Re: Medical question

[Guest guest]

Hello Marcia, this is Debi Hoggan. When your doctor

said there was 'slippage' did he say anything about

the vertebrae itself?

Our daughter had her forum magnum way too tight, and

there was some 'scarring build up.' That was removed

when she had her FM, and her top two vertebrae were

shaved away ONLY where the tightness was showing.

I will NEVER forget when Mandy was a young baby. She

was just able to pick her head up and pull herself to

a kneel on her cradle. She was younger than one. I

was working on my bed with some teaching papers for

work, and Mandy was giggling. Jim (my husband) and I

was laughing when all of a sudden Mandy turned her

head almost a full 360 degrees!!!!! No one ever

believed us when we tried to tell them, but it

honestly did happen! Later, when her FM problem was

discovered, the neurosurgeons did tell us that could

have been possible for a very short time when she was

young, because of how things were when they went in to

do her FM. I guess I never asked for them to explain

because I was excited to know someone finally

acknowledged it! )

Our prayers are with you and your .

Love from the hogganclan in Utah

--- Marcia Frederick <emdwarf@...> wrote:

> Hi,

> I'm Marcia, the mother of 3 year old (achon)

> and

> I was wondering if any of you could help me with a

> medical question.

> Last year after an X-ray 's neurologist noticed

> some minor " slippage " when she moved her head.

> Basically, her head is not connected exactly right

> to

> the rest of her body. He noticed it a little when

> he

> performed a foramen magnum decompression at 4

> months.

> A few weeks ago had a follow-up X-ray and the

> slippage was more definite when she looked up. She

> is

> scheduled for a MRI on Sept. 24th. Her doctor said

> that if there is tissue build-up that it will

> require

> a fusion, but if there is not tissue build-up that

> we

> would just monitor her for numbness, clumbiness,

> etc.

> I was kind of in shock at the news and didn't get

> all

> of the medical terminology.

> If any of you have any experience with this or any

> knowledge, please let me know.

> Thanks, in advance,

> Marcia

>

> __________________________________________________

>

[Guest guest]

Hi, Marcia

I'm Pam and am the mother of 6 year-old Rosie (achondroplasia and Down syndrome)

and 4 year-old (achondroplasia). I was surprised at the timing of your

e-mail, as I am taking Rosie to Cedars-Sinai in the morning for Dr. pour (

a WONDERFUL neurosurgeon) to do a flexion/extension study of her C-spine under

fluoroscopy to check for the exact same problem. Rosie had an MRI last week that

was inconclusive. The anesthesiologist was afraid to flex and extend her neck

too far while she was under general anesthesia. If it shows what they call

" odontoid hypoplasia " , then she will need a fusion, too. Please let us know

about 's results......

Pam Graham

Medical question

Hi,

I'm Marcia, the mother of 3 year old (achon) and

I was wondering if any of you could help me with a

medical question.

Last year after an X-ray 's neurologist noticed

some minor " slippage " when she moved her head.

Basically, her head is not connected exactly right to

the rest of her body. He noticed it a little when he

performed a foramen magnum decompression at 4 months.

A few weeks ago had a follow-up X-ray and the

slippage was more definite when she looked up. She is

scheduled for a MRI on Sept. 24th. Her doctor said

that if there is tissue build-up that it will require

a fusion, but if there is not tissue build-up that we

would just monitor her for numbness, clumbiness, etc.

I was kind of in shock at the news and didn't get all

of the medical terminology.

If any of you have any experience with this or any

knowledge, please let me know.

Thanks, in advance,

Marcia

__________________________________________________

[Guest guest]

Jane,sluge...is just that..a very thick liquid,but can still cause alot of

pain!!!!! The pain usually happens after a fatty meal when you haven't eaten

fat in awhile.They are probabaly going to do a hida scan,to check your

complete bile drainage system.Hope this helps.VIKKI-RN-NC/SC MGB 06/07/2002

209/151.

[Guest guest]

Vikki,

Thanks for the information. It sure helps to have some idea what is going

on with my body. It is not as scary.

jane

Re: Medical question

>

> Jane,sluge...is just that..a very thick liquid,but can still cause alot of

> pain!!!!! The pain usually happens after a fatty meal when you haven't

eaten

> fat in awhile.They are probabaly going to do a hida scan,to check your

> complete bile drainage system.Hope this helps.VIKKI-RN-NC/SC MGB

06/07/2002

> 209/151.

>

>

>

[Guest guest]

Jane,

Are you taking Actigall 300 mg twice daily? If not you should be on it

now. Your weight is right on track for your postop dates. Don't even

think about a revision for 6-8 more months.

Dana Thorneburg, NP

CLOS

[Guest guest]

Dana,

Yes, Im taking Actigall twice a day.

OK, will stop thinking about a revision for now.

I just seem to be losing at such a slow rate.

Thanks for your help.

jane

RE: Medical question

> Jane,

> Are you taking Actigall 300 mg twice daily? If not you should be on it

> now. Your weight is right on track for your postop dates. Don't even

> think about a revision for 6-8 more months.

> Dana Thorneburg, NP

> CLOS

>

>

>

>

>

>

>

[Guest guest]

Greetings,

Your kiddo sounds like mine. In 1994, my daughter was given a

trache. I wish I had known about HBOT then. I would have suctioned

her out, kept her in a 45 degree angle for sleeping, anything to have

gotten the treatments before the trache. Just keep on keeping on. I

know it's hard to think that something might get worse before it gets

better. I suppose if we could guarantee the results by designing

where in the brain the oxygen should go, the whole process would be

easier, but for some reason those brains and bodies get the oxygen

where it is needed most first. We can only sit back and watch for

the evidence clinically. It's agony, I know. Sometimes the changes

our loved ones go through in this healing process are more difficult

to deal with, mostly because we're so used to the status quo and have

a sort of comfort that goes with it all. When change happens to

them, we have to change, and in many cases, everything changes in our

lives. If we can have a positive attitude and grow along with them,

we might be able to recognize a little normalcy in our " special "

loved ones. But of course, what is " normal " except just another

setting on the clothes dryer?

With Much Respect,

Marlena Orndorff

> My daughter is ten years old, weighs about 50 pounds (23.3 kg) and

> has severe CP. She has spastic quad CP and a GT. She does not sit

> or roll and has poor head control. She is dependent for all of her

> care. She is not an oral feeder but does have a good cough.

> However, she does " pool " her saliva and unless her chin is somewhat

> tucked her breathing sounds " wet. " She began HBOT the second week

of

> June and her overall tone has decreased markedly. She has

increased

> shoulder flexion and horizontal abduction and at times improved

elbow

> extension. She has better external rotation in her hips and knee

> extension. Her torso has always had less tone than her extremities

> and now markedly so with improved thoracic extension (although

mostly

> passive). Her pelvis moves better and seems more separate from her

> torso.

>

> The only thing that has not improved is her breathing. She has

> always done this in the past but now even more so will extend her

> neck and make awful sounds when she is breathing. I can reposition

> her head so that she sounds OK but now that she is moving more it

is

> more difficult to keep her in position. I do not think she has

> increased secretions.

>

> My question: If her overall tone has decreased, is she losing tone

> in perhaps her trachea also and/or the muscles in her neck that

> control swallowing? Today will be her 35th dive and I have pretty

> much decided that tomorrow will be her last. It bugs me not to

> complete the 40 dives, I want her to have the full benefit from the

> O2. I plan to see how she is in October and begin the dives again.

> Has anyone else had experience with this? I talked to her PT and

she

> believes that she is simply having to relearn these skills. But is

> she safe? Thank you in advance for your help.

>

> Lynn

> Mom to Mia and Diamond

> HBOT at Hyperbaric Healing Institute in KC, MO

>

> PS: If anyone knows of someone who could answer my question but is

> not on this list, please forward this message or e-mail me

> privately. Thank you again.

[Guest guest]

http://www.akronchildrens.org/depts-services/skel_dysplasia/

Teriana,

The Akron Center for Skeletal Dysplasia is a good place to look. I attached

the link above.

I hope you find your answers. Take care!

Craig

" No dreamer is ever too small; no dream is ever too big. "

http://www.craig-spoon.net

http://www.myspace.com/craig_spoon

[Guest guest]

Wow this is so true for me. I feel like I've been studying medicine for nine

years. Although I had mold colonizing in my body and was also exposed to a sick

building my illness was primarily related to repeated exposures to gadolinium.

I will let everyone know what I find out that is if GE doesn't come after me and

tell me to stop.

--- In , " Jack Thrasher, Ph.D. " <toxicologist1@...>

wrote:

>

> Individuals ill from exposure to water damage building (WDB) are always

assuming that fungi are causing their health problems. This is not necessarily

correct. WDB contain both fungi and bacteria and the by-products of the fungi

and bacteria. Many of the bacteria are pathogens, e.g. Streptococcus,

Staphylococcus, Mycobacterium, Streptomyces. Therefore, the bacteria may be

causing the infection, not necessarily the fungi. All of this is discussed on

my web site: www.drhrasher.org

>

> Examining the eyes, note, throat, etc means they are looking for obvious

problems, which may not be apparent.

>

> Listening to the lungs is for rales and bubbling sounds. This does not occur

necessarily in Aspergillosis of the lungs. It is an attempt only to rule in or

out possible pneumonia by listening for sounds in the lungs. Also, looking into

the nasal cavity does not necessarily reveal chronic rhinosinusitis.

>

> I recommend that doing one's home work is necessary.

>

> Jack-Dwayne: Thrasher, Ph.D.

> Toxicologist/Immunotoxicologist/Fetaltoxicologist

> www.drthrasher.org

> toxicologist1@...

> Off: 916-745-4703

> Cell: 575-937-1150

>

>

> L. Crawley, M.ED., LADC

> Trauma Specialist

> sandracrawley@...

> 916-745-4703 - Off

> 775-309-3994 - Cell

>

>

>

>

> This message and any attachments forwarded with it is to be considered

privileged and confidential. The forwarding or redistribution of this message

(and any attachments) without my prior written consent is strictly prohibited

and may violate privacy laws. Once the intended purpose of this message has been

served, please destroy the original message contents. If you have received this

message in error, please reply immediately to advise the sender of the

miscommunication and then delete the message and any copies you have printed.

Thank you in advance for your compliance.

>

>

>

>

[Guest guest]

Donna,

I'm not a physician and I'm glad Dr Thrasher has already

responded. Here is my experience with throat cultures.

Throat cultures are for strep and staph. Unless the physician

specifically asks for something different that is what you will get

even if other things are growing.

Back when I was just starting to figure some of this out I got a lab

report that was negative for a throat culture. My throat was very

sore, I felt horrible, and my GP was concerned. I called the lab

and they assured me the results were negative. Here's the

conversation. It was such an eye opener that I vividly remember it

30 years later.

" Are you telling me nothing grew on the culture plate? "

" Oh there's lots growing, so much that it pushed the lid off. "

" How can that be a negative result? "

" It's negative for staph and strep. "

" But what about the other stuff pushing the lid off. What's that? "

" I wasn't asked to identify it but it's usually yeast. "

" Did you report this to the doctor? "

" No, because he didn't ask for anything but staph and strep. "

" But don't you think you should? He might need to know. "

" I'm not a doctor and must strictly follow their instructions. "

Finally, mold infections are rare compared to the myriad other

health effects. Infections are when a live organism (mold, yeast,

bacteria) is inside the body and is reproducing - making babies.

They can be inside the body and not reproducing and that is not

an infection but can still be a serious problem. But it is not an

infection. They can be outside the body and be a serious

problem. And, as Dr Thrasher said, don't overdue the mold.

There's more to water damaged buildings than only mold.

Carl Grimes

Healthy Habitats LLC

-----

Would a throat culture show a positive for mold infection if you have

what

appears to be a severe case of larangytis?

Can they distinguish an infection when they look in your eyes, ears,

throat ,

and nose ? And besides a throat culture- how else can they tell you're

suffering from a mold (fungal right ?) infection? I

Can they tell by listening to your lungs if you have a moldissue? When

you

weeze that means infection.

----------

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[Guest guest]

Thanks Carl for the additional information. I am currently working on my web

site. People can go the web site and look at the section on bacteria in damp

indoor spaces. I have put up information on the Actinobacteria. I have not yet

developed the information on Streptococcus, Staphylococcus and bacilli. In

addition there are Gram negative bacteria, e.g. Proteus and Pseudomonas that are

present along with some others that escape my brain just now. I guess and just

had some brain gas.

The site for all: www.drthrasher.org. It is under construction so have

patience.

Jack-Dwayne: Thrasher, Ph.D.

Toxicologist/Immunotoxicologist/Fetaltoxicologist

www.drthrasher.org

toxicologist1@...

Off: 916-745-4703

Cell: 575-937-1150

L. Crawley, M.ED., LADC

Trauma Specialist

sandracrawley@...

916-745-4703 - Off

775-309-3994 - Cell

This message and any attachments forwarded with it is to be considered

privileged and confidential. The forwarding or redistribution of this message

(and any attachments) without my prior written consent is strictly prohibited

and may violate privacy laws. Once the intended purpose of this message has been

served, please destroy the original message contents. If you have received this

message in error, please reply immediately to advise the sender of the

miscommunication and then delete the message and any copies you have printed.

Thank you in advance for your compliance.

[Guest guest]

TY both for your responses. There's alot going on here and I really appreciate u

taking the time to explain this to me.

________________________________

From: Carl E. Grimes <grimes@...>

Sent: Wed, July 21, 2010 6:01:03 PM

Subject: Re: [] Medical question

 

Donna,

I'm not a physician and I'm glad Dr Thrasher has already

responded. Here is my experience with throat cultures.

Throat cultures are for strep and staph. Unless the physician

specifically asks for something different that is what you will get

even if other things are growing.

Back when I was just starting to figure some of this out I got a lab

report that was negative for a throat culture. My throat was very

sore, I felt horrible, and my GP was concerned. I called the lab

and they assured me the results were negative. Here's the

conversation. It was such an eye opener that I vividly remember it

30 years later.

" Are you telling me nothing grew on the culture plate? "

" Oh there's lots growing, so much that it pushed the lid off. "

" How can that be a negative result? "

" It's negative for staph and strep. "

" But what about the other stuff pushing the lid off. What's that? "

" I wasn't asked to identify it but it's usually yeast. "

" Did you report this to the doctor? "

" No, because he didn't ask for anything but staph and strep. "

" But don't you think you should? He might need to know. "

" I'm not a doctor and must strictly follow their instructions. "

Finally, mold infections are rare compared to the myriad other

health effects. Infections are when a live organism (mold, yeast,

bacteria) is inside the body and is reproducing - making babies.

They can be inside the body and not reproducing and that is not

an infection but can still be a serious problem. But it is not an

infection. They can be outside the body and be a serious

problem. And, as Dr Thrasher said, don't overdue the mold.

There's more to water damaged buildings than only mold.

Carl Grimes

Healthy Habitats LLC

-----

Would a throat culture show a positive for mold infection if you have

what

appears to be a severe case of larangytis?

Can they distinguish an infection when they look in your eyes, ears,

throat ,

and nose ? And besides a throat culture- how else can they tell you're

suffering from a mold (fungal right ?) infection? I

Can they tell by listening to your lungs if you have a moldissue? When

you

weeze that means infection.

----------

The following section of this message contains a file attachment

prepared for transmission using the Internet MIME message format.

If you are using Pegasus Mail, or any other MIME-compliant system,

you should be able to save it or view it from within your mailer.

If you cannot, please ask your system administrator for assistance.

---- File information -----------

File: DEFAULT.BMP

Date: 16 Jun 2009, 0:10

Size: 358 bytes.

Type: Unknown

[Guest guest]

Ive taken a throat culture for yeast before

In a message dated 7/21/2010 9:01:12 P.M. Eastern Daylight Time,

grimes@... writes:

Donna,

I'm not a physician and I'm glad Dr Thrasher has already

responded. Here is my experience with throat cultures.

Throat cultures are for strep and staph. Unless the physician

specifically asks for something different that is what you will get

even if other things are growing.

Back when I was just starting to figure some of this out I got a lab

report that was negative for a throat culture. My throat was very

sore, I felt horrible, and my GP was concerned. I called the lab

and they assured me the results were negative. Here's the

conversation. It was such an eye opener that I vividly remember it

30 years later.

" Are you telling me nothing grew on the culture plate? "

" Oh there's lots growing, so much that it pushed the lid off. "

" How can that be a negative result? "

" It's negative for staph and strep. "

" But what about the other stuff pushing the lid off. What's that? "

" I wasn't asked to identify it but it's usually yeast. "

" Did you report this to the doctor? "

" No, because he didn't ask for anything but staph and strep. "

" But don't you think you should? He might need to know. "

" I'm not a doctor and must strictly follow their instructions. "

Finally, mold infections are rare compared to the myriad other

health effects. Infections are when a live organism (mold, yeast,

bacteria) is inside the body and is reproducing - making babies.

They can be inside the body and not reproducing and that is not

an infection but can still be a serious problem. But it is not an

infection. They can be outside the body and be a serious

problem. And, as Dr Thrasher said, don't overdue the mold.

There's more to water damaged buildings than only mold.

Carl Grimes

Healthy Habitats LLC