Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hey everyone! It has been some time since I posted on here. Been busy and trying to spend less time on the net and more time doing other things. Anywho... Yesterday I got a call from school saying my daughter (5) had a seizure. They said that it was quick and that she was fine and that I didn't need to come get her. So as much as I wanted to run over and get her I sucked it up and waited till later in the afternoon. When I got to school they said she had, had another one about 15 minutes after the first one and the rest of the day she was fine. Being a worry wart I took her to the doctors because that I know of we have never experienced this before. The reason that I say that I know of is because it lasted about 20 seconds she just had an iced over look on her face and was unresponsive. If it happens so quickly and depending on when it happened I could completely miss it. The doctor said he believes it was probably an " absense seizure " and that we will need to get an EEG done to see how she reacts and to treat if necessary. He said the seizures themselves aren't dangerous to her but it could affect her ability to participate in her classroom if they started happening frequently so he would recommend treating it depending on the EEG. Anyway I was just wondering if any of the rest of you had experience with this so on and so forth. What have you experienced are you treating...all the stuff I might want to know. Thanks much for your time. *amber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Amber,My son started having seizures shortly before his 5th birthday. We took him to the er the first day and they did nothing. Then he had another the next day and he was admitted for a video eeg. They started him on medicine the next day. is 10 now and doing fine, but it took us a while to get here. We tried several different drugs and his seizures kept escalating. His first seizures were grand mal but then he started having abscence, myoclonic and the worst of all, drops. The drops got up to 30 a day before I finally found a new pediatric neurologist that I just love and he put him on Valproic Acid and Trileptal which completely stopped all his seizures. He is still on the meds, (five years now) but I am too scared to start weaning. The doctor said maybe one more year and then we'll see.Hopefully if your doctor starts medication the first one will work and you can have some peace of mind. IIf there is anything I can help you with please just ask. I belong to epilepsykids at yahoo also and I think I learned more from those Mom's than the doctors.Terry----- Original Message -----From: sullhomeorg Date: Friday, January 11, 2008 3:04 pmSubject: Absense SeizuresTo: > Hey everyone! It has been some time since I posted on here. Been> busy and trying to spend less time on the net and more time doing> other things. Anywho...> Yesterday I got a call from school saying my daughter (5) had a> seizure. They said that it was quick and that she was fine and > that I> didn't need to come get her. So as much as I wanted to run over and> get her I sucked it up and waited till later in the afternoon. > When I> got to school they said she had, had another one about 15 minutes> after the first one and the rest of the day she was fine. Being a> worry wart I took her to the doctors because that I know of we have> never experienced this before. The reason that I say that I > know of> is because it lasted about 20 seconds she just had an iced over look> on her face and was unresponsive. If it happens so quickly and> depending on when it happened I could completely miss it.> The doctor said he believes it was probably an " absense seizure " and> that we will need to get an EEG done to see how she reacts and to> treat if necessary. He said the seizures themselves aren't dangerous> to her but it could affect her ability to participate in her classroom> if they started happening frequently so he would recommend > treating it> depending on the EEG. > Anyway I was just wondering if any of the rest of you had experience> with this so on and so forth. What have you experienced are you> treating...all the stuff I might want to know.> Thanks much for your time.> *amber> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Absence seizures - I am really surprised that the school noticed and didn't just say that she wasn't paying attention! IF it was soooo noticeable that they could tell you start to finish what happened, I would ask for a referrel to a pediatric neurologist. Sure an EEG is wrrented BUT the interpretation of what is seen needs to be done (IMO) by a pediatric neurologist. > Hey everyone! It has been some time since I posted on here. Been > busy and trying to spend less time on the net and more time doing > other things. Anywho... > Yesterday I got a call from school saying my daughter (5) had a > seizure. They said that it was quick and that she was fine and that I > didn't need to come get her. So as much as I wanted to run over and > get her I sucked it up and waited till later in the afternoon. When I > got to school they said she had, had another one about 15 minutes > after the first one and the rest of the day she was fine. Being a > worry wart I took her to the doctors because that I know of we have > never experienced this before. The reason that I say that I know of > is because it lasted about 20 seconds she just had an iced over look > on her face and was unresponsive. If it happens so quickly and > depending on when it happened I could completely miss it. > The doctor said he believes it was probably an " absense seizure " and > that we will need to get an EEG done to see how she reacts and to > treat if necessary. He said the seizures themselves aren't dangerous > to her but it could affect her ability to participate in her classroom > if they started happening frequently so he would recommend treating it > depending on the EEG. > Anyway I was just wondering if any of the rest of you had experience > with this so on and so forth. What have you experienced are you > treating...all the stuff I might want to know. > Thanks much for your time. > *amber > > > -- Sara - Life is a journey- we choose the path. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Amber, I was told the same thing last year by the school people about my 10 year son, Zacky. I took it seriously. I am a worry wart, too, I mentioned it to Zacky's doctor and he said to just keep an eye on it for now and let him know what I see. Well, I never saw any " seizures " , he kind of zones out but if you call his name (or do something that interests him) he'll come out of it. We had a EEG done several months ago. It was fine. Violet > Hey everyone! It has been some time since I posted on here. Been > busy and trying to spend less time on the net and more time doing > other things. Anywho... > Yesterday I got a call from school saying my daughter (5) had a > seizure. They said that it was quick and that she was fine and that I > didn't need to come get her. So as much as I wanted to run over and > get her I sucked it up and waited till later in the afternoon. When I > got to school they said she had, had another one about 15 minutes > after the first one and the rest of the day she was fine. Being a > worry wart I took her to the doctors because that I know of we have > never experienced this before. The reason that I say that I know of > is because it lasted about 20 seconds she just had an iced over look > on her face and was unresponsive. If it happens so quickly and > depending on when it happened I could completely miss it. > The doctor said he believes it was probably an " absense seizure " and > that we will need to get an EEG done to see how she reacts and to > treat if necessary. He said the seizures themselves aren't dangerous > to her but it could affect her ability to participate in her classroom > if they started happening frequently so he would recommend treating it > depending on the EEG. > Anyway I was just wondering if any of the rest of you had experience > with this so on and so forth. What have you experienced are you > treating...all the stuff I might want to know. > Thanks much for your time. > *amber > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Hi -- Sometimes I am reluctant to post because all of our children are so similar AND SO DIFFERENT and I could not say that I know anything definitive even about my own son...but here goes. Jake (14) was having these weird episodes starting in early adolescence where he would become aggressive for no apparent reason. He never really hurt anybody or tried to but would throw someone's drink across the room, take off their glasses, push a chair down. Anyone who has ever witnessed this (teacher, family member) is always completely baffled as there appears to be NO precipitating issue with him. He becomes unresponsive and then exhausted afterwards. (and remorseful). One of the last times it happened (at speech therapy) his speech therapist said that she used to work with children who had seizures and that this totally looked like seizure activity. Coincidentally at that time I had been perusing some old conference notes on Autism and had discovered where I had written " subclinical seizures " and decided I should finally get around to looking it up. The literature apparently suggests that 30% of adolescents who have autism will experience these types of seizures which are often subtle but result in totally unexplained aggressive behavior....Well, there it was in black and white...As I have mentioned in a previous post, we are now exploring Depakote (typically used for seizures and/or mood stabilization). I think testing was out of the question as it required that he be " hooked " up for 24 hours....Jake would not do a " hook up " to anything for 24 seconds...so....We are doing trial and error with the med. I would think seizures could affect each of our children differently as well???? just our experience to share with you, susan ________________________________ > To: > From: sullhomeorg@... > Date: Fri, 11 Jan 2008 20:04:41 +0000 > Subject: Absense Seizures > > > Hey everyone! It has been some time since I posted on here. Been > busy and trying to spend less time on the net and more time doing > other things. Anywho... > Yesterday I got a call from school saying my daughter (5) had a > seizure. They said that it was quick and that she was fine and that I > didn't need to come get her. So as much as I wanted to run over and > get her I sucked it up and waited till later in the afternoon. When I > got to school they said she had, had another one about 15 minutes > after the first one and the rest of the day she was fine. Being a > worry wart I took her to the doctors because that I know of we have > never experienced this before. The reason that I say that I know of > is because it lasted about 20 seconds she just had an iced over look > on her face and was unresponsive. If it happens so quickly and > depending on when it happened I could completely miss it. > The doctor said he believes it was probably an " absense seizure " and > that we will need to get an EEG done to see how she reacts and to > treat if necessary. He said the seizures themselves aren't dangerous > to her but it could affect her ability to participate in her classroom > if they started happening frequently so he would recommend treating it > depending on the EEG. > Anyway I was just wondering if any of the rest of you had experience > with this so on and so forth. What have you experienced are you > treating...all the stuff I might want to know. > Thanks much for your time. > *amber > > > > Messages in this topic _________________________________________________________________ Share life as it happens with the new Windows Live. http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008 Quote Link to comment Share on other sites More sharing options...
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