Introduction

[Guest guest]

Hi everyone,

My name is Stacey. I am married to and we have have 2

daughters. Randi is 11, and Maggie who will be 9 in March. Maggie

has ds-asd and is deaf.

I read a few of the posts and I felt relief as finally there may be a

place for us with people who undersatnd, struggle with similar

issues, and may have real practical advice to help us. In return, I

hope that our experiences can aid others.

Maggie has a severe developmental delay (about 12-18months old) and

is everely autisitic. We did not get a diagnosis until age 7 as the

1 psyche that we saw when she was younger told us " approximately 1 in

5000000 children with ds will truly have autism. I would not expect

to see one. You`ll just have to understand that she is severly

delayed because of the ds. " " The autistic tendencies she displays are

caused from low developmental function " A few years later, once we

were off the wait lists and received assessments from behaviour and

OT, autism was again brought up. we told them what we were told and

they sent us to another psyche. He did a thorough evaluation and

dx`d with severe autism. He said that it was rare but when it is..it

is!

Anyways, since then we`ve been involved in some programming and are

on the wait list for IBI.

I can`t say enough how connected I feel ..finally..

I don`t generally use the computer much..not enough hours in the

day..+ I`ve felt for so long that there is nowhere that we truly

fit...but I`m hoping to be able to keep up with this board and be an

active participant.

Take care,

Hope to get to know you

Stacey