Apology

[Guest guest]

Hi Everyone,

My psoriatic symtoms have been minimal, – toenails mostly. Recently I've

noticed sort of cut marks on the soles of my feet just as if you took a

knife and cut the very top layer of skin slightly. Is this a symptom of

psoriasis or just dry winter skin?

Curious,

[Guest guest]

:

Be very careful if you've never had a problem with " cuts " on your feet before

unlikely it is just dry skin. Even though most GP's would likely diagnose

it as such...as did mine a few yrs back.. My money is on the psoriasis. I'm

having a very bad outbreak on my feet right now with a number of

fissures(cuts). They are deep and painful and not to be toyed with. I have

one which is badly infected. I'm using a number of things to treat it.

Silver nitrate in the fissure as well as 5%LCD in a half strength Lassars

paste and Cloxicillin for the infection. Get thee to a doctor pref your

derm.

BruceM

ld wrote:

> From: ld <ldoty@...>

>

> Hi Everyone,

>

> My psoriatic symtoms have been minimal, – toenails mostly. Recently I've

> noticed sort of cut marks on the soles of my feet just as if you took a

> knife and cut the very top layer of skin slightly. Is this a symptom of

> psoriasis or just dry winter skin?

>

> Curious,

>

>

> ------------------------------------------------------------------------

> Help support ONElist, while generating interest in your product or

> service. ONElist has a variety of advertising packages. Visit

> /advert.html for more information.

[Guest guest]

,

WELL SAID! Thanks, and I think I'm the one (by answering your email and adding

my own .02 or my feelings) that caused all the trouble. I like that you stand up

for what you believe! And everyone is sick of all the apologies I've sent, so I

won't be doing that anytime soon. But, even though I was only tiring to find

some humor in the topic (white house....) I do agree with everything you have

said here. Hope all is well with and Kate. Thanks

Vicki

PS. Like I said before, its hard to see the intent of statements written versus

said, emotions are hard to express, I've always had difficulty expressing myself

orally, it takes me a while to get to the point, very opposite of & Kate.

[ ] Apology

Hello, Everyone,

When I awoke this morning, Kate, my wife, said that I had created quite a

stir on Lymeaid, and gave me some indication of what it was all about. Without

reading the messages, may I please say:

I APOLOGIZE to ANYONE that I have offended with my comment about a

certain person that lives in a white house! It was not my intention to offend.

I even prefaced my comment with " I hope that I am not offending... "

However, if I may beg to be allowed to ask the question, " How else

are we going to get the nation to acknowledge the seriousness of the fastest

growing illness/disease that is debilitating so many people, and do what is

proper and necessary? "

We have had at least one member of our Congress that has had to

resign his elected duties because of contracting borreliosis burgdorderi, and

still no widespread dissemination of forthright information, nor any

governmental assistance of real note worth. Even AIDS/HIV, which was not known

about until approximately ten years after the two ladies in Lyme, Connecticut

caused " Lyme Disease " to be " discovered " , has been able to receive more

attention and assistance.

What I have seen many times is the SS Administration and the CDC

throwing stumbling blocks into sufferers paths rather than assistance!

The SS Administration seems to enjoy meeting quotas about how many

people they can deny disbility benefits to. The most recent case was announced

just preceding my " offending " message.

The CDC has set the standards for determining whether a person has

Borreliosis burgdorderi disease so erroneously, logically, and un-scientifictly

high that most candidates for treatment and insurance benefits are denied. If a

large bird waddles like a duck, quacks like a duck, and looks like a duck ...

most people concede that it is a duck. Case in point: The body only produces

an antibody for defence against an intruder when that intruder is present. It

would not produce an antibody for polio for example until such time that a polio

virus enters the body. Then, and only then, will the body produce an antibody!

Once a Borrelia burgdorferi enters the body, then and ONLY then, can the body

know what is needed to build the antibody to fight the invader. Our bodies

build many antibodies, not just one, to fight the Bb. By our scientific

accomplishments, we now have the ability to identify the various antibodies that

are produced for each Borrelia (spirochette). The scientific community knows

what the distinct, specific bands on a Western blot test are/is for each

Borrelia. The scientists know that there is something over five such bands for

the Bb, and that each such specific band is for the Bb only, not any other. It

is only our lack of even better scientific accomplishments that limits our

ability to find more identifiers of the Bb. A number of doctors in the trenches

of treating patients and in research has said that the finding of only one such

band for the Bb, along with clinical symptoms of Borreliosis, is SIGNIFICANT to

warrant the treatment of the patient with whatever antibiotic is necessary for

however long it takes. Any ONE specific band says that the Borrelia burgdorferi

spirochette is present. Remember, that one specific band (any of the number

that we now know about) for Bb would not be produced unless a Bb were present.

Dr. W. Burgdorfer has already shown that the Bb is the cause of the disease that

is medically called Borreliosis burgdorferi (Lyme), and this is already accepted

by the scientific community. If the cause of the disease is present, and the

symptoms, then certainly that disease, Borreliosis, is present within the

patient. There may be other diseases, also. But at the very least, then the

patient must have the one disease because that trouble maker is present! And if

the disease symptoms responds to antibiotics, then what more needs to asked. By

actual practice, the number of false positives using this methodology is less

than 1 %, far lower than the up to 4 % for " side effects " for the commercial

vaccine. Most people do not require that a DNA test to be also completed to

call a bird that waddles and quacks, a duck! Why is the CDC creating such

false standards? These false standards do not assist sufferers of Borreliosis

burgdorferi.

I won't get into the harassment of our good LLMD's by government

forces for this writing.

Instead of helping, government is interferring!

I own my feelings! They came about because of my research. I

cannot deny my feelings! Feelings are neither right nor wrong!

I want the suffering of all of Lymie's to end! How better to

highlight the problem than if the President contracted it. Then, maybe what is

necessary will happen.

As was said often in WWII, " Praise the Lord, and pass the

ammunition! " Also, I have heard, " Know thy enemies! "

Peace to all!

(MO)

[Guest guest]

Thank you for accepting my apology

Tammy

[Guest guest]

thank you as well for accepting my apology

Tammy

[Guest guest]

thank you so much for your kindness......that was really not my nature, I

guess just a bad week. )

Tammy

[Guest guest]

Tricia,

We all have to be a little obcessed at times in looking for ways to bring

our seizures under control.

Zoe

[Guest guest]

Tricia

No apologies needed, believe it or not, whether which road we take, we have

come to this list becuase we love someone with seizures or have them

ourselves. This sometimes is a complicated disease (sometimes is an

understatement). Many people have underlying disorders that has caused them

to be epleptic, and becuase my sons disorders are from autism which is also

populated by epleptics 70% of the time, I thought it would be viable to post

things that I have found has helped him. Knock on wood (where is wood), we

are getting a handle on what gives him a seizure. Of late, for me a

revelation that this is all metabolically induced, for instance, he has

oxidative stress, a mitochondrial disorder in which his energy metabolism IN

HIS BRAIN isn't working zilch (even in his body). SO, I have worked on what

makes this metabolism work good or not. The first thing is to get mercury

out of him, which means some kind of chelative and or draining detox system.

I am still exploring my options, knowing this is all alternative and could

be mildly hard for him to go through (also my daughter without seizures but

has autism). Then I looked into what people call ATP, or your chemical

makeup when you get your energy from eating proteins, carbs and fats. This

essentially is the same idea as ketogenic, finding a ketosis state, finding

what balances the body between alkaline and acidic. IT also involves taking

off opiod producing nerupeptides found in the Amercian diet, known as wheat

and milk. By doing these things, my son clearly is benefitting. Too soon

to tell, since we had a breakthrough two weeks ago, but for all intents and

purposes, may be the key for him. I don't think these things too off when

talking about all of us on the list, for I feel that they are possibly the

keys for many that induce seizures. My ultimate goal is to have my kids

completely off all meds, which we are working on as we speak. God give us

the strength to find the answers for our children, ourselves and for the

entire populous of those suffering from this disorder. The time is now to

explore the brain even further, but little did we know, it was not the brain

just involved in this, this is a whole body illness, this involves how our

immune system works, our energy metabolism, our fatty acids, our nutrition

and stress and other autoimmune significant markers as well as exploring

about having safer baby deliveries, how to retrieve traumatized brains and

how we can learn about all the pathways in the brain, what they do and don't

do and how they contribute to the illness.

KAthy

[ ] Apology

>

>Hi guys!! I'm back!! I wanted to let many of the parents and maybe

>some of the adults too know that I'm very sorry for the insensitive

>comments I made about hearing too many posts regarding mercury

>poisening/metal fillings,etc...

>I came to my senses last night when I saw the movie on Lifetime

> " First Do No Harm " . It was about a family with a young boy who had

>Epilepsy. I cried throughout most of the movie. This boy had several

>grand mal seizures a day and many small ones as well. The drugs they

>gave this child did not help, they made him a zombie or gave him

>terrible behavial problems. He wore a helmet unless he was in bed.

>His parents did not have medical insurance. It made me feel so lucky

>and blessed. Finally after many drugs, horrible side effects and

>Dr.'s pressuring the parents to remove part of the brain, the mother

>took her son to Hopkins' clinic to put her son on the ketogenic

>diet. It worked and I was so happy. Afterwards when they ran the

>credits they showed several people who starred in the movie who had

>been on the ketogenic diet and were able to be drug and seizure free.

>Anyway after seeing this movie, I had a much deeper appreciation for

>the people looking for anything, no matter how small that could cure

>themselves or their children on this horrible disease. Tricia

>

>

>_

>

>

[Guest guest]

Don't be embarrassed - all topics which might help others are

acceptable here. And I thought your comment was interesting.

Chris.

On Mon, 30 Oct 2000, Fain wrote:

> My embarrassed apologies to you guys. I just answered Bab's message and

> thought I did so personally to discover as it was going out that the

> " list " was on there also. So please accept my apology!

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

[Guest guest]

RE: Well Im trying to write mine and everyone 3or 4 minutes I get

bumped offline and I loose everything.But Im still trying Im not

using a excuse not to do mine..Im still trying ...kristie

What I do is compose my message either in 'notepad' or 'word' and

then paste and copy it over to the reply window. It also allows for

spellcheck and I have a copy in case this is acting up.

[Guest guest]

> Hi everyone ..

> Im the one that wrote the list asking for everyone to

write a

> story of them selves..And your probably wondering where mine

is..Well Im

> trying to write mine and everyone 3or 4 minutes I get bumped

offline and I

> loose everything.But Im still trying Im not using a excuse not to

do

> mine..Im still trying ...kristie

>

My story is sweet and simple. I was born a happy man and I will die

as one. I live each day to the fullest I do as much as I can during

it. I already have met some amazing people in my life and made many

great friends.

> ____________________________________________________________

> Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp

[Guest guest]

still seems like you are just trying to make a buck....some of these folks

are seriously ill, and are looking for effective alternative treatments for

cancer.

[Guest guest]

Jerry: We cannot continue to accept your " " " " " apology " " " " " " as anything but

a sales talk. Please ! Most of us have been down the MLM road that you

are on and have tried to use the same tactics.

You are new and no doubt you are new to that type of selling. Let us

alone and may God as I understand Him lead you to be truthful unsing your

own experiences ONLY. Lay off the selling to this group and start a Noni

group to do the selling

Harold

[Guest guest]

Lynn, No apologies are needed. As you said, we all just love our chuldren and want the best for them.

Tina and

Lynn Young <llyoung@...> wrote: I would like to sincerely apologize to all of the group. My hope had been toLESSEN the the "problem" of Duncan by offering a different viewpoint, andinstead I seem to have made the problem worse. I am so very sorry. I find inretrospect I was guilty myself of letting some of the comments upset me tothe point of replying when I should have wisely stayed silent, like the restof you. I am very sorry.FYI - I did surmise from Duncan's area code that he lives in BritishColumbia... the other side of the country from me. I have never met him, norhad any contact with him (nor desire contact) other than to see his posts onthis list. I just found his information interesting...Again, I apologize. I did not intend to escalate the controversy, norinflame feelings like this. We all love our children and want the best forthem, and I feel my contributions have hurt the "community" I have alwaysfelt to be such a hallmark of this group. I am so very sorry.Lynn

[Guest guest]

Lynn,

I agree with Ellie, and feel that the apology was not needed. I don't think any

of us could have anticipated how out of control this all got. You simply stated

your thoughts - as did many of us - and your intent was clearly to help

alleviate some of the distrust and open our eyes to a different perspective.

The very idea that it got to the point where you felt the need to explain that

you didn't know Duncan had me flabbergasted! The thought never entered my head,

and if it had - what business is it of mine anyway? I too am sorry that I ever

commented on the whole thing. I never doubted your sincerity - whether I agreed

with you comments or not - I don't have to agree with everything you say to be

your friend and to appreciate your contribution to this group. Have a great

day!

Val

Rob's Mom (4,systemic)

In a message dated Sat, 1 Jun 2002 10:40:33 AM Eastern Daylight Time,

llyoung@... writes:

>

>

> I would like to sincerely apologize to all of the group. My hope had been to

> LESSEN the the " problem " of Duncan by offering a different viewpoint, and

> instead I seem to have made the problem worse. I am so very sorry. I find in

> retrospect I was guilty myself of letting some of the comments upset me to

> the point of replying when I should have wisely stayed silent, like the rest

> of you. I am very sorry.

>

> FYI - I did surmise from Duncan's area code that he lives in British

> Columbia... the other side of the country from me. I have never met him, nor

> had any contact with him (nor desire contact) other than to see his posts on

> this list. I just found his information interesting...

>

> Again, I apologize. I did not intend to escalate the controversy, nor

> inflame feelings like this. We all love our children and want the best for

> them, and I feel my contributions have hurt the " community " I have always

> felt to be such a hallmark of this group. I am so very sorry.

>

> Lynn

>

>

>

>

>

[Guest guest]

Dear Lynn, Please don't beat yourself up about this, I'm glad you had your say about how you felt about Duncan. And just saying you were interested in what he had to say doesn't mean you are in any way his co-hort. Or that would make me one too! and I know I'm not ! I'm a creative and open person and I don't let society's views Box me in unless I wish it. So in my book an apology is not needed and this list as I know it is for everyone to share and respond regardless of beliefs, race, creed, and or ability to express ones self ( laughing at us southerners who thank heavens generally don't type or spell the way we really speak lol ) For I know that I am much better at drawing what I have to communicate then I am at putting it into words, so It may be that I am misunderstood on here at times too! Have a great day and I look forward to future post from you Lynn :):)Tree:):):) apology I would like to sincerely apologize to all of the group. My hope had been toLESSEN the the "problem" of Duncan by offering a different viewpoint, andinstead I seem to have made the problem worse. I am so very sorry. I find inretrospect I was guilty myself of letting some of the comments upset me tothe point of replying when I should have wisely stayed silent, like the restof you. I am very sorry.FYI - I did surmise from Duncan's area code that he lives in BritishColumbia... the other side of the country from me. I have never met him, norhad any contact with him (nor desire contact) other than to see his posts onthis list. I just found his information interesting...Again, I apologize. I did not intend to escalate the controversy, norinflame feelings like this. We all love our children and want the best forthem, and I feel my contributions have hurt the "community" I have alwaysfelt to be such a hallmark of this group. I am so very sorry.Lynn

[Guest guest]

In a message dated 11/21/02 3:34:50 PM Mountain Standard Time,

paige_wright@... writes:

> Again, my apologies.......is snippy frustration and rudeness a

> withdrawal side-effect?

>

>

BIG TIME!!!!!! You weren't even as bad as some I've encountered. LOL

Glitter, author of <A HREF= " http://anxiety-panic.com/griffon " >Blind Reason</A>

[Guest guest]

In a message dated 11/21/02 3:34:50 PM Mountain Standard Time,

paige_wright@... writes:

> Again, my apologies.......is snippy frustration and rudeness a

> withdrawal side-effect?

>

>

BIG TIME!!!!!! You weren't even as bad as some I've encountered. LOL

Glitter, author of <A HREF= " http://anxiety-panic.com/griffon " >Blind Reason</A>

[Guest guest]

Paige, it's entirely understandable that you were upset by our lack of

response - and it takes a little time to learn to navigate the various

boards and their different missions. That's pretty hard to do when you

are feeling awful and wondering if you are going to live through

withdrawal - and we understand that here. You aren't the first or the

last person on these boards to " lose it " for a few moments! Hopefully,

you'll find valuable information on ALL the different websites, and can

put the pieces together into a package that works for YOU.

It takes a big person to apologize - not everybody has the guts! When

you are feeling better, your frustration with the misinformation you

received at the hands of your doctor(s) will serve you well, and will

give you the strength to fight back - to help warn others and to become

part of the solution to this big mess that the drug industry has gotten

you (and countless others) into. You are EXACTLY the type of sincere

and passionate person who can make a difference!

Welcome to SSRI Crusaders, Paige! Get mad and GET EVEN.

> To all -

> Please accept my apologies for my snippy, rude attitude in my

> previous posts.

>

> What I am feeling now, being off of Effexor, is a completely and

> tottally unexpected reaction. I feel like the rug was pulled from

> under my feet. I had NO IDEA I would be going through these

> evil withdrawals...completely unchartered territory for me.

>

> I took my frustrations out on some in this room. I am the type of

> person that when I want something, I want it NOW. My Dr. gave

> some lame-o reasons...medical jibber-jabber about

> withdrawing. That's how I ended up here in the group...I wanted

> to discuss with individuals that really understood becuse they

> had been through or are going through it. Hence, my posts. The

> lack of response frustrated me...I needed to know what and why

> this is happening.

>

> To those of you who have responded and contacted me, my

> heartfelt thanks to you. I am bowled over by the intelligence,

> class and passion of your words . I can't begin to tell you how

> comforting it is to hear from such a high-caliber of people and

> know that I am in good company.

>

> Again, my apologies.......is snippy frustration and rudeness a

> withdrawal side-effect?

>

> Paigehayes

[Guest guest]

Paige, it's entirely understandable that you were upset by our lack of

response - and it takes a little time to learn to navigate the various

boards and their different missions. That's pretty hard to do when you

are feeling awful and wondering if you are going to live through

withdrawal - and we understand that here. You aren't the first or the

last person on these boards to " lose it " for a few moments! Hopefully,

you'll find valuable information on ALL the different websites, and can

put the pieces together into a package that works for YOU.

It takes a big person to apologize - not everybody has the guts! When

you are feeling better, your frustration with the misinformation you

received at the hands of your doctor(s) will serve you well, and will

give you the strength to fight back - to help warn others and to become

part of the solution to this big mess that the drug industry has gotten

you (and countless others) into. You are EXACTLY the type of sincere

and passionate person who can make a difference!

Welcome to SSRI Crusaders, Paige! Get mad and GET EVEN.

> To all -

> Please accept my apologies for my snippy, rude attitude in my

> previous posts.

>

> What I am feeling now, being off of Effexor, is a completely and

> tottally unexpected reaction. I feel like the rug was pulled from

> under my feet. I had NO IDEA I would be going through these

> evil withdrawals...completely unchartered territory for me.

>

> I took my frustrations out on some in this room. I am the type of

> person that when I want something, I want it NOW. My Dr. gave

> some lame-o reasons...medical jibber-jabber about

> withdrawing. That's how I ended up here in the group...I wanted

> to discuss with individuals that really understood becuse they

> had been through or are going through it. Hence, my posts. The

> lack of response frustrated me...I needed to know what and why

> this is happening.

>

> To those of you who have responded and contacted me, my

> heartfelt thanks to you. I am bowled over by the intelligence,

> class and passion of your words . I can't begin to tell you how

> comforting it is to hear from such a high-caliber of people and

> know that I am in good company.

>

> Again, my apologies.......is snippy frustration and rudeness a

> withdrawal side-effect?

>

> Paigehayes

[Guest guest]

Paige, it's entirely understandable that you were upset by our lack of

response - and it takes a little time to learn to navigate the various

boards and their different missions. That's pretty hard to do when you

are feeling awful and wondering if you are going to live through

withdrawal - and we understand that here. You aren't the first or the

last person on these boards to " lose it " for a few moments! Hopefully,

you'll find valuable information on ALL the different websites, and can

put the pieces together into a package that works for YOU.

It takes a big person to apologize - not everybody has the guts! When

you are feeling better, your frustration with the misinformation you

received at the hands of your doctor(s) will serve you well, and will

give you the strength to fight back - to help warn others and to become

part of the solution to this big mess that the drug industry has gotten

you (and countless others) into. You are EXACTLY the type of sincere

and passionate person who can make a difference!

Welcome to SSRI Crusaders, Paige! Get mad and GET EVEN.

> To all -

> Please accept my apologies for my snippy, rude attitude in my

> previous posts.

>

> What I am feeling now, being off of Effexor, is a completely and

> tottally unexpected reaction. I feel like the rug was pulled from

> under my feet. I had NO IDEA I would be going through these

> evil withdrawals...completely unchartered territory for me.

>

> I took my frustrations out on some in this room. I am the type of

> person that when I want something, I want it NOW. My Dr. gave

> some lame-o reasons...medical jibber-jabber about

> withdrawing. That's how I ended up here in the group...I wanted

> to discuss with individuals that really understood becuse they

> had been through or are going through it. Hence, my posts. The

> lack of response frustrated me...I needed to know what and why

> this is happening.

>

> To those of you who have responded and contacted me, my

> heartfelt thanks to you. I am bowled over by the intelligence,

> class and passion of your words . I can't begin to tell you how

> comforting it is to hear from such a high-caliber of people and

> know that I am in good company.

>

> Again, my apologies.......is snippy frustration and rudeness a

> withdrawal side-effect?

>

> Paigehayes

[Guest guest]

Paige, it's entirely understandable that you were upset by our lack of

response - and it takes a little time to learn to navigate the various

boards and their different missions. That's pretty hard to do when you

are feeling awful and wondering if you are going to live through

withdrawal - and we understand that here. You aren't the first or the

last person on these boards to " lose it " for a few moments! Hopefully,

you'll find valuable information on ALL the different websites, and can

put the pieces together into a package that works for YOU.

It takes a big person to apologize - not everybody has the guts! When

you are feeling better, your frustration with the misinformation you

received at the hands of your doctor(s) will serve you well, and will

give you the strength to fight back - to help warn others and to become

part of the solution to this big mess that the drug industry has gotten

you (and countless others) into. You are EXACTLY the type of sincere

and passionate person who can make a difference!

Welcome to SSRI Crusaders, Paige! Get mad and GET EVEN.

> To all -

> Please accept my apologies for my snippy, rude attitude in my

> previous posts.

>

> What I am feeling now, being off of Effexor, is a completely and

> tottally unexpected reaction. I feel like the rug was pulled from

> under my feet. I had NO IDEA I would be going through these

> evil withdrawals...completely unchartered territory for me.

>

> I took my frustrations out on some in this room. I am the type of

> person that when I want something, I want it NOW. My Dr. gave

> some lame-o reasons...medical jibber-jabber about

> withdrawing. That's how I ended up here in the group...I wanted

> to discuss with individuals that really understood becuse they

> had been through or are going through it. Hence, my posts. The

> lack of response frustrated me...I needed to know what and why

> this is happening.

>

> To those of you who have responded and contacted me, my

> heartfelt thanks to you. I am bowled over by the intelligence,

> class and passion of your words . I can't begin to tell you how

> comforting it is to hear from such a high-caliber of people and

> know that I am in good company.

>

> Again, my apologies.......is snippy frustration and rudeness a

> withdrawal side-effect?

>

> Paigehayes

[Guest guest]

In a message dated 12/12/2002 10:07:56 AM Eastern Standard Time,

mnlarue@... writes:

> Without arguments of academics, how are we to learn??

>

> just my $.02

> Wish you would stay

>

>

I agree.

[Guest guest]

---I, for one, would welcome your continued posts. Maybe you can

just learn to control the " outbursts? " I also am an Aquarian, and I

guess this is why I am going " against the grain " of many people in

the general population, including docs(not on this list)by chelating

my son. AND I am ALWAYS open to new ideas. ANYTHING that could

remotely possibly help my son have a " real " life I am game to try. I

have a couple on my list at this very moment that would be considered

by many to be pretty WACKY.

I also believe that maybe a " combination " of therapies, etc. may

be the key...WHO KNOWS what will " cure " EVERY autistic child???

Obviously Nobody for certain, we are ALL searching for answers.

May God bless, Lindy

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

In , " JMcCandless " <JMcCandless@p...>

wrote:

> Listmates: Forgive the infliction of my anger outburst at Andy

onto the group. Makes me realize how exhausted I am! In a recent

post Andy said why jump on every new thing rather than stay with and

improve on the old, or something like that. He and I are at cross

purposes for I am a true Aquarian always looking for new and better

ways and willing to try them, especially since the old ways

(DMSA/ALA) were creating lots of gut pathogen problems in some of my

patients. I feel now that I as many others in the past need to stop

posting on this group, and that makes me sad, but I don't think it

serves parents to have experts arguing. The fact is that a great

deal is not yet known about the actual mechanism of these " chelating "

agents; much more happens than just removal of mercury. The parents

are left to ultimately use their intuition and as much knowledge as

they can find to come up with what works for their child, and

regardless of the protocol or the theories, what works for your child

is in my opinion the bottom line. Since every child is unique, there

ends up being many different methods that help certain subgroups of

kids, and I am very humble about the enormous knowledge lacking in

how to more quickly and with less trauma heal more of our children.

I need to get back to my work and writing, and will be doing a lot of

teaching as well as learning in the months ahead. You might check on

my website for areas where I may be presenting, should you want to

attend. As soon as I have places and locations confirmed I will put

it on my web-site. Please do not continue to send me private posts;

I will be unable to answer. I wish you all great success in your

healing efforts.

> About TTFD, I have been trying to understand the mechanism of

the yellow stools and constipation in some of the kids on transdermal

allithiamine, and am still looking for the answer. Dr. Lonsdale (who

is an acknowledged thiamine expert/specialist) kindly offered a

conjecture as to what might be happening, and several of you have

written me that when C was increased (and most kids need at least 750-

1000mg or more a day in divided doses anyway-to the point of loose

stools and then back off a bit) the stools did normalize. I repeat,

the transdermal is a new use of this vitamin compound, and there is a

lot we have to learn. However, I agree with Dr. Lonsdale that there

is no evidence it is toxic, though one may need more B's and C to

offset any imbalance in the chemistry that might occur with large

inputs of it as apparently happens with the transdermal form. 3

children in his study had a thiamine deficiency; in those I would

guess the oral would help that, but I believe the transdermal is much

more powerful in moving metals out.

> The metals excretion pattern (or non-pattern) in my very small

and informal study showed a delay for mercury to start moving out in

the urine samples for most of the kids. Arsenic and cadmium were

usually the first to come out, and the interesting thing is that in

one child, there was no evidence on hair samples that cadmium was

high, yet he put out a very large amount of cadmium, and it

corresponded with a great improvement in his clinical picture - his

mother said for the first time he could start describing things

abstractly, a very big leap in his cognitive abilities. This

improvement has continued, though I am no longer asking for regular

urine studies as I was for 3 months, so am not sure what's coming out

now. As far as I know, this compound was not designed initially for

chelation; I believe this aspect of it was only discovered

incidentally when urine studies showed a lot of metals coming out

with its use. It's primary purpose is, as perhaps all the treatment

protocols, to help chemically balance patients who are toxic; a

chemically balanced person will either safely sequester or excrete

the toxic agents on their own. One of my primary quests is to find a

combination of safe agents that will achieve this purpose without

aggravating the gut pathogen overgrowth that so many of our kids

struggle with. I will continue searching and writing about and

teaching whatever I learn as long as I can. Jaquelyn

>

>

>

[Guest guest]

An intelligent man surrounds himself with intelligent people

An even more intelligent man surrounds himself with intelligent people that

disagree with him

Without arguments of academics, how are we to learn??

just my $.02

Wish you would stay

JMcCandless wrote:

> Listmates: Forgive the infliction of my anger outburst at Andy onto the

group. Makes me realize how exhausted I am! In a recent post Andy said why

jump on every new thing rather than stay with and improve on the old, or

something like that. He and I are at cross purposes for I am a true Aquarian

always looking for new and better ways and willing to try them, especially since

the old ways (DMSA/ALA) were creating lots of gut pathogen problems in some of

my patients. I feel now that I as many others in the past need to stop posting

on this group, and that makes me sad, but I don't think it serves parents to

have experts arguing. The fact is that a great deal is not yet known about the

actual mechanism of these " chelating " agents; much more happens than just

removal of mercury. The parents are left to ultimately use their intuition and

as much knowledge as they can find to come up with what works for their child,

and regardless of the protocol or the theories, what works!

> for your child is in my opinion the bottom line. Since every child is unique,

there ends up being many different methods that help certain subgroups of kids,

and I am very humble about the enormous knowledge lacking in how to more quickly

and with less trauma heal more of our children. I need to get back to my work

and writing, and will be doing a lot of teaching as well as learning in the

months ahead. You might check on my website for areas where I may be

presenting, should you want to attend. As soon as I have places and locations

confirmed I will put it on my web-site. Please do not continue to send me

private posts; I will be unable to answer. I wish you all great success in your

healing efforts.

> About TTFD, I have been trying to understand the mechanism of the yellow

stools and constipation in some of the kids on transdermal allithiamine, and am

still looking for the answer. Dr. Lonsdale (who is an acknowledged thiamine

expert/specialist) kindly offered a conjecture as to what might be happening,

and several of you have written me that when C was increased (and most kids need

at least 750-1000mg or more a day in divided doses anyway-to the point of loose

stools and then back off a bit) the stools did normalize. I repeat, the

transdermal is a new use of this vitamin compound, and there is a lot we have to

learn. However, I agree with Dr. Lonsdale that there is no evidence it is

toxic, though one may need more B's and C to offset any imbalance in the

chemistry that might occur with large inputs of it as apparently happens with

the transdermal form. 3 children in his study had a thiamine deficiency; in

those I would guess the oral would help that, but I believe!

> the transdermal is much more powerful in moving metals out.

> The metals excretion pattern (or non-pattern) in my very small and

informal study showed a delay for mercury to start moving out in the urine

samples for most of the kids. Arsenic and cadmium were usually the first to

come out, and the interesting thing is that in one child, there was no evidence

on hair samples that cadmium was high, yet he put out a very large amount of

cadmium, and it corresponded with a great improvement in his clinical picture -

his mother said for the first time he could start describing things abstractly,

a very big leap in his cognitive abilities. This improvement has continued,

though I am no longer asking for regular urine studies as I was for 3 months, so

am not sure what's coming out now. As far as I know, this compound was not

designed initially for chelation; I believe this aspect of it was only

discovered incidentally when urine studies showed a lot of metals coming out

with its use. It's primary purpose is, as perhaps all the treatmen!

> t protocols, to help chemically balance patients who are toxic; a chemically

balanced person will either safely sequester or excrete the toxic agents on

their own. One of my primary quests is to find a combination of safe agents

that will achieve this purpose without aggravating the gut pathogen overgrowth

that so many of our kids struggle with. I will continue searching and writing

about and teaching whatever I learn as long as I can. Jaquelyn

>

>