hi

[Guest guest]

Hello Clare, I have been here for a couple of months. Everyone

here are very nice and supportive. They are good to have around when

you need someone to talk too.

Joyce From Texas

======================================================================

>

> I'm new here! My name is Clare an I have

> Rheumatoid Arthritis. I've had it for 6 years.

>

[Guest guest]

>

> I hope you can help . A close friend of ours son has fredrics

ataxia ( sorry for spelling ) its a terriable disease , some what

like ALS . They have exausted all treatments and he is still on the

down hill path .. I read here a few days ago that you new of a doctor

that does phone consoultations . Could you please E-mail us his name

and # . Thanks Steve vste@...

>

=======

This doctor doesn't mind his name being posted in public. To all,

always ask your doctor's permission before you post his/her name in

public as an LDN prescriber.

Dr. Ayre prescribes LDN for more than just MS. I've spoken with his

staff.

Contemporary Medicine :: Dr. G. Ayre, M.D.

http://www.contemporarymedicine.net/bio_dr_ayre.htm

Contemporary Medicine

http://www.contemporarymedicine.net/multiple_sclerosis.htm

Contemporary Medicine :: Contact Us

http://www.contemporarymedicine.net/contact_us.htm

[Guest guest]

--Thanks . Your up kind of late back there in Arkansas- In

low dose naltrexone , " Bren " <b63powell@...> wrote:

>

>

> >

> > I hope you can help . A close friend of ours son has fredrics

> ataxia ( sorry for spelling ) its a terriable disease , some

what

> like ALS . They have exausted all treatments and he is still on

the

> down hill path .. I read here a few days ago that you new of a

doctor

> that does phone consoultations . Could you please E-mail us his

name

> and # . Thanks Steve vste@

> >

> =======

>

> This doctor doesn't mind his name being posted in public. To all,

> always ask your doctor's permission before you post his/her name

in

> public as an LDN prescriber.

>

> Dr. Ayre prescribes LDN for more than just MS. I've spoken with

his

> staff.

>

> Contemporary Medicine :: Dr. G. Ayre, M.D.

> http://www.contemporarymedicine.net/bio_dr_ayre.htm

>

> Contemporary Medicine

> http://www.contemporarymedicine.net/multiple_sclerosis.htm

>

> Contemporary Medicine :: Contact Us

> http://www.contemporarymedicine.net/contact_us.htm

>

>

>

[Guest guest]

>

> --Thanks . Your up kind of late back there in Arkansas

=========

LOL, I fell asleep on the couch around 8:45pm and woke up at 10:30pm

and took my LDN, watched TV and then checked the LDN forums and went

to bed. I got a lymphatic drainage massage yesterday and it drops my

blood pressure real low and I get real sleepy. I always try to get my

massage late in the afternoon.

Well, my dad took his first dose of LDN last night, started him at

1.5mg for 10 days. My dad doesn't have any autoimmune disease or

cancer but he has a few other problems I'm hoping the LDN will help

with. He'll up to 3.0mg in 10 days then up to 4.5mg.

[Guest guest]

,

What is a lymphatic drainage massage? Have you had surgery?

Nola

[low dose naltrexone] Re: Hi

>> --Thanks . Your up kind of late back there in Arkansas=========LOL, I fell asleep on the couch around 8:45pm and woke up at 10:30pm and took my LDN, watched TV and then checked the LDN forums and went to bed. I got a lymphatic drainage massage yesterday and it drops my blood pressure real low and I get real sleepy. I always try to get my massage late in the afternoon.Well, my dad took his first dose of LDN last night, started him at 1.5mg for 10 days. My dad doesn't have any autoimmune disease or cancer but he has a few other problems I'm hoping the LDN will help with. He'll up to 3.0mg in 10 days then up to 4.5mg.

[Guest guest]

>

> ,

> What is a lymphatic drainage massage? Have you had surgery?

> Nola

==========

Go to google at www.google.com and type in lymphatic drainage

massage. I've been paralyzed at different times over more than 85% of

my body from the MS and these episodes of paralysis caused lymphedema

or also spelled lymphoedema.

All this took place before I started LDN. I've had no more paralysis

since starting LDN 3 1/2 years ago.

[Guest guest]

This is exactly why I asked!! I have badly swollen feet and legs because of not being able to walk. And I have no insurance and cant afford having something done by a doc or nurse but I thought if this is something i can do myself, maybe it would give me some relief.

Nola

[low dose naltrexone] Re: Hi

>> ,> What is a lymphatic drainage massage? Have you had surgery? > Nola==========Go to google at www.google.com and type in lymphatic drainage massage. I've been paralyzed at different times over more than 85% of my body from the MS and these episodes of paralysis caused lymphedema or also spelled lymphoedema.All this took place before I started LDN. I've had no more paralysis since starting LDN 3 1/2 years ago.

[Guest guest]

>

> This is exactly why I

asked!! I have badly

swollen feet and legs

because of not being able

to walk. And I have no

insurance and cant afford

having something done by

a doc or nurse but I

thought if this is

something i can do

myself, maybe it would

give me some relief.

> Nola

=========

Unfortunately it's not

something you can do for

yourself. Getting some

lymphatic drainage

massage books and have a

family member or friend

learn the technique

wouldn't hurt.

[Guest guest]

--Since my wife started LDN for her MS whitch I'm sure I've said how

great she's doing on it. Well before starting she had to have

rotater cuff sergery on her shoulder . Then her other shoulder was

showing the same problems via MRI . She put it off after starting

LDN and as it turns out now her rotator problems have totaly

resolved . Both my shoulders are going out . so I started 4.5 on Dec

1st . I figure there would be no harm in trying . I'll keep ya

posted . Hope it makes your dad feel better .- One more note My

moms family is all from Arkansas . and for years she has always

made us fried fruit pies . Well when we were back there a few years

ago . I actualy found some in a restuant . You ever run acrossed

them or make them .. Bad for you but so good.In

low dose naltrexone , " Bren " <b63powell@...> wrote:

>

>

> >

> > --Thanks . Your up kind of late back there in Arkansas

>

> =========

>

> LOL, I fell asleep on the couch around 8:45pm and woke up at

10:30pm

> and took my LDN, watched TV and then checked the LDN forums and

went

> to bed. I got a lymphatic drainage massage yesterday and it drops

my

> blood pressure real low and I get real sleepy. I always try to

get my

> massage late in the afternoon.

>

> Well, my dad took his first dose of LDN last night, started him at

> 1.5mg for 10 days. My dad doesn't have any autoimmune disease or

> cancer but he has a few other problems I'm hoping the LDN will

help

> with. He'll up to 3.0mg in 10 days then up to 4.5mg.

>

>

>

[Guest guest]

>

> --Since my wife started LDN for her MS whitch I'm sure I've said how

> great she's doing on it. Well before starting she had to have

> rotater cuff sergery on her shoulder . Then her other shoulder was

> showing the same problems via MRI . She put it off after starting

> LDN and as it turns out now her rotator problems have totaly

> resolved . Both my shoulders are going out . so I started 4.5 on Dec

> 1st . I figure there would be no harm in trying . I'll keep ya

> posted . Hope it makes your dad feel better .- One more note My

> moms family is all from Arkansas . and for years she has always

> made us fried fruit pies . Well when we were back there a few years

> ago . I actualy found some in a restuant . You ever run acrossed

> them or make them .. Bad for you but so good.

=========

I wanted to start my dad with a real low dose of LDN because he's such

a big titty baby. Yes, even though my dad's supposed to be a big bad

state police officer he's a big titty baby when it comes to certain

things. He's always trying to prove to me how tough he is, yeah,

right, he cries over a hangnail. I'll be holding my breath and doing

alot of praying the night he tries 3mg.

Oh yes, me has had dem air fried pies many a time.*translation-dem air

stands for them there). The chocolate ones are good too. My favorite

is cherry. Cuzin Cap'n Caveman has relatives from Arkansas also.

Hope the LDN helps you.

WOOOoooooooo...PIG...SOOIE...RAZORBACKS!

[Guest guest]

This page might give you some insight:

http://www.actionlyme.org/Bransfield,%20LDF%20Poster,%202001,%

20Aggression.htm

jan

>

>

> I have a question. My niece, 16, has always (at least since 4th, 5th

> grade) been a very anxious child... She actually has full blown

> fits, meltdowns, severe anxiety, will not go into the classrooms at

> high school.

> Love,

> Helen

>

[Guest guest]

LOTS OF THANKS MADAM

I WILL TRY AND FOLLOW YOUR ADVICE

REGARDS

AMIT

[Guest guest]

LOTS OF THANKS MADAM

I WILL TRY AND FOLLOW YOUR ADVICE

REGARDS

AMIT

[Guest guest]

10-12 months; 2 word sentences like mama juice; etc.. very common at 2. my

daughter had 2 word sentences at 16 months. My boys don't speak. ugh.

_____

From:

[mailto: ] On Behalf Of newyearnorma

Sent: Monday, February 05, 2007 8:32 PM

Subject: [ ] hi

I am an newbie and have a question. I am kinda of confused what is

the " normal " age for a kid to talk?

[Guest guest]

Elle

I am having the same issue with my 20 month old. He just doesn't seem

to be interested in taling (he is the third with siblings aged 7 & 5)

He uses some signs and says a couple of words but only if we ask him

to. I'll be interested to read other responses to your inquiry.

Anne

>

> hi yall. im a mom of 3 and i live in SC. my children are 11,8, and

23

> months... my 23 month old has uttered maybe 3 words in his lifetime.

> the people from dhec came and put him through a series of hearing

tests

> im freaking out... but he can like be in the front room and hear go

> diego go and run in to the den but u say his name or whatever like a

> hundred times and no response. any advice? have yall evr heard of

3rd

> child syndrome? my sis told me its like where you aND

siblings " assume "

> what he needs and so he never has to speak? please any advice is

great!

> ty, Elle

>

[Guest guest]

If you are that worried...seek a specialist's opinion..not your

pediatrician but rather a Speech Pathologists or developmental pediatrician

or an evaluation from your state's Early Intervention program...I say,

Mom's know best...don't listen to relatives or pediatricians. My two cents.

" afial002 "

<afial002@...

om> To

Sent by:

childrensapraxian cc

et@...

m Subject

[ ] Re: hi

03/05/2007 02:10

PM

Please respond to

childrensapraxian

et@...

m

Elle

I am having the same issue with my 20 month old. He just doesn't seem

to be interested in taling (he is the third with siblings aged 7 & 5)

He uses some signs and says a couple of words but only if we ask him

to. I'll be interested to read other responses to your inquiry.

Anne

>

> hi yall. im a mom of 3 and i live in SC. my children are 11,8, and

23

> months... my 23 month old has uttered maybe 3 words in his lifetime.

> the people from dhec came and put him through a series of hearing

tests

> im freaking out... but he can like be in the front room and hear go

> diego go and run in to the den but u say his name or whatever like a

> hundred times and no response. any advice? have yall evr heard of

3rd

> child syndrome? my sis told me its like where you aND

siblings " assume "

> what he needs and so he never has to speak? please any advice is

great!

> ty, Elle

>

-----------------------------------------

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applicable, for any loss or damage arising in any way from its use.

If you received this transmission in error, please immediately

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whether in electronic or hard copy format. Thank you.

[Guest guest]

Oh i get it all the time except we have 5 kids so it's 5th child syndrome

here...lol

We live in NC,just moved here in Dec. My 4 yr old has been through all the

teast so has my 2 1/2 yr old hang in there they will find something out

Amy

shawnie <purerosebud@...> wrote:

hi yall. im a mom of 3 and i live in SC. my children are 11,8, and 23

months... my 23 month old has uttered maybe 3 words in his lifetime.

the people from dhec came and put him through a series of hearing tests

im freaking out... but he can like be in the front room and hear go

diego go and run in to the den but u say his name or whatever like a

hundred times and no response. any advice? have yall evr heard of 3rd

child syndrome? my sis told me its like where you aND siblings " assume "

what he needs and so he never has to speak? please any advice is great!

ty, Elle

---------------------------------

We won't tell. Get more on shows you hate to love

(and love to hate): TV's Guilty Pleasures list.

[Guest guest]

We used to live in SC (columbia). Our pediatrician gave us a referral to

babynet (the early intervention program in SC) when my son was 18mos old, as

he was not talking. Babynet, which is run through the Dept of Health, did

an initial evaluation and got him in for a hearing test at USC. A speach

therapist was assigned to us through babynet and she was wonderful. Our

experience with babynet was a good one and they helped us with our

transition to another state and getting us in the early intervention program

there. Keep up with your babynet coordinator (we called alot to make sure

the appointments were being scheduled etc.) and make sure they are doing all

they can for your little one. If you are not getting the service you need

or expect get a referral from your ped to see a specialist. Good luck! If

I can be of anymore help let me know.

On 3/5/07, shawnie <purerosebud@...> wrote:

>

> hi yall. im a mom of 3 and i live in SC. my children are 11,8, and 23

> months... my 23 month old has uttered maybe 3 words in his lifetime.

> the people from dhec came and put him through a series of hearing tests

> im freaking out... but he can like be in the front room and hear go

> diego go and run in to the den but u say his name or whatever like a

> hundred times and no response. any advice? have yall evr heard of 3rd

> child syndrome? my sis told me its like where you aND siblings " assume "

> what he needs and so he never has to speak? please any advice is great!

> ty, Elle

>

>

>

[Guest guest]

welcome to the group. it is hard for us parents to get used to the

band, or even the idea of the band. however it is really not bad. once

you read a few posts here you'll realize that it is not as bad as you

imagine. My daughter was banded at 5 mo for brachy (flat in back). I

cried on the way home from her scanning appointment, but after that I

was okay with it. the first few times in public are hard, but she

didn't mind it at all, still looked cute, was still the same happy

baby, and within 2 weeks we could see improvement. she was pretty

severe and ended up wearing her band for 5 mo (definitely on the long

side)but it went so quickly. it was such a good decision for us. i

know her head wouldn't have improved so dramatically any other way.

since your baby also has tort you'll want to make sure you do

stretches and see a PT. i don't know about a curved spine, but that

sounds like PT would help too. between the band adjustments and the PT

you'll be very busy, but nearly everyone here says it is the best

decision they've made. you'll find lots of support on this site.

let us know if you have questions.

-christine

mom to sydney/ 14 mo/ starband grad 10-06

>

> my daughter is 5 months and is about to get the band, and it is really

> hard, she also has left torticollis, and might have a curved spine

> now, i wish there was another way for the treatment.

>

[Guest guest]

I think this might be what you are looking for:

http://www.cherab.org/news/.html

>

> Does anyone recall where I can find the story of the girl with

apraxia,

> that received mega amounts of ABA and it turned out to be detrimental

> to her? I cant seem to find it anywhere?

>

> Michele

>

[Guest guest]

Lynn,

You are getting close now.

Try not to stress, not good for your health.

Lynda

At 08:34 PM 4/4/2007, you wrote:

>Hi ,

>

>How are you doing? Are you back to work? How is your daughter? How

>are the fat transfers?

>

>Sorry for so many questions, my surgery is next Friday with Dr.

>Huang. I am excited and nervous.

>

>Lynn

>

>

> > Day three with kefir making. I still don't know if

>I'm getting it right. I've read Dom's Kefir site but I still don't

>know if what I have is right.

> > Day 1– after 24 hours, curds and whey separated, the smell very

>sour and yeasty. I threw it out and kept the grains and started

>another batch in case it was bad.

> > Day 2– same result, but a little less yeasty smelling – I shook

>it up a little, strained it and put it in the fridge. Today the glass

>of kefir is watery, grainy, sour and yeasty. Definitely not thick or

>creamy like kefir I've had from the health food store.

> > Day 3– the kefir is sitting on the counter, about 12 hours along.

>There is a lot of cottage-cheese looking curds forming on the top,

>but it hasn't separated yet into curds and whey like the last two

>batches.

> > My questions:

> > Isn't it supposed to become thick and creamy, rather than watery

>and grainy?

> > Is it supposed to taste yeasty? If it separates, does that mean

>it is too far along?

> > Thanks,

> > Bindi

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Expecting? Get great news right away with email Auto-Check.

> > Try the Beta.

> >

>

>

[Guest guest]

hammy412000 wrote:

>

> >My rhuemy

> gave my a steroid shot for my costochondritis.

>

I had that for years! It finally stopped when I started taking

Plaquenil. I stopped taking that about six months or so ago when I

started the Orencia and the pain never came back. It sure is a

miserable condition.

Nina

[Guest guest]

That's great news Chris! I'm glad you found something that's working for

you!

Carol

In a message dated 6/2/2007 7:31:20 A.M. Pacific Daylight Time,

hammy412000@... writes:

Hi All-

This is again. My new pain meds are working. The apin is not

totally gone but I can function daily with limited pain. My rhuemy

gave my a steroid shot for my costochondritis. It worked very well

against the inflammation. Hope all are doing well. Peace out.

Chris

************************************** See what's free at http://www.aol.com.

[Guest guest]

Virginia,

Have you had him tested for food allergies and intolerances? Many times this

alone can cause a child to have many learning problems, attention problems,

depression, or even opositional type behavior.

Dana

Virginia <channellos2001@...> wrote:

My name is Virginia . I am a mom of 7 children, 3 of which

suffer

from different forms of ADHD. My oldest Hannah who is 9 has ADD. My

baby daughter who is almost 7 has ADHD. But my oldest son who is almost

6 has bi-polar disorder, ODD, severe ADHD, and PDD-NOS. I have a hard

time raising him especially seems how he is plagued by so much. I am

looking for other parents who have a child like himm so I can better

understand him and parent him better. He is medicated but we have tried

so many meds that I am not sure that they even are worth it. It has

been a rough road since all this began when he was about 2. But I hope

to find some advice from other parents here. If anyone can help or has

advice I would greatly appreciate it. I want my son to live as much of

a normal life as possible as well as my daughters. So I look forward to

hearing from someone. Thank you Virginia

Dana

and Garrett, 3 years old as of Mar 24

SCD 10 months

Celiac, ASD, Speech and Motor Apraxia

---------------------------------

Shape in your own image. Join our Network Research Panel today!

[Guest guest]

Hi Virginia,

I missed your post the first time round. It can be hard to know

where to get started, I imagine especially so if you have more than

one child to try to help.

Lots of people believe that trying to help through the gut first is

best. Diet can do lots of very good things for some of our kids.

Have you considered something like the Specific Carbohydrate Diet?

You can read about it here http://pecanbread.com/ Other people have

found that just by removing things like sugar, corn syrup, and

additives, their kids show some good improvement.

Many people see success with supplementation as well. There is a

supplement file in the files section that talks a bit about many of

the common supps we use to try to help our kids.

I have a document that I put together to try to help people who are

new to using biomedical treatments. If you email me offlist (just

reply to me here but change the TO: setting to my personal email

address) I'd be happy to send it to you. It is intended to help

people save time and start negotiating their way through all the

information available to us.

Best wishes,

Anita

>

> My name is Virginia . I am a mom of 7 children, 3 of which

suffer

> from different forms of ADHD. My oldest Hannah who is 9 has ADD. My

> baby daughter who is almost 7 has ADHD. But my oldest son who is

almost

> 6 has bi-polar disorder, ODD, severe ADHD, and PDD-NOS. I have a

hard

> time raising him especially seems how he is plagued by so much. I

am

> looking for other parents who have a child like himm so I can

better

> understand him and parent him better. He is medicated but we have

tried

> so many meds that I am not sure that they even are worth it. It has

> been a rough road since all this began when he was about 2. But I

hope

> to find some advice from other parents here. If anyone can help or

has

> advice I would greatly appreciate it. I want my son to live as much

of

> a normal life as possible as well as my daughters. So I look

forward to

> hearing from someone. Thank you Virginia

>