Help

February 24, 2007

check with your practitioner and see what he thinks about Tylenol arthritis.

it's really just a stronger Tylenol but it could be an interim help.

Granny lee

I wish you enough...

---- bridlovdave <nashirafae@...> wrote:

> Nature

>

> just wondering if someone could maybe help me out here. over the past 2 days

my joints have been driving me out of my mind and i dont even want to move. i am

new at this and i am really not sure what to use. i will not be able to get in

to see my doc until march 1st. any ideas what i can use until then? please i am

begging here.

>

> thank you

>

> bri

>

February 24, 2007

i use tylenol arthritis and this stuff called jointritis that you can buy from

walgreen's or a drug store it is in a roll on tube.

Joy

bridlovdave <nashirafae@...> wrote:

Nature

just wondering if someone could maybe help me out here. over the past 2 days my

joints have been driving me out of my mind and i dont even want to move. i am

new at this and i am really not sure what to use. i will not be able to get in

to see my doc until march 1st. any ideas what i can use until then? please i am

begging here.

thank you

bri

March 20, 2007

Hi sorry i am behind on my messages. We had a death in the family.

Anyway. At our Hanger office they gave me a list of charities to

call. Alot of them will not help if you have already paid something

yourself. But I am not sure about the shriners. We made too much

money but they were so nice and gave us 400.00 anyway.And we also

got 500.00 from Childrens miracle network. I live in kansas so i am

not sure of the number you would call. But maybe if you go to their

website there is something there to call. Hope this helps. Kimi

In Plagiocephaly , lexie francis <lonlygoth@...>

wrote:

>

> hey do you know the numbers to those, my grandma told me about

shriners, i dont work but it would help out alot if i could help my

mom pay for it, were on a tight budget, and when they told us the

helmet was that expensive it was insane. we are already paying for

it some, is it to late to get help. i think it would help alot if

they could help us out some.

>

> lexie, joey,joey, and baby cheyenne

>

> Kimi Albin <kimi100us@...> wrote:

> Hi. My son just got his helmet a week ago at hanger.

We were given a list of charities that help. We didnt know if our

insurance would cover the helmet, so i called childrens miracle

network and they gave us $500.00 no questions asked. They dont even

go by your income. We also got some from our local shriners. So you

might try some of your local charities. the worst they can say is

no.

> Kimi mom to Zach 6 months. plagio/tort

>

> ttyl

> love ya

> is

>

> ---------------------------------

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>

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November 8, 2007

Welcome to the group. People have definitely seen improvement even

starting at this age. Where are you going for a band? An experienced

ortho/clinician can make a difference. Hopefully some parents of older

babies will reply too, but I wanted to give you some encouragement.

It may take longer but it is definitely worth banding, even at 14 months.

Do you have your band yet?

-christine

sydney 22 mo starband grad

>

> My son has had plagio since he was @ 4 months old due to torticollis.

> Our dr. kept saying it would work itself out...where I should have

> listened to myself where my gut feeling knew it wouldn't. Now at 14

> months he was finally sent for a head band as per another dr. My

> question is if anyone had any stories, good or bad, with their

> experience of starting the therapy so late in the game. Thanks!

>

November 9, 2007

He will be receiving his headband hopefully by next Thursday...thank

you so much for the worxds of encouragememnt~

November 9, 2007

I just wanted to put my 2 cents in here for you....the SAME thing was

said to me about my sons head....here we are at 14 months old getting

fitted with a band with only a 20% success rate versus 85-95% had he

been put in it earlier. I would definetly get 2nd, 3rd, even 4th

opinions if you have to. See a plastic surgeon...or even call an

orthotist in your area that actually scans the head for the helmet.

They are the one who got our measurements and I did not need (although

I had it) a dr. to send me there. Let me know how it turns out.

January 3, 2008

Cooky,

I have Dr. Mirkins phone number 301-942-7900. He's in Kensington,

land so maybe you could do a search.

Hope that helps,

Amy

C Stonkey wrote:

>

> Hi everyone,

>

> I just had someone call me this morning about needing an AP doc in

> land.

> The other day someone mentioned they went to Gabe Mirkin but was

> seeing one

> of the other docs he works with. I did not keep the info because I did not

> need it. I would appreciate that info now.

>

> If anyone sees another doc in land area that they like I will pass

> that

> info along to Tamika also.

>

> Thank you bunches,

>

> cooky

>

January 3, 2008

You're the best.thanks

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Amy Ricciuti

Sent: Thursday, January 03, 2008 7:37 PM

rheumatic

Subject: Re: rheumatic help

Cooky,

I have Dr. Mirkins phone number 301-942-7900. He's in Kensington,

land so maybe you could do a search.

Hope that helps,

Amy

C Stonkey wrote:

>

> Hi everyone,

>

> I just had someone call me this morning about needing an AP doc in

> land.

> The other day someone mentioned they went to Gabe Mirkin but was

___

March 16, 2008

have you read the antibiotics protocol of doctor Brown? if not, go to

rheumatic.org and get the info that will help you.

good luck

rheumatic@...: c.julie74@...: Sun, 16 Mar 2008

16:09:41 +0000Subject: rheumatic help

hi everyone,i have mctd and i am takin plaquenil.at first all seem to be going

well.But now not so good,my knees are very painfull and keep giving in when

walking up and downstaires when sitting down and getting up.Is there a injection

i can have.I am still quite new to all this,and finding it all hard too

understand.every day i feel ill with something or another.Any advice?

_________________________________________________________________

Connect and share in new ways with Windows Live.

http://www.windowslive.com/share.html?ocid=TXT_TAGHM_Wave2_sharelife_012008

March 11, 2009

I am sorry you are having such a rough time. Is the burning pain mainly

at your feet and hands? I have that and its treated as Peripheral

neuropathy. Vicodan seems to help more than most. I used to never take the

Vicodan because it made me sick at my stomach however when I had to start

taking it because notind else worked, after about 3 days the nausea and

dizziness went away. So it might be somthing you have to take it enough to

get past the side effects. I will keep you in my prayers

Heidibug

On Wed, Mar 11, 2009 at 4:14 PM, Sauve <moniquesauve@...> wrote:

> hi

>

> i've had RA for 12 yrs so know what a flare is. the last few weeks have

> been different. i am not flaring in my joints but i have a burning pain

> - but there is no redness or heat - which feels like a ban around my

> ankles, lower back and buttocks. sometimes the buttock pain is on the

> outer side of the hip. i've never had arthritis in my ankles or hips or

> lower back before. with arthritis a flare for me hurts when i am using

> the joint frequently. this burning pain is constant no matter what i do

> and it feels like it's more muscular than in the joint. i added 5 mg

> prednisone which doesn't seem to help. i took a morphine last nite which

> helped but that stuff makes me so dizzy and nauseous i am loathe to take

> it. doc has no idea what's going on and can't see specialist for a

> month. any ideas? is this RA or is it something else?

>

> thanks

> monique

>

March 11, 2009

hi heidi

thanks. that woudl be nice if nausea and dizziness go away from

morphine. today is day 2 so maybe by fri it will stop? i have to take it

as burning is unbearable. it is ankles and lower back hip that is the

worst but hands are a bit sore. can you tell me more re the peripheral

neuropathy so i can figure out what this is? how is the pn diagnosed?

sorry you suffer from such pain. this is horrid. worse than RA. am

supposed to start enbrel this week. hope it doesn't make this other pain

worse. am wondering if it coudl fibromyalgia?

monique

March 12, 2009

I know that it goes hand and hand with Diabetes. I think they may do an

EMG ( I think thats the name) where they test different nerve areas with a

machine that send a small shock to the area. It sounds worse than it is. My

Drs just said oh you have PN. My Rhu said that shooting pains in the legs

and arms are definitely part of Fibro. It took me 3-4 days of the med to

loose the Nausea. I did take it and go right to bed and tried to sleep a bit

then by the time I woke up it was gone.Hope you find the answer soon. I can

be maddening.

Heidibug

On Wed, Mar 11, 2009 at 7:51 PM, Sauve <moniquesauve@...> wrote:

> hi heidi

>

> thanks. that woudl be nice if nausea and dizziness go away from

> morphine. today is day 2 so maybe by fri it will stop? i have to take it

> as burning is unbearable. it is ankles and lower back hip that is the

> worst but hands are a bit sore. can you tell me more re the peripheral

> neuropathy so i can figure out what this is? how is the pn diagnosed?

> sorry you suffer from such pain. this is horrid. worse than RA. am

> supposed to start enbrel this week. hope it doesn't make this other pain

> worse. am wondering if it coudl fibromyalgia?

>

> monique

>

March 12, 2009

Hi ,

I had the burning pain just above the hip area for about two months and nothing

could get rid of it. At my last visit with my Rheumy last month, I told him

about it and he put me on a 12 day Prednisone taper. By day two the burning was

gone. Definitely RA related in my opinion as I have never had this problem until

I developed RA.

Hope you feel better soon!

Betsy

March 12, 2009

well i don't have diabetes and don't think it's PN. am thinking it's FM.

need to get my sleep under control and do some exercise and hopefully

get some relief. not sure how i'm supposed to exer when i'm in agony

though??

monique

I know that it goes hand and hand with Diabetes. I think they may do an

EMG ( I think thats the name) where they test different nerve areas with a

machine that send a small shock to the area. It sounds worse than it is. My

Drs just said oh you have PN. My Rhu said that shooting pains in the legs

and arms are definitely part of Fibro. It took me 3-4 days of the med to

loose the Nausea. I did take it and go right to bed and tried to sleep a bit

then by the time I woke up it was gone.Hope you find the answer soon. I can

be maddening.

Heidibug

March 12, 2009

hi btesy

how much pred and for 12 days you say? did pain stay away after the

course of pred? i added 5 mg 3 days ago and it's gotten worse since.

monique

Hi ,

I had the burning pain just above the hip area for about two months and

nothing could get rid of it. At my last visit with my Rheumy last month,

I told him about it and he put me on a 12 day Prednisone taper. By day

two the burning was gone. Definitely RA related in my opinion as I have

never had this problem until I developed RA.

Hope you feel better soon!

Betsy

March 13, 2009

,

It was 5mg. dose. 4 pills for 3 days, 3 pills for 3 days, 3 pills for 2 days and

1 pill for 3 days. I started the taper on Feb 3rd. By March 2nd I started

getting back some of the everyday twinges and stiffness, but the burning has not

returned as yet.

However, by last week I did have a nasty flare & have been having shoulder

trouble ever since (but still no burning!). My PCP has changed me from Plaquenil

to MTX and added Etodoulac for inflamation & pain (if really bad) as I was maxed

out before on Motrin and it wasn't helping.

Feel Better!

betsy

March 14, 2009

i have complex regional pain syndrome its almost like diabetic

neuropathy only affects

the sympathetic nerves. Burning pain etc. I would look into your

symptoms.

Jolene

In a message dated 3/12/2009 6:21:26 A.M. Eastern Daylight Time,

hmendelsohn@... writes:

I know that it goes hand and hand with Diabetes. I think they may do an

EMG ( I think thats the name) where they test different nerve areas with a

machine that send a small shock to the area. It sounds worse than it is. My

Drs just said oh you have PN. My Rhu said that shooting pains in the legs

and arms are definitely part of Fibro. It took me 3-4 days of the med to

loose the Nausea. I did take it and go right to bed and tried to sleep a bit

then by the time I woke up it was gone.Hope you find the answer soon. I can

be maddening.

Heidibug

On Wed, Mar 11, 2009 at 7:51 PM, Sauve <_moniquesauve@monique_

(mailto:moniquesauve@...) > wrote:

> hi heidi

>

> thanks. that woudl be nice if nausea and dizziness go away from

> morphine. today is day 2 so maybe by fri it will stop? i have to take it

> as burning is unbearable. it is ankles and lower back hip that is the

> worst but hands are a bit sore. can you tell me more re the peripheral

> neuropathy so i can figure out what this is? how is the pn diagnosed?

> sorry you suffer from such pain. this is horrid. worse than RA. am

> supposed to start enbrel this week. hope it doesn't make this other pain

> worse. am wondering if it coudl fibromyalgia?

>

> monique

>

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June 17, 2010

HI there, and welcome,

Unfortunately, there is no tried and true test to show whether or not the

implants are the culprit in making you ill. If there were, we would all be

rejoicing, because it would have made our life so much easier, and we could have

gone to court and WON!!

So, the best way to know if it is related to your implants is to look at your

health before implants, and compare it to your health now with implants, find

out what is different, and start comparing notes to other women who have gotten

sick from implants. You may find that you suffer from a lot of the same

symptoms.

Pain in the hands is one of many common signs women have complained about, as

well as pain in the feet. In fact, in one interview I did that was aired on our

local television station years ago, there was a neurologist that was also

interviewed and he named " pain in the hands and pain in the feet " as signs women

complained about in his practice who were sick from implants. He knows implants

cause disease, because his wife had them and got sick from them.

I also experienced muscle weakness, which made it hard to pick up heavy objects,

as my wrists just couldn't muster the needed strength.

When doctors are mystified by what is ailing us, that is one big indicator that

implants are somehow involved. I can't tell you how many women have been told

by their doctors that they don't know what is wrong...I think it nearly

approaches 100% !!!!!

The fact that you already had thyroid issues indicates that you were more

susceptible to the negative effects that implants might cause....have you had

any changes in your blood work since getting implants?

I reacted to my implants in 9 short months....it is not unusual for you to be

showing signs of illness now and for those signs to continue to get more severe

as time goes on. The sooner you act to address what is happening inside your

body, the better for you.

I hope this helps. God bless!

Patty

>

> I had my saline implants put in march of 2008, I already had throid issues.

But since may 2009 I have been experiencing pain, tingling, itching, and

swelling in my hands & a little in my feet.

> I have been sent to Drs. and specialist and they come up with nothing.

> I was a dental assistant and am unable to work because my hands don't always

cooperate. they are constantly painful and weak, I have had to stop wearing my

rings cause the no longer fit. So I guess my question is how do I find out if

this is related to the implants.

> Please help me with any info possible. I am in OK. Thanks

>

October 28, 2010

Me and my family bought a home, and long story short the previous owners

covered up a mold issue. Myself and my son started getting sick about 6 months

after we moved in, this was in January 07, when my son was 1 1/2 years old and

we continued to live in the home till he turned 4. Now I am in litigation

against the sellers, and the Realtor and have been unable to find a specialist

around NYC who is just not about money. My home has 40 spores per cubic meter

of stachybotrys, which I understand is not high but it affects me and my son.

We have both had allergy test done that came back negative for a allergy to

stachybotrys. I am on here tonight because I am at wits end, we moved in with

my in-laws in October of 09 and me and my son were doing great but now my son

has started school and is getting sick all over again. I assume there must be

mold at the school, but how can i get away from mold? It seems like a bad

nightmare that i cant wake up from. FInally for my questions, Can anyone

recommended a MD who is honest and helpful around NYC? Is there anyway to help

rid the body of these toxins? I thank anyone who can help, and I apologize if

this makes no sense but its because I am up at 2 o'clock with a 5 year old who

is suffering, please help.

Thanks,

Lance

October 29, 2010

Lance-I am in NYC and just started using an amazing doctor- on (he

has a website-the morrison center). He specializes in an integrative approach to

MCS and I'm going to him for my mold sensitivity. I think he is very thorough

and he listens and believes me! That is not common among regular doctors. Also,

a Dr. Ali was highly recommended in NYC, both are great and I just got an appt

with Dr. on first so I went with him.

Also, I get Jin Shin therapy (which is energy work) that saved my life when I

first got sick. I use an amazing therapist out in Woodmere but the master of

American Jin Shin, Jed Schwartz, practices in Manhattan and would be an

excellent thing for you to look into.

I'd be happy to give you more specific info-you can email me personally or just

respond on the board.

Get the mold out of your house! It took me a year or gutting my basement and

assorted other areas of my house before I could say it was mold free but it was

worth it.

Surella

>

> Me and my family bought a home, and long story short the previous owners