Re: Beware of the Tooth in CMT

[Guest guest]

Thanks Mark - I found that I had also lost much bone around the abscess.

I, most likely, will be faced with a future of dentures, like my dad S(with

CMT). I'd better check the eyes.

From: markboxshus [mailto:boscoe1@...]

Sent: Wednesday, March 24, 2010 2:13 PM

; cdwheels3@...

Cc: markboxshus

Subject: Re: Beware of the Tooth in CMT

I've had several issues with novacaine not working properly unless the

dentist performs a nerve block or gives me twice the normal dosage. Also,

my medications cause severe dry mouth and I've lost a majority of my teeth

due to the insane decay that takes place. Yes, teeth can directly, or

indirectly be affected because of CMT.

Mark P Boxshus

New England Support Group Leader

Charcot Marie Tooth Association

CMTAUSA.org

MarkB_CMTANE@...

Boscoe1@...

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On Mar 24, 2010, at 1:57 PM, cdwheels3@... wrote:

Hello All -

An interesting thing happened to me yesterday. I had scheduled my regular

annual dental exam...but went in a day early because of a severe pain in the

back of my lower jaw. Come to find out that I had had an abcess in the nerve

of that tooth for at least eight (8) months and didn't feel the pain. I was

able to look at an xray from July 2009 and saw the same abcess. I had to

have an emergency root canal.

Does this make sense to anybody? Are the sensory nerves affected even in the

mouth? I had been concentrating on the feet and hands but now I am forced to

beware of the possibility of CMT affecting sensory nerves all over.

-wheels (alias- fat left jaw)

[Guest guest]

Yep, I just went through the same thing. I had to get a re-treatment of a tooth

that was root canalled 15 years ago. It was infected and I did not feel the

pain either. Scary that something could be infected for a long time and not

know it.

Thanks

Beware of the Tooth in CMT

Hello All -

An interesting thing happened to me yesterday. I had scheduled my regular

annual dental exam...but went in a day early because of a severe pain in the

back of my lower jaw. Come to find out that I had had an abcess in the nerve of

that tooth for at least eight (8) months and didn't feel the pain. I was able to

look at an xray from July 2009 and saw the same abcess. I had to have an

emergency root canal.

Does this make sense to anybody? Are the sensory nerves affected even in the

mouth? I had been concentrating on the feet and hands but now I am forced to

beware of the possibility of CMT affecting sensory nerves all over.

-wheels (alias- fat left jaw)

[Guest guest]

Hello all,

I never had that problem at all.I have great teeth.I do have CMT but never

heard that it could affect your mouth.

>

> Yep, I just went through the same thing. I had to get a re-treatment of a

tooth that was root canalled 15 years ago. It was infected and I did not feel

the pain either. Scary that something could be infected for a long time and not

know it.

>

>

> Thanks

>

>

> Beware of the Tooth in CMT

>

>

>

> Hello All -

>

> An interesting thing happened to me yesterday. I had scheduled my regular

annual dental exam...but went in a day early because of a severe pain in the

back of my lower jaw. Come to find out that I had had an abcess in the nerve of

that tooth for at least eight (8) months and didn't feel the pain. I was able to

look at an xray from July 2009 and saw the same abcess. I had to have an

emergency root canal.

>

> Does this make sense to anybody? Are the sensory nerves affected even in the

mouth? I had been concentrating on the feet and hands but now I am forced to

beware of the possibility of CMT affecting sensory nerves all over.

>

> -wheels (alias- fat left jaw)

>

>

>

>

>

>

[Guest guest]

I have horrible teeth they are getting worse all the time. My

daughter had mention she thought it might be my CMT.

On Mar 24, 2010, at 2:56 PM, fittness35 wrote:

> Hello all,

> I never had that problem at all.I have great teeth.I do have CMT but

> never heard that it could affect your mouth.

>

>

>

>

> >

> > Yep, I just went through the same thing. I had to get a re-

> treatment of a tooth that was root canalled 15 years ago. It was

> infected and I did not feel the pain either. Scary that something

> could be infected for a long time and not know it.

> >

> >

> > Thanks

> >

> >

> > Beware of the Tooth in CMT

> >

> >

> >

> > Hello All -

> >

> > An interesting thing happened to me yesterday. I had scheduled my

> regular annual dental exam...but went in a day early because of a

> severe pain in the back of my lower jaw. Come to find out that I had

> had an abcess in the nerve of that tooth for at least eight (8)

> months and didn't feel the pain. I was able to look at an xray from

> July 2009 and saw the same abcess. I had to have an emergency root

> canal.

> >

> > Does this make sense to anybody? Are the sensory nerves affected

> even in the mouth? I had been concentrating on the feet and hands

> but now I am forced to beware of the possibility of CMT affecting

> sensory nerves all over.

> >

> > -wheels (alias- fat left jaw)

> >

> >

> >

> >

> >

> >

[Guest guest]

My teeth are much better than friends without CMT.

On Thu, Mar 25, 2010 at 7:18 AM, Bobbie <emilee@...> wrote:

>

>

> I have horrible teeth they are getting worse all the time. My

> daughter had mention she thought it might be my CMT.

>

>

> On Mar 24, 2010, at 2:56 PM, fittness35 wrote:

>

> > Hello all,

> > I never had that problem at all.I have great teeth.I do have CMT but

> > never heard that it could affect your mouth.

> >

> >

> >

> >

> > >

> > > Yep, I just went through the same thing. I had to get a re-

> > treatment of a tooth that was root canalled 15 years ago. It was

> > infected and I did not feel the pain either. Scary that something

> > could be infected for a long time and not know it.

> > >

> > >

> > > Thanks

> > >

> > >

> > > Beware of the Tooth in CMT

> > >

> > >

> > >

> > > Hello All -

> > >

> > > An interesting thing happened to me yesterday. I had scheduled my

> > regular annual dental exam...but went in a day early because of a

> > severe pain in the back of my lower jaw. Come to find out that I had

> > had an abcess in the nerve of that tooth for at least eight (8)

> > months and didn't feel the pain. I was able to look at an xray from

> > July 2009 and saw the same abcess. I had to have an emergency root

> > canal.

> > >

> > > Does this make sense to anybody? Are the sensory nerves affected

> > even in the mouth? I had been concentrating on the feet and hands

> > but now I am forced to beware of the possibility of CMT affecting

> > sensory nerves all over.

> > >

> > > -wheels (alias- fat left jaw)

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

That's why they call it Charcot Marie TOOTH disease! LOL. Sorry, I couldn't

resist. But yes. While CMT usually affects our hands and feet, it can affect

other parts of the body as well. I get muscle spasms all over - thighs, hips,

shoulders. My neuro says this is my CMT. I have had tests to rule out any other

causes.

>

> Hello All -

>

> An interesting thing happened to me yesterday. I had scheduled my regular

annual dental exam...but went in a day early because of a severe pain in the

back of my lower jaw. Come to find out that I had had an abcess in the nerve of

that tooth for at least eight (8) months and didn't feel the pain. I was able

to look at an xray from July 2009 and saw the same abcess. I had to have an

emergency root canal.

>

> Does this make sense to anybody? Are the sensory nerves affected even in the

mouth? I had been concentrating on the feet and hands but now I am forced to

beware of the possibility of CMT affecting sensory nerves all over.

>

> -wheels (alias- fat left jaw)

>

[Guest guest]

I have noticed over the years that it takes more and more novacaine for me to

get numb and my teeth are

hyper-sensitive to pain. I never had any anxiety going to the dentist, but now i

have to take a xanax to relax myself enough to

get numb and i go in earlier than my appt as it takes longer for the novacaine

to work.

Someone mentioned eyes. I know when i was going to s Hopkins they always

looked closely at my eyes as I believe there

is a greater chance for glaucomo with CMT. Gretchen, is that correct?

Jackie

Beware of the Tooth in CMT

Hello All -

An interesting thing happened to me yesterday. I had scheduled my regular annual

dental exam...but went in a day early because of a severe pain in the back of my

lower jaw. Come to find out that I had had an abcess in the nerve of that tooth

for at least eight (8) months and didn't feel the pain. I was able to look at an

xray from July 2009 and saw the same abcess. I had to have an emergency root

canal.

Does this make sense to anybody? Are the sensory nerves affected even in the

mouth? I had been concentrating on the feet and hands but now I am forced to

beware of the possibility of CMT affecting sensory nerves all over.

-wheels (alias- fat left jaw)

[Guest guest]

Wheels

I wish; I had a root abcess under a previously filled tooth last year and it

floored me; I have never felt such pain in my life. I couldn't lift my head off

the pillow. Unfortunately, even despite root canal work, the tooth had to be

extracted.

Touch wood I never have a repeat performance!

kind regards

Fiona

Glasgow, Scotland