Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Welcome Steve, I'm looking forward to hearing your Achalasia story. Where you are from, how long have you been officially diagnosed etc. You've certainly come to the right place I don't mean to lecture you, but you do have the right to ask this Doctor how many myotomies he has performed. How many open and how many laproscopic etc. Any way, my advice is don't be shy, be informed. Good luck tomorrow, . (Thunder Bay, Ontario) P.S. I'm surprised that let this message go through with the subject line "Hi!" I know I am still getting that virus sent to my inbox everyday. Thank God for Norton Antivirus. Hi! Hi everyone.I've just joined.I'm going to consolt with a doctor tomorrow about surgery for my Acalasia. I'm very nervious. This will be my first big surgery. Anyways, I look forward in speaking to you all.Steve:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 Welcoming you Steve, thanks so much for introducing yourself. I have CMT 2 also and was diagnosed as a child. We have a couple of members from NH, I'm sure they'll see your post and respond about a doctor. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 Hello, Steve Welcome to join us. : ) I understand how you feel..... I lead a normal life with CMT. CMT is not my life. CMT is just one part of my life. I take control of my life through planning and coping with all parts of my life. It is all about " ME " , not " CMT " . I am much more than CMT. Different people have different definitons about what is normal. For example, one of my friend insists that she has to give brith to children to be normal and to have a normal life. I have no interest in raising children in my life. Thus, I decide not to have children in my normal life. Some people think running is normal. I also run and run in a very slow and different way or I don't run because I am not in a hurry in my life. My life is very normal in my own definitions. I define what is normal for my own life. I live my life for about 70+ years and die. I don't live other people's lives and thus don't need their defintions of what is normal for their own lives. Maybe my life with CMT is normal, their lives are not normal............... who knows.........no one has the ultimate wisdom to judge what is normal and what is not normal.................... On Sun, Apr 25, 2010 at 3:01 AM, skopchajr <skopchajr@...> wrote: > > > Hello to all... Just a quick note to introduce myself. I'm 41 years young > and was diagnosed with CMT (type II) when I was in middle school. In my > teens, I relied on a steady innoculation of stubborn to fight the awkward > changes life threw my way, but succumbed in college to the emotional > realization that, no matter how hard I worked to build a " normal " life, I > would forever face the limitations of CMT. From there, I descended rapidly, > plunging from a can-do personality to a can-I? mentality to an I can't > reality. Fortunately, I was able to pick myself up, and with the support of > family, friends, and faith, have spent the years since re-claiming my life. > > In any case, I am glad to be a part of this group and eager to participate > in the shared journey. Also, I'm going to be moving to Keene, NH, in > June/July, so if anyone knows a good specialist, I'd appreciate the info. > > Regards, > Steve > > > -- May you be well and happy Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2010 Report Share Posted April 25, 2010 Thank you, Gretchen... not only for the warm welcome, but also, for your tireless generosity and vast expertise Steve > > Welcoming you Steve, thanks so much for introducing yourself. I have CMT 2 also and was diagnosed as a child. > > We have a couple of members from NH, I'm sure they'll see your post and respond about a doctor. > > Gretchen > Quote Link to comment Share on other sites More sharing options...
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