Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Janice- I'm trying the backwards sleeper tonight! We'll see how it goes. I was worried about him being bothered by the feet being twisted, but he might accept it. He has a real thing, OCD like, about things being different and feeling different, but I'm so tired of cleaning him up each night lately after he takes his sleeper off and proceeds to " paint with poop! " My son's temperature always runs low, he feels warm to the touch, except for his hands sometimes. He gets the amount of water that the doctor says to give him (he is completely g-tube fed) and his urine output is good and the smell is not strong nor is the color too bright...He gets 42.25 oz. of formula a day and 20 oz. of free water a day ( he is about 60 lbs.) so I don't think he is dehydrated. Sensitivity to touch is also a manifestation of autism, and he has been sensitive to touch since he was born. I used to think it was because everytime someone took his hand they shoved a needle into it (2 open heart surgeries, trach and vent, diapragm plication, coarctation repair, etc.) but now I think that his hypersensitivity is also part of his autism. I am glad your son outgrew his feeding problems. To be honest, I envy you. But my son will not eat by mouth, except a little pudding or applesauce, once in a great while... I appreciate your information and support. Hugs, Donnell janicen@... wrote: Donnell,You should not have to do any sewing to turn the feet backwards, unless you have a very very unusual brand of sleeper. Just twist the feet forward as you put the sleeper on backwards. I've never had that not work. Sleepers tend to be pretty soft and " flexible. " As for reworking the feet, if you like to sew, you may be able to reinforce them. Sleepers worked great when my son was young, but once he was up and walking, he wore the feet out too easily. If your son always wants to take his sleeper off and won't sleep under the covers, that could be a sign that he is dehydrated (and therefore feels hot). My son used to love to sleep on the floor, because it was cooler than the bed. To make sure your son better hydrated, you need to start early in the day with the drinking and taper off toward evening. (Constantly needing to go to urinate can keep you awake, so the urine needs to be through him by bedtime.) The general rule is one ounce for each two pounds of weight. 25 oz. for a 50 lb. child. If he is in school, you will have to be more diligent, maybe a big glass of water when he gets up and another as soon as he gets home. You could even try to get the school to give him a certain amount to drink each day. You could try sending it with him and asking them to get it down him. Sensitivity to touch can be a symptom of dehydration. He could be both warm and not like the feel of having on a sleeper. That may be why he wants it off. I struggled with these issues for years, since my son had feeding problems and I had a hard time getting him to drink. After years of observation, I can say for sure that dehydration was a major factor in many of his behaviors. I could see the changes day to day, depending upon how much he was willing to drink. Fortunately, he eventually outgrew his feeding problems and likes to drink now.JaniceSorry everyone for leaving the whole post below. My computer is acting really weird and won't allow me to select it and erase!Re: Posted by: " Donnell Kenworthy " donnellkenworthy@... donnellkenworthy Mon Dec 31, 2007 11:49 am (PST) Wellllllllllllllllllll He got the t-shirt and the sleeper off!! LIttle houdini strikes again... I will have to try another idea. The backwards sleeper idea sounds good, but he would have to have the feet reworked with some sewing. And he is independent on zipping his jammies up. Wish he understood that he will get cold with them off. He just seems to try to wrap himself around his pillow for warmth - never has used covers, though they are there for him to use. I sometimes, after he is asleep, go in and put him in the sleeping bag I use for his covers. He sometimes wakes up with it still on, but ONLY if I've put him in it after he is asleep and only if he sleeps soundly. Oh, well.... I'll have to try something else. We are potty training this vacation, so I have my hands full with other things. Hugs, Donnell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Donnell, My son was food textured sensitive and it took a long time to get him eating foods that were not pureed like mashed potatoes.Don't give up just keep trying.We started with foods that dissolve like cheetohs,Mike sells popcorn which is like a cheetohs and not like popcorn.There are crackers that dissolve easier like a Ritz cracker. was also tactile defensive and never liked anyone working with his hands. I just kept touching his hands with warm water, play dough, and he eventually outgrew the problem with hand over hand.Now if he has a OT this person should be able to come up with ideas to help this problem. is also OCD and he cannot stand to spill or drop liquids or food on his clothes.OCD runs in my family. has been a fecal smearer so I know about needing one piece sleepers. I have used leotards, turn the sleeper inside out,put shirts on over the sleepers so he could not get to the zipper.I found expensive sleepers that are made for fecal smearers but they are extremely expensive to the expense of $300.00 an outfit. Tie a knot in your rope things will get better. The experts say the fecal smearing is a sensation the kids like.But they can be trained not to do this by replacing the bad behavior with a good one.Does he have an OT? Cyndi B > > Janice- > > I'm trying the backwards sleeper tonight! We'll see how it goes. I was worried about him being bothered by the feet being twisted, but he might accept it. He has a real thing, OCD like, about things being different and feeling different, but I'm so tired of cleaning him up each night lately after he takes his sleeper off and proceeds to " paint with poop! " > > My son's temperature always runs low, he feels warm to the touch, except for his hands sometimes. He gets the amount of water that the doctor says to give him (he is completely g-tube fed) and his urine output is good and the smell is not strong nor is the color too bright...He gets 42.25 oz. of formula a day and 20 oz. of free water a day ( he is about 60 lbs.) so I don't think he is dehydrated. > > Sensitivity to touch is also a manifestation of autism, and he has been sensitive to touch since he was born. I used to think it was because everytime someone took his hand they shoved a needle into it (2 open heart surgeries, trach and vent, diapragm plication, coarctation repair, etc.) but now I think that his hypersensitivity is also part of his autism. > > I am glad your son outgrew his feeding problems. To be honest, I envy you. But my son will not eat by mouth, except a little pudding or applesauce, once in a great while... > > I appreciate your information and support. > > Hugs, > Donnell > > janicen@... wrote: > Donnell,You should not have to do any sewing to turn the feet backwards, unless you have a very very unusual brand of sleeper. Just twist the feet forward as you put the sleeper on backwards. I've never had that not work. Sleepers tend to be pretty soft and " flexible. " As for reworking the feet, if you like to sew, you may be able to reinforce them. Sleepers worked great when my son was young, but once he was up and walking, he wore the feet out too easily. If your son always wants to take his sleeper off and won't sleep under the covers, that could be a sign that he is dehydrated (and therefore feels hot). My son used to love to sleep on the floor, because it was cooler than the bed. To make sure your son better hydrated, you need to start early in the day with the drinking and taper off toward evening. (Constantly needing to go to urinate can keep you awake, so the urine needs to be through him by bedtime.) The general rule is one ounce for each two pounds of > weight. 25 oz. for a 50 lb. child. If he is in school, you will have to be more diligent, maybe a big glass of water when he gets up and another as soon as he gets home. You could even try to get the school to give him a certain amount to drink each day. You could try sending it with him and asking them to get it down him. Sensitivity to touch can be a symptom of dehydration. He could be both warm and not like the feel of having on a sleeper. That may be why he wants it off. I struggled with these issues for years, since my son had feeding problems and I had a hard time getting him to drink. After years of observation, I can say for sure that dehydration was a major factor in many of his behaviors. I could see the changes day to day, depending upon how much he was willing to drink. Fortunately, he eventually outgrew his feeding problems and likes to drink now.JaniceSorry everyone for leaving the whole post below. My computer is acting really weird and won't allow me to > select it and erase!Re: > > Posted by: " Donnell Kenworthy " > donnellkenworthy@... > > > donnellkenworthy > > > > Mon Dec 31, 2007 11:49 am (PST) > > Wellllllllllllllllllll He got the t-shirt and the sleeper off!! LIttle houdini strikes again... > I will have to try another idea. The backwards sleeper idea sounds > good, but he would have to have the feet reworked with some sewing. And > he is independent on zipping his jammies up. Wish he understood that he > will get cold with them off. He just seems to try to wrap himself > around his pillow for warmth - never has used covers, though they are > there for him to use. I sometimes, after he is asleep, go in and put > him in the sleeping bag I use for his covers. He sometimes wakes up > with it still on, but ONLY if I've put him in it after he is asleep and > only if he sleeps soundly. Oh, well.... I'll have to try something > else. > > We are potty training this vacation, so I have my hands full with other things. > > Hugs, > Donnell > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Chocoalte pudding and hair gel were two of the items whith which we replaced fecal smearing . The hair gel actually became a new OCD - but one that is socially acceptable - styling hair is in!!! > Donnell, My son was food textured sensitive and it took a long > time to get him eating foods that were not pureed like mashed > potatoes.Don't give up just keep trying.We started with foods that > dissolve like cheetohs,Mike sells popcorn which is like a cheetohs > and not like popcorn.There are crackers that dissolve easier like a > Ritz cracker. was also tactile defensive and never liked anyone > working with his hands. I just kept touching his hands with warm > water, play dough, and he eventually outgrew the problem with hand > over hand.Now if he has a OT this person should be able to come up > with ideas to help this problem. is also OCD and he cannot stand > to spill or drop liquids or food on his clothes.OCD runs in my > family. has been a fecal smearer so I know about needing one > piece sleepers. I have used leotards, turn the sleeper inside out,put > shirts on over the sleepers so he could not get to the zipper.I found > expensive sleepers that are made for fecal smearers but they are > extremely expensive to the expense of $300.00 an outfit. Tie a knot > in your rope things will get better. The experts say the fecal > smearing is a sensation the kids like.But they can be trained not to > do this by replacing the bad behavior with a good one.Does he have an > OT? Cyndi B > > > > Janice- > > > > I'm trying the backwards sleeper tonight! We'll see how it > goes. I was worried about him being bothered by the feet being > twisted, but he might accept it. He has a real thing, OCD like, > about things being different and feeling different, but I'm so tired > of cleaning him up each night lately after he takes his sleeper off > and proceeds to " paint with poop! " > > > > My son's temperature always runs low, he feels warm to the touch, > except for his hands sometimes. He gets the amount of water that the > doctor says to give him (he is completely g-tube fed) and his urine > output is good and the smell is not strong nor is the color too > bright...He gets 42.25 oz. of formula a day and 20 oz. of free water > a day ( he is about 60 lbs.) so I don't think he is dehydrated. > > > > Sensitivity to touch is also a manifestation of autism, and he > has been sensitive to touch since he was born. I used to think it > was because everytime someone took his hand they shoved a needle into > it (2 open heart surgeries, trach and vent, diapragm plication, > coarctation repair, etc.) but now I think that his hypersensitivity > is also part of his autism. > > > > I am glad your son outgrew his feeding problems. To be honest, I > envy you. But my son will not eat by mouth, except a little pudding > or applesauce, once in a great while... > > > > I appreciate your information and support. > > > > Hugs, > > Donnell > > > > janicen@... wrote: > > Donnell,You should not have to do any sewing to turn the > feet backwards, unless you have a very very unusual brand of sleeper. > Just twist the feet forward as you put the sleeper on backwards. I've > never had that not work. Sleepers tend to be pretty soft > and " flexible. " As for reworking the feet, if you like to sew, you > may be able to reinforce them. Sleepers worked great when my son was > young, but once he was up and walking, he wore the feet out too > easily. If your son always wants to take his sleeper off and won't > sleep under the covers, that could be a sign that he is dehydrated > (and therefore feels hot). My son used to love to sleep on the floor, > because it was cooler than the bed. To make sure your son better > hydrated, you need to start early in the day with the drinking and > taper off toward evening. (Constantly needing to go to urinate can > keep you awake, so the urine needs to be through him by bedtime.) The > general rule is one ounce for each two pounds of > > weight. 25 oz. for a 50 lb. child. If he is in school, you will > have to be more diligent, maybe a big glass of water when he gets up > and another as soon as he gets home. You could even try to get the > school to give him a certain amount to drink each day. You could try > sending it with him and asking them to get it down him. Sensitivity > to touch can be a symptom of dehydration. He could be both warm and > not like the feel of having on a sleeper. That may be why he wants it > off. I struggled with these issues for years, since my son had > feeding problems and I had a hard time getting him to drink. After > years of observation, I can say for sure that dehydration was a major > factor in many of his behaviors. I could see the changes day to day, > depending upon how much he was willing to drink. Fortunately, he > eventually outgrew his feeding problems and likes to drink > now.JaniceSorry everyone for leaving the whole post below. My > computer is acting really weird and won't allow me to > > select it and erase!Re: > > > > Posted by: " Donnell Kenworthy " > > donnellkenworthy@... > > > > > > donnellkenworthy > > > > > > > > Mon Dec 31, 2007 11:49 am (PST) > > > > Wellllllllllllllllllll He got the t-shirt and the sleeper off!! > LIttle houdini strikes again... > > I will have to try another idea. The backwards sleeper idea sounds > > good, but he would have to have the feet reworked with some sewing. > And > > he is independent on zipping his jammies up. Wish he understood > that he > > will get cold with them off. He just seems to try to wrap himself > > around his pillow for warmth - never has used covers, though they > are > > there for him to use. I sometimes, after he is asleep, go in and put > > him in the sleeping bag I use for his covers. He sometimes wakes up > > with it still on, but ONLY if I've put him in it after he is asleep > and > > only if he sleeps soundly. Oh, well.... I'll have to try something > > else. > > > > We are potty training this vacation, so I have my hands full with > other things. > > > > Hugs, > > Donnell > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 I found this website while reading an article that someone else posted a link to. It's a jumpsuit thing to prevent the fecal smearing that has been such a hot subject lately. My son used to do this, but hasn't for a while. Thank God they outgrow some of these things. We did not replace it with anything similar, but his bm's are much more regular since he is on Miralax & has been for years now. He doesn't have a bm every day, but at least every other day. Check out this link... http://www.jollyjumpwear.com/ Mahnke mom to 15 DS, PDD-NOS > > > Donnell,You should not have to do any sewing to turn the > > feet backwards, unless you have a very very unusual brand of sleeper. > > Just twist the feet forward as you put the sleeper on backwards. I've > > never had that not work. Sleepers tend to be pretty soft > > and " flexible. " As for reworking the feet, if you like to sew, you > > may be able to reinforce them. Sleepers worked great when my son was > > young, but once he was up and walking, he wore the feet out too > > easily. If your son always wants to take his sleeper off and won't > > sleep under the covers, that could be a sign that he is dehydrated > > (and therefore feels hot). My son used to love to sleep on the floor, > > because it was cooler than the bed. To make sure your son better > > hydrated, you need to start early in the day with the drinking and > > taper off toward evening. (Constantly needing to go to urinate can > > keep you awake, so the urine needs to be through him by bedtime.) The > > general rule is one ounce for each two pounds of > > > weight. 25 oz. for a 50 lb. child. If he is in school, you will > > have to be more diligent, maybe a big glass of water when he gets up > > and another as soon as he gets home. You could even try to get the > > school to give him a certain amount to drink each day. You could try > > sending it with him and asking them to get it down him. Sensitivity > > to touch can be a symptom of dehydration. He could be both warm and > > not like the feel of having on a sleeper. That may be why he wants it > > off. I struggled with these issues for years, since my son had > > feeding problems and I had a hard time getting him to drink. After > > years of observation, I can say for sure that dehydration was a major > > factor in many of his behaviors. I could see the changes day to day, > > depending upon how much he was willing to drink. Fortunately, he > > eventually outgrew his feeding problems and likes to drink > > now.JaniceSorry everyone for leaving the whole post below. My > > computer is acting really weird and won't allow me to > > > select it and erase!Re: > > > > > > Posted by: " Donnell Kenworthy " > > > donnellkenworthy@ > > > > > > > > > donnellkenworthy > > > > > > > > > > > > Mon Dec 31, 2007 11:49 am (PST) > > > > > > Wellllllllllllllllllll He got the t-shirt and the sleeper off!! > > LIttle houdini strikes again... > > > I will have to try another idea. The backwards sleeper idea sounds > > > good, but he would have to have the feet reworked with some sewing. > > And > > > he is independent on zipping his jammies up. Wish he understood > > that he > > > will get cold with them off. He just seems to try to wrap himself > > > around his pillow for warmth - never has used covers, though they > > are > > > there for him to use. I sometimes, after he is asleep, go in and put > > > him in the sleeping bag I use for his covers. He sometimes wakes up > > > with it still on, but ONLY if I've put him in it after he is asleep > > and > > > only if he sleeps soundly. Oh, well.... I'll have to try something > > > else. > > > > > > We are potty training this vacation, so I have my hands full with > > other things. > > > > > > Hugs, > > > Donnell > > > > > > Quote Link to comment Share on other sites More sharing options...
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