sorry

[Guest guest]

Hi ,

I got it once....I think, who knows. Anyway congrats on your SSDI award,

glad you fared well with the attorney you hired. I put mine in the hands of

an attorney my doctor recommended, he also has Lyme, not sure if that was

pertinent, but I did get approved.

Hugs,

Marta NJ

>From: <swsftwtx@...>

>

>I don't know why my post was sent 2 times.

[Guest guest]

That is ok a, we all make mistakes. Lets just go on and see if we can

help each other. I like your attitude on health care. I am a medical

malpractice advocate for victims. Most Victims come about because they do

not take control of their care. Myra

sorry

From: Sweetmeat <chestnutt@...>

I might have remarked on an issue but, I do not

think we got our candidia from aids, maybe over antibiotics, eating the

wrong foods for to long. Myra

Yes, that makes more sense. I thnk that the food that we eat that is

processed and packaged, the lack of good wholesome foods and lousy

doctors prescribing because " so many people want drugs " is a factor.

Had an interesting conversation with the dentist today..

I have a problem with him as I refuse freezing when I get dental work

done.He has a major attitude problem and is very impatient about working

without his novacaine. I told them that I cannot come back to him as I

refuse to be medicated and give someone the authority to drill and cut

without me feeling. THe hygenest that I talked to was shocked and stated

that she has never met anyone that thinks like me. She said they arrive

to the office and beg for freezing, gas, whatever to aviod feeling. TO

me.... this is frightening. I have undergone surgery where anesthetic

was administered, but afterwards, knowing that I would not die from the

pain, I persevered and avoided pain killers and whatnot. So many people

beg for the epideral in the parking lot when they are about to give

birth. NOT me.. natural childbirth was the way for me. Yes, I too have

taken antibiotics,but prefer not too if it can be avioded. As for diet...

fast past lives; fast paced foods. Not a great combo for good health..

Sorry if I misread your post..

My appologies..

a

---------------------------

[Guest guest]

Dear Rhodette,

Sorry I misspelled your name.

[Guest guest]

Dear Allicia,

Please ignore these ignorant people who have criticised you for being caring. I am sure they are quite capable of hitting the delete button if they don't like your message. How were you supposed to know it was a hoax? Keep sharing whatever you think is appropriate.

Warm regards,

Rosemary.

rheumatic Sorry

I realize that the blue enveople is now a hoax I sent an email saying this early today...I said I was sorry for being a little on the late side...so please do not send me anymore nasty emails...telling me I'm stupid. I am sorry again for being a little on the slow side. Allicia To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

a,

I'm sorry I didn't change the subject line, neither did you. It does get to be

a pain when we are looking for specifics and find something entirely different

in the post. I will try harder

[Guest guest]

I already apologized to Jerry, but I really feel I owe an apology to the entire

group for the bickering that I incited over the last couple of days. I really

didn't intend to cause trouble. I will do my best to keep from becoming

defensive in the future.

There are so many more important issues to discuss in this forum and it was

thoughtless of me to become petty and defensive.

Hope you guys will all forgive me.

W

[Guest guest]

Ruth,

Thank you so much. You are right about the newness of all this being overwhelming. I have known I had lupus since 1996. I always felt that I was one of the lucky ones (still do, actually). For the most part my lupus seemed mild. I dealt with it, rested when I needed to rest (most of the time), took my plaquenil (which helped a lot) and went on. No big deal, really. In July, I was hit with an attack of acute pancreatitis only 3 months after being told my pancreas was perfectly healthy and the bad times I had with it in 2000 were over, would never happen again. At the time the attack hit me, I was feeling healthier than I had felt in years. Since July, I held on to the hope that the pancreatitis returning was only a temporary setback. They would find the cause, fix me up, and again I would go on with my life. I had the liver biopsy on Dec 27th, totally convinced that it would show absolutely nothing and again this would all just be temporary. Now that I think about it and have learned more about what all the liver does and the signs of liver problems - the signs were really there - maybe even when I thought I was healthier than I had ever been. The first that I knew my liver enzymes were elevated was in March. No big deal, nothing to worry about. I felt great. The doctors told me not to worry, so I didn't. The doctors had talked about doing a liver biopsy since August because with the pancreatitis attacks, my liver enzymes elevated more and stayed elevated longer than was the norm with acute pancreatitis. Okay - so I never do things normally anyway. It's nothing new for doctors to tell me I am a mystery. I laugh about it and go on. Imagine my shock when my GI doc told me that the biopsy showed that I have autoimmune liver disease (he didn't say hepatitis, but that is what the biopsy report said). I had heard of it, but was totally clueless on it really. I actually laughed when he told me what the biopsy revealed. How stupid is that? The doc tells me I have a liver disease that is never going to go away and I laugh! I didn't ask one single question. He told me he wanted to discuss the treatment options with my rheumy, but that he didn't want me to begin treatment until at least six weeks after the hernia surgery I had on Dec 9th. He said the treatment is typically prednisone or imuran and that the liver typically responds well to medication.

It was only after I left his office that it sunk in. This is not something they can just 'fix' and I can totally forget about. This is something I will have to deal with for the rest of my life. After that reality sunk in, my first impulse was to say 'I'm not taking prednisone. I don't care what happens. I will not take that nasty drug.' That impulse lasted all of about 30 seconds. I realized that I will take prednisone if that is what I have to do. I will fight this with every ounce of my being, but I will do whatever is necessary to ensure that I am here for my family and those who need me.

My rheumie called the very next day and told me that I was to begin taking prednisone right away. I could not wait two more weeks to begin as my GI doc had told me. So far, the only side effect I've had is this awful metallic taste in the back of my throat and absolutely no appetitie. I know I am very early in the prednisone game, but I'll just take each day as it comes.

I do believe that I will be one of the 'lucky' ones with this new beast (AIH). I think it has been caught early. No one has told me that. I am making that assumption based on the biopsy report indicating that there was no cirrhosis, only fibrosis, in my liver.

Anyway, I had my shock, then my pity party, then accepted that even though this may never go away, it is not a death sentence. I'll likely be around and kicking til I'm old and gray. Since my parents are both 67 and only my dad has the tiniest amount of gray, I figure when I'm old and gray will be many, many years from now!

I have so many blessings and it could all be sooooo much worse.

I do have to say that I have felt better the last few days than I have in some time. I don't know if it is the predisone (I've been on it two weeks today) or just a coincidence. The last two days have been 10 hours plus at work - totally non-stop, but I've even had energy left at the end of the day!

Thanks to all for helping to educate me, offer compassion, caring, and understanding.

W.

[Guest guest]

as I say to my little one, forgiven and forgotten. lifes to short to bear

grudges, and we all cause problems at time. look at my track record, not good

is it,=.love anita

> From: " Weston " <karenw@...>

> Date: Wed 22/Jan/2003 17:26 GMT

>

> Subject: Re: [ ] sorry

>

>

>

> I already apologized to Jerry, but I really feel I owe an apology to the

entire

> group for the bickering that I incited over the last couple of days. I really

> didn't intend to cause trouble. I will do my best to keep from becoming

> defensive in the future.

>

> There are so many more important issues to discuss in this forum and it was

> thoughtless of me to become petty and defensive.

>

> Hope you guys will all forgive me.

> W

>

>

[Guest guest]

,

, , . 'Faget about it, we all are none the worse for

wear. I do want you to know that I was not trying to snap at you

about any of it when I wrote about the problems you will face with

the docs, just a friendly warning about what may come. We all know

what this disease and it's treatment can do. I also remember being

very overwhelmed with what info I got, and then the lack of. Then

the high dose steroids. Things happening from the meds you weren't

warned of, and scaring the heck out of you. It all tends to make one

a bit cranky. Oh, which reminds me, did your docs warn about the

mood swings and depression the steroids can cause? My family was

more excited about my tapering the prednisone than I was! Guess I

was a bit touchy on the stuff. Hard to imagine some one as sweet as

little old me being touchy, but I guess if they say so.

Hang in there, you didn't hurt or offend any of us, so don't worry.

We all still love and support 'ya. Be good to yourself.

Love,

Carole K

[Guest guest]

Carole,

Thanks. No the docs didn't tell me about prednisone causing moodiness but I already knew about that. Gives me a really good excuse now when I am moody. Of course, my hubby wants to know what my excuse was for the other 12 years of our marriage!

I was very moody the first few days on prednisone. I think I cried a river. To be honest, I'm not sure if it was the prednisone or just the shock of the diagnosis of AIH. I seem to be better for now, though.

W

[Guest guest]

> " I think we better send you home before we make you

> any more sick! "

Ruth,

Had many times I have told my husband " Get me out of this hospital -

I think they are killing me! "

I think it is the food.

Love,

Carole K

[Guest guest]

<<<<<<Perhaps we should move on... >>>>>>

LETS

but no need ot apologize.

[Guest guest]

WTG, glad to hear you made your decision, I know its been difficult road for you. ((Hugs))

sorry

corbyn hit my keyboard befoer i was donewe went and saw his dr a week ago and then we went and saw ct people at rehab here and corbyn should be going for casting next week i hope were waiting for the refund check for out vacation to arrive since we canceled our disney vacation this year so we could afford to pay for his doc band his dr said starbands are ok but perffered doc bands anyhow after the consult with the orthist yesterday we decided to go a head and band him they were very kind and helpful in helping us make up our minds we had just done the wait and see approach the past two months i have had his script for his doc band since nov but just hadnt decided if he needed it or not since he was considered mild i am sure he will be in good hands and i dont expect him to be in his band very long at least i hope not anyhow i just wanted to tell you thank for your help and kindness thank you For more plagio info

[Guest guest]

thanks it was a hard one you were very helpful as were a fwe others i still keep wondering if i am making the right one but this is the one we are gonna do for now hee hee

sorry

corbyn hit my keyboard befoer i was donewe went and saw his dr a week ago and then we went and saw ct people at rehab here and corbyn should be going for casting next week i hope were waiting for the refund check for out vacation to arrive since we canceled our disney vacation this year so we could afford to pay for his doc band his dr said starbands are ok but perffered doc bands anyhow after the consult with the orthist yesterday we decided to go a head and band him they were very kind and helpful in helping us make up our minds we had just done the wait and see approach the past two months i have had his script for his doc band since nov but just hadnt decided if he needed it or not since he was considered mild i am sure he will be in good hands and i dont expect him to be in his band very long at least i hope not anyhow i just wanted to tell you thank for your help and kindness thank you For more plagio info

[Guest guest]

Natasha,

Please don't apologize! We all miss you, but totally understand.

--- In Plagiocephaly , " Natasha Gubash " <ngubash@y...>

wrote:

> Just wanted to say hello to new and current members. I am sorry

that

> I have not been able to keep up with the posts better. I am still

> learning how to juggle two kids and the baby is running me ragged!

> LOL! She is a sweetheart though and worth all the dirty laundry

and

> dishes that aren't getting done! If I do not respond to you it is

> not intentional, I'm just a tiny bit swamped but hope to get back

on

> track really soon. Happy rounding to all!

> Natasha

> Atlanta, GA

[Guest guest]

Don’t worry about it,

this is the place to “go off” when you need to. We all buckle under

the pressure now and then and need and outlet. I know I have let off enough

steam to power a turbo engine over this board…. J Glad you got some good

news. It helps us to focus on the good things we have going on in our lives. Good

luck with your new position. –dz-

[ ]

Sorry

Just wanted to give ya'll a quick apology for going

off last night.

I am under a lot of stress right now and felt so

alone last night.

One of my problems has been solved...I received a

better job within

my company today!!! I start Monday and I am

so excited. Insurance,

401k, profit sharing, company sponsored vacation

(this year was Maui,

but I didn't get to go since I was contracting),

and tons of other

perks. This will ease the burden of the

Cobra expenses after 90

days...yea! I took some time today to

reorganize my thoughts, etc

and feel better today. I've just never felt

the way I did last night

and it really freaked me out. I have to run,

but once

again...sorry. My best friend is getting

married tomorrow...lots to

do and I need to get things organized here at work

before I move into

my new position. I'll check in over the

weekend. Hope everyone is

doing good.

Jen

[Guest guest]

I'm sorry! Please ignore my post! It was meant for another group.

Kimmie

[Guest guest]

use

http://imageshack.us

to post the pics to the web. Then use the links in your email to the

group. It's free.

If you want to make it a little more complex you can shrink the

resulting URLs from imageshack with

http://tinyurl.com/

to make the links appear on one line. It's a bit of work but it's all free.

Jeff

Cooky wrote:

>I forgot I cannot send pictures to the group. Would someone who can , please

>write to me and I will send the pics...they are really informative.

>

>cooky

>

>

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

[Guest guest]

Thanks, Jo Lynne,

I always check my mailbox first to see if there is

spam and when I see the liver support group I don't

delete it. However, the 2 times that it has come up I

haven't opened it as it sounded suspicious. i

appreciate your efforts to keep things on the up and

up! No need to apologize.

Kathy

__________________________________________________

[Guest guest]

Hey, that's okay, Jerri! I hope you don't mind that I appropriated

big chunks of it for a letter my own son's new teacher. :-)

Donna

> So sorry! My letter to my son's teacher this year was sent to the

> list by mistake. Jerri

[Guest guest]

I also found it very helpful to see what other parents

write their childrens' teachers. I need to do more of

this myself! Barb

--- " Donna B. " <donnaaron@...> wrote:

> Hey, that's okay, Jerri! I hope you don't mind that

> I appropriated

> big chunks of it for a letter my own son's new

> teacher. :-)

>

> Donna

>

>

>

> > So sorry! My letter to my son's teacher this year

> was sent to the

> > list by mistake. Jerri

>

>

>

Barb Katsaros

barbkatsaros@...

[Guest guest]

Donna,

No problem! I'm glad something good came out of my mistake. I'm glad I

didn't say anything too personal. Computers and I don't get along too

well sometimes :-[ Jerri

[Guest guest]

Thanks for explaining that. It's a wonderful letter!!!!

On Sep 1, 2005, at 3:56 PM, Jerri Gann wrote:

> So sorry! My letter to my son's teacher this year was sent to the

> list by mistake. Jerri

>

>

[Guest guest]

Jerri,

Thank you for the letter, I have been trying to come up w/ one to send w/ my

son as he is going from an SDC Preschool to a typical one, and I wanted to be

able to express where he is at and our background. You did an eloquent job and I

hope you don't mind if I steel most of it for my own use. Thanks again for the

" best mistake ever " (my son's favorite book)

Joie

Jerri Gann <njgann@...> wrote:

Donna,

No problem! I'm glad something good came out of my mistake. I'm glad I

didn't say anything too personal. Computers and I don't get along too

well sometimes :-[ Jerri

Responsibility for the content of this message lies strictly with

the original author(s), and is not necessarily endorsed by or the

opinion of the Research Institute and/or the Parent Coalition.

[Guest guest]

Jo Lynne,

This is the last place you should have to worry about mistakes or true feelings. After all, isn't that what this group is about anyway? I love you guys, you have helped me so much to understand my husband's disease.

I hope you start feeling better soon, you deserve it

Tammy-So Cal