Re:

[Guest guest]

In a message dated 01/02/2000 8:24:54 AM Eastern Standard Time,

vivianrisse@... writes:

<< Yours and His, Vivian, who knows it was so nice of Barb to let us steal

her idea of writing stuff after our names like I'm doing now! >>

actually it is sharing, not stealing

Barb

who is ready for tomorrow's 21 dc's cuz I did Kathy y's Kickboxing this

morning without even a twinge from my injured muscle so bring on those

challenges!!!

AKA:POMBarb, Mad-Dame Yenta, Tae-Bo Barb

" Cats and Teens will do what they want and

Dogs and Parents just better get used to it "

<A HREF= " http://hometown.aol.com/horsemom2/myhomepage/index.html " >Barb's

Places on the web</A>

[Guest guest]

I have not had tested. Is this usually recommended for siblings? She

has been very healthy since she was 3 (now 5). She had many ear infections

from 6 mo - 2 yrs old, but never required tubes.

Thanks,

Re:

>, hello, and welcome to the group.

>

>I am and I have two children with PID. is 5 , and

just

>turned 3. is by far the worse off of my two, in fact it was not

>until they screened my daughter after was diagnosed that we found

out

> she had the sAme deficiency.

>

> Has been tested?

>

> is also on Pediasure as a diet supplement. He was diagnosed with

>malnutrition and 'failure to thrive' last year, and Pediasure was part of

>what bumped his weight up from the 3 percentile to the next level.

>

>I am glad you took the step of making an appt with an immunologist for

.

>There are so many possible complications of PID and a full workup would

be

>helpful in knowing more about s condition.

>

>Ask as many questions of the group as you can think of, so you can be

>prepared for that appt in May.

>

>Take care,

>

>, mum to (5) and (3) both with selective IgA def,

>dysfunctional antibody def, hypothyroidism, GI issues, asthma, and

()

>CPH

>

>

>This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

[Guest guest]

,

Sorry to jump in here; our ped thinks that Tabitha has a slight deficiency

but it's not worth testing. She just doesn't get sick very often. In fact,

these last 3 months, she's had 2 infections & that's more than she had all

last year! The reason he thinks she's got the deficiency is because she

exhibits to a milder degree some of the same symptoms Autumn has:

year-round allergies, tendency for sinuses to get infected, no fever when

sick, and slight wheezing (occasional). He said medically, he couldn't

justify the expense of the test & unless she gets significantly worse he's

not going to worry about it. We have discussed allergy tests for her when

she gets older, but right now the Zyrtec keeps them under control. We have

2 other children in the families with PID--all of them on my father's side

of the family. One of these children is IgA deficient & the other is IgG

def. Both of these children are 8-10 years old & probably won't outgrow

their deficiencies.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

[Guest guest]

HI ,

Just wanted to let you know that I have not forgotten to post the list of

books that I promised you a week or so ago. It has been a rough week. I

will send you the list this weekend )

Autumn (Mom to Mark Cd5-Cd19 PID and )

Re: Official answer to IgG level/illness question

> ALRIGHT! HERE IT IS!

>

> I had the opportunity to ask a renown immunologist our perplexing question

> about IgG levels being increased due to illness. The response is below. If

I

> interpret it right, it seems as though he's saying that anyone with CVID

> (i.e. with a T or B cell problem) would NOT have a falsely high IgG

reading

> during or after illness. In fact, the lack of a big IgG response would

seem

> to be more likely.

>

> To back up, when EMily's immuno here said her levels might have been

higher

> previously due to constant illness, we only knew that she had SOME immune

> disorder, did not know any particulars. It could just be that her IgGs

were

> decreasing over time? Or maybe she just totally disagrees with the

statement

> below????? Just another example of how SIMPLE and easy and non-mysterious

the

> immune system is, huh? RIGHT! Anyway, for what it's worth:

>

> <<<<<<<<

> >Dear Mrs. Albrecht,

> Your question is an interesting one - and does not have an easy and

> straight forward answer.

> Individuals with frequent infections, e.g. due to difficult living

> conditions and constant exposure to infectious agents, and no treatment

> (e.g. children in Africa),

> have much higher levels of serum immunoglobulins than age mached children

> in the developed world. Patients with a condition that makes them

> susceptible to frequent and persistent infections (not related to the

> classic Immune system e.g. T and B cells) have also higher Ig levels than

> controls.

> However, patients with immune deficiency due to a B or T cell defect have

> low immunoglobulin levels inspite of frequent infections. If Emely belongs

> to the latter group, her Ig levels are not expected to change

> significantly during or after an infection.

> On the other hand, immunoglobulin levels do not always tell the story. It

> is much more important to measure antibody responses after immunization

> with various antigens.

> This hopefully will help.>>>>>>>>>>>>>>>>

> >

> >

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

[Guest guest]

I told the nurse last night that if we still had this problem by Monday I

was calling her back. So, I'm giving this last treatment through the

weekend. She's still scratching at one side of her scalp today, but I did

notice that it looks like she was bit by an ant or something on that same

side, so maybe it's something different. I haven't been able to find any on

her scalp today.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

[Guest guest]

Our school has the same policy, but the school rarely enforces it. Every

time Tabitha comes home with them, my husband & I go through her hair

thoroughly & get them all out. Two-3 weeks later (long after I've retreated

her) she comes up with them again. Poor Autumn has had this problem almost

non-stop since the very end of February. My husband & I are just sick to

death of it.

We tried the vaseline approach last night & I think it might work. I know

there's no way anything can live underneath all that thick gel. Now, if I

could just get it to wash out. . .!

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

[Guest guest]

OOPS! Forgot to add. . . my husband's a plumber & the first thing he did

was turn up our water heater. Definitely it's not an environmental issue.

I was just wondering if all the meds she takes makes her more susceptible. .

..?

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

[Guest guest]

,

To get the vaseline out you might try dishwashing liquid. I don't know how

irritating it would be to her skin, but something like Dawn might cut the

grease out of the hair.

[Guest guest]

,

Caelan had his levels rechecked on Wed during a cold, does this mean they

won't be accurate?

[Guest guest]

, I was unable to get in touch with s immuno to double check,

but his collegue sent me a reply to my question regarding timing for IgG

level testing since is just recovering from pneumonia, and it is

now nearly 5 weeks since the pneumovax. He wrote

" ....recent infection should not alter results signifigantly umless it (the

pneumonia) was caused by the pneumococcal germ " and that the pneumococcal

test can be done between 4 and 6 weeks after vaccination without

significantly altering the results.

We do not know if the pneumonia was caused by the pneumococcal germ, so we

are testing at 6 weeks to be safe. The last IgG levels done showed

to be borgerline deficient in IgG2 and 4, so I want to be sure of a true

reading .

BTW, this dr is a Senior Lecturer of the major University in WA, Department

of Pediatrics, and on the team at the childrens hospital, so I have to trust

in his response. Well, at least TRY to!

had some good information too, but I'll let her post that.

, and s mum

Re:

> ,

>

> Caelan had his levels rechecked on Wed during a cold, does this mean they

> won't be accurate?

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

[Guest guest]

Thanks! We're one step ahead of you already, though. I use an Avent

breastpump & have several bottles. He's been on formula (3 bottles per day

with 5 b/fings) & is doing great. I'm taking him in to be weighed tomorrow.

I'm also taking in both sisters. Autumn sounds yuck (again) & Tabitha has

an eye swelling almost shut & it doesn't look even close to pinkeye. I'm

thinking she got bit by something or got something in it, but who knows.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery, 1 month

>From: bunneegirl@...

>Reply-To: PedPID

>To: PedPID

>Subject: Re:

>Date: Fri, 15 Jun 2001 14:13:27 EDT

>

>:

>

>Not that you asked (!) but " Avent " bottles are supposedly good for

>breastfeeding babies because the nipple has a big " breast " behind it

>(that's

>why the bottles are so wide around)...

>

>Just trying to be helpful!

>

> (mom to , age 2, polysaccharide antibody def, IgA def)

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

, I just wanted to let you know that Lucas has similar diagnosis as

. He has never had a life threatening illness. But...... had chronic

illness that did not go away with antx. By the time he was nearly four and

diagnosed with asthma and we did not have more than 6 days of wellness in 6

months and we were having major behavioral problems our immuno was willing to

go with the IVIg. You do cross a line when you start it because every 3 weeks

comes very quickly . Starting an IV on a two year old is traumatic for

everyone and ports are not without risks. I know for us it has been well

worth it for the quality in his life overall. He has many more well days now

even when he is still having illnesses. I think we are putting his diagnosis

together and really do not know what we will have until he is much older. The

question for me is what is his quality of life on a daily basis? and is he

able to live up to his potential without it?. I still have hope as all of us

do that a miracle will happen that our kids will get well and not need all of

the medical interventions. But.....I want him to have as much as I can make

available to him. IT may be worth getting another opinion even from the IDF

docs. This will require your confronting your doc with why you think she

needs to have IVIg now and a history of your record of her severe and chronic

illnesses. I will have to say this is what we did minus the IDF docs. PID is

found in many cases prior to a very severe life threatening infection now

that we do have good antx and better lab tests available. Should you wait? I

do not know. It will require alot of discussion, prayer and soul searching

for you to come to that answer. I will say that the mold made Lucas sicker

because it bombarded his immune system so heavily. I would also say that if

you feel very strongly that you want to start the IVIg infusions you could

probably get someone to move you into that direction by getting other

opinions. No physician that I know would go against a parent strong wishes

particularly with the risks of life threatening illness. Please do not

misunderstand what I am saying. It is a very difficult decision to make and I

will be pryying for you as you explore your options . I always wonder if I

have done enough, called/ visited the right people, pushed hard enough, read

enough or seen enough to know that I am doing everything I can to make

Lucas's life as good as possible. But, I try to rest in the knowledge that

God will give me the strength to walk through what ever I need and that the

right people and choices will be in my path. Because it has been proved out

so many times I try to rest in HIS Peace. (Easier said than done) as I

remember my posts this week. Thinking of you and . BARBIE

[Guest guest]

Don't worry, your posts will probably get sent at some point -- I have the

same trouble and it's all AOL's fault. They were supposedly fixing this

problem months ago. Yeah right. You'll probably also receive some posts late

and in batches, out of order. Let's mutiny!

(mom to , age 2, polysaccharide antibody def, IgA def)

[Guest guest]

Oh, I feel for you and all the moms who send their kids to school. We're

years from that and it already gives me butterflies just to consider it! I

wish you luck and peace.

>>>>>>>>>>>>>> " My doctor said that if he is exposed to chicken pox, he has to

come in for a shot of immune globulin for chicken pox. He already receives

IVIG every six weeks. Has anyone else been told this? " >>>>>>>

Yes, I've heard of that and I believe it's called VZIG, for varicella zoster

immune globulin. If you child is exposed you hurry and get that and it's

supposed to fight off the virus for them. I also hear of kids getting

acyclovir (an anti-viral) to kick it. I believe that's an oral med. I don't

know if you choose between one and the other or do both...

(mom to , age 2, polysaccharide antibody def, IgA def)

[Guest guest]

Autumn,

I'm sorry that is still not any better than last week. That is

certainly not good news. Do they expect that increasing the steroids will

help? What is causing him to have so much trouble still or do they even

know? We are weaning off steroids this weekend and they appear to be

helping, well everything but sleep that is!

> Hi ,

> Thank you so much for asking about . We went to the

> allergist/immunologist this morning for a repeat PFT to see if things were

> better after 7 days of steroids. 's PFT was worse this morning then

it

> was a week ago. His FEV 25-75 was at 50% (which remains, extremely low

but

> the same as last week which was 51% ) and his other numbers were worse.

> They increased his steroids and said that we would need to return in a

week.

>

> Autumn (Mom to Mark Cd5-Cd19 PID and )

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

[Guest guest]

In a message dated 11/8/01 7:58:03 AM Pacific Standard Time, beth@...

writes:

> Omnicef

> seems to clear him quicker & help more with the headache, pressure & pain

>

Beth,

I have not heard of Omnicef. has been on Augmentum for 15 days then

swithed to Ceftin for the last 2 weeks. His cultures show nothing is

growing......My ped doesn't think Ceftin will help. Im hoping the Prevnar

will help.

I'll look up Omnicef...........thanks.

so far is developing normally we have not hit adolescence yet. He is 90

lbs and solid as a rock due to three years on team with gymnastics. He is

short for his age but we contribute that to his parents !!

On the 29th they will draw Pneumococcal Polysaccharide labs......also a CAT

scan to see if the frontal and right side have drained.

Tell (Wade) thanks for the encouragement. needs it right now.

I let his pain therapist read his commets about Stanford Doctors and she gave

him the choice to take a week off.........we have been going down once a week

for the last 9 weeks for pain therapy. He chose to take the week off. I was

thankful that she was sensitive to his needs.

I'll be keeping in touch

Thanks

le

11, Selective Antibody Def., IVIG for 4 years, every 3 weeks.

Syringomyelia

6 surgeries in two years before being diagnosed: 4 sinus, tonsil and adenoids

removed, septic hip since IVIG 0 surgery needed!

Trailing off IVIG 6/28/01... Biopsy of throat and Nasal endoscopy 10/24/01

[Guest guest]

In a message dated 11/9/01 5:19:16 AM Pacific Standard Time, llkraft@...

writes:

> Who do you see at Stanford?

Lorri,

We have several doctors at LPCH, Stanford

Immunologist: Dr. Shames

Neurologist: Dr. Fisher

ENT: Dr. Messner

Urologist: Dr. Kennedy

Gastroentrologist Dr.

Pain Therapy: Spence

Have you seen any of them? Who was your immunologist?

le

11, Selective Antibody Def., IVIG for 4 years, every 3 weeks.

Syringomyelia

6 surgeries in two years before being diagnosed: 4 sinus, tonsil and adenoids

removed, septic hip since IVIG 0 surgery needed!

Trailing off IVIG 6/28/01... Biopsy of throat and Nasal endoscopy 10/24/01

[Guest guest]

,

I feel the same way you do about a letter. If I am very upset about

something, I learned to write it all in a letter. I found this very

therapeutic. I get all my anger and frustrations out and really say what I

have to say, and I always write it before I go to bed. When I wake up in the

morning, I will read that letter, and 99.9% of the time, it is such a horrible

and mean, and so full of anger letter, that I that I throw it away, because

after reading it a second time, after I have time to really sleep on it, I

realize that, that's not really the letter that I want to send. I would want to

send one very mature and professional, but also a letter expressing my feelings

and thoughts about what is truly bothering me. So, I am glad that you do this

also. I learned this therapy in my divorce class, and I find it very

therapeutic. I am still so sorry for what you are going through with them

. Please rest, and don't get too frustrated from all of this. You really

have come so far. Let us know what happens. My thoughts are with you always

.

Love, Sue #2

[Guest guest]

In a message dated 3/11/2003 9:39:26 PM Central Standard Time,

diggerelly@... writes:

> Hey ..you're not alone!!!

>

> And you have a MUCH better chance of getting to a meeting than I do!

>

> Kristy

>

>

Yeah right! With a hubby fixing to start college and 2 kids in braces?? And

you think I'm gonna get to Ca. anytime soon?? I don't think so....LOL.

in Bama

http://hometown.aol.com/mdl1031/myhomepage/profile.html

Surgery- RNY to DS revision on12/6 -377.5

2/17 - 346.5 ( minus 31lbs)

01/15- 338.1 (minus 39.1lbs)

02/12-330.0 (minus 47.5 lbs)

03/02- 325 (minus 52.5 lbs)

[Guest guest]

Patty,

You have had enough stress to make having a special needs kid on top

of it overwhelming. What I have had to do is just accept my son will

be different and not ever fit my idea of normal. He will not have

the experiences I or his father had as a child, but instead will have

his own and very unique experiences. The joy I had as a child

playing with friends he does not and probably will not ever

understand, as I will not understand his laughter over building

something with legos and a motor that falls apart in moments when if

he'd just do it right it would work. These kids seem to fixate on

things and losing Tommy is one of his as losing our Angel (his neice

we took care of frequently) is one to . They aren't being

hateful and angry on purpose they just don't get the social stuff

with being respectful and polite and why to try to bother with that

stuff. Try to look for the good in Autism with your son, the

abilities and gifts it gives him, the perserverence to

learn " everything about a subject " , appreciate every hug and kiss as

they don't come as often. As for your ex it seems frequently dads

have a harder time with their sons being less than perfect (the best

ball player, the toughest kid, etc) its taken my husband much longer

to come around than it did me, it took my dad longer than my mom.

God bless you!

Dana (Joy's mom 10 yo AS,ADHD, and sleepless wonder)

-- In autism-aspergers , " Patty " <pattybaker@c...>

wrote:

> He is definately doing better with that area, but we don't have

many children near our apt, and when he does have a friend over he

gets frustrated with them if they don't play the same way he does. I

thought a lot of this was because I went thru a very horrible and

physical divorce with his father when he was about 1, and at 9 mos

old my brother was diagnosed with cancer, so we flew every other

month to San Diego to take turns with my Mom until he died 22 months

later. That sent me into a major depression, but I

still " functioned " . That was 4 years ago, and he still cries at least

twice a month over losing his Tommy. I get frustrated so easily,

because I am tired, and I can't seem to get why he just can't do the

things other kids do. He is so bright, and sensitive, but when he is

in one of his moods, he can be so hurtful and angry. I do feel a lot

of guilt, and I feel that I am always having to fight for the simple

things in life that he should just have, like respect and kindness. I

have called his pediatrician for a referral to a child psychologist,

but I don't want him medicated. I am also getting a lot of flack from

his father regarding not having the " perfect " child. Thanks for the

support, Patty

[Guest guest]

I'm sorry you have had such stress. I can somewhat identify, as I went through kidney cancer myself two years ago (and won!). When people I know stress over trivial things like which place to go on vacation or whatever, I wish they could live for a week in my shoes.....they don't know 24/7 stress like we do, who have special needs kids. There is no break, unless you're lucky enough to have someone who can take over for a day or two so you can get away. That is very refreshing for you, if it's possible to do.

I totally understand about the 'moods' because my daughter has always been like that too. She is hurtful and angry still, quite often (at 15). I think she may be bipolar (too) but we'll see as she gets older. For example, two days ago she came and stood a foot away from me and screamed at me nonstop for about 15 minutes about this and that and that and this...I am not even sure what brought it on (stuff about her boyfriend and her and how she's growing up, etc)....

Anyway, don't know how helpful this is, but hopefully it feels good to vent and know others are here who understand.

maralee

Hi I am desperate to find ways to handle my son with Aspergers, especially in the daycare. His social interaction inabilities are starting to cause issues like teasing, bullying, and he is very desperate to be part of a group but doesn't act like other kids, and doesn't know how to deal with his emotions and disappointments. His school teacher is researching and is doing a great job with him, but the daycare is a really bad situation. I also have OCD and I get quite frustrated with his behavior and want to know how to deal with him and teach him, so I can help him and myself. Please any advice will be appreciated

[Guest guest]

I am also getting a lot of flack from his father regarding not

having the " perfect " child. Thanks for the support, Patty

Patty, there aren't any perfect children walking this earth! I'm

sorry you don't have the support of his father, because this is hard.

If at all possible, try to network with other ASD/AS Moms. I don't

know where you are geographically, and they can be difficult to find

in certain areas, but there are support groups out there. I'm

thinking of trying to start one in my little rural area. With ASD/AS

rising at the alarming rate that it is, other families are emerging

all the time.

I'm getting better at ignoring the folks who think a stern look in my

direction will force me into " handling " my son's public meltdowns,

but sometimes I just want to shout, " He's autistic, cut him some

slack!!! " My husband is supportive, but his job keeps him away much

of the time which means I take everywhere with me, and sometimes

I can't take him to the car right away to let him calm down. I just

hold him tightly and try to soothe him until I can finish whatever,

and get us out of there! Making sure I have the " it " toy of the

moment before we go anywhere really helps too!

I hope you can find a support system, Patty, as we all need it.

God Bless,

Sherry

[Guest guest]

Thank you for the advice and support

Re:

Patty,You have had enough stress to make having a special needs kid on top of it overwhelming. What I have had to do is just accept my son will be different and not ever fit my idea of normal. He will not have the experiences I or his father had as a child, but instead will have his own and very unique experiences. The joy I had as a child playing with friends he does not and probably will not ever understand, as I will not understand his laughter over building something with legos and a motor that falls apart in moments when if he'd just do it right it would work. These kids seem to fixate on things and losing Tommy is one of his as losing our Angel (his neice we took care of frequently) is one to . They aren't being hateful and angry on purpose they just don't get the social stuff with being respectful and polite and why to try to bother with that stuff. Try to look for the good in Autism with your son, the abilities and gifts it gives him, the perserverence to learn "everything about a subject", appreciate every hug and kiss as they don't come as often. As for your ex it seems frequently dads have a harder time with their sons being less than perfect (the best ball player, the toughest kid, etc) its taken my husband much longer to come around than it did me, it took my dad longer than my mom. God bless you!Dana (Joy's mom 10 yo AS,ADHD, and sleepless wonder)-- In autism-aspergers , "Patty" <pattybaker@c...> wrote:> He is definately doing better with that area, but we don't have many children near our apt, and when he does have a friend over he gets frustrated with them if they don't play the same way he does. I thought a lot of this was because I went thru a very horrible and physical divorce with his father when he was about 1, and at 9 mos old my brother was diagnosed with cancer, so we flew every other month to San Diego to take turns with my Mom until he died 22 months later. That sent me into a major depression, but I still "functioned". That was 4 years ago, and he still cries at least twice a month over losing his Tommy. I get frustrated so easily, because I am tired, and I can't seem to get why he just can't do the things other kids do. He is so bright, and sensitive, but when he is in one of his moods, he can be so hurtful and angry. I do feel a lot of guilt, and I feel that I am always having to fight for the simple things in life that he should just have, like respect and kindness. I have called his pediatrician for a referral to a child psychologist, but I don't want him medicated. I am also getting a lot of flack from his father regarding not having the "perfect" child. Thanks for the support, Patty

[Guest guest]

The secretary at my work is the one who suggested As, her son is autistic and she is the most caring person I have met. We laugh together in private when we tell stories about the day in the life of......I think it is so natural for a mother to be protective of their child, and I have this overwhelming loyalty and protective nature in me when it regards ANY member of my family and always will have. I have had many instances when I just come up with the best response to someone gawking or picking on my family. It can be a little overwhelming for my small family, and I have been told to butt out several times, but they love me for that quality and it comes in handy when they need the mouth to fix things!!! Ha ha

Re:

I am also getting a lot of flack from his father regarding not having the "perfect" child. Thanks for the support, PattyPatty, there aren't any perfect children walking this earth! I'm sorry you don't have the support of his father, because this is hard. If at all possible, try to network with other ASD/AS Moms. I don't know where you are geographically, and they can be difficult to find in certain areas, but there are support groups out there. I'm thinking of trying to start one in my little rural area. With ASD/AS rising at the alarming rate that it is, other families are emerging all the time.I'm getting better at ignoring the folks who think a stern look in my direction will force me into "handling" my son's public meltdowns, but sometimes I just want to shout, "He's autistic, cut him some slack!!!" My husband is supportive, but his job keeps him away much of the time which means I take everywhere with me, and sometimes I can't take him to the car right away to let him calm down. I just hold him tightly and try to soothe him until I can finish whatever, and get us out of there! Making sure I have the "it" toy of the moment before we go anywhere really helps too!I hope you can find a support system, Patty, as we all need it.God Bless,Sherry

[Guest guest]

Dear Ray,

I can only imagine the horror you feel when your son has these tantrums.

It's so very hard to have to send him to a hospital I am sure. I cannot say I

know exactly what you feel because I am not in your shoes, but I want you to

know someone cares and you, , and your family are in my prayers.

Love,

Valrie