hi

[Guest guest]

Hey Marwa

Though I don't have RA, but lupus and scleroderma instead, I get a lot of info

from this group.

According to your name you come from an Arab country and it seems you left the

US and travelled to another place. If you are in Egypt, let me know, since I am

being treated by a very good doctor here in Cairo.

good luck

amira

sicsica2000 <sicsica2000@...> wrote:

Hi guys,

Im new here,i was diagnosed with RA one month ago, the Doctor give

me arava, plaqunil, trental, bio probolis and Xanax. I had to travil

to another country and started my medication there alone. Im feeling

alot better now except for the fatigue and the depression.

I want to know is this depression associated with the RA? and do i

will always suffer from it?

Also i want to know should i go to the doctor after finishing my

medication or what? is this stiffness and pain will come again?

Thanks guys very much and please if any one has information about RA

send it to me, i really didnt have the time to talk to any doctors, i

only been there once and took the prescription and fly away.

marwa

[Guest guest]

From what my doc says, depression is often associated with any sort of

pain-causing and/or life-altering condition. I haven't noticed

personally, because I've been dealing with bipolar disorder my whole

life (although I didn't get dx and medicated for it until I was

20...MAN, what a difference a couple of little pills a day can make!)

Before I started taking meds , I worried that they might change what I

was like, change " me " , but I've been on them (except for the year I

didn't have insurance and couldn't afford them, which was a horrible

year) for 12 years now, and I gotta say, my life is WAAAAY better with

them than without them, and I'm still the same person, I'm just not as

crushingly unhappy (or angry, or suicidal) as I was without them.

Not everyone stays depressed. My mom has had RA for over 30 years and

is one of the happiest people I know, even though she deals with pain

from the RA and her other assorted conditions on a daily basis.

Definitely go to the doc...if you've got RA, it's not going to go away,

unfortunately...

Shanna

sicsica2000 wrote:

> Hi guys,

>

> Im new here,i was diagnosed with RA one month ago, the Doctor give

> me arava, plaqunil, trental, bio probolis and Xanax. I had to travil

> to another country and started my medication there alone. Im feeling

> alot better now except for the fatigue and the depression.

>

> I want to know is this depression associated with the RA? and do i

> will always suffer from it?

>

> Also i want to know should i go to the doctor after finishing my

> medication or what? is this stiffness and pain will come again?

>

> Thanks guys very much and please if any one has information about RA

> send it to me, i really didnt have the time to talk to any doctors, i

> only been there once and took the prescription and fly away.

>

> marwa

>

> _

>

>

>

[Guest guest]

Hey Amira,

Actually i am on my own here " Independent woman " but im

really feeling alot better now, i try not to think too much i think

it will help if we dont pitty ourself and try to stay active.

Im still worried cuz i cant find doctor or actually aford

it, so im going on the traditional egyptian way of

treatment " 7'aleeha 3ala allah " .

Thanks again and i wish u all the luck.

Marwa

>

> Hey Marwa

>

> Good to hear from you. I hope you are doing fine, considering

everything...

>

> I wish you can get medical assistance soon. You are taking a lot

of meds and their intake has to be somehow supervised.

>

> I go to Dr. Ali Heikal here in Cairo on a regular basis and he

has helped me a lot, especially in early discovery of the illness

and the treatement. As for the depression, he has been wanting to

give me anti-depressants from the start, but I refused, I did not

want any, it was just the initial shock of hearing that I am

seriously ill that got to me, but now I have adapted to the

situation and I am much better, except for the nasty flairs.

>

> I hope you are not alone in Dubai and I will pray for you that

you get better soon.

> Please let me know if I can be of any help, don't hesitate to

contact me for whatever reason.

>

> salam ya gamil

> amira

>

>

[Guest guest]

Hello ,

My name is Terri and I have been where u are. My 10 yr old has AS and

is also an epileptic. It is a relief to get to know people who understand, so

I just wanted to welcome u. My son's therapist has tought him a breathing

technique that helps him when he goes into panic mode. He focuses on a certain

object or he puts his head down and closes his eyes and breathes in for 5

seconds then breathes out for 5 seconds. He does this until he relaxes sometimes

it takes a bit and sometimes it takes a short time. It is nicknamed the turtle

method. Also not to sound nosey what seizure meds and other meds is he on? My

son is on topamax for his seizures and risperdal and lexapro for anxiety. The

reason I am asking is my son was also on trileptol for 3 years for his seizures

along with the other meds and as the seizures got under control his neurologist

slowly wheened him off the trileptol. Recently he was riding his bike, fell,

and broke his arm. When we took him

into the ER and they did x-rays the dr said his bones looked older than what

they should be. When we took him to his neuro appointment and told his

neurologist that he said that taking trileptol for a long period of time can

cause ostiopenia, a step under osteoperosis. So now we have put him on

vitamins perscribed by his dr. So I just wanted to warn u parents about this.

Terri

Boothe <aviationgod@...> wrote:

Hi! My name is . I found your AS support group through Children's

Disability Mailing Lists online. My 6 year old son, , was

diagnosed 2 weeks ago this coming Friday with Asperger's Syndrome and a

generalized anxiety disorder. He also has unspecified epilepsy, asthma,

and seasonal allergies. LOL He seems to have his fair share of

diagnoses as of late, but it's so much better than not knowing why he

is the way he is. He's on anxiey and seizure medication, which have

helped with a lot of his anger/frustration issues and some of his

compulsions, but social/emotional issues have persisted. He doesn't

feel most painful sensations, but the lightest touch can set him off

into a screaming, crying fit. If anyone has any advice for the newly

diagnosed, it would sure be appreciated!!

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

Hi Terry!

He's on Zonegran for his seizures and Lexapro for his anxiety. So far, they

seem to be working, although his seizures have only been controlled for 2

months. He's had staring spells all his life, but I noticed the jerking seizures

this past Halloween morning (I just happened to be on the phone with his dad who

forgot that Dubai was 12 hours ahead of us!!). He only seems to have them in his

sleep, but the staring spells are obviously when he's awake and few and far

between when he's not on the medicine. We just figured they were because he

didn't like people and he was just ignoring us. Little did we know!! : )

Currently the only thing we've found that helps when he goes into a fit is to

sit and hold him while he rocks and screams. After about 5 minutes of rocking,

he starts talking himself down and when he stops talking he's completely calm.

Unfortunately, I seem to end up with a lot of bruises!! My husband is afraid to

hold him down for fear he'll hurt him.

Everybody keeps mentioning therapists--do all kids with AS need therapy?

' psychiatrist has mentioned sensory integration and social speech, but

we haven't seen her since he was diagnosed. We're still trying to figure out

what all he's going to need and how to go about getting it. We're also trying to

find out how intense the therapies are since we're looking at moving sometime in

the next 10 1/2 months from Washington state to Oklahoma and we don't want to

mess up his schedule anymore then we absolutely have to.

Thank you for the heads up on the seizure medicine! It's good information

for the future if the Zonegran ever stops working and they want to put him on a

new med.

Re: ( ) Hi

Hello ,

My name is Terri and I have been where u are. My 10 yr old has AS and is also

an epileptic. It is a relief to get to know people who understand, so I just

wanted to welcome u. My son's therapist has tought him a breathing technique

that helps him when he goes into panic mode. He focuses on a certain object or

he puts his head down and closes his eyes and breathes in for 5 seconds then

breathes out for 5 seconds. He does this until he relaxes sometimes it takes a

bit and sometimes it takes a short time. It is nicknamed the turtle method. Also

not to sound nosey what seizure meds and other meds is he on? My son is on

topamax for his seizures and risperdal and lexapro for anxiety. The reason I am

asking is my son was also on trileptol for 3 years for his seizures along with

the other meds and as the seizures got under control his neurologist slowly

wheened him off the trileptol. Recently he was riding his bike, fell, and broke

his arm. When we took him

into the ER and they did x-rays the dr said his bones looked older than what

they should be. When we took him to his neuro appointment and told his

neurologist that he said that taking trileptol for a long period of time can

cause ostiopenia, a step under osteoperosis. So now we have put him on vitamins

perscribed by his dr. So I just wanted to warn u parents about this.

Terri

Boothe <aviationgod@...<mailto:aviationgod@...>> wrote:

Hi! My name is . I found your AS support group through Children's

Disability Mailing Lists online. My 6 year old son, , was

diagnosed 2 weeks ago this coming Friday with Asperger's Syndrome and a

generalized anxiety disorder. He also has unspecified epilepsy, asthma,

and seasonal allergies. LOL He seems to have his fair share of

diagnoses as of late, but it's so much better than not knowing why he

is the way he is. He's on anxiey and seizure medication, which have

helped with a lot of his anger/frustration issues and some of his

compulsions, but social/emotional issues have persisted. He doesn't

feel most painful sensations, but the lightest touch can set him off

into a screaming, crying fit. If anyone has any advice for the newly

diagnosed, it would sure be appreciated!!

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

Hey ,

My son has 3 dr's. A neurologist for his epilepsy, a psychiatrist, and

his therapist. The psychiatrist mainly just deals with his anxiety meds and

cosults the therapist about progress. It helps to have a therapist because she

teaches him how to control his anxiety and panic attacks plus it helps my

husband and I because she gives us advice on how to handle certain situations

with him and ease him through them. I don't know about your son but my son has

a big thing with change and schedules. That is why I do not look forward to

summer breaks from school. It is so hard to get him adjusted to not bieng in

school. So we got him into a summer program at school with a teacher he is

familiar with 3 days a week. He is also in physical and occupatiol therapy 2

times a week but that is for his gross and fine motor skills. All 3 of these

dr's only deal with children and adolescents which is also excellant. So if you

decide to go that route then make sure they deal

with children. We just happened to get a therapist that specializes in autism

and aspergers syndrom which was lucky.

Terri

& <aviationgod@...> wrote:

Hi Terry!

He's on Zonegran for his seizures and Lexapro for his anxiety. So far, they seem

to be working, although his seizures have only been controlled for 2 months.

He's had staring spells all his life, but I noticed the jerking seizures this

past Halloween morning (I just happened to be on the phone with his dad who

forgot that Dubai was 12 hours ahead of us!!). He only seems to have them in his

sleep, but the staring spells are obviously when he's awake and few and far

between when he's not on the medicine. We just figured they were because he

didn't like people and he was just ignoring us. Little did we know!! : )

Currently the only thing we've found that helps when he goes into a fit is to

sit and hold him while he rocks and screams. After about 5 minutes of rocking,

he starts talking himself down and when he stops talking he's completely calm.

Unfortunately, I seem to end up with a lot of bruises!! My husband is afraid to

hold him down for fear he'll hurt him.

Everybody keeps mentioning therapists--do all kids with AS need therapy?

' psychiatrist has mentioned sensory integration and social speech, but

we haven't seen her since he was diagnosed. We're still trying to figure out

what all he's going to need and how to go about getting it. We're also trying to

find out how intense the therapies are since we're looking at moving sometime in

the next 10 1/2 months from Washington state to Oklahoma and we don't want to

mess up his schedule anymore then we absolutely have to.

Thank you for the heads up on the seizure medicine! It's good information for

the future if the Zonegran ever stops working and they want to put him on a new

med.

Re: ( ) Hi

Hello ,

My name is Terri and I have been where u are. My 10 yr old has AS and is also an

epileptic. It is a relief to get to know people who understand, so I just wanted

to welcome u. My son's therapist has tought him a breathing technique that helps

him when he goes into panic mode. He focuses on a certain object or he puts his

head down and closes his eyes and breathes in for 5 seconds then breathes out

for 5 seconds. He does this until he relaxes sometimes it takes a bit and

sometimes it takes a short time. It is nicknamed the turtle method. Also not to

sound nosey what seizure meds and other meds is he on? My son is on topamax for

his seizures and risperdal and lexapro for anxiety. The reason I am asking is my

son was also on trileptol for 3 years for his seizures along with the other meds

and as the seizures got under control his neurologist slowly wheened him off the

trileptol. Recently he was riding his bike, fell, and broke his arm. When we

took him

into the ER and they did x-rays the dr said his bones looked older than what

they should be. When we took him to his neuro appointment and told his

neurologist that he said that taking trileptol for a long period of time can

cause ostiopenia, a step under osteoperosis. So now we have put him on vitamins

perscribed by his dr. So I just wanted to warn u parents about this.

Terri

Boothe <aviationgod@...<mailto:aviationgod@...>> wrote:

Hi! My name is . I found your AS support group through Children's

Disability Mailing Lists online. My 6 year old son, , was

diagnosed 2 weeks ago this coming Friday with Asperger's Syndrome and a

generalized anxiety disorder. He also has unspecified epilepsy, asthma,

and seasonal allergies. LOL He seems to have his fair share of

diagnoses as of late, but it's so much better than not knowing why he

is the way he is. He's on anxiey and seizure medication, which have

helped with a lot of his anger/frustration issues and some of his

compulsions, but social/emotional issues have persisted. He doesn't

feel most painful sensations, but the lightest touch can set him off

into a screaming, crying fit. If anyone has any advice for the newly

diagnosed, it would sure be appreciated!!

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

hi my son lashes around and kicks in his sleep also makes noises could this be

seizures you think??

& <aviationgod@...> wrote: Hi Terry!

He's on Zonegran for his seizures and Lexapro for his anxiety. So far, they seem

to be working, although his seizures have only been controlled for 2 months.

He's had staring spells all his life, but I noticed the jerking seizures this

past Halloween morning (I just happened to be on the phone with his dad who

forgot that Dubai was 12 hours ahead of us!!). He only seems to have them in his

sleep, but the staring spells are obviously when he's awake and few and far

between when he's not on the medicine. We just figured they were because he

didn't like people and he was just ignoring us. Little did we know!! : )

Currently the only thing we've found that helps when he goes into a fit is to

sit and hold him while he rocks and screams. After about 5 minutes of rocking,

he starts talking himself down and when he stops talking he's completely calm.

Unfortunately, I seem to end up with a lot of bruises!! My husband is afraid to

hold him down for fear he'll hurt him.

Everybody keeps mentioning therapists--do all kids with AS need therapy?

' psychiatrist has mentioned sensory integration and social speech, but

we haven't seen her since he was diagnosed. We're still trying to figure out

what all he's going to need and how to go about getting it. We're also trying to

find out how intense the therapies are since we're looking at moving sometime in

the next 10 1/2 months from Washington state to Oklahoma and we don't want to

mess up his schedule anymore then we absolutely have to.

Thank you for the heads up on the seizure medicine! It's good information for

the future if the Zonegran ever stops working and they want to put him on a new

med.

Re: ( ) Hi

Hello ,

My name is Terri and I have been where u are. My 10 yr old has AS and is also an

epileptic. It is a relief to get to know people who understand, so I just wanted

to welcome u. My son's therapist has tought him a breathing technique that helps

him when he goes into panic mode. He focuses on a certain object or he puts his

head down and closes his eyes and breathes in for 5 seconds then breathes out

for 5 seconds. He does this until he relaxes sometimes it takes a bit and

sometimes it takes a short time. It is nicknamed the turtle method. Also not to

sound nosey what seizure meds and other meds is he on? My son is on topamax for

his seizures and risperdal and lexapro for anxiety. The reason I am asking is my

son was also on trileptol for 3 years for his seizures along with the other meds

and as the seizures got under control his neurologist slowly wheened him off the

trileptol. Recently he was riding his bike, fell, and broke his arm. When we

took him

into the ER and they did x-rays the dr said his bones looked older than what

they should be. When we took him to his neuro appointment and told his

neurologist that he said that taking trileptol for a long period of time can

cause ostiopenia, a step under osteoperosis. So now we have put him on vitamins

perscribed by his dr. So I just wanted to warn u parents about this.

Terri

Boothe <aviationgod@...<mailto:aviationgod@...>> wrote:

Hi! My name is . I found your AS support group through Children's

Disability Mailing Lists online. My 6 year old son, , was

diagnosed 2 weeks ago this coming Friday with Asperger's Syndrome and a

generalized anxiety disorder. He also has unspecified epilepsy, asthma,

and seasonal allergies. LOL He seems to have his fair share of

diagnoses as of late, but it's so much better than not knowing why he

is the way he is. He's on anxiey and seizure medication, which have

helped with a lot of his anger/frustration issues and some of his

compulsions, but social/emotional issues have persisted. He doesn't

feel most painful sensations, but the lightest touch can set him off

into a screaming, crying fit. If anyone has any advice for the newly

diagnosed, it would sure be appreciated!!

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

gina ,

talk to your pediatrican firstabout your concerns before u jump to

conclusions. if he or she feels their is a need to see a neurologist to have an

eeg done then ok but talk to your dr first. My son has partial complex seizures

which means he mainly only stares off into space when he is awake. He tends to

have more when he is asleep.

Terri

gina jennings <catgina_jennings01@...> wrote:

hi my son lashes around and kicks in his sleep also makes noises could

this be seizures you think??

& <aviationgod@...> wrote: Hi Terry!

He's on Zonegran for his seizures and Lexapro for his anxiety. So far, they seem

to be working, although his seizures have only been controlled for 2 months.

He's had staring spells all his life, but I noticed the jerking seizures this

past Halloween morning (I just happened to be on the phone with his dad who

forgot that Dubai was 12 hours ahead of us!!). He only seems to have them in his

sleep, but the staring spells are obviously when he's awake and few and far

between when he's not on the medicine. We just figured they were because he

didn't like people and he was just ignoring us. Little did we know!! : )

Currently the only thing we've found that helps when he goes into a fit is to

sit and hold him while he rocks and screams. After about 5 minutes of rocking,

he starts talking himself down and when he stops talking he's completely calm.

Unfortunately, I seem to end up with a lot of bruises!! My husband is afraid to

hold him down for fear he'll hurt him.

Everybody keeps mentioning therapists--do all kids with AS need therapy?

' psychiatrist has mentioned sensory integration and social speech, but

we haven't seen her since he was diagnosed. We're still trying to figure out

what all he's going to need and how to go about getting it. We're also trying to

find out how intense the therapies are since we're looking at moving sometime in

the next 10 1/2 months from Washington state to Oklahoma and we don't want to

mess up his schedule anymore then we absolutely have to.

Thank you for the heads up on the seizure medicine! It's good information for

the future if the Zonegran ever stops working and they want to put him on a new

med.

Re: ( ) Hi

Hello ,

My name is Terri and I have been where u are. My 10 yr old has AS and is also an

epileptic. It is a relief to get to know people who understand, so I just wanted

to welcome u. My son's therapist has tought him a breathing technique that helps

him when he goes into panic mode. He focuses on a certain object or he puts his

head down and closes his eyes and breathes in for 5 seconds then breathes out

for 5 seconds. He does this until he relaxes sometimes it takes a bit and

sometimes it takes a short time. It is nicknamed the turtle method. Also not to

sound nosey what seizure meds and other meds is he on? My son is on topamax for

his seizures and risperdal and lexapro for anxiety. The reason I am asking is my

son was also on trileptol for 3 years for his seizures along with the other meds

and as the seizures got under control his neurologist slowly wheened him off the

trileptol. Recently he was riding his bike, fell, and broke his arm. When we

took him

into the ER and they did x-rays the dr said his bones looked older than what

they should be. When we took him to his neuro appointment and told his

neurologist that he said that taking trileptol for a long period of time can

cause ostiopenia, a step under osteoperosis. So now we have put him on vitamins

perscribed by his dr. So I just wanted to warn u parents about this.

Terri

Boothe <aviationgod@...<mailto:aviationgod@...>> wrote:

Hi! My name is . I found your AS support group through Children's

Disability Mailing Lists online. My 6 year old son, , was

diagnosed 2 weeks ago this coming Friday with Asperger's Syndrome and a

generalized anxiety disorder. He also has unspecified epilepsy, asthma,

and seasonal allergies. LOL He seems to have his fair share of

diagnoses as of late, but it's so much better than not knowing why he

is the way he is. He's on anxiey and seizure medication, which have

helped with a lot of his anger/frustration issues and some of his

compulsions, but social/emotional issues have persisted. He doesn't

feel most painful sensations, but the lightest touch can set him off

into a screaming, crying fit. If anyone has any advice for the newly

diagnosed, it would sure be appreciated!!

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

,

I have to agree with Terri--talk to your pediatrician first. If you can,

videotape what he does so you can show the dr. That's what we ended up having to

do--' EEG came back normal, his MRI is normal, but he was still having

the jerking at night, so we videotaped his episodes and showed them to his

neurologist. We're currently 2 months seizure free, he's sleeping better, and

some of his behavior issues have calmed some, too.

Re: ( ) Hi

Hello ,

My name is Terri and I have been where u are. My 10 yr old has AS and is also

an epileptic. It is a relief to get to know people who understand, so I just

wanted to welcome u. My son's therapist has tought him a breathing technique

that helps him when he goes into panic mode. He focuses on a certain object or

he puts his head down and closes his eyes and breathes in for 5 seconds then

breathes out for 5 seconds. He does this until he relaxes sometimes it takes a

bit and sometimes it takes a short time. It is nicknamed the turtle method. Also

not to sound nosey what seizure meds and other meds is he on? My son is on

topamax for his seizures and risperdal and lexapro for anxiety. The reason I am

asking is my son was also on trileptol for 3 years for his seizures along with

the other meds and as the seizures got under control his neurologist slowly

wheened him off the trileptol. Recently he was riding his bike, fell, and broke

his arm. When we took him

into the ER and they did x-rays the dr said his bones looked older than what

they should be. When we took him to his neuro appointment and told his

neurologist that he said that taking trileptol for a long period of time can

cause ostiopenia, a step under osteoperosis. So now we have put him on vitamins

perscribed by his dr. So I just wanted to warn u parents about this.

Terri

Boothe

<aviationgod@...<mailto:aviationgod@...><mailto:aviationgod@veri\

zon.net<mailto:aviationgod@...>>> wrote:

Hi! My name is . I found your AS support group through Children's

Disability Mailing Lists online. My 6 year old son, , was

diagnosed 2 weeks ago this coming Friday with Asperger's Syndrome and a

generalized anxiety disorder. He also has unspecified epilepsy, asthma,

and seasonal allergies. LOL He seems to have his fair share of

diagnoses as of late, but it's so much better than not knowing why he

is the way he is. He's on anxiey and seizure medication, which have

helped with a lot of his anger/frustration issues and some of his

compulsions, but social/emotional issues have persisted. He doesn't

feel most painful sensations, but the lightest touch can set him off

into a screaming, crying fit. If anyone has any advice for the newly

diagnosed, it would sure be appreciated!!

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

gee ..that's quite a story . thanks for sharing . Some good info. cathy from

ma

[Guest guest]

Hi Nik and all,

I was very interested to learn that Ibuprofen was a depressant. Pardon my

ignorance but is it only a depressant if you have been on it long term?

We use it by the bucketfuls for our postnatal woman at work. We should be aware

of this.

Can anyone also tell me whether Mobic does the same thing?

Thanks

Dianne

Canberra Australia

[ ] hi

Hi - quick introductory note.

My name is Nik - i'm 42 - and live in the UK.

I've suffered from Cervical neck pain for over 10 years - basically I woke up

one morning with a stiff neck....like I had on occasions in the past but it

didn't go away after the usual day or two.

Didn't do anything about it at first (very stupid of me) but eventually was

referred to an expensive specialist who had me x-rayed and MRI'd.

The results of the scans were " intriguing " - the specialist threw his hands in

the air and said " no idea what that is - you need to see a Rheumatologist "

So - got referred to a rheumatologist (apparently one of the top guys in his

field (but I won't say who becasue of what I will say later!))

This very expensive specialist looked at my scans and said " no idea what that

is - I need to discuss this with a consultant radiologist "

At this point I should explain what they didn't understand.....the scans

showed no degeneration in the bones, nothing ankylising or otherwise malignant

looking....just the two muscles/tendons either side of my neck that hold my

skull in place glowing white hot. (I did tell them that this was what was

hurting!)

Ok - so I went back to the Rheumatologist after he has spoken with a

Radiologist, and he said " We stilll have no real idea what this is - however - I

note you have Psoriasis on your elbows and knees. I think what we have is

Psoriatic Arthritis! " - apparently this affliction can be invisible on scans and

can cause the kind of artefacts seen on my scans (a bit odd seeing as he

originally scratched his head and hummed at them)

Ok - at least I had a diagnosis of what was causing all this pain and I

thought it can only get better from here......how wrong can a man be?

The cure for my affliction was....there is no cure...just painkillers. In my

case Voltarol SR which did the trick, but after a few weeks made my head spin.

The next one down from there is Ibuprofen which he prescribed by the

bucketload......nice friendly brufen......

I stopped going to see him as I didn't really see why I should be paying

massive amounts for a pat on the head, a cheery " there there " and more

ibuprofen. I did however take the Ibuprofen regularly to stave off the ever

increasing pain and tension in my neck.

Nobody bothered to tell me that brufen is a gentle depressant though.....so

over 4 years I went down and down, thought my work mates and bosses were being

unreasonable with me and my job was becoming impossible.....didn't occur to me I

was depressed (it's a gentle drug after all) and I was being " difficult " with

everyone around me!

Skip to the future.....new doctor (changed my GP for other reasons) who

noticed the stiffness in my neck and asked me a few questions. From my replies

she asked for the specialist notes and called me back in.

Her opinion (as a GP not a specialist) was that this was not PA but a stiff

neck and Physio would help. She said something like " the last place I would

expect this kind of thing to hit you would be where you have it " ...not sure if

they were just nice words but I was happy to believe in her.

Now at this point I have no idea whether this is PA or not....what I do know

is that the guys at the Physio centre have taken me (in 15 sessions) from the

point of moving around like a showroom dummy to having significant pain-free

movement in my neck...not perfect but that is probably a bridge too far....I can

look over my shoulder (left more than right), parallel park my car and generally

not look like I just walked out of a car wreck. I also don't take brufen (unless

I have a hangover) and the added weight of depression has been lifted off my

shoulders too....

What I guess I am saying is - don't necessarily trust a specialist to know

what he is talking about or indeed what he gives you for it....what you might

think is PA or some other form of Arthritis may be just reaction to something

you've eaten, drunk or done.....in my case it seems alcohol, milk and lack of

care when it first happened are at the root of all this.

I played soccer with my friends and their young kids last week - first time in

12 years I have kicked a ball and today I ache all over but least of all in my

neck...something I could not have done without the physio which has taken the

swelling and discomfort from my muscles, relaxed them off and let my neck move.

I have joined this group because having been diagnosed with PA - I still have

a feeling it may affect me in future as I do have psoriasis (which is recovering

as I am taking some new supplements but thats another story for another time) -

but would like to share with others the fact that sometimes what is diagnosed

first time isn't necessarily correct. I'm sure I will find lots of useful info

in here to make my life even more " normal " .

For those of you that have PA and are suffering massively as a result - my

heartfelt understanding of what you are going through goes out to you....friends

occasionally would have a stiff neck for a day or two and I used to say " that is

the pain I live with 24/7 " ....I don't have that now (occasionally it is a bit

worse but I would say it is at about 20% of the level I had before) but can

remember the grind of every day living with it or the effects of painkillers. I

guess I am lucky (or hope so)

Regards (hmm that wasnt a short introduction was it!)

Nik Rusic

---------------------------------

Groups are talking. We're listening. Check out the handy changes to

Groups.

[Guest guest]

Regards (hmm that wasnt a short introduction was it!) Nik Rusic

Nope but that's okay... I hear you on the doctor thingy... Some docs are there

to help you others I think just to confuse you... I was diagnosed with

Fibromyalgia and then recently they started doing more tests... I do have

psoriasis, and the inflamation test he did on me showed massive inflamation...

It showed swelling, he also tried moving my feet, arms and hands... It had

effected those area's as I have trouble with walking, standing ect... I don't

think a lot of doctors put in the work like they should, or put you off and

think they KNOW what it is and sometimes they don't... I am glad your neck is

better... Just remember with psoriasis, it does effect you and your body more

then you think it does... But, hopefully it will not with you for some time...

Love and Peace Always

Shaun and Barb

[Guest guest]

Nick! I am glad you have found some relief. I used to have neck pain

several years ago. I got Therapy for it and that has been several years ago. I

don't have any trouble with my neck anymore, but I have a lot of pain in my

Knee. I will be going to a Orthopedic Doctor next month. I have been to two

other Doctors for this, but this will be my first time to have a Orthopedic

Doctor take a look at it. Hope you continue to improve. Doris from Indiana USA.

Nik Rusic <nik_rusic@...> wrote: Hi - quick introductory note.

My name is Nik - i'm 42 - and live in the UK.

I've suffered from Cervical neck pain for over 10 years - basically I woke up

one morning with a stiff neck....like I had on occasions in the past but it

didn't go away after the usual day or two.

Didn't do anything about it at first (very stupid of me) but eventually was

referred to an expensive specialist who had me x-rayed and MRI'd.

The results of the scans were " intriguing " - the specialist threw his hands in

the air and said " no idea what that is - you need to see a Rheumatologist "

So - got referred to a rheumatologist (apparently one of the top guys in his

field (but I won't say who becasue of what I will say later!))

This very expensive specialist looked at my scans and said " no idea what that is

- I need to discuss this with a consultant radiologist "

At this point I should explain what they didn't understand.....the scans showed

no degeneration in the bones, nothing ankylising or otherwise malignant

looking....just the two muscles/tendons either side of my neck that hold my

skull in place glowing white hot. (I did tell them that this was what was

hurting!)

Ok - so I went back to the Rheumatologist after he has spoken with a

Radiologist, and he said " We stilll have no real idea what this is - however - I

note you have Psoriasis on your elbows and knees. I think what we have is

Psoriatic Arthritis! " - apparently this affliction can be invisible on scans and

can cause the kind of artefacts seen on my scans (a bit odd seeing as he

originally scratched his head and hummed at them)

Ok - at least I had a diagnosis of what was causing all this pain and I thought

it can only get better from here......how wrong can a man be?

The cure for my affliction was....there is no cure...just painkillers. In my

case Voltarol SR which did the trick, but after a few weeks made my head spin.

The next one down from there is Ibuprofen which he prescribed by the

bucketload......nice friendly brufen......

I stopped going to see him as I didn't really see why I should be paying massive

amounts for a pat on the head, a cheery " there there " and more ibuprofen. I did

however take the Ibuprofen regularly to stave off the ever increasing pain and

tension in my neck.

Nobody bothered to tell me that brufen is a gentle depressant though.....so over

4 years I went down and down, thought my work mates and bosses were being

unreasonable with me and my job was becoming impossible.....didn't occur to me I

was depressed (it's a gentle drug after all) and I was being " difficult " with

everyone around me!

Skip to the future.....new doctor (changed my GP for other reasons) who noticed

the stiffness in my neck and asked me a few questions. From my replies she asked

for the specialist notes and called me back in.

Her opinion (as a GP not a specialist) was that this was not PA but a stiff neck

and Physio would help. She said something like " the last place I would expect

this kind of thing to hit you would be where you have it " ...not sure if they

were just nice words but I was happy to believe in her.

Now at this point I have no idea whether this is PA or not....what I do know is

that the guys at the Physio centre have taken me (in 15 sessions) from the point

of moving around like a showroom dummy to having significant pain-free movement

in my neck...not perfect but that is probably a bridge too far....I can look

over my shoulder (left more than right), parallel park my car and generally not

look like I just walked out of a car wreck. I also don't take brufen (unless I

have a hangover) and the added weight of depression has been lifted off my

shoulders too....

What I guess I am saying is - don't necessarily trust a specialist to know what

he is talking about or indeed what he gives you for it....what you might think

is PA or some other form of Arthritis may be just reaction to something you've

eaten, drunk or done.....in my case it seems alcohol, milk and lack of care when

it first happened are at the root of all this.

I played soccer with my friends and their young kids last week - first time in

12 years I have kicked a ball and today I ache all over but least of all in my

neck...something I could not have done without the physio which has taken the

swelling and discomfort from my muscles, relaxed them off and let my neck move.

I have joined this group because having been diagnosed with PA - I still have a

feeling it may affect me in future as I do have psoriasis (which is recovering

as I am taking some new supplements but thats another story for another time) -

but would like to share with others the fact that sometimes what is diagnosed

first time isn't necessarily correct. I'm sure I will find lots of useful info

in here to make my life even more " normal " .

For those of you that have PA and are suffering massively as a result - my

heartfelt understanding of what you are going through goes out to you....friends

occasionally would have a stiff neck for a day or two and I used to say " that is

the pain I live with 24/7 " ....I don't have that now (occasionally it is a bit

worse but I would say it is at about 20% of the level I had before) but can

remember the grind of every day living with it or the effects of painkillers. I

guess I am lucky (or hope so)

Regards (hmm that wasnt a short introduction was it!)

Nik Rusic

---------------------------------

Groups are talking. We’re listening. Check out the handy changes to

Groups.

[Guest guest]

Hi Nik,

I am so glad for you that you are doing better. That is good news !!!

Hope it stays that way.

Jeanette

[ ] hi

Hi - quick introductory note.

My name is Nik - i'm 42 - and live in the UK.

I've suffered from Cervical neck pain for over 10 years - basically I woke up

one morning with a stiff neck....like I had on occasions in the past but it

didn't go away after the usual day or two.

Didn't do anything about it at first (very stupid of me) but eventually was

referred to an expensive specialist who had me x-rayed and MRI'd.

The results of the scans were " intriguing " - the specialist threw his hands in

the air and said " no idea what that is - you need to see a Rheumatologist "

So - got referred to a rheumatologist (apparently one of the top guys in his

field (but I won't say who becasue of what I will say later!))

This very expensive specialist looked at my scans and said " no idea what that

is - I need to discuss this with a consultant radiologist "

At this point I should explain what they didn't understand.....the scans

showed no degeneration in the bones, nothing ankylising or otherwise malignant

looking....just the two muscles/tendons either side of my neck that hold my

skull in place glowing white hot. (I did tell them that this was what was

hurting!)

Ok - so I went back to the Rheumatologist after he has spoken with a

Radiologist, and he said " We stilll have no real idea what this is - however - I

note you have Psoriasis on your elbows and knees. I think what we have is

Psoriatic Arthritis! " - apparently this affliction can be invisible on scans and

can cause the kind of artefacts seen on my scans (a bit odd seeing as he

originally scratched his head and hummed at them)

Ok - at least I had a diagnosis of what was causing all this pain and I

thought it can only get better from here......how wrong can a man be?

The cure for my affliction was....there is no cure...just painkillers. In my

case Voltarol SR which did the trick, but after a few weeks made my head spin.

The next one down from there is Ibuprofen which he prescribed by the

bucketload......nice friendly brufen......

I stopped going to see him as I didn't really see why I should be paying

massive amounts for a pat on the head, a cheery " there there " and more

ibuprofen. I did however take the Ibuprofen regularly to stave off the ever

increasing pain and tension in my neck.

Nobody bothered to tell me that brufen is a gentle depressant though.....so

over 4 years I went down and down, thought my work mates and bosses were being

unreasonable with me and my job was becoming impossible.....didn't occur to me I

was depressed (it's a gentle drug after all) and I was being " difficult " with

everyone around me!

Skip to the future.....new doctor (changed my GP for other reasons) who

noticed the stiffness in my neck and asked me a few questions. From my replies

she asked for the specialist notes and called me back in.

Her opinion (as a GP not a specialist) was that this was not PA but a stiff

neck and Physio would help. She said something like " the last place I would

expect this kind of thing to hit you would be where you have it " ...not sure if

they were just nice words but I was happy to believe in her.

Now at this point I have no idea whether this is PA or not....what I do know

is that the guys at the Physio centre have taken me (in 15 sessions) from the

point of moving around like a showroom dummy to having significant pain-free

movement in my neck...not perfect but that is probably a bridge too far....I can

look over my shoulder (left more than right), parallel park my car and generally

not look like I just walked out of a car wreck. I also don't take brufen (unless

I have a hangover) and the added weight of depression has been lifted off my

shoulders too....

What I guess I am saying is - don't necessarily trust a specialist to know

what he is talking about or indeed what he gives you for it....what you might

think is PA or some other form of Arthritis may be just reaction to something

you've eaten, drunk or done.....in my case it seems alcohol, milk and lack of

care when it first happened are at the root of all this.

I played soccer with my friends and their young kids last week - first time in

12 years I have kicked a ball and today I ache all over but least of all in my

neck...something I could not have done without the physio which has taken the

swelling and discomfort from my muscles, relaxed them off and let my neck move.

I have joined this group because having been diagnosed with PA - I still have

a feeling it may affect me in future as I do have psoriasis (which is recovering

as I am taking some new supplements but thats another story for another time) -

but would like to share with others the fact that sometimes what is diagnosed

first time isn't necessarily correct. I'm sure I will find lots of useful info

in here to make my life even more " normal " .

For those of you that have PA and are suffering massively as a result - my

heartfelt understanding of what you are going through goes out to you....friends

occasionally would have a stiff neck for a day or two and I used to say " that is

the pain I live with 24/7 " ....I don't have that now (occasionally it is a bit

worse but I would say it is at about 20% of the level I had before) but can

remember the grind of every day living with it or the effects of painkillers. I

guess I am lucky (or hope so)

Regards (hmm that wasnt a short introduction was it!)

Nik Rusic

---------------------------------

Groups are talking. We're listening. Check out the handy changes to

Groups.

[Guest guest]

Hi Nik. Welcome to the group. I'm glad your neck pain is under

control. That is a lot more than I can say for some of us. I too was

worried when I was first diagnosed because I have no massive bone

damage so nothing showed up on x-rays. After a bone scan and two

rhuemy opions, I am certain it is PA. Let's hope your pain doesn't

move to other places. I think it is good that you have gone through

this experience and are aware of the PA so you can catch it if you

have a flare in other parts of your body. Good luck.

[Guest guest]

Dianne - I latched onto this when I was speaking to a work

colleague - she had hurt herself and had taken Ibuprofen for a

couple of weeks....and couldn't understand why she was so tearful

all the time (silly things bothering her that usually she was ok

with)...another colleague told her it was the Ibuprofen - she

switched to Aspirin and Paracetamol and was back to her usual

cheerful self not long after She told me to quit taking it so I

obeyed!

I stopped taking it 6 months ago - rather suffer the pain than being

mr Grumpy all the time (and boy was I a grumpy old man - it scares

me to think how I was!) and slowly I have recovered to being a

reasonably balanced young chap. My wife sees the difference, my

friends and workmates see it too....and best of all - I see the

difference.

I think it is a cumulative thing - the longer you take it the

further down you go, and if you are taking it like candy 3 times a

day, your system never gets to come up for air....so short term it

will make you a bit sad....long term it will make you think the

world is a depressing place (oh - it is a depressing place!)

not sure mobic is the same as Ibuprofen - it is an NSAID - but cant'

see any contraindications re depression on the net. Interestingly

enough it can cause " serious life threatening skin reactions " - not

something you would want on top of psoriasis I feel....

Regards

N.

>

> Hi Nik and all,

> I was very interested to learn that Ibuprofen was a depressant.

Pardon my ignorance but is it only a depressant if you have been on

it long term?

> We use it by the bucketfuls for our postnatal woman at work. We

should be aware of this.

> Can anyone also tell me whether Mobic does the same thing?

> Thanks

>

> Dianne

> Canberra Australia

[Guest guest]

Thanks for that Nik. Ive passed the info on to my boss at work. Have you come

across any websites that might

support this theory?

Dianne

[ ] Re: hi

Dianne - I latched onto this when I was speaking to a work

colleague - she had hurt herself and had taken Ibuprofen for a

couple of weeks....and couldn't understand why she was so tearful

all the time (silly things bothering her that usually she was ok

with)...another colleague told her it was the Ibuprofen - she

switched to Aspirin and Paracetamol and was back to her usual

cheerful self not long after She told me to quit taking it so I

obeyed!

I stopped taking it 6 months ago - rather suffer the pain than being

mr Grumpy all the time (and boy was I a grumpy old man - it scares

me to think how I was!) and slowly I have recovered to being a

reasonably balanced young chap. My wife sees the difference, my

friends and workmates see it too....and best of all - I see the

difference.

I think it is a cumulative thing - the longer you take it the

further down you go, and if you are taking it like candy 3 times a

day, your system never gets to come up for air....so short term it

will make you a bit sad....long term it will make you think the

world is a depressing place (oh - it is a depressing place!)

not sure mobic is the same as Ibuprofen - it is an NSAID - but cant'

see any contraindications re depression on the net. Interestingly

enough it can cause " serious life threatening skin reactions " - not

something you would want on top of psoriasis I feel....

Regards

N.

>

> Hi Nik and all,

> I was very interested to learn that Ibuprofen was a depressant.

Pardon my ignorance but is it only a depressant if you have been on

it long term?

> We use it by the bucketfuls for our postnatal woman at work. We

should be aware of this.

> Can anyone also tell me whether Mobic does the same thing?

> Thanks

>

> Dianne

> Canberra Australia

[Guest guest]

Hi Sohu and welcome!

We have quite a few other members from India in this group -and

below is a message that will introduce you to just a few of them

from one recent archive. As always -I highly suggest you contact

Vani -her contact info is below. I'll copy Vani on here just in

case she misses this:

PS -Childrensapraxianet...why that name?

The original nonprofit I started was Children's Apraxia Network -thus the name

.

If you mean what is the definition of the group:

/

Let us know if you have any specific questions and we'll try to help!

~~~~~~~~~~~~~~~~~~start of archive

Re: new member from sikkim, india

Hi Samdup and welcome!

It's a good sign that at least your daughter is able to speak in

short

sentences at 4 - a great start! I'm not sure where everybody is in

India -but I know someone who will know that can help you: I 'highly'

suggest you contact Vani Rupela CCC SLP from All India Institute of

Speech and Hearing. Vani is a member of this group who reaches out to

help here -but not all are able to read every message so may have

missed yours. Vani just wrote a paper for her PhD

" EFFICACY OF NUTRITIONAL SUPPLEMENTATION ON SPEECH AND LANGUAGE

SKILLS

OF CHILDREN WITH DEVELOPMENTAL APRAXIA OF SPEECH "

Rupela, Vani

Junior Research Fellow

All India Institute of Speech and Hearing,

Mysore - 570 006

ISHA life member-L-707

Email: vavaoka@...

(her other email is vanirupela@... )

Also -here's another family from India that just posted this past

week

the same type of question that perhaps you can reach out to as well.

Their email is bhabat@... They are using something called Mega

3 but never answered here so not sure if it's the right thing or not.

Formula, dosage and quality of the oils are all that matter. Again -

I'd say to get in touch with Vani who is up to speed and awesome!

From: " kiddietalk " <kiddietalk@...>

Date: Fri Jul 22, 2005 10:40 am

Subject: Re: Substitute of Pro-EFA

Hi Aparna & Bhabatosh!

Since you are in India, was your child part of Vani Rupela's

master's study on EFAs? If so -Vani sounds so awesome - I can't

wait to meet her! Did you notice regression or slowing up on

progress of speech once off the EFAs?

Vani -do you have any comments on this?

I couldn't find anything about a fish oil named Mega-3 Plus online,

is it a private label? Do they have any other products in the line

and is it known as a good company? What is the smell

comparison of the Mega 3 to the ProEFA? (does it smell like rancid

fish or fresh fish?) That's just to simple check quality.

The dosages of the DHA and EPA should be fine in the Mega 3. I'm

suspecting however that the Mega-3 only has Omega 3 in it (could be

the name!)

If no Omega 6/GLA:

You can use that oil -and then purchase either primrose or borage

seed oil and add a drop or so of the Omega 6 oil to the fish oils.

Start with a drop and slowly work up till you hit the right ratio of

Omega 3 to Omega 6 which is around a 5/1 ratio of Omega 3 over Omega

6.

I'm not sure how many drops that will be -but you'll know when you

hit

the right amount of drops because you'll start to see more surges.

Hope that helps!

=====

[Guest guest]

Hi Sohu and welcome!

We have quite a few other members from India in this group -and

below is a message that will introduce you to just a few of them

from one recent archive. As always -I highly suggest you contact

Vani -her contact info is below. I'll copy Vani on here just in

case she misses this:

PS -Childrensapraxianet...why that name?

The original nonprofit I started was Children's Apraxia Network -thus the name

.

If you mean what is the definition of the group:

/

Let us know if you have any specific questions and we'll try to help!

~~~~~~~~~~~~~~~~~~start of archive

Re: new member from sikkim, india

Hi Samdup and welcome!

It's a good sign that at least your daughter is able to speak in

short

sentences at 4 - a great start! I'm not sure where everybody is in

India -but I know someone who will know that can help you: I 'highly'

suggest you contact Vani Rupela CCC SLP from All India Institute of

Speech and Hearing. Vani is a member of this group who reaches out to

help here -but not all are able to read every message so may have

missed yours. Vani just wrote a paper for her PhD

" EFFICACY OF NUTRITIONAL SUPPLEMENTATION ON SPEECH AND LANGUAGE

SKILLS

OF CHILDREN WITH DEVELOPMENTAL APRAXIA OF SPEECH "

Rupela, Vani

Junior Research Fellow

All India Institute of Speech and Hearing,

Mysore - 570 006

ISHA life member-L-707

Email: vavaoka@...

(her other email is vanirupela@... )

Also -here's another family from India that just posted this past

week

the same type of question that perhaps you can reach out to as well.

Their email is bhabat@... They are using something called Mega

3 but never answered here so not sure if it's the right thing or not.

Formula, dosage and quality of the oils are all that matter. Again -

I'd say to get in touch with Vani who is up to speed and awesome!

From: " kiddietalk " <kiddietalk@...>

Date: Fri Jul 22, 2005 10:40 am

Subject: Re: Substitute of Pro-EFA

Hi Aparna & Bhabatosh!

Since you are in India, was your child part of Vani Rupela's

master's study on EFAs? If so -Vani sounds so awesome - I can't

wait to meet her! Did you notice regression or slowing up on

progress of speech once off the EFAs?

Vani -do you have any comments on this?

I couldn't find anything about a fish oil named Mega-3 Plus online,

is it a private label? Do they have any other products in the line

and is it known as a good company? What is the smell

comparison of the Mega 3 to the ProEFA? (does it smell like rancid

fish or fresh fish?) That's just to simple check quality.

The dosages of the DHA and EPA should be fine in the Mega 3. I'm

suspecting however that the Mega-3 only has Omega 3 in it (could be

the name!)

If no Omega 6/GLA:

You can use that oil -and then purchase either primrose or borage

seed oil and add a drop or so of the Omega 6 oil to the fish oils.

Start with a drop and slowly work up till you hit the right ratio of

Omega 3 to Omega 6 which is around a 5/1 ratio of Omega 3 over Omega

6.

I'm not sure how many drops that will be -but you'll know when you

hit

the right amount of drops because you'll start to see more surges.

Hope that helps!

=====

[Guest guest]

Fatigue is my biggest problem. It bothers me much more than the pain. If

anyone has suggestions, I would love to hear them.

[Guest guest]

Yes, I know about the fatigue. I used to drag myself to the bathroom and felt

like I had played basketball all day by the time I got back into bed. Listen to

your body carefully. It's telling you you need the rest. If you can, stay in

bed as long as you can. Take frequent naps. Even if you are in a chair, close

your eyes and put your feet up, if possible. This will pass. You'll also have

many other symptoms that will come & go. Are you on an Antibiotic Protocol? If

not ask your doctor about it and a drug called Minocin. If he is against it,

then find a doctor who will work with you and A/P. I'm doing so much better.

I'm in my 8th month of A/P. All my symptoms are reversing and my labs are

coming back into the normal range. Good luck, Dolores

njteabag@... wrote: Fatigue is my biggest problem. It bothers me much more

than the pain. If

anyone has suggestions, I would love to hear them.

[Guest guest]

>

> Fatigue is my biggest problem. It bothers me much more than the

pain. If

> anyone has suggestions, I would love to hear them.

>

>

>

[Guest guest]

In a message dated 18/07/2006 22:38:50 GMT Daylight Time, nik_rusic@...

writes:

but would like to share with others the fact that sometimes what is diagnosed

first time isn't necessarily correct

Hi Nik,

...........and welcome to the group. I am in the UK too. (Scotland)

You are certainly right to say the first diagnosis is not always correct. I

was told at first that I had ringworm! lol Then I was told that it was Eczema

so it was third time lucky (Lucky?????) for me.

I'm glad to hear that the problem with your neck all but disappeared. I have

had neck problems with the PA although that has calmed down again. Hope it

stays that way. lol

Take care,

[Guest guest]

Welcome

You will find alot of caring people on this site, and I am quite sure there

will be someone that can help you,or show you where you can get it.I am one

with RA, DJD. I don't know much about Fibro., and I am still trying to read

and understand what I have.Just wanted to welcome you and hope you have a

Blessed painfree Day.

Rhonda

[ ] hi

> hi every one,

> I am new to the group.

> my name is mary w.

> I have had fibromyalgia for atleast 25 years or more.

> lately I have been waken by cold numbness in my fingers. so cold & numb

> that it actualy hurts.

> has any one had this problem, if so have you found a way to combat the

> problem.

> love light,

> mary w.

>

>

>

>

>

>

>

>

>

[Guest guest]

thank you, Rhonda,

even though I have had fibro for a long time. I am still learing about the

dease, and cronic pain.

atleast now,

when I go to the dr. and say doc. my arms feel like some one is twisting my

arms, and feel like I have been ran over w/mac truck. the doc does not say, " ho

you are just depressed, it is all in your mind. "

the day that I found out exactly what I have, was a real blessing. considering

my past experinces.

May your day be filled with

loves light,

joy & peace !

W.

shine190 <shine190@...> wrote:

Welcome

You will find alot of caring people on this site, and I am quite sure there

will be someone that can help you,or show you where you can get it.I am one

with RA, DJD. I don't know much about Fibro., and I am still trying to read

and understand what I have.Just wanted to welcome you and hope you have a

Blessed painfree Day.

Rhonda

[ ] hi

> hi every one,

> I am new to the group.

> my name is mary w.

> I have had fibromyalgia for atleast 25 years or more.

> lately I have been waken by cold numbness in my fingers. so cold & numb

> that it actualy hurts.

> has any one had this problem, if so have you found a way to combat the

> problem.

> love light,

> mary w.

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