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Hi ,

There are new mixes in the shots for the hyper-sensitive individuals. If

your responses were related solely to the shots, there are new ways to deal.

Ruth

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My allergologist explained to me I should not get any allergy shots, any flu

shots and thinks like that because of a risk that myimmune system won't

tolerate that (I have low CMI and reacted a lot to the allergy testing -

scratches)

Stania

-----Pùvodní zpráva-----

Od: G. McFadden <nmcfadden@...>

Komu: egroups <egroups>

Datum: 17. èervna 2000 17:57

Pøedmìt: allergy shots

> From: Carole Sierpien <sierpien@...>

>Subject: Re: Allergy shots for hay-fever

>

>===

>when i tried allergy shots about 6-7 years ago, it pushed me into

>such pain and fatigue it felt like the onset of cfids each time.

>i could hardly climb the stairs in my home, i was crawling.

>

>i am not sure if this is from the preservatives in most shots

>or the substances themselves, but it was hell on earth.

>

>nancym

>

>

>

>

>------------------------------------------------------------------------

>Air purifiers, bedding, household cleaning & more! gazoontite.com!

>1/5492/4/_/531724/_/961257280/

>------------------------------------------------------------------------

>

>This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

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  • 7 months later...

> Along with my CFS, I have developed allergies and

> sensitivities to food and supplements. I was wondering

> if anyone has gone through treatment with allergy

> shots and if it has helped. I am thinking about seeing

> an Allergist since my symptoms get worse when I have a

> reaction.

>

>

Hi . This question came up not too long ago. I started

getting worse and worse allergy symptoms and then started shots

about 2 years before I 'got' CFS. Or maybe the allergy sx were the

beginning of my CFS????

IMHO, the allergy symptoms are the result of being TH2 (or TH1,

I can't keep up w/ all the info on this list). Treatment for

allergies through shots is targeted at the offending allergen like

ragweed, cedar elm, etc. Therefore, you would get no benefit from

shots and you MAY get worse. Unless of course you know you are

allergic to certain things like cats or some specific pollen on

a seasonal basis. BUT, the shots COULD mess up your TH1/TH2

balance even more, IMHO. I'm getting over my head but the main

thing is that I believe the allergies are secondary to the immune

dysfunction of CFS, hence the acronym CFIDS.

Mike

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,

I'm allergic to pretty much everything - what some docs refer to as a

universal reactor. I have taken allergy injections daily for about four

years now and would not have survived were it not for the injections. I

wouldn't exactly say my allergies are better, just controlled more, which

allows me to eat without having such severe reactions. I've gained back a

few of the much needed weight I lost. However, I go to an Environmental doc.

Traditional docs usually use a preservative of some type, which might in and

of itself cause a reaction. My extracts contain no preservative and I give

myself my shots every night.

Donna in NC

Allergy Shots

> Along with my CFS, I have developed allergies and

> sensitivities to food and supplements. I was wondering

> if anyone has gone through treatment with allergy

> shots and if it has helped. I am thinking about seeing

> an Allergist since my symptoms get worse when I have a

> reaction.

>

>

>

>

> __________________________________________________

>

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I have been getting alergy shots for three years. I'm not sure how much

it helps. I get them now every two weeks;used to be every week. I figure

they help redcue the load on my immune system

Phil

KM wrote:

> Along with my CFS, I have developed allergies and

> sensitivities to food and supplements. I was wondering

> if anyone has gone through treatment with allergy

> shots and if it has helped. I am thinking about seeing

> an Allergist since my symptoms get worse when I have a

> reaction.

>

>

>

>

> __________________________________________________

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asked :

I was wondering if anyone has gone through treatment

with allergy shots and if it has helped.

Annette's reply :

I tried EPD over a decade ago and found it was

wonderful for hayfever/asthma and to an extent food allergies.

____________________________________________________________

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  • 8 months later...

Dianna

We had the same thing happen to us on allergy shots.

What we were told is that if the values of the shots

change (especially in kids because they are growing)

then instead of helping you are actually aggravating

the situation. We took a break for that reason alone,

it was changing alot after they got sick and when we

started back up again they were worst on the shots

than better.

--- dgeist@... wrote:

> Dear Listmates,

>

> Has anyone had a bad reaction to allery shots? My

> son has been

> getting weekly shots since April. Last week he had

> a sinus infection

> and missed his shot. He has been doing good even

> thru being sick,

> and then we had a shot Friday, and two hours later,

> he was emotional

> and hyper. Even his speech therapist made a comment

> that night. He

> continued to be very emotional, twisting his hair,

> and commented not

> feeling right. Do you think it was the allergy

> shot? We didn't

> change any thing else. So far, the shots have not

> improved his nose

> problems, it's been 6 months worth. The Doc says it

> may take a year

> to help. Is this normal to take that long to see

> improvements. Wer'e

> wanting to give up on shots. Please reply.

>

> Dianna

>

>

__________________________________________________

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>Has anyone had a bad reaction to allery shots? My son has been

>getting weekly shots since April. Last week he had a sinus infection

>and missed his shot. He has been doing good even thru being sick,

>and then we had a shot Friday, and two hours later, he was emotional

>and hyper. Even his speech therapist made a comment that night. He

>continued to be very emotional, twisting his hair, and commented not

>feeling right. Do you think it was the allergy shot? We didn't

>change any thing else. So far, the shots have not improved his nose

>problems, it's been 6 months worth. The Doc says it may take a year

>to help. Is this normal to take that long to see improvements. Wer'e

>wanting to give up on shots. Please reply.

>

>Dianna

In this post, Andy refers to thimerosal (mercury) in allergy shots:

/message/2352

Check labels for thimerosal to verify.

Moria

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-

Ana,

What do you mean by the value of the shots? I'm sorry to be so

clueless. He is within 1-2 shots of what they consider full dose.

He started having swelling in shot area after the shot. Two times ago

I had them remove phenol, which I did'nt know was in there. Then we

missed a week. I assume they went back to the dose that was given

two weeks ago. How old is your child and how long did you receive

shots?

Dianna

-- In @y..., ana brushingham <Brushingham@Y...> wrote:

> Dianna

>

> We had the same thing happen to us on allergy shots.

> What we were told is that if the values of the shots

> change (especially in kids because they are growing)

> then instead of helping you are actually aggravating

> the situation. We took a break for that reason alone,

> it was changing alot after they got sick and when we

> started back up again they were worst on the shots

> than better.

> --- dgeist@s... wrote:

> > Dear Listmates,

> >

> > Has anyone had a bad reaction to allery shots? My

> > son has been

> > getting weekly shots since April. Last week he had

> > a sinus infection

> > and missed his shot. He has been doing good even

> > thru being sick,

> > and then we had a shot Friday, and two hours later,

> > he was emotional

> > and hyper. Even his speech therapist made a comment

> > that night. He

> > continued to be very emotional, twisting his hair,

> > and commented not

> > feeling right. Do you think it was the allergy

> > shot? We didn't

> > change any thing else. So far, the shots have not

> > improved his nose

> > problems, it's been 6 months worth. The Doc says it

> > may take a year

> > to help. Is this normal to take that long to see

> > improvements. Wer'e

> > wanting to give up on shots. Please reply.

> >

> > Dianna

> >

> >

>

>

> __________________________________________________

>

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Moria,

Our allergist is our Dan Doctor who is treating my son for

mercury detox. I would hope he wouldn't turn around and give

him allergy shots with mercury in them. Thanks for your reply!

Dianna

> >Has anyone had a bad reaction to allery shots? My son has been

> >getting weekly shots since April. Last week he had a sinus

infection

> >and missed his shot. He has been doing good even thru being sick,

> >and then we had a shot Friday, and two hours later, he was

emotional

> >and hyper. Even his speech therapist made a comment that night.

He

> >continued to be very emotional, twisting his hair, and commented

not

> >feeling right. Do you think it was the allergy shot? We didn't

> >change any thing else. So far, the shots have not improved his

nose

> >problems, it's been 6 months worth. The Doc says it may take a

year

> >to help. Is this normal to take that long to see improvements.

Wer'e

> >wanting to give up on shots. Please reply.

> >

> >Dianna

>

> In this post, Andy refers to thimerosal (mercury) in allergy shots:

> /message/2352

> Check labels for thimerosal to verify.

>

> Moria

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Dianna

You are not clueless. I think we may just be doing

different kinds of shots. We do provacation

neutralization. They inject you with lets say corn,

then you react and then they find a neutrilzing dose

at which you no longer react to corn. That

neutralizing dose has a value assigned to it. If that

changes over time for whatever reason the shots are

not working. You are actually might it worst.

--- dgeist@... wrote:

> -

>

> Ana,

>

> What do you mean by the value of the shots? I'm

> sorry to be so

> clueless. He is within 1-2 shots of what they

> consider full dose.

> He started having swelling in shot area after the

> shot. Two times ago

> I had them remove phenol, which I did'nt know was in

> there. Then we

> missed a week. I assume they went back to the dose

> that was given

> two weeks ago. How old is your child and how long

> did you receive

> shots?

>

> Dianna

>

> -- In @y..., ana brushingham

> <Brushingham@Y...> wrote:

> > Dianna

> >

> > We had the same thing happen to us on allergy

> shots.

> > What we were told is that if the values of the

> shots

> > change (especially in kids because they are

> growing)

> > then instead of helping you are actually

> aggravating

> > the situation. We took a break for that reason

> alone,

> > it was changing alot after they got sick and when

> we

> > started back up again they were worst on the shots

> > than better.

> > --- dgeist@s... wrote:

> > > Dear Listmates,

> > >

> > > Has anyone had a bad reaction to allery shots?

> My

> > > son has been

> > > getting weekly shots since April. Last week he

> had

> > > a sinus infection

> > > and missed his shot. He has been doing good

> even

> > > thru being sick,

> > > and then we had a shot Friday, and two hours

> later,

> > > he was emotional

> > > and hyper. Even his speech therapist made a

> comment

> > > that night. He

> > > continued to be very emotional, twisting his

> hair,

> > > and commented not

> > > feeling right. Do you think it was the allergy

> > > shot? We didn't

> > > change any thing else. So far, the shots have

> not

> > > improved his nose

> > > problems, it's been 6 months worth. The Doc

> says it

> > > may take a year

> > > to help. Is this normal to take that long to

> see

> > > improvements. Wer'e

> > > wanting to give up on shots. Please reply.

> > >

> > > Dianna

> > >

> > >

> >

> >

> > __________________________________________________

> >

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| Has anyone had a bad reaction to allery shots? My son has been

| getting weekly shots since April. Last week he had a sinus infection

| and missed his shot. He has been doing good even thru being sick,

| and then we had a shot Friday, and two hours later, he was emotional

| and hyper. Even his speech therapist made a comment that night. He

| continued to be very emotional, twisting his hair, and commented not

| feeling right. Do you think it was the allergy shot? We didn't

| change any thing else. So far, the shots have not improved his nose

| problems, it's been 6 months worth. The Doc says it may take a year

| to help. Is this normal to take that long to see improvements. Wer'e

| wanting to give up on shots. Please reply.

Dianna,

Yes the shots could cause this reaction - both due to shot additives (phenol and

glycerine) and due to the allergens

themselves. It took quite a while for our allergist to trust my comments on

behavioral reactions and rely on them to

back off on the shot dose. He was used to basing his actions on skin reactions,

which for some reason my daughter

doesn't often have. And yes, it took quite a while for the shots to help -

probably around a year. But they obviously

help her. She had trouble at cottonwood time, then added cottonwood in and

didn't have trouble the next season. If

your son is still getting food allergens, then his allergic load is larger and

this might make it harder to see

improvements.

K.

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Do the allergy shots have phenols as preservative in them? that could be a

problem for your child

Re: [ ] allergy shots

| Has anyone had a bad reaction to allery shots? My son has been

| getting weekly shots since April. Last week he had a sinus infection

| and missed his shot. He has been doing good even thru being sick,

| and then we had a shot Friday, and two hours later, he was emotional

| and hyper. Even his speech therapist made a comment that night. He

| continued to be very emotional, twisting his hair, and commented not

| feeling right. Do you think it was the allergy shot? We didn't

| change any thing else. So far, the shots have not improved his nose

| problems, it's been 6 months worth. The Doc says it may take a year

| to help. Is this normal to take that long to see improvements. Wer'e

| wanting to give up on shots. Please reply.

Dianna,

Yes the shots could cause this reaction - both due to shot additives (phenol

and glycerine) and due to the allergens

themselves. It took quite a while for our allergist to trust my comments on

behavioral reactions and rely on them to

back off on the shot dose. He was used to basing his actions on skin

reactions, which for some reason my daughter

doesn't often have. And yes, it took quite a while for the shots to help -

probably around a year. But they obviously

help her. She had trouble at cottonwood time, then added cottonwood in and

didn't have trouble the next season. If

your son is still getting food allergens, then his allergic load is larger and

this might make it harder to see

improvements.

K.

=======================================================

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Have you tried NAET. It's a kinder, gentler approach to allergy elimination.

S

On Thu, 08 November 2001, " deric spear " wrote:

>

> <html><body>

> <tt>

> Do the allergy shots have phenols as preservative in them? that could be a

problem for your child<BR>

> & nbsp; Re: [ ] allergy shots<BR>

> <BR>

> <BR>

> & nbsp; | Has anyone had a bad reaction to allery shots? & nbsp; My son has

been<BR>

> & nbsp; | getting weekly shots since April. & nbsp; Last week he had a sinus

infection<BR>

> & nbsp; | and missed his shot. & nbsp; He has been doing good even thru being

sick,<BR>

> & nbsp; | and then we had a shot Friday, and two hours later, he was

emotional<BR>

> & nbsp; | and hyper. & nbsp; Even his speech therapist made a comment that

night. & nbsp; He<BR>

> & nbsp; | continued to be very emotional, twisting his hair, and commented

not<BR>

> & nbsp; | feeling right. & nbsp; Do you think it was the allergy shot? & nbsp; We

didn't<BR>

> & nbsp; | change any thing else. & nbsp; So far, the shots have not improved his

nose<BR>

> & nbsp; | problems, it's been 6 months worth. & nbsp; The Doc says it may take a

year<BR>

> & nbsp; | to help. & nbsp; Is this normal to take that long to see

improvements. & nbsp; Wer'e<BR>

> & nbsp; | wanting to give up on shots. & nbsp; Please reply.<BR>

> <BR>

> & nbsp; Dianna,<BR>

> <BR>

> & nbsp; Yes the shots could cause this reaction - both due to shot additives

(phenol and glycerine) and due to the allergens<BR>

> & nbsp; themselves. & nbsp; It took quite a while for our allergist to trust my

comments on behavioral reactions and rely on them to<BR>

> & nbsp; back off on the shot dose. & nbsp; He was used to basing his actions on

skin reactions, which for some reason my daughter<BR>

> & nbsp; doesn't often have. & nbsp; And yes, it took quite a while for the shots

to help - probably around a year. & nbsp; But they obviously<BR>

> & nbsp; help her. & nbsp; She had trouble at cottonwood time, then added

cottonwood in and didn't have trouble the next season. & nbsp; If<BR>

> & nbsp; your son is still getting food allergens, then his allergic load is

larger and this might make it harder to see<BR>

> & nbsp; improvements.<BR>

> <BR>

> & nbsp; K.<BR>

> <BR>

> <BR>

> & nbsp; =======================================================<BR>

> & nbsp;

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  • 11 months later...

Stop the allergy shots... Your not suppose to be on Enbrel and Allergy shots

at the same time.. Thats dangerous.. I cant believe your doctor let you

take both of those together.. They should be fired.

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Message: 4

Date: Mon, 07 Oct 2002 18:44:54 -0400

From: Amy742@...

Subject: Allergy shots

Hi All,

I've been wondering how effective it is to receive allergy shots when you

are on immunosuppressive drug therapy. It would seem to reason that if the

allergy shots work by exposing you to small amounts of allergens to build up

your immunity, that suppressing the immune system to treat PA might diminish

this effect.

I have been on allergy shots for three or four years and had been receiving

some relief. A few months ago I began having severe injection site

reactions prompting my doctor to decrease my dose. Since I was on a

maintenance dose, the only difference has been that I am now taking Enbrel.

I need to check this out with my allergist and rhuemy, but I thought I would

also see if any of you have had similar experiences.

Thanks,

Amy in Texas

<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<

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  • 6 months later...
Guest guest

I have done allergy shots for about 12 years with NO help. The allergist just could not figure it out and would blame me for not getting the shots 2-3 times a week.

I then went to Scripps to be desen and Dr. son suggested I get retested for allergy shots...........well long story short, the allergist could not believe I had NO reaction and no reason for allergy shots, so much so he WOULD NOT give me allergy shots. The desen to aspirin actually changed my Samters in such a way that my "allergies" were basically gone.

Hope this helps some that are thinking about doing desen and even having to go thru those terrible shots again!

Dawn

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Guest guest

I guess I have been wondering, too. So far I have not been able to find anything that gives me any relief from the symptoms. I have tried all of the drugs, diets, vitamins/supplements, etc. Since I am now desensitized to aspirin (which hasn't helped my symptoms yet) I may try adding some of these other things that haven't worked in the past to see if I can get some relief. My theory is that I am sensitive/allergic to so many different things that I need to treat several areas at once. (or my body is so out of whack that nothing will help;-).

I'll keep you posted.

BTW I increased my aspirin dose to 3 tablets 2 times a day (1950mg) and have not noticed any improvement. I also tried taking 2 Singulair a day with the same results. One (bad) thing that I have noticed is that my asthma seems to be getting worse. I have had it in check for the last 2-3 years (no hospital/emergency room visits since 1999) but my polyps have been out of control. Don't know if it is the spring pollen here in PA or something else.

Rob

Allergy ShotsHi all,Just wondering if anyone has had any relief by taking allergy shots? Itried them once about 10-12 years ago but could not get past taking 25% ofmy "target" dose without having a severe reaction. I was thinking aboutgiving the shots another try.Thanks!Rob

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Guest guest

I take shots for dust mites.

I've never had any problem with the shots themselves.

They have not helped the classic Samters symptoms; but they have eliminated

the sneezing fits I used to have, eg., sneezing 20 times in rapid

succession.

Now, however you've go me wondering. I'm going to check my records to see

when I started the stots vs when I had my first ASA reaction.

Hmmmm . . .

regards,

Ken West

From: " Rob Cumberledge " <rob@...>

Organization: The Computer Cafe

Reply-samters

Date: Wed, 9 Apr 2003 07:46:11 -0400

<samters >

Subject: Allergy Shots

Hi all,

Just wondering if anyone has had any relief by taking allergy shots? I

tried them once about 10-12 years ago but could not get past taking 25% of

my " target " dose without having a severe reaction. I was thinking about

giving the shots another try.

Thanks!

Rob

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Guest guest

Rob,

My polyps went way out of control when I was working around silver, fixer and developer for xrays. So bad that I was sick every single day with motion sickness because my upper sinuses wouldn't drain. Are you working around something different since the polyps have gone out of control?

Tami

Allergy ShotsHi all,Just wondering if anyone has had any relief by taking allergy shots? Itried them once about 10-12 years ago but could not get past taking 25% ofmy "target" dose without having a severe reaction. I was thinking aboutgiving the shots another try.Thanks!Rob

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  • 3 months later...
Guest guest

Hi Rob,

I wish I could give you a definitive answer, but like a lot of things regarding Samters, it's more of a maybe. After my first (of two) sinus surgery in 1997, my ENT suggested that I take allergy shots. I started then and have continued. I do have allergies - various weeds and trees. Since taking the shots (I've been on an every-other-week maintenance for a couple of years), I have had much fewer allergic symptoms like hayfever. I rarely have a sneezing fit or itchy eyes or constantly dripping nose like I used to. The logic is that this lack of irritation to my mucus membranes should lead to less polyp growth and better breathing. I think it does - somewhat. Of course I've had allergies/hayfever all my life. Now, I can hardly tell when the ragweed is blooming. Of course it also helps that I now live in a semi-arid environment (but then, I found out I'm allergic to tumbleweed!).

However, I still have about 5 or 6 infections a year which leads to congestion, asthma and general malaise. I still have sinus headaches and lose my smell and taste. That tells me (as we all know) that there is another mechanism that is causing the polyps to grow in addition to pollen and mold. Like some of the other stuff I take, I'm afraid to give up allergy shots because they "might be helping". Since I do have allergies, I think it is logical to keep taking the shots to eliminate some of the causes of irritation to my sinuses. I have also found my allergist to be much more knowledgeable about Samters and willing to try new treatments. I really consider him to be my "primary physician" these days.

So, to sum it up, if you test positive for common allergies, I would recommend trying shots. For me, the shots have reduced congestion and nose running -blowing, especially in the autumn. I still take Zyrtec antihistamine, so I really can't tell how much of the reduction in symptoms is due to the shots or due to the drugs, but I feel much better than I did before the shots.

Good luck!

Jim

Allergy Shots

Hi,

Has anyone ever had any success with allergy shots relieving any of the Samter's side affects. I am contemplating going to an allergist again (it's been over 10 years) but I haven't really seen where anyone has said that the shots have helped them.

Thanks for your input!

Rob

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Guest guest

That pretty much sums up my situation too. I give myself a shot every week, am not sure that it helps, but something I have been doing has helped, and I am not willing to experiment by dropping this or that. My doc suggested that the shots would help slow the growth of those damn polyps and allow me to go longer before needing another sinus surgery.

Karl W.

Re: Allergy Shots

Like some of the other stuff I take, I'm afraid to give up allergy shots because they "might be helping".

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Guest guest

Agreed. I've espoused desensitization, but I

THINK

that the dust-mites shots that I started taking 5 years earlier,

MAY BE,

SL:IGHTLY,

helping,

and, if I miss one, I

THINK

that things

KIND OF

get worse.

Samters, allergies, intolerance -- this stuff is like try to catch a bunch

of jellyfish with rubber bands.

regards,

Ken West

From: " Karl L. Wuensch " <WuenschK@...>

Reply-samters

Date: Thu, 7 Aug 2003 17:31:58 -0400

<samters >

Subject: Re: Allergy Shots

That pretty much sums up my situation too. I give myself a shot every week,

am not sure that it helps, but something I have been doing has helped, and I

am not willing to experiment by dropping this or that. My doc suggested

that the shots would help slow the growth of those damn polyps and allow me

to go longer before needing another sinus surgery.

Karl W.

Re: Allergy Shots

Like some of the other stuff I take, I'm afraid to give up allergy shots

because they " might be helping " .

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  • 5 weeks later...

My son, , takes Zyrtec daily when his allergies

flare up. It works real well. He also uses the Nasonex

spray. He is allergic to dogs,cats, mold, pollen, and lots

of things. He is 6 and I do notice a difference when he

takes this. He has never done allergy shots.

Marcy :)

MsBYGthoughts@... wrote:

>I just got my results back from my allergy test today.

> It says I'm allergic

>to lots of stuff. Dust mites, grass, pollen, cats and

>dogs, trees, and a few

>others. I've tried a lot of allergy meds and I didn't

>notice a difference w/

>or w/o these meds. My mom is a health nut and DOES NOT

>take meds at all, it

>all has to be natural herbs. When I told her the doctor

>wants to put me on

>allergy shots, she flipped! She thinks allergies come

>from low imunity and that I

>need to cleanse my blood stream. She thinks it's a huge

>mistake to put meds

>on top of an imune system that's already so low. In her

>opinion the solution

>is to clean my blood stream and get more fruits and

>veggies in me to help

>boost my imunity. How many of you have allergies? Does

>this make sense to you

>guys?

>

>Sincerely,

>

>s, the Unique Princess.

>

>

>

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what is so wrong with meds? i get no side effects from my allergy meds. or any

of my meds for that matter. my opinion is if side effects dont bother you, whats

wrong with taking meds?

Allergy Shots

I just got my results back from my allergy test today. It says I'm allergic

to lots of stuff. Dust mites, grass, pollen, cats and dogs, trees, and a few

others. I've tried a lot of allergy meds and I didn't notice a difference w/

or w/o these meds. My mom is a health nut and DOES NOT take meds at all, it

all has to be natural herbs. When I told her the doctor wants to put me on

allergy shots, she flipped! She thinks allergies come from low imunity and

that I

need to cleanse my blood stream. She thinks it's a huge mistake to put meds

on top of an imune system that's already so low. In her opinion the solution

is to clean my blood stream and get more fruits and veggies in me to help

boost my imunity. How many of you have allergies? Does this make sense to

you

guys?

Sincerely,

s, the Unique Princess.

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