Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Oh yes- we also saw for better ... as Elie was standing next to my chair going " I love you a bushel and a peck...... As to shower - Elie only showers when at camp or at his friend Mike's house. At home, he must take a bath. And I put bubbles in the bath as he will not soap up and I am not soaping a young man - assuming he would even let me. I shampoo his hair as well as he won't. And he must be rinsed with a pitcher even though we have a hand held shower!! I find the soapy water made from the cheap bubble bath at the Dollar Tree works fine. He usually sepends 15-20 minutes floating, tummy lying in the tub. He never smells or gets skin rashes, so I guess we are OK. And he hasn't even had the hydranitis suppraative (pimples on lower abd. and thighs) for at least a year. > Hi, Everyone.....Sara....I thought of you this morning while *helping* > Gareth with his shower. I have to wash his hair due to sensory issues and > still > have to soap up the wash clothe for him. If I left the whole process to > him, > there would be very little or no soap involved!!! He washes his hair with > a > drop of shampoo on one hand, takes that hand over only the top part of his > > head, and then rinses. He will never use liquid soap and rarely touches > the > bar soap. It's really sad.....19 y/o and still needs help. As for drying, > he > takes the towel over his stomach area and under his arms....then he gets > dressed. > > Did anyone see 'For Better or Worse' today in the comics? That is > Gareth.....very day, all day long!!! " Do you love me? " Do you like your > son? " We > all had a good laugh this morning....including Gareth!!! > > Take care, Everyone. > Margaret > > **************Start the year off right. Easy ways to stay in shape. > http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Sara wrote: " And he hasn't even had the hydranitis suppraative (pimples on lower abd. and thighs) for at least a year. " What causes this? I have never heard of a name for it but Colton has this most of the time. Also, does anyone have suggestions for " chewing on ones finger and thumb? " We provide Colton with a chew toy at all times and spend much time redirecting him to " not chew " . He seems to be chewing at night and at school and I'm sure times at home when we can not watch him every minute. I've thought of trying to make something that could fit on his hand and only cover those two digits. I'm not very good with a sewing machine so I am hoping someone from this group has a better suggestion. Thank you, Lori, mom to Colton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2008 Report Share Posted January 14, 2008 For the many years (all thru adolesence that Elie had this HD, the doc would proscribe various ungents, pill, cremes - nothing helped. Finally I treated like my mother had treated acne (and as a nurse I tell you that this is NOT the medically accepted treatment, but it worked). I used " drawing salve " alos known as black salve or icthymol. Then we applied a hot compress, then I opened the hideously enlarged pimple (if this treatment didn't open it) with a laarge bore sterilized needle and applied more heat. This was not for the small ones - only those large enough for Elie to complain about them. Fortunately, this seems to have abated. > Sara wrote: " And he hasn't even had the > hydranitis suppraative (pimples on lower abd. and thighs) for at least a > year. " > > What causes this? I have never heard of a name for it but Colton has > this most of the time. > > Also, does anyone have suggestions for " chewing on ones finger and > thumb? " We provide Colton with a chew toy at all times and spend > much time redirecting him to " not chew " . He seems to be chewing at > night and at school and I'm sure times at home when we can not watch > him every minute. I've thought of trying to make something that > could fit on his hand and only cover those two digits. I'm not very > good with a sewing machine so I am hoping someone from this group has > a better suggestion. > > Thank you, > Lori, mom to Colton > > Quote Link to comment Share on other sites More sharing options...
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