RE: AAI Recommendations (Mike Grossman)

[Guest guest]

HI Mike

I was

wondering where you live and how are your sons doing?

Thanks

Caroline

From:

Multiples-DS

[mailto:Multiples-DS ]

On Behalf Of Mike Grossman

Sent: February-23-12 7:37 AM

To: Multiples-DS

Subject: Re: AAI

Recommendations

Hi Cecilia,

I agree with

everything that Caroline said and want to also add this. When you speak

to the anesthesiologist before the surgery, and you will have an opportunity to

do this, make him/her aware of your son's neck status. Unless there are

serious issues with the neck, he should tell you that he always assumes there

are the potential for neck issues in kids with DS. If he doesn't say

something like that, I would be concerned. We have been through 2 or 3

different gas-passers and they have always said this to us.

If you are

more concerned, or if there are neck issues to for him to be aware of, contact

your surgeon and find out who the anesthesiologist is going to be and then

contact him directly to prepare him for the situation.

Mike Grossman

Sam and

, 15 year-old twins with DS

From: Caroline

To: Multiples-DS

Sent: Wednesday, February 22, 2012

10:19 PM

Subject: RE: AAI

Recommendations

HI Cecilia

Did the x-ray show any

instability in your son neck? My sons had xrays when they were 3 or five and

then again at 10 years of age. The first x-ray was negative but the second one

showed a small spacing in both my sons’ necks. We did not have to do anything

but we are aware of the neck issue and I always tell who ever is with my sons

for anything about the neck issue. If you are worried about the surgery just

tell the doctors to be aware of the neck issue and your son may have it. They

will take precautions for it. I hope you son is not going in for anything

serious.

Take Care

Caroline Mom to Neil and

eighteen years old identical twins who both have DS and we live in BC

From: Multiples-DS

[mailto: Multiples-DS

] On Behalf Of Cecilia Warner

Sent: February-22-12 9:48 AM

To: Multiples-DS

Subject: AAI

Recommendations

Does anyone

know the current recommendations for atlantoaxial instability x-rays for kids

with DS? My son is 7 and had an AAI x-ray when he was 5. He is

going to have surgery and I want to make sure that I am up to speed on

everything AAI.

Cecilia Warner

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[Guest guest]

We live in the Dallas area and my kids are doing great. Medically, they are in excellent health. Developmentally, we still struggle with bathroom issues and are largely non-verbal. We read and write and do math, but it's all very quiet. The surgeries I mentioned earlier were mostly all for minor things, teeth pulling, ear tubes and the like.

Thank you for asking Caroline.

To: Multiples-DS Sent: Thursday, February 23, 2012 1:01 PMSubject: RE: AAI Recommendations (Mike Grossman)

HI Mike

I was wondering where you live and how are your sons doing?

Thanks Caroline

From: Multiples-DS [mailto: Multiples-DS ] On Behalf Of Mike GrossmanSent: February-23-12 7:37 AMTo: Multiples-DS Subject: Re: AAI Recommendations

Hi Cecilia,

I agree with everything that Caroline said and want to also add this. When you speak to the anesthesiologist before the surgery, and you will have an opportunity to do this, make him/her aware of your son's neck status. Unless there are serious issues with the neck, he should tell you that he always assumes there are the potential for neck issues in kids with DS. If he doesn't say something like that, I would be concerned. We have been through 2 or 3 different gas-passers and they have always said this to us.

If you are more concerned, or if there are neck issues to for him to be aware of, contact your surgeon and find out who the anesthesiologist is going to be and then contact him directly to prepare him for the situation.

Mike Grossman

Sam and , 15 year-old twins with DS

To: Multiples-DS Sent: Wednesday, February 22, 2012 10:19 PMSubject: RE: AAI Recommendations

HI Cecilia

Did the x-ray show any instability in your son neck? My sons had xrays when they were 3 or five and then again at 10 years of age. The first x-ray was negative but the second one showed a small spacing in both my sons’ necks. We did not have to do anything but we are aware of the neck issue and I always tell who ever is with my sons for anything about the neck issue. If you are worried about the surgery just tell the doctors to be aware of the neck issue and your son may have it. They will take precautions for it. I hope you son is not going in for anything serious.

Take Care

Caroline Mom to Neil and eighteen years old identical twins who both have DS and we live in BC

From: Multiples-DS [mailto: Multiples-DS ] On Behalf Of Cecilia WarnerSent: February-22-12 9:48 AMTo: Multiples-DS Subject: AAI Recommendations

Does anyone know the current recommendations for atlantoaxial instability x-rays for kids with DS? My son is 7 and had an AAI x-ray when he was 5. He is going to have surgery and I want to make sure that I am up to speed on everything AAI.

Cecilia Warner

cmw.my3sons@...

size=1 width="100%" noshade color="#a0a0a0" align=center>

No virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1424 / Virus Database: 2113/4826 - Release Date: 02/22/12

size=1 width="100%" noshade color="#a0a0a0" align=center>

No virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1424 / Virus Database: 2113/4826 - Release Date: 02/22/12