Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 3 weeks are not enough. Beg for 4 or 5 In a message dated 5/30/2009 2:33:48 P.M. Eastern Daylight Time, charmin1350@... writes: Hi, I was diagnosed this week with lymes disease. About a week ago I had what I thought was a pimple starting near the top of my belly button. The next day it looked like a hole with loose skin around it and my belly button was fiery red. Within a day the circle had grown to about 4 inches in diameter. In another day I started having excruciating headaches, blurred vision, and was wearing a fleece jacket and covered up with a quilt in a 78 degree house. I called the doctor and went in on Tuesday. They knew as soon as they seen it. At first it was all red but then by Tueday the inner part of the circle was lighter. My doctor said the classic bullseye. They think I will be okay because I went right away and I have three weeks of meds to take. But the headaches are terrible. My vision is still blurred and last night I had uncontrolled twitches in my one leg. I am concerned becaue I know people that have went blind and had terrible neurological problems. I'm hoping that the meds are the cure as the doctor said. I never seen the tick. I was only out a bit to week flower beds. I am also currently dealing with my 5th kidney stone and will have knee replacement in July. So I sit on a chair to week my flower bed. I live in Central Pa. I have 6 kids ages 15-40. 17 grandchildren and two greats. My husband died in 96 from agent orange from his three tours in Nam. I am 58. I guess I am looking for some reasurrance or else as the old saying goes, misery loves company. **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1221322950x1201367186/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=62 & bcd= MaystepsfooterNO62) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 Hi - Sorry to hear you have Lyme. But it's good you got a definite diagnosis and know for sure you have it. But it sounds like you really got some bad symptoms. Definitely start the 3 weeks of anti-biotics right away! But since your symptoms are so bad I would try to convince the doc to go a lot longer than 3 weeks - and maybe with some stronger anti-biotics. Myself, and many people on this list didn't get cured with a few weeks - and now we are seriously, seriously ill with Lyme even after years. So even if the symptoms disappear after 3 weeks I would still stay on anti-biotics for at least a couple months - just to be sure you wipe it out and it doesn't come back. Don wrote: > Hi, I was diagnosed this week with lymes disease. About a week ago I had what I thought was a pimple starting near the top of my belly button. The next day it looked like a hole with loose skin around it and my belly button was fiery red. Within a day the circle had grown to about 4 inches in diameter. In another day I started having excruciating headaches, blurred vision, and was wearing a fleece jacket and covered up with a quilt in a 78 degree house. I called the doctor and went in on Tuesday. They knew as soon as they seen it. At first it was all red but then by Tueday the inner part of the circle was lighter. My doctor said the classic bullseye. They think I will be okay because I went right away and I have three weeks of meds to take. But the headaches are terrible. My vision is still blurred and last night I had uncontrolled twitches in my one leg. I am concerned becaue I know people that have went blind and had terrible neurological problems. I'm hoping that the meds are the > cure as the doctor said. I never seen the tick. I was only out a bit to week flower beds. I am also currently dealing with my 5th kidney stone and will have knee replacement in July. So I sit on a chair to week my flower bed. > I live in Central Pa. I have 6 kids ages 15-40. 17 grandchildren and two greats. My husband died in 96 from agent orange from his three tours in Nam. I am 58. > I guess I am looking for some reasurrance or else as the old saying goes, misery loves company. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 Yes, I agree with Don that 3 weeks is too short a period for the antibiotics. I took 4 weeks of Amoxicillin (was allergic to Doxycycline) at 500 mg 2 times a day. I felt fine after 4 weeks and for years after....but then had a major relapse and today I am struggling with chronic lyme. My LLMD believes I was under treated originally for lyme and that today a knowledgeable doc would prescribe the antibiotics at a much higher dose: twice the amount that I got. By the way, I knew I had been bitten by the tick and started antibiotics after getting symptoms about 12 days after the tick bite. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 Well i cannot tell you how glad I am you came to this group, because you have visited the right one! So many people here will help you through this and educate you on this disease. Sadly to say the newer research even though your MD was willing to treat you due to the classic symptoms and rash, show that in order to kill all the bacteria and the co infections(new and other infections passed with lyme Disease from the tick) you MUST be on medicine for at least 6 weeks. It is important to know that the little bacteria can multiply quickly and be harder to treat as time goes on, so you must demand the 6 weeks of medicine. This way you can make sure the life cycle of the bacteria is done with and it is all eliminated! Good luck with this, and thank the lord it is not in Chronic stages for you! Thanks so much, and understand we are not MD's but instead sharing personal advice because we care and this is what we've been faced with in our own challenges! love, <3 Elaina From: <charmin1350@...> Subject: [ ] Hi Date: Friday, May 29, 2009, 8:18 PM Hi, I was diagnosed this week with lymes disease. About a week ago I had what I thought was a pimple starting near the top of my belly button. The next day it looked like a hole with loose skin around it and my belly button was fiery red. Within a day the circle had grown to about 4 inches in diameter. In another day I started having excruciating headaches, blurred vision, and was wearing a fleece jacket and covered up with a quilt in a 78 degree house. I called the doctor and went in on Tuesday. They knew as soon as they seen it. At first it was all red but then by Tueday the inner part of the circle was lighter. My doctor said the classic bullseye. They think I will be okay because I went right away and I have three weeks of meds to take. But the headaches are terrible. My vision is still blurred and last night I had uncontrolled twitches in my one leg. I am concerned becaue I know people that have went blind and had terrible neurological problems. I'm hoping that the meds are the cure as the doctor said. I never seen the tick. I was only out a bit to week flower beds. I am also currently dealing with my 5th kidney stone and will have knee replacement in July. So I sit on a chair to week my flower bed. I live in Central Pa. I have 6 kids ages 15-40. 17 grandchildren and two greats. My husband died in 96 from agent orange from his three tours in Nam. I am 58. I guess I am looking for some reasurrance or else as the old saying goes, misery loves company. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 Elaina, I think my Lyme Disease is in late stage? What are my chances? My doctor put me on second month of antibiotic becuase my neuropathy in my hands hasnt change, my vision is also blurry and i have a lot of dizziness. My hand i worry becuase i wake in the morning i cant barely move it, but it will start getting a little circulation in time.I worry now becuase before i found out that i have Lyme i been having arms numbness like your having a heart attack or stroke, i went to see acardiologist and said my heart is fine, and also im having anxiety attacks where my right arm gets numb and sometimes it happens when im driving, sometimes i have to pull over to let it passed.I lost a lot of weight and im afraid i will lost my job . My work know i have Lyme disease.Please ,your advise helps me a lot to get through this. I have a friend that he also thinks he was bitten and he will get check monday for Lyme. I wish my doctor diagnos me earlier. What are my chances if its late stage ? Treatment i can pursue, my doctor also said if i dont get better he might send me to pennsylvania. I dont wanna be paralysed or start using wheelchair ,im young and i want to be able to take care of my family...im a single mom, most of the time minor chores i cannot even do, becuase i cant grip things or carry things heavy.Im all worried.Please any suggestions? Lonera ________________________________ From: Elaina <nhgirlloveshorses@...> Sent: Saturday, May 30, 2009 6:49:47 PM Subject: Re: [ ] Hi Well i cannot tell you how glad I am you came to this group, because you have visited the right one! So many people here will help you through this and educate you on this disease. Sadly to say the newer research even though your MD was willing to treat you due to the classic symptoms and rash, show that in order to kill all the bacteria and the co infections(new and other infections passed with lyme Disease from the tick) you MUST be on medicine for at least 6 weeks. It is important to know that the little bacteria can multiply quickly and be harder to treat as time goes on, so you must demand the 6 weeks of medicine. This way you can make sure the life cycle of the bacteria is done with and it is all eliminated! Good luck with this, and thank the lord it is not in Chronic stages for you! Thanks so much, and understand we are not MD's but instead sharing personal advice because we care and this is what we've been faced with in our own challenges! love, <3 Elaina From: <charmin1350> Subject: [ ] Hi @group s.com Date: Friday, May 29, 2009, 8:18 PM Hi, I was diagnosed this week with lymes disease. About a week ago I had what I thought was a pimple starting near the top of my belly button. The next day it looked like a hole with loose skin around it and my belly button was fiery red. Within a day the circle had grown to about 4 inches in diameter. In another day I started having excruciating headaches, blurred vision, and was wearing a fleece jacket and covered up with a quilt in a 78 degree house. I called the doctor and went in on Tuesday. They knew as soon as they seen it. At first it was all red but then by Tueday the inner part of the circle was lighter. My doctor said the classic bullseye. They think I will be okay because I went right away and I have three weeks of meds to take. But the headaches are terrible. My vision is still blurred and last night I had uncontrolled twitches in my one leg. I am concerned becaue I know people that have went blind and had terrible neurological problems. I'm hoping that the meds are the cure as the doctor said. I never seen the tick. I was only out a bit to week flower beds. I am also currently dealing with my 5th kidney stone and will have knee replacement in July. So I sit on a chair to week my flower bed. I live in Central Pa. I have 6 kids ages 15-40. 17 grandchildren and two greats. My husband died in 96 from agent orange from his three tours in Nam. I am 58. I guess I am looking for some reasurrance or else as the old saying goes, misery loves company. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2009 Report Share Posted May 30, 2009 Just want to echo what everyone above said...I would definately not stop at 3 weeks of antibiotics - a couple of months would be better. I WOULD INSIST ON IT and take in some research to show the Dr. - find a LLMD if you can - NOW. Also, smilax (sarasparilla) for your headaches would probably help. I posted on it just a few minutes ago...best wishes. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2009 Report Share Posted May 31, 2009 Lonera, I can say that he chances oof having Late stage Lyme are higher than MDs suggest. Some think Chronic Lyme doesn't even exist! Anyway, you should definitely check out the movie Under Our Skin by open eye productions soon if you havn't it is the best, most detailed, most eye opening and thrilling documentary about a diesease I have ever whatched, and it will be in theatres soon so you will not be able to order it any longer. It is 35$ not including shipping ajnd you can find it online too, maybe even e-bay, idk. It sounds like you have late stage to me. Usually by what i have heard it gets late maybe after 6 months of undiagnosis, but thats an assumption! If it is not treated right away with 6 weeks abx then u are in trouble, because it multiplies faster then MD prescribed ABX will fix! That us why most of us have to see a Lyme Literate MD that will carefuklly treat us with long term protocols until we are better, and they have to whatch for insurance companis not to catch them either because they believe its bad for you.I dont think its bad if you have a chronic infection though! if you can, take a look at my blog: www.elainaslymediseasestory.blogspot.com there you can get some info i cannot or would rather not give through the group. I really hope everyhting works out and I would caution your friend to whatch out because not all MDs (very little in fact) will listen, test CORRECTLY, read the results accurately and with an open mind, and treat effective enough! For late stage it can take LONG whiles to get better, for a bite within months maybe up to 6 weeks at least of treatment to kill the coinfections and Lyme's bacterias life cycle. This way they are all gone and dont multiply.... sorry for the long email. feel free to email me for other questions at my more recently checked email address: horsegirl@... good luck to you and your friend, and hope to talk to you soon! Elaina From: <charmin1350> Subject: [ ] Hi @group s.com Date: Friday, May 29, 2009, 8:18 PM Hi, I was diagnosed this week with lymes disease. About a week ago I had what I thought was a pimple starting near the top of my belly button. The next day it looked like a hole with loose skin around it and my belly button was fiery red. Within a day the circle had grown to about 4 inches in diameter. In another day I started having excruciating headaches, blurred vision, and was wearing a fleece jacket and covered up with a quilt in a 78 degree house. I called the doctor and went in on Tuesday. They knew as soon as they seen it. At first it was all red but then by Tueday the inner part of the circle was lighter. My doctor said the classic bullseye. They think I will be okay because I went right away and I have three weeks of meds to take. But the headaches are terrible. My vision is still blurred and last night I had uncontrolled twitches in my one leg. I am concerned becaue I know people that have went blind and had terrible neurological problems. I'm hoping that the meds are the cure as the doctor said. I never seen the tick. I was only out a bit to week flower beds. I am also currently dealing with my 5th kidney stone and will have knee replacement in July. So I sit on a chair to week my flower bed. I live in Central Pa. I have 6 kids ages 15-40. 17 grandchildren and two greats. My husband died in 96 from agent orange from his three tours in Nam. I am 58. I guess I am looking for some reasurrance or else as the old saying goes, misery loves company. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Well, not that you're in trouble as much as the fact that it is important to start right away. I am so proud that you are now in a state of mind that you know what is wrong, and with medicine you should do fine and get well! I am about in it the same amount, except I have been on treatment for 1/2 year, or 8 months. It is a good thing to be on a treatment, even though it is a bad thing that you have Lyme and it may get worse..... I really hope you get what you need from here, it is the best! :-) lots of love, elaina From: heidy mahady <mactan_girl@...> Subject: Re: [ ] Hi Date: Sunday, May 31, 2009, 5:51 PM Elaina, I have the bite 2 years ago, but the Dr didnt diagnos me with Lyme,we thought it was just a spider bite. I know im in trouble.Thank you. Lonera ____________ _________ _________ __ From: Elaina <nhgirlloveshorses> @group s.com Sent: Sunday, May 31, 2009 5:07:15 PM Subject: Re: [ ] Hi Lonera, I can say that he chances oof having Late stage Lyme are higher than MDs suggest. Some think Chronic Lyme doesn't even exist! Anyway, you should definitely check out the movie Under Our Skin by open eye productions soon if you havn't it is the best, most detailed, most eye opening and thrilling documentary about a diesease I have ever whatched, and it will be in theatres soon so you will not be able to order it any longer. It is 35$ not including shipping ajnd you can find it online too, maybe even e-bay, idk. It sounds like you have late stage to me. Usually by what i have heard it gets late maybe after 6 months of undiagnosis, but thats an assumption! If it is not treated right away with 6 weeks abx then u are in trouble, because it multiplies faster then MD prescribed ABX will fix! That us why most of us have to see a Lyme Literate MD that will carefuklly treat us with long term protocols until we are better, and they have to whatch for insurance companis not to catch them either because they believe its bad for you.I dont think its bad if you have a chronic infection though! if you can, take a look at my blog: www.elainaslymedise asestory. blogspot. com there you can get some info i cannot or would rather not give through the group. I really hope everyhting works out and I would caution your friend to whatch out because not all MDs (very little in fact) will listen, test CORRECTLY, read the results accurately and with an open mind, and treat effective enough! For late stage it can take LONG whiles to get better, for a bite within months maybe up to 6 weeks at least of treatment to kill the coinfections and Lyme's bacterias life cycle. This way they are all gone and dont multiply.... sorry for the long email. feel free to email me for other questions at my more recently checked email address: horsegirl@metrocast .net good luck to you and your friend, and hope to talk to you soon! Elaina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2009 Report Share Posted June 2, 2009 Thank you Sara, I will mention it to my orthopedic doctor. I already have fibromyalgia and arthritist and pain all of the time so I wouldn't know if some of the symptoms are what I already have or from the Lymes. I will be watching this closely, for sure. If anything occurs after this treatment I'm going to be very vocal with my doctor. It is very hard to know that you are doing the right thing and wondering whether they know what the right thing is. Well I pray a lot. Well its been a long day at the VA medical center again so I am going to get some rest. Hugs, Don't worry, . You caught it early. It sounds like you're in the care of some smart doctors. It's very normal for your symptoms to get worse for a while after you start taking the meds -- the bugs dying off in your body cause a bit of a toxic reaction, creating the headaches and muscle twitches and whole lot of other stuff. It's a good sign: it means the drugs are doing their job. You may want to ask your orthopedist if s/he still wants to go ahead with the knee replacement, or consider putting it off for a few months. Lyme often attacks the knees first, and there may be complications. Or not. I'm not an orthopedist, so I don't know, but it seems like the kind of question you might bring to a doctor's attention. Also: Three weeks of antibiotics usually do the trick when you catch it as early as you did. BUT -- if you come up with a recurrence of symptoms (or the eruption of other Lyme symptoms) over the next 2-3 months, please hurry yourself right straight back to the doctor and insist on a second, four-week course of antibiotics. (Most docs will be open to doing this -- if yours isn't, find one who is.) Once you've had it for more than three or four months, that's when the long-term stuff a lot of us are dealing with begins to set in. If this first round doesn't get it all, you don't want to wait around for that. Best, Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2009 Report Share Posted June 7, 2009 Welcome , Just a little welcome, look forward to getting to know you. I'm sure someone can answer your question. I don't really have problems with my lymph nodes. Have a great day! Tawny > > Hi there. My name is and I am a new group member. I have a question for all of you.... Does anyone else out there get painful lymph nodes from time to time? This happens to me, and when I go to the doctors, they can't find anything wrong with me so they think that i am just crazy.. I'm thinking that maybe they get inflamed just like my joints??? Any imput would be appreciated! Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2009 Report Share Posted June 7, 2009 Lymphitis is swelling of the lymph gland. Most commonly, it is thought of as something that comes with the mumps, but you can get swelling in any part of the body. It's different from lympnodema, which is when the lymph tissue is overwhelmed with fluids. You aren't crazy. It is painful. I have many fibro clients who also seem to get lymphitis when they are fighting a cold or something. It wouldn't surprise me to learn that it is another autoimmune disease of the tissue layer. Heat (like standing in a shower for a few minutes-NOT A HEAT PAD) and self lyphatic drainage techniques seem to help them. Find yourself a massage therapist who can teach self techniques to use at home or search through lymphatic drainage massage videos on youtube. Be well, [ ] hi Hi there. My name is and I am a new group member. I have a question for all of you.... Does anyone else out there get painful lymph nodes from time to time? This happens to me, and when I go to the doctors, they can't find anything wrong with me so they think that i am just crazy.. I'm thinking that maybe they get inflamed just like my joints??? Any imput would be appreciated! Thanks ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.339 / Virus Database: 270.12.55/2160 - Release Date: 06/07/09 05:53:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 Hi ! Welcome to the group! I get swollen and painful lymph glands when I am having a flare. My Rheumys have always said it can come along with the inflammation. So no your not crazy, lol. April Snow > [ ] hi >> Hi there. My name is and I am a new group member. I have a question for all of you.... Does anyone else out there get painful lymph nodes from time to time? This happens to me, and when I go to the doctors, they can't find anything wrong with me so they think that i am just crazy.. I'm thinking that maybe they get inflamed just like my joints??? Any imput would be appreciated! Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2009 Report Share Posted June 8, 2009 I've learned to use it has a forecast, when my throat starts to swell I know I am in for a bad flare within the next eight to sixteen hours. Stan Sent: Monday, June 8, 2009 2:12:55 PM GMT -08:00 US/Canada Pacific Subject: [ ] Re: hi Hi ! Welcome to the group! I get swollen and painful lymph glands when I am having a flare. My Rheumys have always said it can come along with the inflammation. So no your not crazy, lol. April Snow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2009 Report Share Posted July 4, 2009 So many questions and I am finding out that I have to make it simpler for those that are interested.I just uploaded a new support group about the fasting and cleansing protocols downloaded 17 files for the ones that are interested in joining and even if you would like to just lurk so you can learn at your own convenience, look forward to you joining at HerbalisticDetox/P.S: Day-to-Day PowerHouse Fast starts tomorrow! Have a Happy and Healthy Day, Kopera M.H.© Copyright 2007 www.sCorner.com . All rights reserved | Privacy Policy WARNING: None of the above statements have been evaluated or approved by the Food and Drug Administration or the American Medical Association. The information provided on this site is intended for your general knowledge only and is not a substitute for professional medical advice or treatment for specific medical conditions. Always seek the advice of your physician or other qualified health care provider before using any herbal products. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 Hi Dan: Nice to meet you. Sorry you have RA.......me too. Glad you found this wonderful group of caring people. Talk to you soon. Wishing you pain free days ahead. Hugs, Barbara > > Just wanted to say " hi " ...39 years old, male, Arizona...RA since July '08...Dan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 Hi...Great, living in Arizona, do you think that has some benefits to to your condition. I've seriously considered moving back there since I live in Tucson for two years? Stan Sent: Tuesday, July 21, 2009 9:36:55 PM GMT -08:00 US/Canada Pacific Subject: [ ] Hi Just wanted to say " hi " ...39 years old, male, Arizona...RA since July '08...Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2009 Report Share Posted July 22, 2009 Welcome Dan, Glad your here with us, hope you enjoy this group. Its amazing, so just give it a chance. I look forwarding to knowing more about you. I am 46, diagnosed with RA in 01. I also have fibro, sjogren's, and many other health problems. I live in OK,................. Take care, Tawny > > Just wanted to say " hi " ...39 years old, male, Arizona...RA since July '08...Dan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2009 Report Share Posted July 23, 2009 Hi Dan - welcome to the group. Sorry that RA has brought us all together, but here we are. I would love to hear more about you. Is your RA under control? What meds are you taking? Hope to hear more from you. This is a terrific group of people and we're always happy to share with each other.....Doreen Just wanted to say " hi " ...39 years old, male, Arizona...RA since July '08...Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 We have had tremendous luck with Rescue Remedy for kids. My daughter has PANDAS and it really helps her anxiety quickly. We tried it once on my son, and he calmed down a little, so I'll call it success! Susi > > Has anyone ever used ADDED ATTENTION by Buried Treasure or RESCUE REMEDY by Bach? If so any luck? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2009 Report Share Posted July 27, 2009 Hi Susi, Thanks for the info. It is so hard to know what to try. Really appreciate it. Kim Re: hi We have had tremendous luck with Rescue Remedy for kids. My daughter has PANDAS and it really helps her anxiety quickly. We tried it once on my son, and he calmed down a little, so I'll call it success! Susi > > Has anyone ever used ADDED ATTENTION by Buried Treasure or RESCUE REMEDY by Bach? If so any luck? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2009 Report Share Posted August 5, 2009 part of the answer is to take out your diet the food that causes allergy.it is best to begin with no gluten no milk and no soy.for the rest there are tests or you keep a diary and see which food causes the allergies. > > Dear group members . I am bothering you with a new problem i developed recently . I have developed tingling numbness at right peri orbital region since around a month . My neuro had given me tab methycobal and cap vit E which i stopped last month . I was also taking beclate inhaler for allergic rhinitis . I stopped these medicines 15 days back but the problem is persisting . Any suggestions please ? Regards Amit > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2009 Report Share Posted August 6, 2009 Just a suggestion--I wonder if you're getting withdrawal symptoms from the meds you stopped? I'm not familiar with them, but perhaps this is a possibility? Annette > > Dear group members . I am bothering you with a new problem i developed recently . I have developed tingling numbness at right peri orbital region since around a month . My neuro had given me tab methycobal and cap vit E which i stopped last month . I was also taking beclate inhaler for allergic rhinitis . I stopped these medicines 15 days back but the problem is persisting . Any suggestions please ? Regards Amit > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 Hi Daddies, good to hear from you and glad you are getting good results. I too deal with some FM and OA and that's why I'm on LDN, very low right now, .75mg. I've had some results too in the short time I'm on it, less than a month. Do you mind sharing some of your successes as I have a lot of people I know who have FM and I'd like to let them hear some more even thou I'm sharing my success with them. thanks very much. joyce [low dose naltrexone] HI I HAVE TO SAY THAT I REALLY ENJOY THE POST AND THE INFORMATION I RECIEVE READING HERE.EACH TIME, I LEARN MORE ABOUT LDN . I READ AND DO SO MUCH OF RESEARCHING OF LDN , I DIDN'T THINK THAT I MISSED ANYTHING BUT THIS GROUP HAS ALLOWED ME TO LEARN SO MUCH.I REALLY HOPE YOU DON'T MINE ME HELPING OTHERS , I WILL NEVER POST ANYTHING PERSONAL BUT LDN NEEDS TO BE SHARED IN ORDER FOR US TO HELP OURSELVES AND OTHERS.AS FOR MYSELF, I AM TAKING IT FOR NEUROLOGICAL PROBLEMS AND FMS. I HAVE FOUND WHILE ON IT , IT HAS DONE SO MUCH FOR ME AND I ADVICE ALL TO GO ON IT. I TRULY BELIEVE IT BUT I NEVER HAD THE INFORMATION THAT THEY ASK THAT IS INCLUSIVE. SO IT LIMITS ME. SAYING THAT A PERSON HAS HAD SOME INFORMATION PERTAINING TO IT , HELPS DEEPLY.THANK YOU AND MAY YOU CONTINUE TO FIND HEALTH .DADDIES No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.707 / Virus Database: 270.14.62/2499 - Release Date: 11/12/09 06:33:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2010 Report Share Posted March 29, 2010 Hi Amy, I'm kinda new too. But I can completely understand where you are. My son is 10. He was diagnosed Autistic, ADHD, OCD, Developmentaly Delayed. I also felt completely stunned, confused, lost ect. But that was 4 yrs ago. Today I do still feel confused when it comes to the diagnoses and how smart he is. He talks, reads, draws, and can get so inthrolled in a subject that he could teach a class! And yet the same as you, he does not have any social skills, or have a best friend, play video games, or understand daily skills ect. So I started researching, reading, counseling with others, anything about these subjects. Nobody in my family would believe or yet alone accept the diagnoses. It took doctors, teachers, counselors, and prayers for them all to be on the same page. He is on meds, not by choice, but he had several really bad episodes, and meltdowns at school and in public. Today he can function normally in our family and home, participate in all activities that work for him, do chores, take care of his needs but with constant supervision. But what I can tell you is don't give up, there is hope, research, get other support, and this group is very helpful. Sorry for talking so much. I am just happy to help. From: Amy <amym321@...> Sent: Mon, March 29, 2010 10:32:56 PMSubject: ( ) hi Hi there! I have been reading these posts for some time now, but never replied. Today we received the report from the neuropsychologist in regards to our son's Cognitive issues. He is 5 and also has CSWS, ADHD, OCD and then they are on the fence whether or not he is PDD-NOS or Aspergers. It was really difficult today to hear that he is so bright, but his ADHD gets in the way that he can't grasp any from of complexity. It is really strange how he can play the Nintendo DS so well, but not grasp some very common things. Does this sound familiar to anyone else? Thanks for any help you can provide... Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2010 Report Share Posted March 30, 2010 Exactly! did the exact thing. He could not tie his shoes till he was 9, but struggles, so we buy him shoes with velcro. only black! and two pairs, one to play and one to wear out nice. his choice. He is so much a bird expert and can draw like an architect, but does not understand stuff his age! go figure. From: Amber <evans.amber77@...> Sent: Tue, March 30, 2010 12:10:49 AMSubject: ( ) hi Thats was pretty much zach at that age. Video games that adults cannot figure out he finished in an hour! Now when it came to doing things that a simple for other kids, he had no clue. he could not tie his shoes untill he was 9 and even now at 10 we just buy slip ons for him, he stresses out about the laces coming undone. good luck! Quote Link to comment Share on other sites More sharing options...
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