Looking to Interview Recovered ME/CFS Patients

[Guest guest]

Hi All,

I am currently working on a project to gather the stories of people who have

recovered from moderate/severe, classic ME/CFS.

Unfortunately, there aren't many people who have recovered from this illness. It

thus seems important that we learn from the few who have recovered.

I've spent the past three years gradually regaining my own health. Now that I'm

close to being really well, people ask me a lot of questions about my

experience.

I don't want to make it seem that I have the answers just based on my story

though. So I want to find some more case studies.

So far, the ones that I've found have had a whole lot of similarities and a few

interesting distinctions. I think it's going to be a really interesting and

meaningful project.

Again, I'm looking for people who were seriously ill with ME/CFS (fitting the

" Canadian Criteria " ). They don't have to be totally without any symptoms

whatsoever or with limitless energy, but they should be well enough to be living

an active, fairly normal life and report feeling good the majority of the time.

I'm going to be writing up each of the case studies (I used to be a journalist)

and then putting them together with some general observations in an information

packet. My inclination is to distribute it widely, free of charge, to doctors

and to patients.

Participants will have every opportunity to edit their own stories as they see

fit, and to make comments on the general observations that I put together.

If you know of anyone, would you please ask them to contact me or pass along

their information?

Thanks very much for your help.

Best regards,

Petrison

Ph.D., Northwestern University

lisapetrison at -dot-com