Re: When people don't believe you

[Guest guest]

YES, YES, YES. Add the doctors to that who just don't have a clue. My

PA just apologized to me for not truly knowing the extent of my

debilitation. I cannot stress enough the need for frequent blood tests

and endocrinology. I have a major story to tell about that when I'm

ready. When further discovery can correlate the timeline to mold

exposure, I'll detail everything.

Barth

www.presenting.net/sbs/sbs.html

SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html

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w> Are you sick because of mold? Do you have friends or family that don't

believe you, or that don't believe you are reactive (chemically sensitive)? It

was a real problem for me. How have you

w> coped?

[Guest guest]

Yes, Yes, and Yes. It is extremely difficult but fortunately I have an

excellent Dr. and a saint of a husband. My children (24 and 26) understand

and help a lot. Many of our friends understand but not totally. I am VERY

limited as to where I can go and carry a mask with me at all times. I cry a

lot, scream into a pillow and get easily frustrated. The only thing that

helps is AVOIDANCE!! I don't go any where that I know is bad and if I get sick

from a new place then I don't return. As for the chemicals it's much more

difficult!! Just standing in line at the pharmacy next to someone with

perfume will sometimes give me a headache for two days!! If I smell it I just

get out of line and return later. I use the drive in banks and rarely go

into a department store. It certainly has made life much more difficult.

Easier in the summer when we can go out to a restaurant and side outside as

long as no one is smoking!!!

Are you sick because of mold? Do you have friends or family that don't

believe you, or that don't believe you are reactive (chemically sensitive)? It

was a real problem for me. How have you coped?

[Guest guest]

Ive said this before but most of my family thinks Im nuts and all this is in my

head. My sister told me she'd appreciate it if I wouldn't tell anyone else in

the family about my mold story so now I dont go around anyone in my family. In

the beginning my GP attributed my symptoms to anxiety and panic attacks but as

time went on and I provided him with more information on toxic mold exposure he

was much more understanding and was willing to think outside the box in terms of

prescribing medications and running certain tests. He apologized to me that he

couldnt help me more and if there was anything more he could do to just let him

know and he'd see what he could do to help me.

>

>

> Yes, Yes, and Yes. It is extremely difficult but fortunately I have an

excellent Dr. and a saint of a husband. My children (24 and 26) understand and

help a lot. Many of our friends understand but not totally. I am VERY limited

as to where I can go and carry a mask with me at all times. I cry a lot, scream

into a pillow and get easily frustrated. The only thing that helps is

AVOIDANCE!! I don't go any where that I know is bad and if I get sick from a

new place then I don't return. As for the chemicals it's much more difficult!!

Just standing in line at the pharmacy next to someone with perfume will

sometimes give me a headache for two days!! If I smell it I just get out of

line and return later. I use the drive in banks and rarely go into a department

store. It certainly has made life much more difficult.

Easier in the summer when we can go out to a restaurant and side outside as long

as no one is smoking!!!

[Guest guest]

What kind of tests did your doc run to prove mold caused your illness? I haven't

been able to run realtime lab's w the cost. What cortisol test was run & what

was found on the MRI?

I read about a cortisol saliva test, but haven't run w cost

Most relatives don't understand the what all mold can do,  the  long term

effects & even death. It's not easy getting mold out of our bodies.

They think we can move out & heal w/n a month.  They have no idea how reactive

we become to everything b/c of it.

Great  mention on the 3 R's.

Kathy

Kathy

Patilla DaHun <glypella@...>

Subject: Re: [] Re: When people don't believe you

My family just found out that I'm not crazy - that there have been

long term serious physical problems that were just discovered by

specialized blood tests (cortisol), CT and MRIs.

Sounds like you have a caring GP. Stick with him.

We need to remember the 3 R's that will be our salvation:

1. Research: Dig out the facts on biological warfare on mycotoxins and

the effects and possibly antidotes.

2. RICO: Investigate and arrest those who have colluded against us in

allowing the dangerous situations to exist in killing, diseasing and

maiming employees at the hands of greedy CEOs, insurers, Workman's

Comp boards and corporations. Feed them Quorn! Imprison them for life.

3. Recovery: Free specialized medical testing and help from a new

generation of caring and think-beyond-the box doctors.