Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 <<It's no biggie, I know; nothing most of you haven't been through, probably many times. But it sucked and I just wanted to share with somebody who would have a clue what it's like.>> Hi, Everyone....Beth....yes, there are so many of us that have been in the same situation. You are right, it is a horrible experience. I forgot how old is....too many kids to remember on this list......but it's so unfortunate that our kids can't enjoy themselves. Years ago, I too, have walked out in sheer frustration when Gareth would be a holy terror or destructive tornado at other's homes. Just some encouragement, but it has gotten better through the years. Take care, Everyone. Margaret **************Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 48) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Thanks, Irma! You know, loves movies and we have portable DVD. I always hesitate to bring it, wanting to join in the party, but your email made me think about that. Why not let him be comfortable and watch it if needed? So I'll try that. We had a Super Bowl party here at our house last night, with lots of kids here, and was fine. No hitting at all. I think it was because he was in his own space and had lots of choices about where to go, when to eat, what to do, etc. So I think next time we go to someone else's house, I'll take the DVD player, his favorite snacks, and a favorite toy, find a quiet room, and let him make some choices. Thanks! And thanks to all who emailed that they " get it, " that helps a bunch. Beth Re: Beth Yes, add this to our once upon a time from our chapter life of having to go through this too. Too many times had to get up and leave or embarrassed or upset that we could not have a life anymore. Once in a blue moon one of those moments will kick in but at least I can step back and figure out how to work around it and still have my son still included on some occasions. It really depends if it is worth it to have him around some type of exposure that to me is challenging enough if I would go through some drama with him or why put him through something he does not have any connection or undergo feeling some type of being overwhelmed. Like if we go to the mall, it has to about him, in & out on whatever we went for and probably throw in a lunch date, eating at the food court. If visiting some friends or family have to have his sensory items or his personal DVD player with his favorite movies of the week. Yesterday we spent some time with my dh's brother for a birthday gathering. We were able to actually enjoy eating at a Chinese restaurant, then headed over to my BIL's house and he knew exactly what to do, he went straight over to the room that his Uncle has set up for him after he followed some of the routines given, like restroom first then watch his movie, given a choice if we wanted to hang out with us or of course to watch his DVD of the day. Giving him choices even if we knew exactly what he was going to choose but it was having him to engage in some form of communication form, giving him that power not us telling him what to do. My husband and I were able to enjoy our time, playing some dominions, visit and watch a cute show (Barn something with a catchy tune) with their about 9 month old granddaughter. Back at the restaurant though had to share this, This time it was their turn while waiting at the restaurant, the baby could not sit still, was up and down then if one of them carried her, she would get mad or throw herself, etc. Of course we all spoke about how we use to go through this for numerous of years. Babies daddy said, call him when we ended up getting set up at the table as he was taking her to the vehicle to watch her favorite DVD. I looked over at and he just gave me a smile, then we were seated, baby and her daddy are back but baby decides she is a little thrown off from her routine, so she is not hungry and begins to throw things or food given to her. I could see how her parents were getting to feel frustrated, so of course we all helped with what we could and we all survived it. But this left me thinking, could this be the age or mentality level was undergoing, stuck in for numerous of years? At at an age range of a 9-10 month old level, hmm. Meaning still developing here. Back at my BIL's house. While was settled, baby roaming around and of course let her be, then I noticed her parents (my niece & her dh) were getting frustrated once again, so of course Great-auntie (me) just told everyone that I had to watch her favorite show with the catchy tune, sure enough once she heard the music, she was smiling, dancing, and then sat down, then her parents seemed relief and everyone had joined in. Then the show was over, it was near her bedtime, so it was my time to go and check on but actually his dad did, to see if he wanted to join us, he said " no " . Then we went back into mingling and then when his movie was over, he was ready to join us. Checkout our January local newsletter. Page 8, this is coming from one of 's brother Rick who had shared this piece on " Meet " . : ) http://www.dsasa.org/newsletters/newsletter_01_08.pdf Irma,19,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 Best of luck - keep us updated. Hope he poops soon! (only here could we wish that for someone and mean it positively!) Take care, Jayne B DeHoff wrote: Finally heard back; we are off for an Xray and appointment. Thanks. Beth beth Hi Beth, I'm sorry that is still suffering. Are you giving him Miralax 2 x day? I would definitely call the doc, he must just be feeling awful. Keep us posted, Jayne B DeHoff wrote: Beth (up late worrying; is still impacted; day 2 of Miralax; will call docs AGAIN tomorrow) check out the view from my shoes at www.wickedbusymomto3.wordpress.com --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 Thanks. The Xray shows a fecal impaction. We will up Miralax, do enemas Sunday if it doesn't clear, and if it's still stuck Monday, or if he gets fever and/or intense pain, he may be admitted. I'm going to be off email most of the weekend, but thanks for your concern, and I'll be sure to update you by Monday. You guys are great. Beth beth Hi Beth, I'm sorry that is still suffering. Are you giving him Miralax 2 x day? I would definitely call the doc, he must just be feeling awful. Keep us posted, Jayne B DeHoff wrote: Beth (up late worrying; is still impacted; day 2 of Miralax; will call docs AGAIN tomorrow) check out the view from my shoes at www.wickedbusymomto3.wordpress.com --------------------------------- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 I will pray for you Beth. I've been there with a, so I know what your going thru. Stella > > Beth (up late worrying; is still impacted; day 2 of Miralax; will call docs AGAIN tomorrow) > > check out the view from my shoes at > www.wickedbusymomto3.wordpress.com > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2008 Report Share Posted February 8, 2008 Beth, I'm sorry you are having such a rough time. It's one thing we havent had to deal with but I'm sure it's miserable. Please let us know how it's going. Hang in there! Jen > > Beth (up late worrying; is still impacted; day 2 of Miralax; will call docs AGAIN tomorrow) > > check out the view from my shoes at > www.wickedbusymomto3.wordpress.com > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2008 Report Share Posted February 9, 2008 is much better now. His impaction cleared last night and today he had many stools. Tonight he was happier than he has been for a few weeks. So I think he's in the clear! Thanks for all your concern, my friends. Beth Re: beth Beth, I'm sorry you are having such a rough time. It's one thing we havent had to deal with but I'm sure it's miserable. Please let us know how it's going. Hang in there! Jen > > Beth (up late worrying; is still impacted; day 2 of Miralax; will call docs AGAIN tomorrow) > > check out the view from my shoes at > www.wickedbusymomto3.wordpress.com > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 So glad to hear this Beth! I BET he feels better. I hope it was all in the toilet and not accidents! Here's to a clear intestinal track! Cheers! Jayne B DeHoff wrote: is much better now. His impaction cleared last night and today he had many stools. Tonight he was happier than he has been for a few weeks. So I think he's in the clear! Thanks for all your concern, my friends. Beth Re: beth Beth, I'm sorry you are having such a rough time. It's one thing we havent had to deal with but I'm sure it's miserable. Please let us know how it's going. Hang in there! Jen > > Beth (up late worrying; is still impacted; day 2 of Miralax; will call docs AGAIN tomorrow) > > check out the view from my shoes at > www.wickedbusymomto3.wordpress.com > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Beth, So glad that is over for you guys!! I bet it seemed like forever. Hope you can relax and enjoy the rest of your weekend. Jen > > > > Beth (up late worrying; is still impacted; day 2 of Miralax; > will call docs AGAIN tomorrow) > > > > check out the view from my shoes at > > www.wickedbusymomto3.wordpress.com > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Yahoo! > Mobile. Try it now. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Glad to hear he is feeling better. Thanks for keeping us posted along the way. Even though we have not faced this, I learned a lot " watching " you and go through this. _____ From: [mailto: ] On Behalf Of B DeHoff Sent: Saturday, February 09, 2008 10:18 PM To: Subject: Re: Re: beth is much better now. His impaction cleared last night and today he had many stools. Tonight he was happier than he has been for a few weeks. So I think he's in the clear! Thanks for all your concern, my friends. Beth Re: beth Beth, I'm sorry you are having such a rough time. It's one thing we havent had to deal with but I'm sure it's miserable. Please let us know how it's going. Hang in there! Jen > > Beth (up late worrying; is still impacted; day 2 of Miralax; will call docs AGAIN tomorrow) > > check out the view from my shoes at > www.wickedbusymomto3.wordpress.com > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 is still not potty trained. It's in the diaper and a bit beyond sometimes. He was a little nauseated the AM and still having diarrhea without the miralax. So I'll call tomorrow just to be sure what to do, since last time he had an impaction he had diarrhea around it. But regardless, he's a lot happier just getting out this much! Beth Re: beth Beth, I'm sorry you are having such a rough time. It's one thing we havent had to deal with but I'm sure it's miserable. Please let us know how it's going. Hang in there! Jen > > Beth (up late worrying; is still impacted; day 2 of Miralax; will call docs AGAIN tomorrow) > > check out the view from my shoes at > www.wickedbusymomto3.wordpress.com > > --------------------------------- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2008 Report Share Posted February 11, 2008 hope everything came out ok by today. Im surprised they didn't just give some phoso-soda to drink or th eother lovely stuff we use on pt's before a scope, often if a pt is constipated just a bottle of the phososoda works. shawna In a message dated 2/8/2008 4:20:36 P.M. Central Standard Time, stellarah@... writes: I will pray for you Beth. I've been there with a, so I know what your going thru. Stella > > Beth (up late worrying; is still impacted; day 2 of Miralax; will call docs AGAIN tomorrow) > > check out the view from my shoes at > www.wickedbusymomto www.wickedb ww > > ------------ ---- ---- > Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.