New member

[Guest guest]

Eileen

I too was struck in awe when I first viewed Dr G's videos because of

the family history connection. It really all came together.

Check out the FILES section. There used to be quite a bit of info

there to answer lots of questions.

>

> Hello everyone,

>

> I happened upon this group page while searching for info on Nids

> through . Maybe you can give me some advice on where to

turn,

> because I have no idea what to do or where to go for help.

>

> Just yesterday, I went to the local bookstore, looking for the

> latest book on autism. I started to skim through this book, which

I

> dont remember the name of, and there was a section on what the

> possible causes of autism could be. In the section under neuro

> immune dysfunction sydrome, which I was just passing over, I found

> information that almost made me fall on the floor. It said that

in

> some children it is thought that this syndrome could be the cause,

> and it is seen in families where one parent had CFS, an older sib

> has ADD, and the younger sib, ASD. It was like reading about my

> family. My husband was diagnosed with CFS about 8 years ago (my

> autistic son is 8), shortly after he was born. My oldest son was

> diagnosed ADHD 10 years ago at age 5. The pattern fit my family

to

> a TEE!!! I could not believe my eyes. Last night I found some

info

> on the website and at neuroimmunedr.com, but couldnt find out

> how to start the process into investigating this syndrome as a

> cause. I live in New York, but am willing to travel wherever I

need

> to to help my son. Hes a sweet & loving 8 year old boy, who with

> help has come a very long way. But if there is more that can be

> done, I will do anything necessary for him. Please help me help

him

> and point me in the right direction. I would appreciate it sooo

> much! Thank you, and I apologize for being so lengthy.

>

> Eileen M.

>

[Guest guest]

Margaret

My son was once overly healthy like you mention. Through blood

work, we learned his immune system was over active. It was

constantly working on HIGH power trying to fight infection so my son

never got " normal " sick. As Dr G described in our initial visit,

the immune system cannot fight off something so it just starts

firing off at everything.

Hope this helps

>

> Hi

>

> I'm a newbie to the list and I have some questions. First, have

any of Dr

> Goldberg's

> findings been published in a peer reviewed journal? If so, please

could

> someone

> let me know where? (DH works at Stanford and has access to the

medical

> library).

>

> Secondly, my DD is SO darn healthy I wonder how she can have a

dysfunctional

> immune system! Other than the occasional cold she just never gets

sick!

> Explain, please!

>

> Margaret

> San CA

>

>

>

[Guest guest]

In a message dated 11/24/06 7:48:54 PM, betnden@... writes:

> Your only choice of the VA is a real bummer.

>

I would give anything for VA.

We have no insurance.

It amazes me when people complain about who is paying their bills!

Please think about it if you had no help. Not a penny!

Do you realize the prices are higher for those who have no insurance, for the

same services?

The doctors lower their prices, as per agreement, for the insurance

companies. That way they get on " the list. "

So the poor person with no insurance pays more.

(And, that may be their own fault in some cases!)

But I am amazed about the complaining of people who only have to pay pennies

on the dollar.

I just have to react.

Have a pain free night,

Pris

[Guest guest]

Jo, I had almost the same introduction to RA when I was 46 years old. I had

a bad case of the flu during the Christmas holidays in 1989, preparing for a

seminar for all my field reps worldwide, and couldn't take the time off to

go to the doctor. It finally went away and I thought that was it. Little did

I know, my body was working in silence. In February, I awoke one morning

like you, except not as severe. My doctor was super, and diagnosed me

without tests and sent me to a Rheumatologist after about 6 months of

treatments from him. I did have an opportunity to go to a substitute doctor

that told me I wasn't disabled without even looking at me, and I had been on

SSD for more than 2 years then! This shows that doctors can be morons, too.

I also was bed-ridden for more than 6 months at a time and otherwise

house-bound for more than 2 years, and even had to be hand-fed sometimes.

That was my worst time. I think the worst is past for me, I hope, and I can

have somewhat of a 'normal' life now. All I have right now is Medicare and

SSD, and my wife of 42 years has nothing. Until lately, we've been blessed

that she had no really bad problems. She was slipping into a Diabetic Coma

one morning a few months ago and I had to call the Paramedics to get her off

the floor. The hospital sent a bill for over $6,000, the doctor was more

than $1700, and the ambulance that we have a membership in sent us a bill

for $500. I thought our membership covered our bill, so I have to get with

them and do what I can.

I did have a Quack for a Rheumy for a couple of years that almost put me in

bed again, but I went back to my original Rheumy and I'm in better shape

overall than I was since about 1992. I know this disease is NOT in our

heads. You are in an unfortunate position without having many choices for

medical treatment, very much the same as my wife, so we can certainly

relate. Your only choice of the VA is a real bummer. I can't really help but

I can sympathize with you and pray for you. My opinion is that you are being

abused by the 'system' and unfortunately, you can't do much about it, from

what I've seen. Keep trying, it's bound to turn around for you, it has to.

Keep looking for a good doctor, they're out there.

You came to the right place for support, and maybe more. You should hear a

lot from a number of us. You may be surprised.

Dennis in Eastexas

" It's not Rocket Surgery "

[ ] New member

> My name is Jo and I am 42, married, no children.

> I was dx with RA in 1998. I had the flu and several days after recovering

> from it I awoke to terrible pain, every joint, literally, was swollen to

> the size of golf balls and fire red, even the bottoms of my feet were

> swollen. I could not walk. My fever was up to over 102. My husband took

> me to the ER and the first thing they said was does she have RA? They did

> many tests and said it was viral arthritis brought on by the influenza. I

> was in the ER 3 times, admitted once and bed ridden for 6 weeks and it

> took roughly 4 months for all the swelling to go down. They had me on

> steroids and other meds I cant remember off the top of my head and of

> course pain pills.

>

> As far as they told me I would never have any more problems despite the DX

> of RA. My joints began to become increasingly more painful and would

> swell, becoming very red and tender over the years, many times so bad I

> would just lay and cry, trying heating pads to help and took lots of

> motrin which didn't help.

>

> I said something 3 years ago to my doctor at the VA and he did an RF , Sed

> Rate, and ANA, which came back positive. He said yes it is RA and sent me

> to the rheumatologist at the Indianapolis VA to get treatment, but the

> docs there only did more blood work, which was pos and more x-rays and

> then did nothing. The VA does my blood work every 6 months and it is

> always the same and they never do anything for me. I cant even get

> anything for the pain.

> I use ultram for a back injury, that is my disability from the Air Force,

> which doesn't do much if anything for the RA when I have what I call an

> episode.

>

> I went to a private doctor and he said he disagreed with both of the DX

> and that he doesn't treat lab results and then said he needed more labs

> done. He charged me $500 and told me it was all in my head! I didn't have

> deformed joints so it cant be RA. I got those records and found that my

> private civilian doctor wrote a note saying that it was not RA and that I

> have depression and it is all in my head.

>

> Now my finger joints are becoming deformed, I am sick most of the time,

> and spend much of the morning just working through the pain and stiffness

> so I can get moving.

>

> I am frustrated. I can not get any doctor to treat me. I have read the

> book Living with RA by Hopkins Univ. and have educated myself on this

> disease. We have no insurance and I must rely on the VA system mostly,

> which is terrible to say the least. I am a disabled veteran.

>

> Hope to find some support on this list.

> phine Askren

[Guest guest]

phine,

Hi. Welcome! You will find understanding and friends here. Sorry to hear about

all you are going through.Your docotor's sound whacked to me. It sounds like you

have RA without a doubt! And I'm not a Doctor! It's rediculous that you have to

deal with this kind of treatment or lack thereof. Can you ask to see another

Dr.? I assume it's limited. Can you get insurance and then go see a specialist?

I know health insurance is costly, but it sounds like you need it. Are you still

taking the Ultram? If so does it help and how much do you take?

I'm also " fond " of the heating pad. I usually go through 2 a year.

Well, please keep in touch and I hope you get relief soon. :-)

in CA

tjaskren <tjaskren@...> wrote:

My name is Jo and I am 42, married, no children.

I was dx with RA in 1998. I had the flu and several days after recovering from

it I awoke to terrible pain, every joint, literally, was swollen to the size of

golf balls and fire red, even the bottoms of my feet were swollen. I could not

walk. My fever was up to over 102. My husband took me to the ER and the first

thing they said was does she have RA? They did many tests and said it was viral

arthritis brought on by the influenza. I was in the ER 3 times, admitted once

and bed ridden for 6 weeks and it took roughly 4 months for all the swelling to

go down. They had me on steroids and other meds I cant remember off the top of

my head and of course pain pills.

As far as they told me I would never have any more problems despite the DX of

RA. My joints began to become increasingly more painful and would swell,

becoming very red and tender over the years, many times so bad I would just lay

and cry, trying heating pads to help and took lots of motrin which didn't help.

I said something 3 years ago to my doctor at the VA and he did an RF , Sed Rate,

and ANA, which came back positive. He said yes it is RA and sent me to the

rheumatologist at the Indianapolis VA to get treatment, but the docs there only

did more blood work, which was pos and more x-rays and then did nothing. The VA

does my blood work every 6 months and it is always the same and they never do

anything for me. I cant even get anything for the pain.

I use ultram for a back injury, that is my disability from the Air Force, which

doesn't do much if anything for the RA when I have what I call an episode.

I went to a private doctor and he said he disagreed with both of the DX and that

he doesn't treat lab results and then said he needed more labs done. He charged

me $500 and told me it was all in my head! I didn't have deformed joints so it

cant be RA. I got those records and found that my private civilian doctor wrote

a note saying that it was not RA and that I have depression and it is all in my

head.

Now my finger joints are becoming deformed, I am sick most of the time, and

spend much of the morning just working through the pain and stiffness so I can

get moving.

I am frustrated. I can not get any doctor to treat me. I have read the book

Living with RA by Hopkins Univ. and have educated myself on this disease.

We have no insurance and I must rely on the VA system mostly, which is terrible

to say the least. I am a disabled veteran.

Hope to find some support on this list.

phine Askren

[Guest guest]

Hi! Welcome to the group.Sorry to hear you are in so much pain, Iknow how that

feels.I have RA,DJD,Gout, and Diabetes.It costed me my job. But at least I am

lucky I have a great family doctor and he has been fantasic with all this.

Just don't give up and keep praying and fighting till you find someone who will

listen to you,the group is great and alot of good information here.You will like

it but just remember sometimes it might take a while to get and answer, then

you might be bombbarder with replies, but that is because we all have the

samething going on. Again Welcome, and God Bless you with painfree days.

Rhonda

[ ] New member

My name is Jo and I am 42, married, no children.

I was dx with RA in 1998. I had the flu and several days after recovering from

it I awoke to terrible pain, every joint, literally, was swollen to the size of

golf balls and fire red, even the bottoms of my feet were swollen. I could not

walk. My fever was up to over 102. My husband took me to the ER and the first

thing they said was does she have RA? They did many tests and said it was viral

arthritis brought on by the influenza. I was in the ER 3 times, admitted once

and bed ridden for 6 weeks and it took roughly 4 months for all the swelling to

go down. They had me on steroids and other meds I cant remember off the top of

my head and of course pain pills.

As far as they told me I would never have any more problems despite the DX of

RA. My joints began to become increasingly more painful and would swell,

becoming very red and tender over the years, many times so bad I would just lay

and cry, trying heating pads to help and took lots of motrin which didn't help.

I said something 3 years ago to my doctor at the VA and he did an RF , Sed

Rate, and ANA, which came back positive. He said yes it is RA and sent me to the

rheumatologist at the Indianapolis VA to get treatment, but the docs there only

did more blood work, which was pos and more x-rays and then did nothing. The VA

does my blood work every 6 months and it is always the same and they never do

anything for me. I cant even get anything for the pain.

I use ultram for a back injury, that is my disability from the Air Force,

which doesn't do much if anything for the RA when I have what I call an episode.

I went to a private doctor and he said he disagreed with both of the DX and

that he doesn't treat lab results and then said he needed more labs done. He

charged me $500 and told me it was all in my head! I didn't have deformed joints

so it cant be RA. I got those records and found that my private civilian doctor

wrote a note saying that it was not RA and that I have depression and it is all

in my head.

Now my finger joints are becoming deformed, I am sick most of the time, and

spend much of the morning just working through the pain and stiffness so I can

get moving.

I am frustrated. I can not get any doctor to treat me. I have read the book

Living with RA by Hopkins Univ. and have educated myself on this disease.

We have no insurance and I must rely on the VA system mostly, which is terrible

to say the least. I am a disabled veteran.

Hope to find some support on this list.

phine Askren

[Guest guest]

My wife is 60. Her Blue Cross/Blue Shield HMO individual policy costs $649 a

month. It will continue to increase each year until she becomes eligible for

Medicare. It may come to the place where the premium cannot be paid and then

she will join the ranks of the uninsured. Then we will begin to spend what

has taken 60 years of work to accumulate. It will not take long until it is

all gone and she can apply for assistance. Not a happy thought.

" The world breaks everyone, and afterward many are strong at the broken

places. But those it cannot break, it kills. It kills the very good and the

very gentle and the very brave impartially. If you are none of these, you

can be sure that it will kill you too, but there will be no special hurry. "

Ernest Hemingway

Re: [ ] New member

>

> In a message dated 11/24/06 7:48:54 PM, betnden@... writes:

>

>

>> Your only choice of the VA is a real bummer.

>>

>

> I would give anything for VA.

> We have no insurance.

> It amazes me when people complain about who is paying their bills!

> Please think about it if you had no help. Not a penny!

> Do you realize the prices are higher for those who have no insurance, for

> the

> same services?

> The doctors lower their prices, as per agreement, for the insurance

> companies. That way they get on " the list. "

> So the poor person with no insurance pays more.

> (And, that may be their own fault in some cases!)

> But I am amazed about the complaining of people who only have to pay

> pennies

> on the dollar.

> I just have to react.

> Have a pain free night,

> Pris

[Guest guest]

health care, in this richest nation on earth, is a national embarrassment....ive

been without benefits since i was " downsized " four years ago....fortunately ive

been awarded ssd and in 4 months get medicare benefits...but still wonder why u

have to wait 2 years after being dissabled to be eligible for medicare...its not

like u arent sick..anyone who has gone thru the ssd proceedure knows how tough

it is....oh well...hang in there....frank

Kennedy <ikennedy2@...> wrote: My wife is 60. Her Blue

Cross/Blue Shield HMO individual policy costs $649 a

month. It will continue to increase each year until she becomes eligible for

Medicare. It may come to the place where the premium cannot be paid and then

she will join the ranks of the uninsured. Then we will begin to spend what

has taken 60 years of work to accumulate. It will not take long until it is

all gone and she can apply for assistance. Not a happy thought.

" The world breaks everyone, and afterward many are strong at the broken

places. But those it cannot break, it kills. It kills the very good and the

very gentle and the very brave impartially. If you are none of these, you

can be sure that it will kill you too, but there will be no special hurry. "

Ernest Hemingway

Re: [ ] New member

>

> In a message dated 11/24/06 7:48:54 PM, betnden@... writes:

>

>

>> Your only choice of the VA is a real bummer.

>>

>

> I would give anything for VA.

> We have no insurance.

> It amazes me when people complain about who is paying their bills!

> Please think about it if you had no help. Not a penny!

> Do you realize the prices are higher for those who have no insurance, for

> the

> same services?

> The doctors lower their prices, as per agreement, for the insurance

> companies. That way they get on " the list. "

> So the poor person with no insurance pays more.

> (And, that may be their own fault in some cases!)

> But I am amazed about the complaining of people who only have to pay

> pennies

> on the dollar.

> I just have to react.

> Have a pain free night,

> Pris

---------------------------------

Check out the all-new beta - Fire up a more powerful email and get

things done faster.

[Guest guest]

I've had occasion to get the payment info from Medicare before the doctor's

office billed me. In one case, I was billed more than $250 as my 20% of the

bill, and Medicare only paid $18x.xx as their share. So I paid my 20% based

on the Medicare payment equaling 80% of billable costs. The office manager

was mad but accepted my payment, and I was happier when paying it. That's

another way they have to get to us if we're not careful.

Dennis in Eastexas

" It's not Rocket Surgery "

Re: [ ] New member

>

> In a message dated 11/24/06 7:48:54 PM, betnden@... writes:

>

>

>> Your only choice of the VA is a real bummer.

>>

>

> I would give anything for VA.

> We have no insurance.

> It amazes me when people complain about who is paying their bills!

> Please think about it if you had no help. Not a penny!

> Do you realize the prices are higher for those who have no insurance, for

> the

> same services?

> The doctors lower their prices, as per agreement, for the insurance

> companies. That way they get on " the list. "

> So the poor person with no insurance pays more.

> (And, that may be their own fault in some cases!)

> But I am amazed about the complaining of people who only have to pay

> pennies

> on the dollar.

> I just have to react.

> Have a pain free night,

> Pris

[Guest guest]

Thanks for your welcome.

I have asked to see other doctors but I get no where at the VA.

I take ultram for my back. This doesnt really help much with the RA pain to be

honest.

We have 3 heat pads and they get lots of use around here! I have tried cold,

just started last night, at ther ecommendation of someone on the list.

phine Askren

phine,

Hi. Welcome! You will find understanding and friends here. Sorry to hear about

all you are going through.Your docotor's sound whacked to me. It sounds like you

have RA without a doubt! And I'm not a Doctor! It's rediculous that you have to

deal with this kind of treatment or lack thereof. Can you ask to see another

Dr.? I assume it's limited. Can you get insurance and then go see a specialist?

I know health insurance is costly, but it sounds like you need it. Are you still

taking the Ultram? If so does it help and how much do you take?

I'm also " fond " of the heating pad. I usually go through 2 a year.

Well, please keep in touch and I hope you get relief soon. :-)

in CA

tjaskren <tjaskren@...> wrote:

My name is Jo and I am 42, married, no children.

I was dx with RA in 1998. I had the flu and several days after recovering from

it I awoke to terrible pain, every joint, literally, was swollen to the size of

golf balls and fire red, even the bottoms of my feet were swollen. I could not

walk. My fever was up to over 102. My husband took me to the ER and the first

thing they said was does she have RA? They did many tests and said it was viral

arthritis brought on by the influenza. I was in the ER 3 times, admitted once

and bed ridden for 6 weeks and it took roughly 4 months for all the swelling to

go down. They had me on steroids and other meds I cant remember off the top of

my head and of course pain pills.

As far as they told me I would never have any more problems despite the DX of

RA. My joints began to become increasingly more painful and would swell,

becoming very red and tender over the years, many times so bad I would just lay

and cry, trying heating pads to help and took lots of motrin which didn't help.

I said something 3 years ago to my doctor at the VA and he did an RF , Sed

Rate, and ANA, which came back positive. He said yes it is RA and sent me to the

rheumatologist at the Indianapolis VA to get treatment, but the docs there only

did more blood work, which was pos and more x-rays and then did nothing. The VA

does my blood work every 6 months and it is always the same and they never do

anything for me. I cant even get anything for the pain.

I use ultram for a back injury, that is my disability from the Air Force,

which doesn't do much if anything for the RA when I have what I call an episode.

I went to a private doctor and he said he disagreed with both of the DX and

that he doesn't treat lab results and then said he needed more labs done. He

charged me $500 and told me it was all in my head! I didn't have deformed joints

so it cant be RA. I got those records and found that my private civilian doctor

wrote a note saying that it was not RA and that I have depression and it is all

in my head.

Now my finger joints are becoming deformed, I am sick most of the time, and

spend much of the morning just working through the pain and stiffness so I can

get moving.

I am frustrated. I can not get any doctor to treat me. I have read the book

Living with RA by Hopkins Univ. and have educated myself on this disease.

We have no insurance and I must rely on the VA system mostly, which is terrible

to say the least. I am a disabled veteran.

Hope to find some support on this list.

phine Askren

[Guest guest]

,

I've been on Enbrel for over two years, and it is working wonderfully

for me. It keeps my pain and inflammation under great control. I have

not experienced any adverse side effects. I don't get frequent

infections, either. I'm on the 25mg twice weekly shots. I tried the

50mg weekly shots and found that they didn't seem to last as long for

me. I also thought that the needles were awfully dull.

I hope that Enbrel helps you as much as it does me. Welcome to the

group. It is a very supportive group, and our moderators a and

keep us educated by sending articles on RA and other diseases covered

here.

Sue

On Sunday, December 17, 2006, at 09:48 PM, julielatinred wrote:

> Hi I just joined the group Im starting embrel shots 1 weekly plus

> mex.and wanted to know if anyone else is taking it If so how are you

> doing and any concerns on side effects.

>

>

[Guest guest]

--- In , " julielatinred " <julielatinred@...>

wrote:

>

> Hi I just joined the group Im starting embrel shots 1 weekly plus

> mex.and wanted to know if anyone else is taking it If so how are you

> doing and any concerns on side effects.

Hi...I am also a new member and will soon start on Mex. I am

concerned about the idea of loosing some of my hair......what have

your heard about this?

Barb

>

[Guest guest]

Hi Barb,

I am also new to this group. I have been on Enbrel for 6 months, and

MEX for about 10 months. It has not been the miracle cure for me, but

according to my MD, he thinks it is working. In regards to the hair

loss, I was not worried about it at all. And then about a few months

ago, I noticed that I was losing more hair in my shower...now, my hair

is noticeably thinner! I am not happy about this at all! I see my MD

today, and am going to talk to him about this. I will let you know if

he has anything interesting and hopeful to say!

Annie

> >

> > Hi I just joined the group Im starting embrel shots 1 weekly plus

> > mex.and wanted to know if anyone else is taking it If so how are

you

> > doing and any concerns on side effects.

>

> Hi...I am also a new member and will soon start on Mex. I am

> concerned about the idea of loosing some of my hair......what have

> your heard about this?

>

> Barb

> >

>

[Guest guest]

Sue thanks for replying the Dr. has me on 50 mg. once weekly plus 20mg. mex.

last Friday was my first shot my med. comes in what they call sure click you

just push it againest your skin and push the purple top and it injects itself

needle did not seen dull but med. sure hurt going in. was taking 40mg. of

humeria with mex byweekly but had bad rash reaction after 6th. shot 3 months

later rash still there.

Sue <marysue@...> wrote: ,

I've been on Enbrel for over two years, and it is working wonderfully

for me. It keeps my pain and inflammation under great control. I have

not experienced any adverse side effects. I don't get frequent

infections, either. I'm on the 25mg twice weekly shots. I tried the

50mg weekly shots and found that they didn't seem to last as long for

me. I also thought that the needles were awfully dull.

I hope that Enbrel helps you as much as it does me. Welcome to the

group. It is a very supportive group, and our moderators a and

keep us educated by sending articles on RA and other diseases covered

here.

Sue

On Sunday, December 17, 2006, at 09:48 PM, julielatinred wrote:

> Hi I just joined the group Im starting embrel shots 1 weekly plus

> mex.and wanted to know if anyone else is taking it If so how are you

> doing and any concerns on side effects.

>

>

__________________________________________________

[Guest guest]

Welcome, Lee!

I'm very sorry to hear about the death of your brother. That's terrible.

a, our group owner, has created a site with lots of excellent

information here:

http://arthritissupport.info/

The Hospital for Special Surgery has a lot of very good articles on

rheumatoid arthritis here:

http://www.hss.edu/conditions_9357.asp

Not an MD

[ ] New Member

> Hello,

>

> Recently diagnosed with RA. Trying to understand the illness. I am

> not dealing with it well. Just buried my brother two days before

> Christmas - cancer of the lung. Taking Methotrexate.

>

> Would someone be kind enough to forward some suggestions on reading

> material. Maybe some things to expect? Already have a spinal

> affliction.

>

> Married with three adult children, 3 grandchildren and two on the way.

> Love to crochet, knit, make jewelry and research genealogy. Thank you.

>

> Lee

> Michigan

[Guest guest]

Hi ,

This is Steph in Virginia. I went to a wedding in Grand Rapids and we went

boating on Lake Michigan. It's so beautiful there!

Visit www.arthritis.org.

Steph in VA

Recently diagnosed with RA. Trying to understand the illness. I am not dealing

with it well. Just buried my brother two days before Christmas - cancer of the

lung. Taking Methotrexate.

Would someone be kind enough to forward some suggestions on reading

material. Maybe some things to expect? Already have a spinal affliction.

Married with three adult children, 3 grandchildren and two on the way. Love

to crochet, knit, make jewelry and research genealogy. Thank you.

Lee

Michigan

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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AmeriCorps Alums -- We're Still Getting Things Done

---------------------------------

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[Guest guest]

Welcome Lee,

I am very sorry for the loss of your brother. You will find lots of

info from this group, so feel free to post often. You might check out

www.arthritis.org If you need to chat, you can email me anytime, my

prayers are with you, Tawny

[Guest guest]

Welcome to the group Lee! I'm sorry to hear that you've lost your brother

on top of just being diagnosed. Hopefully things will get easier as time goes

on. The following are some books that I've read about RA that I feel were

really informative:

1. Good Living with Rheumatoid Arthritis - published by the Arthritis

Foundation.

2. What to do when the Doctor Says It's RA - by Harry D. Fischer, M.D.

3. Rheumatoid Arthritis - The First Year by M.E.A. McNeil.

HTH,

Lori

[ ] New Member

Hello,

Recently diagnosed with RA. Trying to understand the illness. I am

not dealing with it well. Just buried my brother two days before

Christmas - cancer of the lung. Taking Methotrexate.

Would someone be kind enough to forward some suggestions on reading

material. Maybe some things to expect? Already have a spinal

affliction.

Married with three adult children, 3 grandchildren and two on the way.

Love to crochet, knit, make jewelry and research genealogy. Thank you.

Lee

Michigan

[Guest guest]

Hi Autum,

So good to have you here. Man at sixteen that must have been hard. Heck I

found out at 47 and the beginning stages. I ride horses in dressage for a

living I just pray I can keep going for several years but I take each day at a

time.

Marsha

[ ] New member

Hi everyone!!

I'm new to the group. I was diagnosed with Rheumatoid Arthritis 6

years ago at the age of 16. I currently take enbrel and naprosyn as

needed, but have taken many other drugs as well. I'm currently a

student at Purdue University studying Animal Agribusiness. I was Pre-

Vet for 3 years, but had to switch to a major where I was guaranteed a

desk job last year because of permanent damage I did to my hands and

shoulders lifting freight at work. I talk to a lot of people about RA

and act as a mentor to some younger kids and their parents as well. I

just wanted to introduce myself!!

Thanks!!

Autumn

[Guest guest]

Hello, Autumn, and welcome. I'm glad you found us, but sorry that you

need too. Nice to see a fellow Boilermaker here, I'm mathematics '69,

and so is my hubby. We were married at St. Tom's right before

graduation.

I also have a daughter who is just your age, and is a senior at Mills

College in Oakland, CA. She has had severe asthma since grade school,

and was dxed with psoriasis when she was 15. It's really tough to be

a teenager with a chronic problem, I congratulate you on the way you

appear to be handling yours. Myself, I was dxed with Polymyalgia

Rheumatica (a cousin of RA) 3 years ago.

This is a great group, very friendly and supportive. I hope you'll

keep me updated on the goings on in West Lafayette. Go Boilers!

On 2/4/07, a_mccombs2003 <amccombs@...> wrote:

> Hi everyone!!

> I'm new to the group. I was diagnosed with Rheumatoid Arthritis 6

> years ago at the age of 16. I currently take enbrel and naprosyn as

> needed, but have taken many other drugs as well. I'm currently a

> student at Purdue University studying Animal Agribusiness. I was Pre-

> Vet for 3 years, but had to switch to a major where I was guaranteed a

> desk job last year because of permanent damage I did to my hands and

> shoulders lifting freight at work. I talk to a lot of people about RA

> and act as a mentor to some younger kids and their parents as well. I

> just wanted to introduce myself!!

> Thanks!!

> Autumn

>

--

Shoreview, MN, until April! brrrr!

South Pasadena, CA

You can see my galleries at http://www.pbase.com/arenared986

[Guest guest]

Hi ,

Sorry for my ignorance, but what is SID. The first thing that comes to my mind

is Sudden Infant Death syndrome and you can't be talking about that. (Thank

God!)

Thanks and welcome to the group.

April

new member

Hi all My name is and I have 4 children 3 of whom have some type

of dissability. Adrienne is 16 and has been fighting a brain tumor

for 4 years and is currently on oral chemo for a recurrance of tumor.

She had her first tumor resected at age 12 and seems to have developed

ADD as a result of the surgery. She is not been dxd as such but I do

have my suspicions. Cassandra is 15 and is Dx'd as Ld but does very

well, she is in a 12-1-1 class and is mainstreamed with modification

in every class except math. ,9, is my reason for joining this

group. is ADHD,SID, and in the process of getting a ASD dx.

He is on concerta at this time but it seems not to be helping with his

issues anymore. I am interested in learning about and other

treatment options to help him in any way I can. ~HUGS~

[Guest guest]

Hi ,

Welcome to the group. When you typed " SID " , did you actually mean

" SLD " , as in " Specific Learning Disability " ?

>

> Hi all My name is and I have 4 children 3 of whom have some type

> of dissability. Adrienne is 16 and has been fighting a brain tumor

> for 4 years and is currently on oral chemo for a recurrance of tumor.

> She had her first tumor resected at age 12 and seems to have developed

> ADD as a result of the surgery. She is not been dxd as such but I do

> have my suspicions. Cassandra is 15 and is Dx'd as Ld but does very

> well, she is in a 12-1-1 class and is mainstreamed with modification

> in every class except math. ,9, is my reason for joining this

> group. is ADHD,SID, and in the process of getting a ASD dx.

> He is on concerta at this time but it seems not to be helping with his

> issues anymore. I am interested in learning about and other

> treatment options to help him in any way I can. ~HUGS~

>

[Guest guest]

SID is

Sensory Integration Disorder

[Guest guest]

Sudden Infant Death Syndrome is SIDS.

Sensory Integration Disorder is SID.

Kristy

Re: new member

Hi ,

Sorry for my ignorance, but what is SID. The first thing that comes to my

mind is Sudden Infant Death syndrome and you can't be talking about that.

(Thank God!)

Thanks and welcome to the group.

April

new member

Hi all My name is and I have 4 children 3 of whom have some type

of dissability. Adrienne is 16 and has been fighting a brain tumor

for 4 years and is currently on oral chemo for a recurrance of tumor.

She had her first tumor resected at age 12 and seems to have developed

ADD as a result of the surgery. She is not been dxd as such but I do

have my suspicions. Cassandra is 15 and is Dx'd as Ld but does very

well, she is in a 12-1-1 class and is mainstreamed with modification

in every class except math. ,9, is my reason for joining this

group. is ADHD,SID, and in the process of getting a ASD dx.

He is on concerta at this time but it seems not to be helping with his

issues anymore. I am interested in learning about and other

treatment options to help him in any way I can. ~HUGS~

[Guest guest]

Oh! Sure! Sorry. I know sensory integration disorder, just never saw it in an

acronym before.

new member

Hi all My name is and I have 4 children 3 of whom have some type

of dissability. Adrienne is 16 and has been fighting a brain tumor

for 4 years and is currently on oral chemo for a recurrance of tumor.

She had her first tumor resected at age 12 and seems to have developed

ADD as a result of the surgery. She is not been dxd as such but I do

have my suspicions. Cassandra is 15 and is Dx'd as Ld but does very

well, she is in a 12-1-1 class and is mainstreamed with modification

in every class except math. ,9, is my reason for joining this

group. is ADHD,SID, and in the process of getting a ASD dx.

He is on concerta at this time but it seems not to be helping with his

issues anymore. I am interested in learning about and other

treatment options to help him in any way I can. ~HUGS~