Re: diagnosis and sutism and ds

[Guest guest]

Jean! Welcome to our group! Your name sounds SO familiar.

Liz-Mom to Tori 7 1/2 yrs!

diagnosis and sutism and ds

Hi,

I am new around here. I have a son who is 15, he was

diagnosed with autism when he was fourteen. Sort of late but maybe

not. I always knew he had something else and said he was on the

spectrum. No one was willing to gove that certain dsas code though.

We finally had a teacher who frustrated me soooo much that I packed

up and brought him to Dr Capone and had the everything

tested for . We were sked and answered thousands of questions.

Seems has Down Syndrome, social anxiety disorder and a form of

PDD. I feel so validated and is now receiving lots more help

and understanding.

I want to make t shirts that have DSAIIC on them. We are doing lots

better and is doing well. What a relief! I no longer feel so

lonely.

Our big struggle is fonding an appropriate high school setting for

our son. We live in Chester Cty, PA and are working with the IU but

want to seek other info.

The problem for is that he is quiet and does not have lots or

any abberant behaviors that some kids with autism have, but for sure

he has everything else that kids with autism have.

He may fall through the cracks due to his quiet nature. We have

become pit bulls for his defense, not lots of info or full support

groups out there for both diagnoses.

Got any ideas? I am looking for ideas or any input.

Sarno

[Guest guest]

Sounds like dejavu all over again!!! I lived in Coatesville from the time

Elie was 15 until he was 21. Coatesville H/S was a nightmare - too much

stim, changing classes, noise. The IU stand alone school was AWFUL - even

though these schools were less then 1/2 mile from my door - I " encouraged "

the S/D to find an alternative. We checked out Beaver Run (part of

Camphill), Melmark, and ended up at ELWYN . A Coatesville bus driver

carried our son to ELWYN every day., The bus driver and aid werre

wonderful. We had I think 5 kids riding that bus.

Elie went there for 6 years until we mved to GA> The OT and SPEECh were

good, the director of the middle and h/s were great, some years the teachers

were very good, sometimes not. My son did have behavior issues but the

school psych helped us write a behavior plan and their behavior managers

were fantastic!!!!!

Write me off line if you want more particulars about that.

> Hi,

>

> I am new around here. I have a son who is 15, he was

> diagnosed with autism when he was fourteen. Sort of late but maybe

> not. I always knew he had something else and said he was on the

> spectrum. No one was willing to gove that certain dsas code though.

>

> We finally had a teacher who frustrated me soooo much that I packed

> up and brought him to Dr Capone and had the everything

> tested for . We were sked and answered thousands of questions.

>

> Seems has Down Syndrome, social anxiety disorder and a form of

> PDD. I feel so validated and is now receiving lots more help

> and understanding.

>

> I want to make t shirts that have DSAIIC on them. We are doing lots

> better and is doing well. What a relief! I no longer feel so

> lonely.

>

> Our big struggle is fonding an appropriate high school setting for

> our son. We live in Chester Cty, PA and are working with the IU but

> want to seek other info.

>

> The problem for is that he is quiet and does not have lots or

> any abberant behaviors that some kids with autism have, but for sure

> he has everything else that kids with autism have.

>

> He may fall through the cracks due to his quiet nature. We have

> become pit bulls for his defense, not lots of info or full support

> groups out there for both diagnoses.

>

> Got any ideas? I am looking for ideas or any input.

>

> Sarno

>

>

>

--

Sara - Life is a journey- we choose the path.

[Guest guest]

Hi

I think we met at the Buddy Walk at West Goshen Park. Does Gaffney ring a

bell??? I have been on this listserve for a while. I am glad things are better

for you. I know how difficult it is to get our kid's needs met. It seems the

district does not want to challenge Freddie in ways that we do. They push the

vocational goals. I realize that they are also important, but................my

son is not just a " vocation " . Anyway, what does the IU say? Where is

going to school. Take care,

diagnosis and sutism and ds

Hi,

I am new around here. I have a son who is 15, he was

diagnosed with autism when he was fourteen. Sort of late but maybe

not. I always knew he had something else and said he was on the

spectrum. No one was willing to gove that certain dsas code though.

We finally had a teacher who frustrated me soooo much that I packed

up and brought him to Dr Capone and had the everything

tested for . We were sked and answered thousands of questions.

Seems has Down Syndrome, social anxiety disorder and a form of

PDD. I feel so validated and is now receiving lots more help

and understanding.

I want to make t shirts that have DSAIIC on them. We are doing lots

better and is doing well. What a relief! I no longer feel so

lonely.

Our big struggle is fonding an appropriate high school setting for

our son. We live in Chester Cty, PA and are working with the IU but

want to seek other info.

The problem for is that he is quiet and does not have lots or

any abberant behaviors that some kids with autism have, but for sure

he has everything else that kids with autism have.

He may fall through the cracks due to his quiet nature. We have

become pit bulls for his defense, not lots of info or full support

groups out there for both diagnoses.

Got any ideas? I am looking for ideas or any input.

Sarno

[Guest guest]

Welcome to this listserv. I know you will find support, information and even

a few laughs here! My son was just diagnosed this summer at age 12 with ASD (as

well as ADHD). We knew he had DS soon after birth, so don't feel it is late at

15. Some here on this list didn't find their suspicions supported until their

children were in their adult years! Not an easy diagnosis to get, in some

places. Yeah, for you taking the challenge to get the diagnosis needed.

My son, DJ, is not the quiet one, but he is very cute, personable and

sweet---and content to " do his own thing " and not demand attention. This got us

nowhere for the three years in elementary. I finally pushed for a different

placement, after visiting several settings. DJ is finally getting some of the

attention he needs. will continue to need you to speak for him, so I

support you in not letting him " fall through the cracks. " I know others may

know what is available where you are at, though I am in CA.

You will find support here. I agree with you that I no longer felt alone when

I found this group.

Hugs,

Donnell (mom to DJ, age 12, DS/ASD)