Guest guest Posted March 18, 2008 Report Share Posted March 18, 2008 I've talking to various SLPs about apraxia for 2 years now! They " think " it's a possiblity, but they aren't sure yet because Kayla's not talking. When she WAS talking, she would be able to say a word perfectly 8 out of 10 times and then for whatever reason not be able to say it and obviously be frustrated by it. So at that point they were seriously talking apraxia. But now that we have new speech people who have never heard her talk to begin with, they aren't sure. What's driving me nuts is that everyone keeps telling me they THINK she will talk eventually, which is why they won't pursue a formal PECS program or concentrate on signing. Communication is so haphazard -- a few photo cards here a few signs there. So it's like everyone's just waiting for her to talk. Great, but how is she supposed to communicate in the meantime??? Right now all Kayla does is walk to the kitchen when she's hungry and walk to her bedroom when she's tired and yell when she's mad. Ecki Mom to Kayla (DS/ASD, 4/5/04) and Laurie (PDD-NOS, 7/12/01) http://oppositekids.blogspot.com/ > > Ecki, > > Have you had your child checked out for Apraxia? As like most things, not > every child with DS has Apraxia but some of our kids do. Trisha was dx'd with > apraxia about 5 years or so ago. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 How did they diagnose it? I thinking 6, might have apraxia. She has NO speech, my 9 month old babbles more than she does. does not babble, just makes sounds like humming or AHHHHHHHHHHHHHHHHH > > Both of my kids were diagnosed with apraxia by the speech therapist at their > school. One was in kindergarten when diagnosed and the other was in 1st > grade. I don't believe my older son (now 12) really has apraxia. The > speech therapist at the time was just trying to convince me how low > functioning (NOT) he was so she added that to the labels. No one has > bothered with it since. > > > > My 11 year old really does have apraxia. This summer we got him a new > speech therapist that we paid for - not with the school district and she has > played all sorts of fun games with him to assist in his language > development. I only see it now when he is trying to read (still at the > phonics level) and you can tell he knows the word but he just can't say it. > > > > Lori > > Mom to Isaac 12 and Tony 11 > > > > _____ > > From: [mailto: ] On Behalf > Of Soracco > Sent: Sunday, November 29, 2009 5:02 PM > To: DS-Autism > Subject: apraxia > > > > > > At what point, with , do people consider a diagnosis of verbal > apraxia?? Is it possible? How is it diagnosed? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 I thought apraxia was saying the wrong word. For example, you see the word " pond " but say the word " lake. " I think you have to have speech to have apraxia but I don't know. I am rereading " Teaching Reading to Children with Down Syndrome. " Just because someone can't talk doesn't mean they can't read and for SOME of our kids reading teaches language. Do her therapists have any thoughts on the matter? _____ From: [mailto: ] On Behalf Of S Sent: Monday, November 30, 2009 9:07 AM To: Subject: Re: apraxia How did they diagnose it? I thinking 6, might have apraxia. She has NO speech, my 9 month old babbles more than she does. does not babble, just makes sounds like humming or AHHHHHHHHHHHHHHHHH > > Both of my kids were diagnosed with apraxia by the speech therapist at their > school. One was in kindergarten when diagnosed and the other was in 1st > grade. I don't believe my older son (now 12) really has apraxia. The > speech therapist at the time was just trying to convince me how low > functioning (NOT) he was so she added that to the labels. No one has > bothered with it since. > > > > My 11 year old really does have apraxia. This summer we got him a new > speech therapist that we paid for - not with the school district and she has > played all sorts of fun games with him to assist in his language > development. I only see it now when he is trying to read (still at the > phonics level) and you can tell he knows the word but he just can't say it. > > > > Lori > > Mom to Isaac 12 and Tony 11 > > > > _____ > > From: @yahoogrou <mailto:%40yahoogroups.com> ps.com [mailto:@yahoogrou <mailto:%40yahoogroups.com> ps.com] On Behalf > Of Soracco > Sent: Sunday, November 29, 2009 5:02 PM > To: DS-Autism > Subject: apraxia > > > > > > At what point, with , do people consider a diagnosis of verbal > apraxia?? Is it possible? How is it diagnosed? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 The speech therapist that works with Jake mention Apraxia with him. He does not say the wrong word, just the wrong sound. Can't think of a specific word he does right this moment. But it is as if the actually word sounds get twisted up. At least that was what they told us. Jake does say words, he just does not always initiate words. We say he is non verbal when in reality, he talks and says many words, just not on his own. He can echo, he can point and label when prompted, and he can at times ask for things he wants but usually with just one word. He also can read about 50+ words but again......only when he wants to! Funny boy! Holly apraxia > > > > > > At what point, with , do people consider a diagnosis of verbal > apraxia?? Is it possible? How is it diagnosed? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 Basically, you can really only diagnose verbal apraxia after enough speech therapy has been tried and data has been taken to support the diagnosis. If your child has had a year of speech therapy and is having difficulty making sounds even with a desire to try making sounds, then it's a good clue that there is some apraxia there. That being said... When it currently comes to ASD, it is recognized the motor planning difficulties are a component of many ASD's, therefore a separate diagnosis of apraxia is not appropriate. This will hopefully be changed with the new upcoming revisions to the DSM, as many people aren't getting concomitant diagnosises (diagnosi? diagnosees?) and then those challenges are not being addressed. If you have a 6 year old that is not speaking at all, then very likely there is a motor planning issue. It's always very difficult to diagnosis when it comes to DS, ASD and DS/ASD as communication disorders go hand in hand with these. In my practice, I would probably not use verbal apraxia or motor planning diagnosis when a child is on the spectrum until they are a bit older and we can see more into whether the motivation to communicate is present. Best, Jen (SLP who works with ASD and DS a lot) > > > At what point, with , do people consider a diagnosis of verbal > apraxia?? Is it possible? How is it diagnosed? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 I think you're thinking of aphasia. Apraxia is a motor planning difficult. Verbal apraxia is when it affects speech production. Basically, the brain knows what it wants to say, but there is a breakdown in the neural pathways to tell the body how to execute those sounds/words. Children with VA or childhood apraxia of speech (CAS) often will attempt a sound and each time they attempt a sound it sounds different. They also look like they are groping to create that sound each time and they cannot repeat the sound rapidly. For example, if you ask a child with CAS to say " tuh " over and over as fast as they can, they may produce something like, " tuh.....tuh............ta......mmmuh.......tee.... " you get the picture. CAS is difficult, as opposed to VA in adults because children haven't had the practice to produce sounds before they lost the ability, as adults who, say, suffered a stroke, had. > > > I thought apraxia was saying the wrong word. For example, you see the word > " pond " but say the word " lake. " I think you have to have speech to have > apraxia but I don't know. I am rereading " Teaching Reading to Children with > Down Syndrome. " Just because someone can't talk doesn't mean they can't > read and for SOME of our kids reading teaches language. Do her therapists > have any thoughts on the matter? > > Quote Link to comment Share on other sites More sharing options...
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