New member

[Guest guest]

--- In , " redbigboy " <REMOCLIHP@f...>

wrote:

> I have been on the list for about 3 weeks just reading emails to

get

> a sense of what's discussed. I've been reading Nourishing

Traditions

> and the Maker's Diet; both impressed me with the emphasis on

> fermented foods and animal fat. I have been disabled with lyme

> disease since 1994. I figured while the diet may not cure lyme it

> will certainly help me deal with it. I've started by making chicken

> stock,presoaking grains,have made fermented carrots,daikon and

> cabbage(love them all).

> I did have a few questions. As Dr Price stated that animal fat is

> needed for us to assimlate minerals in foods how much fat does one

> need to consume daily? I was thinking about making kombucha but

> wondered first how beneficial it is and what drawbacks there are to

> it? And finally how long do sprouts last before they will spoil?

>

> By the way I read the posts about Dr mercola saying not to roast

> pumpkin seeds. I am thinking he may have been referring to store

> bought roasted pumpkin seeds. Nourishing Traditions states to roast

> them at the lowest oven temperature which I think is low enough so

> the oils in the seeds are not affected unlike the commercial

process

> used for seeds and nuts that uses temperaturs are that do affect

the

> structure of the oils.

>

> Thanks

>

> Phil

Hi Phil,

are you a member of WAPF? if so, you receive the quarterly Wise

Traditions. there was an article in the last one by Dr. Ron

Schmid...have you heard of him? he wrote the book The True Story of

Milk (and one or two others).

anyway, he's an older man now, i think, and he cured himself of

Lyme's...but it wasn't easy and he stressed in the article that once

you know what foods are bad for you (e.g. white flour or whatever),

that even if you have a taste you can relapse. but he CURED

himself...without antibiotics, using mostly raw milk and raw or

barely cooked meat. raw ground meat is actually quite tasty in the

form of steak tartare which is as easy to make as throwing together a

sandwich...

anyway.

if you join wapf you can probably ask for the edition that contains

that article.

if i can find my copy, i could copy the article for you and mail it

to you. email me and i'll let you know if i find it (i should) and

then you can send me your address.

take care, and best to you.

laura

[Guest guest]

> New Member

>

>

>I have been on the list for about 3 weeks just reading emails to get

>a sense of what's discussed. I've been reading Nourishing Traditions

>and the Maker's Diet; both impressed me with the emphasis on

>fermented foods and animal fat. I have been disabled with lyme

>disease since 1994. I figured while the diet may not cure lyme it

>will certainly help me deal with it.

Actually, you might be surprised. Dr. Ron, a naturopath who's an honorary

board member of the WAPF and has written a book on Dr. Price's work, also

has lyme, which he's essentially " cured " (no more symptoms) with diet and

urine therapy. I believe his diet is mainly raw meat and milk with a little

kimchi on the side. He writes about his experience in recovering from lyme

here:

Diet and Recovery from Chronic Disease

http://www.westonaprice.org/healthissues/chronicdisease.html

He does phone consults, FWIW. (http://www.drrons.com)

Best of luck! :-)

Suze Fisher

Lapdog Design, Inc.

Web Design & Development

http://members.bellatlantic.net/~vze3shjg

Weston A. Price Foundation Chapter Leader, Mid Coast Maine

http://www.westonaprice.org

----------------------------

“The diet-heart idea (the idea that saturated fats and cholesterol cause

heart disease) is the greatest scientific deception of our times.” --

Mann, MD, former Professor of Medicine and Biochemistry at Vanderbilt

University, Tennessee; heart disease researcher.

The International Network of Cholesterol Skeptics

<http://www.thincs.org>

----------------------------

[Guest guest]

Wellcome ! You came to the right place.Everyone here knows what

it is like to be in pain and to be frustrated.This is the place to

vent,ask questions, whine(I've been good at that one. lol)or anything

to need with very loving and caring people going through the pain and

suffering of RA.I am new to this too so just hang on tight and we will

learn together.I don't like prednisone either.I 'm not on it right now

but probably not for long.I have the most problems with my knees and

elbows.Best of luck and hope you enjoy being here as much as I have.-

Tammy---- In , " bree4444 " <bree4444@y...>

wrote:

> Hi. My name is and I have recently been diagnosed with RA.

> Those who already have this disease know that people come out of the

> woodwork with advice- very well intentioned advice. I just want to

> talk about this sometimes with those who know what I'm dealing with.

> There is so much to read and learn about. I am overloaded with

> information. Currently I am following my Dr.'s orders and the meds

> help; they have so many side effects though, but what can you do?

The

> flare-ups are worse! My eye is involved also - Scleritis. The eye is

> giving me the most trouble right now. Don't want to take Prednisone

> too long. Anyway, I guess I post this and then???

>

> Thanks,

>

> Bree

[Guest guest]

Welcome . Do you prefer to be called Bree? I know all about

well intended advise. Most people are clueless and we

just have to appreciate that they care enough to try to help.

I have 2 family members that have eye problems, both with scleritis-

my mom has scleritis as well as eye fluids that leak behind her

eye for some unknown reason. My BIL was prescribed very high doses of

prednisone, which resulted in necrosis of his hip bones.

My mom reacted to prednisone thank the good Lord, so she didn't take

it. Instead they injected steroids in her eye. I know it sounds

awful, but she said she didn't even feel it. My BIL also had the

injections, which allowed him to get off the prednisone (to bad he

didn't go this route first and save his hips as well as saved himself

from about 60 extra pounds of weight). Both went to ophthalmologists.

Do you see an ophthalmologist?

a

On Sep 22, 2005, at 2:28 PM, bree4444 wrote:

> Hi. My name is and I have recently been diagnosed with RA.

> Those who already have this disease know that people come out of the

> woodwork with advice- very well intentioned advice. I just want to

> talk about this sometimes with those who know what I'm dealing with.

> There is so much to read and learn about. I am overloaded with

> information. Currently I am following my Dr.'s orders and the meds

> help; they have so many side effects though, but what can you do? The

> flare-ups are worse! My eye is involved also - Scleritis. The eye is

> giving me the most trouble right now. Don't want to take Prednisone

> too long. Anyway, I guess I post this and then???

>

> Thanks,

>

> Bree

>

>

>

>

>

>

>

>

[Guest guest]

Tammy,

Thanks for your email. I am so surprised by all the emails I received. Now I

don't know what to do with all of them! Do you have mail come to your inbox or

get messages online?

It's funny the meds haved helped my joints a lot. People say, " Now that things

are better, you could try natural methods to control the disease. " I don't

think I can deal with those hot joints again on methods that have worked. I

take 20mg of Methotrexate each Friday, Naprosen 500mg two times a day, and

currently 5mg of Predisone each day. That's fairly new though. My eye

(scleritis) wasn't getting better like my feet, knees and hand. I am a bit

concerned about all the side effects, but the disease sure has some bad side

effects too. I guess it's pick your poison.

What's your regimen? If you don't mind talking about it.

I really cannot answer all the emails. So I may change the setting to view on

the web. But my best email address is bree444@... if you would like to

chat.

Thanks!

clarabell4ever2000 <clarabell4ever2000@...> wrote:

Wellcome ! You came to the right place.Everyone here knows what

it is like to be in pain and to be frustrated.This is the place to

vent,ask questions, whine(I've been good at that one. lol)or anything

to need with very loving and caring people going through the pain and

suffering of RA.I am new to this too so just hang on tight and we will

learn together.I don't like prednisone either.I 'm not on it right now

but probably not for long.I have the most problems with my knees and

elbows.Best of luck and hope you enjoy being here as much as I have.-

Tammy---- In , " bree4444 " <bree4444@y...>

wrote:

> Hi. My name is and I have recently been diagnosed with RA.

> Those who already have this disease know that people come out of the

> woodwork with advice- very well intentioned advice. I just want to

> talk about this sometimes with those who know what I'm dealing with.

> There is so much to read and learn about. I am overloaded with

> information. Currently I am following my Dr.'s orders and the meds

> help; they have so many side effects though, but what can you do?

The

> flare-ups are worse! My eye is involved also - Scleritis. The eye is

> giving me the most trouble right now. Don't want to take Prednisone

> too long. Anyway, I guess I post this and then???

>

> Thanks,

>

> Bree

[Guest guest]

a,

I have got to talk with you , but am on the run right now. Can we email at

bree444@... ? I recieved so many emails, I am overwhelmed! What should

I do?

Thanks so much for yoru email!

bree

a <a54@...> wrote:

Welcome . Do you prefer to be called Bree? I know all about

well intended advise. Most people are clueless and we

just have to appreciate that they care enough to try to help.

I have 2 family members that have eye problems, both with scleritis-

my mom has scleritis as well as eye fluids that leak behind her

eye for some unknown reason. My BIL was prescribed very high doses of

prednisone, which resulted in necrosis of his hip bones.

My mom reacted to prednisone thank the good Lord, so she didn't take

it. Instead they injected steroids in her eye. I know it sounds

awful, but she said she didn't even feel it. My BIL also had the

injections, which allowed him to get off the prednisone (to bad he

didn't go this route first and save his hips as well as saved himself

from about 60 extra pounds of weight). Both went to ophthalmologists.

Do you see an ophthalmologist?

a

On Sep 22, 2005, at 2:28 PM, bree4444 wrote:

> Hi. My name is and I have recently been diagnosed with RA.

> Those who already have this disease know that people come out of the

> woodwork with advice- very well intentioned advice. I just want to

> talk about this sometimes with those who know what I'm dealing with.

> There is so much to read and learn about. I am overloaded with

> information. Currently I am following my Dr.'s orders and the meds

> help; they have so many side effects though, but what can you do? The

> flare-ups are worse! My eye is involved also - Scleritis. The eye is

> giving me the most trouble right now. Don't want to take Prednisone

> too long. Anyway, I guess I post this and then???

>

> Thanks,

>

> Bree

>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

I am a nurse also, and am finding work to be harder and harder. I

am sorry you have had to stop working. I fear that day. I do not

have a diagnosis yet on my 'inflammatory arthritis' but they have put

me on prednisone and methotrexate with some relief. I wish I could

offer some helpful suggestions but I'm still looking for myself. I'm

sure some of the others here will have some good advice.

[Guest guest]

>

> Hi ,

> I am a nurse also, and am finding work to be harder and harder. I

> am sorry you have had to stop working. I fear that day. I do not

> have a diagnosis yet on my 'inflammatory arthritis' but they have put

> me on prednisone and methotrexate with some relief. I wish I could

> offer some helpful suggestions but I'm still looking for myself. I'm

> sure some of the others here will have some good advice.

>

>

>

hi its lynn i havent been able to work for 4 years noe and i am only 47 now.the

illness didn'

let me make a choice it decided for me-once i had trouble remembering things and

difficulty

walking it was over-i would love to work cause it seems like such a waste of 20

years of

knowledge-but no one could rely on me at this point as i spend many days in bed

from the

pain.when and if the time comes you will deal with it....and remember everyone

is

different ..you may work for many years to come....what kind of nursing do you

do?

lynn

[Guest guest]

Hi ,

Thanks for taking the time to mail me.

I left work 3 weeks and 5 days ago, and yes I am finding it really hard to

adjust, the support or lack of it from my employers has been the most

dissapointing and at the moment is hurting me the most. I hurt my wrist moving a

client across the bed on my last shift( I have worked with this MND client for

four years doing 70+ hours per fortnight) and my GP said enough is enough that I

was crazy continuing to do such heavy manual work. My employers offered no

support or help in the way of adjusting my workload so I could continue on in my

job. The hardest part is not making the income any more my husband lost his job

in June so the last thing we needed is for me to have to pull out while he is

not working as well, so I am feeling quiet worthless at the moment in many ways.

Do take care of yourself at work and remember the damage done to yourself

today has to be lived with for the rest of your life .Ii hope you have great

employers who will support you as time goes on. for me the biggest mistake I

made was to tell them of my RA in the first place.

<reitzj@...> wrote:

Hi ,

I am a nurse also, and am finding work to be harder and harder. I

am sorry you have had to stop working. I fear that day. I do not

have a diagnosis yet on my 'inflammatory arthritis' but they have put

me on prednisone and methotrexate with some relief. I wish I could

offer some helpful suggestions but I'm still looking for myself. I'm

sure some of the others here will have some good advice.

[Guest guest]

I don't see how you do keep up that pace, and at your age, too. I can

say that, because I'm 66 and retired, and age can also slow you down,

although it apparently hasn't slowed you down, LOL. At least can't you

sit down and play the guitar? Would anyone care if you were sitting

instead of standing?

I would say you are doing very well, and maybe don't need that

supplement. I don't know anything about it. Just let us know what

you're taking to have the energy to do all that you do, LOL.

Sue

On Saturday, January 28, 2006, at 10:51 PM, Crispin wrote:

>

> I still work full time as a librarian, have a small, home-based

> business I run with my husband's help, plus we play in a chi

> band. It is

> getting harder and harder to keep up the pace and sometimes standing

> for an hour at a time playing a guitar is very painful. I am

> desperately

> fighting giving-in to the pain. I'm sure many, if not most, of you

> have gone through that. I am taking Voltaren and it helps but

> certainly does

> not eradicate the discomfort.

[Guest guest]

welcome :

sorry to hear of your diagnosis but I have heard of ankylosing spondylosis as

I 34 year old friend of mine was just diagnosed with that and I have been

reading up on it...........what other meds are you besides Voltaren??? Do you

take something for pain?

I am looking forward to hearing more about you..............the mariachi band

sounds interesting and fun but I am sure the standing is hard on

you............

Gentle Hugs

Pat in so Ore

Crispin <bcrispin@...> wrote:

Hello,

I would like to introduce myself. My name is and I live in Oxnard,

California, with my husband and 2 beagles. I just celebrated my

64th birthday. I was diagnosed with Ankylosing Spondylosis (a rheumatoid

arthrits in the spine) almost 2 years ago. Looking back, I have had

mild, slowly-progressing symptoms for about 25 years but it is only in the past

2 years the symptoms and rate of progression have greatly

increased. I found the article about estrogen deprivation and arthritis

interesting as I went off estrogen RT a little more than 2 years ago.

I have an acquaintance who is trying to sell me a nutritional supplement called

Mangosteen. It is supposed to be good for arthritis, cholesterol

and high blood pressure, all of which I fight. I was wondering if anyone on the

list has any experience with this supplement?

I still work full time as a librarian, have a small, home-based business I run

with my husband's help, plus we play in a chi band. It is

getting harder and harder to keep up the pace and sometimes standing for an hour

at a time playing a guitar is very painful. I am desperately

fighting giving-in to the pain. I'm sure many, if not most, of you have gone

through that. I am taking Voltaren and it helps but certainly does

not eradicate the discomfort.

I am looking forward to reading all your posts and gathering as much information

as I can about my condition and options open to me.

Crispin

[Guest guest]

Welcome . I have an aunt and uncle that live in Oxnard. I have

rheumatoid arthritis and am in my 40's. For the most part it rarely gives

me problems. I have started walking again. I am trying to do 1-2 miles

everyday. Have been doing this since the first of the year. Felt it was

needed to get some weight off. The walking does aggravate my arthritis but

I am being fairly deligent about walking everyday.

Terri

[ ] New Member

> Hello,

> I would like to introduce myself. My name is and I live in Oxnard,

> California, with my husband and 2 beagles. I just celebrated my

> 64th birthday. I was diagnosed with Ankylosing Spondylosis (a rheumatoid

> arthrits in the spine) almost 2 years ago. Looking back, I have had

> mild, slowly-progressing symptoms for about 25 years but it is only in the

> past 2 years the symptoms and rate of progression have greatly

> increased. I found the article about estrogen deprivation and arthritis

> interesting as I went off estrogen RT a little more than 2 years ago.

>

> I have an acquaintance who is trying to sell me a nutritional supplement

> called Mangosteen. It is supposed to be good for arthritis, cholesterol

> and high blood pressure, all of which I fight. I was wondering if anyone

> on the list has any experience with this supplement?

>

> I still work full time as a librarian, have a small, home-based business I

> run with my husband's help, plus we play in a chi band. It is

> getting harder and harder to keep up the pace and sometimes standing for

> an hour at a time playing a guitar is very painful. I am desperately

> fighting giving-in to the pain. I'm sure many, if not most, of you have

> gone through that. I am taking Voltaren and it helps but certainly does

> not eradicate the discomfort.

>

> I am looking forward to reading all your posts and gathering as much

> information as I can about my condition and options open to me.

>

> Crispin

>

>

>

>

>

>

>

[Guest guest]

Hi:

You did fine - this is a wonderful group of very

caring and supportive members, and our moderators keep

us supplied with great information. Most of our

members do have RA, but Fibromyalgia, OA, MS, Lupus,

and other immune system diagnoses are also welcome.

I am 51, wife, and mother of two young adults (I still

think of them as kids lol) 19 and 22, and have been

diagnosed with RA for almost 7 years. I also have OA

and Fibromyalgia. I am on several medications, and

have tried just about everything there is for RA it

seems, but am currently on Enbrel, Methotrexate, Mobic

and Ultracet which seems to be doing well for me.

What do you want to know about RA? Have you been

diagnosed or are still looking for answers? Are you

under the care of a doctor? Are you on any

medications?

Looking forward to getting to know you -

Kathe in CA

--- " missy.1979 " <missy.1979@...> wrote:

> I don't know if I have done this correct, I am

> looking for a group to

> discuss Ra with.

>

>

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

Yep, you do. Just ask any questions --of course, not about oil wells-- and

someone will be able to give you some good advice.

" missy.1979 " <missy.1979@...> wrote:

I don't know if I have done this correct, I am looking for a group to

discuss Ra with.

[Guest guest]

> Debbie,

>

> Many of us here have FM, but in many cases it is secondary to RA.

>

How do you know if you have RA (which I do) AND FM?

And what drugs are used to treat FM? What do they do?

Thanks,

Pris

[Guest guest]

Hi Debbie. Having FM doesn't mean you will get RA or Lupus. There is

a relationship between IC and Fm:

The relationship between fibromyalgia and interstitial cystitis.

http://www.fibromyalgiasupport.com/library/showarticle.cfm/ID/1139

Another site with info on FM:

http://arthritissupport.info/Fibromyalgia.html

a

On May 8, 2006, at 4:47 PM, Debra Lohf wrote:

> Hello all,

>

> Thanks for letting me join your group. I have had fibromyalgia

> since 1997 and see a rheumotogist. As of now I don't have lupus or

> rheumatoid arthritis. Could I get one of those some day? Other

> associated problems I have are interstitial cystitis and irritable

> bowel syndrome.

>

> The meds I take for fibromyalgia are Lodine 500mg twice day,

> elavil 20mg at bedtime, carisprodal (soma) nightly and as needed,

> ultram 50mg as needed and Darvocet N100 as needed. I also take yoga

> classed and exercise regularly.

>

> Since I have thyroid cancer I belong to the thyca support group.

> People there often have questions about fibromyalgia. I try to help

> them.

>

> Debbie L

>

>

>

>

[Guest guest]

Ok, thanks again a!

I joined this group because it said it includes FM.

Debbie L

-- In , a Papola <a54@...> wrote:

>

> Hi Debbie. Having FM doesn't mean you will get RA or Lupus. There

is

> a relationship between IC and Fm:

>

>

> The relationship between fibromyalgia and interstitial cystitis.

> http://www.fibromyalgiasupport.com/library/showarticle.cfm/ID/1139

>

> Another site with info on FM:

>

> http://arthritissupport.info/Fibromyalgia.html

>

> a

>

>

> On May 8, 2006, at 4:47 PM, Debra Lohf wrote:

>

> > Hello all,

> >

> > Thanks for letting me join your group. I have had

fibromyalgia

> > since 1997 and see a rheumotogist. As of now I don't have lupus

or

> > rheumatoid arthritis. Could I get one of those some day? Other

> > associated problems I have are interstitial cystitis and

irritable

> > bowel syndrome.

> >

> > The meds I take for fibromyalgia are Lodine 500mg twice day,

> > elavil 20mg at bedtime, carisprodal (soma) nightly and as

needed,

> > ultram 50mg as needed and Darvocet N100 as needed. I also take

yoga

> > classed and exercise regularly.

> >

> > Since I have thyroid cancer I belong to the thyca support

group.

> > People there often have questions about fibromyalgia. I try to

help

> > them.

> >

> > Debbie L

> >

> >

> >

> >

[Guest guest]

Debbie,

Many of us here have FM, but in many cases it is secondary to RA.

a

On May 8, 2006, at 9:29 PM, Debbie Lohf wrote:

> Ok, thanks again a!

> I joined this group because it said it includes FM.

>

> Debbie L

>

>

> -- In , a Papola <a54@...> wrote:

> >

> > Hi Debbie. Having FM doesn't mean you will get RA or Lupus. There

> is

> > a relationship between IC and Fm:

> >

> >

> > The relationship between fibromyalgia and interstitial cystitis.

> > http://www.fibromyalgiasupport.com/library/showarticle.cfm/ID/1139

> >

> > Another site with info on FM:

> >

> > http://arthritissupport.info/Fibromyalgia.html

> >

> > a

> >

> >

> > On May 8, 2006, at 4:47 PM, Debra Lohf wrote:

> >

> > > Hello all,

> > >

> > > Thanks for letting me join your group. I have had

> fibromyalgia

> > > since 1997 and see a rheumotogist. As of now I don't have lupus

> or

> > > rheumatoid arthritis. Could I get one of those some day? Other

> > > associated problems I have are interstitial cystitis and

> irritable

> > > bowel syndrome.

> > >

> > > The meds I take for fibromyalgia are Lodine 500mg twice day,

> > > elavil 20mg at bedtime, carisprodal (soma) nightly and as

> needed,

> > > ultram 50mg as needed and Darvocet N100 as needed. I also take

> yoga

> > > classed and exercise regularly.

> > >

> > > Since I have thyroid cancer I belong to the thyca support

> group.

> > > People there often have questions about fibromyalgia. I try to

> help

> > > them.

> > >

> > > Debbie L

> > >

> > >

> > >

> > >

[Guest guest]

Pris,

FM symptoms are muscle pain and tender spot pain, whereas RA is joint

pain.

There are no lab tests for FM. The doctor goes by symptoms and tender

point count.

You can find more in depth info on our website:

http://arthritissupport.info/Fibromyalgia.html

a

On May 8, 2006, at 10:19 PM, NELLIESTAR@... wrote:

>

>

>

>

> > Debbie,

> >

> > Many of us here have FM, but in many cases it is secondary to RA.

> >

>

> How do you know if you have RA (which I do) AND FM?

> And what drugs are used to treat FM? What do they do?

> Thanks,

> Pris

>

>

>

>

>

>

[Guest guest]

Hi a,

Actually I was told I have FM as early as 1993 but didn't see the

rheum till 97. I have the " Fibromyalgia Help Book " recommended by my

rheum. I probably developed FM as a consequence to my spinal surgery.

My biggest concern is the impact my cancer treatment will have on

FM. When I was hypothyroid last year my muscles really ached. I am

due for another body scan this summer.

Debbie L

-- In , a Papola <a54@...> wrote:

>

> Debbie,

>

> Many of us here have FM, but in many cases it is secondary to RA.

>

> a

>

>

>

>

> On May 8, 2006, at 9:29 PM, Debbie Lohf wrote:

>

> > Ok, thanks again a!

> > I joined this group because it said it includes FM.

> >

> > Debbie L

> >

> >

> > -- In , a Papola <a54@> wrote:

> > >

> > > Hi Debbie. Having FM doesn't mean you will get RA or Lupus.

There

> > is

> > > a relationship between IC and Fm:

> > >

> > >

> > > The relationship between fibromyalgia and interstitial

cystitis.

> > >

http://www.fibromyalgiasupport.com/library/showarticle.cfm/ID/1139

> > >

> > > Another site with info on FM:

> > >

> > > http://arthritissupport.info/Fibromyalgia.html

> > >

> > > a

> > >

> > >

> > > On May 8, 2006, at 4:47 PM, Debra Lohf wrote:

> > >

> > > > Hello all,

> > > >

> > > > Thanks for letting me join your group. I have had

> > fibromyalgia

> > > > since 1997 and see a rheumotogist. As of now I don't have

lupus

> > or

> > > > rheumatoid arthritis. Could I get one of those some day?

Other

> > > > associated problems I have are interstitial cystitis and

> > irritable

> > > > bowel syndrome.

> > > >

> > > > The meds I take for fibromyalgia are Lodine 500mg twice

day,

> > > > elavil 20mg at bedtime, carisprodal (soma) nightly and as

> > needed,

> > > > ultram 50mg as needed and Darvocet N100 as needed. I also

take

> > yoga

> > > > classed and exercise regularly.

> > > >

> > > > Since I have thyroid cancer I belong to the thyca support

> > group.

> > > > People there often have questions about fibromyalgia. I try

to

> > help

> > > > them.

> > > >

> > > > Debbie L

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi :

Welcome to the group. We have wonderful supportive

people here, and lots of great information. I am

sorry to hear that the glucosomine you had been taking

for so long has been of no benefit to you, and might

also have brought on your cancer. That is so sad,

when we just try to find a way to control one disease

and another comes in as a by-product of what you were

using. I have tried that too, and it did nothing for

me either.

I am 52, married 23 years, with two kids, 22 and 19.

We live in southern california on a small farm with

horses, dogs, and various fowl. It's a lot of work,

but they get me up in the morning. I am currently

taking Methotrexate, Enbrel, Mobic and Ultram for my

RA, and take other meds for fibromyalgia. I have been

dx with RA for 8 years now. I am so sorry to hear

that your RA is causing such an impact on your quality

of life. I have had to face some compromises, and

have had to give some things up that I used to enjoy,

but, by and large, I am doing well on the medications

I am on now.

Have you ever been on any DMARDs like Methotrexate,

Arava or Plaquenil. NSAIDs are not going to control

the disease process of RA, just mask it. Do you have

joint deformities? I was wondering if the hip saddle

is your name for the sacroiliac joints? I have

trouble with that area too, and I like the idea of

calling it a hip saddle, instead of SI, because I am a

rider. Easier to say too.

Anyway, just wanted to welcome you to the group. Hope

to hear more from you - we are very chatty, and pretty

much any question you might want to ask can be

answered amongst us. Are you on any medical programs

that might help you to get medication for your RA?

We've talked a lot about scooters lately, maybe

something like that would help you to get out and

about easier. Take care -

Kathe in CA

>

>

>

>

>

__________________________________________________

[Guest guest]

do you see a Rheumotologist if not go to one as soon as you can

The regular family dr doesnt provide the same medication and knowledge to you

that the Rheumotoligist has to offer you

Have the best day possible

Bonnie Sue

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

Hi ;

I hope you find as much solace in " il faut d'abord durer " as Hemingway did.

Sorry to read about all your trouble with RA. Unfortunately, we are all in the

same boat ... some more in that boat than others. Welcome to the group, this is

the place to vent and it feels good to know that other understand what you are

going through. Hang in there and write often.

Take care.

Kennedy <ikennedy2@...> wrote:

Hi all.

I am a 75yo male and have had RA for a while but it is progressing to the point

where it is greatly affecting my QOL. It is in my neck (where it started),

shoulders, hip saddle, hands and feet now. It is becoming a severe aggravation

in the morning getting out of bed but seems to abate with activity. Any heavy

exertion, lifting, getting up and down from the floor, etc, is almost

impossible.

I take 200mg of Celebrex twice a day for the pain but no other n-saids. I have

found that the otc meds have little efficiacy for me. I wasted a lot of money on

Glucosamine/Chondroitin over the years and no longer take it. Mostly because it

has been shown to stimulate tumor activity and I have PCa. I did not realize it

was not helping me until I stopped taking it and nothing happened. :-)

Looking forward to meeting all of you.

2463

" il faut d'abord durer " Hemingway

[Guest guest]

--- In , " Kennedy " <ikennedy2@...>

wrote:

>

> Hi all.

>

> I am a 75yo male and have had RA for a while but it is progressing to

the point where it is greatly affecting my QOL. It is in my neck (where

it started), shoulders, hip saddle, hands and feet now. It is becoming a

severe aggravation in the morning getting out of bed but seems to abate

with activity. Any heavy exertion, lifting, getting up and down from the

floor, etc, is almost impossible.

>

> I take 200mg of Celebrex twice a day for the pain but no other

n-saids. I have found that the otc meds have little efficiacy for me. I

wasted a lot of money on Glucosamine/Chondroitin over the years and no

longer take it. Mostly because it has been shown to stimulate tumor

activity and I have PCa. I did not realize it was not helping me until I

stopped taking it and nothing happened. :-)

>

> Looking forward to meeting all of you.

>

>

> 2463

> " il faut d'abord durer " Hemingway

Welcome to the group

Everyone here is so nice and helpful you will see that alot of what you

have going on with you we all have going on with us. again welcome to

the group

Janet IN IL

>

[Guest guest]

Hi .

I have used the Hemingway quote for a long time as part of my signature. You

are the first person to recognize it's signifigance. To me it means

surviving until I finish raising my adopted grandson. He is 15 and has some

special needs, Diabetes and a GI problem, but he will be a junior in high

school in the fall. We, my wife and I, also care for two special needs

foster children. A girl, age 9, with Cerebal Palsy and a boy, age 13, with

Autism. I help caring for the kids and do the grocery shopping and cooking

and what home maintenance I can still do. I do not have a lot of time to be

running to doctors with my incurable ailments. :-) One day at a time is what

works best for me.

2463

" il faut d'abord durer " Hemingway

Re: [ ] New member

> Hi ;

> I hope you find as much solace in " il faut d'abord durer " as Hemingway

> did.

>

> Sorry to read about all your trouble with RA. Unfortunately, we are all

> in the same boat ... some more in that boat than others. Welcome to the

> group, this is the place to vent and it feels good to know that other

> understand what you are going through. Hang in there and write often.

>

> Take care.

>

>

> Kennedy <ikennedy2@...> wrote:

> Hi all.

>

> I am a 75yo male and have had RA for a while but it is progressing to the

> point where it is greatly affecting my QOL. It is in my neck (where it

> started), shoulders, hip saddle, hands and feet now. It is becoming a

> severe aggravation in the morning getting out of bed but seems to abate

> with activity. Any heavy exertion, lifting, getting up and down from the

> floor, etc, is almost impossible.

>

> I take 200mg of Celebrex twice a day for the pain but no other n-saids. I

> have found that the otc meds have little efficiacy for me. I wasted a lot

> of money on Glucosamine/Chondroitin over the years and no longer take it.

> Mostly because it has been shown to stimulate tumor activity and I have

> PCa. I did not realize it was not helping me until I stopped taking it and

> nothing happened. :-)

>

> Looking forward to meeting all of you.

>

>

> 2463

> " il faut d'abord durer " Hemingway

>

>

>