Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 Deanna, When I finally found a LLMD who understood how long term infection affects the whole body and he tested my adrenals I had almost lost function of the adrenal gland it was so low. He put me on a tiny dose of cortef (5 mg) and I immediately noticed a difference - not much but a difference. I take one mid-morning and one mid-afternoon. He later bumped it up to 10 mg. He won't go higher for some reason (I can't remember why - I think so that my body won't depend on it) and I hope to not need it later. Even with that I have extreme fatigue. I also take a perscription vitamin B complex (Folgard) because of some blood disorder, sublingual B complete, and mineral chi tonic. If I miss I'm on the floor and even with everything I barely keep going. I'm with you on the caffeine addiction! I had to lower it because of heart palpitations and drink it really weak all day long. The palpitations are mostly gone since lyme treatment though. Ironically, the caffeine doesn't give me energy, but I feel so rotten I think it will and keep on drinking! I queried the group about foods for adrenal support but didn't get any feedback. Maybe it's not related? Please pass on any adrenal info you get - I'd appreciate any info. Beth [ ] adrenals Has anyone here with Lyme also suffered from adrenal fatigue? I am in the pits with it. My stress has been over the top for a couple of months. Now when something needs a fast reaction, my brain and body can barely respond, let alone do anything about it. I called and got an adrenal test kit from my doctor. Hope to use it sunday, when I think I can tolerate going a full day without coffee. Yeah, yeah. Steady dependence on caffeine can be a clear sign of adrenal washout. And now I find that my sweats are coming shortly after having coffee. Why don't I just stop? I feel addicted to it. Will start cutting down. ***In the meantime, does anyone know of, or have you experienced taking herbs for the adrenals? Not ginseng and that sort of (for me) too stimulating sort of thing. But alfalfa, and the like. I've actually been craving alfalfa tea for a while. It helps me feel grounded. Any info would be greatly appreciated. Best, Deanna Questions and/or comments can be directed to the list owner at -Owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 have you seen an endocrinologist. they would be the best to test for adrenal, cortisol, dhea levels, testerone, etc. worth looking into! > Has anyone here with Lyme also suffered from adrenal fatigue? > > I am in the pits with it. My stress has been over the top for a couple of > months. Now when something needs a fast reaction, my brain and body can > barely respond, let alone do anything about it. > > I called and got an adrenal test kit from my doctor. Hope to use it sunday, > when I think I can tolerate going a full day without coffee. > > Yeah, yeah. Steady dependence on caffeine can be a clear sign of adrenal > washout. And now I find that my sweats are coming shortly after having > coffee. Why don't I just stop? I feel addicted to it. Will start cutting > down. > > ***In the meantime, does anyone know of, or have you experienced taking > herbs for the adrenals? Not ginseng and that sort of (for me) too > stimulating sort of thing. But alfalfa, and the like. I've actually been > craving alfalfa tea for a while. It helps me feel grounded. > > Any info would be greatly appreciated. > > Best, > Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 > From: " mcpucho " > > have you seen an endocrinologist. they would be the best to test for adrenal, > cortisol, > dhea levels, testerone, etc. Thanks. Knowing this had to be an adrenal thing, I called my doctor and requested a test kit. They sent it....it's the 4x a day spit-test. Planning to do it on Sunday .... if I can deal with the no-caffeine part of it. Best, Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 , Your message was sent in 1970. Perhaps you're computer clock needs be reset. Perhaps you've acquired a virus that reset your computer's clock. Also, one sampling of cortisol can be misleading. When many children or adults are sampled thru the day, the resulting curves are somewhat like a sine curve, with a higher late morning peak followed by a decline into the afternoon and a nadir in the evening and nighttime. When many individuals are sampled repeatedly in the same day (eg, 10 samples in the morning, 10 in the afternoon), the overall curve remains the same, but what becomes apparent is that each individual's personal curve " oscillates " thru the morning and afternoon, from high points to low points within each hour. An overall personal average and a glimpse of the " average " cortical variation can be determined if enuff samples are obtained in the same day from one individual. A ramification with a one-sample approach is that you don't know if the sample was taken at a low-point or at a high-point in the individual's oscillating cortisol intra-hour cycle, regardless of time of day. Binstock Researcher in Developmental & Behavioral Neuroanatomy sole author of an approved IRB for cortisol patterns in fragile X children then at TCH in Denver, 1997 --- [ ] adrenals Date: Sun, 4 Jan 1970 20:19:18 -0500 From: <shannonj@...> Reply- autism-Mercury Hi- I just had my son's adrenals tested (he has had several years of uncontrollable tantrums/anxiety and aggressions) and I just picked a copy of the results up from the lab. I haven't heard from the doctor yet and probably won't until sometime after the holidays so I am throwing this info out there to see what the general opinion is of those who may have some experience in this area. The test to check for adrenal function was a 24 hour urine free cortisol. The cortisol result was 5.7 with and adult range listed as 4.0 to 50.0. The Creatinine was 0.37 with a range of 0.17 to 1.41. I am guessing that the cortisol level is low but my son is only 9 years old and so I don't know how that compares on the adult range. Can anyone help me understand these results. I'm not wanting my son to have adrenal problems but it would be nice to have some explanation for his almost psychotic behaviors and some hope for improvement... Thanks- SJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2004 Report Share Posted December 22, 2004 Hi , I think you can look at the hair test. If magnesium is high, adrenal problems are likely. Probably someone more knowlegeable (may be Andy) can tell you more. Margaret > Hi- > > I just had my son's adrenals tested (he has had several years of > uncontrollable tantrums/anxiety and aggressions) > and I just picked a copy of the results up from the lab. I haven't > heard from the doctor yet and probably won't until sometime > after the holidays so I am throwing this info out there to see what the > general opinion is of those who may have > some experience in this area. > > The test to check for adrenal function was a 24 hour urine free > cortisol. The cortisol result was 5.7 with and adult range listed as > 4.0 to 50.0. > The Creatinine was 0.37 with a range of 0.17 to 1.41. > > I am guessing that the cortisol level is low but my son is only 9 years > old and so I don't know how that compares on the adult range. > > Can anyone help me understand these results. I'm not wanting my son to > have adrenal problems but it would be nice to have some explanation for > his almost psychotic behaviors and some hope for improvement... > > Thanks- > SJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2005 Report Share Posted January 25, 2005 > Hi- > > I just had my son's adrenals tested (he has had several years of > uncontrollable tantrums/anxiety and aggressions) > and I just picked a copy of the results up from the lab. I haven't > heard from the doctor yet and probably won't until sometime > after the holidays so I am throwing this info out there to see what the > general opinion is of those who may have > some experience in this area. > > The test to check for adrenal function was a 24 hour urine free > cortisol. The cortisol result was 5.7 with and adult range listed as > 4.0 to 50.0. Healthy values start at 10 or 15. > The Creatinine was 0.37 with a range of 0.17 to 1.41. That's because he is a kid. > I am guessing that the cortisol level is low but my son is only 9 years > old and so I don't know how that compares on the adult range. > > Can anyone help me understand these results. I'm not wanting my son to > have adrenal problems but it would be nice to have some explanation for > his almost psychotic behaviors and some hope for improvement... Well, the testing isn't that informative (no matter how it comes out), but a trial of adrenal cortex extract of licorice might be. > Thanks- > SJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2007 Report Share Posted May 26, 2007 Hello: I read your post and I have a question... " what is stiming? Concerning the Adrenals; The Adrenals use Vitamin C on a constant basis; so perhaps increase fruits or add a Vit.C tablet or powder. I would also recommend Epsom Salts Foot Soaks ot hot compresses. EPSOM'S SALTS ARE A NATURAL FORM OF MAGNESIUM; an essential mineral. Method: Take a foot-tub; fill with hot water; add Epsom's Salts; mix. Instruct the child to put feet in tub for 10-15 minutes OR Take a clean hand towel;soak in Epsom's Salts and water; apply anywhere; the Magnesium in the Epsom's Salts absorbed transdermally. THIS IS WHY I HIGHLY RECOMMEND VITAMIN AND MINERAL transdermal cremes. > > Can Adrenals cause increased stimming? We have had so much stress this > year, it seems like one thing has happened after another. Anyway my > son's stimming has increased this year. I wondered with all the stress > if it has made his adrenals worse and caused increase in stimming. > Although he has been improving stimming has gotten worse. > > Thanks for all your help. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 PH ~ How funny, we are on the same page today ! How are you feeling ? ? ? Loveya ~ DedeGet trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Hi Dede! So funny we were on the same page. I swear I spend so much time reading these articles and thinking " I need to do this and that to get better " but don't always follow through. It's so overwhelming! I am doing slightly better since doing this new FCT therapy though. I no longer have high cadmium and lead after only 5 days of homeopathy!!! I pray for the same with the aluminum and mercury. I start another cycle tomorrow to get rid of that and this time it targets the brain which I can't wait because I am so darn tired of neurotoxins!! How are you? I haven't been keeping up with the forum and how you and your dad are doing. I'm praying for you both and wishing all good things for you. Love, PH -- In , DGRAHAMA@... wrote: > > PH ~ > How funny, we are on the same page today ! > How are you feeling ? ? ? > Loveya ~ Dede > > > > **************Get trade secrets for amazing burgers. Watch " Cooking with > Tyler Florence " on AOL Food. > (http://food.aol.com/tyler-florence?video=4 & ? NCID=aolfod00030000000002) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Hi PH, Long time, no hear! I want to hear more about this homeopathy that you are doing! Patty > > > > PH ~ > > How funny, we are on the same page today ! > > How are you feeling ? ? ? > > Loveya ~ Dede > > > > > > > > **************Get trade secrets for amazing burgers. Watch " Cooking > with > > Tyler Florence " on AOL Food. > > (http://food.aol.com/tyler-florence?video=4 & ? > NCID=aolfod00030000000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2008 Report Share Posted May 27, 2008 Hi Dede, Wow, it sounds like you've got a lot of medical tests going on right now. How did the endoscopy go? I had the gluten biopsy as well. Mine came back negative yet my gluten sensitivity blood test came back positive so who knows! I'm sorry you're feeling so punky and are dealing w/ all this uncertainty and just plain crap. Just keep your amazing positive attitude up and you will get through. There are still ways you can detox that aren't as hard on the body (although I'm proabably preaching to the choir as you seem to have researched everything!). Do you still do oil pulling? You recommended it long ago and I tried it, loved it but then stopped after a month...why I don't know. I need to get back into it because it's so easy and it doesn't knock you flat on your feet like other detoxes. I've been talking w/ this one woman who swears that Red Clover tea helped cleanse her blood. She recovered from full-blown MS (wheelchair bound, neurotoxins, the works) through diet and 2 cups of tea in the morning and 2 more in the evening. I wonder if that would be gentle enough for you without affecting blood sugar. Also, what about skin brushing? I bought a long-handled brush from the health food store and use it before bathing. It's supposed to be great for the lymph system and releasing toxins yet I think it'd be gentle enough for you. Very glad your dad is doing better and more independent now. He sounds like a figher, just like his daughter! Sending prayers your way for wellness and good results on all your tests. Love, PH > > Hello PH ~ > I read about this new FTC therapy you are doing > and it sounds really interesting. I hope it continues to > give you improvement. Sounds like so far, so good ! ! > Dad is doing pretty good. He moved back home yesterday. > His tumors are at bay right now, and his blood looks pretty > good. They are gonna let him go 3 months now before > checking him again, then do a scan and blood, and if all is > still ok, then wait 6 months then check him again. > My life has been crazy. I am hanging in, but dont feel too > well. Actually pretty punky most the time. I am going through > alot of testing and all to find out about these lung nodules, and > the malignant looking area in my upper stomach by the esophagus, > they call it the GE junction area, and patiently waiting on the > ultrasound results on my breasts, which I know there is a problem, > she showed me some areas of concern, so, we will see. > I see the gastro man in the morning and will be scheduling an endoscope > and biopsy or what ever they need to do when they get in there with the > little camera. I am a bit nervous about it all, but there is always the chance > they are wrong about it all.......I am going to ask him to test me for gluten > allergy just for shinzNgrinz. I know i can do it with elimination diet, but > life > is a bit difficult for me right now in many ways. I am very limited at the > moment. I already eat pretty good, lots of raw veges, salads, kefir, lots of > purified water, no sugars, rare on the junk food, and so, we will see. > I cant do coffee enema's cuz of my heart and the caffeine and all. I was > told to not do much right now. As far as fasting or juicing, I have to be > careful, my last NON fasting blood sugar was only 62, and just a year ago, it was > alittle high at 160 fasting ! so, who knows whats up. I think the doc is > gonna do some labs on me too. We will see, meanwhile I am gonna read up on the > juicing and diabetes. Diabetes runs in both sides of my family, and I was > told I had it, but thru diet and taking chromium, it balanced out for a long > time, it has just recently started acting up again. Right now, this body is > rebelling, so I am hoping to learn something from these tests, so I can > decide what my plan of action is gonna be. Meanwhile, I will keep eating well, > and praying alot......and resting when I can. I only got about 10 hours of > sleep for the whole week last week. Not good ! ! > I am sleepy right now, so I am gonna lay down, good night and sweet dreams ! > God Bless you all ! Love Dede > > > > **************Get trade secrets for amazing burgers. Watch " Cooking with > Tyler Florence " on AOL Food. > (http://food.aol.com/tyler-florence?video=4 & ? NCID=aolfod00030000000002) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 i wrote dr james wilson who wrote adrenal fatigue and he said that ldn can affect cortisol levels in anyone so that they should be closely monitored. monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 can u guys explain to me what LDN might do to the adrenals and i believe i have adrenal exhaustion and want to try LDN dor ms syptoms can u explain how LDN affects adrenals and cortisol levels thanks**************It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv00050000000047) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 moninque well that could possibly explain whats goingon with me. I am very up and down, I mean thats nothing new but at times better energy but then others just drained in a new way, adrenals could fit the bill. I am to have a physical in a week, do you know what test is best to check the cortisol from a regular mainstream doc? I had my adrenals checked 2 years ago with alternative doc and the genova diagnostics and neuroscience tests. guess could do it again. I hate to give up on LDN cus of the adrenal thing, did dr wilson way what to do to be able to stay on ldn but take prevent adrenal problems?? > > i wrote dr james wilson who wrote adrenal fatigue and he said that ldn > can affect cortisol levels in anyone so that they should be closely > monitored. > > monique > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 When you say LDN can affect the adrenals can you tell me in which way?? As in help them or exhaust them?? I am Hypothyroid, have a pituitary tumor, have had adrenal problems which I thought I had got healed and were working well, but have blamed my current adrenal problems on a bad fall which has resulted in surgery and so far continued pain. I also blamed irritability and increased impatience on the Endo doubling estrogen, but not progesterone – so, unfortunately the same week I had surgery the GYN doubled the progesterone to match what he did with the estrogen. I had blood work last week and see the new Endro on the 10th – since my TSH test comes back with a false value due to the tumor – I am wondering what else it can affect lab wise. As in should he be dosing my hormones via blood tests if this tumor has the ability to alter one test can it alter others. My THS is totally suppressed which would indicate a hyper person – but I am not. I am not coping with stress well, find any situation where I am put under pressure is not being handled the way I normally would, it is causing me problems on the home front as well. Also since I am changing endro’s, the old one wrote my LDN script and I am not at all sure the new one will – she took my armour away and stuck me back on sythroid………which I will go along with for now to show her I am more than willing to work with her, so hopefully she will be willing to work with me and what works with me. Otherwise I need to find another way to get the LDN which has helped me tremendously. SeaLady ____________________________________________________________ Click here to save cash and find low rates on auto loans. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2008 Report Share Posted September 2, 2008 hi kim maybe the 24h urine cortisol test seeing as it's reflective of a hole 24h period instead of just the time you get the blood test. not sure though. i've heard the saliva adrenal tests are more accurate. take a look at wilson's adrenal fatigue book. this is what i got from wilson: Hello , I am sorry but Dr. was unable to give me much information on Naltrexone and its relation to adrenal fatigue. He did say that the adrenal hormones should be closely monitored when taking it and that it may temporarily increase cortisol levels. Best Wishes, Kaskey Director of Customer Relations Future Formulations, LLC Immunogenics Co. of America, LLC Phone: (800)357-5027 ext 101 Fax: (520)514-1917 Email: jessica@... not a whole lot unfortunately. monique moninque well that could possibly explain whats goingon with me. I am very up and down, I mean thats nothing new but at times better energy but then others just drained in a new way, adrenals could fit the bill. I am to have a physical in a week, do you know what test is best to check the cortisol from a regular mainstream doc? I had my adrenals checked 2 years ago with alternative doc and the genova diagnostics and neuroscience tests. guess could do it again. I hate to give up on LDN cus of the adrenal thing, did dr wilson way what to do to be able to stay on ldn but take prevent adrenal problems?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2011 Report Share Posted February 27, 2011 Since we cant take steroids and therfore ace and hc are out there must be something can be done for adrenals. Just wonderin what others are doing? Mine first recovered a lot of function even living in a moldy house by diet change before i got tipped over the edge. ----- Sent from mBox Mail on my iPad http://www.fluentfactory.com/mboxmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2011 Report Share Posted February 27, 2011 I found this : I have not used any or done any research on this yet. Sorry, but maybe others have. * Vitamin C 2,000-4,000 mg/day Sustained Release * Vitamin E w/mixed tocopherols 800 IU/day * Vitamin B complex * Niacin (125-150 mg/day) – as inositol hexaniacinate * B-6 (150 mg/day) * Pantothenic acid (1200-1500 mg/day) * Magnesium citrate (400-1200 mg) * Liquid trace minerals (zinc, manganese, selenium, chromium, molybdenum, copper, iodine)– calming effect * If depression is present – Add SAM.e 200 mg bid; DL-Phenylalanine (DLPA) 500 mg bid * http://www.project-aware.org/Resource/articlearchives/adrenalfatigue.shtml God Bless !! dragonflymcs Mayleen ________________________________ From: Dana S <candalah@...> Sent: Sun, February 27, 2011 3:02:46 PM Subject: [] Adrenals Since we cant take steroids and therfore ace and hc are out there must be something can be done for adrenals. Just wonderin what others are doing? Mine first recovered a lot of function even living in a moldy house by diet change before i got tipped over the edge. ----- Sent from mBox Mail on my iPad http://www.fluentfactory.com/mboxmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2011 Report Share Posted February 27, 2011 What were your symptoms when you had no cortisol? Did you sleep alot? > > You'll take steroids when prescribed when it's a matter of life or > death. I just had a very large pituitary tumor (present for more than > 10 years) removed. Prior to the steroids, I had NO cortisol in my body > and almost lost my life because they didn't know why. In 2005 I had > another tumor and part of my colon removed. I just now read the > pathology report: no other pathogens, but CLADOSPORIUM! I hope this is > the end of it. > > Barth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2011 Report Share Posted February 27, 2011 Yes, I slept all the time and had excruciating pain at the end that sent me to the ER. Barth www.presenting.net/sbs/sbs.html SUBMIT YOUR DOCTOR: www.presenting.net/sbs/molddoctors.html --- Copyright 2011. The content of this post is considered the property of the author and shall not be reproduced, copied, or shared with another e-mail list, public forum, or individual without the written permission of the author. All rights reserved. bbw> What were your symptoms when you had no cortisol? Did you sleep alot? bbw> >> >> You'll take steroids when prescribed when it's a matter of life or >> death. I just had a very large pituitary tumor (present for more than >> 10 years) removed. Prior to the steroids, I had NO cortisol in my body >> and almost lost my life because they didn't know why. In 2005 I had >> another tumor and part of my colon removed. I just now read the >> pathology report: no other pathogens, but CLADOSPORIUM! I hope this is >> the end of it. >> >> Barth >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.