hi

July 11, 2005

Marcy,

I was told after we applied and got accepted (the first time) that my having the

psychiatric Dx was the deciding factor. SS only pays for a psychologist eval.

and they way I see it is one psychologist can trump another... but neither can

change an MD Dx.. the psychiatrist. Our DDD (Division of developmental

disabilities) evaluation consisted of a psychiatrist, child psychologist and

social worker. That was fun especially when my DS and the psychiatrist began a

never ending conversation about baseball in the 20's and 30's..players, stats,

ball parks. A true Aspie trait... while I spoke to the others.

Good Luck

( ) Re: Hi

>

> Hi Marcy,

>

> In response to your questions about SSI, I have been trying for

3

> years now to obtain SSI for my son. I think it's much easier

when you

> have a confirmed diagnosis though. When we applied all I had

was ADHD

> as a diagnosis. After pushing for awhile, and having Regional

Center

> provide testing, the docs are now in agreement. There are ,

however,

> income limits for SSI. Hope this helps you.

>

> Larraine

>

> I

> > have a particular question for all you hard working parents

out

> > there. I am preparing to talk to an Aspergers Support group

and one

> > of the areas of interest for the parents is the possibility to

apply

> > for SSI benifits. I was hoping that some of you would share

your

> > stories if you have any. I want to hear all aspects so that I

can

> > best help these parents. I appreciate you taking time to read

this

> > and I am looking forward to sharing, and supporting eachother.

> >

> > BLessings,

> > Marcy

>

July 13, 2005

Dawn

Hi. It is nice to know you are not alone. Around here where i live people look

at my daughter like she is some kind of freak or something. I get so tired of

the stares when she is walking across a parking lot because she doesn't walk

well either. She is starting to talk a little, she jabbers all day long, some

things i can understand and some i can't. i try to use tough love on her, like i

wont' give her what she wants until she says the name of it. of course its not

perfect but i take what i can get. well we can chat more if you want, let me

know, maybe you might have some tips for me. have a good day, nan

and Dawn <richardanddawn@...> wrote:

Hi Nan Hi ,

My name is Dawn I have a 4 1/2 year old too. He didn't start talking until

he was three. He had speech therapy until he was three. what really helped

him was Preschool. He is a chatter box now. I just wanted to say Hi and let

you know your not alone. If you want to talk just let me know. He has never

been diagnosed with apraxia, but as a slow talker, speech delay.

Dawn Blackerby

-- Re: [ ] Hi

Hi. my name is nan, my daughter is 4 1/2 years old, and she doesn't talk

hardly at all either. she too has been in speach for almost 1 1/2 years, i

don't think it's doing much either. we do alot of talking to her at home, i

try not to give her things unless she says the name of it, she was never

diagnosed with apraxia, but she had problems concerning vaccines, she was

starting to talk until her 9 month shots. i truly believe that speach

problems with children really have to do with the shots they receive. if you

want to talk sometime let me know. i would love to hear all about your son,

and i will share my daughters story with you. have a great day. nan

myloveisyours_22 <myloveisyours_22@...> wrote:Hi I am and my

son was diagnosed 3 weeks ago with verbal

apraxia. He is 3 years old and he doesnt talk. He has been doing

speech therapy for 2 years now and it is not working. I seen this

group and figured maybe I could find other parents with children with

apraxia thatr might be able to help me to understand it better.

July 13, 2005

Nan,

I know how you feel. Just hang in there. Some adults are worse than the

children. I can over look a child, but not an adult. One of my husbands

relatives made fun of my little boy. That made me so mad. Your child is not

a freak she is a gift from God. It is good that she jabbers. did not

jabber. He would say a word one time and then never say it again. thanks for

writing back.

Dawn

-- Re: [ ] Hi

Dawn

Hi. It is nice to know you are not alone. Around here where i live people

look at my daughter like she is some kind of freak or something. I get so

tired of the stares when she is walking across a parking lot because she

doesn't walk well either. She is starting to talk a little, she jabbers all

day long, some things i can understand and some i can't. i try to use tough

love on her, like i wont' give her what she wants until she says the name of

it. of course its not perfect but i take what i can get. well we can chat

more if you want, let me know, maybe you might have some tips for me. have a

good day, nan

and Dawn <richardanddawn@...> wrote:

Hi Nan Hi ,

My name is Dawn I have a 4 1/2 year old too. He didn't start talking until

he was three. He had speech therapy until he was three. what really helped

him was Preschool. He is a chatter box now. I just wanted to say Hi and let

you know your not alone. If you want to talk just let me know. He has never

been diagnosed with apraxia, but as a slow talker, speech delay.

Dawn Blackerby

July 13, 2005

Hi Dawn and Nan!

There is a difference between a child who has a mild delay in speech

and one who is speech impaired. I had two late talkers. My oldest

Dakota was speech delayed due to birth trauma and he was in therapy

overseen by a neurologist from 2 weeks old. He thrived like your

son Dawn around the age of three and in a regular preschool. For a

child with a delay in speech -it's probably hard to find

an " inappropriate " placement in a regular preschool. Tanner on the

other hand had apraxia. Kids like that don't just start talking

just because you stick them in a preschool class -and worse if it's

not an appropriate placement it can even make things worse. Why?

Because children with apraxia know what's expected of them -and

it 'doesn't' just come to them. Punishment or bribes won't make

them talk either -they need compassion and therapy. (Have you guys

read The Late Talker?)

I was told about my Aunt Betty and others as it says in The Late

Talker. " She didn't speak till 3 and then we couldn't shut her up

and now she's fluent in two languages "

It's true that the majority of late talkers, 75%, are just that -

kids that talk late. But if you have a child in the other 25% like

I do, it's hard to not think " why my baby? " We all want our little

ones to be one of the many who " just start talking " " when they're

ready " because we " gave them time " But unfortionatly for some, days

turn to weeks, months or years and the time isn't in sight.

Society has a way of noticing when it's time for a child to be

talking. The exact same two year old who is " just a late talker " to

everyone from Uncle Fred to the cashier at PathMark...is suddenly

viewed as " a freak " (as Nan says) when a wee bit older and taller.

How much older and taller? Usually around the age of 3.

I just today spoke with a parent in my area -the third I know of in

the general area of the Treasure Coast who has a child " suspected "

of, or diagnosed with apraxia. Her daughter is 5 and is " completely

nonverbal " Just a few months older than yours Nan.

(and for some freaky reason even though it's only three in the area -

all three have parents who work in law enforcement -really. Check

the archives for Kim S. and you can email the first who is known by

the second. The third doesn't know Kim but she works in a different

department)

The nonverbal 5 year old's mom I spoke with today works in

psychology. There is no professional or parental protection from

feeling helpless when your child is being teased or shunned because

of his or her impairment. Something the child is not able to help.

As parents we are hurt -but we also have to be protection for these

children.

The best way to deal with teasing from others is with humor, or

putting others in their place. We've had quite a few examples of

great come backs. My favorite back with Tanner was little was " he's

learning to talk and he's doing great " Terri White's response I

still find one of the funniest

http://www.cherab.org/information/familiesrelate/whatswrong.html

Perhaps as a group we should put together a list!

Truth is even if misery doesn't always admit to liking company -it

does really help to know you are not alone. So Nan, as Dawn has

already been kind enough to let you know -you are not alone!

=====

July 13, 2005

I live in Detroit Wayne County. The thing is Wayne County has a

really good Autism School it is called Burger but since I live in

Detroit my son cannot attend because Detroit so-called suppose to

have a program like the one at Burger. Since I live extremely close

to Grosse Pointe I will be sending my son to a school for Exceptional

children part time and continue to HS for the remainder of the day.

> > > Hello,

> > >

> > > I am new to the group today. I am a mom of a 5 yr old with

high

> > > funncionting autism. I live in MI with my husband and my 7 yr

> old

> > > son. (I know what was I thinking having the boys 20 mo apart

> LOL). I

> > > have a particular question for all you hard working parents out

> > > there. I am preparing to talk to an Aspergers Support group

and

> one

> > > of the areas of interest for the parents is the possibility to

> apply

> > > for SSI benifits. I was hoping that some of you would share

> your

> > > stories if you have any. I want to hear all aspects so that I

> can

> > > best help these parents. I appreciate you taking time to read

> this

> > > and I am looking forward to sharing, and supporting eachother.

> > >

> > > BLessings,

> > > Marcy

July 18, 2005

dawn

hi, sorry it took me so long to get back with you, but we have been having bad

storms so our electric doesn't want to stay on. yes i can over look children,

but adults should know better, if anyone of my or my husbands family would make

fun of lorna i would be on them like bees on honey. that would really tick me

off too, having someone in your family make fun of someone, i don't care who it

is, that is just rude. alot of my family is like that, but i have never heard

them anything about lorna, they better not. my husbands family i sometimes think

don't really know how to handle her, but they are always nice to her. well if

you want to chat more let me know, nan