Help

[Guest guest]

Hello, I have a son who has been in a doc band for 7 mos. He is in his second one. I am preggo and I want to do everything to prevent this one from having plagio. I will put memory foam in all cribs,swings,bouncy seats, changing tables, car seats,strollers, anything that he will have his back against. I plan to let the baby take naps on my stomach while the baby is laying on his stomach (to monitor for sids) as much as possible in the beginning. Instead of using a carseat in the shopping carts at the store, I will us a front carrier, so he is off the head. I will limit the use of swings,bouncy chairs,strollers, etc as much as possile by wearing my baby in a front carrier. I will even implement tummy time on day 2-3. The really only time he will be on his stomach will be when he is sleeping, which his head will be on memory foam. I will try to turn his head to the left and the right when he sleeps.

I did put my son on his tummy in the beginning for awake times, but he soon got used to the swings,bouncy seats,stollers, etc. and didn't like being on his tummy anymore. I want to try to prevent that in this one. I don't know what you should do for a 4 mo. old. I guess you could do tummy time at leat 5-10 times a day for 10 mins. to get her used to it, and slowley increase the amount of time. I do plan on getting a Bumbo baby seat. http://www.bumbobabysitter.com/ You daughter would probably benefit alot from that. At early as 2-3 mos. you can put a baby in these. You might have to prop up, but that's better that being on their backs in a bouncy. There are also tummy time products that will entertain a baby on their tummy more that a blanket would. There are splash mats you put water in and the splash the toys through the plastic. Limit the amount of time in swings, car seats,

bounceys,strollers, etc. Get a front carrier, or back pack carrier and have her carried instead of being in the car seat shopping at the store or mall. I know that this sounds like a lot, bit it sure beats all the stares, comments,questions,casting, sweating in the band. cleaning of the band, going to all different doctors( my son went to three, had x-rays and cat scans-to rule out the bones closeing too early), the cost, and the long time it take insurance to approve, and any appeals that you will have to do if they deny coverage, calling it "cosmetic". All this effort I will put into this baby will be worth it, because it is only for a short 1 year of their life. After a year they are usually mobile, and not being required to sleep on their backs because of sids. My son started rolling naturally to his side and stomach to sleep at around 7-8 mos, but he was already in a band. I did not worry about sids then beacuse

he was older and able to roll on his own, and could not keep him on his back if he didn't want to be. Like the p/p stated, if repo dosen't work band therapy might be the answer for a correct head shape. Sometime, it won't round out on it's own. I hope all this helps Janie doc band since 11-05carolyn fox <cdfox@...> wrote You may not have the ability to correct your daughter's head naturally. Idon't want to sound harsh here, but it's not always within your power orcontrol. Medical intervention is often necessary. If you have seen little to no improvement to your daughter's head aftertrying repo for 2-3 months, then you should consider helmet therapy. I knowit's not an easy thing to

face, but a Doc band is not invasive. It workssimilar to dental braces or braces to treat club feet.Carolyn in NYCMum to Malcolm - 7 mos - Doc band 3/27, Doc band #2 6/9-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ]On Behalf Of teaneckanonymousSent: Sunday, June 04, 2006 9:28 AMPlagiocephaly Subject: HelpAt 2 months old, my doctor said my daughter had a flat head- he said to wait on it and see if it corrects itself with tummy time.We did tummy time- and nothing happened. At 4 months old, my doctor said my daughter has an assymetrical head.He referred us to Cranial Tech. for further exploration- the doctor said he wasn't sure if we needed to wear the band- but just to rule it out.We went to Cranial Tech. and we were told that she has a moderate case (mild-moderate-severe). The clinician didnt say if

we were a candidate or we werent. She told us the facts and basically said that my daughter has poor neck control on one side.We later learnt that her crib and changing table both face on the side where her neck control issues have occured- we have since changed that.We are now not putting her down on her back at all when she is awake- except for diaper and clothing changes and to sleep.We are very scared that at 4.5 months- she may have to wear the band.We are trying to correct it naturally.are you letting your children sleep on their bellies? My doctor said no- but my daughter sleeps between 13-14 hours and on her back- it is not good.HELP!!!!!!!!!!! WHAT should I do?? I want to correct the problem naturally.Thanks.For more plagio info

[Guest guest]

I don't know specifically about whether they can help with those

gods-awful COBRA payments (been there, couldn't afford them), but I do

know the Red Cross had a program where they'd pay ONE bill (not sure

whether it was only specific kinds or not) for those in need. I'm

afraid I don't have a whole lot of info on the program, but they paid

one of my mom's bills (think it was her electricity or gas) a few years

ago when she was in a rough spot. Call them and see if they still have

it and what the requirements are, the worst you can get is a " no, we

don't do that anymore " or a " no, you don't qualify " .

Shanna

marina_troi wrote:

> does anyone know of any premium assistance program that can help pay

> for COBRA cost? I have to choose, Mortgage, car payment, or COBRA.

> Thanks...Marina

>

>

>

>

[Guest guest]

Salvation army also might help you out. I know someone they gave the money of a

months worth of an important medicine. in WI

Chaos Angel <chaosangel@...> wrote: I don't know specifically

about whether they can help with those

gods-awful COBRA payments (been there, couldn't afford them), but I do

know the Red Cross had a program where they'd pay ONE bill (not sure

whether it was only specific kinds or not) for those in need. I'm

afraid I don't have a whole lot of info on the program, but they paid

one of my mom's bills (think it was her electricity or gas) a few years

ago when she was in a rough spot. Call them and see if they still have

it and what the requirements are, the worst you can get is a " no, we

don't do that anymore " or a " no, you don't qualify " .

Shanna

marina_troi wrote:

> does anyone know of any premium assistance program that can help pay

> for COBRA cost? I have to choose, Mortgage, car payment, or COBRA.

> Thanks...Marina

>

>

>

>

---------------------------------

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[Guest guest]

Thanks, Shanna. It's worth a shot...Marina

[Guest guest]

Thanks, ....Marina

[Guest guest]

>

> hi:

> last week i sent an email to an individual memeber of this group in

hopes of a response. received none.

> i'm hoping someone will receive this, and respond. i was diagnosed

with RA early last year, and am currently bombarding my system with

drugs, and i'm still doing downhill. not looking for a miracle cure,

just maybe some information from someone who is about the same stage

as i, and who has had some success with treatment. it has now come to

the point where my life, my happiness, and my financial well being

are being threatened — not to mention the fact that i'm about to lose

my f------- insurance. any reply would be appreciated.

>

> bob

> Dear Bob,

I am sorry that you did not get a response to your first email,

perhap the person was away or in the middle of a bad flare. When I am

in the middle of a flare it seem like everything else goes out the

window and I can focus on nothing until it settles down. I am new

here and am trying to find the right meds also. I have been on

Methotraxate and Plaquenel....but spent the last several months doing

nothing but being sick to my stomach and not keeping food

down...obviously my Rhuemy and I will have much to talk about at my

July appt!! It takes a while (I am told), to find the right

combination of medications that will work for your RA, and without

side effects that you can't live with. Its an ongoing process. I too

am on state assistance for my meds and medical care because even

though I qualified for SSDI and am finally having some small amount

of money to live on I can't get their medical card for two

years..this does not make much sense to me but I figure it's the

govt. and they never make sense much about anything. Personally I

think we should lobby for medical coverage with the SSDI approval.

That would really help thousands of people. You are not alone in the

threats to your life, happiness and financial well being are

concerned. We are all in the same boat....only some boats have more

leaks than others. THose with no spouse or SO to help often end up

homeless when they have run through all their savings trying to keep

a place to live and pay for medical expenses. I myself would be

living in a park somewhere if I did not have two fabulous friends who

have let me stay in their guest rooms. I am single and I simply ran

out of money. Now I am on SSDI and things are beginning to look up

financially, I hope to have my own place to live shortly. But I am

still looking for the combination of meds that I can take and not

have the awful side effects. I spent Christmas in the hospital and

they called it gastrointeritis (FLU), but my internest says it was

all from the side effects of the meds.ANd I believe him. When I quit

taking plaquenil I stopped with the nausea and vomiting within days.I

had gotten to the point where I couldn't even smell food cooking

without getting sick. So now my goal is to find a medication that I

can take, that insurance will cover that will help my RA. I wish you

luck..Please ome back and share some more of your story...so that we

may share with you some of out experiences that may help you sort out

yours. Jenna

> ____________________________________________

> Service Brought To You By http://WWW.DWP.NET

>

[Guest guest]

Bob, I wish I had good news for you, but you're a man, too old but not old

enough, and apparently live in Texas. That's not a good combination. You

really need family to help. When I first got RA in 1990, there were no

protections for any of us with RA from the US Government because RA wasn't

recognized as a disability then. The Americans with Disabilities Act was

passed that year and had no teeth. Texas has no protection for male or

female without kids under 5 years old, and isn't getting any better. The

only way I survived was that I had some assets to sell and my home was paid

for. Because " everyone has arthritis " , I was laid off from a mid-management

job of 20 years even after being promised that as long as I could answer the

phone, I had a job. Right!! I was able to draw unemployment for almost 2

year while trying to get SSD. When I finally did get SSD, I had $20 in my

pocket and nothing in the bank. Oh yeah, I was getting a little food stamps.

Because I'm on SSD, I do get some breaks on taxes, school, county, and fire

district. Every little bit helps. Now we have better meds and programs from

medical suppliers and manufacturers, so you're ahead in that respect. I was

bed-ridden for a couple of years and not able to dress myself or even feed

myself for a long time. I did, and still do, have my wonderful bride of 42

1/2 years to help me and hold us together during the really rough times.

Even now, she has to help me do many things I took for granted. I don't have

any answers for your financial or insurance problems. They are beyond the

help of most, and to get help from the state, you have to be destitute. You

can talk to the county Indigent Health person and DHS to see if there are

any possibilities, but I don't know of any. As the rest of the group, we'll

pray for you and do what little we can, at least a shoulder to cry on helps.

BTDT.

Dennis in Eastexas

" You can't always fix it with money "

[ ] Re: help

>

> hi:

> last week i sent an email to an individual memeber of this group in

hopes of a response. received none.

> i'm hoping someone will receive this, and respond. i was diagnosed

with RA early last year, and am currently bombarding my system with

drugs, and i'm still doing downhill. not looking for a miracle cure,

just maybe some information from someone who is about the same stage

as i, and who has had some success with treatment. it has now come to

the point where my life, my happiness, and my financial well being

are being threatened - not to mention the fact that i'm about to lose

my f------- insurance. any reply would be appreciated.

>

> bob

> Dear Bob,

I am sorry that you did not get a response to your first email,

perhap the person was away or in the middle of a bad flare. When I am

in the middle of a flare it seem like everything else goes out the

window and I can focus on nothing until it settles down. I am new

here and am trying to find the right meds also. I have been on

Methotraxate and Plaquenel....but spent the last several months doing

nothing but being sick to my stomach and not keeping food

down...obviously my Rhuemy and I will have much to talk about at my

July appt!! It takes a while (I am told), to find the right

combination of medications that will work for your RA, and without

side effects that you can't live with. Its an ongoing process. I too

am on state assistance for my meds and medical care because even

though I qualified for SSDI and am finally having some small amount

of money to live on I can't get their medical card for two

years..this does not make much sense to me but I figure it's the

govt. and they never make sense much about anything. Personally I

think we should lobby for medical coverage with the SSDI approval.

That would really help thousands of people. You are not alone in the

threats to your life, happiness and financial well being are

concerned. We are all in the same boat....only some boats have more

leaks than others. THose with no spouse or SO to help often end up

homeless when they have run through all their savings trying to keep

a place to live and pay for medical expenses. I myself would be

living in a park somewhere if I did not have two fabulous friends who

have let me stay in their guest rooms. I am single and I simply ran

out of money. Now I am on SSDI and things are beginning to look up

financially, I hope to have my own place to live shortly. But I am

still looking for the combination of meds that I can take and not

have the awful side effects. I spent Christmas in the hospital and

they called it gastrointeritis (FLU), but my internest says it was

all from the side effects of the meds.ANd I believe him. When I quit

taking plaquenil I stopped with the nausea and vomiting within days.I

had gotten to the point where I couldn't even smell food cooking

without getting sick. So now my goal is to find a medication that I

can take, that insurance will cover that will help my RA. I wish you

luck..Please ome back and share some more of your story...so that we

may share with you some of out experiences that may help you sort out

yours. Jenna

> ____________________________________________

> Service Brought To You By http://WWW.DWP.NET

>

[Guest guest]

Dennis,

I am in Texas also. You are telling the truth. The social programs and the

lack of communication between the services is horrible!!! I have never seen

such a mess!!

I like Texas cause no state income taxes and most other things are cheap.

But the healthcare system is 10 yrs behind!! Social service help is none

existance...and don't ask cause for guidance from those in the social service

system...cause they are rude and act like you want eat there first born child!!

I have two more years to live here until my last child finishes high

school..then hopefully hubby can transfer his job and we can get out of this

black

hole of a state they call Texas!!

Toni

[Guest guest]

> >

> > hi:

> > last week i sent an email to an individual memeber of this group

in

> hopes of a response. received none.

> > i'm hoping someone will receive this, and respond. i was diagnosed

> with RA early last year, and am currently bombarding my system with

> drugs, and i'm still doing downhill. not looking for a miracle cure,

> just maybe some information from someone who is about the same stage

> as i, and who has had some success with treatment. it has now come

to

> the point where my life, my happiness, and my financial well being

> are being threatened - not to mention the fact that i'm about to

lose

> my f------- insurance. any reply would be appreciated.

> >

> > bob

> > Dear Bob,

> I am sorry that you did not get a response to your first email,

> perhap the person was away or in the middle of a bad flare. When I

am

> in the middle of a flare it seem like everything else goes out the

> window and I can focus on nothing until it settles down. I am new

> here and am trying to find the right meds also. I have been on

> Methotraxate and Plaquenel....but spent the last several months

doing

> nothing but being sick to my stomach and not keeping food

> down...obviously my Rhuemy and I will have much to talk about at my

> July appt!! It takes a while (I am told), to find the right

> combination of medications that will work for your RA, and without

> side effects that you can't live with. Its an ongoing process. I too

> am on state assistance for my meds and medical care because even

> though I qualified for SSDI and am finally having some small amount

> of money to live on I can't get their medical card for two

> years..this does not make much sense to me but I figure it's the

> govt. and they never make sense much about anything. Personally I

> think we should lobby for medical coverage with the SSDI approval.

> That would really help thousands of people. You are not alone in the

> threats to your life, happiness and financial well being are

> concerned. We are all in the same boat....only some boats have more

> leaks than others. THose with no spouse or SO to help often end up

> homeless when they have run through all their savings trying to keep

> a place to live and pay for medical expenses. I myself would be

> living in a park somewhere if I did not have two fabulous friends

who

> have let me stay in their guest rooms. I am single and I simply ran

> out of money. Now I am on SSDI and things are beginning to look up

> financially, I hope to have my own place to live shortly. But I am

> still looking for the combination of meds that I can take and not

> have the awful side effects. I spent Christmas in the hospital and

> they called it gastrointeritis (FLU), but my internest says it was

> all from the side effects of the meds.ANd I believe him. When I quit

> taking plaquenil I stopped with the nausea and vomiting within

days.I

> had gotten to the point where I couldn't even smell food cooking

> without getting sick. So now my goal is to find a medication that I

> can take, that insurance will cover that will help my RA. I wish you

> luck..Please ome back and share some more of your story...so that we

> may share with you some of out experiences that may help you sort

out

> yours. Jenna

> > ____________________________________________

> > Service Brought To You By http://WWW.DWP.NET

> >

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

You can run, but where to hide? The only way I know of is to move to Mexico

or Canada, and live close to the border so I can get needed services through

Medicare. What other answers are there?

Dennis in Eastexas

" You can't always fix it with money "

[ ] Re: help

> Dennis,

> I am in Texas also. You are telling the truth. The social programs and

> the

> lack of communication between the services is horrible!!! I have never

> seen

> such a mess!!

>

> I like Texas cause no state income taxes and most other things are cheap.

> But the healthcare system is 10 yrs behind!! Social service help is none

> existance...and don't ask cause for guidance from those in the social

> service

> system...cause they are rude and act like you want eat there first born

> child!!

>

> I have two more years to live here until my last child finishes high

> school..then hopefully hubby can transfer his job and we can get out of

> this black

> hole of a state they call Texas!!

>

> Toni

[Guest guest]

I went into the unemployment office one time to apply and was on my scooter.

The first job they tried to send me on was as a roofer! At least the

hospital had a better idea, Security Dispatch, but I can't sit that long at

a time either. I don't see any way we can win with morons like that in

charge.

Dennis in Eastexas

" You can't always fix it with money "

[ ] Re: help

>

>> >

>> > hi:

>> > last week i sent an email to an individual memeber of this group

> in

>> hopes of a response. received none.

>> > i'm hoping someone will receive this, and respond. i was diagnosed

>> with RA early last year, and am currently bombarding my system with

>> drugs, and i'm still doing downhill. not looking for a miracle cure,

>> just maybe some information from someone who is about the same stage

>> as i, and who has had some success with treatment. it has now come

> to

>> the point where my life, my happiness, and my financial well being

>> are being threatened - not to mention the fact that i'm about to

> lose

>> my f------- insurance. any reply would be appreciated.

>> >

>> > bob

>> > Dear Bob,

>> I am sorry that you did not get a response to your first email,

>> perhap the person was away or in the middle of a bad flare. When I

> am

>> in the middle of a flare it seem like everything else goes out the

>> window and I can focus on nothing until it settles down. I am new

>> here and am trying to find the right meds also. I have been on

>> Methotraxate and Plaquenel....but spent the last several months

> doing

>> nothing but being sick to my stomach and not keeping food

>> down...obviously my Rhuemy and I will have much to talk about at my

>> July appt!! It takes a while (I am told), to find the right

>> combination of medications that will work for your RA, and without

>> side effects that you can't live with. Its an ongoing process. I too

>> am on state assistance for my meds and medical care because even

>> though I qualified for SSDI and am finally having some small amount

>> of money to live on I can't get their medical card for two

>> years..this does not make much sense to me but I figure it's the

>> govt. and they never make sense much about anything. Personally I

>> think we should lobby for medical coverage with the SSDI approval.

>> That would really help thousands of people. You are not alone in the

>> threats to your life, happiness and financial well being are

>> concerned. We are all in the same boat....only some boats have more

>> leaks than others. THose with no spouse or SO to help often end up

>> homeless when they have run through all their savings trying to keep

>> a place to live and pay for medical expenses. I myself would be

>> living in a park somewhere if I did not have two fabulous friends

> who

>> have let me stay in their guest rooms. I am single and I simply ran

>> out of money. Now I am on SSDI and things are beginning to look up

>> financially, I hope to have my own place to live shortly. But I am

>> still looking for the combination of meds that I can take and not

>> have the awful side effects. I spent Christmas in the hospital and

>> they called it gastrointeritis (FLU), but my internest says it was

>> all from the side effects of the meds.ANd I believe him. When I quit

>> taking plaquenil I stopped with the nausea and vomiting within

> days.I

>> had gotten to the point where I couldn't even smell food cooking

>> without getting sick. So now my goal is to find a medication that I

>> can take, that insurance will cover that will help my RA. I wish you

>> luck..Please ome back and share some more of your story...so that we

>> may share with you some of out experiences that may help you sort

> out

>> yours. Jenna

[Guest guest]

Dennis,

You didn't fool me with that one!! See if you make it plain enough I get it.

That is one of the cleverest comments I think I have heard about the

subject. Gave me a good chuckle, which I need. I recently read that when you

suppress a chuckle it settles on the hips.

BVan (Betty)

Re: [ ] Re: help

You can run, but where to hide? The only way I know of is to move to Mexico

or Canada, and live close to the border so I can get needed services through

Medicare. What other answers are there?

Dennis in Eastexas

" You can't always fix it with money "

[Guest guest]

Two years ago when hurricane Ivan hit N.Fl, and AL and did so much damage FEMA

money was given to some to help them. They paid claims for snow storms, falls

caused by slipping on the ice and a few other such things. Good use of tax

dollars. These and more were paid claims....in Miami. We are in the hardest

hit area. Can you guess what help we got? That's not hard and I bet you

guessed correctly.

BVan (Betty)

--- Original Message -----

From: betnden@...

Sent: Saturday, July 01, 2006 9:36 PM

Subject: Re: [ ] Re: help

I went into the unemployment office one time to apply and was on my scooter.

The first job they tried to send me on was as a roofer! At least the

hospital had a better idea, Security Dispatch, but I can't sit that long at

a time either. I don't see any way we can win with morons like that in

charge.

Dennis in Eastexas

" You can't always fix it with money "

[Guest guest]

thanks me too........what is the exact name of the product i need ....and

where can i buy it?...i live in newfoundland canada....

>From: " " <zoo-keeper00@...>

>Reply-

>< >

>Subject: [ ] help

>Date: Mon, 14 Aug 2006 14:53:45 -0400

>

>

>Okay - I am completely confused. Omega 9, Omega Six, Fish Oil, Cod Liver

>Oil, DHA, EPA , EFA.....

>

>I am a simpleton - some one tell me exactly what product to buy. Is it NN

>ProEFA - will that cover my bases.

>

>Three of my four children could benefit greatly from some sort of

>supplements and I just want it all in plain English!

>

>~

>Married to the world's greatest guy, & SAHM to;

>Mikayla (14) World's greatest teenager, compassionate, sensitive and a

>National Junior Honor Society member,

>Rilea (12) Energetic, funny, and impulsive. Believing for a breakthrough

>regarding her ADHD, Central Auditory Processing Disorder & Dyslexia,

>Jonathon (6) My miracle boy. My amazing, autistic, one-eyed wonder with a

>host of issues and struggles: Heightened sensitivity to corn, casein,

>gluten, red dye #40 & all adhesive material. Aortic Root Dilation, Band

>Keratopathy Right Eye, Bruxism, Choridal and Retinal Detachment Right Eye

>(Blind), Chronic Lung Disorder, Congenital Nystagmus/Legally Blind, Cornea

>Adhered to Pupil Right Eye, G-Tube Dependant/Oral Aversion, Gastro Paresis,

>GERD, Gross Global and Neuro-Developmental Delays, History of PDA,

>Incontinent, Increased Ocular Pressure (15/16 both eyes), Myopia (-14L),

>Retinopathy of Prematurity, Seasonal Affective Disorder, Sensory

>Integration Disorder and Vasomotor Rhinitis. A definite over comer and a

>true testament to God's mercy and grace, and

>Kaden (2) Momma's little wild man. My other autistic wonder, struggling

>with dyspraxia. Heightened sensitivity to mold, tomatoes, oranges &

>strawberries. Congenital Muscular Torticollis, GERD, Perennial Allergic

>Rhinitis, Reactive Airway Disease, STARband Graduate (11/9/04 - 2/9/05) and

>Sensory Integration Disorder. The happiest little boy with the biggest

>brown eyes and another testament to God's grace and mercy - believing for

>yet one more miracle!(and my dear Lizzie, who is now 9, and although not

>physically part of our family any more, a definite part of our lives,

>hearts and prayers) a

[Guest guest]

Buy Nordic Naturals ProEFA (also known as Nordic Naturals Complete Omega

3-6-9; the 2 products are exactly the same). Buy at a health food store

or online. The dosage is experimental. Start with 1 or 2 per day for a

few weeks. If you see improvement, keep the dose the same until you hit

a plateau. If you see no improvement, up the dosage. Many of us

eventually add a Nordic Naturals ProEFA (also known as just Nordic

Naturals EFA; same exact product) to that in a ratio of 2:1 EFA:EPA.

For example, was taking 2 Nordic Naturals Complete Omega 3-6-9

for awhile. I just upped her dose and also added EPA, so now she gets 2

Naturals Complete Omega 3-6-9 and 1 Nordic Naturals EPA, twice per day

(so 4 complete omega and 2 EPA per day).

That is pretty much it. Just remember, the " dose " is trial and error. I

hope that simplifies things.

Warm regards,

******************

(Rochester, NY)

Mom to , 3.2 years, Verbal Apraxia

& , 1 year

________________________________

From:

[mailto: ] On Behalf Of joy stansbury

Sent: Monday, August 14, 2006 9:31 PM

Subject: RE: [ ] help

thanks me too........what is the exact name of the product i need

.....and

where can i buy it?...i live in newfoundland canada....

>From: " " <zoo-keeper00@...

<mailto:zoo-keeper00%40comcast.net> >

>Reply-

<mailto: %40>

><

<mailto: %40> >

>Subject: [ ] help

>Date: Mon, 14 Aug 2006 14:53:45 -0400

>

>

>Okay - I am completely confused. Omega 9, Omega Six, Fish Oil, Cod

Liver

>Oil, DHA, EPA , EFA.....

>

>I am a simpleton - some one tell me exactly what product to buy. Is it

NN

>ProEFA - will that cover my bases.

>

>Three of my four children could benefit greatly from some sort of

>supplements and I just want it all in plain English!

>

>~

>Married to the world's greatest guy, & SAHM to;

>Mikayla (14) World's greatest teenager, compassionate, sensitive and a

>National Junior Honor Society member,

>Rilea (12) Energetic, funny, and impulsive. Believing for a

breakthrough

>regarding her ADHD, Central Auditory Processing Disorder & Dyslexia,

>Jonathon (6) My miracle boy. My amazing, autistic, one-eyed wonder with

a

>host of issues and struggles: Heightened sensitivity to corn, casein,

>gluten, red dye #40 & all adhesive material. Aortic Root Dilation, Band

>Keratopathy Right Eye, Bruxism, Choridal and Retinal Detachment Right

Eye

>(Blind), Chronic Lung Disorder, Congenital Nystagmus/Legally Blind,

Cornea

>Adhered to Pupil Right Eye, G-Tube Dependant/Oral Aversion, Gastro

Paresis,

>GERD, Gross Global and Neuro-Developmental Delays, History of PDA,

>Incontinent, Increased Ocular Pressure (15/16 both eyes), Myopia

(-14L),

>Retinopathy of Prematurity, Seasonal Affective Disorder, Sensory

>Integration Disorder and Vasomotor Rhinitis. A definite over comer and

a

>true testament to God's mercy and grace, and

>Kaden (2) Momma's little wild man. My other autistic wonder, struggling

>with dyspraxia. Heightened sensitivity to mold, tomatoes, oranges &

>strawberries. Congenital Muscular Torticollis, GERD, Perennial Allergic

>Rhinitis, Reactive Airway Disease, STARband Graduate (11/9/04 - 2/9/05)

and

>Sensory Integration Disorder. The happiest little boy with the biggest

>brown eyes and another testament to God's grace and mercy - believing

for

>yet one more miracle!(and my dear Lizzie, who is now 9, and although

not

>physically part of our family any more, a definite part of our lives,

>hearts and prayers) a

[Guest guest]

hi thanks susan.....the second ...is that supposed to be .......nordic

naturals pro epa?...my daughter brianna {6}....only says yes and no ....we

are working with a prompt sp..for the last 5 months ...with not muich

improvement.......she is very bright and understands everything you tell

her...going to grade 2 in the fall...iam hoping we get some results from

these nn " s....did your daughter improve?...thanks donna

>From: " Oakes, " <susan.oakes@...>

>Reply-

>< >

>Subject: RE: [ ] help

>Date: Mon, 14 Aug 2006 22:44:52 -0400

>

>Buy Nordic Naturals ProEFA (also known as Nordic Naturals Complete Omega

>3-6-9; the 2 products are exactly the same). Buy at a health food store

>or online. The dosage is experimental. Start with 1 or 2 per day for a

>few weeks. If you see improvement, keep the dose the same until you hit

>a plateau. If you see no improvement, up the dosage. Many of us

>eventually add a Nordic Naturals ProEFA (also known as just Nordic

>Naturals EFA; same exact product) to that in a ratio of 2:1 EFA:EPA.

>

>For example, was taking 2 Nordic Naturals Complete Omega 3-6-9

>for awhile. I just upped her dose and also added EPA, so now she gets 2

>Naturals Complete Omega 3-6-9 and 1 Nordic Naturals EPA, twice per day

>(so 4 complete omega and 2 EPA per day).

>

>That is pretty much it. Just remember, the " dose " is trial and error. I

>hope that simplifies things.

>

>Warm regards,

>******************

> (Rochester, NY)

>Mom to , 3.2 years, Verbal Apraxia

> & , 1 year

[Guest guest]

Yes, Nordic Naturals ProEPA or Nordic Naturals EPA (SAME product).

My daughter has improved immensely, but because the supplementation and

therapy were not done in isolation, I cannot say for SURE what has been

responsible for her near-miraculous improvement. But I am, in my heart,

quite sure that EFA supplementation has played a big role. You can bet

that I won't miss a day or a dose! I take it myself now and also give

it to , our 13 month old. Although seems normal in

speech for a 13 month old, it is hard not to worry ... sigh ...

Warm regards,

******************

(Rochester, NY)

Mom to , 3.2 years, Verbal Apraxia

& , 1 year

________________________________

From:

[mailto: ] On Behalf Of joy stansbury

Sent: Tuesday, August 15, 2006 7:11 AM

Subject: RE: [ ] help

hi thanks susan.....the second ...is that supposed to be .......nordic

naturals pro epa?...my daughter brianna {6}....only says yes and no

.....we

are working with a prompt sp..for the last 5 months ...with not muich

improvement.......she is very bright and understands everything you tell

her...going to grade 2 in the fall...iam hoping we get some results from

these nn " s....did your daughter improve?...thanks donna

>From: " Oakes, " <susan.oakes@...

<mailto:susan.oakes%40xerox.com> >

>Reply-

<mailto: %40>

><

<mailto: %40> >

>Subject: RE: [ ] help

>Date: Mon, 14 Aug 2006 22:44:52 -0400

>

>Buy Nordic Naturals ProEFA (also known as Nordic Naturals Complete

Omega

>3-6-9; the 2 products are exactly the same). Buy at a health food store

>or online. The dosage is experimental. Start with 1 or 2 per day for a

>few weeks. If you see improvement, keep the dose the same until you hit

>a plateau. If you see no improvement, up the dosage. Many of us

>eventually add a Nordic Naturals ProEFA (also known as just Nordic

>Naturals EFA; same exact product) to that in a ratio of 2:1 EFA:EPA.

>

>For example, was taking 2 Nordic Naturals Complete Omega 3-6-9

>for awhile. I just upped her dose and also added EPA, so now she gets 2

>Naturals Complete Omega 3-6-9 and 1 Nordic Naturals EPA, twice per day

>(so 4 complete omega and 2 EPA per day).

>

>That is pretty much it. Just remember, the " dose " is trial and error. I

>hope that simplifies things.

>

>Warm regards,

>******************

> (Rochester, NY)

>Mom to , 3.2 years, Verbal Apraxia

> & , 1 year

[Guest guest]

-

The VAST majority improve. If you don't see an improvement with a

smaller " dose, " increase it until you do! That seems to be the

philosophy around here.

Warm regards,

******************

(Rochester, NY)

Mom to , 3.2 years, Verbal Apraxia

& , 1 year

________________________________

From:

[mailto: ] On Behalf Of

Sent: Tuesday, August 15, 2006 7:05 AM

Subject: Re: [sPAM] RE: [ ] help

Hey ...

Much appreciated....I was figuring it was NN - but when I got to the

store,

I was overwhelmed.....I have three children that would greatly benefit

from

supplements and I want to believe I will see a huge change....

Thanks

[sPAM] RE: [ ] help

> Buy Nordic Naturals ProEFA (also known as Nordic Naturals Complete

Omega

> 3-6-9; the 2 products are exactly the same). Buy at a health food

store

> or online. The dosage is experimental. Start with 1 or 2 per day for a

> few weeks. If you see improvement, keep the dose the same until you

hit

> a plateau. If you see no improvement, up the dosage. Many of us

> eventually add a Nordic Naturals ProEFA (also known as just Nordic

> Naturals EFA; same exact product) to that in a ratio of 2:1 EFA:EPA.

>

> For example, was taking 2 Nordic Naturals Complete Omega 3-6-9

> for awhile. I just upped her dose and also added EPA, so now she gets

2

> Naturals Complete Omega 3-6-9 and 1 Nordic Naturals EPA, twice per day

> (so 4 complete omega and 2 EPA per day).

>

> That is pretty much it. Just remember, the " dose " is trial and error.

I

> hope that simplifies things.

>

> Warm regards,

> ******************

> (Rochester, NY)

> Mom to , 3.2 years, Verbal Apraxia

> & , 1 year

[Guest guest]

Maybe Cranial Technologies would know of a financial plan or something that may work for you. I would write an appeal to your insurance company and/or keep calling them...maybe even ask for a supervisor. Maybe explain some of the future consequences of not getting his head corrected now. There are some great appeal letters that may be able to help you. Good luck. lisa phx, az PS: I am not sure if CAPPS helps financially or not. May be worth a shot.robby1mommy <robby1mommy@...> wrote: My baby robby has was diagnosed with torticollis at 2 mos old.I noticed his head waas a little flat on one side.My family told me its normal, rub his head, it will reshape itself.Well it didnt. Now he is almost 7 mos old and has been diagnosed with plagiocephaly.We are looking to get him in a doc band asap. Ploblem is my insurance company wont pay for the band.In their opinion it is investigational and cosmetic.This leaves all the cost to me and my husband.we live pay check to paycheck. I was wondering if anyone knows of any organizations that can assist me financially.I feel helpless. My son is already showing signs of facial assymetry and his ears are not aligned.if anyone has any information the could be helpfl to me, I would be very grateful.

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[Guest guest]

Hi, sorry to hear about your experience. we were also told " don't

worry " about my daughter's flat spot at 2 mo, but luckily we were

taken seriously at 4 mo (and it was worse). did you get physical

therapy for the tort? maybe your insurance would cover that and not a

helmet. also if you child has any delays due to the tort you can check

into your states Early Intervention program. EI offers services such

as PT for children with delays - depending on severity. they won't

help with a band as far as a I know, but could help with the tort,

which could improve the facial asymmetry.

I would also ask the band providers about any financing options or

interest free loan programs they might have. Also try to appeal your

insurer's denial. many people win on appeal.

good luck.

=christine

mom to sydney/ 13 mo/ starband grad 10-06

>

> My baby robby has was diagnosed with torticollis at 2 mos old.I

> noticed his head waas a little flat on one side.My family told me its

> normal, rub his head, it will reshape itself.Well it didnt. Now he is

> almost 7 mos old and has been diagnosed with plagiocephaly.We are

> looking to get him in a doc band asap. Ploblem is my insurance company

> wont pay for the band.In their opinion it is investigational and

> cosmetic.This leaves all the cost to me and my husband.we live pay

> check to paycheck. I was wondering if anyone knows of any

> organizations that can assist me financially.I feel helpless. My son

> is already showing signs of facial assymetry and his ears are not

> aligned.if anyone has any information the could be helpfl to me, I

> would be very grateful.

>

[Guest guest]

Robby's mommy - please email me offline and I will tell you all the places we tried and some successes... also where are you located?

horse-gal@...

help

My baby robby has was diagnosed with torticollis at 2 mos old.I noticed his head waas a little flat on one side.My family told me its normal, rub his head, it will reshape itself.Well it didnt. Now he is almost 7 mos old and has been diagnosed with plagiocephaly.We are looking to get him in a doc band asap. Ploblem is my insurance company wont pay for the band.In their opinion it is investigational and cosmetic.This leaves all the cost to me and my husband.we live pay check to paycheck. I was wondering if anyone knows of any organizations that can assist me financially.I feel helpless. My son is already showing signs of facial assymetry and his ears are not aligned.if anyone has any information the could be helpfl to me, I would be very grateful.

[Guest guest]

you can try contacting a knights of colombus, if you have one in your area. explain the situation to them and put it in writing. they might donate some money to you. they often donate to families who are in need of something. candice, nyrobby1mommy <robby1mommy@...> wrote: My baby robby has was diagnosed with torticollis at 2 mos old.I noticed his head waas a little flat on one side.My family told me its normal, rub his head, it will reshape

itself.Well it didnt. Now he is almost 7 mos old and has been diagnosed with plagiocephaly.We are looking to get him in a doc band asap. Ploblem is my insurance company wont pay for the band.In their opinion it is investigational and cosmetic.This leaves all the cost to me and my husband.we live pay check to paycheck. I was wondering if anyone knows of any organizations that can assist me financially.I feel helpless. My son is already showing signs of facial assymetry and his ears are not aligned.if anyone has any information the could be helpfl to me, I would be very grateful.

Need a quick answer? Get one in minutes from people who know. Ask your question on

Answers.

[Guest guest]

maybe you can fight your insurance company. the docband is not

investigational. it is fda approved, and we all know that this

condition is not just cosmetic. there are lots of letters in file

section of this group. it is worth trying to fight it, especially if

there is no exclusiton for orthotics in your policy. CT offers payment

plans too. good luck.

>

> My baby robby has was diagnosed with torticollis at 2 mos old.I

> noticed his head waas a little flat on one side.My family told me its

> normal, rub his head, it will reshape itself.Well it didnt. Now he is

> almost 7 mos old and has been diagnosed with plagiocephaly.We are

> looking to get him in a doc band asap. Ploblem is my insurance

company

> wont pay for the band.In their opinion it is investigational and

> cosmetic.This leaves all the cost to me and my husband.we live pay

> check to paycheck. I was wondering if anyone knows of any

> organizations that can assist me financially.I feel helpless. My son

> is already showing signs of facial assymetry and his ears are not

> aligned.if anyone has any information the could be helpfl to me, I

> would be very grateful.

>

[Guest guest]

I have to use Motrin for now :/ I'm sorry you're hurting so badly~!

bridlovdave <nashirafae@...> wrote:

Nature

just wondering if someone could maybe help me out here. over the past 2 days my

joints have been driving me out of my mind and i dont even want to move. i am

new at this and i am really not sure what to use. i will not be able to get in

to see my doc until march 1st. any ideas what i can use until then? please i am

begging here.

thank you

bri

[Guest guest]

If you can't call your new Rheumy's office during the weekend to ask

for something for the pain until you get in to see him/her. Go to the

Emergency Dept or Urgent Care Clinic. Let them know that you have a

appointment to see the specialist on the first, but that you can't take

the pain until then. You are not being a whimp, everyone on this list

believes you are in pain. Not just don't overdo it if start feeling

better. ;^)