Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 Hello All - I have been told by my Neurologist that my sub-type does not mesh with any of the already identified sub-types. CMT goes back four generations in my ancestry. Grandparents, aunts, uncles, and cousins have the similar symptoms. The Neurology team will be bringing a portable test kit, take blood, and do swabs at my family reunion in a couple of months. I just have no balance! I've fallen several times and have even fractured my wrist badly last year. Absent light...things begin spinning and I fall. Uneven ground ... a real challenge. Without my cane to counter-balance...I fall. Every waking moment I'm thinking... " balance " or you will fall. Find a wall to lean on or lay down. These are the only times I can relax and close my eyes. I'm taking physical therapy for balance but I'm not certain that " dead " sensory nerves (neuronopathy)in my 6'6 " frame can come to life again. All of my relatives are very tall like me. Could my family's problem be the length of these peripheral nerves? Can balance be regained? I'm 59 years old. -wheels Quote Link to comment Share on other sites More sharing options...
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