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In a message dated 2/8/01 4:49:42 PM Central Standard Time,

christina_xz@... writes:

<< Basically, I'm pretty sure that the breastfeeding is

contributing to the decay >>

Ouch. That hurt. I've researched this for over two years. Can I have your

source? And, please, your dentist saying bm decay is the same as bottle

decay doesn't count. They aren't educated as to the make-up of breastmilk,

nor are they ever told what exactly is in it that would cause decay. IMO,

the only thing I can find that explains this attitude is that bm is sweet,

ergo it MUST be sweetened, sweetened=sugar, and sugar causes plaque, which in

turn becomes decay, as the plaque and sugar feed the bacteria that causes

decay.

Here is more detail on what I found, the page is over a year old I just

haven't had time to update it. But I believe there are some good links.

<A HREF= " http://hometown.aol.com/cbottpeter/family.html#teeth " >Gen'l Info

About Tooth Decay</A>

Carol

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Hi,

I'm a bit of a lurker, but thought I ought to respond

to this. I have had problems with my 2yo dd's teeth

also. Her 4 front teeth all had decay and when she

was about 18months I took her to the best ped dentist

that I could find. He simply drilled away a tiny bit

of the rotten teeth and filled them with a temporary

filling...only 2 of the 4 teeth actually needed the

filling and the whole thing took about 2 minutes.

Now her back top molars also have cavities, so we will

have to go back again...

Basically, I'm pretty sure that the breastfeeding is

contributing to the decay (not the entire cause, mind

you, since 4yo dd had the same sort of breastfeeding

pattern and has beautiful teeth - and is still

breastfeeding occasionally) I personally think that I

might have had a lack of calcium and other minerals

while I was pregnant, combined with not vigilantly

brushing her teeth when they first appeared.

Anyway, needless to say, we do brush teeth regularly

and if the temp fillings come loose they can easily be

replaced (hasn't happened yet). Also, I have heard

that you can get the teeth coated to protect them, but

I don't know if this can leach chemicals.

Funnily enough, dd's bottom teeth are all fine!

Perhaps you can get a second opinion?

hth

-christina

__________________________________________________

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I've heard recently that antibiotics used during pregnancy and

possibly when the child is a baby can contribute to tooth problems,

not sure if that's referring to rotting teeth or discoloration or

what... is that a possibility?

My son was partially vaccinated (everything thru 12mo), completely

bottle-fed including bottles at night, got teeth at 4 1/2 months....

and his teeth aren't bad. I think I might have had an antibiotic

towards the end since I was told I had a yeast and bladder infection

(had no symptoms of either so I'm wondering if maybe they got my test

results mixed up with someone else? Or did they just catch both

really early??)

-Merry

> Hi,

> I'm a bit of a lurker, but thought I ought to respond

> to this. I have had problems with my 2yo dd's teeth

> also. Her 4 front teeth all had decay and when she

> was about 18months I took her to the best ped dentist

> that I could find. He simply drilled away a tiny bit

> of the rotten teeth and filled them with a temporary

> filling...only 2 of the 4 teeth actually needed the

> filling and the whole thing took about 2 minutes.

> Now her back top molars also have cavities, so we will

> have to go back again...

> Basically, I'm pretty sure that the breastfeeding is

> contributing to the decay (not the entire cause, mind

> you, since 4yo dd had the same sort of breastfeeding

> pattern and has beautiful teeth - and is still

> breastfeeding occasionally) I personally think that I

> might have had a lack of calcium and other minerals

> while I was pregnant, combined with not vigilantly

> brushing her teeth when they first appeared.

> Anyway, needless to say, we do brush teeth regularly

> and if the temp fillings come loose they can easily be

> replaced (hasn't happened yet). Also, I have heard

> that you can get the teeth coated to protect them, but

> I don't know if this can leach chemicals.

> Funnily enough, dd's bottom teeth are all fine!

> Perhaps you can get a second opinion?

> hth

> -christina

>

>

> __________________________________________________

>

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<< Basically, I'm pretty sure that the breastfeeding

is

contributing to the decay >>

>>Ouch. That hurt. I've researched this for over two

>>years. Can I have your source?

I meant that in *my* dd's case, *I* think that the

continuous-through-the-night breast-feeding was *one*

*contributing* factor to the decay. I had a look at

your site and read your next posting on the subject

and found it very informative. I had a look at the

Families for Natural Living site where I found this:

" The study, by the University of Nijmegen,

Netherlands, in 1992, concluded that once a child is

infected with ECC, night-nursing can contribute to

this disease because the milk bacteria - lactobacilli

- lay in the cavities and form their own acid,

contributing to more decay. "

I should have really worded my statement differently -

Breast-milk is *not* what *causes* the decay.

We can take this off-list, but I am really interested

in the regime that you have regarding this - I have

read somewhere before about this, but how do you use

White Oak/Black Walnut? As a mouth wash? Do you

leave it on/rinse etc. Also, the calc fluor and calc

phos - is this in homeopathic form? And did the Ionic

toothbrush work?

thanks in advance!

christina_xz@...

__________________________________________________

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Jeanne and others,

I got a horrible ear infection on MTX that came on suddenly and then my eardrum ruptured. It was nasty.

Rae

P.S. I just had a chunk fall out of a tooth a few days ago. I've only had one cavity in my life and was just at the dentist in June. I wonder if the Arava causes this. Anyone know????

Re: [ ] Re: IV Remicade Infusion went well

Good Morning Everyone, I guess I am a little disappointed with all the info about the Remicade. My first infusion is scheduled for Feb 28th and I thought I would spend my three hours in there and feel like a million bucks the next day. It saddens me to hear some people spend 10 hours and some people flare for a month. Aargh! Also my infusion was delayed for that long because I have an infected tooth ;( I've always taken good care of my teeth and wonder if this off the wall infection is aided by all the medications I currently take--MTX, Folic Acid & Voltaren? Anyone else get weird infections after beginning MTX. I took my 11th shot yesterday. Hoping all are well today, Jeanne In Idaho

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tooth decay, infections, etc. are a common result of Sjogren's

Syndrome. Sjogren's is an autoimmune process where the glands are

affected by arthritic inflammation. It is often seen as a secondary

disease with people who already have another autoimmune disease. If

you have any problem with dry eyes, mouth, skin, vagina, etc. then SS

should be considered. Look for more info about SS at

www.arthritis.org and do a search in the archives on this list. For

me, SS was diagnosed by my eye doctor. Of course, not everyone with

dryness and tooth problems has SS but if you have PA then this should

be considered. Hope this helps someone!

LaRita (that Arthritis Foundation person)

Thought from LaRita

" What you are afraid to do is a clear indicator of the next

thing you need to do. " --Anon.

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i was only on arava for a period of 6 weeks and i had some rapid dental decay

on a feww of my teeth.i thought it was just me! i got off it because i had

many problems with it . also it does say in the literature that comes from

the pharmacy that it can cause 'tooth disorder'[whatever that means!]so

thats my experience with the tooth thing.

cathy from mass

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  • 2 years later...
Guest guest

:

Yes! My teeth have been a disaster since my first flare 8 years ago. The

fillings fall, they crack and break, my teeth crack and break and generally

cause

me much grief. I figure in the next year or so I'll need about $7,000 in

dental work.

I don't know what it is about this disease, but it manages to ravage every

part of your body.

My teeth will never be the same.

Keep at the dentist. If you're always on your dental exams, you should be

able to keep it under control.

Jen

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Guest guest

Re: Teeth problems

:

Yes! My teeth have been a disaster since my first flare 8 years ago. The

fillings fall, they crack and break, my teeth crack and break and generally

cause

me much grief. I figure in the next year or so I'll need about $7,000 in

dental work.

I don't know what it is about this disease, but it manages to ravage every

part of your body.

My teeth will never be the same.

Keep at the dentist. If you're always on your dental exams, you should be

able to keep it under control.

Jen

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Guest guest

Sorry for the blank email.

The teeth problem idea is new to me. Is it from the Stills or from the

meds????

Thanks

Heidi

Re: Teeth problems

:

Yes! My teeth have been a disaster since my first flare 8 years ago. The

fillings fall, they crack and break, my teeth crack and break and generally

cause

me much grief. I figure in the next year or so I'll need about $7,000 in

dental work.

I don't know what it is about this disease, but it manages to ravage every

part of your body.

My teeth will never be the same.

Keep at the dentist. If you're always on your dental exams, you should be

able to keep it under control.

Jen

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Guest guest

Hi Heidi:

Well, I can't speak for anyone else, but my serious teeth problems started

directly after my first flare. Thing is, I only had aspirin therapy during my

first flare. I took no steroids or anything else (other than pain meds).

Maybe the aspirin was the culprit. Who knows? (I was on 3,000 mg aspirin/day).

My teeth had always been a problem, but the Still's seems to have exacerbated

it. Very depressing. I really hope this flare doesn't completely do them in.

In NEED my teeth! I love to eat! :)

Jen B.

Middletown, New York

------ Re: Teeth problems

  :

  Yes! My teeth have been a disaster since my first flare 8 years ago.  The

  fillings fall, they crack and break, my teeth crack and break and generally

cause

  me much grief.  I figure in the next year or so I'll need about $7,000 in

  dental work.

  I don't know what it is about this disease, but it manages to ravage every

  part of your body.

  My teeth will never be the same.

  Keep at the dentist.  If you're always on your dental exams, you should be

  able to keep it under control.

  Jen

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  • 2 years later...

Yes, I have had my amalgam removed. There is a protocol so that the mercury is not redistributed. I had it done of the course of 8 months. After every quadrant removed I had a bad yeast like rash under my arms. I was guessing my body was detoxing the mercury? Who knows...

All the best,"Parents should decide through informed choice, which vaccines if any should begiven to their children"Vaccine Information or vaccinetruth.org Callahan Vaccine Liberation Co-director

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Speaking of teeth and dental issues, I wonder about anyone who has had dental fillings (amalagams?) replaced with non-toxic (whatever they use)? I read it could be done and subscribe to a mercola.com newsletter that is all about good health (would recommend it to anyone interested) and their office in IL does some procedure to remove and replace them.

I only wonder in case I wanted more children. It is only my son with problems now and he's the oldest, but I understand boys are at a disadvantage from testosterone.

Judy

Teeth problems

It's possible children with autism "pull" at their teeth due to dental problems. They may need cavities filled; teeth extracted to relieve overcrowding; braces and retainers. I see this especially where children with autism chew on items. msherrett.

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.362 / Virus Database: 267.13.0/167 - Release Date: 11/11/2005

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  • 3 weeks later...

Missy, When I was first put on Prednisone I was told by my Dr.'s to make sure I was taking an extra amount of Calcium and also they put me on extra Vit. D.

I agree with Jo Lynne you should talk to your Dr. and Dentist about your problems and see what recommendations they have for you regarding Calcium and Vit D.

Take Care

Shirlee

[ ] teeth problems

Hi all,I have been on prednisone for 10 months started at 60 mg down to 12 1/2 mg and been on azathioprine for 4 months at 50 mg. Two of my teeth that I have fillings in I have had problems with the fillings. The fillings have cracked and one of my teeth has cracked. I'm just wondering if the meds can cause problems with my teeth because I have not had problems with my teeth before.Missy

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My teeth are horrible and have been for some time. I currently now have a

toothache. I am so tired of going to the dentist. I am getting close to 40 and

am thinking about asking about dentures. I also read that liver disease can

cause bone thinning-teeth are bones.

Zanna

My health blog:

www.zannasstory.blogspot.com

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  • 3 years later...

Hi Reg

I have no experience with bridges but have a couple of enamel crowns one fitted since onset of samters with no problems. I have another gold crown from years ago again with no problems.

A few months back I went to the dentist with what I thought was toothache and he X-rayed me and said that he could see no problems with fillings etc. However he showed me a shadow on the X-ray that he said was likely to be evidence of infection in the sinus. Well what a surprise that was........! After some antibiotics and a course of our friend the Pred I was sorted out.

Hope you get some relief soon.

Best wishes

Mike

samters From: wkapikorn@...Date: Wed, 21 Jan 2009 07:37:54 -0800Subject: TEETH PROBLEMS

I recently had 2 bridges put in my mouth - 3 teeth upper and 3 teeth lower. They are both so painful. Has anyone else had this problem? If so, what did you do? I'm thinking of having all these teeth pulled. I'm wondering if I might be allergic to the bridge material???

I would greatly appreciate any feedback!

Thank you,

Reg Are you a PC?  Upload your PC story and show the world Click Here!

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I have two bridges also, both upper with three teeth but

absolutely no problems at all. I’d advise you to go back to the dentist as it

sounds to me the mold taken beforehand may not have been correct or the bridge

doesn’t match the mold. Once the bridge is in you shouldn’t feel any discomfort

at all.

samters

From: wkapikorn@...

Date: Wed, 21 Jan 2009 07:37:54 -0800

Subject: TEETH PROBLEMS

I recently had 2 bridges put in my mouth - 3 teeth upper

and 3 teeth lower. They are both so painful. Has anyone else had

this problem? If so, what did you do? I'm thinking of having all

these teeth pulled. I'm wondering if I might be allergic to

the bridge material???

I would greatly appreciate any feedback!

Thank you,

Reg

Are you a PC? Upload your PC story and show the world Click

Here!

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Thank you, Mike, for your response!!!!!!!!!!!!!!!!!!

I am at my wit's end!

Regina

From: Mike Hammond <rovenmike@...>Subject: RE: TEETH PROBLEMS"Samters Group" <samters >Date: Wednesday, January 21, 2009, 1:17 PM

Hi Reg I have no experience with bridges but have a couple of enamel crowns one fitted since onset of samters with no problems. I have another gold crown from years ago again with no problems. A few months back I went to the dentist with what I thought was toothache and he X-rayed me and said that he could see no problems with fillings etc. However he showed me a shadow on the X-ray that he said was likely to be evidence of infection in the sinus. Well what a surprise that was........! After some antibiotics and a course of our friend the Pred I was sorted out. Hope you get some relief soon. Best wishes Mike

samters@groups .comFrom: wkapikorn (DOT) comDate: Wed, 21 Jan 2009 07:37:54 -0800Subject: TEETH PROBLEMS

I recently had 2 bridges put in my mouth - 3 teeth upper and 3 teeth lower. They are both so painful. Has anyone else had this problem? If so, what did you do? I'm thinking of having all these teeth pulled. I'm wondering if I might be allergic to the bridge material???

I would greatly appreciate any feedback!

Thank you,

Reg

Are you a PC? Upload your PC story and show the world Click Here!

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Hi,

I've had problems with my teeth since the Samters started. My dentist goes crazy, because if he hits a nerve when he drills, my tooth dies. I currently have false teeth.

I use to get root canals and crowns etc. and every time they ended up pulling them out within three months.

TEETH PROBLEMS

I recently had 2 bridges put in my mouth - 3 teeth upper and 3 teeth lower. They are both so painful. Has anyone else had this problem? If so, what did you do? I'm thinking of having all these teeth pulled. I'm wondering if I might be allergic to the bridge material???

I would greatly appreciate any feedback!

Thank you,

Reg

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Tami, after your teeth were worked on, did they become extremely painful? I told my dentist yesterday that I may just have them pulled and so now he wants to do a root canal through the bridge. My teeth did not bother me until the bridges were added. Seems there are 4 of us with teeth issues. Maybe it's the steroids and antibiotics.

From: Tami Klumpyan <tami1961@...>Subject: Re: TEETH PROBLEMSsamters Date: Wednesday, January 21, 2009, 7:20 PM

Hi,

I've had problems with my teeth since the Samters started. My dentist goes crazy, because if he hits a nerve when he drills, my tooth dies. I currently have false teeth.

I use to get root canals and crowns etc. and every time they ended up pulling them out within three months.

TEETH PROBLEMS

I recently had 2 bridges put in my mouth - 3 teeth upper and 3 teeth lower. They are both so painful. Has anyone else had this problem? If so, what did you do? I'm thinking of having all these teeth pulled. I'm wondering if I might be allergic to the bridge material???

I would greatly appreciate any feedback!

Thank you,

Reg

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I’d be very wary about root canal work after having a big

problem with one I had done about eight years ago. After spending BIG dollars

on the tooth I still have issues with it and wouldn’t even consider getting

another root canal done. I’d be inclined to get a second opinion because root

canals are so very expensive and aren’t always successful.

From: wkapikorn

[mailto:wkapikorn@...]

Sent: Thursday, 22 January 2009 2:37 PM

samters

Subject: Re: TEETH PROBLEMS

Tami, after your teeth were worked on, did they

become extremely painful? I told my dentist yesterday that I may just

have them pulled and so now he wants to do a root canal through the

bridge. My teeth did not bother me until the bridges were added.

Seems there are 4 of us with teeth issues. Maybe it's the

steroids and antibiotics.

From: Tami Klumpyan

<tami1961@...>

Subject: Re: TEETH PROBLEMS

samters

Date: Wednesday, January 21, 2009, 7:20 PM

Hi,

I've

had problems with my teeth since the Samters started. My dentist goes

crazy, because if he hits a nerve when he drills, my tooth dies. I

currently have false teeth.

I

use to get root canals and crowns etc. and every time they ended up pulling

them out within three months.

-----

Original Message -----

From: wkapikorn

samters@groups .com

Sent: Wednesday, January

21, 2009 9:37 AM

Subject: TEETH

PROBLEMS

I recently had 2 bridges put in my mouth - 3 teeth upper

and 3 teeth lower. They are both so painful. Has anyone else

had this problem? If so, what did you do? I'm thinking of

having all these teeth pulled. I'm wondering if I might be

allergic to the bridge material???

I would greatly appreciate any feedback!

Thank you,

Reg

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You can rule steroids out on my part. How about infection? I am starting to see such a clear picture of how horrible infection has been in my past, because since Oct. I have been free of an infection. My temp is starting to rise a bit and fatigue is setting in so my infectionless days may be coming to an end.

I don't think we ever truly get rid of the infection from taking antibiotics. I think it calms it down a bit, then the infection slowly starts to build it's little army and we think that it's just coming back, not realizing that it's been there all along, just waiting to get us. Okay, that's a bit dramatic, but I've found out recently how wonderful it is, after my last surgery to have a temp around 96.5-97.5 everyday. I've been bumpingup to 98.7 recently so it may be back, but surgery was the only thing in the last many years that completely took away my fever. Not all my surgeries did, just this last one.

Tami

TEETH PROBLEMS

I recently had 2 bridges put in my mouth - 3 teeth upper and 3 teeth lower. They are both so painful. Has anyone else had this problem? If so, what did you do? I'm thinking of having all these teeth pulled. I'm wondering if I might be allergic to the bridge material???

I would greatly appreciate any feedback!

Thank you,

Reg

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I have to add something that I just thought of. A few years ago I had an upper tooth on the left that was forever painful. If I got a sinus infection, that tooth really became painful. My dentist thought that I might have an abcess, so he did xrays. However, he did not find an abcess. What he concluded is that the roots in that area went into my sinuses and were effected by my constant, chronic sinus infections. I wouldn't doubt that there is a connection between teeth issues and Samters due to the chronic sinus infections we get. Here I am today, starting another round of Prednisone. Life is good!

Jane

From: Tami Klumpyan <tami1961verizon (DOT) net>Subject: Re: TEETH PROBLEMSsamters@groups .comDate: Wednesday, January 21, 2009, 7:20 PM

Hi,

I've had problems with my teeth since the Samters started. My dentist goes crazy, because if he hits a nerve when he drills, my tooth dies. I currently have false teeth.

I use to get root canals and crowns etc. and every time they ended up pulling them out within three months.

TEETH PROBLEMS

I recently had 2 bridges put in my mouth - 3 teeth upper and 3 teeth lower. They are both so painful. Has anyone else had this problem? If so, what did you do? I'm thinking of having all these teeth pulled. I'm wondering if I might be allergic to the bridge material???

I would greatly appreciate any feedback!

Thank you,

Reg

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Jane that’s reminded me of something my dentist has told me as

well. A few times I’ve thought I’ve had a toothache when in fact after visiting

the dentist, it turned out to be sinus and even he said that the sinus and

nerves and roots from the teeth are connected. I’d forgotten about this until

you mentioned it.

Look on the bright side of taking the prednisone, you’ll get

your sense of smell and taste back and it’s wonderful.

From: Jane Marino

[mailto:janesmarino@...]

Sent: Friday, 23 January 2009 12:13 PM

samters

Subject: Re: TEETH PROBLEMS

I have to add something that I just thought of. A

few years ago I had an upper tooth on the left that was forever

painful. If I got a sinus infection, that tooth really became

painful. My dentist thought that I might have an abcess, so he did

xrays. However, he did not find an abcess. What he

concluded is that the roots in that area went into my sinuses and were

effected by my constant, chronic sinus infections. I wouldn't doubt

that there is a connection between teeth issues and Samters due to the

chronic sinus infections we get. Here I am today, starting another

round of Prednisone. Life is good!

Jane

From: Tami Klumpyan

<tami1961verizon (DOT) net>

Subject: Re: TEETH PROBLEMS

samters@groups .com

Date: Wednesday, January 21, 2009, 7:20 PM

Hi,

I've

had problems with my teeth since the Samters started. My dentist goes

crazy, because if he hits a nerve when he drills, my tooth dies. I

currently have false teeth.

I

use to get root canals and crowns etc. and every time they ended up pulling

them out within three months.

-----

Original Message -----

From: wkapikorn

samters@groups .com

Sent: Wednesday,

January 21, 2009 9:37 AM

Subject: TEETH

PROBLEMS

I recently had 2 bridges put in my mouth - 3 teeth

upper and 3 teeth lower. They are both so painful. Has anyone

else had this problem? If so, what did you do? I'm thinking

of having all these teeth pulled. I'm wondering if I might be

allergic to the bridge material???

I would greatly appreciate any feedback!

Thank you,

Reg

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