Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 Welcome to you and all your little ones!! , the haircut thing and candy thing may be just another one of those syndrome things. My son, (now 22yo) fought haircuts until he was in his late teens - and then we offered a motivational reward. Now he jusst stalls (not today, do it tomorrow). but doesn't resist once we get started. I am too traumatized by what happened when he was younger - I cut his hair. Too stressful for me to dare a barber shop again. Elie eats no candy - isn't interested. Once in a great while someone can tempt him with a ppiece of chocolate, but he would rather have ice cream - soft or hard, any flavor as long as we call it chocolate. With all your children showing some of the spectrum, has anyone suggested a geneteic screen? Since the reports coming out that SOME few families with more than one person with spectrum-like behaviors may be genetic, I wondered if your doctors had suggested this?? ANd if you were interested?? > Hi, > > I've been a member here for a while but haven't been posting -- I > think the list changed since I first signed up! My son, , is 2. > He has DS and the developmental ped is following him for some " red > flags " for autism. He doesn't make great eye contact, he's not > talking much, and he will happily play by himself for quite some time. > He LOVES to take two similar objects (for instance, a drum and a > pillow that's shaped like a drum, or two blocks) and play with them > together. He's also got some sensory issues and craves movement and > heavy work. He also has this thing for hair and will pull hair to > defend a toy and sometimes for the sensory feedback. It's very > aggravating! > > That being said, also has surprising strengths. The OT who > follows him as part of a t-21 clinic was very happy with his fine > motor skills. Cognitively, he's an awesome problem-solver (which has > been a pain with trying to teach language -- we put all his toys in a > clear bin to get him to ask for them. He figured out that if he > pushed the bin to the china cabinet, climbed up on top, walked it over > so it fell on it's side, then bounced on the top, the lid would pop > open and he'd get his toys. So much for language). He loves to > categorize things by color or shape and actually has great attention > for things of his choosing. > > has 2 older brothers (7 and 4) who both seem to have some mild > spectrumish symptoms. I think my oldest has nonverbal language > disorder and he might have very mild Asperger's syndrome -- he's got > an IEP at school and is getting loads of help and is coming along > nicely. He is also profoundly gifted, which might explain some of his > little quirks. My 4-year-old also has an IEP and is in an inclusion > pre-k class, and does well with supports. > > also has a younger sister, 18 mos (15 mos younger than > !), who is getting Early Intervention OT for some sensory/motor > planning issues. and his sister both seem to have some apraxia > of speech and is also unable to chew and swallow solids. He's > being followed by a feeding team, and they are of the opinion that his > inability to swallow is due to motor weakness and not " behavior " or > anatomical obstruction. We shall see. > > What else? loves to play with his siblings. He imitates them > well and interacts with them, just not through eye contact. I > remember the first time he saw snow last winter. He stood at the > window gesturing and making all kinds of excited sounds -- he was > eager to share it with me but did it with his voice and not his face. > That's all of my kids, really, but they were all well well well > beyond their ages verbally so it seemed fine, kwim? When your child > says " I feel sad because my ball rolled under the table " it seems like > they're sharing and it's easy to overlook the fact that the child > isn't looking at you while they say that. > > We're teaching and his sister sign language. That's going > well. His sister is an awesome model and he is following her lead. I > was so thrilled when he first came over to me and signed " drink " -- it > was the first time he'd used any sort of language to make a request. > Up til then he was just labeling. He also recently started calling me > " mamamamamama " , which was AWESOME, and he's begun referring to himself > as " ah-doo " which is what his little sister calls him. > > He'll be starting school on his third birthday this April. They have > an all-day program, with no nap, and I'm not too happy with that. His > developmental ped thinks that it will teach him to shut down and fall > asleep, she'd rather see him on a nap schedule. I'm more afraid that > he'll stay up at school but then come home just to decompress and fall > asleep. Oh, melt-downs, we don't have too many of those and he's > pretty good at calming, with a bottle. He still uses a bottle despite > our many many attempts to get him to use a cup. He's happy to drink > water from a cup but milk belongs in bottles. SIGH. > > also hates haircuts (he hates being restrained in any way) and > he's never been a candy-eater, either. > > That's us! > > > > > -- Sara - Life is a journey- we choose the path. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Hi, My older guys haven't gotten any dx yet, aside from sensory integrative dysfunction. If they DO have a very mild Asperger's syndrome (and/or NLD), I'm not sure that the same rules apply as " straight " autism. I know that there's a supposed link with fetal testosterone levels and Asperger's syndrome. Which is why is runs strongly in families. There's this whole " Extreme male brain " theory that comes out of that. Supposedly, the symptoms of Asperger's are a result of a brain that systemizes too much, to the point where systemizing is used when empathizing should be used. Can you tell I spend WAY too much time researching all of this? LOL. In his own, way, 's stengths and weaknesses are so like his brothers'. He's so good at problem-solving, but he's not learning social pragmatics so quickly. None of my kids had good eye contact early on, and my 4-year-old even told me a couple of years ago that it's hard to talk and look at someone at the same time, it's too distracting. I'm sure that whatever was going on with is also an issue for . All of my kids love being around other kids and try to play with other kids, but they're all a little " different " in HOW they do it. I'm just glad that they all have each other. Thanks for the welcome, I appreciate it! > > > Hi, > > > > I've been a member here for a while but haven't been posting -- I > > think the list changed since I first signed up! My son, , is 2. > > He has DS and the developmental ped is following him for some " red > > flags " for autism. He doesn't make great eye contact, he's not > > talking much, and he will happily play by himself for quite some time. > > He LOVES to take two similar objects (for instance, a drum and a > > pillow that's shaped like a drum, or two blocks) and play with them > > together. He's also got some sensory issues and craves movement and > > heavy work. He also has this thing for hair and will pull hair to > > defend a toy and sometimes for the sensory feedback. It's very > > aggravating! > > > > That being said, also has surprising strengths. The OT who > > follows him as part of a t-21 clinic was very happy with his fine > > motor skills. Cognitively, he's an awesome problem-solver (which has > > been a pain with trying to teach language -- we put all his toys in a > > clear bin to get him to ask for them. He figured out that if he > > pushed the bin to the china cabinet, climbed up on top, walked it over > > so it fell on it's side, then bounced on the top, the lid would pop > > open and he'd get his toys. So much for language). He loves to > > categorize things by color or shape and actually has great attention > > for things of his choosing. > > > > has 2 older brothers (7 and 4) who both seem to have some mild > > spectrumish symptoms. I think my oldest has nonverbal language > > disorder and he might have very mild Asperger's syndrome -- he's got > > an IEP at school and is getting loads of help and is coming along > > nicely. He is also profoundly gifted, which might explain some of his > > little quirks. My 4-year-old also has an IEP and is in an inclusion > > pre-k class, and does well with supports. > > > > also has a younger sister, 18 mos (15 mos younger than > > !), who is getting Early Intervention OT for some sensory/motor > > planning issues. and his sister both seem to have some apraxia > > of speech and is also unable to chew and swallow solids. He's > > being followed by a feeding team, and they are of the opinion that his > > inability to swallow is due to motor weakness and not " behavior " or > > anatomical obstruction. We shall see. > > > > What else? loves to play with his siblings. He imitates them > > well and interacts with them, just not through eye contact. I > > remember the first time he saw snow last winter. He stood at the > > window gesturing and making all kinds of excited sounds -- he was > > eager to share it with me but did it with his voice and not his face. > > That's all of my kids, really, but they were all well well well > > beyond their ages verbally so it seemed fine, kwim? When your child > > says " I feel sad because my ball rolled under the table " it seems like > > they're sharing and it's easy to overlook the fact that the child > > isn't looking at you while they say that. > > > > We're teaching and his sister sign language. That's going > > well. His sister is an awesome model and he is following her lead. I > > was so thrilled when he first came over to me and signed " drink " -- it > > was the first time he'd used any sort of language to make a request. > > Up til then he was just labeling. He also recently started calling me > > " mamamamamama " , which was AWESOME, and he's begun referring to himself > > as " ah-doo " which is what his little sister calls him. > > > > He'll be starting school on his third birthday this April. They have > > an all-day program, with no nap, and I'm not too happy with that. His > > developmental ped thinks that it will teach him to shut down and fall > > asleep, she'd rather see him on a nap schedule. I'm more afraid that > > he'll stay up at school but then come home just to decompress and fall > > asleep. Oh, melt-downs, we don't have too many of those and he's > > pretty good at calming, with a bottle. He still uses a bottle despite > > our many many attempts to get him to use a cup. He's happy to drink > > water from a cup but milk belongs in bottles. SIGH. > > > > also hates haircuts (he hates being restrained in any way) and > > he's never been a candy-eater, either. > > > > That's us! > > > > > > > > > > > > > > -- > Sara - Life is a journey- we choose the path. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2008 Report Share Posted January 21, 2008 This is really weird. I keep trying to introduce myself..and it keeps pulling up old posts as mine. I`m going to post this one as a new topic and see what happens.. Quote Link to comment Share on other sites More sharing options...
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