Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 hi, i am still new to this group,although i am finding out that i am NOT the only one to have some of the symptoms that i am having,and although i wouldn't wish any of this on anyone at all. i am happy to find out that i am NOT the only one suffering,meaning that i am not as CRAZY as i felt i was...with the symptoms that i am suffering, the drs here don't seem to " Believe " that i could have the pain that i am having. i have a MRI scheduled for in the morning due to a serious pain in my left arm and i don't have any reason as to why. i went to the regular dr last monday and he said that he " thought " that it was from a neck injury, but i haven't had any neck injury,although about a month or so ago i was suffering from severe neck pain, i thought that it was from the way i had slept or something, i even went out and bought 2 different kinds of pillows to help alleviate the situation. it did help a little.  with the neck but now my arm is in EXTREME pain,and they done xrays last week and supposedly they didnt' see any thing wrong, but there is something wrong or i wouldn't be in the pain that i am in...and this has been going on for a little over 2 weeks continuosly. if anyone has any suggestions i would greatly appreciate any advice. i have been to the pain clinics here and have had the shots in my back and they didnt' work at all. i have a degenerative disc disease as well, is this common w/CMT? i mean i don't know really.. Please if anyone has any advice i am all ears....thanks so much in advance. i really believe that i too may have fibromyalgia but drs here think that you can't have more than 1 thing going on with you or they think you are CRAZY! Please help if you can. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2010 Report Share Posted April 19, 2010 this sounds very similar to the pain my husband was experiencing and he ended up needing to have 2 discs in his neck fused which after the surgery, all pain went away. (he does NOT have CMT) The MRI should show if this is the case Re: arm/neck pain  hi, i am still new to this group,although i am finding out that i am NOT the only one to have some of the symptoms that i am having,and although i wouldn't wish any of this on anyone at all. i am happy to find out that i am NOT the only one suffering,meaning that i am not as CRAZY as i felt i was...with the symptoms that i am suffering, the drs here don't seem to " Believe " that i could have the pain that i am having. i� have a MRI scheduled for in the morning due to a serious pain in my left arm and i don't have any reason as to why. i went to the regular dr last monday and he said that he " thought " that it was from a neck injury, but i haven't had any neck injury,although about a month or so�ago i was suffering from severe neck pain, i thought that it was from the way i had slept or something, i even went out and bought 2 different kinds of pillows to help alleviate the situation. it did help a little.  with the neck but now my arm is in EXTREME pain,and they done xrays last week and supposedly they didnt' see any thing wrong, but there is something wrong or i wouldn't be in the pain that i am in...and this has been going on for a little over 2 weeks continuosly. if anyone has any suggestions i would greatly appreciate any advice. i have been to the pain clinics here and have had the shots in my back�and they didnt' work at all. i have a degenerative disc disease as well, is this common w/CMT? i mean i don't know really.. Please if anyone�has any advice i am all ears....thanks so much in advance. i really believe that i too may have fibromyalgia but drs here think that you can't have more than 1 thing going on with you or they think you are CRAZY! Please help if you can. Tracey� Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 Tracey, i could have written this post! i have a similar situatuon going on. except i have been ahving difficulty " controling " my arm also. sometimes the pain is unbearable in my neck area. i just saw a new neuro in hopes that he will listen more to me, lol! so far so good. he believes i have something more going on with my CNS and not just with my PNS. i had xrays done last week and they only showed scoliosis, which i suspected i had as did my primary care physician. but they didn't show anything else. and to reasure you the xrays wouldnt showany nerve 'stuff' ti will be the MRI that shows that. i am supposed to have MRI done on my brain cervical spine and my upper thoratic spine. there are more things going on with me with my CNS and i wont go into that right now because i am rushed and i don't think they apply necessarly to your situation.(so please excuse any typing errors). if you would like to know the otger stuff going on i dont mind sharing when i dont have kids needing my attention. Bree-anne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 they say i have 2 herniated discs, i am to go this morning to try the epidurals yet again, they didn't work on my lower back but maybe they will this time,. i just wish that they would send me to a Specialist..glad to hear that your husband is doing better. but i have to say i am scared of surgery but with all the pain i am in,i am all for it right now...thanks for the response, GOD BLESS..tracey From: Jackie Sachs <jackiesachs@...> Subject: Re: arm/neck pain Date: Monday, April 19, 2010, 12:13 PM  this sounds very similar to the pain my husband was experiencing and he ended up needing to have 2 discs in his neck fused which after the surgery, all pain went away. (he does NOT have CMT) The MRI should show if this is the case Re: arm/neck pain  hi, i am still new to this group,although i am finding out that i am NOT the only one to have some of the symptoms that i am having,and although i wouldn't wish any of this on anyone at all. i am happy to find out that i am NOT the only one suffering,meaning that i am not as CRAZY as i felt i was...with the symptoms that i am suffering, the drs here don't seem to " Believe " that i could have the pain that i am having. i� have a MRI scheduled for in the morning due to a serious pain in my left arm and i don't have any reason as to why. i went to the regular dr last monday and he said that he " thought " that it was from a neck injury, but i haven't had any neck injury,although about a month or so�ago i was suffering from severe neck pain, i thought that it was from the way i had slept or something, i even went out and bought 2 different kinds of pillows to help alleviate the situation. it did help a little.  with the neck but now my arm is in EXTREME pain, and they done xrays last week and supposedly they didnt' see any thing wrong, but there is something wrong or i wouldn't be in the pain that i am in...and this has been going on for a little over 2 weeks continuosly. if anyone has any suggestions i would greatly appreciate any advice. i have been to the pain clinics here and have had the shots in my back�and they didnt' work at all. i have a degenerative disc disease as well, is this common w/CMT? i mean i don't know really.. Please if anyone�has any advice i am all ears....thanks so much in advance. i really believe that i too may have fibromyalgia but drs here think that you can't have more than 1 thing going on with you or they think you are CRAZY! Please help if you can. Tracey� Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Bree Ann, i would definitely love to hear from you.. as for me they found out that i have 2 herniated discs, C-6,7 and the say that 4,4 aren't all that great either, so i am to go to have epidurals in my spine this morning, i have had these done before with my lower back that i have trouble with also..they didn't work then but i am so hoping that they do this time. i am terrified of needles, so please pray for me... will try to keep you updated..would love to chat sometime if you are up to it? you can reach me here at my email address or find me on chat at the same address.....barrytracey2001@... take care and best of luck.. i have SO much more i could tell you about these drs but i don't have the time this morning due to my appt. take care and GOD BLESS...tracey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Tracey, You're going to need to find your own specialist for the two herniated discs. If the epirdurals didn't work the first time they won't work again. You're in immense pain. So was I. I found my own specialist in the spine, I had a fusion. The doc was great, a pro at his work. Very caring, and yes, I was scared. But every question I had, including dying on the table, was answered to my satisfaction. And no pain now. I think I responded before to you about this. So look through our Archives for the rest. I was not willing to be enslaved to painkillers for pain when there was a surgical solution. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 thank for responding to me,i know that you are right, and i have asked my dr time and again to refer me to a specialist and with the insurance that i have i have to have a referral, so i am just gonna have to stay on my dr. no matter what. and i really do believe you are right about having it done before and not working, b/c what i had done today hasn't seemed to even touch it, and i like you am tired of being a slave to pain meds... so thanks again for responding,take care and GOD BLESS ...tracey From: gfijig <gfijig@...> Subject: Re: arm/neck pain Date: Thursday, April 22, 2010, 12:03 PM Â Tracey, You're going to need to find your own specialist for the two herniated discs. If the epirdurals didn't work the first time they won't work again. You're in immense pain. So was I. I found my own specialist in the spine, I had a fusion. The doc was great, a pro at his work. Very caring, and yes, I was scared. But every question I had, including dying on the table, was answered to my satisfaction. And no pain now. I think I responded before to you about this. So look through our Archives for the rest. I was not willing to be enslaved to painkillers for pain when there was a surgical solution. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 My husband did epidurals, pain killers, chiropractor, and pain specialist. We met with a fabulous neurosurgeon and almost immediately after surgery he no longer had the pain that he was experiencing. He healed very quickly; within 3 weeks he was laying hardwood floor in our house ( i do NOT recommend this, but he is stubborn) He only wishes he didn't wait so long to have the surgery. Find a neurosurgeon and if he feels you are a good candidate consider this. Of course, get several opinions and try to find the best neuro in your area. If you live near land or Florida i could give you recommendations. jackie Re: arm/neck pain  hi, i am still new to this group,although i am finding out that i am NOT the only one to have some of the symptoms that i am having,and although i wouldn't wish any of this on anyone at all. i am happy to find out that i am NOT the only one suffering,meaning that i am not as CRAZY as i felt i was...with the symptoms that i am suffering, the drs here don't seem to " Believe " that i could have the pain that i am having. i� have a MRI scheduled for in the morning due to a serious pain in my left arm and i don't have any reason as to why. i went to the regular dr last monday and he said that he " thought " that it was from a neck injury, but i haven't had any neck injury,although about a month or so�ago i was suffering from severe neck pain, i thought that it was from the way i had slept or something, i even went out and bought 2 different kinds of pillows to help alleviate the situation. it did help a little.  with the neck but now my arm is in EXTREME pain, and they done xrays last week and supposedly they didnt' see any thing wrong, but there is something wrong or i wouldn't be in the pain that i am in...and this has been going on for a little over 2 weeks continuosly. if anyone has any suggestions i would greatly appreciate any advice. i have been to the pain clinics here and have had the shots in my back�and they didnt' work at all. i have a degenerative disc disease as well, is this common w/CMT? i mean i don't know really.. Please if anyone�has any advice i am all ears....thanks so much in advance. i really believe that i too may have fibromyalgia but drs here think that you can't have more than 1 thing going on with you or they think you are CRAZY! Please help if you can. Tracey� Quote Link to comment Share on other sites More sharing options...
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