Robin

[Guest guest]

Robin,

How long have you been in remission?

Joan Claffey

NJ

gehud119@... wrote:

>

> Hi, Robin,

> Good to hear from you. I asked where you were just last week.Yes, I was in

> an accident one month ago and still in a cast. Broke my arm. typing is a

> little difficult, but I get it done.

> Sorry to hear how bad your foot is. Is it healing? How long are thay saying

> you will be in a cast?

> Fell free to write to me personally any time. I hope that you stay in

> remission for many years.

> Be healthy and stop breaking bones!! lol

> HUgs,

>

> Ginger--AIH-IN FLA.

>

> Ginger-gehud119@...

>

>

>

[Guest guest]

You sure are lucky to have a doctor like yours, he is a rare breed, not many

of them

around here like that. Take care,

[Guest guest]

In a message dated 07/11/2001 1:16:17 AM Central Daylight Time,

plain_woman@... writes:

> May I ask what the other things are?

> Essics tea is VERY expensive here. $40 !!!!!! (the only size it comes in

> here).

>

> Rayla

>

_____________

Rayla,

I buy a bag of wild crafted mixture from a place in AR.

You add it to a gallon of water and brew.

I think the price is $10. Will have to check.

Edith

[Guest guest]

Robin: Ocean Isles is such a lovely little place. My aunt and uncle

had/have a place there. Their name is Beatty. Do you happen to know them.

They only vacation there about 6 months out of the year. They may have even

sold it. Phyllis

[Guest guest]

Sorry Phyllis, I don't know your aunt and uncle. But if they still have

a place here and you come to visit,

look me up! I do love it here!

Robin

Skinnywannabe@... wrote:

>Robin: Ocean Isles is such a lovely little place. My aunt and uncle

>had/have a place there. Their name is Beatty. Do you happen to know them.

>They only vacation there about 6 months out of the year. They may have even

>sold it. Phyllis

>

>

>

[Guest guest]

Shu

has 1 leg shorter than the other which she has one brace with a lift in it

i think it is the right leg shorter than the left

Robbin

[Guest guest]

Thanks for the well wishes. I'm sending them to you as well. As for the

" crazy but wonderful meds " , I take Tylenol & Cod. for pain which is neither

wonderful or effective. Am probably going to give a " long acting " pain med.

another try next month when I see my pain mgmt. doc. I've been taking pain

meds for the better part of 10 years and have yet to find anything that's

been really effective. These have been the best cuz when they work they work

for 4 hrs. I'm also taking Topamax which, unfortunately, has done nothing

whatsoever for pain but has been terrific for spasms so I rarely now take the

Flexeril. I highly recommend it if you suffer from spasms.

Ok, that's about it for now. Take good care sweetie.

Robin

[Guest guest]

In a message dated 1/2/03 6:58:48 PM, Ckelly@... writes:

<< Oh, Robin, on the email thing. Since this is an email list, and you are

on

individual emails, you will indeed get every single email that is sent to

the list. If this is getting to be too much, you can go to

www. and change your membership to digest...but let me warn

you now, folks that don't cut their excess junk off before replying will

drive you to the insane asylum while on digest. >>

Ok, have no idea what that means but I have to admit I'm curious. Was off the

computer for 2 days and there were 148 emails!!!!!!! It's out of control.

[Guest guest]

In a message dated 1/5/03 7:04:08 PM, no_reply writes:

<< That'll teach you to not be on your computer!

>>

No s**t lol

[Guest guest]

That'll teach you to not be on your computer!

8o)

>

> In a message dated 1/2/03 6:58:48 PM, Ckelly@v... writes:

>

> << Oh, Robin, on the email thing. Since this is an email list,

and you are

> on

> individual emails, you will indeed get every single email that is

sent to

> the list. If this is getting to be too much, you can go to

> www. and change your membership to digest...but let

me warn

> you now, folks that don't cut their excess junk off before

replying will

> drive you to the insane asylum while on digest. >>

>

> Ok, have no idea what that means but I have to admit I'm curious.

Was off the

> computer for 2 days and there were 148 emails!!!!!!! It's out of

control.

[Guest guest]

Deb..... this is Billie..... I got your last post to Robin, saying you sent

me a response in an earlier post. Is it possible for you to send me that post

again. I think one of my kids must have deleted it and I didn't get a chance

to read it.

I have been seeing the homeopath/accupuncturist and have one more session

with him tomorrow before heading up to Maine. He'a been helping me alleviate

built up stress, with accupuncture and body work. I'm going to do some testing

to see if I am deficient in any vitamins and minerals, including hair analysis,

and communicate long distance with him.

I've been doing alot of reading as well. ithyroid and daisyelaine's website

which is also terrific. I'm so happy that they have taken the time to help us

all!

Billie

[Guest guest]

" The first two days were great but then he started with the intense anger

and

some aggression as well as lack of focus with conversation and homework "

Robin,

My initial thoughts on this are that either 3 AFP is way too much and

causing this reaction (my son gets this way with too much peptizyde/or AFP),

or of course the dreaded reaction to gluten and casein. Or also since he was

at a birthday party, he got too much sweets and artificial coloring and has

some yeast going on.

I think one way of figuring out if it is reaction to the 3 AFP's is to give

him 3 AFP's with a gfcf meal, and see if you get the same hyperness and

aggression. This may not be the only way, but just something I was thinking

about. Also consider upping or adding a good probiotic.

Let us know what you figure out.

[Guest guest]

Robin,

Thanks for pointing in some direction and places to research...

you rock!!

Biro

jaam1224@...

Memory Keeping at Its Best

Don't your priceless memories and photos deserve

more than a shoe box? I can help quick and easy.

Just ask, " How? " !

[Guest guest]

Hey Ji, if you want you can read my replys I left for and Viv

to get a little more of an idea where I'm coming from.

The idea of having a medical university backing my claim sounds good,

but how much will something like that cost and how would I get an

appointment there? I have very limited funds as I've mentioned in my

other replies.

Thanks for replying.

Robin

> robin,

> having been down your road and living in South Carolina, what will

help your

> case the most is to got a universty medical school and find a very

well

> respected spinal specialist to back (so to speak)up your claim.

Hopkins in Baltimore

> comes to mind as does Duke in North Carolina because yhe better

doctors carry

> all the sway with the ssi boards. They do everything from the MRI's

to

> discograms if necessary. this way there are no questions for the

board to deny your

> claim and by going to one of these institutions you may just find a

great doc

> who can give you some help.

> ji

>

>

>

[Guest guest]

-Robin, I know this is a little off the subject but I also have a

child with a skeletal dysplasia. (SEDc) What type does your son

have? Just curious.

mom to Meaghan 8, Madison 5 (SEDc), 15 mo plagio

-- In Plagiocephaly , " Robin " <roblay@e...> wrote:

> Hello, !

> My son, , has had a DOC band for 12 weeks. (He is now 11

> months.)Kaiser Permanente covered the entire cost of the helmet,

> except for a $10.00 co-pay for each visit for fittings. Kaiser

> originally wanted us to go to another specialist, but since the

> genetist sees at Children's Hospital in DC recommended the

DOC

> band, we requested to use Cranial Technologies instead.

> I think the two things that have helped us get every specialist

> referral approved that we have requested are: sees a genetist

> who gives us letters of medical necessity and that Kaiser assigned

us

> a pediatric case manager(thanks to the regular Kaiser pediatrician

he

> sees)who helps us quickly get referrals for visits to other

> specialists.

> has other issues (skeletal dysplaysia, hypotonia) and

receives

> physical therapy which Kaiser also pays for. He has seen at least

ten

> specialists and five have been outside of Kaiser. We have been very

> satified with the treatment has received through Kaiser. (For

> myself, on the other hand...)

> I hope this helps.

> Robin Laybourne

> Sterling, VA

>

>

> Hello everyone, I am new here. Our little boy(Jaxon)is 11weeks

old and

> > has Torticollis and Plagiocephaly. We started taking him to

physical

> > therapy last week. We would like to get the DOC band for him but

we

> > just found out that we will be switching insurance providers

this next

> > month so we need to wait. We are switching to Kaiser Permanente.

Does

> > anyone else have Kaiser Insurance and does it cover the DOC band

or

> > any other helmets? I am worried that Kaiser will not cover any

> > treatments. I would love any information you could give me about

> > Kaiser's coverage.

> >

> > Thanks much,

> > Muramoto

> > San Diego, Ca

[Guest guest]

Hi, Robin,

Did you know that you can go to the drugstore and pick up hearing aid

batteries to hold you over until you get your implant plus batteries from

cochlear? I did this just last week for the first time, and am awed how well

these

Ray-O-Vac batteries are working. The distinction with the cochlear batteries

is better for me -but the drugstore things are perfect in a pinch.

) Jackie

[Guest guest]

I used to work with a Robin . A tall, shapely, blonde and beautiful Occupational Therapist. Could have been a model...Is that you? Catmama

__________________________________________________

[Guest guest]

Did you see my photo? LOL. I don't think it was me. I haven't been

shapely (if at all) since I was 19-20. I'm a nurse, not an

occupational therapist. But thanks for the compliment Hopefully

someday you can say that about ME! Maybe next year. But you were

right on the blonde & tall bit. Had me going when I read my

name...lol.

> I used to work with a Robin . A tall, shapely, blonde and

beautiful Occupational Therapist. Could have been a model...Is that

you? Catmama

>

>

>

>

> __________________________________________________

>

[Guest guest]

MY OTHER ROBIN REED HAD A DELIGHTFUL PERSONALITY AS WELL. WHAT IS THE WEBSITE SO I CAN SEE YA'LLS PICTURES? CATMAMA

Robin <robinreed@...> wrote: Did you see my photo? LOL. I don't think it was me. I haven't been shapely (if at all) since I was 19-20. I'm a nurse, not an occupational therapist. But thanks for the compliment Hopefully someday you can say that about ME! Maybe next year. But you were right on the blonde & tall bit. Had me going when I read my name...lol.> I used to work with a Robin . A tall, shapely, blonde and beautiful Occupational Therapist. Could have been a model...Is that you? Catmama> > > > > __________________________________________________>

[Guest guest]

I don't know how to post my picture in the photo album on this

website, but my pic is easy...I think you just click on my name

love2getfree and you can look at my profile, that's where I have my

most current picture. Only half body pic though...too embarrassed to

show the rest.

> > I used to work with a Robin . A tall, shapely, blonde and

> beautiful Occupational Therapist. Could have been a model...Is

that

> you? Catmama

> >

> >

> >

> >

> > __________________________________________________

> >

[Guest guest]

SO IS IT www,Dr-Acevesbandsters ? CATMAMA

Robin <robinreed@...> wrote: I don't know how to post my picture in the photo album on this website, but my pic is easy...I think you just click on my name love2getfree and you can look at my profile, that's where I have my most current picture. Only half body pic though...too embarrassed to show the rest. > > I used to work with a Robin . A tall, shapely, blonde and > beautiful Occupational Therapist. Could have been a model...Is that > you? Catmama> > > > > > > > > > __________________________________________________> >

[Guest guest]

Hi Deb,Actually it hasn't gotten any easier, and I deal with it on a day to day basis. I know I am way ahead of the game most of the time, but it's almost like my body says "I dare you to give me liquids again...ha..ha...I will torture you with hunger pangs if you try". So I just go easy on whatever is around. I love spicy food, but haven't been back to my normal on that yet because I'm not sure how my lapband will like it. Mostly I would say I am eating mushy foods. Not the watered down kind, but the kind that 'sticks' with you. And I have had home-made sandwiches as well, but usually the bread gets to me after a few bites. I load it with everything though, like cooked ham, swiss cheese, red onion, lettuce, pickles, tomato, mustard, and a little miracle whip. It kinda makes it into a salad sandwich...lol. And I did have a little taco salad the other day as well. That was about the spiciest thing I have had yet. It had medium salsa on it instead of mild. That's all I had in the fridge. I take that back, I have had spicier. Stupid Burger King screwed up and gave me buffalo sauce instead of honey mustard with my chicken fries I had for lunch (I didn't have time to pack today, so went for protein, instead of a milkshake). Anyways I had the small size, and didn't drink with it because it wasn't very big to have to worry about overstretching the pouch, and I needed it to last me for 5 hours at work, and it did. God was i ever thirsty when I got to leave! I drank about 1 liter of SF Kool-Aid..lol . On another note, I think salads kinda turn slimy when you chew it so much, and you can't even feel it go through the band at all! I was surprised. I really liked salads before, and didn't want to have to give them up. Oh well, I don't wanna keep going on like I am a total rebel here, mostly I have done mushies, but I'll also tell the truth about the others. I think it's a necessary component to the healing of the mind as well as the body. I wish I could do better, but I will do the best with what I can. Hope you get to eating again soon! I can't wait to get a fill. I feel like I am on standby for lift-off or something??? Robin343/332/1709/26/05>> Robin, how have you been doing? Has sticking to the post-op diet > become any easier for you?> > Deborah F.>

[Guest guest]

could you post that study .. also I am interested in any write ups that talk about levels higher than 100 as positive as well as places that no longer are using it..In a message dated 8/15/2007 2:48:25 P.M. Eastern Daylight Time, arein862@... writes:

There are several articles posted to the internet that discuss inhalation as a source of alcohol consumption, including gasoline products as well as alcohol based hand sanitizers. One study I recently read showed significant uptake of alcohol and thus elevated EtG levels from using hand sanitizer in enclosed space.

Get a sneak peek of the all-new AOL.com.

[Guest guest]

Could you provide any scientific reasoning WHY a slow metabolism or chronic constipation would play any role in EtG production?

robin

HI ROBIN

JUST WOUNDERING IF FILLING UP MY CAR BEFORE I TEST COULD CAUSE ME TO HAVE A POSITIVE. I WENT TO A GAS STATION AND SAW A STICKER ON THE PUMP THAT SAID 35%ETHANOL ON IT. MY HEAD STARTED TO SPIN. IM THE ONE WHO HAD FOUR POSITIVES BELOW 400. ALL THIS JUST DRIVES ME INSAINE. I DO A FOOD DIARY, EAT RAW OR FRESH FOODS, DONT EAT PROCESSED FOODS AND I STILL GET POSITIVES. THE TOXOCOLOGIST TOLD ME TO TAKE MY CYMBALTA AFTER I CALL TO TEST, DRINK 3L OF WATER A DAY, AND STAY AWAY OF CARBS. SINCE I HAVE FOLLOWED HIS INSTRUCTIONS I HAVE NOT HAD ANOTHER POSITIVE SINCE MAY. OH JUST SO THAT YOU ALL KNOW I DONT DRINK FLUIDS AFTER 400 PM SO THAT MY PEE IS NOT DILUTE. OF COURSE I HAVE HAD THOSE TOO. ANOTHER QUESTION ROBIN, DO YOU THINK THAT HAVING A SLOW METABOLISM AND HAVING CHRONIC CONSTIPATION PLAYS A ROLE. THE TOXOCOLIGIST THINKS SO. GEES THE MIND IS A TERRIBLE THING. IM JUST SPINNING OVER THIS. AMY S

le Glenn <rndanisbcglobal (DOT) net> wrote:

I'm still trying to catch up on all the emails since my trip and I noticed that Robin posed a question about Prilosec. I did take otc Prilosec for maybe 3 days prior to testing positive, Robin can this affect the Etg level? I am probably grasping at straws here but if chocolate liquor did not cause my positive then I am really lost.

Danirobin murray <remurraymd > wrote:

hi adrianne, during your GI issues when you were testing positive did you take liver metabolized drugs like h2 agents prilosec otc liver metabolized drugs,.any other liver metabolized drugs could have had a role to upregulate EtG production?..the positive urine alcohols definitely go along with yeast candida overgrowth and autobrewing..i might consider only with md help tapering/stopping all liver metabolzed drugs you can test outside the half life of anything you cannot stop,watch etoh exposure carefully purell especially...consider probiotic therapy shown to be of value in reducing abnormal gut flora including yeast in numerous gastroenterology articles..dr skipper has an autobrewery testing protocol but am not aware that anyone has "officially" been diagnosed with it. review www.ethylglucuronide.com for more info...welcome aboard your positives are pretty low level...i might get a little proactive with some probiotics and above you should stop pulling those low level positives...collection errors delay heat could explain yeast overgrowth and false positive urine alcohols but should not cause false positive EtG readings per dr skipper's site again....hang in there,regards,r

.. <gary.beckverizon (DOT) net> wrote:

i have had a positive ETG with level of 380, 440 ( 2 different labs,same sample) and afer that just positive urine alcohol levels of ,03.then .141 with negative ETG. i am a female physicianIN the diversion program who is sober 3 yrs. interestinglyenough for the first 3 yrs in the program all my tests were negative.The only variables that changed are that we switched form NWT to Quest Diagnostics this year. Another isssue is that during the time of the positive tests I have had GI issues, but nothing found on traditional medical tests. The only dx I was given was 3 yrs prior from a naturopathic MD of intestinal candida overgrowth sydrome.Also, different was that our urine collectors take the samples at their mobile home on days when we don't have diversion groups. This summer it has been 108 degrees, and i found out that they do not refrigerate the samples after collecting them and do not use air conditioning in their home. Dr Skipper said that I may have auto brewery syndrome. There are so many variables, that i don;t know what to make of it. I am going to try not eating as much carbs, and I've thrown out all alcohol containing household items etc any feedback and want to hear other's storiesne beck ( using husband' s computer but it is both of ours)

Choose the right car based on your needs. Check out Autos new Car Finder tool.

[Guest guest]

There are several articles posted to the internet that discuss inhalation as a

source of alcohol consumption, including gasoline products as well as alcohol

based hand sanitizers. One study I recently read showed significant uptake of

alcohol and thus elevated EtG levels from using hand sanitizer in enclosed

space.

---- amy shank <amyshankrn@...> wrote:

> HI ROBIN

> JUST WOUNDERING IF FILLING UP MY CAR BEFORE I TEST COULD CAUSE ME TO HAVE A

POSITIVE. I WENT TO A GAS STATION AND SAW A STICKER ON THE PUMP THAT SAID

35%ETHANOL ON IT. MY HEAD STARTED TO SPIN. IM THE ONE WHO HAD FOUR POSITIVES

BELOW 400. ALL THIS JUST DRIVES ME INSAINE. I DO A FOOD DIARY, EAT RAW OR FRESH

FOODS, DONT EAT PROCESSED FOODS AND I STILL GET POSITIVES. THE TOXOCOLOGIST TOLD

ME TO TAKE MY CYMBALTA AFTER I CALL TO TEST, DRINK 3L OF WATER A DAY, AND STAY

AWAY OF CARBS. SINCE I HAVE FOLLOWED HIS INSTRUCTIONS I HAVE NOT HAD ANOTHER

POSITIVE SINCE MAY. OH JUST SO THAT YOU ALL KNOW I DONT DRINK FLUIDS AFTER 400

PM SO THAT MY PEE IS NOT DILUTE. OF COURSE I HAVE HAD THOSE TOO. ANOTHER

QUESTION ROBIN, DO YOU THINK THAT HAVING A SLOW METABOLISM AND HAVING CHRONIC

CONSTIPATION PLAYS A ROLE. THE TOXOCOLIGIST THINKS SO. GEES THE MIND IS A

TERRIBLE THING. IM JUST SPINNING OVER THIS. AMY S

>

>

>

>

>

> le Glenn <rndani@...> wrote:

> I'm still trying to catch up on all the emails since my trip and I

noticed that Robin posed a question about Prilosec. I did take otc Prilosec for

maybe 3 days prior to testing positive, Robin can this affect the Etg level? I

am probably grasping at straws here but if chocolate liquor did not cause my

positive then I am really lost.

> Dani

>

> robin murray <remurraymd@...> wrote:

> hi adrianne, during your GI issues when you were testing positive did

you take liver metabolized drugs like h2 agents prilosec otc liver metabolized

drugs,.any other liver metabolized drugs could have had a role to upregulate EtG

production?..the positive urine alcohols definitely go along with yeast candida

overgrowth and autobrewing..i might consider only with md help

tapering/stopping all liver metabolzed drugs you can test outside the half life

of anything you cannot stop,watch etoh exposure carefully purell

especially...consider probiotic therapy shown to be of value in reducing

abnormal gut flora including yeast in numerous gastroenterology articles..dr

skipper has an autobrewery testing protocol but am not aware that anyone has

" officially " been diagnosed with it. review www.ethylglucuronide.com for more

info...welcome aboard your positives are pretty low level...i might get a little

proactive with some probiotics and above you should stop pulling those low

> level positives...collection errors delay heat could explain yeast overgrowth

and false positive urine alcohols but should not cause false positive EtG

readings per dr skipper's site again....hang in there,regards,r

>

> . <gary.beck@...> wrote:

> i have had a positive ETG with level of 380, 440 ( 2 different labs,

> same sample) and afer that just positive urine alcohol levels

> of ,03.then .141 with negative ETG. i am a female physician

> IN the diversion program who is sober 3 yrs. interestingly

> enough for the first 3 yrs in the program all my tests were negative.

> The only variables that changed are that we switched form NWT to

> Quest Diagnostics this year. Another isssue is that during the time

> of the positive tests I have had GI issues, but nothing found on

> traditional medical tests. The only dx I was given was 3 yrs prior

> from a naturopathic MD of intestinal candida overgrowth sydrome.

> Also, different was that our urine collectors take the samples at

> their mobile home on days when we don't have diversion groups. This

> summer it has been 108 degrees, and i found out that they do not

> refrigerate the samples after collecting them and do not use air

> conditioning in their home.

> Dr Skipper said that I may have auto brewery syndrome. There are so

> many variables, that i don;t know what to make of it. I am going to

> try not eating as much carbs, and I've thrown out all alcohol

> containing household items etc any feedback and want to hear other's

> stories

>

> ne beck ( using husband' s computer but it is both of ours)

>

>

>

>

>

>

>

>

>

>

>

>

>

> ---------------------------------

> Choose the right car based on your needs. Check out Autos new Car

Finder tool.