Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 > > Yesterday I found the log book with which I sent and received messages from > Elie's teacher his first year in his special high school. IT was his 17-18 > year. Life had been very difficult from the age of 12 and was still a daily > challenge. The notes I received alternated daays of charm and smiley faces > with removal from a class or activity by the burly behaavior manaagers. > Elie was on a plethora of drugs as we tried to find a way to help himn > control his behavior, anxiety, non-compliance. Thruout that year, his > teacher remained neverfailingly supportive with suggestions of what to do, > how she was managing, antecedents (or not) of his behavior. > > Fast forward to now. Elie is 22yo, goes to daily day habilitation program > with work component. Effective with the start of this month, ELie has his > own personal support person who not only takes him to and from work, but > takes him out into the community where he works and where he lives. Sounds > goo, is good and is making his life very full. Then came BLACK THRUSDAY - > work is cancelled because of inclement weather on the mountain where he > works. We down on a lower mountain didn't have any weather problems. Elie > was so sad at not being able to work. HE kept looking out the window to > check that it was sunny and nice. No way did he understand why he couldn't > go to work. Along about 10 AM a phone call came from his buddy who also > wowrks with Elie. He needed to go to the doctor for his physical and since > it was a work canclled day, his mom called and got an appointment to come in > for his physical. Elie was asked if he would like to go with his buddy to > the doctor.. Elie's friend (we will call him Bradly) is 6 ft. 2 " , is > autistic with acute anxiety - especially white coat anxiety. Elie agreed > that he would love to go ride with Bradly. Arriving at the doctor's office, > Elie immediately got out of the car, assisted (remember that Elie is 4 ft. 8 > " ) his now moaning friend out of the car. HE took Bradly by the hand, led > him in, talking soothingly all the way (soft mewing sounds, sometimes words) > . Instead of 4 adults holding Bradly down while a perfunctory physical > occured, Elie helped him take off his clothes (except for his briefs), held > his hand, told him to open his mouth, breath deep, turn his head, etc. > Bradly came home with a smile, instead of needing ativan to sedate him and > bruises from fighting the staff. Elie came in and announced " Bradly got > happy faace " . > > For those of my sisters in the war of raising a child with duel dx., the > teen years may be awful - they were for me- but on the other side may be a > time of such general day to day ease and less stress. I still take a book > if we have to go anywhere in case Elie freezes (spent 2 endless hours in > 's last month) but he doesn't fight, bite, scream, or stay aawake all > nite long. > > -- > Sara - Life is a journey- we choose the path. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Sara, This story is precious and priceless- you can't beat it! My heart is so full and encouraged of what can be. Thank you for sharing, Mom to , 4 yrs. old DS/PDD-NOS To: @...: pastmidvale@...: Sun, 20 Jan 2008 19:03:53 -0500Subject: Life Changes - Sometimes surprisingly Yesterday I found the log book with which I sent and received messages fromElie's teacher his first year in his special high school. IT was his 17-18year. Life had been very difficult from the age of 12 and was still a dailychallenge. The notes I received alternated daays of charm and smiley faceswith removal from a class or activity by the burly behaavior manaagers.Elie was on a plethora of drugs as we tried to find a way to help himncontrol his behavior, anxiety, non-compliance. Thruout that year, histeacher remained neverfailingly supportive with suggestions of what to do,how she was managing, antecedents (or not) of his behavior.Fast forward to now. Elie is 22yo, goes to daily day habilitation programwith work component. Effective with the start of this month, ELie has hisown personal support person who not only takes him to and from work, buttakes him out into the community where he works and where he lives. Soundsgoo, is good and is making his life very full. Then came BLACK THRUSDAY -work is cancelled because of inclement weather on the mountain where heworks. We down on a lower mountain didn't have any weather problems. Eliewas so sad at not being able to work. HE kept looking out the window tocheck that it was sunny and nice. No way did he understand why he couldn'tgo to work. Along about 10 AM a phone call came from his buddy who alsowowrks with Elie. He needed to go to the doctor for his physical and sinceit was a work canclled day, his mom called and got an appointment to come infor his physical. Elie was asked if he would like to go with his buddy tothe doctor.. Elie's friend (we will call him Bradly) is 6 ft. 2 " , isautistic with acute anxiety - especially white coat anxiety. Elie agreedthat he would love to go ride with Bradly. Arriving at the doctor's office,Elie immediately got out of the car, assisted (remember that Elie is 4 ft. 8 " ) his now moaning friend out of the car. HE took Bradly by the hand, ledhim in, talking soothingly all the way (soft mewing sounds, sometimes words). Instead of 4 adults holding Bradly down while a perfunctory physicaloccured, Elie helped him take off his clothes (except for his briefs), heldhis hand, told him to open his mouth, breath deep, turn his head, etc.Bradly came home with a smile, instead of needing ativan to sedate him andbruises from fighting the staff. Elie came in and announced " Bradly gothappy faace " .For those of my sisters in the war of raising a child with duel dx., theteen years may be awful - they were for me- but on the other side may be atime of such general day to day ease and less stress. I still take a bookif we have to go anywhere in case Elie freezes (spent 2 endless hours in's last month) but he doesn't fight, bite, scream, or stay aawake allnite long.-- Sara - Life is a journey- we choose the path. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Sara, Elie is a good man. Charlyne Mom to Zeb 15 DS/OCD/ASD? Sara Cohen wrote: Yesterday I found the log book with which I sent and received messages from Elie's teacher his first year in his special high school. IT was his 17-18 year. Life had been very difficult from the age of 12 and was still a daily challenge. The notes I received alternated daays of charm and smiley faces with removal from a class or activity by the burly behaavior manaagers. Elie was on a plethora of drugs as we tried to find a way to help himn control his behavior, anxiety, non-compliance. Thruout that year, his teacher remained neverfailingly supportive with suggestions of what to do, how she was managing, antecedents (or not) of his behavior. Fast forward to now. Elie is 22yo, goes to daily day habilitation program with work component. Effective with the start of this month, ELie has his own personal support person who not only takes him to and from work, but takes him out into the community where he works and where he lives. Sounds goo, is good and is making his life very full. Then came BLACK THRUSDAY - work is cancelled because of inclement weather on the mountain where he works. We down on a lower mountain didn't have any weather problems. Elie was so sad at not being able to work. HE kept looking out the window to check that it was sunny and nice. No way did he understand why he couldn't go to work. Along about 10 AM a phone call came from his buddy who also wowrks with Elie. He needed to go to the doctor for his physical and since it was a work canclled day, his mom called and got an appointment to come in for his physical. Elie was asked if he would like to go with his buddy to the doctor.. Elie's friend (we will call him Bradly) is 6 ft. 2 " , is autistic with acute anxiety - especially white coat anxiety. Elie agreed that he would love to go ride with Bradly. Arriving at the doctor's office, Elie immediately got out of the car, assisted (remember that Elie is 4 ft. 8 " ) his now moaning friend out of the car. HE took Bradly by the hand, led him in, talking soothingly all the way (soft mewing sounds, sometimes words) . Instead of 4 adults holding Bradly down while a perfunctory physical occured, Elie helped him take off his clothes (except for his briefs), held his hand, told him to open his mouth, breath deep, turn his head, etc. Bradly came home with a smile, instead of needing ativan to sedate him and bruises from fighting the staff. Elie came in and announced " Bradly got happy faace " . For those of my sisters in the war of raising a child with duel dx., the teen years may be awful - they were for me- but on the other side may be a time of such general day to day ease and less stress. I still take a book if we have to go anywhere in case Elie freezes (spent 2 endless hours in 's last month) but he doesn't fight, bite, scream, or stay aawake all nite long. -- Sara - Life is a journey- we choose the path. Quote Link to comment Share on other sites More sharing options...
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