Jayne

[Guest guest]

Jayne,

The snow sounds lovely! Sun is shining here in CA and it's about 43 F. I

don't know how things work in Maine with the wrap around support, but I pray

that you get the most time offered. (My son gets nursing support here in CA to

the tune of 40 hours a week authorized, but due to nursing shortage has been cut

back to 16 hours a week...) Prayers for you and your husband as he sets off for

a fourth tour. You make me thankful for a husband who is home. I know what you

mean about those moments of " normalcy. " They don't come often enough, but make

you very grateful when they do come. Happy New Year... here's to more moments

of normalcy...good supports for you and your child(ren)...AND for safety for

your hubby!

Hugs,

Donnell

Jayne Hickey wrote:

Donnell,

I think this is something we all struggle with. I know I do! It's so hard to

divide the time between them all equally. My husband leaves for his 4th tour in

Iraq on Saturday and I'm already starting to wonder how I'm going to make it all

work. I know it will, it always does and the best part is that I should have

some wrap around support shortly! I'm waiting on the State to say just how many

hours of support I can have!

Things have gotten so much more difficult in terms of going out with .

Although I must say he and I went out the other day to Dick's sporting goods and

Gap and to exhange some things and he was so good!! He was in his stroller and I

didn't push him to go to more stores. When we were finished we went to Panera

where he got a grilled cheese kids meal and I enjoyed a Chai Latte and a yummy

cookie!

Of course when we came home the caca hit the fan and he had clearly reached his

limit! But I do so treasure those moments of " normalcy " if you will - when you

can just go out to run and errand and it goes smoothly!

Happy New Year all!

Jayne

Donnell Kenworthy wrote:

15. To make special times to spend with my other children, to let them know they

are special, to listen to their needs, wants, desires,etc. and make memories

with them, both with their disabled brother and without their brother.

check out the view from my shoes at

www.wickedbusymomto3.wordpress.com

---------------------------------

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[Guest guest]

Us too!!

Holly

Jayne

Hi, Everyone....Jayne...I, too, was surprised that he was being sent over

for the 4th time. How would you and he feel if you gave us his address so that

some of us could 'adopt' him and his troop to send goodies to? My cousin

was over in that area 3 times and really appreciated all the junk food I sent

him. I don't know anyone over there now, so I would love to send him and his

troop goodies.

Take care, Everyone.

Margaret

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

Hi Jayne,

Happy New Year. It will be bittersweet saying goodbye for the 4th time. Count me

and Zeb in too.

Charlyne

Mom to Zeb 15 DS/OCD/ASD?

Holly Giglio wrote: Us

too!!

Holly

Jayne

Hi, Everyone....Jayne...I, too, was surprised that he was being sent over

for the 4th time. How would you and he feel if you gave us his address so

that

some of us could 'adopt' him and his troop to send goodies to? My cousin

was over in that area 3 times and really appreciated all the junk food I sent

him. I don't know anyone over there now, so I would love to send him and his

troop goodies.

Take care, Everyone.

Margaret

**************************************See AOL's top rated recipes

(http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

[Guest guest]

Happy New Year everyone! My husband and I have caught the cold that started

with , moved through our two older kids and has now come to rest with us!

It's hit my husband a lot harder than me - we're hoping for a quick recovery as

he leaves Saturday.

Thank you to those of you that have sent well wishes in regards to 's

deployment. I have shared with him your emails and told him what a great group

of friends I have here! I know he is touched by your kindness - you guys are

great!

As soon as he receives his address, I will forward it to those of you that

would like it. I know he will appreciate the mail. (His wife is not the best

at keeping in touch via the post office! I'm hoping to be much better this time

around!)

I'm so lucky to have such a great group of friends, I love our little

neighborhood on the www!

Take care,

Jayne

check out the view from my shoes at

www.wickedbusymomto3.wordpress.com

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

I am so glad that he was able to be home for the holidays - that was always

the worst time for us when my dh deployed. So sorry he leaves for the "

activities " in that part of the world. Will be thinking of all of you.

> Happy New Year everyone! My husband and I have caught the cold that

> started with , moved through our two older kids and has now come to

> rest with us! It's hit my husband a lot harder than me - we're hoping for a

> quick recovery as he leaves Saturday.

>

> Thank you to those of you that have sent well wishes in regards to 's

> deployment. I have shared with him your emails and told him what a great

> group of friends I have here! I know he is touched by your kindness - you

> guys are great!

>

> As soon as he receives his address, I will forward it to those of you that

> would like it. I know he will appreciate the mail. (His wife is not the best

> at keeping in touch via the post office! I'm hoping to be much better this

> time around!)

>

> I'm so lucky to have such a great group of friends, I love our little

> neighborhood on the www!

>

> Take care,

> Jayne

>

> check out the view from my shoes at

> www.wickedbusymomto3.wordpress.com

>

> ---------------------------------

> Looking for last minute shopping deals? Find them fast with Yahoo! Search.

>

>

[Guest guest]

Geez Jayne, I sure hope starts to feel better before Saturday. I will look

forward to getting his address. I think this will be a learning experience for

Zeb too.

Charlyne

Mom to Zeb 15 DS/OCD/ASD?

Jayne Hickey wrote:

Happy New Year everyone! My husband and I have caught the cold that started

with , moved through our two older kids and has now come to rest with us!

It's hit my husband a lot harder than me - we're hoping for a quick recovery as

he leaves Saturday.

Thank you to those of you that have sent well wishes in regards to 's

deployment. I have shared with him your emails and told him what a great group

of friends I have here! I know he is touched by your kindness - you guys are

great!

As soon as he receives his address, I will forward it to those of you that

would like it. I know he will appreciate the mail. (His wife is not the best

at keeping in touch via the post office! I'm hoping to be much better this time

around!)

I'm so lucky to have such a great group of friends, I love our little

neighborhood on the www!

Take care,

Jayne

check out the view from my shoes at

www.wickedbusymomto3.wordpress.com

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Sara Cohen wrote:

>

> I am so glad that he was able to be home for the holidays - that was

> always

> the worst time for us when my dh deployed. So sorry he leaves for the "

> activities " in that part of the world. Will be thinking of all of you.

>

> On Jan 1, 2008 6:44 PM, Jayne Hickey <jacksonsmom99@...

> <mailto:jacksonsmom99%40yahoo.com>> wrote:

>

> > Happy New Year everyone! My husband and I have caught the cold that

> > started with , moved through our two older kids and has now

> come to

> > rest with us! It's hit my husband a lot harder than me - we're

> hoping for a

> > quick recovery as he leaves Saturday.

> >

> > Thank you to those of you that have sent well wishes in regards to

> 's

> > deployment. I have shared with him your emails and told him what a great

> > group of friends I have here! I know he is touched by your kindness

> - you

> > guys are great!

> >

> > As soon as he receives his address, I will forward it to those of

> you that

> > would like it. I know he will appreciate the mail. (His wife is not

> the best

> > at keeping in touch via the post office! I'm hoping to be much

> better this

> > time around!)

> >

> > I'm so lucky to have such a great group of friends, I love our little

> > neighborhood on the www!

> >

> > Take care,

> > Jayne

> >

> > check out the view from my shoes at

> > www.wickedbusymomto3.wordpress.com

> >

> > ---------------------------------

> > Looking for last minute shopping deals? Find them fast with Yahoo!

> Search.

> >

> >

[Guest guest]

Hi ,

My husband is in the Air Force, 20 years of fun and excitement! Hurlburt

Field - AF as well! My husband is stationed at Hanscom AFB, MA but we live in

Maine. We moved here 15 months ago as this is home for us and we're at the end

of our AF career. We wanted the kids to get some roots here before they grow

up! LOL!

will be gone for six months this time. This is his 4th time to Iraq and

probably his 12th deployment! We did the 10 month tour when the war started

back in 2003, we were stationed at Ellsworth AFB in South Dakota and he was

still flying the B-1B then. My husband is deploying with an Army unit out of

Ft. Bragg, NC this time. He will be staying at Camp Victory in Baghdad this

time.

Where is your husband going? What does he do in the AF? Is this his first

deployment? Feel free to write me off list if you feel more comfortable,

jacksonsmom99@...

I know you are feeling many of the same feelings I am. Let us all know about

your husband so we can keep you and your family in our thoughts and prayers as

well.

Glad you wrote!

Jayne

wrote:

*Sara *- Just cathcing up on emails and saw that your husband has

deployed. May I ask how long he will be gone and what Branch he

serves? My husband will be leaving next month for 10 months to Iraq, we

live in Ft. Walton Beach, FL and he works on Hurlburt Field.

check out the view from my shoes at

www.wickedbusymomto3.wordpress.com

---------------------------------

Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.

[Guest guest]

Brings back memories! Bob was deployed 70 % of 6 years when my kids ranged

in age from 6-6 wks until they were 12- 6yrs. Then he got out and we all -

together went to Israel for 7 years. When we returned, Bob decided that he

would enter the reserve to finish his last 5 or so years to get his 20.

Ended up doing 21 plus some months and days. AF for 4 years before we

married and then Navy for the rest.

Fortunately for us he was in for Vietneam but was stationed in OKINAWA and

for the Persian Gulf " thing " he ended up in Va Beach!!!

But we also were in Israel for the War in LEbenon in '82 and Bob did the

reserves for Israel as well.

> Hi ,

> My husband is in the Air Force, 20 years of fun and excitement! Hurlburt

> Field - AF as well! My husband is stationed at Hanscom AFB, MA but we live

> in Maine. We moved here 15 months ago as this is home for us and we're at

> the end of our AF career. We wanted the kids to get some roots here before

> they grow up! LOL!

>

> will be gone for six months this time. This is his 4th time to Iraq

> and probably his 12th deployment! We did the 10 month tour when the war

> started back in 2003, we were stationed at Ellsworth AFB in South Dakota and

> he was still flying the B-1B then. My husband is deploying with an Army unit

> out of Ft. Bragg, NC this time. He will be staying at Camp Victory in

> Baghdad this time.

>

> Where is your husband going? What does he do in the AF? Is this his first

> deployment? Feel free to write me off list if you feel more comfortable,

> jacksonsmom99@... <jacksonsmom99%40yahoo.com>

>

> I know you are feeling many of the same feelings I am. Let us all know

> about your husband so we can keep you and your family in our thoughts and

> prayers as well.

>

> Glad you wrote!

>

> Jayne

>

>

>

>

> <christine1223@... <christine1223%40cox.net>> wrote:

>

> *Sara *- Just cathcing up on emails and saw that your husband has

> deployed. May I ask how long he will be gone and what Branch he

> serves? My husband will be leaving next month for 10 months to Iraq, we

> live in Ft. Walton Beach, FL and he works on Hurlburt Field.

>

>

>

> check out the view from my shoes at

> www.wickedbusymomto3.wordpress.com

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it

> now.

>

>

[Guest guest]

Jayne, What a bummer for you all to get sick. Thinking of you all and

’s leaving again. Does he have to fly the airplane or ride in one?

Wish you all the best and hope you get some help with .

Louise

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.5.516 / Virus Database: 269.17.13/1207 - Release Date: 1/2/2008

11:29 AM

[Guest guest]

<<Anyone ever have their child tested for H. pylori?>>

Hi, Everyone.....Jayne....Gareth is tested whenever he has an

endoscopy.....every 1-2 yrs. It has been positive twice. I didn't notice any

particular

symptoms that would jump out and say " Hey, Gareth has an ulcer. " Antibiotics

clear it up. Sorry.....not much help here.

Take care, Everyone.

Margaret

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Hey,

My a (10) also has hips problems. I noticed it when she was

sitting on my lap, i could actually feel her bones moving around. I

called the Dr. and needless to say, she got her in to see a

orthopedic. They took xrays and they watch her closely. She is

suppose to wear a Rhino Hip brace, but she knows how to take it off

and will not wear it. She has learned to readjust her hips though. If

she gets up to fast, she will walk with her butt stuck out for a

little while then she will stand up straight and somehow, readjust

herself. They explained to me that her hip sockets were loose, and

they slipped in and out of socket. No cure!!!!

Stella (a's mom 10)

>

> Ben is 23 YO, 5'2 " , but more importantly, how WIDE is he?!? Ben's

> hip came apart when he was 11 YO. He just fell to the floor one

> day. We didn't see it happen, so we assumed he tripped over his

> brother's shoe that was lying nearby. He was crying uncontrollably

> and holding his knee.

>

> (SIDENOTE: Ben never cries. He is VERY in tune to the emotions of

> others, but he is always singing and laughing and happy, until I

say

> it's time to go to work. That's not much different from anyone

> else. I have watched Ben's eardrum rupture and blood run down the

> side of his face with ABSOLUTELY no prior indication of pain. I

> frequently take him to the Doc if the rest of the family is sick,

> because he won't indicate pain. ANYWAY...that's why the crying was

> so unusual at the time.)

>

> I called urgent care and the emergency room and talked to MD's (his

> regular Doc was out of town) and told them who we were dealing with

> and the whole situation and, because it was a Friday night and I

told

> them about the brother's shoe being nearby and Ben being DS and

all,

> well, they decided he had tripped and told us to immobilize him as

> much as possible and put ice on his knee, HE MOST CERTAINLY HAD

> SPRAINED HIS KNEE!!! I called many times over the weekend to

> describe his agony. We had insurance, so that was not the issue,

but

> NO ONE would allow us to bring him in. We kept him on the couch

all

> weekend, and actually made him hobble to the bathroom when he

> couldn't hold it anymore...ANYWAY...this is one of my worst

memories

> ever... FYI - hip pain manifests in the knee. I DID NOT KNOW

THAT -

> and apparently neither did the doctors-on-call.

>

> On Monday morning, when the local clinic opened, and 'Dr.Dave' was

> back in town, we actually drove to the clinic, got a wheelchair,

> brought it in our house, took him out the patio door across the

lawn

> (we lived in a split level and needed a flat surface), and walked

him

> a mile to the clinic, and GUESS WHAT??? his hip had come apart on

> Friday due to some other genetic mutuation/displasia that had

NOTHING

> to do with DS or Autism - and the clinic called an ambulance, but

by

> then, the blood supply was lost to the hip, so the hip is fused anf

> surgically pinned, and I have never felt like a worse parent in my

> life. I don't have any faith in the medical profession for what

I've

> been through with Ben, and they don't like dealing with me much

> either these days.

>

> How tall is Ben? 5'2 " on his right side - 4'8 " on his left...and

his

> custom, Velcro tennis shoes cost $300 a pair, and MA only pays if

you

> need a lift of 1 inch or less, and only once a year, so the bigger

> the disablity, the smaller the compensation.

>

> That's why Ben is so WIDE. He can't do much of anything physical

> since then. He likes to swim. Plus, the hip is full of

arthritis.

> I have lots of guilt, and he doesn't complain about anything.

>

> Next TOPIC: How much fun is it to be the mother of an adult male

> that you can't let go into a public restroom or locker room alone...

> Actually - I really don't give a hoot about the looks I get anymore.

>

[Guest guest]

is 5'1 " at nearly 16. His dad is 6'3 " though. I'm only 5'5 " & so is my

daughter, so he probably won't get too much taller.

, KCMO

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

Elie is 4'8 " , but his birth parents were both only around 5'. Fortunately

we aren't very tall either. My giant son is 5'8 " .

> Zeb is 5' 1 " and is 15. I doubt he will get much taller but never know.

> He had a growth spurt this past year. My oldest son is only 5'4 " and wears a

> man's size 7 shoe. He was always my little man and my daughter is 5'8 " with

> a size 11 shoe. My son always introduced her as his big little sister. It's

> been a joke in this family for years, LOL.

> Charlyne

>

> gldcst <gldcst@... <gldcst%40comcast.net>> wrote: <<Those of you

> with adults with Ds, how tall are they? Random poll!>>

>

> 's only 4'6 " herself!! at 19!

> Sherry

>

>