Bone not healing - has anyone tried Forteo?

[Guest guest]

We're in the same boat. I'm over 12 months. Sucks. I started Forteo 6 weeks ago

and the results seemed encouraging. My OS would not but my primary was willing

to Rx it. Hardest part was getting insurance to OK it (Prior approval needed).

Since saw an Endocrinologist who treats bone density with Forteo and generally

works w/ bone health issues. He would have also Rx'd so is monitoring me.

[Guest guest]

---- lanman4choice <no_reply > wrote:

> We're in the same boat. I'm over 12 months. Sucks. I started Forteo 6 weeks

ago and the results seemed encouraging. My OS would not but my primary was

willing to Rx it. Hardest part was getting insurance to OK it (Prior approval

needed). Since saw an Endocrinologist who treats bone density with Forteo and

generally works w/ bone health issues. He would have also Rx'd so is monitoring

me.

>

I tried but could not use the syringe with my hand coordination, I have been on

Reclast and am growing bone for the first time in 4 years, tried the pills as

well it did not work, Mayo Clinic advised Oscal x2 and after two spinal

fractures and one fracture in my hand I am finally seeing growth due to RECLAST

treatment.

[Guest guest]

That's sounds encouraging. I gather the fractures were because of Osteoporosis?

[Guest guest]

I have CMT type 2.

In my case the cuboid, navicular and cuneiforms were broken up as a result of

CMT. The doctors explained that my nerve loss resulted in muscle loss in the

foot, and the body stops sending calcium to the bones, which become brittle and

break up.

I think I had broken bones (Charcot joint) for at least 3 years before I had a

full foot fusion in 2006. I recently (Monday) had a second surgery to realign

the foot so I'll hopefully have fewer blisters and wounds and can buy shoes that

don't resemble Herman Munster boots.

O