain areas of the brain as opposed to a child

with CP who's brain injury is in a different area the subcortical. Many

autistic children are improving with HBOT. We are certain our child

suffered apoxic aphysiation due to the imbilical chord and the use of

forceps.

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Guest guest

On the internet search for the address for MUMs, log on and check the

autism portions. Also just do a search for hyperbaric oxygen chamber

treatment autism also check www.hhi-kc.com/indications.htm. It may be

that many forms cases of autism are subtle cases of brain damage usually

in the cortical and midbrain areas of the brain as opposed to a child

with CP who's brain injury is in a different area the subcortical. Many

autistic children are improving with HBOT. We are certain our child

suffered apoxic aphysiation due to the imbilical chord and the use of

forceps.

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  • 2 years later...

Thank you. And I will keep you updated.

Jack

> >

> > Hello,

> >

> > I joined this group about a year ago, and have periodically

looked

> at

> > the messages on this forum. I am also a member of the Alzheimer

> > forum. My father was diagnosed with dementia about 3 1/2 years

> ago

> > and has deteriorated. I believe there is a cure for every type

of

> > sickness and I like this forum because I see everyone is trying

to

> > help their children, and you all have hope. Unlike the Alzheimer

> > forum where there is just a pitty party and they are just waiting

> for

> > their loved one to die. Autism is like Alzheimers and I learn

new

> > information from reading your stories. A doctor I took my father

> to

> > see suggested that he try hyperbaric oxygen therapy, since

> > intervenous Chelation therapy wasn't working. So I research it

for

> > some months and I found that It has helped a lot of stroke,

> > alzheimer, and austism suffers. My father is starting a

> hyperbaric

> > program later this month. We are traveling to a CA clinic where

he

> > will receive 120 hours of hyperbaric oxygen therapy. I will let

> you

> > know the outcome

> >

>

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Thank you. And I will keep you updated.

Jack

> >

> > Hello,

> >

> > I joined this group about a year ago, and have periodically

looked

> at

> > the messages on this forum. I am also a member of the Alzheimer

> > forum. My father was diagnosed with dementia about 3 1/2 years

> ago

> > and has deteriorated. I believe there is a cure for every type

of

> > sickness and I like this forum because I see everyone is trying

to

> > help their children, and you all have hope. Unlike the Alzheimer

> > forum where there is just a pitty party and they are just waiting

> for

> > their loved one to die. Autism is like Alzheimers and I learn

new

> > information from reading your stories. A doctor I took my father

> to

> > see suggested that he try hyperbaric oxygen therapy, since

> > intervenous Chelation therapy wasn't working. So I research it

for

> > some months and I found that It has helped a lot of stroke,

> > alzheimer, and austism suffers. My father is starting a

> hyperbaric

> > program later this month. We are traveling to a CA clinic where

he

> > will receive 120 hours of hyperbaric oxygen therapy. I will let

> you

> > know the outcome

> >

>

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  • 8 months later...
Guest guest

Hi !

Oxygen therapy has come up a handful of times over the years but

it's never really caught on even when people tried it. I never

explored it for my boys more than going to a local oxygen O2 bar

with them (archive below) because other than Tanner 'thinking' it

helped him talk faster -we really didn't notice any difference in

any of us including Tanner from it. I guess if it worked like fish

oil (even a small surge at a lower dosage) we'd all be paying for

our kids to be sniffing air!

the 2003 O2 bar link I have below in archive-land no longer works

http://www.o2bar.com/

Now you have to go to http://www.o2planet.com/

Below is an archive from 2003 on this:

Sun Jul 6, 2003 2:34 pm

<kiddietalk@...>

(changed the subject) HBOT - Oxygen Bars

Hi Tammy,

Actually you haven't done the rides yet at all have you? Just the

water parks? I found the actual rides to be better myself. I'll

also let everyone here know what you and already know that I

took Tanner and Dakota to the O2 (oxygen therapy) " bar " the other

day and Dakota didn't like it but Tanner loved it so much he wants

to go back!

As I told you both -they only charged us $5 for 7 minutes -but gave

each of us another 7 minutes for free -plus a free healthy smoothie

made of fruit and with add ins of supplements. The place is in

downtown Jensen Beach in Florida if anyone is interested and they

are just wonderful there. Glenn's going to go with us to try it

today -they are having a concert there tonight.

She told me that the hospital's have 100% oxygen and they have 95%

oxygen -but to have 100% they would need a license which they don't

have. (they are also a tanning salon and they carry clothes used

just once on TV shows and jewelry and some makeup and all -looks

like a shop you would find in Greenwich Village in NY)

Do I see a difference with Tanner -or do I feel different? Not while

we were there -but Tanner seems to think he's talking faster -which

is his goal right now as you can tell from his update for the

talking page. We'll try again today -it's certainly cheap enough to

say the least after some of the other things we have tried! I felt

a bit more energy -and a bit light headed -but probably because as

you know I have so much energy to begin with!

As far as the IEPs -I'm going with the McKay Scholarship for this

year with a private heavy academic school for both Dakota and Tanner

that has an SLP there that is a director of speech at Children's

Hospital of Miami -she is awesome and will give Tanner private

therapy one on one a few times a week. She's still with the

hospital too -and she knows Dr. Altman and Dr. Kuchman and all of

them well. If I had Tanner in the public school however -I would

not stand for what your school is doing. I'm trying Tanner

in the heavy academic setting to see how he does -he was one of the

top in the class in public school -but now he'll be going into a

private elite school where the kindergarten kids are " fluent "

readers and writers -Tanner is not fluent yet -but they have a tutor

for him for that as well to get him up to speed. I know you wanted

to leave in the public school for a few reasons -but you just

got the main reason to look into McKay -after all -it's there.

There's got to be something you can do. I'll call you back soon -

just came back from the private school. What did you think of the

class action info I sent out earlier?

=====

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Guest guest

Hi !

Oxygen therapy has come up a handful of times over the years but

it's never really caught on even when people tried it. I never

explored it for my boys more than going to a local oxygen O2 bar

with them (archive below) because other than Tanner 'thinking' it

helped him talk faster -we really didn't notice any difference in

any of us including Tanner from it. I guess if it worked like fish

oil (even a small surge at a lower dosage) we'd all be paying for

our kids to be sniffing air!

the 2003 O2 bar link I have below in archive-land no longer works

http://www.o2bar.com/

Now you have to go to http://www.o2planet.com/

Below is an archive from 2003 on this:

Sun Jul 6, 2003 2:34 pm

<kiddietalk@...>

(changed the subject) HBOT - Oxygen Bars

Hi Tammy,

Actually you haven't done the rides yet at all have you? Just the

water parks? I found the actual rides to be better myself. I'll

also let everyone here know what you and already know that I

took Tanner and Dakota to the O2 (oxygen therapy) " bar " the other

day and Dakota didn't like it but Tanner loved it so much he wants

to go back!

As I told you both -they only charged us $5 for 7 minutes -but gave

each of us another 7 minutes for free -plus a free healthy smoothie

made of fruit and with add ins of supplements. The place is in

downtown Jensen Beach in Florida if anyone is interested and they

are just wonderful there. Glenn's going to go with us to try it

today -they are having a concert there tonight.

She told me that the hospital's have 100% oxygen and they have 95%

oxygen -but to have 100% they would need a license which they don't

have. (they are also a tanning salon and they carry clothes used

just once on TV shows and jewelry and some makeup and all -looks

like a shop you would find in Greenwich Village in NY)

Do I see a difference with Tanner -or do I feel different? Not while

we were there -but Tanner seems to think he's talking faster -which

is his goal right now as you can tell from his update for the

talking page. We'll try again today -it's certainly cheap enough to

say the least after some of the other things we have tried! I felt

a bit more energy -and a bit light headed -but probably because as

you know I have so much energy to begin with!

As far as the IEPs -I'm going with the McKay Scholarship for this

year with a private heavy academic school for both Dakota and Tanner

that has an SLP there that is a director of speech at Children's

Hospital of Miami -she is awesome and will give Tanner private

therapy one on one a few times a week. She's still with the

hospital too -and she knows Dr. Altman and Dr. Kuchman and all of

them well. If I had Tanner in the public school however -I would

not stand for what your school is doing. I'm trying Tanner

in the heavy academic setting to see how he does -he was one of the

top in the class in public school -but now he'll be going into a

private elite school where the kindergarten kids are " fluent "

readers and writers -Tanner is not fluent yet -but they have a tutor

for him for that as well to get him up to speed. I know you wanted

to leave in the public school for a few reasons -but you just

got the main reason to look into McKay -after all -it's there.

There's got to be something you can do. I'll call you back soon -

just came back from the private school. What did you think of the

class action info I sent out earlier?

=====

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Guest guest

-Hi

We started Hyperbaric Oxygen therapy for our apraxic son

(4.5yrs) but we just went for about 15 sessions and then stopped

because he got fluid in middle ear after the seasonal allergies. We

will go back again soon.According to our doctor, at least 40

sessions are needed to see the improvements.I have heard lot of good

things about HBOT and can't wait to go back again.

Archana

-- In , petunia farmer

<wombatacre@...> wrote:

>

> Hi Everyone

>

> I have been reading a lot about hyperbaric oxygen

> therapy and how effective it is for apraxia and other

> neurological conditions.

> Does anybody here have experience with it or know of

> anyone who has tried it for apraxia? It makes sense

> that it might work,

> but also sounds too miraculous to be true and

> incredibly expensive. Thanks for any input.

>

>

>

> __________________________________________________

>

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Guest guest

-Hi

We started Hyperbaric Oxygen therapy for our apraxic son

(4.5yrs) but we just went for about 15 sessions and then stopped

because he got fluid in middle ear after the seasonal allergies. We

will go back again soon.According to our doctor, at least 40

sessions are needed to see the improvements.I have heard lot of good

things about HBOT and can't wait to go back again.

Archana

-- In , petunia farmer

<wombatacre@...> wrote:

>

> Hi Everyone

>

> I have been reading a lot about hyperbaric oxygen

> therapy and how effective it is for apraxia and other

> neurological conditions.

> Does anybody here have experience with it or know of

> anyone who has tried it for apraxia? It makes sense

> that it might work,

> but also sounds too miraculous to be true and

> incredibly expensive. Thanks for any input.

>

>

>

> __________________________________________________

>

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  • 3 weeks later...
Guest guest

Michele,

I have talked to one parent of an apraxic child who was very

positive about HBOT and happy with the results. Other than that,

I've really not heard any personal stories (positive or negative)

about it. If you're able to give it a shot without incurring too

much expense, it's worth a try!

What other therapies have you tried? Fish oil? Any other biomed

stuff? Have you ever tested for heavy metal poisoning, viral

issues, or food intolerances? Tried any special diets?

Sorry for so many questions, I just thought we all could help you a

little more with a little more info.

Kerri

>

> Has anyone ever tried Hyperbaric Oxygen Therapy for a severely

apraxic

> child? I am looking into anything as conventional treatments have

not

> worked yet.

>

> Michele

>

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Guest guest

Michele,

I have talked to one parent of an apraxic child who was very

positive about HBOT and happy with the results. Other than that,

I've really not heard any personal stories (positive or negative)

about it. If you're able to give it a shot without incurring too

much expense, it's worth a try!

What other therapies have you tried? Fish oil? Any other biomed

stuff? Have you ever tested for heavy metal poisoning, viral

issues, or food intolerances? Tried any special diets?

Sorry for so many questions, I just thought we all could help you a

little more with a little more info.

Kerri

>

> Has anyone ever tried Hyperbaric Oxygen Therapy for a severely

apraxic

> child? I am looking into anything as conventional treatments have

not

> worked yet.

>

> Michele

>

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  • 9 months later...
Guest guest

This does not directly answer your question but does

so indirectly, by way of an abstract from NIH (a

reliable scientific research resource) about the use

of the chamber for CI flap necrosis:

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve & db=PubMed & list_uids=2\

012200 & dopt=Abstract

Just a general comment about the hyperbaric chamber,

and I am NOT a doctor or a scientist but I've done

some research on the use of it over time for brain

injury: be aware that a lot of the research is new and

while promising should not be assumed to be a strong

statement for treating all the conditions that they

are looking to use the chamber for. That said, the

prospects for the future are very exciting.

Deb

--- cjr405 <carol-rose@...> wrote:

> I'm on a support group for parents of children with

> special needs. One

> of the recent therapies with many applications is

> called HBOT

> (Byperbaric Oxygen Therapy). I have no experience or

> knowledge about

> this treatment.

>

> I noticed that one of the possible risks of this

> treatment

> is " Inability to equalize middle ear pressure 0.37% "

> (less than a 1%

> risk). I wonder if anyone with a CI has ever had

> this therapy and if

> the pressure is safe for CI users. Here's a link to

> a site that

> provides information about this kind of treatment.

>

> http://hhi-kc.com/whatis.htm

>

> I did an Internet search and found that just about

> all the local

> chiropractors say that they provide this therapy to

> their patients. It

> sounds like it has a lot of interesting uses,

> including pre- and post-

> operation healing (wound healing), meniere's

> disease, Bell's palsy,

> sudden deafness, etc.

>

> -- Carol

>

>

________________________________________________________________________________\

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Hi Deb,

Thanks for that article. I guess that means it's safe for CI users to

consider.

-- Carol

>

> This does not directly answer your question but does

> so indirectly, by way of an abstract from NIH (a

> reliable scientific research resource) about the use

> of the chamber for CI flap necrosis:

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=2012200 & dopt=Abstract

>

> Just a general comment about the hyperbaric chamber,

> and I am NOT a doctor or a scientist but I've done

> some research on the use of it over time for brain

> injury: be aware that a lot of the research is new and

> while promising should not be assumed to be a strong

> statement for treating all the conditions that they

> are looking to use the chamber for. That said, the

> prospects for the future are very exciting.

>

> Deb

>

>

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Hi Carol,

That is how I read it, too.

Deb

cjr405 <carol-rose@...> wrote:

Hi Deb,

Thanks for that article. I guess that means it's safe for CI users to

consider.

-- Carol

>

> This does not directly answer your question but does

> so indirectly, by way of an abstract from NIH (a

> reliable scientific research resource) about the use

> of the chamber for CI flap necrosis:

>

> http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=2012200 & dopt=Abstract

>

> Just a general comment about the hyperbaric chamber,

> and I am NOT a doctor or a scientist but I've done

> some research on the use of it over time for brain

> injury: be aware that a lot of the research is new and

> while promising should not be assumed to be a strong

> statement for treating all the conditions that they

> are looking to use the chamber for. That said, the

> prospects for the future are very exciting.

>

> Deb

>

>

---------------------------------

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  • 6 months later...

Hi ette, I don't have an answer for you but Dr. Jolly over at the Whitaker Wellness Institute is very knowlegable about Hyperbaric Treatments. He has about 15 chambers. Whitaker Wellness Institute 949 851-1550 Good luck, Deborah paulettegreenfield <paulettegreenfield@...> wrote: HELLO EVERYONE! HOPE THAT YOU ARE ALL FEELING WELL. I HAVE A QUESTION PLS., BEFORE FINDING OUT ABOUT LDN MY

DAUGHTER STARTED HYPERBARIC O2 TREATMENTS, 4DAYS AWEEK @ 2.4 ATMOSPHERS.SHE HAS HAD 14 TREATMENTS SO FAR. SHE STARTED LDN 1 WEEK AGO WITHOUT ANY NOTICEABLE EFFECT SO FAR. SHE HAS CROHNS AND HAS BEEN IN A FLARE FOR ABOUT 2MONTHS. SHE IS CURRENTLY TAKING CIPRO AND FLAYGYL AND PENTASA. THIS MORNING A THOUGHT CAME TO ME THAT PERHAPS IN COMBINATION THEY PERHAPS CANCELL EACH OTHERS EFFECTIVENESS OUT?? IS THAT POSSIBLE? IF SOMEONE CAN PLS. ANSWER THIS I'D BE VERY GREATFUL TO THEM. PERHAPS I SHOULD CALL DR. BIHARIS OFFICE AND EMAIL DR.GLUCK ALSO. THANK YOU ALL, AND I HOPE THAT YOU HAVE A WONDERFUL FALL DAY AND WEEKEND. WARMLY, PAULETTE

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THANK YOU SO MUCH DEBORAH - I WILL CALL NOW.

> HELLO EVERYONE! HOPE THAT YOU ARE ALL FEELING WELL.

> I HAVE A QUESTION PLS., BEFORE FINDING OUT ABOUT LDN MY DAUGHTER

> STARTED HYPERBARIC O2 TREATMENTS, 4DAYS AWEEK @ 2.4 ATMOSPHERS.

> SHE HAS HAD 14 TREATMENTS SO FAR. SHE STARTED LDN 1 WEEK AGO

WITHOUT

> ANY NOTICEABLE EFFECT SO FAR. SHE HAS CROHNS AND HAS BEEN IN A

FLARE

> FOR ABOUT 2MONTHS. SHE IS CURRENTLY TAKING CIPRO AND FLAYGYL AND

> PENTASA. THIS MORNING A THOUGHT CAME TO ME THAT PERHAPS IN

COMBINATION

> THEY PERHAPS CANCELL EACH OTHERS EFFECTIVENESS OUT?? IS THAT

POSSIBLE?

> IF SOMEONE CAN PLS. ANSWER THIS I'D BE VERY GREATFUL TO THEM.

PERHAPS I

> SHOULD CALL DR. BIHARIS OFFICE AND EMAIL DR.GLUCK ALSO. THANK YOU

ALL,

> AND I HOPE THAT YOU HAVE A WONDERFUL FALL DAY AND WEEKEND. WARMLY,

> PAULETTE

>

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Hi ette,

As far a I know, neither hyperbaric oxygen nor the three drugs you mention are

incompatible with LDN. I do believe, however, that the sooner she comes off

these modalities the better off she will be. I believe LDN and careful attenion

to diet are her best hope.

With best wishes,

Dudley Delany

dudley_delany

[low dose naltrexone] HYPERBARIC OXYGEN THERAPY

HELLO EVERYONE! HOPE THAT YOU ARE ALL FEELING WELL.

I HAVE A QUESTION PLS., BEFORE FINDING OUT ABOUT LDN MY DAUGHTER

STARTED HYPERBARIC O2 TREATMENTS, 4DAYS AWEEK @ 2.4 ATMOSPHERS.

SHE HAS HAD 14 TREATMENTS SO FAR. SHE STARTED LDN 1 WEEK AGO WITHOUT

ANY NOTICEABLE EFFECT SO FAR. SHE HAS CROHNS AND HAS BEEN IN A FLARE

FOR ABOUT 2MONTHS. SHE IS CURRENTLY TAKING CIPRO AND FLAYGYL AND

PENTASA. THIS MORNING A THOUGHT CAME TO ME THAT PERHAPS IN COMBINATION

THEY PERHAPS CANCELL EACH OTHERS EFFECTIVENESS OUT?? IS THAT POSSIBLE?

IF SOMEONE CAN PLS. ANSWER THIS I'D BE VERY GREATFUL TO THEM. PERHAPS I

SHOULD CALL DR. BIHARIS OFFICE AND EMAIL DR.GLUCK ALSO. THANK YOU ALL,

AND I HOPE THAT YOU HAVE A WONDERFUL FALL DAY AND WEEKEND. WARMLY,

PAULETTE

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THANK YOU SO MUCH FOR YOUR REPLY DUDLEY / AND ALSO, I HAVE BEEN

ENJOYING YOUR READING MATERIAL ON LINE! THANKS!

In low dose naltrexone , " Dudley Delany "

<DudleyDelany@...> wrote:

>

> Hi ette,

>

> As far a I know, neither hyperbaric oxygen nor the three drugs you

mention are incompatible with LDN. I do believe, however, that the

sooner she comes off these modalities the better off she will be. I

believe LDN and careful attenion to diet are her best hope.

>

> With best wishes,

>

> Dudley Delany

>

> dudley_delany

>

>

> [low dose naltrexone] HYPERBARIC OXYGEN THERAPY

>

> HELLO EVERYONE! HOPE THAT YOU ARE ALL FEELING WELL.

> I HAVE A QUESTION PLS., BEFORE FINDING OUT ABOUT LDN MY DAUGHTER

> STARTED HYPERBARIC O2 TREATMENTS, 4DAYS AWEEK @ 2.4 ATMOSPHERS.

> SHE HAS HAD 14 TREATMENTS SO FAR. SHE STARTED LDN 1 WEEK AGO

WITHOUT

> ANY NOTICEABLE EFFECT SO FAR. SHE HAS CROHNS AND HAS BEEN IN A

FLARE

> FOR ABOUT 2MONTHS. SHE IS CURRENTLY TAKING CIPRO AND FLAYGYL AND

> PENTASA. THIS MORNING A THOUGHT CAME TO ME THAT PERHAPS IN

COMBINATION

> THEY PERHAPS CANCELL EACH OTHERS EFFECTIVENESS OUT?? IS THAT

POSSIBLE?

> IF SOMEONE CAN PLS. ANSWER THIS I'D BE VERY GREATFUL TO THEM.

PERHAPS I

> SHOULD CALL DR. BIHARIS OFFICE AND EMAIL DR.GLUCK ALSO. THANK YOU

ALL,

> AND I HOPE THAT YOU HAVE A WONDERFUL FALL DAY AND WEEKEND. WARMLY,

> PAULETTE

>

>

>

>

>

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Unless you have evidence that antibiotics are healing the cause of her

Crohns they well maybe exacerbating it because they destroy all the good

gut bacteria.

Best health,

Jo

paulettegreenfield wrote:

> HELLO EVERYONE! HOPE THAT YOU ARE ALL FEELING WELL.

> I HAVE A QUESTION PLS., BEFORE FINDING OUT ABOUT LDN MY DAUGHTER

> STARTED HYPERBARIC O2 TREATMENTS, 4DAYS AWEEK @ 2.4 ATMOSPHERS.

> SHE HAS HAD 14 TREATMENTS SO FAR. SHE STARTED LDN 1 WEEK AGO WITHOUT

> ANY NOTICEABLE EFFECT SO FAR. SHE HAS CROHNS AND HAS BEEN IN A FLARE

> FOR ABOUT 2MONTHS. SHE IS CURRENTLY TAKING CIPRO AND FLAYGYL AND

> PENTASA. THIS MORNING A THOUGHT CAME TO ME THAT PERHAPS IN COMBINATION

> THEY PERHAPS CANCELL EACH OTHERS EFFECTIVENESS OUT?? IS THAT POSSIBLE?

> IF SOMEONE CAN PLS. ANSWER THIS I'D BE VERY GREATFUL TO THEM. PERHAPS I

> SHOULD CALL DR. BIHARIS OFFICE AND EMAIL DR.GLUCK ALSO. THANK YOU ALL,

> AND I HOPE THAT YOU HAVE A WONDERFUL FALL DAY AND WEEKEND. WARMLY,

> PAULETTE

>

>

>

>

>

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Hello,

....antibiotics should not be taken unless one always use probiotics to help the good bacteria.

Ingrid

Re: [low dose naltrexone] HYPERBARIC OXYGEN THERAPYUnless you have evidence that antibiotics are healing the cause of her Crohns they well maybe exacerbating it because they destroy all the good gut bacteria.Best health, Jopaulettegreenfield wrote:> HELLO EVERYONE! HOPE THAT YOU ARE ALL FEELING WELL. > I HAVE A QUESTION PLS., BEFORE FINDING OUT ABOUT LDN MY DAUGHTER > STARTED HYPERBARIC O2 TREATMENTS, 4DAYS AWEEK @ 2.4 ATMOSPHERS.> SHE HAS HAD 14 TREATMENTS SO FAR. SHE STARTED LDN 1 WEEK AGO WITHOUT > ANY NOTICEABLE EFFECT SO FAR. SHE HAS CROHNS AND HAS BEEN IN A FLARE > FOR ABOUT 2MONTHS. SHE IS CURRENTLY TAKING CIPRO

AND FLAYGYL AND > PENTASA. THIS MORNING A THOUGHT CAME TO ME THAT PERHAPS IN COMBINATION > THEY PERHAPS CANCELL EACH OTHERS EFFECTIVENESS OUT?? IS THAT POSSIBLE? > IF SOMEONE CAN PLS. ANSWER THIS I'D BE VERY GREATFUL TO THEM. PERHAPS I > SHOULD CALL DR. BIHARIS OFFICE AND EMAIL DR.GLUCK ALSO. THANK YOU ALL, > AND I HOPE THAT YOU HAVE A WONDERFUL FALL DAY AND WEEKEND. WARMLY, > PAULETTE>>>> >

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