OT: Proteins on the Brain- Spinal Tapping for ME/CFS

[Guest guest]

interesting!!

Forwarded:

Cc:

Subject: Phoenix Rising: Proteins on the Brain- Spinal Tapping for ME/CFS

We've  understandably gotten wrapped up in XMRV over the past for five months

but there is other exciting, potentially game breaking research going on. Dr.

Baraniuk's first brain proteome paper in 2006 suggested he may have found a core

element in the problems facing ME/CFS, FM and GWS patients. His first study

uncovered a suite of unusual spinal fluid proteins which suggested that blood

vessels in CFS patient's brains might be 'under attack' from unusual

conglomerations of proteins called amyloid proteins. These proteins,

interestingly enough, are implicated in a series of central nervous system

diseases. The blood vessel connection, was intriguing given other studies

suggesting CFS patients may have problems there as well. There was also

indication of increased oxidative stress. All in all his paper seemed to tie

together quite a few strands in this disorder.

Dr. Baraniuk began a new larger study aimed at validating this last study

results. I was able to participate in that study and Dr. Baraniuk was quite

willing to sit down and talk at length about his work and his conception of

ME/CFS. 

Check out Proteins on the Brain.  and its companion piece containing my Spinal

Tap storySpinal Tapping for ME/CFS

Since the last newsletter we've had quite a bit of XMRV and other news. 

First we were up: XMRV and CFS: Check, Check, Check? Then we were a bit down:

XMRV and ME/CFS: Muddy Waters Then we went up again quite a bit : Light in the

Darkness: Good News for XMRV? We had some exciting news about efforts to build

a WPI-like Institute in New Jersey: WPI in New Jersey: Support the NEID

Center If you missed the ending of Corrine's Visit to Dr. (because of

my bad link) check it out here. We created a ME/CFS Action Mailing List to

support advocacy efforts - please join! 

--

Cort

Phoenix Rising  - An ME/CFS Website at

http://aboutmecfs.org.

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