Guest guest Posted December 23, 2001 Report Share Posted December 23, 2001 Just thought I'd let you all know that I took 2 Vicodin last night and what a difference!! After having been in the worst pain in my life (and I do mean the worst pain) for the last 2 months, I FINALLY had some pain relief!! I slept soundly and uninterrupted for the first time in months, I was up at 830 this AM feeling refreshed and close to pain free. And all it took was 2 Vicodin!! I haven't taken or needed anymore (yet). My point I'm trying to make is that for all the pain I have suffered through the last 2 months, and kept quiet about for fear my doctors would label me, and then finally " breaking " down on Wed and asking my rheumy for a rx for pain medication and being denied----all I needed was a couple of Vicodin to do the trick. I know that 2 Vicodin won't keep the pain at bay forever, but if I at least have something to take when the pain gets bad, I feel like I will be able to manage and cope better. I think that a major part of my recent depression and anger has been directly related to my amt and severity of pain. I have noticed that the littlest thing sets me off--I am both extremely angry or else crying and suicidal. I am also hypersensitive to touch and am hypervigilant. My work has suffered. I haven't been able to work the last 4 days due to my pain. I have to get my pain under control, whether it be with narcotics on a prn (as needed) basis or with alternative therapy or a combination of the 2. But it comes down to finding a willing doctor, which is why I may have to travel out of state to do. Being a RN in CO, I have noticed 2 things with docs here: 1)docs either rx whatever pain med you want and give you refill after refill, then abruptly cut you off; or 2)they refuse to give you anything except in situations such as surgery, and then they rx Tylox/Vicodin/Percocet (which is acceptable), but they rx quantity 10!!! They are either one extreme or another. Needless to say, I am seriously considering reporting my rheumy to the appropriate accrediting commission/agency since he knows my history and I have been a pt of his for 2 yrs and my pain is well documented. Yet he refused to prescribe anything for pain knowing how miserable I was. And for crying out loud----all I even asked for was some Darvocet!! He simply wanted to pass the buck and not get involved, which, as far as I'm concerned, is negligence. I am simply not going to put up with any more crap from doctors (not that I have, but with the pain issue, I have tended to keep my mouth shut because I don't want to be labeled). NO MORE!! Oh, and get this. I am having to COBRA my insurance just for the month of Dec. It has not gone through yet, so everything is being denied, yet as soon as they get it posted, everything will be paid retroactively. I'm told that COBRA can take anywhere from 4-8 wks to get started. Anyway, my rheumy is usually pretty adamant about when he wants to see me and when he wants labs done, esp in light of the fact that my most recent labs have shown signs of early renal failure and a protein that is a precursor to myeloma. Well, knowing that everything so far has been denied, including his office visits, he told me that I could wait until after the first of the yr to come back to see him and to get my labs. Interesting, because beginning Jan 1, I have new health insurance, and he knows it. Don't you think this smells of GREED?? Sounds like my rheumy cares more about the money than the pts..... e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2001 Report Share Posted December 24, 2001 Like I said vicodin save my life when I am in agony and I don't see why Dr's who know we are in chronic pain have such an issue with prescribing them, now I also agree that they can be addicting and that it can be a problem, but if taken as prescribed they can really make life more comfortable. Glad your getting some relief girl, hang in there and merry christmas. Love, ----- Original Message ----- From: <eRene@...> < >; <SalineInfo > Sent: Saturday, December 22, 2001 10:22 PM Subject: Update > Just thought I'd let you all know that I took 2 Vicodin > last night and what a difference!! After having been in > the worst pain in my life (and I do mean the worst pain) > for the last 2 months, I FINALLY had some pain relief!! > I slept soundly and uninterrupted for the first time in > months, I was up at 830 this AM feeling refreshed and > close to pain free. And all it took was 2 Vicodin!! I > haven't taken or needed anymore (yet). > > My point I'm trying to make is that for all the pain I > have suffered through the last 2 months, and kept quiet > about for fear my doctors would label me, and then > finally " breaking " down on Wed and asking my rheumy for > a rx for pain medication and being denied----all I > needed was a couple of Vicodin to do the trick. I know > that 2 Vicodin won't keep the pain at bay forever, but > if I at least have something to take when the pain gets > bad, I feel like I will be able to manage and cope > better. I think that a major part of my recent > depression and anger has been directly related to my amt > and severity of pain. I have noticed that the littlest > thing sets me off--I am both extremely angry or else > crying and suicidal. I am also hypersensitive to touch > and am hypervigilant. My work has suffered. I haven't > been able to work the last 4 days due to my pain. I > have to get my pain under control, whether it be with > narcotics on a prn (as needed) basis or with alternative > therapy or a combination of the 2. But it comes down to > finding a willing doctor, which is why I may have to > travel out of state to do. Being a RN in CO, I have > noticed 2 things with docs here: 1)docs either rx > whatever pain med you want and give you refill after > refill, then abruptly cut you off; or 2)they refuse to > give you anything except in situations such as surgery, > and then they rx Tylox/Vicodin/Percocet (which is > acceptable), but they rx quantity 10!!! They are either > one extreme or another. > > Needless to say, I am seriously considering reporting my > rheumy to the appropriate accrediting commission/agency > since he knows my history and I have been a pt of his > for 2 yrs and my pain is well documented. Yet he refused > to prescribe anything for pain knowing how miserable I > was. And for crying out loud----all I even asked for > was some Darvocet!! He simply wanted to pass the buck > and not get involved, which, as far as I'm concerned, is > negligence. I am simply not going to put up with any > more crap from doctors (not that I have, but with the > pain issue, I have tended to keep my mouth shut because > I don't want to be labeled). NO MORE!! > > Oh, and get this. I am having to COBRA my insurance > just for the month of Dec. It has not gone through yet, > so everything is being denied, yet as soon as they get > it posted, everything will be paid retroactively. I'm > told that COBRA can take anywhere from 4-8 wks to get > started. Anyway, my rheumy is usually pretty adamant > about when he wants to see me and when he wants labs > done, esp in light of the fact that my most recent labs > have shown signs of early renal failure and a protein > that is a precursor to myeloma. Well, knowing that > everything so far has been denied, including his office > visits, he told me that I could wait until after the > first of the yr to come back to see him and to get my > labs. Interesting, because beginning Jan 1, I have new > health insurance, and he knows it. Don't you think this > smells of GREED?? Sounds like my rheumy cares more > about the money than the pts..... > > e > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2002 Report Share Posted January 30, 2002 Shirl, Have you seen the cardiologist yet? If so, please let us know what came of it. I have heard of autoimmune diseases having a relationship to some cardiac problems, but offhand I can't remember exactly what the cause/effect was. Waiting to hear from you! I hope the news is not too bad, and that you've gotten some hope from the book I sent you. Love, Patty ----- Original Message ----- From: shg713@... Sent: Friday, January 25, 2002 8:14 AM Subject: Update Well, I'm not on much these days because I just feel like crap 24/7. I just wanted everyone to know that my doctor is sending me to a cardiologist. He heard something with my heart on a routine exam. He said my heart sounded weak. Also. I've had major cramping and irregular periods for the last 2 months.....bleeding pretty much nonstop. I had blood work done and I have high prolactin levels. Does anyone else have these problems? Well, just wanted to let everyone know how I am and what's going on with me. Sorry I'm not on more, I'm just so sick all the time. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 I haven't heard anything yet but I will let you know when I do. I did a search on Ilenas list and it seems that a lot of women having heart problems posted questions at one time or another. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Patty I spoke with Shirl and I think what she has may be MVP or mitral valve prolapse, it sounds like it from what she told me on emial, I sure hope she gets back to us if that is it or not, again I am also not sure if that would be an autoimmune disease, maybe e or Dr Kolb can tell us, at any rate, my mom has MVP and she is fine, the Dr's tell her it is a mild case and not to worry, but it can make you feel strange at times. Love, PS let us know Shirl how you are we care! ----- Original Message ----- From: Patty Sent: Wednesday, January 30, 2002 4:43 PM Subject: Re: Update Shirl, Have you seen the cardiologist yet? If so, please let us know what came of it. I have heard of autoimmune diseases having a relationship to some cardiac problems, but offhand I can't remember exactly what the cause/effect was. Waiting to hear from you! I hope the news is not too bad, and that you've gotten some hope from the book I sent you. Love, Patty ----- Original Message ----- From: shg713@... Sent: Friday, January 25, 2002 8:14 AM Subject: Update Well, I'm not on much these days because I just feel like crap 24/7. I just wanted everyone to know that my doctor is sending me to a cardiologist. He heard something with my heart on a routine exam. He said my heart sounded weak. Also. I've had major cramping and irregular periods for the last 2 months.....bleeding pretty much nonstop. I had blood work done and I have high prolactin levels. Does anyone else have these problems? Well, just wanted to let everyone know how I am and what's going on with me. Sorry I'm not on more, I'm just so sick all the time. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2002 Report Share Posted January 31, 2002 Hi Shirl, I am glad to hear from you. Yeah it seems that there are allot of problems we all have, I have this bone thing, but I was happy to find out it is not as bad as I was led to believe, these Dr's can really mess with your head I mean sometimes they downplay what you have but I have never had one tell me I had something so serious before that wasn't true, frustrating as heck. Anyhow keep us updated on you when you can we all care about you so much and want to see you get well. Take care ----- Original Message ----- From: shg713@... Sent: Thursday, January 31, 2002 11:21 AM Subject: Re: Update I haven't heard anything yet but I will let you know when I do. I did a search on Ilenas list and it seems that a lot of women having heart problems posted questions at one time or another. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2002 Report Share Posted February 1, 2002 To my knowledge MVP is not associated with implant disease. Atypical chest pain is associated with implants and there is a paper on this subject that describes the symptoms. Please check out the Silicone and Saline newsletter for more information on autoimmune diseases associated with implants at www.plastikos.com. . ----- Original Message ----- From: Heer Sent: Thursday, January 31, 2002 10:13 AM Subject: Re: Update Patty I spoke with Shirl and I think what she has may be MVP or mitral valve prolapse, it sounds like it from what she told me on emial, I sure hope she gets back to us if that is it or not, again I am also not sure if that would be an autoimmune disease, maybe e or Dr Kolb can tell us, at any rate, my mom has MVP and she is fine, the Dr's tell her it is a mild case and not to worry, but it can make you feel strange at times. Love, PS let us know Shirl how you are we care! ----- Original Message ----- From: Patty Sent: Wednesday, January 30, 2002 4:43 PM Subject: Re: Update Shirl, Have you seen the cardiologist yet? If so, please let us know what came of it. I have heard of autoimmune diseases having a relationship to some cardiac problems, but offhand I can't remember exactly what the cause/effect was. Waiting to hear from you! I hope the news is not too bad, and that you've gotten some hope from the book I sent you. Love, Patty ----- Original Message ----- From: shg713@... Sent: Friday, January 25, 2002 8:14 AM Subject: Update Well, I'm not on much these days because I just feel like crap 24/7. I just wanted everyone to know that my doctor is sending me to a cardiologist. He heard something with my heart on a routine exam. He said my heart sounded weak. Also. I've had major cramping and irregular periods for the last 2 months.....bleeding pretty much nonstop. I had blood work done and I have high prolactin levels. Does anyone else have these problems? Well, just wanted to let everyone know how I am and what's going on with me. Sorry I'm not on more, I'm just so sick all the time. -Shirl- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2002 Report Share Posted February 3, 2002 Mitral valve prolapse is typically not too concerning, nor is it often that surgeons or cardiologists will do anything to correct it. It is typically a benign problem and is not in and of itself an autoimmune problem. It can cause mitral insufficiency which in turn would lead to unpleasant cardiac symptoms such as shortness of breath, palpitations, and fatigue. The hallmark of MVP is a heart murmur, which is usually of a higher grade than other murmurs. Most people with MVP should follow the guidelines for any heart condition, and that is low salt, low cholesterol, low fat diet, no smoking, exercise, etc. Some people do need cardiac medication to treat MVP and some do need diuretics like Lasix due to edema or swelling of the extremities. But otherwise, the majority of people do just fine with it. e ----- Original Message ----- From: Heer Sent: Saturday, February 02, 2002 8:26 AM Subject: Re: Update Patty I spoke with Shirl and I think what she has may be MVP or mitral valve prolapse, it sounds like it from what she told me on emial, I sure hope she gets back to us if that is it or not, again I am also not sure if that would be an autoimmune disease, maybe e or Dr Kolb can tell us, at any rate, my mom has MVP and she is fine, the Dr's tell her it is a mild case and not to worry, but it can make you feel strange at times. Love, PS let us know Shirl how you are we care! ----- Original Message ----- From: Patty Sent: Wednesday, January 30, 2002 4:43 PM Subject: Re: Update Shirl, Have you seen the cardiologist yet? If so, please let us know what came of it. I have heard of autoimmune diseases having a relationship to some cardiac problems, but offhand I can't remember exactly what the cause/effect was. Waiting to hear from you! I hope the news is not too bad, and that you've gotten some hope from the book I sent you. Love, Patty ----- Original Message ----- From: shg713@... Sent: Friday, January 25, 2002 8:14 AM Subject: Update Well, I'm not on much these days because I just feel like crap 24/7. I just wanted everyone to know that my doctor is sending me to a cardiologist. He heard something with my heart on a routine exam. He said my heart sounded weak. Also. I've had major cramping and irregular periods for the last 2 months.....bleeding pretty much nonstop. I had blood work done and I have high prolactin levels. Does anyone else have these problems? Well, just wanted to let everyone know how I am and what's going on with me. Sorry I'm not on more, I'm just so sick all the time. -Shirl- Quote Link to comment Share on other sites More sharing options...
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