Re: biomedical treatments

[Guest guest]

<<I am simply gathering information on biomedical treatment for kids with Down

syndrome and Autism. We are considering this for our son who is 11. Do

any of you treat your children with vitamins and minerals, injections, etc. If

so have you noticed a difference?>>

Hi Dana, we did alot of biomedical treatments with (19 on Monday) over the

years. Some have helped, some not so much. Hopefully our resident biomedical

" nut " Irma will chime in here...don't know if Sharon F is still on the list.

Irma can tell you more than you ever thought you wanted to know about DAN

protocol and her present trials and tribulations with biomedical approach. We

rely on allergy treatment, and diet as key elements. But I've found that many

of the biomed treatments that are supposed to work well for " autistic " kids,

sometimes don't do so well with our version of autism in the dual diagnosis. It

appears to be a different form of autism in many ways.

With vitamin protocols for instance jamie has been unable to tolerate any

particular " formulas " ...not for DS or for autism and we have tried them all. We

have to supplement individually according to what her labs show (and they are

never what one expects to see from a child with " only " DS or " only " DS " ).

Probably not very informative but the best I can do today :-)

Sherry mom to (dtr) 18, DS-Aut and Crohn's

[Guest guest]

Posted by: " gldcst " gldcst@... gldcst2

Thu Jan 3, 2008 12:46 pm (PST)

<<I am simply gathering information on biomedical treatment for kids with

Down syndrome and Autism. We are considering this for our son who is 11.

Do any of you treat your children with vitamins and minerals, injections,

etc. If so have you noticed a difference?>>

Hi Dana, we did alot of biomedical treatments with (19 on Monday) over

the years. Some have helped, some not so much. Hopefully our resident

biomedical " nut " Irma will chime in here...don't know if Sharon F is still on

the

list. Irma can tell you more than you ever thought you wanted to know about

DAN protocol and her present trials and tribulations with biomedical approach.

We rely on allergy treatment, and diet as key elements. But I've found that

many of the biomed treatments that are supposed to work well for " autistic "

kids, sometimes don't do so well with our version of autism in the dual

diagnosis. It appears to be a different form of autism in many ways.

With vitamin protocols for instance jamie has been unable to tolerate any

particular " formulas " ...not for DS or for autism and we have tried them all. We

have to supplement individually according to what her labs show (and they

are never what one expects to see from a child with " only " DS or " only " DS " ).

Probably not very informative but the best I can do today :-)

Sherry mom to (dtr) 18, DS-Aut and Crohn's

[Non-text portions of this message have been removed]

We are on the bio-medical route with . I had to chime in and share that

can't handle the " formulas: " either. He has also had difficulty with

some of the vitamin B supplements (of course that was when he was demolishing

his previous placement so don't know if it was because of the supplement or

the staff.

Anyway, doesn't react to pharmaceuticals or supplements like they

would predict.

Karyn

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

>

> Hello,

>

> I am simply gathering information on biomedical treatment for kids

with Down syndrome and Autism. We are considering this for our son

who is 11. Do any of you treat your children with vitamins and

minerals, injections, etc. If so have you noticed a difference?

>

> Dana

Hi Dana,

Due to my son's underlying medical issues when all general medical

treatments failed and most doc's were unable to figure out what was

going on with a batter of test, all would return normal.

He suffered tremendously from recurrent infection on a monthly basis.

Even I was confused & worried big times if the medical team whom he

was seen by were unable to find a treatment. What next?

So the question my friends had always asked me was " What would you do

to try to save your child? " , as I had to turn down alot of invitations

because my son was always sick & thensome and they felt sorry for me

and sad for my son as they would see how sick he was.

Even the school nurse would call me alot and were surprise with the

doctor's outcome of not detecting anything.

I had begun just to eliminate certain food items and then finally

found a wonderful Hematologist who detected that my son suffered from

multiple food allergies/food intolerances, & CVID (Common Variable

Immunodeficiency).

He was the closest to a DAN doc around where I live, does not claim to

be but I actually found someone who was willing to run some test as I

have been learning the ropes of attending numerous DAN conferences

before taking this route.

I did manage to find one doc whom claim to be a DAN, but it did more

harm than good.

So I enter with caution nowadays and try to work around several

medical professionals who at least would not mind doing some test

needed where our health insurance or my son's Medicaid would help pay

for it as many revolve around money upfront.

In April 2007 was the beginning of entering the Alternative Bio-med

route. Which has helped my son tremendously.

It is personalized according to his health needs.

This is the place I take my son to and they accept our health insurance.

http://www.mycareclinics.com/

I was hesitant at first and just when I was about to quit this

treatment, my son was once again showing awareness, so this was a

biggie to observe this.

I know what worked for my son, may not work for others.

I have not taken my son these past months for his IV Chelation, Ozone

& Pk treatments, due to regular check-ups which involved being sedated

and I will soon return some time this month to begin the

detoxification once again.

Whereabouts do you live?

Have you attended any DAN conferences?

Read any books in regards to this road?

Have you read the latest on the Autismlink?

They had compiled most of the information-

TACA is proud to announce our fabulous new DIET website to help

families using dietary interventions.

http://gfcf-diet.talkaboutcuringautism.org/index.html

Here is to 2008 for some Hope where we all learn for our individuals

with unique challenging needs with whatever trials & errors treatmetns

as we continue our path.

Irma,19,DS/ASD

[Guest guest]

> We are on the bio-medical route with . I had to chime in and

share that can't handle the " formulas: " either. He has also had

difficulty with some of the vitamin B supplements (of course that was

when he was demolishing his previous placement so don't know if it

was because of the supplement or the staff.

> Anyway, doesn't react to pharmaceuticals or supplements like

they would predict.

>

> Karyn

Karyn,

I would say part of the reason was the supplement as most whom I know

and due to our experience with the Vitamin B formula that was

recommended for , he did not do well with this with one of the

doc's recommendation.

Now under the care of the clinic around his personalized treatment, no

telling how much if given with his Mineral treatment, will have to

review it, now that you mentioned it.

I have not followed through with the vitamin B-12 shots, yet.

Always a pleasure anyone sharing their views on the bio-med route as

it is nice to know how other react to this alternative route too.

Irma

[Guest guest]

Dana,

These are two wonderful books to begin with.

Also review the site I had sent, this is based from many who have

shared among many aboard this ship with the Alternative Bio-med

treatment and dietary intervention.

I have had the pleasure of meeting several of them or heard them out

at Autism conferences, etc.

You've mention your son has loose bowel movements, a good start would

be to have him seen by a GI doc to rule out anything before beginning

the GF/CF diet, so that you would know if you are targeting on what is

triggering something. Has he ever been scoped?

Have you monitor on what he has been eating?

Keep a journal.

My son is under the GF/CF diet but within time then also now allergic

to egg whites & has some intolerance towards corn.

In other words I have to stay updated with the research being done to

work around elimination and rotation diet. Because you could create

some problems like on.

Learning about the good & bad grains,

hidden sources of gluten,

hidden sources of dairy, you must become an excellent food detective

and label reader.

I limit the intake of soy and corn for my son due to it being among

the top three largest genetically modified crops, which you will

review mentioned by Jaquelyn McCandless's book too.

Corn(and sugar)feed bacteria and yeast in our digestive system. They

also suppress the immune system.

Based on some research has it that soy consumption may be responsible

for many digestive problems because it blocks essential enzymes from

properly digesting food.

Rotating all of the foods helps de-stress the body and it also allows

the kidneys to clear antibodies from the blood.

I'll share more later if you like?

Irma,19,DS/ASD