hi

[Guest guest]

Hi Curt..I am Jan and I also stressed out so much on the shot day that I would get migraines..I did it as long as I could but my hat goes off to anyone who continues with TX..Good luck and stay in touch..curt wheeler <wheel0513@...> wrote:

Its so great to hear from you. You give me HOPE. I think hope is one of the best things that you could give a person, and i am truly grateful. I don't have much time but ill write you later.

Thanks AgainSharon Zeis <szeis_1@...> wrote:

I HATED giving myself shots. In fact I cried thefirst few times. (I almost never cry) In the longrun it was worth it though. Sharon--- curt wheeler <wheel0513@...> wrote:> hi,> thanks for responding> ive been kinda worried. was supost to start the> treatment today, but got delayed because my> insurance is going to put it under my major medical> benifit instead of a perscription. i think they are> just trying to find a company that they are> contracted with to ship it or something. I seem to> be getting pretty stressed. i dont want to give> myself shots and i dont want to get sick. but i dont> want to die in 30yrs or somthing either.> > Sharon Zeis <szeis_1@...> wrote:> I

think I paid about $50 a month which was my copay> for prescriptions.> Sharon> > --- curt wheeler <wheel0513@...> wrote:> > > Hi Sharon,> > I'm very glad you wrote me. Its good to here> > something positive. Realy i just delete all the> > negative ones. Yes i have insurance, not sure what> > they are going to cover right now but should find> > out in the next couple of weeks. How much did it> > cost you for the stuff? please write me back.> Thanks> > > > > > > > Sharon Zeis <szeis_1@...> wrote:> > Welcome Curt. Do you have insurance?> > I'm Sharon, did peg-intron and have been> > undetectable> > for 3 years.> > > > > > --- wheel0513 <wheel0513@...>

wrote:> > > > > hi my name is Curt. I just joined, looking for> > > support. I should be > > > starting interferon here in a couple of weeks.> im> > > kinda worryed about > > > the cost.> > > > > > > > > > > > > > > > > > > > > > __________________________________ > > Start your day with - Make it your home> page!> > > > http://www./r/hs> > > > > >

[Guest guest]

Welcome, . The people of this group are the greatest. We are discovering

that quite a few of us are from or near IL. I'm sure you will find help here.

laura

D <pastame1947@...> wrote: I am D from Illinois ... I

just was told I have Rheumatoid arthritis .. and I need to see a

Rheumatologist... so I joined this group to learn ...I knew something was going

on in my body I just didn't know what ... I guess I will find out more about

this after my first doctor visit ... I am glad I found this group ....

[Guest guest]

Thank you for the welcome ... I am near St Louis ...in Glen Carbon IL

Bauman <ilovecats83160@...> wrote: Welcome, . The people of

this group are the greatest. We are discovering that quite a few of us are

from or near IL. I'm sure you will find help here.

laura

D <pastame1947@...> wrote: I am D from Illinois ... I

just was told I have Rheumatoid arthritis .. and I need to see a

Rheumatologist... so I joined this group to learn ...I knew something was going

on in my body I just didn't know what ... I guess I will find out more about

this after my first doctor visit ... I am glad I found this group ....

[Guest guest]

HI, my name is Green and I am new to the group so I just

wanted to introduce myself. I have three boys. My son Camron was

diagnosed as Autistic when he was two. He had stopped talking then. We

believe it was because of the immunizations he was receiving at that

time. Since then we have been looking for different ways to help Camron

regain his speech and also help with some digestive issues. I look

forward to sharing my experiences as well as learning from the rest of

the group.

[Guest guest]

Hi Sue, If you have not read the book " The Late Talker " by Agin, Geng, and

Nicholl, you really should get it. It was really helpful. Are you inolved

with therapy through your public schools? They are obligated to provide

therapy beginning at age 3. She needs 3 one half hour sessions per week to

make progress. Who made your diagnosis? Keep in touch. I am reading

everything I can about Apraxia and its treatment, and we are currently

fighting for our 3 year old Damon to receive the appropriate therapy. If

therapy is started early and done well, the prognosis is really pretty

good.....Fay Iorio

[Guest guest]

As an SLP, my newsletter will help...go onto my site and click...fall

newsletter

_www.interactivekidsllc.com_ (http://www.interactivekidsllc.com)

Jodi Schechtman MA-CCC-SLP

[Guest guest]

No Fay I have not read the book yet. was just

diagnosed in the middle on November. So I am still

trying to struggle along with this. She started

preschool at our local school in September. She loves

it. Even now her speech is slightly better. Not a

whole lot, but a tad. More than anything she slows

down a little so that you can grasp a little more of

it. When she goes real fast it just becomes a big

huge garbled mess. The preschools here get speech

therapy automatically a few times a wk. But I went

through the school district for her evaluation. They

had a seperate agency called Upstate Cerebal Palsy do

it. They got right on the ball with this. But my

family and I are all pushing for this. One good thing

is my parents were local teachers in the district for

over 30 yrs so they know everyone. So everything is

getting done quickly. Thank you so much for the help

and I will get the book soon. Thanx again.

Also thank you to the others that responded. It helps

to know you are not alone in this. My email is

cayenne11@... or smatthie2@... either one.

--- fay iorio <fiorio@...> wrote:

> Hi Sue, If you have not read the book " The Late

> Talker " by Agin, Geng, and

> Nicholl, you really should get it. It was really

> helpful. Are you inolved

> with therapy through your public schools? They are

> obligated to provide

> therapy beginning at age 3. She needs 3 one half

> hour sessions per week to

> make progress. Who made your diagnosis? Keep in

> touch. I am reading

> everything I can about Apraxia and its treatment,

> and we are currently

> fighting for our 3 year old Damon to receive the

> appropriate therapy. If

> therapy is started early and done well, the

> prognosis is really pretty

> good.....Fay Iorio

>

>

>

>

__________________________________________________

[Guest guest]

In a message dated 2/17/2006 9:46:58 PM Central Standard Time,

Corinne@... writes:

Is there a chat room for us to go chat.....like nights like these where

we can't sleep for the pain but would just love to talk.

i think there is a chatroom thru the group page, not sure... maybe or

a would know. hugs

[Guest guest]

There is a chat room at the actual web site, but people don't use it much, the

non sleepers tend to post and see who is up and then instant message each other.

in WI

Corinne Drover <Corinne@...> wrote:

Is there a chat room for us to go chat.....like nights like these where

we can't sleep for the pain but would just love to talk.

--

[Guest guest]

Hi Sherry,

Yes, I am a night owl. :-) It's the only adult time I get. I have 6

children so I really need my " me " time. lol It's great to hear how

well Chase is doing. Yea, fluid retention is pretty common, it does go

away once a baby has graduated. With the DOCband, once they graduate

there helmet is off. By that time the life of the band has been

exhausted. Don't worry they learn really quick that w/o their band

they can hurt their heads. It's a common concern a lot of parents

have. Most babies do bang their heads a few times before the figure

out their band is gone. I've never heard of any baby getting seriously

hurt though.

I LOVE Manhattan! I have a doctor's appointment on the 24th, at

Mt.Sinai medical center on Madison ave and 100th street. Are you near

there? We should make plans to meet up some day, that would be so

cool. In all the years I've been here I only met one member from the

group. And that was by coincidence, we met at CT one day.

Well my soon to be 3 year old just woke up, I have to give her a

breathing treatment so it's off to sleep for me. Have a great night,

night owl. :-)

>

> it seems you're a late night person like me? I think I posted an

> update recently but if not Chase is doing good. We had one pink spot

> incident but we resolved it quickly and he's been fine since. He does

> have a bump by the velcro but they, CT believe it is fluid retention

> and told me it will go away after the band is removed.

>

> Also I had a question. I met a woman today and she mentioned someone

> she used to babysit is nearing the end of his band and they're

> weaning him off of it. Is there a period when you wean them off of it

> or is it just cold turkey? It must be some sort of adjustment for

> the babies after having it on for 3 months. I'm also kind of

> concerned that he has head protection now through some developmental

> stages learning to sit and hopefully more - is that difficult for

> them later when it's removed? Do they tend to hurt their heads?

>

> Off topic do you ever get in to the Manhattan? I've found a few

> plagio, tort. people online but no one real close, one downtown. I

> think that's the closest so far.

>

> Sherry

> Chase (7 1/2 months)

> tort

> DOCband 2/15

>

[Guest guest]

Hi Sherry,

Yes, I am a night owl. :-) It's the only adult time I get. I have 6

children so I really need my " me " time. lol It's great to hear how

well Chase is doing. Yea, fluid retention is pretty common, it does go

away once a baby has graduated. With the DOCband, once they graduate

there helmet is off. By that time the life of the band has been

exhausted. Don't worry they learn really quick that w/o their band

they can hurt their heads. It's a common concern a lot of parents

have. Most babies do bang their heads a few times before the figure

out their band is gone. I've never heard of any baby getting seriously

hurt though.

I LOVE Manhattan! I have a doctor's appointment on the 24th, at

Mt.Sinai medical center on Madison ave and 100th street. Are you near

there? We should make plans to meet up some day, that would be so

cool. In all the years I've been here I only met one member from the

group. And that was by coincidence, we met at CT one day.

Well my soon to be 3 year old just woke up, I have to give her a

breathing treatment so it's off to sleep for me. Have a great night,

night owl. :-)

>

> it seems you're a late night person like me? I think I posted an

> update recently but if not Chase is doing good. We had one pink spot

> incident but we resolved it quickly and he's been fine since. He does

> have a bump by the velcro but they, CT believe it is fluid retention

> and told me it will go away after the band is removed.

>

> Also I had a question. I met a woman today and she mentioned someone

> she used to babysit is nearing the end of his band and they're

> weaning him off of it. Is there a period when you wean them off of it

> or is it just cold turkey? It must be some sort of adjustment for

> the babies after having it on for 3 months. I'm also kind of

> concerned that he has head protection now through some developmental

> stages learning to sit and hopefully more - is that difficult for

> them later when it's removed? Do they tend to hurt their heads?

>

> Off topic do you ever get in to the Manhattan? I've found a few

> plagio, tort. people online but no one real close, one downtown. I

> think that's the closest so far.

>

> Sherry

> Chase (7 1/2 months)

> tort

> DOCband 2/15

>

[Guest guest]

Ok great cold turkey on the band. I can't believe I'm thinking about

and planning for Chase graduating already! I guess we'll be reaching

the midpoint soon. It's coming up on 5 weeks. He doesn't have an

adjustment this week I hope we make it 2 weeks this time!

I'm not too close to Mt. Sinai but I know Manhattan well. It's a

wonderful hospital. I could use some walking - even with

breastfeeding I gained 20 lbs since the baby was born. I have no

time to exercise.

I do have to go uptown alot to 70 for my son that's his hospital NY

Hospital. My husband did some investigating when I was expecting and

they were the only NY Hospital on the Best Hospitals list (ha ha) so

we had to go there.

My brother has a little store up there on 87th and I've been meaning

to visit him, it's a new store, Ebay. So maybe I'll try to plan

something with you for the 24th that would be cool! You know how it

is with these babies though. I have 1 to juggle I can't imagine how

you juggle 6. I'm expecting to have appointments this week with EI

hopefully because since the PT quit Chase missed already 2 weeks

of " real " PT. The new agency is supposed to be on board Mon. so I'm

hoping and expecting lots of appointments and calls this upcoming

week.

It would be fun to arrange a group meeting one day too. I know 2

others in NY (who may be interested), and you and me. And my husband

usually tags along! So that's a group. If I had time I could do

something more formal find a friendly space etc. but my time is so so

limited and I have a list of things to do with about 100 things on

it. Unfortunately my apt. is too small even for a small group, it's

tiny. In a great area but not good for entertaining. It's tough when

people visit which is alot with my husbands family being in euorpe.

How do you come into the city through the midtown tunnel? What town

do you live in in LI?

Sherry

Chase (7 1/2 months)

tort.

--- In Plagiocephaly , " stripes6060 " <taime@...>

wrote:

>

> Hi Sherry,

> Yes, I am a night owl. :-) It's the only adult time I get. I have 6

> children so I really need my " me " time. lol It's great to hear how

> well Chase is doing. Yea, fluid retention is pretty common, it does

go

> away once a baby has graduated. With the DOCband, once they graduate

> there helmet is off. By that time the life of the band has been

> exhausted. Don't worry they learn really quick that w/o their band

> they can hurt their heads. It's a common concern a lot of parents

> have. Most babies do bang their heads a few times before the figure

> out their band is gone. I've never heard of any baby getting

seriously

> hurt though.

> I LOVE Manhattan! I have a doctor's appointment on the 24th, at

> Mt.Sinai medical center on Madison ave and 100th street. Are you

near

> there? We should make plans to meet up some day, that would be so

> cool. In all the years I've been here I only met one member from the

> group. And that was by coincidence, we met at CT one day.

> Well my soon to be 3 year old just woke up, I have to give her a

> breathing treatment so it's off to sleep for me. Have a great night,

> night owl. :-)

>

>

>

> --- In Plagiocephaly , " alwell_sherry " <type916@>

wrote:

> >

> > it seems you're a late night person like me? I think I posted

an

> > update recently but if not Chase is doing good. We had one pink

spot

> > incident but we resolved it quickly and he's been fine since. He

does

> > have a bump by the velcro but they, CT believe it is fluid

retention

> > and told me it will go away after the band is removed.

> >

> > Also I had a question. I met a woman today and she mentioned

someone

> > she used to babysit is nearing the end of his band and they're

> > weaning him off of it. Is there a period when you wean them off

of it

> > or is it just cold turkey? It must be some sort of adjustment

for

> > the babies after having it on for 3 months. I'm also kind of

> > concerned that he has head protection now through some

developmental

> > stages learning to sit and hopefully more - is that difficult for

> > them later when it's removed? Do they tend to hurt their heads?

> >

> > Off topic do you ever get in to the Manhattan? I've found a few

> > plagio, tort. people online but no one real close, one downtown.

I

> > think that's the closest so far.

> >

> > Sherry

> > Chase (7 1/2 months)

> > tort

> > DOCband 2/15

> >

>

[Guest guest]

Ok great cold turkey on the band. I can't believe I'm thinking about

and planning for Chase graduating already! I guess we'll be reaching

the midpoint soon. It's coming up on 5 weeks. He doesn't have an

adjustment this week I hope we make it 2 weeks this time!

I'm not too close to Mt. Sinai but I know Manhattan well. It's a

wonderful hospital. I could use some walking - even with

breastfeeding I gained 20 lbs since the baby was born. I have no

time to exercise.

I do have to go uptown alot to 70 for my son that's his hospital NY

Hospital. My husband did some investigating when I was expecting and

they were the only NY Hospital on the Best Hospitals list (ha ha) so

we had to go there.

My brother has a little store up there on 87th and I've been meaning

to visit him, it's a new store, Ebay. So maybe I'll try to plan

something with you for the 24th that would be cool! You know how it

is with these babies though. I have 1 to juggle I can't imagine how

you juggle 6. I'm expecting to have appointments this week with EI

hopefully because since the PT quit Chase missed already 2 weeks

of " real " PT. The new agency is supposed to be on board Mon. so I'm

hoping and expecting lots of appointments and calls this upcoming

week.

It would be fun to arrange a group meeting one day too. I know 2

others in NY (who may be interested), and you and me. And my husband

usually tags along! So that's a group. If I had time I could do

something more formal find a friendly space etc. but my time is so so

limited and I have a list of things to do with about 100 things on

it. Unfortunately my apt. is too small even for a small group, it's

tiny. In a great area but not good for entertaining. It's tough when

people visit which is alot with my husbands family being in euorpe.

How do you come into the city through the midtown tunnel? What town

do you live in in LI?

Sherry

Chase (7 1/2 months)

tort.

--- In Plagiocephaly , " stripes6060 " <taime@...>

wrote:

>

> Hi Sherry,

> Yes, I am a night owl. :-) It's the only adult time I get. I have 6

> children so I really need my " me " time. lol It's great to hear how

> well Chase is doing. Yea, fluid retention is pretty common, it does

go

> away once a baby has graduated. With the DOCband, once they graduate

> there helmet is off. By that time the life of the band has been

> exhausted. Don't worry they learn really quick that w/o their band

> they can hurt their heads. It's a common concern a lot of parents

> have. Most babies do bang their heads a few times before the figure

> out their band is gone. I've never heard of any baby getting

seriously

> hurt though.

> I LOVE Manhattan! I have a doctor's appointment on the 24th, at

> Mt.Sinai medical center on Madison ave and 100th street. Are you

near

> there? We should make plans to meet up some day, that would be so

> cool. In all the years I've been here I only met one member from the

> group. And that was by coincidence, we met at CT one day.

> Well my soon to be 3 year old just woke up, I have to give her a

> breathing treatment so it's off to sleep for me. Have a great night,

> night owl. :-)

>

>

>

> --- In Plagiocephaly , " alwell_sherry " <type916@>

wrote:

> >

> > it seems you're a late night person like me? I think I posted

an

> > update recently but if not Chase is doing good. We had one pink

spot

> > incident but we resolved it quickly and he's been fine since. He

does

> > have a bump by the velcro but they, CT believe it is fluid

retention

> > and told me it will go away after the band is removed.

> >

> > Also I had a question. I met a woman today and she mentioned

someone

> > she used to babysit is nearing the end of his band and they're

> > weaning him off of it. Is there a period when you wean them off

of it

> > or is it just cold turkey? It must be some sort of adjustment

for

> > the babies after having it on for 3 months. I'm also kind of

> > concerned that he has head protection now through some

developmental

> > stages learning to sit and hopefully more - is that difficult for

> > them later when it's removed? Do they tend to hurt their heads?

> >

> > Off topic do you ever get in to the Manhattan? I've found a few

> > plagio, tort. people online but no one real close, one downtown.

I

> > think that's the closest so far.

> >

> > Sherry

> > Chase (7 1/2 months)

> > tort

> > DOCband 2/15

> >

>

[Guest guest]

Hi Sherry,

Yep, cold turkey. lol When will Chase be graduating? The time in their

bands really does fly by.

I just found out this am that on the 24th, I'm going in with hubby.

Which means it's an in and out visit, b/c he has to get to work. :-(

I'll be back in though so hopefully we can get together then. I'd love

to check out your brother's ebay store.

I take the train in and catch a cab to Mt. Sinai's. It's too much of a

hassle to drive. By the time I get out of there it's late and we're in

traffic for 3 hours. I'm in Ronkonkoma, exit 60 off the LIE.

That stinks about Chase's PT, hopefully their act is straightened out

by Monday. That would annoy me that he's missed 2 weeks already.

Take care,

> > >

> > > it seems you're a late night person like me? I think I posted

> an

> > > update recently but if not Chase is doing good. We had one pink

> spot

> > > incident but we resolved it quickly and he's been fine since. He

> does

> > > have a bump by the velcro but they, CT believe it is fluid

> retention

> > > and told me it will go away after the band is removed.

> > >

> > > Also I had a question. I met a woman today and she mentioned

> someone

> > > she used to babysit is nearing the end of his band and they're

> > > weaning him off of it. Is there a period when you wean them off

> of it

> > > or is it just cold turkey? It must be some sort of adjustment

> for

> > > the babies after having it on for 3 months. I'm also kind of

> > > concerned that he has head protection now through some

> developmental

> > > stages learning to sit and hopefully more - is that difficult for

> > > them later when it's removed? Do they tend to hurt their heads?

> > >

> > > Off topic do you ever get in to the Manhattan? I've found a few

> > > plagio, tort. people online but no one real close, one downtown.

> I

> > > think that's the closest so far.

> > >

> > > Sherry

> > > Chase (7 1/2 months)

> > > tort

> > > DOCband 2/15

> > >

> >

>

[Guest guest]

Hi Sherry,

Yep, cold turkey. lol When will Chase be graduating? The time in their

bands really does fly by.

I just found out this am that on the 24th, I'm going in with hubby.

Which means it's an in and out visit, b/c he has to get to work. :-(

I'll be back in though so hopefully we can get together then. I'd love

to check out your brother's ebay store.

I take the train in and catch a cab to Mt. Sinai's. It's too much of a

hassle to drive. By the time I get out of there it's late and we're in

traffic for 3 hours. I'm in Ronkonkoma, exit 60 off the LIE.

That stinks about Chase's PT, hopefully their act is straightened out

by Monday. That would annoy me that he's missed 2 weeks already.

Take care,

> > >

> > > it seems you're a late night person like me? I think I posted

> an

> > > update recently but if not Chase is doing good. We had one pink

> spot

> > > incident but we resolved it quickly and he's been fine since. He

> does

> > > have a bump by the velcro but they, CT believe it is fluid

> retention

> > > and told me it will go away after the band is removed.

> > >

> > > Also I had a question. I met a woman today and she mentioned

> someone

> > > she used to babysit is nearing the end of his band and they're

> > > weaning him off of it. Is there a period when you wean them off

> of it

> > > or is it just cold turkey? It must be some sort of adjustment

> for

> > > the babies after having it on for 3 months. I'm also kind of

> > > concerned that he has head protection now through some

> developmental

> > > stages learning to sit and hopefully more - is that difficult for

> > > them later when it's removed? Do they tend to hurt their heads?

> > >

> > > Off topic do you ever get in to the Manhattan? I've found a few

> > > plagio, tort. people online but no one real close, one downtown.

> I

> > > think that's the closest so far.

> > >

> > > Sherry

> > > Chase (7 1/2 months)

> > > tort

> > > DOCband 2/15

> > >

> >

>

[Guest guest]

Sherry,

I am SOOOO happy to hear this! YAH!!!! The squeaky wheel got the

grease. :-) You go girl. This is the best news. :-) :-) :-)

>

> Hi I called today to get a sooner appointment for the ped.

> Ophthalmologist and they told me the next one was May, even later than

> I had. So I figured I'd keep calling till there's a cancellation. I

> told her I'd come anytime. So then she calls back in 5 minutes and

> said she didn't know he was a new patient that he can come in on Fri.!

> So we have both the head CT scan and the eyes Fri. So as usual it pays

> to be persistent and follow-up. I'm so happy that I don't have to

> suffer wondering what's wrong. The Ped. did tell me though that some of

> the people who do the CT scan don't tell you the results.

>

> Does anyone know how they do baby eye exams? Chase is really active

> now and hates being restrained in any way.

>

> Sherry

> Chase (7 1/2 months) (I have to remember to keep changing this (ha ha)

> it was 6 months for about 2 months)

> tort.

> DOCband 2/15

>

[Guest guest]

Sherry,

I am SOOOO happy to hear this! YAH!!!! The squeaky wheel got the

grease. :-) You go girl. This is the best news. :-) :-) :-)

>

> Hi I called today to get a sooner appointment for the ped.

> Ophthalmologist and they told me the next one was May, even later than

> I had. So I figured I'd keep calling till there's a cancellation. I

> told her I'd come anytime. So then she calls back in 5 minutes and

> said she didn't know he was a new patient that he can come in on Fri.!

> So we have both the head CT scan and the eyes Fri. So as usual it pays

> to be persistent and follow-up. I'm so happy that I don't have to

> suffer wondering what's wrong. The Ped. did tell me though that some of

> the people who do the CT scan don't tell you the results.

>

> Does anyone know how they do baby eye exams? Chase is really active

> now and hates being restrained in any way.

>

> Sherry

> Chase (7 1/2 months) (I have to remember to keep changing this (ha ha)

> it was 6 months for about 2 months)

> tort.

> DOCband 2/15

>

[Guest guest]

Thanks yup I was being squeeky as usual. It gets a bit tiring always

being squeeky but we have no choice it's for our babies! It's funny

how there's nothing till May and then there's something 5 mins. later

in 2 days.

About April that would be great to meet. As soon as I get a PT/OT

schedule I know more of my avail. days. We'll figure out something.

Hopefully the weahter will be nice by then.

Sherry

>

> Sherry,

> I am SOOOO happy to hear this! YAH!!!! The squeaky wheel got the

> grease. :-) You go girl. This is the best news. :-) :-) :-)

>

> --- In Plagiocephaly , " alwell_sherry " <type916@>

wrote:

> >

> > Hi I called today to get a sooner appointment for the ped.

> > Ophthalmologist and they told me the next one was May, even later

than

> > I had. So I figured I'd keep calling till there's a cancellation.

I

> > told her I'd come anytime. So then she calls back in 5 minutes

and

> > said she didn't know he was a new patient that he can come in on

Fri.!

> > So we have both the head CT scan and the eyes Fri. So as usual it

pays

> > to be persistent and follow-up. I'm so happy that I don't have to

> > suffer wondering what's wrong. The Ped. did tell me though that

some of

> > the people who do the CT scan don't tell you the results.

> >

> > Does anyone know how they do baby eye exams? Chase is really

active

> > now and hates being restrained in any way.

> >

> > Sherry

> > Chase (7 1/2 months) (I have to remember to keep changing this

(ha ha)

> > it was 6 months for about 2 months)

> > tort.

> > DOCband 2/15

> >

>

[Guest guest]

Thanks yup I was being squeeky as usual. It gets a bit tiring always

being squeeky but we have no choice it's for our babies! It's funny

how there's nothing till May and then there's something 5 mins. later

in 2 days.

About April that would be great to meet. As soon as I get a PT/OT

schedule I know more of my avail. days. We'll figure out something.

Hopefully the weahter will be nice by then.

Sherry

>

> Sherry,

> I am SOOOO happy to hear this! YAH!!!! The squeaky wheel got the

> grease. :-) You go girl. This is the best news. :-) :-) :-)

>

> --- In Plagiocephaly , " alwell_sherry " <type916@>

wrote:

> >

> > Hi I called today to get a sooner appointment for the ped.

> > Ophthalmologist and they told me the next one was May, even later

than

> > I had. So I figured I'd keep calling till there's a cancellation.

I

> > told her I'd come anytime. So then she calls back in 5 minutes

and

> > said she didn't know he was a new patient that he can come in on

Fri.!

> > So we have both the head CT scan and the eyes Fri. So as usual it

pays

> > to be persistent and follow-up. I'm so happy that I don't have to

> > suffer wondering what's wrong. The Ped. did tell me though that

some of

> > the people who do the CT scan don't tell you the results.

> >

> > Does anyone know how they do baby eye exams? Chase is really

active

> > now and hates being restrained in any way.

> >

> > Sherry

> > Chase (7 1/2 months) (I have to remember to keep changing this

(ha ha)

> > it was 6 months for about 2 months)

> > tort.

> > DOCband 2/15

> >

>

[Guest guest]

I sent an email to CT too my ortho to see if she's had any experience

with anything like this all these eye issues. Also I asked her about

the fluid if it is extra external fluid if it's a problem wearing the

band?

Sherry

>

> Sherry,

> I am SOOOO happy to hear this! YAH!!!! The squeaky wheel got the

> grease. :-) You go girl. This is the best news. :-) :-) :-)

>

> --- In Plagiocephaly , " alwell_sherry " <type916@>

wrote:

> >

> > Hi I called today to get a sooner appointment for the ped.

> > Ophthalmologist and they told me the next one was May, even later

than

> > I had. So I figured I'd keep calling till there's a cancellation.

I

> > told her I'd come anytime. So then she calls back in 5 minutes

and

> > said she didn't know he was a new patient that he can come in on

Fri.!

> > So we have both the head CT scan and the eyes Fri. So as usual it

pays

> > to be persistent and follow-up. I'm so happy that I don't have to

> > suffer wondering what's wrong. The Ped. did tell me though that

some of

> > the people who do the CT scan don't tell you the results.

> >

> > Does anyone know how they do baby eye exams? Chase is really

active

> > now and hates being restrained in any way.

> >

> > Sherry

> > Chase (7 1/2 months) (I have to remember to keep changing this

(ha ha)

> > it was 6 months for about 2 months)

> > tort.

> > DOCband 2/15

> >

>

[Guest guest]

I sent an email to CT too my ortho to see if she's had any experience

with anything like this all these eye issues. Also I asked her about

the fluid if it is extra external fluid if it's a problem wearing the

band?

Sherry

>

> Sherry,

> I am SOOOO happy to hear this! YAH!!!! The squeaky wheel got the

> grease. :-) You go girl. This is the best news. :-) :-) :-)

>

> --- In Plagiocephaly , " alwell_sherry " <type916@>

wrote:

> >

> > Hi I called today to get a sooner appointment for the ped.

> > Ophthalmologist and they told me the next one was May, even later

than

> > I had. So I figured I'd keep calling till there's a cancellation.

I

> > told her I'd come anytime. So then she calls back in 5 minutes

and

> > said she didn't know he was a new patient that he can come in on

Fri.!

> > So we have both the head CT scan and the eyes Fri. So as usual it

pays

> > to be persistent and follow-up. I'm so happy that I don't have to

> > suffer wondering what's wrong. The Ped. did tell me though that

some of

> > the people who do the CT scan don't tell you the results.

> >

> > Does anyone know how they do baby eye exams? Chase is really

active

> > now and hates being restrained in any way.

> >

> > Sherry

> > Chase (7 1/2 months) (I have to remember to keep changing this

(ha ha)

> > it was 6 months for about 2 months)

> > tort.

> > DOCband 2/15

> >

>

[Guest guest]

Sherry,

Everything happens for a reason. My fingers are crossed for you and

Chase! April is good for me too, I don't have to have an appointment

to go out there. We could always meet somewhere and have lunch or a

cup of coffee, you know? I would just love to meet you and Chase and

of course I'd bring with me. You let me know when it's a good

time for you.

-- In Plagiocephaly , " alwell_sherry " <type916@...> wrote:

>

> Thanks yup I was being squeeky as usual. It gets a bit tiring always

> being squeeky but we have no choice it's for our babies! It's funny

> how there's nothing till May and then there's something 5 mins. later

> in 2 days.

>

> About April that would be great to meet. As soon as I get a PT/OT

> schedule I know more of my avail. days. We'll figure out something.

> Hopefully the weahter will be nice by then.

>

> Sherry

>

>

> > >

> > > Hi I called today to get a sooner appointment for the ped.

> > > Ophthalmologist and they told me the next one was May, even later

> than

> > > I had. So I figured I'd keep calling till there's a cancellation.

> I

> > > told her I'd come anytime. So then she calls back in 5 minutes

> and

> > > said she didn't know he was a new patient that he can come in on

> Fri.!

> > > So we have both the head CT scan and the eyes Fri. So as usual it

> pays

> > > to be persistent and follow-up. I'm so happy that I don't have to

> > > suffer wondering what's wrong. The Ped. did tell me though that

> some of

> > > the people who do the CT scan don't tell you the results.

> > >

> > > Does anyone know how they do baby eye exams? Chase is really

> active

> > > now and hates being restrained in any way.

> > >

> > > Sherry

> > > Chase (7 1/2 months) (I have to remember to keep changing this

> (ha ha)

> > > it was 6 months for about 2 months)

> > > tort.

> > > DOCband 2/15

> > >

> >

>

[Guest guest]

Sherry,

Everything happens for a reason. My fingers are crossed for you and

Chase! April is good for me too, I don't have to have an appointment

to go out there. We could always meet somewhere and have lunch or a

cup of coffee, you know? I would just love to meet you and Chase and

of course I'd bring with me. You let me know when it's a good

time for you.

-- In Plagiocephaly , " alwell_sherry " <type916@...> wrote:

>

> Thanks yup I was being squeeky as usual. It gets a bit tiring always

> being squeeky but we have no choice it's for our babies! It's funny

> how there's nothing till May and then there's something 5 mins. later

> in 2 days.

>

> About April that would be great to meet. As soon as I get a PT/OT

> schedule I know more of my avail. days. We'll figure out something.

> Hopefully the weahter will be nice by then.

>

> Sherry

>

>

> > >

> > > Hi I called today to get a sooner appointment for the ped.

> > > Ophthalmologist and they told me the next one was May, even later

> than

> > > I had. So I figured I'd keep calling till there's a cancellation.

> I

> > > told her I'd come anytime. So then she calls back in 5 minutes

> and

> > > said she didn't know he was a new patient that he can come in on

> Fri.!

> > > So we have both the head CT scan and the eyes Fri. So as usual it

> pays

> > > to be persistent and follow-up. I'm so happy that I don't have to

> > > suffer wondering what's wrong. The Ped. did tell me though that

> some of

> > > the people who do the CT scan don't tell you the results.

> > >

> > > Does anyone know how they do baby eye exams? Chase is really

> active

> > > now and hates being restrained in any way.

> > >

> > > Sherry

> > > Chase (7 1/2 months) (I have to remember to keep changing this

> (ha ha)

> > > it was 6 months for about 2 months)

> > > tort.

> > > DOCband 2/15

> > >

> >

>

[Guest guest]

Sherry,

I think it would maybe depend on the amount of fluid? had extra

fluid and was banded without any problems. Let me know what your

orthos says.

I sent you an email today and I got it back saying your mailbox was full??

-- In Plagiocephaly , " alwell_sherry " <type916@...> wrote:

>

> I sent an email to CT too my ortho to see if she's had any experience

> with anything like this all these eye issues. Also I asked her about

> the fluid if it is extra external fluid if it's a problem wearing the

> band?

>

> Sherry

>

>

> > >

> > > Hi I called today to get a sooner appointment for the ped.

> > > Ophthalmologist and they told me the next one was May, even later

> than

> > > I had. So I figured I'd keep calling till there's a cancellation.

> I

> > > told her I'd come anytime. So then she calls back in 5 minutes

> and

> > > said she didn't know he was a new patient that he can come in on

> Fri.!

> > > So we have both the head CT scan and the eyes Fri. So as usual it

> pays

> > > to be persistent and follow-up. I'm so happy that I don't have to

> > > suffer wondering what's wrong. The Ped. did tell me though that

> some of

> > > the people who do the CT scan don't tell you the results.

> > >

> > > Does anyone know how they do baby eye exams? Chase is really

> active

> > > now and hates being restrained in any way.

> > >

> > > Sherry

> > > Chase (7 1/2 months) (I have to remember to keep changing this

> (ha ha)

> > > it was 6 months for about 2 months)

> > > tort.

> > > DOCband 2/15

> > >

> >

>

[Guest guest]

Sherry,

I think it would maybe depend on the amount of fluid? had extra

fluid and was banded without any problems. Let me know what your

orthos says.

I sent you an email today and I got it back saying your mailbox was full??

-- In Plagiocephaly , " alwell_sherry " <type916@...> wrote:

>

> I sent an email to CT too my ortho to see if she's had any experience

> with anything like this all these eye issues. Also I asked her about

> the fluid if it is extra external fluid if it's a problem wearing the

> band?

>

> Sherry

>

>

> > >

> > > Hi I called today to get a sooner appointment for the ped.

> > > Ophthalmologist and they told me the next one was May, even later

> than

> > > I had. So I figured I'd keep calling till there's a cancellation.

> I

> > > told her I'd come anytime. So then she calls back in 5 minutes

> and

> > > said she didn't know he was a new patient that he can come in on

> Fri.!

> > > So we have both the head CT scan and the eyes Fri. So as usual it

> pays

> > > to be persistent and follow-up. I'm so happy that I don't have to

> > > suffer wondering what's wrong. The Ped. did tell me though that

> some of

> > > the people who do the CT scan don't tell you the results.

> > >

> > > Does anyone know how they do baby eye exams? Chase is really

> active

> > > now and hates being restrained in any way.

> > >

> > > Sherry

> > > Chase (7 1/2 months) (I have to remember to keep changing this

> (ha ha)

> > > it was 6 months for about 2 months)

> > > tort.

> > > DOCband 2/15

> > >

> >

>