Support Groups for CMT

[Guest guest]

I'd just like to hear from those of you who are attending CMT Support groups? Do

you feel you receive the 'support' you need? Do you share notes on

doctors/physical therapists? Has your group made a listing of

doctors/PTs/orthotists/other services in your area? Has your group been active

in any fundraising projects? Do you like the social aspect of meeting others you

have something in common with? Do you leave all the organization to leaders and

just take what's offered? Has your support group established any goals?

And for those of you who choose not to participate in a Support Group, can you

tell my why? Driving distance, already know about CMT, don't want to meet with

others and hear problems? Too busy? Prefer online CMT communication? Other

pros/cons?

Gretchen

[Guest guest]

Gretchen,

I live in Wisconsin and as far as I know, there are no support group

meetings in my state. I would be willing to drive to a bigger city,

if only there was a meeting to attend. I live in a small town, and

only know of one person here with CMT.

Bonnie