Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi My name is Lynn I am also in Scotland. I had never heard of enbrel untill i came on this site so i mentioned it to my doctor and he asked me how to spell it as he hadnever heard of it himself which supprised me. My mtx is constantly being put up and to be honest i also feel no relief. It's good to hear everyones experiences. Thanks for listening Lynn --------------------------------- Win tickets to the 2006 FIFA World Cup Germany with Messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 In a message dated 16/04/2006 02:19:22 GMT Daylight Time, viking_warlock@... writes: It seems to be quite new in the UK and I feel that I am a guinue pig. Hi Geraldine and Ian, I have been on it since January of last year. I'm in Scotland. I think basically you have to fail on everything else for them to be able to justify putting you on it. PS Ian...............How long are you going to keep that light shining? I can't sleep with the light on. lol Only kidding. Just wanted to say that I love your posts. They are full of humour. Its important, in my opinion, to be able to smile through this. Keep up the good work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 i am in dayton. meg >From: " Ben " <triston_a_97@...> >Reply- > >Subject: ( ) HI >Date: Sat, 27 May 2006 02:24:35 -0000 > >ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND ANOTHER >WITH AUTISM > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 near Cleveland and Akron. > > ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND ANOTHER > WITH AUTISM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2006 Report Share Posted May 28, 2006 Hi i am new to this group. I am from Milford, OH. I have a 12 son who is asperger's/adhd. LJL <laura6307@...> wrote: near Cleveland and Akron. > > ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND ANOTHER > WITH AUTISM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2006 Report Share Posted May 28, 2006 I have an 8 yr old son with aspergers.....we live in a suburb West of Cleveland > > ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND ANOTHER > WITH AUTISM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Weolcome Shel! ( ) hi hi i am shell mum of 6 my youngest 3 as classic autism my 4 year old as aspergers we are in the uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Hi Shell, I have three children in the spectrum, two with Asperger's and one with low functioning autism. My husband is from the UK and we have been wanting to return their for some time now. I love England and Nigel's family is there. One question I have is how is the special education in the UK? I have been in contact with the NAS and have an idea of where some good schools are for Autism and Asperger's. This is of course mine and Nigel's main concerns about returning to the Norfolk area. Any information that you have will be helpful. Thank you, Janelle -- ( ) hi hi i am shell mum of 6 my youngest 3 as classic autism my 4 year old as aspergers we are in the uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 I HAVE 6 KIDS 1 WITH CLASSIC AUTISM 1 WITH ASPERGERS IN MY OPINION FROM MY AREA THE SEN IS NOT VERY GOOD I HAD TO FIGHT CONSTANTLY AND ONLY RECANTLY HAVE THINGS BEGUN TO HAPPEN SORRY TO DISSAPOINT YOU BERKSHIRE AND KENT NEAR THE NAS HAVE EXCELLENT SCHOOLS RUN BY THE NAS LOVE SHELL yours faithfully michelle --------------------------------- All new " The new Interface is stunning in its simplicity and ease of use. " - PC Magazine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2006 Report Share Posted May 29, 2006 Hi, Shell! How are you doing? Nice to meet you! Tami ( ) hi hi i am shell mum of 6 my youngest 3 as classic autism my 4 year old as aspergers we are in the uk Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2006 Report Share Posted May 30, 2006 We have a 9 1/2 year old with AS, live in a suburb of Youngstown. Suzanne -- ( ) HI ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND ANOTHER WITH AUTISM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 Welcome to the group. If a person is 47xxy then they have had it all their life. Most of us in that group only discovered it recently, but many are now tested for it in pregnancy or at birth. Their are several varations of it. I am Mosaic, I have the extra X mostly in the upper body. Some sperm, small testicles, short penis, no facial or upper body hair, extra fat layer, low muscle definition, poor language skills, & boobs. Now that I take HRT I am growing upper body hair & some muscle. > > Hi im new on here i have xxy klinefelters > i am usually on the other xxy websites but seems as though not much > is going on as it use to be,i mean sometimes its really going off > other times its quiet ,anyway thought ill broaden my horizons > > anyway im dvid im from australia although im not actually an > australian like with blonde hair etc bu t ive had xxy for my entire > life but only found out 5 years or so back,hmmm its been hecket but i > guess thats life, i take injection of T 250 which is a real roller > coaster > and i have osteoporosis too which is another specail gift , so where > are you xxys from how long have you had xxy what do u think about it > and isnt it cool how us xxy can really talk sometimes , i guess i can > talk a leg off a chair any day ,but i guess that must be because of > this xrta x which i think makes me more sensitive then xy males > although i have met a lot of other xy males that talk more then i > do,ahhhh so much to say,im actually at the libarary using thier > computer coz i dont have the net at home i mean i did but i have a > problem when i have the net back home,not a positive problem so thats > why i dont have it,..well i better go ill hope to meet some of you > later ...bye and have fun ...davo > > " god bless: > > oh are any of you on here christians i really like talking about this > subject..anyway bye > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 > " god bless: > > oh are any of you on here christians i really like talking about this > subject..anyway bye ---------------------------- Hello and a big welcome to you! I think you will like this group as there are a lot of very informed and helpful people here. However, can I just personally request that you stay away from attempting to introduce your religious views into this forum? I happen to be a hard core evangelical atheist and I do not believe it is proper to discuss my convictions on this hormone forum. I hope you will feel the same way about keeping to the subject of Hypo issues. Good to have you join us, Norton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 God Bless you anyway Norton! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 Hello david and welcome. I understand all too well about hypgonadism side effects. It's complicated to explain to someone what this diease can cause and have and how that effect alters a persons life. I got checked twice for klinefelters and its cousins. I actually cried in 03 when I started taking numerous test. After researching klinefelters and indentifing with the side effects I thought for sure I had it and when I didn't I just broke down because I didn't have a medical term for why I was me and importantly, I didn't have anyway of trying to explain why I was me toward others i.e family and toward myself. I know the feeling about living your WHOLE life unhealthy and never feeling normal and then test results proves what was the cause. Even with a cause and treatment, that doesnt expel what you have been thru nor does that make all things something (normal and healthy) especially if it hasn't been before. Some folks think TRT is a cure, its like if you take TRT you have no excuse in living the way you did and not being heathly all because it worked for them.... Hey david, anytime you wish to talk I am here along with other cool dudes on this site. Im sorry you went thru so much but I hope you can find some form of begining. The begining in founding out what was wrong, and doing something about it while working with professionals, researching, and seeking out advice to help you create and emulate a new start toward your life. ddavid6064 <ddavid6064@...> wrote: Hi im new on here i have xxy klinefelters i am usually on the other xxy websites but seems as though not much is going on as it use to be,i mean sometimes its really going off other times its quiet ,anyway thought ill broaden my horizons anyway im dvid im from australia although im not actually an australian like with blonde hair etc bu t ive had xxy for my entire life but only found out 5 years or so back,hmmm its been hecket but i guess thats life, i take injection of T 250 which is a real roller coaster and i have osteoporosis too which is another specail gift , so where are you xxys from how long have you had xxy what do u think about it and isnt it cool how us xxy can really talk sometimes , i guess i can talk a leg off a chair any day ,but i guess that must be because of this xrta x which i think makes me more sensitive then xy males although i have met a lot of other xy males that talk more then i do,ahhhh so much to say,im actually at the libarary using thier computer coz i dont have the net at home i mean i did but i have a problem when i have the net back home,not a positive problem so thats why i dont have it,..well i better go ill hope to meet some of you later ...bye and have fun ...davo " god bless: oh are any of you on here christians i really like talking about this subject..anyway bye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 > > " god bless: > > > > oh are any of you on here christians i really like talking about this > > subject..anyway bye > ---------------------------- > > Hello and a big welcome to you! I think you will like this group as > there are a lot of very informed and helpful people here. > However, can I just personally request that you stay away from > attempting to introduce your religious views into this forum? I happen > to be a hard core evangelical atheist and I do not believe it is proper > to discuss my convictions on this hormone forum. I hope you will feel > the same way about keeping to the subject of Hypo issues. > Good to have you join us, > Norton > You're correct about this, Norton. Those interested can enjoy an email correspondence. Brad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 I find that if we don't discuss subjects that are best left alone, the subject quickly dies. Note, don't respond and ya won't get a response back on something ya'll don't wish to discuss! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2006 Report Share Posted May 31, 2006 Hi ddavid6064 and welcome we have some men here with xxy klinefelters. Can you do your shots your self and try doing them every week this keeps the ride down. Go to this site www.allthingsmale.com and read TRT: A Recipe for Success and the HCG update. This I feel is the best way to do TRT but I don't know how much you can get out of HCG. But no harm in trying it. Phil ddavid6064 <ddavid6064@...> wrote: Hi im new on here i have xxy klinefelters i am usually on the other xxy websites but seems as though not much is going on as it use to be,i mean sometimes its really going off other times its quiet ,anyway thought ill broaden my horizons anyway im dvid im from australia although im not actually an australian like with blonde hair etc bu t ive had xxy for my entire life but only found out 5 years or so back,hmmm its been hecket but i guess thats life, i take injection of T 250 which is a real roller coaster and i have osteoporosis too which is another specail gift , so where are you xxys from how long have you had xxy what do u think about it and isnt it cool how us xxy can really talk sometimes , i guess i can talk a leg off a chair any day ,but i guess that must be because of this xrta x which i think makes me more sensitive then xy males although i have met a lot of other xy males that talk more then i do,ahhhh so much to say,im actually at the libarary using thier computer coz i dont have the net at home i mean i did but i have a problem when i have the net back home,not a positive problem so thats why i dont have it,..well i better go ill hope to meet some of you later ...bye and have fun ...davo " god bless: oh are any of you on here christians i really like talking about this subject..anyway bye Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2006 Report Share Posted June 2, 2006 Huh? were you replying to my post? well i find the same with the other site,except for they get back to you then end the disscusion just so nobody will feel left out anyway see you....david --------- Vickie or <plp40@...> wrote: I find that if we don't discuss subjects that are best left alone, the subject quickly dies. Note, don't respond and ya won't get a response back on something ya'll don't wish to discuss! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Subject: Re: ( ) Re: HI Hi i am new to this group. I am from Milford, OH. I have a 12 son who is asperger's/adhd. LJL <laura6307@...> wrote: near Cleveland and Akron. > > ANYBODY FROM OHIO I HAVE TWO KIDS ONE WITH ASPERGER /ODD AND ANOTHER > WITH AUTISM > **** We always have a good number of people from Ohio here. I am in Medina, Ohio. Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi Aron, I looked at the photo - what a cute boy. Good luck with the cast and band. -christine mom to Sydney, 5.5 mo, brachy, STARband 5-31-06 > > hi just joined the group my son is going in at 9:00am to have the cast > made for his doc band. simon is 5 months old and has torticollis we > have been going to pt every week for that and he is doing very good, > he also has acid reflux (first month was a living hell constant > screaming then he got put on zantac turned into a diffrent baby).this > is alot to deal with being a first time mom. heres pics of simon > http://birds.lemonyfresh.com/gallery/Simon theres tons of them have to > take lots of pics since my inlaws live out of the state and my parents > dont get to see him to often. > > > aron holwig > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2006 Report Share Posted June 22, 2006 Hi I have a five year old son Ryley who has also just been dx with AS. Welcome to the group. I am new also but so far have found it wonderful. I feel like we are so " normal " everyone seems to be going through or has gone through the same types of things. I am sure you will love it here! Good luck tomorrow! ( ) Hi Hi everyone, My name is . I was so excited to find this group! I have a four year old son, Dylan, who was recently diagnosed with AS. Tomorrow is his first IEP. Okay, I'm a little nervous! I wanted to take a moment to introduce myself and say hi. Best, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Hi Aron, Welcome to the group. Simon is adorable. So does he have torticollis? I noticed he seems to have a strong head tilt in a lot of the pics. How was the cast? The pics look like he did just fine na, DOC Grad X2 Feb 04 Kiersten, DOC Grad Apr 04 www.thefilyaws.com/plagio/plagio.html > > hi just joined the group my son is going in at 9:00am to have the cast > made for his doc band. simon is 5 months old and has torticollis we > have been going to pt every week for that and he is doing very good, > he also has acid reflux (first month was a living hell constant > screaming then he got put on zantac turned into a diffrent baby).this > is alot to deal with being a first time mom. heres pics of simon > http://birds.lemonyfresh.com/gallery/Simon theres tons of them have to > take lots of pics since my inlaws live out of the state and my parents > dont get to see him to often. > > > aron holwig > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Hi julia and welcome. Young <love2jewels@...> wrote: Hi everyone, My name is . I was so excited to find this group! I have a four year old son, Dylan, who was recently diagnosed with AS. Tomorrow is his first IEP. Okay, I'm a little nervous! I wanted to take a moment to introduce myself and say hi. Best, __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 yup he had pretty bad torticollis it has really improved though from going to phyical theraphy once a week. aron holwig > > > > hi just joined the group my son is going in at 9:00am to have the > cast > > made for his doc band. simon is 5 months old and has torticollis > we > > have been going to pt every week for that and he is doing very > good, > > he also has acid reflux (first month was a living hell constant > > screaming then he got put on zantac turned into a diffrent > baby).this > > is alot to deal with being a first time mom. heres pics of simon > > http://birds.lemonyfresh.com/gallery/Simon theres tons of them > have to > > take lots of pics since my inlaws live out of the state and my > parents > > dont get to see him to often. > > > > > > aron holwig > > > Quote Link to comment Share on other sites More sharing options...
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