Guest guest Posted February 2, 2007 Report Share Posted February 2, 2007 I saw this on discovery health a few weeks ago, about the mystery diseases. I thought I saw myself on TV, besides the fact that I am older then this girl. I wish they would air that on prime time TV to in form the rest of the world. I guess she is on long term antibiotics now. Dagmar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 I just watched it last night (thanks to T-vo) and felt the same way. She only did 1-1/2 years on ABX though, and says she feels wonderful now. My husband turned to me and said, " Then why did they only give you 33 days? " I wish I could get him to go to my Dr. appts. with me so he could see for himself what it's like. And the part about her testing positive at first got to him: he tested negative, but has been sick and in pain nearly as long as I have. I agree: they should show this prime time! > I thought I saw myself on TV, besides the fact that I am older then this > girl. I wish they would air that on prime time TV to in form the rest of the > world. I guess she is on long term antibiotics now. > Dagmar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 , I sent them an email,giving them a brief description of Still's.They had featured several autoimmune diseases in prior shows.They emailed me back asking for a timeline of events.I was happy how it turned out. Nissa, Seattle,Wa To: Stillsdisease From: a_cone@... Date: Thu, 30 Aug 2007 12:56:35 +0000 Subject: Re: Mystery Diagnosis Nissa, How did they contact you to be on the show? I'm so happy that someone was able to get the word out about Stills. Houston, Texas _________________________________________________________________ Connect to the next generation of MSN Messenger http://imagine-msn.com/messenger/launch80/default.aspx?locale=en-us & source=wlmai\ ltagline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 , I sent them an email,giving them a brief description of Still's.They had featured several autoimmune diseases in prior shows.They emailed me back asking for a timeline of events.I was happy how it turned out. Nissa, Seattle,Wa To: Stillsdisease From: a_cone@... Date: Thu, 30 Aug 2007 12:56:35 +0000 Subject: Re: Mystery Diagnosis Nissa, How did they contact you to be on the show? I'm so happy that someone was able to get the word out about Stills. Houston, Texas _________________________________________________________________ Connect to the next generation of MSN Messenger http://imagine-msn.com/messenger/launch80/default.aspx?locale=en-us & source=wlmai\ ltagline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 , I sent them an email,giving them a brief description of Still's.They had featured several autoimmune diseases in prior shows.They emailed me back asking for a timeline of events.I was happy how it turned out. Nissa, Seattle,Wa To: Stillsdisease From: a_cone@... Date: Thu, 30 Aug 2007 12:56:35 +0000 Subject: Re: Mystery Diagnosis Nissa, How did they contact you to be on the show? I'm so happy that someone was able to get the word out about Stills. Houston, Texas _________________________________________________________________ Connect to the next generation of MSN Messenger http://imagine-msn.com/messenger/launch80/default.aspx?locale=en-us & source=wlmai\ ltagline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 Nissa, Saw the show this evening. Very well done. After it was finished, the first thing my wife said was, " I guess we should feel lucky that it only took 2 years for our diagnosis " . Really strange how the dragon presents itself in such strange ways. My spleen got enlarged after the diagnosis. Also the fevers did not present in my case until after the arthritis symptoms and after a bout of double vision caused by inflammation of one of the nerves controlling the muscles of my eyeball. I feel lucky that my bone marrow was not anywhere as painful as your. Tom > > , > > I sent them an email,giving them a brief description of Still's.They had featured several autoimmune diseases in prior shows.They emailed me back asking for a timeline of events.I was happy how it turned out. > > Nissa, > Seattle,Wa > > > > To: Stillsdisease > From: a_cone@... > Date: Thu, 30 Aug 2007 12:56:35 +0000 > Subject: Re: Mystery Diagnosis > > > > > > > > > > > > > > > > > > > > > Nissa, > > > > How did they contact you to be on the show? I'm so happy that someone > > was able to get the word out about Stills. > > > > > > Houston, Texas > > > > > > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Connect to the next generation of MSN Messenger > http://imagine-msn.com/messenger/launch80/default.aspx?locale=en- us & source=wlmailtagline > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 Nissa, Saw the show this evening. Very well done. After it was finished, the first thing my wife said was, " I guess we should feel lucky that it only took 2 years for our diagnosis " . Really strange how the dragon presents itself in such strange ways. My spleen got enlarged after the diagnosis. Also the fevers did not present in my case until after the arthritis symptoms and after a bout of double vision caused by inflammation of one of the nerves controlling the muscles of my eyeball. I feel lucky that my bone marrow was not anywhere as painful as your. Tom > > , > > I sent them an email,giving them a brief description of Still's.They had featured several autoimmune diseases in prior shows.They emailed me back asking for a timeline of events.I was happy how it turned out. > > Nissa, > Seattle,Wa > > > > To: Stillsdisease > From: a_cone@... > Date: Thu, 30 Aug 2007 12:56:35 +0000 > Subject: Re: Mystery Diagnosis > > > > > > > > > > > > > > > > > > > > > Nissa, > > > > How did they contact you to be on the show? I'm so happy that someone > > was able to get the word out about Stills. > > > > > > Houston, Texas > > > > > > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Connect to the next generation of MSN Messenger > http://imagine-msn.com/messenger/launch80/default.aspx?locale=en- us & source=wlmailtagline > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2007 Report Share Posted September 2, 2007 Nissa, Saw the show this evening. Very well done. After it was finished, the first thing my wife said was, " I guess we should feel lucky that it only took 2 years for our diagnosis " . Really strange how the dragon presents itself in such strange ways. My spleen got enlarged after the diagnosis. Also the fevers did not present in my case until after the arthritis symptoms and after a bout of double vision caused by inflammation of one of the nerves controlling the muscles of my eyeball. I feel lucky that my bone marrow was not anywhere as painful as your. Tom > > , > > I sent them an email,giving them a brief description of Still's.They had featured several autoimmune diseases in prior shows.They emailed me back asking for a timeline of events.I was happy how it turned out. > > Nissa, > Seattle,Wa > > > > To: Stillsdisease > From: a_cone@... > Date: Thu, 30 Aug 2007 12:56:35 +0000 > Subject: Re: Mystery Diagnosis > > > > > > > > > > > > > > > > > > > > > Nissa, > > > > How did they contact you to be on the show? I'm so happy that someone > > was able to get the word out about Stills. > > > > > > Houston, Texas > > > > > > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Connect to the next generation of MSN Messenger > http://imagine-msn.com/messenger/launch80/default.aspx?locale=en- us & source=wlmailtagline > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2011 Report Share Posted January 26, 2011 This was posted on Mystery Diagnosis : Is this a correct statement or simply his opinion ?? The clinical hypothesis for the etiology of Liana's mycosis is currently unpublished but well understood by the medical mycologist from N.J. As a medical researcher Dr J Dumanov and medical mycologist associates of the subClinical Research Group may provide pro bono studies and consultation to complement your medical diagnostic for cases of interest. As a non MD he is one of the world's most recognized medical scientists in this field. http://www.oprah.com/own-mystery-diagnosis/Mystery-Diagnosis-Bizarre-Nasal-Growt\ h-Video God Bless !! dragonflymcs Mayleen Quote Link to comment Share on other sites More sharing options...
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